Supporting Aging in Place in Subsidized Housing: An Evaluation of the WellElder Program Alisha Sanders, MPAff and Robyn Stone, DrPH January 2011 Funding for this project was provided by the SCAN Foundation. The views presented here are those of the authors and do not necessarily represent the official statements or views of the funders. The SCAN Foundation is an independent, not-for-profit charitable foundation dedicated to longterm services and supports that keep seniors self-sufficient, at home and in the community. As the only foundation with a mission focused exclusively on long-term care, The SCAN Foundation is taking action to develop and support programmatic and policy-oriented recommendations and solutions that address the needs of seniors and influence public policy to improve the current system. Supporting Aging in Place in Subsidized Housing: An Evaluation of the WellElder Program 2011, LeadingAge and the LeadingAge Center for Applied Research. All rights reserved. LeadingAge Center for Applied Research 2519 Connecticut Avenue, NW Washington, DC 20008 202-508-1208 www.LeadingAge.org/reserach The LeadingAge Center for Applied Research, formerly IFAS, bridges practice, policy and research to advance high-quality health, housing and supportive services for America’s aging population. The Center’s three signature objectives are to advance quality of aging services, develop a high-performing workforce and enhance resident options through services and supports. Through applied research, the Center creates an evidence-base to improve policy and practice. LeadingAge is an association of 5,500 not-for-profit organizations dedicated to expanding the world of possibilities for aging. Table of Contents Chapter 1 – Introduction ................................................................................................................ 1 Statement of the Problem .......................................................................................................... 1 Rationale ..................................................................................................................................... 2 Study Overview ........................................................................................................................... 3 Study Methodology..................................................................................................................... 3 Study Limitations and Challenges ............................................................................................... 6 Chapter 2 – Housing Communities and Resident Characteristics .................................................. 8 Housing Communities ................................................................................................................. 8 Resident Characteristics.............................................................................................................. 9 Resident Incidents..................................................................................................................... 16 Resident Move Outs.................................................................................................................. 17 Chapter 3 – WellElder Program Implementation ......................................................................... 18 Program History ........................................................................................................................ 18 Program Elements..................................................................................................................... 18 Chapter 4 – Study Findings ........................................................................................................... 35 Program Benefits ...................................................................................................................... 35 Differences between Members and Non-Members................................................................. 43 Program Participation ............................................................................................................... 48 Chapter 5: Conclusions and Recommendations ........................................................................... 52 WellElder Implementation ........................................................................................................ 52 Impact of the WellElder Program ............................................................................................. 52 Potential for Replication ........................................................................................................... 54 Recommendations for Improvement ....................................................................................... 54 Concluding Remarks.................................................................................................................. 59 References .................................................................................................................................... 60 Appendix A: Group Education Sessions ........................................................................................ 62 Appendix B: Resident Self-Administered Survey Results, by Membership .................................. 63 List of Tables and Exhibits Table 2.1 Housing Property Characteristics .................................................................................................. 8 Table 2.2: Resident Age, Gender and Residential Status ............................................................................ 10 Table 2.3: Resident Race and Ethnicity ....................................................................................................... 10 Table 2.4: Resident Place of Birth and Language ........................................................................................ 11 Table 2.5: Resident Receiving MediCal ....................................................................................................... 11 Table 2.6: Self-Reported Health Status ....................................................................................................... 11 Table 2.7: Self-Reported Health Conditions................................................................................................ 12 Table 2.8: Percent of Residents Reporting Multiple Chronic Health Conditions ........................................ 12 Table 2.9: Percent of Residents Troubled by Pain ...................................................................................... 13 Table 2.10: Percent of Residents Reporting ADLs and IADLs...................................................................... 13 Table 2.11: Resident Reported Types of ADLs and IADLs ........................................................................... 14 Table 2.12: Resident Reported Falls ........................................................................................................... 14 Table 2.13: Resident Reported Emergency Room Visits, Hospital Stays and Outpatient Surgeries........... 15 Table 2.14: Resident Reported Prescription Medications .......................................................................... 15 Table 2.15: Support from Family, Significant Others or Friends ................................................................. 16 Table 2.16: Reported Level of Assistance Provided by Family, Significant Others or Friends .................... 16 Table 2.17: Resident Incidents .................................................................................................................... 17 Table 2.18: Resident Move Outs ................................................................................................................. 17 Table 3.1: Staffing Pattern .......................................................................................................................... 19 Table 3.2: WellElder Program Membership................................................................................................ 20 Table 3.3: Non-Member Reasons for Not Joining WellElder Program* ..................................................... 21 Table 3.4: Potential of Joining Program in Future ...................................................................................... 21 Table 3.5: Number of Member Visits to WellElder Staff ............................................................................ 23 Table 3.6: Percent of Participants with At Least One Visit to WellElder Staff ............................................ 23 Table 3.7: Average Number of Visits to WellElder Staff per Member ........................................................ 24 Table 3.8: Percent of Members with At Least Five Visits to WellElder Staff .............................................. 24 Table 3.9: Frequency of Services Provided by Service Coordinator ........................................................... 27 Table 3.10: Frequency of Services Provided by Health Educator ............................................................... 30 Exhibit 1: Examples of Residents Assisted through the WellElder Program............................................... 33 Table 4.1: How the WellElder Program Helps Residents* .......................................................................... 41 Table 4.2: Differences between WellElder Program Member and Non-Member Characteristics ............. 44 Table 4.3: Differences between WellElder Program Member and Non-Member Service Use .................. 45 Table 4.4: Number of Resident Incidents ................................................................................................... 47 Table 4.5: Percent of Residents Experiencing Incidents ............................................................................. 47 Table 4.6: Resident Move Outs and Destination ........................................................................................ 48 Chapter 1 – Introduction The goal of this study is to evaluate the WellElder Program, a program developed and implemented in four low-income senior housing properties in the San Francisco bay area operated by Northern California Presbyterian Homes and Services (NCPHS) and Bethany Center Senior Housing. The program pairs a nurse health educator and resident service coordinator to help elderly residents maintain independent living by offering wellness and health education, health monitoring and individualized service coordination. The study is intended to add to the evidence base of the potential benefits of integrating health and supportive services into subsidized housing for older adults. Statement of the Problem Advanced age and low income place older adults at greater risk for chronic illness and disability, and consequently in greater need of health and long-term care services (Redford and Cook, 2001). For example, individuals age 85 and older are seven times more likely to need help with basic personal tasks like getting around the house, dressing, bathing, eating and going to the toilet than individuals age 65 to 75 (National Center for Health Statistics, 2007). Four out of five older adults age 65 and older have one or more chronic health conditions such as hypertension, heart disease or arthritis that may contribute to disability, while half experience at least two (Centers for Disease Control and Prevention, 2007). Multiple chronic diseases, along with poor health status and functional limitations, are more prevalent among the lower-income elderly. Individuals with multiple chronic conditions are particularly vulnerable to suboptimal care (Vogeli, 2007). They tend to use services more frequently and a greater array of services, which makes coordination of care more difficult. The number of different physicians seen annually by the average Medicare patient with a chronic condition ranges from four for persons with one condition up to 14 for persons with five or more conditions. As the number of providers involved in patients’ care increases, patients are likely to find it increasingly challenging to understand, remember and reconcile the instructions of those providers. Because persons with multiple chronic conditions take more medications on average, they are more likely to suffer adverse drug events. Having multiple chronic conditions also makes it more challenging for patients to participate effectively in their own care. Many people 65 and older have significant difficulty reading and comprehending medical information that is pertinent to their health. In one study of enrollees in a Medicare managed care plan, more than one-third of study participants had inadequate or marginal health literacy and the prevalence was found to increase steadily with age (Gazmararian et al., 1999).1 Individuals with 1 Health literacy is not limited to the ability to read, but also includes the ability to understand instructions on prescription drug bottles, appointment slips, medical education brochures, doctor's directions and consent forms, and the ability to negotiate complex health care systems. It requires a complex group of reading, listening, analytical, and decision-making skills, and the ability to apply these skills to health situations (National Library of Medicine, 2010). Evaluation of the WellElder Program 1 lower incomes are also more likely to have limited health literacy (Office of Disease Prevention and Promotion). Health literacy affects people’s ability to navigate the healthcare system, including filling out complex forms and locating providers and services, share personal information such as health history with providers and engage in self-care and chronic-disease management (Office of Disease Prevention and Health Promotion). Low health literacy has been linked to lower use of preventative services (Scott, Gazmararian, Williams and Baker, 2002). It has also been found to be linked to lower self-rated health status and higher rates of hospitalization and emergency room use (Cho, Lee, Arozullah and Crittenden, 2008). An older adult’s inability to manage their health and functional needs not only potentially endangers their ability to remain safely independent in their own home, but the high utilization of health care services increases the cost burden on both the individual and the Medicare and Medicaid systems. For several years, policymakers, service providers and aging advocates have sought new ways of organizing long-term care supports in a manner that is both desirable and affordable. The emphasis has been on shifting away from institutional services and expanding opportunities for older adults to receive the assistance they need in the community. More recently, there has also been greater focus on strengthening care delivery options to help older adults with chronic conditions better manage their diseases and their transitions across settings, with the goal of improving their health outcomes and quality of life while lowering costs. One promising option for helping meet these goals is subsidized senior housing communities. With their economies of scale, the properties provide a potentially efficient platform to reach a concentrated number of individuals who could benefit from better self-care knowledge, monitoring and referral to appropriate community services. Interventions that link health and supportive services to low-income senior housing may assist elderly residents to better manage their health, decrease their use of emergency room and hospital services and maintain independence in their apartments for a longer period of time thus delaying or preventing transfers to a higher level of care. Rationale About two million low-income older adults, mostly single women in their mid 70s to early 80s, live in independent, largely multi-unit federally subsidized housing—more than the number who live in nursing homes (Wilden and Redfoot, 2002). Findings from a range of studies indicate that significant numbers of these residents are aging and experiencing chronic illnesses and/or disabilities. According to the U.S. Department of Housing and Urban Development, the median age of Section 202 residents in 2006 was 74 years old and almost one-third of residents were 80 or older (Haley and Gray, 2008). In an analysis of the AHEAD Wave 2 survey (Asset and Health Dynamics Among the Oldest Old), Gibler (2003) found that older subsidized housing residents reported being in poorer health than unsubsidized renters and experienced more chronic health conditions. Gibler’s study also indicated that subsidized housing residents have a significantly Evaluation of the WellElder Program 2 higher number of difficulties carrying out basic activities of daily living (ADLs) and instrumental activities of daily living (IADLs) than unsubsidized renters.2 Using data from the 2002 American Community Survey, Redfoot and Kochera (2004) found that older renters receiving subsidies were twice as likely to experience activity limitations as home owners. Over half reported limitations in activities such as walking and climbing stairs, compared to one quarter of older homeowners. A third reported difficulty with shopping or going to the doctor, twice that of older homeowners. Estimates prepared for the U.S. Commission on Seniors and Affordable Housing (2002) show that one third of subsidized renters have some difficulty with ADLs and 12 percent have a mental or cognitive disability that interferes with everyday activities. A 2006 survey of managers for Section 202 and Low Income Housing Tax Credit (LIHTC) properties indicated that a significant portion of Section 202 residents (36 percent) and LIHTC residents (38 percent) are frail (have difficulty walking or performing everyday tasks) or disabled (Kochera, 2006). Together, the above studies suggest significant numbers of older adults with chronic illness and disability live in subsidized housing settings, many of whom are highly likely to have difficulty managing their health care needs and have unmet needs for assistance with basic activities. Interventions that link health and supportive services to low-income senior housing may assist elderly residents in remaining healthier and more independent in their apartments for a longer period of time, minimize ER and hospital visits and delay or prevent nursing home transfers. Study Overview The study was conducted by the LeadingAge Center for Applied Research. Funding for the project was provided by The SCAN Foundation. The study had three objectives: • Objective 1: Describe the components of the WellElder Program and understand its implementation, including how consistently the program is implemented across the 4 sites. • Objective 2: Understand program users and non-users and the factors associated with the decision to enroll. • Objective 3: Understand the perceived benefits of the program to the residents, their families, the staff and the properties. Study Methodology The formative evaluation employed a multifaceted, qualitative and quantitative methodology. Data collection strategies included: • a self-administered resident survey • focus groups • structured interviews 2 ADLs refer to basic activities of daily living such as bathing, dressing, eating, going to the toilet and getting around the house. IADLS refer to instrumental activities of daily living such as shopping, housekeeping, taking medications, using the phone etc. Evaluation of the WellElder Program 3 • services provided, resident incident and resident move out tracking system The evaluation was conducted over a one-year period between July 2009 and June 2010, with service use, incident and move out data tracked for an eight-month period from October 2009 through May 2010. The study was reviewed by an Institutional Review Board to ensure all data collection activities met guidelines for human subject protection and was granted an exempt status. Each data collection component is described in more detail below. Resident Survey A self-administered survey was distributed to all residents in the four participating properties. Two survey versions were created, one for WellElder program members and another for nonmembers. Each survey contained two sections. The first section was identical in both surveys and asked residents about their health and functional status, their health service use, the support network and their service use. The second section differed in each survey, asking program members about their use of and benefits from the program and asking non-members why they chose not to participate in the program. Membership status was identified by the WellElder staff and any mention of the term “WellElder” in the survey was clarified as the “program in your building where you receive assistance from the service coordinator and nurse.” The appropriate survey was distributed to each resident’s mail box and residents returned completed surveys to a secure box in a common location in the property. The surveys were anonymous and confidential and contained no personal identifiers. Surveys were translated into five languages, including Russian, Chinese, Korean, Vietnamese and Spanish. Assistance completing the survey was provided to residents requesting help. To help encourage a higher response rate, residents in each property were entered in a drawing for a gift card upon completing the survey. Response rates for the survey were as follows: Surveys Completed Total Residents Response Rate Property 1 92 258 35.7% Property 2 84 217 38.7% Property 3 140 257 54.1% Property 4 89 156 56.4% TOTAL 404 888 45.5% Interviews Structured, one-on-one interviews were conducted with the service coordinators, health educators, property managers and the NCPHS Director of Resident Services. These formal interviews were supplemented with several informal conversations to gain additional information and clarity about the WellElder program. Two rounds of interviews were completed with the service coordinators and health educators in each of the four housing properties. The first set of interviews focused on understanding how the program operates. The second round focused on the perceived benefits of the program to the residents, the housing property and others. The property manager of each housing site was also interviewed about the perceived benefits of the program to residents and the housing property. The NCPHS Director of Resident Services was interviewed about the history and development of the program, program operations and perceived benefits of the program. Evaluation of the WellElder Program 4 Focus Groups Focus groups were conducted with WellElder program members and non-members. Membership status was identified by the WellElder staff in each property. Groups were conducted in English, Russian and Chinese to ensure that the experiences and opinions of non-English speakers were captured. The purpose of the focus group with program members was to understand what type of assistance they receive from the WellElder program, what they think are the benefits of the program, what difference they believe it would make if the program were not available and any ways they would change the program. The focus group with non-members attempted to understand why they do not participate in the program, if they perceive there are any benefits of the program, where they currently get assistance with their health and wellness needs and whether they ever foresee participating in the program. A total of 11 focus groups were held, six with program members (two in English, two in Chinese, and two in Russian) and five with nonmembers (three in English, one in Chinese and one in Russian). Residents were compensated $20 for their participation. Services Provided, Incident and Move Out Tracking Data was tracked over an eight-month period from October 2009 to May 2009 in the three areas described below. This information was partially collected by the WellElder staff and the study team worked with the WellElder staff to develop formal data collection forms that added additional elements to the data already collected by the staff. The study team provided training and an instruction guide on the data collection processes. At the beginning of the study, the WellElder staff assigned each member and non-member an ID number. All data was tracked by those ID numbers so that no personal identifiable information was shared with the study team. All data was provided to the study team on a monthly basis. 1) Services provided by the service coordinator and health educator - The service coordinator and health educator in each building tracked the type of assistance they provided to WellElder program participants. The tracking form used was based on a prior form used by the WellElder staff. This was done to help enhance the consistency of the data since it was a form and method they were already familiar with. WellElder staff tracked the date the participant was seen, the amount of time spent directly with the resident, the amount of collateral time spent doing follow-up or other activities related to that visit and the types of assistance provided during the visit. The types of services that were tracked can be seen in Table 3.9 (service coordinator) and Table 3.10 (health educator). Only services related to the WellElder program, i.e. health and wellness, were tracked by the service coordinator. For example, if the service coordinator helped a resident receive a rebate from an energy assistance program for low-income seniors, that service would not be captured for this study. 2) Resident incidents – The WellElder staff tracked significant incidents, including falls, 911 calls, emergency room visits, hospital stays and nursing home stays. This data was tracked for both WellElder members and non-members. WellElder staff identified the incidents through incident reports provided by the property management, security logs, or through direct knowledge of resident events. 3) Resident move outs – The WellElder staff tracked resident move outs and the reason for move out. Reasons included moving to another senior subsidized apartment community, Evaluation of the WellElder Program 5 to another apartment property, in with family, to a residential care for the elderly/assisted living facility, to a nursing home or death. WellElder staff identified move outs and their reason from property management. Data Analysis Study data was analyzed through a combination of qualitative and quantitative methods. Findings from both the quantitative and qualitative techniques were interwoven to provide a comprehensive analysis. Qualitative data came from the resident focus groups and structured and informal interviews. A deliberate, inductive process was employed to analyze the data—moving from individual interview and focus group write-ups to site level and group summaries and, ultimately, to a synthesized set of findings across the properties. For the focus groups, the note taker and moderator debriefed shortly after each group and took notes to record key themes. When all focus groups were completed, the study team identified key themes across all the groups and across each housing property. The same process was used with the structured interviews. Quantitative data were collected from the resident self-administered survey and the services provided, resident incident and resident move out tracking process. All data were entered into Excel and imported into SAS for data analysis. For the resident survey, various statistical tests were run, including basic descriptive statistics establishing means, medians, and frequency distributions by individual housing properties and program members and non-members. Fisher’s exact tests were used to compare members versus non-members in categorical variables and Ttests were used for numeric variables. Descriptive statistics were calculated to describe the frequency of service and time spent on services for the various types by property and by race/ethnicity. Event rates and incidence of various health events were calculated by property and membership status. Study Limitations and Challenges Every research study faces limitations and challenges. In this study, limitations are defined as issues that are inherent in the type of research being conducted. Challenges are defined as issues that arose during the course of conducting the study that are barriers to achieving study objectives and which were (or were not) overcome. Two major limitations are noted. Although the study compared users with non-users, a control group was not available, which prevented examining the impact of the program on resident outcomes. The study should be viewed as descriptive and providing information on possible relationships that could be explored with additional resources to support a more rigorous design. In addition, focus group participants who provided an evaluative perspective on the WellElder program were told beforehand about the general topic area that would be discussed. The residents who agreed to participate were self-selecting or recommended by the WellElder staff— as is true of many focus group efforts. Although the results from the focus groups were analyzed in conjunction with other data sources, the possible introduction of bias based on focus group makeup must be acknowledged. Evaluation of the WellElder Program 6 Two primary challenges were encountered in the data collection process. First, service use data was tracked by the individual service coordinators and health educators in each of the four housing properties. WellElder staff visits with residents can address multiple issues and it is possible that all service coordinators and health educators did not categorize the types of assistance they provided similarly. Most areas of assistance are distinct but some are slightly more subjective. Although the study team provided guidance for all WellElder staff on the data collection process, there is still a possibility of some inconsistent tracking across properties. Additionally, service coordinators were asked to track only those services that were considered “WellElder” services and not all services they provide. WellElder services are ones that have a health and wellness-related element. Although guidance was given to service coordinators about the types of services to track and not track, they still individually decided what services to record. It is possible that there may be some inconsistencies across the service coordinators in what services they did or did not record. To maximize uniformity and ensure the quality of the data, the study team reviewed the data submitted monthly from the service coordinators and health education for potential recording discrepancies and had frequent conversations with them to help ensure consistency. Second, the data on resident incidents (falls, 911 calls, ER visits, hospitalizations and nursing facility stays) may be incomplete. Because the properties are independent housing communities, they do not track the coming and going of residents and residents are not required to check in with the property. All of the properties have 24-hour onsite security who see everyone coming and going into the building. In addition, all residents have emergency notification systems in their apartments to notify security when they have an emergency and need assistance. Most transfer in and out of the building due to one of the incidents being tracked would have been recorded by the security who then create incident reports. In addition, residents often alert the WellElder staff when they have had an incident, and neighbors often do the same. There is a chance, though, that an incident may have gone unknown to the property or WellElder staff. For example, a resident’s doctor may send them directly to the ER from an appointment in their office. Evaluation of the WellElder Program 7 Chapter 2 – Housing Communities and Resident Characteristics The WellElder program operates in four senior housing communities in the San Francisco Bay and San Jose areas. Three of the properties—Eastern Park Apartments, Western Park Apartments and Town Park Towers—are operated by Northern California Presbyterian Homes and Services for the Aging. The fourth—Bethany Center Senior Housing—is a free-standing community. Each is an affordable independent rental property designed for low-income seniors aged 62 and above. Each property has articulated a philosophy of helping to support their residents to meet their health and supportive service need and to safely age in place. Housing Communities The four properties were developed through funding mechanisms from the U.S .Department of Housing and Urban Development. One property was developed through the Section 202 program, which is the only federal financing source specifically for senior housing. A Section 202 property receives a construction loan plus project-based rental subsidies that limit the tenant’s monthly rent payment to 30 percent of their income. Qualified tenants generally must be at least 62 years old and have incomes less than 50 percent of the area median income. The other three properties were developed through the Section 236 program. Section 236 is a mortgage interest subsidy program for all age levels, but properties can be designated for elderly households. Tenant eligibility is limited to households earning under 80 percent of the area median income. HUD sets a basic rent and tenants must pay either the basic rent or 30 percent of their income, whichever is higher. However, the property may also receive some form of rental assistance subsidy, such as Section 8, that limits the tenant’s monthly rent payment to 30 percent of their income. These rental subsidies may cover all or a portion of the units in the property. Table 2.1 describes the type of subsidy mechanism through which each property was developed, the number of units and residents in each property and the median income of the resident population. Table 2.1 Housing Property Characteristics Property 1 Property 2 Property 3 Property 4 Section 202 Section 236 Section 236 Section 236 Number of Units 201 182 216 122 Units with Project-based Rent Subsidies* 201 115 173 109 Number of Residents** 270 220 270 157 $9,772 $14,700 $15,312 $10,288 Subsidy Type Median Resident Income*** *Some residents in units that do not have an attached project-based rental subsidy may have a tenant-based Section 8 voucher from the City of San Francisco. **At start of data collection period. ***Information provided by each housing property from their tenant eligibility system. Evaluation of the WellElder Program 8 Resident Characteristics Residents in all four housing properties were asked to complete a self-administered survey that asked about their background, health and functional status, health services use and support network. The following description of residents is drawn from the survey responses. Summary of Resident Characteristics The median age of the housing residents is 78 years with the youngest age 38 and the oldest age 95. Sixty-three percent of the residents are female and three out of five live alone. The resident population is extremely diverse. Only one third of the residents are white, ranging from 14 percent to 58 percent across the four properties. The largest group—58 percent—is Asian. A little less than one in 10 are Hispanic (ranging from four percent to 21 percent across the properties) and a little less than 3 percent are black or African American (ranging from one percent to six percent). Only 14 percent of the residents were born in the United States and only 16 percent report English as their first language. The majority of the resident population across the four properties is of Chinese or Russian origin. With respect to their health status, 71 percent of the residents indicated that their health was fair to poor. Over half (54 percent) reported having three or more chronic conditions with the three top illnesses identified as high blood pressure, arthritis and heart problems. A little over one third of the residents reported having a memory-related disease and 28 percent reported emotional or psychiatric problems. The latter two conditions are particularly likely to be underestimated given that they are self-reported and subject to concerns about stigma or lack of knowledge. Three out of four residents across all four properties reported that they are troubled with pain, with a little less than one in four indicating that they are in severe pain. On average, residents reported taking six prescription medications, ranging from none to 21. In terms of functional status, over one half (55 percent) of the residents report that they have limitations in one or more activities of daily living. More than one third (35 percent) have fallen at least once over the past 12 months. With respect to service use, almost one third of the residents reported using the emergency department over the past year. One in five had been hospitalized at least once and close to one in four had received out-patient surgery. The majority of residents reported the availability of some level of social support. Eighty-seven percent indicated that they had someone in the area to call if necessary. Almost one half indicated that they received calls from someone in their social network on a daily basis; one out of five reported having daily visits. On the other hand, 30 percent of the residents received visitors once a month or less. When asked about assistance from their social networks, 11 percent reported that they did not need any help. At the opposite extreme, almost one third reported receiving considerable assistance. Evaluation of the WellElder Program 9 It is possible that the survey results may overestimate residents’ health level and understate their functional status to some degree. Potentially some of the residents who did not participate were the frailer residents who might have more difficulty completing the survey. It is also possible residents may not have accurately disclosed their health status, health conditions or level of disability and need for assistance. This may reflect residents’ denial about their health status and functioning level or fear that revealing information about their needs will jeopardize their ability to remain in an independent living setting. Demographics As shown in Table 2.2, the median age of residents completing the questionnaire in the four properties is approximately 78 years old. Considering only residents age 62 and over, the median age is 79 years old. Between 58 and 69 percent of residents completing the survey are female. This proportion is slightly smaller than is generally seen in affordable senior housing properties, where an average 80 percent of residents are females. The survey also revealed fewer residents who live alone in comparison to the average affordable senior housing property. Table 2.2: Resident Age, Gender and Residential Status Property 1 Property 2 Property 3 Property 4 Total Median Age 79 78 78 77.5 78 Age Range 64-93 58-95 55-94 38-92 38-95 41.3% male 58.7% female 31.0% male 69.0% female 38.4% male 61.6% female 36.4% male 63.6% female 37.1% male 62.9% female 44.6% 60.7% 69.6% 61.4% 60.2% Gender Live alone The four properties are racially and ethnically diverse, as reflected in Table 2.3. All four properties have a large immigrant population, with the dominant groups being Chinese and Russian. Table 2.4 shows that the majority of residents completing the survey were born outside of the United States and do not speak English as their first language. Table 2.3: Resident Race and Ethnicity Property 1 Property 2 Property 3 Property 4 Total Hispanic 5.8% 3.9% 7.3% 21.0% 9.1% White 58.2 41.7 13.8 35.9 34.3 Black or African American 1.1 6.0 2.2 1.2 2.5 Asian 37.8 50.0 79.0 52.3 57.8 Native Hawaiian or other Pacific Islander 0 0 0 1.2 0.3 American Indian or Alaska Native 0 0 2.2 1.2 1.0 2.2 1.2 .7 7.0 2.5 Other Evaluation of the WellElder Program 10 Table 2.4: Resident Place of Birth and Language Property 1 Property 2 Property 3 Property 4 Total 6.5% 26.2% 16.7% 6.9% 14.2% 6.6 26.2 19.0 9.2 15.5 Born in the U.S. English is first language Table 2.5 shows the proportion of residents in the four properties who report receiving MediCal benefits.3 Across all the properties, over three-quarters of residents are able to access assistance through the Medicaid program. The lower percentage of residents in Property 2 receiving MediCal in comparison to the other properties may be due to the larger number of units in the property that do not have attached rental subsidies resulting in some residents with higher incomes that make them ineligible for MediCal. Table 2.5: Resident Receiving MediCal Property 1 Property 2 Property 3 Property 4 Total 82.7% 56.6% 84.9% 90.9% 79.7% Receive MediCal Health and Functioning As shown in Table 2.6, between 62 and 85 percent of residents across the four properties reported their health as fair or poor, while 15 to 38 percent said they were in good to excellent health. According to the 2009 National Health Interview Survey, 23.9 percent of adults age 65 and over perceive their health as fair or poor. Among adults age 62 and older who receive both Medicare and Medicaida population that may be comparable to the population in this study52.8 percent rated their health as fair or poor (Center for Disease Control and Prevention, 2010). Table 2.6: Self-Reported Health Status Property 1 Property 2 Property 3 Property 4 Total Excellent 0% 2.4% 2.9% 1.2% 1.8% Very good 8.9 8.5 11.0 2.4 8.1 Good 8.9 26.8 24.1 11.8 18.5 Fair 56.7 48.8 44.5 52.9 50.0 Poor 25.6 13.4 17.5 31.8 21.6 The resident questionnaire also asked respondents to identify specific health conditions they were currently experiencing. Table 2.7 shows the most common health conditions reported were high blood pressure (67.2% of all residents), arthritis (66.8%) and heart problems (42.4%). Several residents also reported memory-related disease (35.4%), diabetes (30.4%) and emotional, nervous or psychiatric problems (27.8%). According to the 2009 National Health Interview Survey, 51.0 percent of persons age 65 and over report a doctor’s diagnosis of arthritis, 56.2 percent experience hypertension, 30.8 percent 3 MediCal is the name of the Medicaid program in Calinfornia. Evaluation of the WellElder Program 11 suffer from all types of heart disease and 19.5 percent report diabetes (Center for Disease Control and Prevention, 2010). Among persons age 65 and older who receive both Medicare and Medicaid, the incident of these health conditions is higher: 58.3 percent report a doctor’s diagnosis of arthritis, 69.1 percent experience hypertension, 36.4 percent suffer from all types of heart disease and 29.9 percent report diabetes. These proportions are similar to those of the survey respondents in the four housing properties. Table 2.7: Self-Reported Health Conditions Property 1 Property 2 Property 3 Property 4 Total High blood pressure or hypertension 68.1% 61.5% 67.4% 71.3% 67.2% Arthritis or rheumatism 79. 1 67.9 57.1 67.4 66.8% Heart problems 52.3 39.3 37.2 42.5 42.2% Memory-related disease 44.8 24.4 29.8 45.2 35.4% Diabetes or high blood sugar 36.3 19.3 31.3 33.3 30.4% Emotional, nervous, or psychiatric problems 40.9 23.2 17.8 33.7 27.8% Cancer or a malignant tumor 11.5 6.0 9.2 11.8 9.6% Chronic lung disease 6.8 6.2 4.6 14.3 7.6% Several residents in the four properties experienced multiple chronic health problems, which might indicate a significant need for services and supports. As shown in Table 2.8, between 44 and 70 percent of residents across the four properties reported having three or more of the conditions noted in Table 2.7. In 2006, 54.2 percent of non-institutionalized Medicare beneficiaries age 65 and older reported living with three or more chronic health conditions (Cubanksi et al, 2010). Table 2.8: Percent of Residents Reporting Multiple Chronic Health Conditions Property 1 Property 2 Property 3 Property 4 Total No Chronic conditions 3.3% 11.9% 12.2% 5.8% 8.7% 1+ Chronic conditions 96.7 88.1 87.8 94.2 91.3 2+ Chronic conditions 84.7 77.4 69.1 83.9 77.6 3+ Chronic conditions 70.6 46.4 44.6 60.9 54.3 Residents were asked if they were often troubled by pain and, if so, how bad the pain is most of the time. Table 2.9 shows that 68 to 82 percent of respondents across the four properties reported being in frequent pain. Of those, a large proportion is experiencing moderate to severe levels of pain. Evaluation of the WellElder Program 12 Table 2.9: Percent of Residents Troubled by Pain Property 1 Property 2 Property 3 Property 4 Total 82.4% 67.9% 70.7% 78.2% 74.4% Mild 9.3 15.0 33.7 7.3 17.7 Moderate 65.3 55.0 53.7 63.8 59.2 Severe 25.3 30.0 12.6 29.0 23.1 Often troubled with pain Level of Pain The self-administered survey also collected information on functional status to determine the level and types of disability experienced by residents. This information is useful in estimating the proportion of residents who might need assistance or services to help compensate for disability. Table 2.10 presents the percentage of residents reporting functional limitations. Functional limitations are classified into two categories—limitations in Activities of Daily Living (ADLs) such as eating, bathing, dressing, getting in and out of bed or using the toilet and limitations in Instrumental Activities of Daily Living (IADLs) such as preparing meals, managing money, shopping, doing housework and using a telephone. Across the four properties, almost a quarter of respondents reported no limitations in ADLs or IADLs, while one-fifth said they need assistance with only IADLs and just over half reported needing assistance with one or more ADL. Table 2.10: Percent of Residents Reporting ADLs and IADLs Property 1 Property 2 Property 3 Property 4 Total No ADL/IADL limitations 18.6% 35.7% 26.7% 16.5% 24.6% IADL limitations only 17.4 15.5 21.5 28.2 20.8 1+ ADL limitations 64.0 48.8 51.9 55.3 54.6 According to the 2007 Medicare Current Beneficiary Survey, 13.8 percent of older adults aged 65 and above reported needing assistance with IADLs only and 24.5 percent reported needing assistance with ADLs (Federal Interagency Forum on Aging Related Statistics, 2010). This comparison suggests that the level of disability among the residents in the four housing properties is higher than in the general population of older adults. Table 2.11 details the types of ADLs and IADLs residents reported in the self-administered surveys. Evaluation of the WellElder Program 13 Table 2.11: Resident Reported Types of ADLs and IADLs Property 1 Property 2 Property 3 Property 4 Total 36.1% 51.2% 48.5% 44.7% 45.5% Bathing/Showering 51.8 34.2 35.9 25.9 36.9 Dressing 27.2 23.2 27.8 24.1 25.9 Transferring from bed/chair/car 30.0 22.9 31.8 26.6 28.3 Using the toilet 22.9 24.1 23.7 16.7 22.1 Incontinence 23.3 27.4 19.7 35.4 25.5 Eating 13.1 23.5 21.4 21.3 19.9 21.6% 39.8% 29.6% 17.6% 27.4% Using the telephone 15.3 23.2 24.6 18.8 21.0 Shopping 64.7 38.6 38.0 55.4 47.9 Preparing meals 63.4 40.0 42.4 45.8 47.2 Housekeeping 68.7 45.0 54.2 60.7 56.9 Doing laundry 57.8 36.6 41.7 49.4 45.9 Traveling to places out of walking distance 62.7 42.0 46.9 52.9 50.7 Taking medications 17.9 32.5 24.6 29.3 25.8 Managing money or finances 18.1 29.3 21.2 15.0 21.0 ADLs No ADLS IADLs No IADLs The self-administered survey asked residents if they had fallen down in the past 12 months and, if so, how many times. Table 2.12 shows that about one-third of residents across the four properties reported having a fall in the past year, with a median of 2 falls per resident reporting a fall. According to the Centers for Disease Control and Prevention, an estimated three out of ten persons age 65 and older experience a fall each year (CDC, 2006). Table 2.12: Resident Reported Falls Property 1 Property 2 Property 3 Property 4 Total 33.7% 32.5% 35.9% 37.4% 35.1% Median # of falls 2.0 1.5 2 2 2 Range 1-8 1-6 1-10 1-5 1-10 Had a fall Health Service Use Residents were asked if they had gone to a hospital emergency room, been a patient in a hospital overnight or had any outpatient surgeries in the past 12 months, and, if so, how many times. Table 2.13 shows that between 27 and 40 percent of residents across the four properties reported having a trip to the ER in the past year. A slightly smaller proportion, between 13 and 25 percent, reported having an overnight hospital stay. A number of residents across the four properties, from 20 to 30 percent, said they had an outpatient surgery over the past year. Evaluation of the WellElder Program 14 Table 2.13: Resident Reported Emergency Room Visits, Hospital Stays and Outpatient Surgeries Emergency Room Visit Property 1 Property 2 Property 3 Property 4 Total 39.8% 26.5% 29.8% 32.9% 31.7% 1 2 1 2 1 1-5 1-4 1-9 1-10 1-10 25.0% 13.4% 20.5% 20.0% 19.9% 2 2 1 1 1 1-7 1-5 1-37 1-7 1-37 30.1% 19.5% 30.4% 20.2% 25.7% 1 1 1.0 2 1 1-5 1-7 1-12 1-6 1-12 Median # of visits Range Hospital Stay Median # of stays Range Outpatient Surgery Median # of surgeries Range In 2006, 30 percent of beneficiaries in traditional fee-for-service Medicare reported at least one visit to the ER. Among this same group, 21 percent reported at least one inpatient hospital stay, but hospitalization rates varied by characteristics such as health status, age and income. Hospitalization rates were higher among those in poor or fair health (38 percent and 30 percent, respectively), among those ages 85 and older (33 percent), and among those with incomes less than $20,000 (25 percent) (Cubanksi et al, 2010). As Table 2.14 shows, respondents reported taking between zero and 21 different prescription medications, with the median number of medications taken per person ranging between 4 and 7 across the four properties. According to the 2007-2008 National Health and Nutritional Examination Survey, 37 percent of adults aged 60 and over used five or more prescription medications (Gu, Dillon and Burt, 2010). Table 2.14: Resident Reported Prescription Medications Property 1 Property 2 Property 3 Property 4 Total 7 4 5 5 5 2-19 0-15 0-21 0-14 0-21 Median # of medications Range Support Network The self-administered questionnaire asked residents about their informal support network and the level of assistance they receive from this network. As shown in Table 2.15, an overwhelming majority of respondents across the four properties reported having persons in the area who can assist them when needed. Approximately 90 percent indicated they receive a call on a daily or weekly basis from a family member, significant other or friend, while roughly 70 percent receive a daily or weekly visit. It should be noted that a large, but unknown, number of residents in the four properties participate in the In Home Supportive Services (IHSS) program. IHSS is a Medicaid-funded program in California that provides individuals with domestic and personal care assistance to help them live safely in their homes. Services are provided by a personal aid and can range from assistance with household chores to personal care such as dressing and bathing. Participants can Evaluation of the WellElder Program 15 select a family member to serve as their aid, and some number of residents in the four properties utilize a family member as their paid aid. Table 2.15: Support from Family, Significant Others or Friends Property 1 Property 2 Property 3 Property 4 Total 91.8% 84.8% 82.1% 92.7% (76) 87.1% 64.3% 46.1% 34.3% 60.2% 49.1% Weekly 29.8 43.4 47.1 31.3 39.0 Monthly 3.5 5.3 6.7 2.4 4.8 Less than monthly 1.2 4.0 6.0 4.8 4.2 Never call 1.2 1.3 6.0 1.2 2.9 28.9% 13.7% 12.9% 33.3% 21.3% Weekly 44.6 48.0 51.6 48.2 48.5 Monthly 10.8 15.1 16.1 6.2 12.5 Less than monthly 9.6 19.2 10.5 9.9 11.9 Never call 6.0 4.1 8.9 2.5 5.8 Persons in area who can assist Call Daily Visit Daily Table 2.16 shows that respondents reported receiving a range in level of assistance. While between six and 17 percent of respondents across the properties reported not needing any assistance, between 23 and 46 percent reported receiving considerable assistance from their family, significant others or friends. Table 2.16: Reported Level of Assistance Provided by Family, Significant Others or Friends Property 1 Property 2 Property 3 Property 4 Total Do not provide assistance 6.1% 3.9% 10.9% 3.6% 6.7% Limited assistance 28.1 35.9 28.9 18.1 27.8 Moderate assistance 18.3 20.5 25.0 26.5 22.9 Considerable assistance 39.0 23.1 23.4 45.8 31.8 I do not need assistance 8.5 16.7 11.7 6.0 10.8 Resident Incidents Over the course of the eight-month data collection period, each of the four properties tracked residents who experienced falls, 911 calls, emergency room visits, hospitalizations or nursing home stays. Table 2.17 shows the percentage of residents in each property who experienced each type of incident tracked as known to the property. It should be noted that a resident may experience multiple incidents in a single occurrence. For example, a resident may call 911, be taken to the emergency room and admitted to the hospital. Evaluation of the WellElder Program 16 Table 2.17: Resident Incidents Property 1 Property 2 Property 3 Property 4 Falls 2.4% 4.8% 2.1% 3.1% 911 Call 10.4 9.7 5.9 14.2 ER Visit 11.4 7.0 5.6 14.2 Hospital Stay 10.0 11.0 3.9 8.6 Nursing Home Stay 2.8 2.6 1.1 1.2 Resident Move Outs Over the course of the eight-month data collection period, the four housing properties tracked the number of residents moving out and where residents went after leaving the housing property. A small number of residents moved out over the course of the year, with only eight to 14 residents moving out across the four properties. As can be seen in Table 2.18, the most common reason for move out in all but one property was due to the resident’s death. The next most common destination after move out was with family. A smaller number of residents moved to a higher level of care, such as assisted living or a nursing home. In light of the high level of frailty evidenced in the resident population across the four properties, it would appear that a sizable proportion of residents are able to remain in the housing properties, often until death, and avoid moving out in search of higher levels of support. Table 2.18: Resident Move Outs Property 1 Property 2 Property 3 Property 4 Total 12 14 11 8 45 4.4% 6.4% 4.1% 5.1% 4.9% Other senior housing 0 0 0 0 0 Other apartment 0 14.3% (2) 0 12.5% (1) 6.7% (3) 8.3% (1) 21.4% (3) 54.5% (6) 12.5% (1) 24.4% (11) 0 7.1% (1) 9.1% (1) 12.5% (1) 6.7% (3) Nursing home 16.7% (2) 21.4% (3) 18.2% (2) 25.0% (2) 20.0% (9) Death 75.0% (9) 35.7% (5) 9.0% (1) 37.5% (3) 40.0% (18) 0 0 9.0% (1) 0 2.2% (1) Total move outs % of resident population Destination (% of total move outs) Family Assisted Living/RCFE Other/unknown Evaluation of the WellElder Program 17 Chapter 3 – WellElder Program Implementation Program History The WellElder program originated with residents at NCPHS and other senior housing properties concerned that they did not want to move when their needs grew and they needed more assistance. In response, a group of senior housing and service providers in the San Francisco area convened a task force in 1991 to look at options for supporting residents to remain safely in their home. After exploring various approaches, the group determined that services were available in the community that could help keep most people in their homes; there just needed to be a better mechanism to help residents access and utilize them. From this observation, the WellElder program was developed. The program’s goal was to help residents maintain their independence so that they could safely remain in their apartments as long as possible. To accomplish this, the program paired a nurse health educator with the service coordinator already operating in the housing properties. The intent was for the health educator to enhance the service coordinator’s capacity by applying her skills in assessing health-related needs, knowledge of health-related services and resources and ability to communicate with the medical community. The belief was that through this tandem approach the program staff could have a more comprehensive picture of a resident’s situation and more effectively help address their spectrum of needs. Although the program’s goal and team structure has remained the same, it has informally evolved since its beginnings in 1996. The program’s path has been influenced by changing staff and lessons learned and experience gained from responding to resident needs over time. Initially, the program focused on helping residents connect to the services in the community that would help them remain in their apartment. The first health educators were nurses contracted from a PACE program, which gave them an appreciation for viewing residents comprehensively and a knowledge of the community-based services system. The health educator’s role evolved with the second set of nurses contracted from a home health agency who had more of a medical focus. With this change, the health educators became more focused on activities like monitoring vital signs. More recently the role has expanded to encompass a greater teaching component with an emphasis on individual and group education around wellness and self-care management. Program Elements Overall Program Structure and Staff The WellElder program is located within the NCPHS Community Services division and is staffed by a service coordinator and health educator in each of the four properties. The four service coordinators are supervised by the NCPHS Director of Community Services (Bethany Center Senior Housing contracts with NCPHS for their service coordinator), but funded by each housing property through the property’s operating budget. The service coordinator is a 32-40 hour week position in each property. Evaluation of the WellElder Program 18 The health educator is hired by each housing property through a contract with the Institute on Aging (IOA), a non-profit organization that provides a range of health and social services to seniors in the San Francisco Bay area, and supervised by the IOA Older Adults Care Management Division. The health educators are contracted to keep an arm’s distance from anyone interpreting that the properties are providing care and supervision to residents, something that would trigger licensing requirements for the housing provider in the state of California. One nurse health educator splits time across Properties 1, 2 and 4, while two nurses share the health educator role in Property 3. The health educator is funded through the property’s operating budget and fundraising/grant sources. The number of hours the health educator is available in each property is currently driven by available funding and staff from the IOA. Table 3.1: Staffing Pattern Property 1 Property 2 Property 3 Property 4 32 hrs/wk 40 hrs/wk 40 hrs/wk; split by two individuals 40 hrs/wk Directly employed Directly employed Directly employed Contracted Service Coordinator Hours Employment mechanism Funding Source Operating budget Operating budget Operating budget Operating budget Health Educator Hours 10 hrs/wk 10 hrs/wk 15 hrs/wk; split by two individuals 4 hrs/wk Employment mechanism Contracted Contracted Contracted Contracted Operating budget Operating budget Operating budget Funding Source Operating budget Property 2 also has a psychologist who comes to the building once a week for two hours and is contracted from private practice. She holds bi-weekly group sessions and conducts personal visits on referrals from the service coordinator or health educator or at a resident’s request. She is available to the WellElder team by phone or e-mail for advice, and also comes to the property if a crisis necessitates it. While the goal is to have a mental health professional as a part of the team in each building, the funding is currently not available. Program Management and Oversight There is no single line of authority for the WellElder program. As discussed above the service coordinators are formally supervised by the NCPHS Community Services Director and the health educators by the IOA. Program activities and parameters are defined by these two entities, as well as the managers in each of the housing properties who can alter program components within their building. Quarterly meetings are held in each property with the service coordinator, health educator, property manager, the NCPHS Director of Community Services a representative from the IOA. The purpose is to talk about global issues/concerns, how to bring in more members and to let property managers know about utilization of services and enrollment numbers. Only aggregate numbers are provided and no confidential information is shared. Evaluation of the WellElder Program 19 Participation in the Program The WellElder staff refer to this program as a membership program that is open to all residents in the housing property. There are no eligibility criteria or fees to participate. “Membership” entitles residents to direct assistance from the health educator. The group education sessions and activities provided through the program are available to all residents, whether they are members of the program or not. All residents may also access the service coordinator. New residents are generally informed of the program through a printed brochure and/or direct introduction to the service coordinator and health educator. Property management may bring a new resident to see the WellElder staff or alert the staff that a new resident has moved in so that they may visit them. While many residents choose to join the program when they move in, some join at a later date or may choose to never join. WellElder staff attempts to continually inform residents about the program through presentations at resident events or through direct resident contact. Table 3.2 shows the proportion of residents WellElder members and non-members in each property at the beginning of the study period. Table 3.2: WellElder Program Membership Property 1 Property 2 Property 3 Property 4 Members 202 (70.0%) 182 (79.8%) 155 (54.6%) 129 (79.6%) Non-members 87 (30.0%) 46 (20.2%) 129 (45.4%) 33 (20.4%) Residents who join the program at a later date do so for different reasons. According to WellElder staff, an incident or crisis may lead residents to see that they may benefit from some type of assistance. Sometimes they see that a neighbor or friend has had a positive interaction with the WellElder staff and they decide the program may be able to help them. Residents who participate in the program will also sometimes bring their neighbors down to the service coordinator or health educator when they think they need help. In the self-administered questionnaire, residents who are not members of the WellElder program were asked why they had not joined. Table 3.2 aggregates the responses for non-members across the four properties. The most common reason for not joining is lack of awareness of the program. Several non-members also believe they get their health-care needs met by their physicians or are able to manage their needs on their own. Few non-members were concerned about the property management becoming aware of their health or functional status. Evaluation of the WellElder Program 20 Table 3.3: Non-Member Reasons for Not Joining WellElder Program* I am not aware of the WellElder program and need more information. 59.5% I get all my health care needs met by my doctor and other health care providers. 38.0 I am aware of all the resources and services available to me in the community. 25.3 I am independent and do not need assistance from anyone. 22.8 I am knowledgeable about my health care situation and managing all my health care needs. 22.8 My family members help me with everything and I don’t need help from the building staff. 15.2 I do not want the housing property staff to know about my private life. 11.4 I am not sure the building management will let me continue to live here if they think I have become sick or disabled. 7.6 *Respondents were allowed to choose multiple answers. The self-administered questionnaire also asked non-members if they might join the WellElder program in the future. Table 3.4 shows that the majority of respondents either will or will consider joining the program, if their needs change. Table 3.4: Potential of Joining Program in Future No 9.8% Possibly, if my needs change 40.2 Yes, when my needs change and I need assistance 50.0 To join the program, residents complete an enrollment form that asks for contact and health insurance information. The form also secures the resident’s consent for the health educator to access appropriate information to help in assessing and responding to the resident’s needs. Residents who utilize the service coordinator, whether WellElder members or not, also complete a separate consent to release/request information form and a confidentiality agreement. There is no formal assessment process upon joining the program. NCPHS service coordinators utilize the assessment form contained in AASC online, a resident data management tool, which asks about physical functioning, emotional status, community supports, transportation needs and mental functioning. Service coordinators may informally go through this assessment with residents when they first meet or they may gather the information over time. The health educator does not do a formal assessment, but informally gathers information through a conversation. How Residents are Assisted Assistance is primarily provided through one-on-one contacts. No appointments are required and residents may drop by the service coordinator or health educator office anytime during their working hours (generally Monday-Friday, 8-5). Contact is primarily initiated by residents; however, WellElder staff also reach out to residents. Staff may follow-up with a resident they are assisting or may check on a resident they have not seen in a while, particularly if they know the resident may have ongoing issues. WellElder staff also outreach to residents who they or other property staff perceive may be having a problem. Maintenance staff, for example, frequently identifies concerns about residents. “I’ve had maintenance come many times and say ‘come with Evaluation of the WellElder Program 21 me to see someone, I think they’re sick or they won’t call their doctor,” says one service coordinator. Meetings generally occur in the service coordinator or health educator’s office, but might also take place over the phone or in a resident’s apartment as warranted. WellElder staff may also visit residents in the hospital or nursing facility. The service coordinator and health educator generally meet individually with residents, although they will also see a resident jointly when called for. This happens more frequently in the properties where the service coordinator and health educator are co-located. In Properties 1, 2 and 4, the service coordinator and health educator are located in adjoining or common spaces. In Property 3, each office is on a separate floor in opposite ends of the building. “Someone might be here and I’ll send them over to [the service coordinator] and vice versa; that’s the beauty of being co-located here,” says the health educator, “I’ll pull up a chair and we’ll have an impromptu case conference. I’ll hear a resident talking to [the service coordinator] and I’ll just go over and say I know that answer.” This interactive dialogue is less frequent in the property where the health educator and service coordinator are not located near each other. They will, however, refer residents to each other and may occasionally walk residents to see the other. The service coordinators and health educators informally review residents with each other; although this tends to happen more frequently in the properties where the team is located together. “We check in with each other,” says one health educator, “Since I’m not here every day we go over our lists with each other. [The service coordinator] may have left me messages asking me to check on people or things to follow-up on. It’s fairly informal, it just sort of happens.” In the property where the service coordinator and health educator are located on separate floors, communication about residents tends more to be through e-mail and phone. In addition to one-on-one visits, the WellElder team also conducts and/or organizes group education session by outside entities. Education sessions are handled slightly differently between the San Francisco and San Jose properties. The San Francisco properties have created “Wellness for You,” a program that focus on the mind, body, spirit connection and under which most group education and discussion activities are organized. The session topics are determined by the health educator and the service coordinator from Property 1, who together present many of the sessions together at the three San Francisco properties. Other sessions are presented by outside organizations or individuals. Sessions are translated into Chinese at each property. They are not currently translated into Russian, the other dominant ethnic group in the properties, because few Russian-speaking residents attend the group sessions. WellElder staff believes this is partially because many are often out of the building attending programs, classes or providing childcare for their extended families. The San Jose property also provides group education sessions. The sessions are provided by the health educators and by community organizations. Ideas for the topic sessions are generated primarily by the health educators, but they also get input from property management, the NCPHS Director of Community Services and residents. A list of the group education sessions provided during the study period can be found in Appendix A. The health educator in the San Francisco properties also produces a biannual newsletter, which is distributed to residents in all four properties. The two-page newsletter addresses topics such as Evaluation of the WellElder Program 22 preventing dehydration, arthritis, keeping an active brain, improving balance, and so on. The newsletters are not currently translated into other languages. Table 3.5 reports the number of visits WellElder members made to either the service coordinator or health educator for WellElder-related services over the study’s eight-month data collection period.4 The differences in the number of visits across the properties may be due to a variety of factors, including the size of the property, the number of WellElder members, the amount of time of time the WellElder staff (particularly the health educators) are at the property, the style of the staff members in approaching and working with the members, and the needs of the members. Table 3.5: Number of Member Visits to WellElder Staff Property 1 Property 2 Property 3 Property 4 Total Service Coordinator 399 936 381 714 2430 Health Educator 254 295 366 314 1229 Total 653 1231 820 1028 3659 Table 3.6 shows the proportion of WellElder members who visited the service coordinator, the health educator, either staff member or both staff members at least once during the eight-month study period for WellElder-related services. Across the four properties between 44.6 and 82.9 percent of WellElder members saw the service coordinator and from 32.6 to 46.7 percent saw the health educator. A higher percentage of members visited the service coordinator, but it must be kept in mind that the health educator is only in each property between 4 and 15 hours each week (see Table 3.1). A smaller, but still sizable, portion of members visited both the service coordinator and health educator. It is not clear whether these members were seeing each staff member for the same issue, but this proportion may reflect members benefitting from the team approach of the service coordinator and health educator to help meet their needs. In Property 2, which shows the highest percentage of members visiting both the service coordinator and health educator, the health educator reports that the service coordinator frequently refers residents to her, sometimes walking members to her or taking the health educator out to see a member. Table 3.6: Percent of Participants with At Least One Visit to WellElder Staff Property 1 Property 2 Property 3 Property 4 Total WellElder Members 202 182 155 129 668 Service Coordinator 44.6% 80.8 50.3 82.9 63.2 Health Educator 45.5% 46.7 46.4 32.6 43.6 Either (SC or HE) 65.8% 86.3 72.3 85.3 76.6 Both (SC and HE) 24.3% 41.2 24.5 30.2 30.1 Table 3.7 details the average number of visits WellElder members had to the service coordinator, health educator or one or the other over the eight-month study period for WellElder-related activities. In three of the four properties, residents have a higher average number of visits with 4 Only service coordinator activities considered a Well-Elder related service were tracked as a part of this study. WellElder services are those that have a health or wellness-related implication (See Table 3.9). All service coordinator activities were not included. For example, if a service coordinator assisted a WellElder member with obtaining an energy rebate for low-income seniors, that activity was not tracked. Evaluation of the WellElder Program 23 the service coordinator than the health educator. Again, the smaller number of hours the health educator is available in each property must be considered. In Property 4, the health educator has a higher average number of visits than the service coordinator and in comparison to the health educators in the other properties. As will be discussed later, this property has a number of members who visit the health educator regularly for blood pressure checks. Table 3.7: Average Number of Visits to WellElder Staff per Member Property 1 Property 2 Property 3 Property 4 Total Service Coordinator 4.4 (5.9) 6.4 (6.2) 4.9 (6.6) 6.7 (5.5) 5.8 (6.1) Health Educator 2.8 (4.5) 3.5 (5.7) 5.1 (8.1) 7.5 (8.7) 4.2 (6.7) Either (SC or HE) 4.9 (7.5) 7.9 (9.0) 6.7 (8.9) 9.4 (10.3) 7.2 (9.0) Table 3.8 attempts to understand the intensity with which WellElder members visit the service coordinator and health educator by looking at the percentage of residents who have more than five visits with the staff members over the eight-month study period. It is unknown whether repeat visits are for related or separate issues, but a higher frequency of visits may reflect members with a higher level of need. In Properties 3 and 4, the health educator has a higher proportion of members with repeat visits. As will be seen below, each of these properties has a number of members who see the health educator for regular blood pressure checks. Table 3.8: Percent of Members with At Least Five Visits to WellElder Staff Service Coordinator Property 1 Property 2 Property 3 Property 4 Total 13.4% 37.4% 14.8% 46.5% 26.6% Health Educator 5.9 7.1 13.5 13.2 9.4 Either (SC or HE) 16.3 44.0 27.7 50.4 33.1 Both (SC and HE) 4.4 6.0 3.2 10.9 5.8 Services Provided The WellElder program assists residents in a number of areas. While the service coordinator and health educator help across some common areas, they primarily assist in matters that utilize their respective professional training and skill sets. Service coordinators are adept at navigating the service network and helping residents identify resources that can help meet their needs and enhance their quality of life. With their medical training, health educators assess and provide guidance on a resident’s health situation. All assistance is provided only with the resident’s consent. Residents are also free to choose what services and activities they wish to engage in. Although the service coordinator or health educator may try to encourage them to utilize resources they believe may benefit them, the decision is ultimately the resident’s. Service Coordinator Assistance Assistance provided by the service coordinator includes: • Assessment. Service coordinators evaluate residents to understand their issues and needs and identify potential services and resources that may assist them. Evaluation of the WellElder Program 24 • Identifying, accessing and maintaining benefits. Service coordinators help residents find services that can help meet their health-related needs, such as home care assistance, meals programs or transportation programs, and benefits such as Medicaid, food stamps or drug discount programs. As many service and benefit programs have detailed applications, often requiring extensive documentation, service coordinators often assist with the application process. The processes can be particularly difficult for residents who have limited literacy, do not speak English as their primary language or have memory issues. Service coordinators also have an understanding of the type of information and level of detail that can help make an application successful, and can guide residents on maximizing their chances of receiving a service or benefit. They can also assist with gathering the required forms of documentation, which may range from copies of birth certificates to signatures from doctors. When applications are denied, service coordinators can help residents understand why and can help advocate for residents if they believe an application was wrongly denied. Service coordinators also assist residents with recertifications to help ensure residents maintain continuity of their benefits. Many times residents do not realize they need to do this and may misunderstand or ignore reminder letters. • Bill reconciliation. Residents often bring their doctor, hospital or other medical bills to service coordinators not understanding why they are being charged. Often a problem is due to inaccurate or incomplete insurance information. Resolving such issues can require many phone calls and following up with written documentation. For many residents, it can be difficult to work through phone systems, identify the correct person to talk to and understand and follow-through on the necessary steps to correct billing problems. This can be particularly daunting for non-English speakers or persons with diminished memories. • Supportive counseling. Service coordinators motivate and encourage residents in their ability to manage their health-related needs and to live a full and quality life, regardless of what their health and functional status may be. Many residents have no one to talk to or are reluctant to tell their family members about their health problems, and service coordinators can be a sounding board for them. For residents with fear or doubt about utilizing services, service coordinators can help them see how the services may benefit them and encourage follow through. Because service coordinators have relationships with residents, they often know their values and what motivates them, information they can use to encourage a resident to accept services. • Outreach. While service coordinators are most often reacting to residents who come to them, they also reach out to residents they perceive may be having problems and/or who they think may benefit from or be interested in services or activities they may not be aware of. In addition to their own observations, property management staff and other residents will also alert service coordinators when they have concerns about a resident. Some service coordinators accompany the property manager during an annual inspection of units. This allows them to identify concerns, such as cords or rugs that may pose a fall risk or poor hygiene that may be a sign of a medical problem. Evaluation of the WellElder Program 25 • Follow-up/monitoring. Service coordinators attempt to monitor and follow-up on resident issues and needs. This can range from tracking a resident’s application or recertification for services or benefits, to their participation in a service or program, to keeping an eye on them after a health-related incident or general decline in health or functional status. Some residents participate in community programs where they have a case manager or social worker. In these instances, service coordinators may update the program staff with any pertinent information, since the case manager or social worker may not see the resident on a frequent basis. • Discharge planning. Service coordinators attempt to participate in the discharge planning process when a resident has a hospital or rehabilitation facility stay. The goal is to help ensure the resident is not being discharged too early, that the discharge planner is fully aware of the resident’s living environment and support mechanisms (i.e. that they do not live in an assisted living facility) and that all necessary services and supports are put in place to enable the resident to have a safe return home. Service coordinators may also talk with family members to educate them on what they should discuss with discharge planners and ensure is in place. • Medical coordination. Service coordinator can assist residents with scheduling appointments with physicians and arranging medical for medical tests. Residents may have difficulty communicating with staff, working through automated phone systems, or understanding what entity to schedule tests with. • Legal forms. Service coordinators can educate residents about documents such as advanced health care directives and help with their preparation. • Grief and loss. Service coordinators provide counseling to help residents deal with the death of a family member, friend or neighbor. • Emergency health information sheet. In Properties 1, 2 and 4, the service coordinator and health educator help residents prepare and annually update an information sheet that lists health information such as their doctor, insurance information and medications. In the event of an emergency, this sheet can be given to paramedics by the resident or a WellElder or property staff member. The residents are also given the medication list to carry with them. Table 3.9 shows the frequency of types of assistance provided by the service coordinator to WellElder members in each housing property over the course of the eight-month data collection period. The rate of services provided varied across the four properties, possibly reflecting differences in the number of members, member need and service coordinator style. Nonetheless, the most common areas of assistance across the service coordinators generally were assessment, outreach, supportive counseling, securing benefits and follow-up/monitoring. Evaluation of the WellElder Program 26 Table 3.9: Frequency of Services Provided by Service Coordinator Property 1 Property 2 Property 3 Property 4 Assessment 158 196 5 73 Outreach 37 257 14 104 Socialization 14 54 0 86 Supportive Counseling 60 204 33 179 Securing Benefits 96 157 82 341 Bill Reconciliation 35 14 24 87 Education 4 1 5 22 Legal Forms 13 13 3 4 Emergency/Health Info Sheet 7 5 7 12 Grief and Loss 14 13 1 5 Medical Coordination 42 32 58 38 Hospital Discharge Coordination 21 26 13 2 Hospital Visit 3 1 3 2 Follow-up/Monitoring (includes post hospital/rehab) 85 342 174 276 Nurse Health Educator Assistance Assistance provided by the health educator includes: • Monitor vital signs. Health educators help residents monitor vital signs such as blood pressure, heart rate and weight. Some residents come regularly to have their blood pressure or other vitals checked, while others only come when they believe there might be a problem. • Health education. Health educators instruct residents on a variety of health-related topics, including diseases, medication, exercise, nutrition and compliance. They can help residents understand their diseases and the best ways to manage their conditions and care for themselves. Health educators can interpret lab results to help residents understand what the results reveal about their condition and offer advice about follow-up. They can help residents understand what their medications are for, the proper ways to take them and potential side effects to be aware of. While the health educators do not conduct invasive procedures such as wound management, they can teach residents how to properly maintain a wound and signs of infection. • Medical coordination. Health educators help residents coordinate their medical care in a variety of ways. They can assist residents with calling their doctor’s office to set up appointments or to answer questions. For some residents it can be difficult to work through the phone system and/or to stay on hold for extended periods. Health educators may also help residents prepare for doctor visits by helping them create a list of questions to ask and/or information to provide their physician. They can also identify potential problems a resident may not see. For example, one resident with uncontrolled blood Evaluation of the WellElder Program 27 pressure was told to stop all medications and then come in for an appointment to determine a new medication regiment. The resident was not able to get an appointment for over three weeks. Recognizing this could be dangerous, the health educator worked with the physician’s office to find a better solution. Health educators can work with pharmacies to set up mechanisms for residents needing assistance managing their medication. Health educators will also conference with a resident’s care providers to ensure they are fully aware of a resident’s situation and their needs are getting met. For example, if a resident’s home health course following a hospital stay is ending, the health educator may talk with the home health nurse if they believe the resident is not yet stable enough to be on their own. • Assessment. Health educators can assess residents’ health-related concerns, help them identify what might be possible problems and solutions and recommend whether they should follow-up with their physicians. In extreme circumstances, the health educator may call the resident’s physician or 911. They may also contact the resident’s family member. Some residents are reluctant to follow-up and the health educator assesses whether the situation presents an immediate emergency. • Discharge coordination. When the timing and circumstances permit, the health educator in the San Francisco properties may visit residents in the hospital and/or rehabilitation facility to engage in the discharge planning process. Because of the limited time at each property, the health educator will more likely visit the resident after they have returned home to make sure the resident has everything in place they need to successfully care for themselves. • Supportive counseling. Much like the service coordinator, the health educator encourages residents in their ability to manage their health-related needs and live a full and quality life. For members who may have difficulty getting to the health educator’s office, the health educator will provide assistance over the telephone or visit the resident in their apartment. The nurses do not engage in any invasive procedures such as giving injections, performing blood glucose checks (although they will guide a resident through doing it themselves), and dressing wounds. Nor do they monitor residents’ medications. These limitations are in place for a couple reasons, according to WellElder and NCPHS staff. Because the health educators are only at the properties for a limited amount of time, they are concerned they would not be available to follow-up should additional action be needed or in the case of a complication. In addition, the State of California prohibits housing properties for the elderly or disabled to provide care and supervision without being licensed as a Residential Care Facility for the Elderly. The housing property may “coordinate or help residents gain access to the supportive services either directly or through a service coordinator." The allowable scope of practice for RNs and LVNs must also be considered so that the health educator’s nursing license is not put in jeopardy. Table 3.10 shows the frequency of types of assistance provided by the health educator to WellElder members in each housing property over the course of the eight-month data collection Evaluation of the WellElder Program 28 period. The rate of services provided varied across the four properties, possibly reflecting differences in the number of members, member need and the amount of time the health educator is available at each property. The most common service provided is vital sign checks, primarily blood pressure. In some instances members receive other types of assistance, often related education, while having their blood pressure measured and in others they only have a blood pressure check (see row “Vital Sign Alone” in Table 3.10). Properties 3 and 4 have several members who come to the health educators regularly just to have their blood pressure monitored. In Property 4, this is the dominate service and limited assistance is provided in other areas. The health educator believes she is hampered by the small amount of time she is in the property each week (4 hours) and the number of residents who come weekly to check their blood pressure, giving her limited time to reach out to residents and try work with them in other areas. While this same health educator also conducts a number of blood pressure checks in Properties 1 and 2, she is also often providing concurrent services such as education. Health educators believe blood pressure checks are a gateway to build rapport with residents and establish a relationship, find out more about their health issues and provide education. While checking their blood pressure, health educators might offer residents advice about their medication, diet or exercise regimens. Residents might also talk about other health-related issues while in the office. “Sometimes we’re troubleshooting by little things they are mentioning to us,” says one health educator. Residents also often take a log of their blood pressure readings to their doctor. The health educators note that individuals often get stressed during doctor’s visits and doctors will prescribe medications based on these abnormal readings. The logs allow doctors to see an accurate history of the resident’s blood pressure levels. For some residents, the WellElder staff believes, the regular blood pressure monitoring simply reassures them that everything is ok. In comparison to the frequency of vital sign checks, all other areas of service are much lower. Health-related education is one of the next most common areas. [Table 3.10 does not include group education participants.] Health educators also provide residents with supportive counseling, encouraging them in their ability to manage their health situation. Health educators in three out of the four properties visit members in the hospital or rehab facilities. (The health educator in Property 3 is prohibited from these activities per the instruction of the property manager). These visits are limited, however, by the timing of the member’s hospital/rehab stay and the days she is at the property. Although health educators visit members after they return from the hospital on a slightly more frequent basis, this follow-up is more often conducted by the service coordinators as they are on-site at the property on a regular basis. Service coordinators will often exchange information with the health educators about the returning resident and get them involved if they have concerns about the resident’s situation. The health educator’s role in coordinating with health-related providers is minimal across the four properties. The health educators may not be at the property when the resident needs assistance with coordinating medical care or with medical specialists. Although health educators sometimes prep residents for their doctor appointments (e.g., getting their medications in order, helping them to identify key questions), they are often not aware when members have doctor’s Evaluation of the WellElder Program 29 appointments or may not be at the property around the time a member has an appointment. Members may also not recognize that the health educator can assist them in this area. Help with medical coordination is highest in Property 2, which may reflect the service coordinator’s greater tendency to engage the health educator. Table 3.10: Frequency of Services Provided by Health Educator Property 1 Property 2 Property 3 Property 4 Service Coordinator Case Conference 14 32 8 3 Follow-up/Monitoring 29 24 8 18 Emergency/Health Info Sheet 59 39 0 25 Vital Signs 121 170 349 252 Vital Signs Only* 49 98 222 244 Use of Equipment 37 37 4 1 Disease Education 18 22 50 16 Medication Education 35 36 65 12 Compliance Education 7 9 6 6 Exercise Education 0 0 13 1 Nutrition Education 8 2 16 9 Supportive Counseling 19 21 67 2 Call 911 5 3 0 0 Hospital or Rehab Visit 12 5 0 0 Follow Up Post Hospital Stay 10 10 4 5 Prep for MD Appointments 1 1 8 0 Call MD 4 9 5 1 Medical Coordination 7 23 5 1 Adult Day Service/PACE Coordination 0 7 3 1 Home Health Care Coordination 3 7 0 1 Mental Health Services Coordination 0 14 0 0 Medical Specialists 4 1 1 1 Paratransit 0 1 0 0 * This category reflects a visit where the member only had their vital signs checked (generally blood pressure) and received no other type of assistance. During a visit with the WellElder staff, members may receive assistance in multiple areas. For example, a member visiting the service coordinator may receive an assessment and assistance with accessing a drug discount program or a member seeing the health educator may receive a blood pressure check and nutritional education. See Exhibit 1 at the end of the chapter for examples of residents who were assisted by the WellElder program during the study period. Evaluation of the WellElder Program 30 Coordination Between the Service Coordinator and Health Educator There is no formal process for case conferences where the health educator and service coordinator discuss a resident with more complex needs. This activity occurs on an ad hoc basis and most frequently in Property 2, which may be a reflection of the service coordinator’s tendency to engage the health educator more frequently with members. Case conferences are minimal in Property 4, which likely reflects the health educator’s limited time at the property. Conferences are also infrequent in Property 3, which may be influenced by the distance between the service coordinator and health educator offices. (See Table 3.10.) Integration of Property Management Each housing property is overseen by a management team—which includes a manager and administrative, maintenance and security staff—that is responsible for the building’s operations (lease-related activities, building upkeep and maintaining safety and security). Through their roles, property management staff frequently interacts with residents and may observe possible concerns with residents. For example, maintenance staff may see signs of a struggling resident when in their apartment making repairs or security staff may see a resident displaying strange behavior in the middle of the night. When doing annual apartment checks property managers might come across a unit that is excessively dirty, which could indicate a resident is declining in their ability to care for themselves. The property management staff, therefore, has the potential to serve as an important partner with the WellElder team. The property managers of the four properties have different philosophies concerning interactions with the WellElder team. One property manager generally takes a “hands off” approach, informing the service coordinator about resident issues and then stepping out of the picture if there is not a tenancy issue to maintain a division between the service coordinator and property management. “I won’t know how they work with them because of confidentiality,” says the property manager. Another alerts the service coordinator about resident issues, but may stay peripherally involved with the resident’s permission. “The way I look at it, we’re a team of support for the residents,” says this property manager. A third property manager is more hands on with resident issues, sometimes dealing with them directly rather than turning them over to the WellElder team. Property staff generally alert the service coordinators to resident situations that may potentially have physical or mental health issue behind them. One property manager promotes direct interaction between all staff. “It’s critical for all of us to share what we see and hear. Building staff is in places we don’t go to,” says one manager, “They have direct connection with them. We have monthly staff meetings and most everyone has e-mail where they can communicate what they see and hear. One example is we have fire drills and it’s important for us to know about the people who have difficulties. The service coordinator and health educator may have ideas on the best ways for us to manage or organize assisting them out of the building.” Another property manager asks property staff to bring their concerns or observations about residents to them. “We ask maintenance and security to come to management with any resident issues and then we carry it to the service coordinator,” says this manager, “We do that because we have to look in two directions, the property management side and the resident side. . .I need Evaluation of the WellElder Program 31 to be aware of what’s going on in the building because of potential legal aspects and then I’ll go talk to the service coordinator.” The property manager who attempts to maintain a line between property management and the service coordinator also acknowledges there are times when it is valuable for the two entities to work together. For example, a resident may be declining but refuse to work with the service coordinator. The property manager can tell them it is a requirement of their lease for them to maintain their apartment in good condition to stay in the building and they should work with the service coordinator. “It’s kind of a good cop/bad cop role,” says the property manager, “the intention is not to move them out, but it’s a strategy to get the resident to seek help.” There is a potential for tension to develop between the property managers and the WellElder staff because of their differing responsibilities. The property manager is accountable for upholding all lease-related requirements and maintaining the upkeep and safety of the building, while the service coordinator and health educator are advocates and confidants for residents. In situations where lease violations or potential liabilities to the building exist, conflicts may arise in the extent to which information is shared or the perspective on how problems should be resolved. One property manager noted tension was rare with the WellElder staff because they have become very comfortable with each other’s roles and how much information the property manager needs to know. “They know my areas where I need to be informed and I know theirs,” the manager says. Another manager notes, “We constantly have conversations about how to best utilize each other. If you keep communication open, it can work. Sometimes someone will say I’m not supposed to share that, but learn down the road that they could have shared and resolved the problem earlier. Otherwise, there’s no conflict because we’re here as a team and we’re focused on the residents.” Evaluation of the WellElder Program 32 Exhibit 1: Examples of Residents Assisted through the WellElder Program Resident A – Resident A has major memory problems. She takes Coumadin, a blood thinner that requires regular monitoring, and has to be reminded to of her lab work and doctor appointments. The doctor’s office alerts the health educator of new appointments so she can help the resident keep track of them. The health educator worked with her pharmacy to get her prescriptions packaged to help her take the right medications at the right time. The resident developed a problem with her hand and the health educator was concerned her doctor was not addressing it. Because she uses a walker, it is important she have good use of her had. The service coordinator also became aware of a stack of unpaid bills. Given her multiple needs, the WellElder team believed the resident would benefit from the PACE program. She was reluctant to join, but the educator and service coordinator were able to convince her of the benefits. She will be followed regularly by a physician, will get in home assistance and a social worker will be able to assist her with managing her affairs. Resident B – Resident B was admitted to the hospital after a syncopal episode and continued to struggle with weakness after returning home. The resident also suffers with glaucoma. Although the reason for his syncopal episode was unknown, he may have taken his blood pressure medicine incorrectly due to his impaired vision. The service coordinator helped him secure an aid through the IHSS program to assist with his personal and home care needs that are difficult for him to perform. The aid can also help prevent some of the dangers associated with his declining vision, for example, sorting his medications into a pill box. When his aid was in an accident and unable to work, the service coordinator put in a request for an emergency substitute so he would not go without assistance. The resident had glaucoma surgery and was refusing to do the suggested follow-up rehab. The service coordinator was able to convince him to follow through. Resident C – Resident C received several new prescriptions following a hospital stay without any explanation. The health educator explained what the medications were for and how they should be taken and then checked in periodically with the resident to make sure everything was going ok. Resident D – Resident D had an incident that resulted in him being hospitalized for a psych evaluation and being served an eviction notice. The WellElder staff interacted with the doctor to help them figure out what might be happening with the resident. The service coordinator also connected the resident with a legal advocate and APS to assist him with dealing with the potential eviction. Around the same time, the resident was scheduled to have surgery, but due to a mix-up with his insurance card the surgeon was unwilling to perform the surgery for fear he would not get reimbursed. The service coordinator assisted him with correcting the insurance problem and finding a doctor who would perform the surgery. The surgery was scheduled as a day surgery. Because the resident is in his late 80s and a weakened state, the service coordinator was concerned about him returning to his apartment immediately and convinced the surgeon’s office to keep him in the hospital. The service coordinator then connected with the discharge planner to help ensure they put the necessary supports in place. After returning from the hospital, the service coordinator suggested that he could benefit from the multiple supports the PACE Evaluation of the WellElder Program 33 program could provide. Initially unwilling, the service coordinator was eventually able to convince him of the program’s benefits and his application is pending. Resident E – Resident E was almost evicted due to his hoarding behavior. The service coordinate assisted him with obtaining a mental health advocate who helped him work out a solution with property management allowing him to stay in his apartment. The service coordinator identified a volunteer group to help clean his apartment. He has health problems, poor hygiene and difficulty taking his medications properly and keeping medical appointments. He decided to join the PACE program after attending a presentation at the property. The service coordinator and PACE social worker collaborate to help him manage his hoarding behavior. Residents F – Residents F are a husband and wife who regularly see the health educator to get their blood pressure checked. The husband is now developing Alzheimer’s and Parkinson’s and asks the health educator to help him communicate with his doctors. She also provides him with education on his health issues. The wife is a diabetic who has difficulties using her glucose monitoring machine and the health educator helps her with the machine. Resident G – When the health educator found Resident G’s blood pressure to be high, she told the health educator that her doctor said it is just like that. The health educator told her she would still recommend her doctor check it out. Resident G visited her doctor and they discovered she was retaining fluid, which was causing the high blood pressure. She started on a diuretic and the problem resolved. Later Resident G had foot surgery and the health educator checked on her to see if everything was healing properly. The health educator talked with her about good follow-up care and what to do for pain control. Resident H – Resident H has low iron problems and must have her blood checked weekly. Due to her weakened state, it became difficult for her to ride the regular bus to get this done and the service coordinator helped her get established with Paratransit. Her weak state makes it difficult for her to take of many things and the service coordinator is also helping her apply for an aid through the IHSS program. Resident H also cares for her husband, who has dementia. Resident I – Resident I has health problems and is also caring for her husband, who is losing his eyesight. The service coordinator assisted them with getting an aid through the IHSS program. The service coordinator and health educator repeatedly encouraged Resident I to talk with her doctor about her health problems, but she said the doctor would not do anything to find out what may be the cause. They talked with her about changing doctors, but she would not do it out of concern of offending the doctor. The service coordinator and health educator were eventually able to convince her to switch to a new doctor, who ran tests and identified the problems. Evaluation of the WellElder Program 34 Chapter 4 – Study Findings Program Benefits The study team interviewed the WellElder staff and property managers in each of the four properties about their perception of how the WellElder program benefits residents who participate in the program, the property and other entities such as family members and community service providers. Residents participating in the program were also asked how they believe the program benefits them in both the self-administered survey and focus groups. WellElder Staff Perceptions of Resident Benefits WellElder staff believes the collaboration between the health educator and the service coordinator benefits residents in multiple ways. While service coordinators can often become adept at assisting residents in a range of health-related areas, WellElder staff says there are advantages the health educator brings to the team by virtue of their education and training. Their medical background, the service coordinators say, provides a knowledge and insight that a service coordinator’s training does not afford. The health educator can: • Assess residents to help identify potential health-related problems and possible solutions. • Notice subtle changes in condition that may signal a health problem to be addressed with a physician. • Have a greater understanding of what having a certain disease or condition may indicate about a resident’s immediate and long-term needs. • Have a better understanding of a resident’s medical situation when the person comes home from the hospital, including potential complications and what to monitor for. • Review a resident’s medications and identify potential unnecessary, duplicative or problematic medications about which resident should confer with their doctor, and educate the residents about potential side effects. • Explain to residents why their doctor may be ordering certain diagnostic tests or what the results of those tests might mean. • Educate residents about health and wellness topics, including managing their chronic conditions. • Monitor vital signs and recognize when a problem may be indicated. Service coordinators also believe that as a nurse the health educator often has greater professional authority with residents than they do as a service coordinator. Not only can the health educator provide a more detailed explanation about health-related issues, some residents will follow-through on the health educator’s advice simply because they are a nurse. “Residents trust her more because she’s a nurse,” says one service coordinator, “She can say this is a good idea to do this or that; they are more receptive.” Another says, “If I try to talk to them about nutrition and what causes diabetes, they don’t listen to me. They say you don’t know what you’re talking about. She has more credibility.” Service coordinators also feel that as a fellow heath professional, the health educator can also often obtain greater access to and/or a better response from physician offices. Evaluation of the WellElder Program 35 The WellElder staff believes that layering the skills of the health educator with those of the service coordinator allows them to better serve the residents. “Working together has helped us look more comprehensively at what is going on with individual residents,” says one service coordinator, “We often bounce ideas off one another as we try and come up with a plan or strategy to help residents age in place. Our outlook is more holistic and that benefits residents a great deal.” “We can go visit people together and we see people from different perspectives,” says another service coordinator. “For example, we’ll go visit someone when they come home from the hospital,” says the health educator, “I’m looking at the medications, she’s looking at the refrigerator.” As a team, the WellElder staff believe they are able to offer residents a range of benefits, including: • Access and maintain benefits and services. WellElder staff can help residents navigate the complex network of benefits and services to identify resources to meet their needs. More importantly, they can assist residents with the initial application process and subsequent recertifications so that they maintain their benefits. Applications for benefit programs can often be daunting—particularly for persons whose primary language is not English or who have limited literacy—requiring applicants to fill out multiple forms and provide various forms of documentation. WellElder staff can help ensure residents gather the correct information and follow through on all necessary steps to complete the process. Some examples of how WellElder staff helps participants with benefits and services include: − The WellElder team conducts mock interviews with residents applying for the In Home Supportive Services (IHSS) program so they know what to tell the interview about their health and functional status situation to get the hours they need.5 They also educate family about how the IHSS program runs so they can act as a liaison as well. − WellElder staff can help residents adjust their benefits to match their needs. For example, a resident who receives assistance through the IHSS program may need temporary additional support after returning home from a hospital stay, and WellElder staff can assist them with getting this increase in place quickly. − The WellElder team helps residents with selecting their Medicare Part D plans. While they do not make the decision for them, they explain the options, suggest they confer with their doctor or pharmacist, and connect them with the local Health Insurance Counseling and Advocacy Program (HICAP). − The WellElder team helps residents to understand their benefits—particularly health insurance coverage—and changes that occur over time. They sometimes protect residents from unscrupulous sales people who are not always honest about coverage and costs. One resident, for example, switched to a plan in which his physician did not participate and he was billed for a visit. Another individual wanted to drop his Medicaid coverage, but was unaware that the program was covering his Medicare premium. • Timely access to health care information and advice. With WellElder staff located in the building, residents can simply walk downstairs to ask questions and get information rather 5 IHSS is a Medicaid program in California that provides people who are blind, disabled or elderly with personal assistance and in-home support services to help them live safely in their homes. Evaluation of the WellElder Program 36 than trying to connect with their doctor’s office where they may not be able to get an appointment for several days or weeks. Examples of issues addressed by the WellElder staff include: − Some residents like to test whether they really need to take their blood pressure medication. While the health educator might advise against this decision, they can help them monitor the impact should they stop taking their medication. − Residents can visit the health educator when not feeling well and the health educator can help assess what might be happening and whether they need to see their doctor. − For residents who have had a change in their medication regimen, the health educator can help explain why their doctor made this decision, alert them to possible side effects of the new medication and set up a plan to help them monitor the effectiveness of the new prescription. For example, if they changed the resident’s blood pressure or pain medication, the health educator may have the resident check in biweekly to take their blood pressure or to rate their pain on a scale of 1-10. • Improve self-care abilities. Through group education sessions or one-on-one contact, health educators are able to teach residents about disease processes and how to monitor and manage their chronic conditions. For example, they can educate a newly-diagnosed diabetic on how to take and monitor their blood sugar or teach a resident about a new prescription and the best way to administer the medication. A distinct advantage is that the health educator is located on site and has flexible time. WellElder staff say residents often leave their doctor’s office having been given no education on a new diagnosis or not really understanding what their doctor told them. In a low stress environment, the health educator can spend the time the resident needs to understand, can present information in a manner they can comprehend and is accessible for follow-up when needed. • Facilitate communication with health care providers. Assistance with communication can happen in a variety of ways. The health educator can help prepare residents for a doctor’s appointment by advising them on information to give and/or questions to ask their doctor about themselves. Sometimes, the WellElder staff will call a physician with a resident or on their behalf to discuss the resident’s issues. One health educator noted that the phone frightens many residents, particularly those whose primary language is not English. She can be a connection to their doctor to help get their questions or concerns addressed. WellElder staff also note that many elderly residents have a deep reverence for their doctor because of their professional status and are often unwilling to question them. In instances where the WellElder staff perceive a doctor may not be adequately addressing a resident’s situation, the WellElder staff can either convince the resident to push further with their doctor or assist them in communicating with the physician. The health educators can also help residents provide their physicians with documentation of their health situation. For example, some residents get stressed in the doctor’s office and the blood pressure readings are high. The resident, however, can share their record of blood pressure readings taken by the health educator that shows their blood pressure is normal. • Enhance sense of empowerment. WellElder staff believes that through the guidance give residents, some feel more empowered about managing their health care. For example, the health educators believe that the regular monitoring of residents’ blood pressure helps them Evaluation of the WellElder Program 37 to see that they are doing things appropriately to maintain a healthy level. One service coordinator related the example of a resident with Parkinson’s disease who started regularly attending the group education sessions. After one discussion that highlighted some principles on healthy aging, he became more interested in his nutrition and incorporating activities into his life that he used to love doing like reading and going fishing. • Support transitions home from the hospital or nursing home. WellElder staff note that they frequently help smooth residents’ transitions back home from a hospital or nursing home. This can include communicating with the discharge planner, the resident and/or the family member about whether they are, in fact, ready to come home and have all the necessary supports in place. There are times when a resident is insistent on returning home before they are safely ready, and WellElder staff can try to convince them that it would be better for them to remain in the hospital or nursing home. They can also help convince them of the benefits of doing follow-up therapies. WellElder staff can also alert discharge planners to the realities of the resident’s environment and whether they have the necessary resources and supports. WellElder staff is also available to monitor residents after their return to help ensure they are managing successfully. • Increased sense of security. The cumulative benefit of the program, WellElder staff believes, is that it provides residents a sense of security that the property will support them with their current and future needs. “They find it comforting to know that they have someone right here in the building who is watching out for them and who can get them further help, if they need it,” says one health educator. A service coordinator echoes this, saying, “We hear from so many people that there’s a sense of comfort knowing there’s someone here; that we’re downstairs and they can come talk to us.” Another service coordinator says, “Sometimes residents say things like I don’t need you now, but when I do it’s nice to know you’re here.” This perception was supported in the resident self-administered survey, where a majority of program members responding said they felt safer knowing that someone was available to answer their questions and keep an eye on them. They felt that they would be able to stay in their apartments longer because of the assistance they receive (see Table 4.1). WellElder Staff Perceived Benefit to Others In addition to directly benefiting residents, the service coordinators also believe the health educator enhances their own capacity to assist residents. As the health educator is at each property a limited number of hours each week, they can provide the service coordinator with information they should give or questions they should ask when talking with a physician’s office or discharge planner to get better results. One service coordinator says, “Sometimes if you don’t know the answer to the question already, you might not get the services. For example, “I might ask [the health educator] ‘do you think this person could benefit from home health’ and then she can tell me what to discuss with the discharge planner. She can help make my argument stronger.” The health educator can also give the service coordinator insight on a resident’s health situation and what kind of services they may benefit from now or in the future. WellElder staff believes the program also benefits other entities, including: Evaluation of the WellElder Program 38 • Family members – Family members are not always aware of the services and resources available in the community and WellElder staff can educate them about the various options. Some family members will contact the WellElder staff for advice on what to do when their family member is in the hospital. They will give them information on what to be aware of and what to ask the doctor and discharge planner about. WellElder staff can also collaborate with a family member to influence a resident’s actions. One service coordinator says, “Sometimes I have family members who says ‘my father won’t listen to me, but he’ll listen to you.’ Sometimes residents just don’t want their children telling them what to do.” Staff also thinks they provide some family members with peace of mind. “We’ve heard from the families, ‘I’m so glad you’re here and I have someone to talk to,’” says one staff member, “They have a sense of relief when there is an incident of ‘oh my mom can come see you.’” • Property managers – WellElder staff believe they are able to avert many residents from lapsing into crises, which can lead to disruptions to other resident in the building and/or potential damages to the property. Property managers generally do not have the skills or knowledge to deal with resident health-related problems, particularly mental health issues. The WellElder program helps property managers focus on property maintenance and operations. • Discharge planners – WellElder staff can help discharge planners have a complete picture of a resident’s situation. They can help them understand what supports they do and do not have. WellElder staff can also assist them with putting services and supports a resident may need in their transition in place. One service coordinator says she often hears from discharge planners, “I didn’t know you had this service. That’s great; can you do this or that?” Several discharge planners, WellElder staff says, have said they wish all properties had someone like this. • Paramedics – Paramedics have found it beneficial to have the WellElder program, staff says, because it helps them know more about a resident than the resident is often able to tell them. They have particularly found the medication lists the WellElder program helps residents maintain valuable. • IHSS Aides – A large number of residents in the four properties participate in the IHSS program. Some aids will come to the WellElder staff with concerns about the resident they care for and the service coordinator and/or health educator can give them advice or engage with the resident with them. This is generally more common for residents who do not have family members in the area or have more complex situations. Perception of Property Management The majority of property managers echoed the benefits of the WellElder program to the residents perceived by the WellElder staff. (One property manager was less supportive than the others, indicating that resident problems were often resolved by property management itself). These include the easy access to the service coordinator’s and health educator’s wealth of knowledge right in their building and the encouragement of residents to address health problems they might not follow up with on their own. One manager gives an example of seeing the health educator look at a resident’s swollen leg in the lobby, which had apparently been worsening over time. Evaluation of the WellElder Program 39 She told the man that this could be a serious problem and it was very important that he see his doctor. Managers also believed that the advocacy and communication assistance the WellElder team can provide residents with health providers is a major benefit. Property managers identify different groups of residents who benefit most from the WellElder program, although they think the program can help all residents in some way. One manager believes residents who are declining benefit greatly because, through the team approach, the service coordinator and health educator can identify and figure out the best ways to address their various problems. Another believes the residents who are receptive and open to receiving education and assistance gain the most. The manager believes the support the program offers helps these residents thrive and stay independent. “Residents who are frail and participate are just more engaged in life; those who are frail and don’t are more isolated,” this manager perceives, “Residents who are not engaged could be in their apartment hurting and nobody is checking on them because they don’t want anyone to know.” The majority of property managers also believe the WellElder program benefits the property in a variety of ways. One notes that the program minimizes the time the property staff spends dealing with resident-related issues, which allows them to focus on their property operation and maintenance responsibilities. Another manager feels the program helps minimize resident turnover. By helping residents address their physical and mental health issues, managers feel the service coordinator and health educator help minimize damages to the property and disruptions to the community and other residents. For example, if a resident has a hoarding/cluttering issue that creates an unsanitary environment and puts them out of compliance with their lease, the service coordinator and health educator can help address the issue. If a resident forgets to pay their rent, they may just need a system to remind them or assistance with managing their finances and the WellElder staff can help identify a resource. If a resident is wandering the halls and invading other residents’ space, the service coordinator and health educator can help identify a solution. One property manager believes he sees fewer inter-resident conflicts compared to previous property at which he worked. This could possibly be due to the service coordinator and health educator identifying behaviors that may be due to underlying health issues and helping address them before they escalate. One property manager notes that the coordination of what the service coordinator and health educator bring to the property helps the property management staff do their job better. “If we have more satisfied residents we have a happier, healthier community,” the manager notes, “We can provide a well-managed environment, but it takes all of us to make it successful. They bring a piece of the puzzle that we can’t.” Another property manager echoes this sentiment. “Any building that doesn’t have a service coordinator or health educator is really going to feel it. The quality of life for seniors is based on more than just a building; it’s important, but they are dealing with much more. That’s the job of the WellElder program.” Almost all the managers concur that they would like to increase the health educator’s availability. “I don’t think we have enough time for the health educator,” says one manager, “It would be better if we had double or triple the time; I think we are probably just barely scratching the surface.” This manager and others believe resident needs are increasing and the potential places for them to move to for additional support are limited. Evaluation of the WellElder Program 40 Resident Perceptions of the WellElder Program In the resident self-administered survey, WellElder program members were asked whether and in what ways they believe the program (also identified for them as the service coordinator and nurse) helps them. Across the four properties 93.1% of respondents believed the program was helpful (Property 1 – 92.4%, Property 2 – 96.4%, Property 3 – 89.2%, Property 4 – 94.9%). As Table 4.1 shows, approximately two-thirds of residents across the four properties believed the program helped them identify resources and services and access them more quickly than they would be able to on their own. For a large majority of members across the four properties, the program also brought a sense of safety and a belief that the program will help them remain longer in their apartment. Table 4.1: How the WellElder Program Helps Residents* Property 1 Property 2 Property 3 Property 4 Total 57.4% 66.1% 66.1% 79.0% 66.7% Helps me get services and assistance quicker than I can get on my own. 58.8 48.2 66.1 77.2 62.5 Helps me understand my health situation better. 29.4 51.8 46.4 66.7 47.7 Helps me understand how to better take care of my health care needs. 36.8 41.1 51.8 71.2 49.8 Helps me avoid medical emergencies and going to the emergency room. 16.1 26.8 27.3 49.1 29.2 My doctor is more responsive to me because I know what to tell him or her about myself and what questions to ask. 41.2 25.0 27.8 66.7 40.4 I feel healthier. 10.3 32.1 29.6 43.8 28.1 I have a better sense of well-being. 19.1 37.5 25.9 45.6 31.5 I feel safer knowing that someone is available to answer my questions. 59.7 71.4 57.4 77.2 66.2 I feel safer knowing that someone is keeping an eye on me. 48.5 51.8 42.6 71.9 53.6 I will be able to stay in my apartment longer because of the assistance I receive from the nurse and service coordinator. 54.4 60.7 66.0 80.7 65.0 Helps me find out about resources and services I am not aware of. *Respondents were allowed to select multiple answers. Almost all members who responded to the self-administered survey across the four properties said they would recommend the program to a friend or neighbor (Property 1 – 96.7%, Property 2 – 94.9%, Property 3 – 92.5%, Property 4 – 94.6%). Evaluation of the WellElder Program 41 In focus groups with members of the WellElder program, most participants could not identify with the formal name of the program, but were aware of the service coordinator and the nurse, if not by title then by name. Most focus group participants had received assistance from the service coordinator and exuberantly praised the support they receive from them. Although this study attempted to look at the role of the service coordinator with respect to the WellElder program, residents do not differentiate the complete range of assistance that the service coordinator provides them. Participants talked about the wide range of support and assistance the service coordinator provided, from helping them resolve issues with the cable company and social security and their health insurance to helping them arrange home delivered meals and visiting them in the hospital. Personal interaction with the health educator was more varied among the focus group participants; some had personally visited the health educator, others had not but knew of fellow residents who had. To some extent, the lower level of interaction with the health educator is due to the limited amount of time the health educator is at the property and the narrower range of assistance they provide relative to the service coordinator. Participants did note receiving assistance from the nurse in a variety of areas, including preparing a list of their medications, having their blood pressure checked, information and advice about their diseases and medications, advice about whether they needed to follow up with the doctor about something, support caring for a spouse after they returned from the hospital, understanding medical test results and visits following a hospital stay to see how they are doing. When asked why they did not utilize the health educator at all or more frequently, participants provided a range of reasons. Some residents said they got all the health information they needed from their doctors. Some said she is not available that often, and that they often go to the service coordinator with their health-related questions and concerns. Several were frustrated by what they perceived to be restricted services by the health educator. They did not understand why the nurse could not provide traditional nursing services like checking wounds, administering first aid and giving shots. Several also wanted the nurse to be available in a capacity that could prevent them from having to call 911. It appeared some participants may possibly have limited interaction with the health educator because they are unaware or confused about what the health educator could or could not help them with. One participant, for example, wished they could help with understanding his medications but believed he had to go to a pharmacist for that. Some participants noted that the health educator had visited them following a hospital stay or they were aware that they had done that for other residents and they expressed great appreciation for this service. A few participants said they had not received visits following a hospital stay and were disappointed by this. It appeared that some residents may feel worried or vulnerable when returning from the hospital and were comforted by the fact that someone is checking on them and aware of them. The participant response was mixed on whether they attended the group education sessions and activities in their properties. Some who did said they had learned helpful information from them. One of the reasons given for not attending was the language barrier, particularly for Russian- Evaluation of the WellElder Program 42 speaking residents because the sessions are not currently translated into Russian. Others said they forget they are occurring or that they are too busy to go. Echoing the results from the resident survey, participants in the focus groups seemed to be very comforted by having the service coordinator and health educator there to help them with their questions and situations and to know that someone is aware of them and watching out for them. Differences between Members and Non-Members The research team analyzed the resident self-administered survey, looking at resident reported characteristics and service use, and resident incidents and move outs to identify differences between WellElder program members and non-members. Resident Characteristics Table 4.2 highlights where statistically significant differences were found between the WellElder program members and non-members in the areas examined in the resident selfadministered survey. Compared to non-members, WellElder program members: • Are older; • Have lived in the property longer; • Have higher levels of difficulty with shopping, housekeeping, doing laundry and traveling to places out of distance; • Have higher levels of experiencing multiple ADLs and IADLs; • Have higher levels of arthritis or rheumatism; • Are more troubled by pain; • Take a higher average number of prescription medications and over-the-counter medications; and • Report a higher average number of days in the last 30 days that their health was not good. The full survey results analyzed by membership status can be found in Appendix B. Evaluation of the WellElder Program 43 Table 4.2: Differences between WellElder Program Member and Non-Member Characteristics Member Non-member P-value Mean age (years) 78.7 74.5 .0005 Mean length of time in building (years) 9.2 6.3 <.0001 51.4% 38.0% .0265 Difficulty with ADLs/IADLs Shopping Housekeeping 61.9% 43.0% .0014 Doing laundry 49.1% 37.0% .0462 Traveling to places out of walking distance 54.3% 40.6% .0201 1 or more ADL 58.2% 41.0% .0019 2 or more ADLs 39.1% 28.0% .0420 Difficulty with multiple ADLs Difficulty with multiple IADLs 1 or more IADL 75.7% 64.1% .0241 2 or more IADLs 69.1% 46.6% <.0001 Health Conditions Arthritis or rheumatism 71.3% 54.3% .0024 78.1% 64.1% .0083 Mean number of prescription medications 6.2 5.2 .0317 Mean number of over-the-counter medications 2.4 1.8 .0126 Mean number of days health was not good in last 30 days 12.8 9.5 .0314 Often troubled with pain Resident Service Use One goal of the WellElder program is to help connect participants with home and community based services that can assist them with their health and supportive services needs and help facilitate their ability to remain safely in their apartment. Residents were asked in the selfadministered survey about their use of the services listed in Table 4.3. Comparing program members to non-members, members report a statistically significant higher use of transportation, homemaker, personal care, exercise and case management services. After adjusting for the property, age and presence of at least one ADL or IADL, the difference between member and non-member service use were attenuated in all areas except for homemaker services. The odds of a WellElder program member using homemaker services are almost three times that of a nonmember. Evaluation of the WellElder Program 44 Table 4.3: Differences between WellElder Program Member and Non-Member Service Use Member % (number using service) Non-member % (number using service) Unadjusted P-value Adjusted Odds Ratio (95% CI)* 43.6% (122) 28.0 (28) .0062 1.53 (0.87-2.69) Homemaker services 71.7 (208) 46.2 (48) <.0001 2.87 (1.44-5.73) Meals programs 23.5 (64) 18.6 (19) .4016 1.38 (0.74-2.56) Assistance with medications 30.1 (84) 20.6 (21) .0707 1.00 (0.53-1.89) Personal care assistance 32.3 (91) 21.6 (22) .0434 0.92 (0.45-1.85) Adult Day Care 9.6 (25) 5.8 (6) .3009 1.17 (0.40-3.42) PACE 4.1 (10) 5.1 (5) .7715 0.64 (0.17-2.38) Exercise programs 27.5 (72) 16.0 (16) .0279 1.83 (0.95-3.54) Mental health counseling or therapy 18.8 (49) 15.2 (15) .4451 1.17 (0.55-2.48) Case management 6.7 (17) 1.1 (1) .0313 NA Bill paying assistance 13.8 (37) 17.0 (17) .5074 0.45 (0.22-0.94) Services Transportation services *Adjusted for property, age, presence of at least one ADL or IADL. Although the differences in service use among program participants and non-participants disappeared when controlling for certain variables, this does not mean the WellElder program does not help increase service use among program participants. All residents in the four properties, whether members of the WellElder program or not, can receive assistance from the service coordinator. Service coordinators are likely informing any resident they see about services and supports that may benefit them and assisting them in accessing the services. Resident Incidents WellElder staff attempt to monitor resident incidents such as falls, 911 calls, emergency room visits and hospital stays. In the event of an emergency, residents may call 911 directly or alert building security who then calls 911. If a service coordinator and/or health educator is on duty and alerted to the emergency, they will check on the resident. When emergencies happen in the evening or on the weekend, WellElder staff and property management are alerted to the event by incident forms completed by security staff. When receiving an incident from, the service coordinator and health educator generally try to ascertain the status of the resident, including whether the resident was taken to the hospital and, if so, if they are still there. If the resident did not go to the hospital or has already returned home, they might visit him or her in their apartment. If the resident is still in the hospital, they would attempt to find out their situation and connect with the discharge planner. The hope would be to ensure the discharge planner is fully aware of the resident’s living situation and puts in place the necessary supports for the resident to have a successful transition back home. WellElder staff will attempt to visit residents in the hospital or nursing home when warranted or as circumstances allow. This may be when a resident has an extended stay or has a complex situation they have been assisting with. Evaluation of the WellElder Program 45 WellElder staff face several challenges in attempting to follow-up with residents during a hospital visit. Because there are multiple hospitals in the area and residents have different insurance providers, they are not always aware where residents are taken to. Due to HIPAA laws, hospitals may or may not confirm a resident is there. For this same reason, discharge planners may be unwilling to discuss a resident’s situation with the service coordinator or health educator. WellElder staff has been able to establish relationships with some discharge planners and make them aware of the housing property and the presence of the WellElder staff. Some discharge planners will call the property to find out more about the resident and their living situation. When WellElder staff can connect with a discharge planner, they often work in partnership with them to get needed supports in place. However, due to the multiple hospitals, the large number of discharge planners and staff turnover, many are not aware of the housing property. In addition, WellElder staff may not always be aware when a resident has gone to the hospital. Some residents may be sent to the hospital directly from their doctor’s office or may have an emergency while out of the building. WellElder staff do not have a formal protocol for following up with residents when they return home from an ER visit or hospital or nursing home stay. If they are aware a resident has returned home, the service coordinator and/or health educator generally attempt to follow-up with them. They would check to see if they have all the necessary supports in place to have a successful recovery. For example, if home health was ordered has it started, if they had an IHSS aid or other service has it resumed, do they have adequate groceries, etc. Hospital visits and post-hospital follow-ups are most often handled by service coordinators, primarily due to the limited time the health educators are at the property. The San Franciscobased health educator does make occasional visits if her day at the property coincides with a resident’s stay and she does attempt to follow-up with residents when they have returned to their apartment. The service coordinators also generally update her about residents who have returned from the hospital. In the San Jose property, the health educators do not conduct hospital visits and do limited follow-up visits because they may not be at the property on the day a resident returns home. Each of the four properties tracked the number of resident incidents—including falls, 911 calls, emergency room visits, hospital stays and nursing home stays—during the eight-month data collection period. Table 4.4 shows the number of incidents experienced by WellElder program members and non-members in the combined four properties, as well as the over all number of episodes. In a single episode, a resident may experience multiple types of incidents. For example, in one episode a resident may call 911, be taken to the emergency room and admitted to the hospital. As Table 4.4 shows, a resident seldom had only a 911 call or an emergency room visit. Evaluation of the WellElder Program 46 Table 4.4: Number of Resident Incidents Type of incident Member (N=668) Non-member (N=297) Episodes 138 38 Fall 29 8 911 call 95 26 911 call alone 5 1 Emergency room visit 87 27 Emergency room visit alone 6 1 Hospital stay 83 20 Nursing home stay 19 3 Table 4.5 shows the percentage of WellElder program members and non-members with at least one type of incident during the eight-month data collection period. A higher proportion of program members experience each of the various types of incidents tracked than non-members. Table 4.5: Percent of Residents Experiencing Incidents Member (N=668) Non-member (N=297) 13.8% 9.8% Fall 3.3 2.4 911 call 10.5 7.4 Emergency room visit 9.9 7.4 Hospital stay 9.3 5.7 Nursing home stay 2.4 1.0 Type of incident Any incident The discrepancy between the proportion of residents reporting falls, ER visits and hospital stays in the resident self-administered survey and tracked by the WellElder and property staff over the study data collection period must be acknowledged. Importantly, the difference in time frame must be noted. Residents were asked about events experienced during the past year, while the housing properties collected data over an eight-month period. Other possible reasons for the differences include: 1) residents over reported their events or 2) the properties cannot consistently track all resident events due to the challenges and limitations discussed above. Resident Move Outs Table 4.6 examines the move outs of WellElder program members and non-members over the course of the eight-month data collection period and where residents relocate to after moving out. A small proportion of both groups moved out during the study period. In both groups, the most common reason for move out was due to death. A slightly higher proportion of nonmembers moved out to a nursing home facility. It is possible some of these non-members did not seek the WellElder team’s assistance in managing their health and functional conditions or accessing services and supports that might have enabled them to remain in their apartment. Evaluation of the WellElder Program 47 Table 4.6: Resident Move Outs and Destination Member (N=668) Total move outs Non-member (N=297) 30 15 4.5% 5.0% Other apartment property 3.3% 13.3% Family 30.0 13.3 RCFE/ assisted living 6.7 6.7 % of group population Destination (% of total move outs) Nursing Home 16.7 26.7 Death 43.3 33.3 0 6.7 Other/unknown Program Participation Service coordinators and health educators were interviewed about differences they may see in residents’ willingness to participate in the WellElder program, accept assistance and utilize services, including any distinctions they might perceive between different ethnic or cultural groups. Less Likely to Participate One property believes more functional and healthier residents are least likely to participate in the WellElder program. These individuals are often active outside of the building—as caregivers for their grandchildren, working, volunteering, etc.—and are not coming to WellElder activities. In this building, staff sees the Chinese residents as less involved because they are a younger, healthier group. This is not to say healthier, active residents are not engaged in the program, though, staff says. There are some residents who still want the contact and reassurance that they are doing well. Another property thinks residents with engaged family members may be less likely to participate in the program. They also believe there may be some residents who are fearful of telling any property staff about their problems. “I’ve had some people say no matter what you say about the confidentiality, I know you people have meetings and they may ultimately squeeze it out of you,” says a health educator. Some residents, staff believes, just are not joiners and have been that way their entire life. Receptivity to Assistance Service coordinators feel residents are generally open to their advice and usually follow through on their suggestions. They believe this is due to the trusting relationship they are able to form with residents. As one service coordinator stated, “People seem to know why we’re here and what we’re doing; they know we’re dedicated to that service lifeline.” Service coordinators say they spend time building trust because “the goal is to get residents to come back and be open to referrals and services.” Being on site facilitates such relationship building. It allows service coordinators to meet with residents on their terms, in a low-stress environment. Residents see them regularly and view them as a part of the fabric of their community. Building trust and Evaluation of the WellElder Program 48 report with residents is essential, one service coordinators says, “before you can get to the deeper, heavier issues.” While most residents are receptive, WellElder staff say it can depend on the person. One service coordinator says they sometimes need to get family on board or tag team with a physician to present a united front in order to influence a resident’s decision. Residents are also sometimes more receptive to some services than others. For example, residents are generally open to having an IHSS aid or receiving vouchers for taxi services. Many, however, do not want to use Meals on Wheels because they do not like the food or do not like having to be home during a particular time window. Mental health issues are very difficult to address with residents due to the associated stigma, which can be very strong in some of the cultures in the building. One service coordinator says, “We try to not use the terms like therapist, mental health, etc. That works for some.” Service coordinators say it can take a while to get some residents to follow-through, but eventually they often come around. For example, many residents have deep respect for their doctor and do not want to offend them. When WellElder staff believes a physician is not addressing a resident’s problems, it can be difficult to get the resident to question their doctor or be more forceful with them. With residents who do not follow through, service coordinators say they can sometimes convince residents to let them take action for them. For example, they can call a resident’s doctor and explain to them what the resident is experiencing. This is only done with the resident’s permission, however. While staff wants to help residents resolve their problem, one service coordinator says, “We also don’t want people to not come back because we violated their choice.” Challenging to Serve WellElder staff concur that residents with mental health issues (including mental illness and cognitive diseases such as dementia) are the most challenging to serve for multiple reasons. For residents with physical challenges, there are a variety of available services and individuals are generally amenable to using them. However, it can be very difficult to convince persons with mental illness to even acknowledge their illness much less accept services. Due to the stigma associated with mental illness, particularly strong in some cultures represented in the building, it can be hard to even begin a discussion about such problems. When a conversation can be initiated, the illness can trigger a poor reaction. A resident may become angry, deny the problem and possibly no longer be willing to come to the WellElder staff again. There is also a lack of mental health services, particularly for non-English speaking residents, to connect residents with. Because of the independent nature of the building, it is also hard for program staff to know if residents are already being followed by anyone or are taking their medications. Program staff also find individuals with dementia challenging to serve. The ability for these residents to remain in the building is often case by case, staff say, and is driven by the severity of the disease and/or the resources that program staff can put in place. A resident with dementia in one property is supported by her daughter, who is a live-in caregiver. The health educator has educated the daughter on ways to help keep her mom safe. In response to concern that her mother had taken a double dose of blood pressure medication, for example, the health educator discussed safe ways to handle and administer her mother’s medications. She also discussed Evaluation of the WellElder Program 49 general home safety measures, which may be necessary if the mother’s dementia worsens, like an alarm on the door to prevent wandering, keeping sharp kitchen tools out of reach and monitoring the water temperature in the shower and bath. Another resident in this property with dementia has a social worker in her doctor’s office who works with the service coordinators to ensure the resident remembers appointments and gets transportation to the doctor’s office to maintain regular medical care. Individuals fiercely hanging on to their independence are also difficult to serve. One service coordinator described seeing residents on the cusp of a crisis that you might be able to prevent, but who refuse services or altering their practices. For example, a resident who does not want to use a cane, putting them at risk for falling, or does not want a home care aid, limiting their ability to care for themselves or their home. This desire and behavior, the service coordinator believed, is evident across all cultures in the building. Cultural and Ethnic Differences WellElder staff believe the Russian and Chinese residents are generally well connected to services and resources in the community. These groups have a variety of ethnic-affiliated organizations such as social service agencies, cultural organizations and churches through which they have been educated about and/or linked with services. They also often learn from their fellow residents about available resources. The health educator in the San Francisco properties, which have the largest Russian populations, believes Russian residents do not access her as frequently as other ethnic groups in the properties. She perceives Russian residents are often on top of managing their own health and support needs. As just discussed, this is partially due to their engagement with Russian-affiliated community groups who have educated them about and connected them with services. Some Russian residents were also health-care professionals before immigrating to the U.S. and feel they can manage their own care. Other Russian residents also sometimes go to them for advice and assistance. The health educator also perceives that Russian residents tend to be more private and do not want staff to know their business. The same health educator believes Chinese residents tend to utilize her more frequently. They actively come to her for blood pressure monitoring and she finds they are generally compliant with her advice and suggestions. WellElder staff in the San Jose property also find the Chinese community is very proactive in getting its needs met and these residents often initiate contact with them. They believe Chinese residents are generally very open to education activities and continued learning. Some staff perceives the White and African American residents tend to be less knowledgeable about resource options and are sometimes reluctant to accept services. They sense they often have to do more outreach with these populations and encourage their participation in activities. To some extent, the San Francisco-based health educator perceives utilization and interaction is influenced by language ability. At one property with a Chinese-speaking service coordinator, Chinese residents come to her frequently because the service coordinator can help interpret. They also actively seek out the service coordinator. In the property with the Russian-speaking service Evaluation of the WellElder Program 50 coordinator, the health educator finds Russian residents are not as active with her, but they frequently engage with the service coordinator. She believes Chinese residents in this building, however, do not see the service coordinator as often. Although mental health issues are difficult to address in general, some program staff believe it is more challenging with Chinese residents. Mental illness is a taboo subject in the Chinese culture and many residents are reluctant to talk about such problems outside of the family. Staff in one property avoid using the term “mental health” and instead try to frame the discussion in terms of a possible complication of medications or an aging/memory-related issue. WellElder staff also find it challenging to address end of life issues in both the Chinese and Russian communities. Death is commonly an unmentionable subject in these two ethnic groups. Evaluation of the WellElder Program 51 Chapter 5: Conclusions and Recommendations The findings from this multifaceted study provide important insights into how the WellElder program was developed and implemented in four northern California housing properties, how participants and non-participants differed in terms of their demographic characteristics and broader service utilization and the perceived benefits of the program. This study also identified key elements of the program that are likely to enhance the potential for replication in other housing properties as well as areas that require modifications or improvements to increase the likelihood that the program will be consistently successful in achieving its goals. The remainder of this chapter provides a more detailed discussion of the study’s implications and recommendations for improving the program. WellElder Implementation The research team found that the WellElder program was “home grown” in response to both a real and perceived need for a team approach that augmented the capacity of the service coordinator in each property with a nurse health educator. The role of the nurse evolved over time and continues to evolve with a focus both on individual health monitoring and group health education. While there was general agreement across upper management at the corporate and individual property levels about the potential contribution of a nurse to the health and well-being of residents, the case studies within the four properties indicate that the WellElder program was not implemented consistently across the organizations. This variation occurred, in part, because of differences in the philosophy of one of the housing property managers concerning the role of the WellElder program. Other reasons for this variation in program implementation included the lack of a formal definition and related policies and protocols that would facilitate more consistent implementation and differences in the degree of financial investment in the program by individual properties. Impact of the WellElder Program Findings from the resident survey and focus groups indicate that residents received a wide range of supports and assistance from the WellElder team with managing their health-related issues and concerns. In both the survey and focus groups, residents expressed their belief that the service coordinator and health educator helped them identify resources and services and access them more quickly than they would be able to on their own. They also found comfort in knowing that someone was available to assist them and believed the program will help them remain longer in their apartment. The residents, the WellElder teams and the majority of the housing property managers saw great value in the onsite presence of the health educator and service coordinator. The major benefits included: • Helps build trust – Having the service coordinator and health educator onsite allows residents easy access in a low stress environment. Residents see the staff daily and accept Evaluation of the WellElder Program 52 • • • • • • • them as part of the fabric of their community. They also see and hear about other residents benefiting from their assistance. Helps build insight about residents – Easy access allows for frequent interaction, which helps the service coordinator and health educator to know residents’ normal state and recognize when changes are occurring. It also allows them to learn a resident’s values and interests. Encourages follow through – Trust plays a significant role in resident willingness to follow through on the service coordinator’s and health educator’s advice and to accept services that they might otherwise be reluctant to utilize. The WellElder team’s knowledge of residents can also help understand mechanisms to motivate them to utilize services they believe will benefit them. Resolves complex problems – Some problems and situations may require multiple steps to resolve. An onsite presence makes it easier for the service coordinator and health educator to continue to support a resident in following-through on problems that may be difficult to understand or require perseverance. This is particularly helpful for residents who may have language barriers or cultural norms against questioning authority. Substitutes for limited support network – The assistance the service coordinator and health educator can provide is particularly important for residents who have no family or have dysfunctional family situations where family members do not provide support. Enhances existing support network – When family members are involved with supporting residents, the service coordinator and health educator can give them additional insight regarding a resident’s situation and can offer advice on solutions to problems. Decreases resident anxiety – Some residents experience greater anxiety about their health situations and need reassurance that everything is ok. With the health educator onsite they have easy access to ask questions and receive advice. This may help reduce their anxiety and perhaps reduce unnecessary visits to the doctor or emergency room. Incorporates elements of effective care coordination – For some of the residents with chronic illnesses and co-morbidities, the WellElder service coordinator and nurse health educator team provides a framework for better care coordination with the hospital, physicians and other providers. This program has the potential to be a cost-effective approach to integrating the complex and fragmented service system for medically complex, disabled individuals through the presence of the nurse and service coordinator in the building and in residents’ apartments. The WellElder program provides an onsite mechanism that can help monitor resident’s health situation, provide them education and advice on managing their health conditions and help them access and communicate with their health care providers. This study found that the WellElder participants were older and sicker than those not using the program. This finding suggests that the service coordinator and nurse health educator team was successful in targeting those most in need of assistance in accessing multiple services and public benefits and in engaging in practices that will help them remain in their apartments for as long as possible. Although the study limitations do not allow the research team to address causality, the findings suggest the service coordinator and health educator team does positively contribute to residents’ ability to manage their health care, maintain their quality of life and safely age in place. Despite their complex health situations, a smaller number of residents experience 911 Evaluation of the WellElder Program 53 calls, trips to the emergency room or hospital stays than might be expected. Among those residents with a hospital stay during the study period, few appeared to have repeat hospitalizations. While it seems that a number of residents might be eligible for nursing home level of care, a small number of residents moved out of the property over the course of the study period. A large portion of residents were able to stay in their apartment until their death and less than half of those who moved out transferred to a higher level of care. These trends might indicate that the WellElder program is helping residents to successfully manage their health and functional needs. Potential for Replication The WellElder program has several elements that make it an attractive model for replication in other affordable senior housing communities to help meet residents’ health-related needs: • Considers the spectrum of need – The needs of aging, low-income seniors can be complex and often involve interrelated health and social issues. Linking the skills sets of a service coordinator with a health educator/nurse multiplies the chances of addressing residents’ array of interdependent needs. • Builds on existing infrastructure – The program builds on the service coordinator position many senior housing properties already have. • Relatively low-cost – The program does not require extensive start up costs and the hours of the nurse can be scaled to the housing property’s available resources. The health educator role can be contracted, eliminating the need to bring on an additional employee. • Fits within various regulatory environments – Utilizing the nurse in an education, coordination and supportive role, and not as a direct care provider, prevents independent housing properties from bumping up against laws and regulations surrounding the provision of care. • Allows housing properties to stay within their comfort zone – The addition of the health educator to the existing service coordinator model expands the knowledge and skills available to address resident needs, but does not radically alter the type of support many housing properties are familiar and comfortable with providing. Recommendations for Improvement Despite the WellElder program’s strengths, the study did reveal some challenges that may inhibit the program from achieving its greater potential. Like many provider efforts, the WellElder program was initiated and has evolved through informal grassroots efforts. After several years of experience, the program could now benefit from some more purposeful and systematic direction. Specific areas warranting special attention are described below. Expanding the Health Educator’s Hours The limited amount of time the health educator is available at each property may hinder the position’s potential impact. In one property, the health educator is only present four hours a week. Because several residents regularly utilize the time to have their blood pressure monitored, the health educator has little time to assist residents in other ways. While monitoring blood pressure is a valuable service, this activity leaves little opportunity for the nurse to see a wider number of residents, build relationships that encourage WellElder participation, monitor Evaluation of the WellElder Program 54 residents with more complex problems, assist with residents transitioning from a hospital or nursing home stay or conduct group health and wellness activities and education sessions. Even in the other San Francisco properties where the nurse is available for double the time, the health educator is still primarily limited to reacting to residents through one-on-one office visits. The health educator believes she could have a larger impact if she had more time to conduct group programming, which a broader spectrum of residents may be likely to attend. Group sessions allow for education and dialogue with a larger number of residents and expose residents to a broader range of topics and activities. With the bimonthly health and wellness education sessions in the San Francisco properties, the health educator believes residents are more engaged and interactive than they were before the programs were initiated and that the group program participants have gained familiarity with the WellElder staff. More hours would also allow the health educators to expand their reach through one-on-one contacts. Some residents who are currently not able to visit the health educators during the hours they are on site might be more likely to check with the nurse before going to their doctor or the emergency department. Greater health educator availability could, therefore, help to prevent unnecessary hospital or physician visits. Expanded time at the property might also allow the health educator to do more monitoring of and following up with residents with complex health situations. Similarly, it might also allow the health educator to engage with more residents during their discharge from a hospital or nursing home stay and transition back to their apartments. WellElder staff across the four properties concurs that the health educator role would be enhanced by more hours. The limited hours are primarily a function of lack of funding. Should additional financial resources be found to expand the health educator’s availability, staff shared some thoughts on how the expansion should be implemented. For example, the San Jose property currently has a health educator position on site for 15 hours/week, but the time is split between two individuals. The health educators in this property felt that in an ideal world the position would be increased to full-time, with one individual filling the position. They expressed the concern that when working multiple part-time jobs, there is the danger of the health educator being pulled away from the WellElder site when unexpected needs arise in their other position. The Institute on Aging, or any other entity from which health educators are contracted, should commit to protecting the health educators’ time at the WellElder sites. The health educators indicated that if a full-time position was not possible, it would be beneficial to at least have the health educator present in each property for some time every day. Clarification of the Health Educator Role The health educator role has informally evolved since the WellElder program was first implemented. This has occurred as implementation experience has been gained over time and the nursing orientation of the health educator has changed with new hires. Given the insight gained thus far and the evolution of the resident population and their needs, the WellElder program should review the role of the health educator and more formally define the specific functions of the position, including how the health educator operates as part of the WellElder team. Role clarification and greater specificity would help create a more consistent understanding of the program among all the participating properties and service partners as well as residents and would contribute to greater consistency in program implementation. Evaluation of the WellElder Program 55 NCPHS’ philosophy of aging in place relies heavily on residents using home and communitybased services (e.g., the IHSS program) to help meet their needs. Currently, one of the articulated roles of the health educator is to inform residents of and encourage them to use communitybased resources. Given the information and referral role of the service coordinator in the WellElder team, identifying this activity as a major role for the health educator may be duplicative and somewhat distracting. By placing an emphasis on this task, the WellElder program may not be defining the health educator’s functions in a manner that fully capitalizes on the skills and knowledge a nurse brings to the WellElder team. The value added includes the nurse’s ability to assess and educate residents on their health situations and mechanisms for successfully managing their health care. Viewing the health educators’ strengths from this angle might reprioritize their functions. Drawing a clearer distinction between the nurse and service coordinator roles and emphasizing the health monitoring and health and wellness education functions of the nurse would strengthen the program. The WellElder program may also want to more clearly define the health educators’ role with respect to more traditional nursing functions, such as giving flu shots, dressing wounds, reviewing medications, etc. Many residents reported being confused by the health educator’s role. Because the health educators are nurses, residents expressed frustration when the nurse refused to perform more traditional nursing functions such as giving shots or dressing a wound. “I get a lot of disappointed people,” says one health educator, “they say ‘you’re a nurse, why can’t you do it’.” While the health educator’s scope of practice was generally clear to the WellElder and property management staff, the reasons behind the limitations on the traditional clinical role were not always understood. Variation in answers included HUD regulations, state licensing laws for independent housing settings or nurse practices, and NCPHS or IOA policy. To provide clarity and ensure there is a rationale for not performing a function that some perceive might be beneficial, the WellElder program should formally articulate the functions of the nurse health educator and what the nurse cannot do within the scope of the WellElder program. Assuming a More Proactive Role WellElder staff generally functions in a reactive rather than proactive manner. To a large extent, this is due to the limited time the health educator is available at the property. When on site, the health educators generally spend the majority of their time in the office checking blood pressures and responding to residents who approach them with their questions and needs. WellElder staff note that their interaction with residents is often precipitated by an event or crisis. The WellElder team does take preventive actions with residents, but on an ad hoc basis. The service coordinator and health educator respond to situations as they identify them with individual residents. For example, the health educator might notice a resident takes a medication that causes dizziness or the service coordinator might see towels taped down as rugs on an apartment floor during a visit. In each case, the team would work with the resident to try to prevent a future fall. However, there is no systematic plan to address falls across the larger resident population. If it is believed that this is a prevalent area of risk in the community, the WellElder program might consider developing a more formal response that could include Evaluation of the WellElder Program 56 implementing evidenced-based education and exercise programs, medication reviews and periodic environmental checks in the common spaces and individual apartments. Obviously responding to individual needs in times of crisis is key to helping residents resolve their situations, but considering opportunities to address common needs more systemically might allow for a broader reach across residents. In particular, more systematic prevention strategies might increase the opportunity for the health educator to come into contact with more residents and begin building relationships that will encourage residents to seek out the health educators and follow their advice. Given the fact that the health educators noted during their interviews that they do not have as strong of relationships with residents as the service coordinators and the observation that resident focus group participants seemed less aware of how the health educators could potentially assist them, a more proactive approach that addresses resident needs propertywide could increase the benefits of the WellElder program. More Formal Approach to Helping with Transitions One potential impact area for the WellElder program is around emergency department or hospital discharges. Given the high levels of multiple co-morbidities and functional limitations revealed in the resident self-assessment, residents may be at risk for overuse of the emergency department or avoidable rehospitalizations. The program does not currently have a formal policy for following residents in and out of the hospital. The WellElder nurse and service coordinators attempt to engage with residents and their discharge planners when they are aware that they have gone to the hospital. They acknowledge their potential role in helping to facilitate a smoother transition from hospital to home, but also have identified several challenges in this area. Because the building is an independent living property, staff is not always aware when a resident goes to or returns from the hospital, and, when they are aware it, can sometimes be difficult to locate the resident due to the multiple hospitals in the area. In addition, hospital staff may not be willing to discuss anything about the resident with WellElder staff due to privacy laws. Acknowledging these challenges, the WellElder program should consider developing a policy for monitoring residents returning from an emergency room, hospital or rehabilitation facility stay. This policy might consider mechanisms to help expand WellElder staff’s awareness of when residents leave and return to the property, opportunities to increase awareness or communication with hospital staff, and protocols for following-up with residents after their return. In the event that health educators are not in the building for the first several days following a resident’s return home, checking in with that individual soon after the transition has occurred can send a message that the property acknowledges the difficulties surrounding such transitions and that the WellElder team is available to help support the recovery process. Clarification of Program Ownership and Authority The research team observed a lack of clarity around who “owns” the WellElder program. Although it is clear that various stakeholders are involved in the process, the program lacks clear direction and authority. Although the program falls under the NCPHS Community Services division, the division director also defers to the property managers and the IOA for program policy and operation decisions. While incorporating input from interested parties is certainly important for effective operations, the program would benefit from having a well-defined structure for decision making. Evaluation of the WellElder Program 57 Currently, property managers are given leeway to define how the program operates within their property. While some flexibility may be needed to adapt to the specific circumstances of a property (availability of health educator time, resident characteristics, etc.), these variations should be defined by WellElder program leadership, not the property manager. The risk of allowing individual property managers to change program activities is that the program may be altered in a way that minimizes effectiveness. In one property operating the WellElder program, the property manager has decided health educators are not going to engage in some activities that are done in other properties (e.g., a prohibition against health educators conducting hospital visits; non-completion of the annual emergency form and medication listing for residents because of a similar process already in place in the property). If the WellElder program is to be considered a team package across all properties, then their needs to be more consistency across the sites to ensure optimal implementation and program success. There also appears to be some ambiguity between the role of NCPHS and the IOA in defining the health educator’s activities. When the health educators were asked who they consider their “boss,” they said it was not always clear. One health educator mentioned that when they ask one organization a question related to their role or activities, they often are told to ask the other organization. The IOA is clearly responsible for clinically supervising the health educator and monitoring what they can and cannot do within the scope of their nursing license. Outside of those regulatory boundaries, however, the lines of authority appear to be a little more ambiguous. Authority over the WellElder program is complicated by the different levels that fund and supervise the WellElder staff. Service coordinators are funded by each property, but are supervised under the community services division. Health educators are contracted by each property from the IOA, but are clinically supervised by the IOA. These various stakeholders certainly should have input into the policy and operations of the program. Property managers are concerned about the health and wellbeing of their residents, and many tenancy-related issues for which they are responsible are often interrelated with residents’ health and social needs. The IOA is responsible for ensuring their nurses are providing quality services that are within the scope of their professional boundaries. However, the program would benefit from having a clear line of authority for consistency and oversight of program operations. While NPCHS will need to consider this appropriate place within their organizational structure, the community services division seems a logical location. This division already supervises the service coordinators. It is also knowledgeable about the needs of aging seniors and has established relationships with the community providers that may already be assisting residents or could become potential partners of the WellElder program. Co-location of the Health Educator and Service Coordinator in the San Jose Property Unlike the other properties, the health educator and service coordinator in the San Jose property are located on different floors. This physical separation potentially impedes greater collaboration between the two roles. The distance hinders the ability to have impromptu joint meetings with a resident when the need or opportunity arises. WellElder staff in the San Francisco properties note that co-location allows them to quickly invite the other in when warranted and work jointly with a resident. WellElder staff in San Jose reports that when one of them recommends that a resident visit the other member of the team for further assistance, residents are sometimes unwilling to Evaluation of the WellElder Program 58 walk to the other floor. One service coordinator noted that even she would sometimes just handle something herself to save the phone call or trip to the health educator’s office. The San Jose WellElder staff also note that the co-located San Francisco staff can start their day jointly discussing emergencies or other resident situations or have impromptu conversations throughout the day about resident needs. The San Jose staff believes they do not interact as much as they might if they were located in closer proximity. The health educators in the San Jose property noted that until recently it was not clear to them that the WellElder program consisted of themselves and the service coordinators rather than just the health educators. The physical separation between the two may have exacerbated the lack of clarity about the WellElder program and the need for collaboration and integration of the two positions’ skill sets. It also seems that the health educators in this property never received a formal orientation on the WellElder program and their role, particularly with respect to their collaboration with the service coordinator. Eliminating the Membership Concept Most residents participating in the focus groups were not familiar with the specific term “WellElder Program” and were unaware they were program members. They were, however, generally familiar with the service coordinator and health educator. The rationale for the program being a membership program is not clear. There are no eligibility requirements to join the program. Initially, it was perceived that residents might be more engaged in program activities if they were called members. The enrollment forms (which vary slightly between the San Francisco and San Jose properties) are primarily consent forms allowing WellElder staff to assist the resident in obtaining needed assistance and releasing NCPHS from liability by any entities to which residents are referred. The enrollment forms are signed in the presence of the health educator, and residents sign additional/separate forms to receive assistance from the service coordinator. There is likely little value in making the program a “membership” plan. The program might be better conceived as a service that is available to all residents and is an expression of the property’s commitment to help residents meet their needs and maintain their health and quality of life. Although it is not known whether this membership concept has inhibited participation, one service coordinator noted that some residents do not like signing up for programs because they are not sure what they are getting themselves into and do not want the hassle. Concluding Remarks In sum, the WellElder program is a relatively low-cost team approach to meeting the needs of a range of residents in low-income housing properties. This study has provided important insights into the program implementation and potential for resident impact. The participatory research methodology employed during this study has helped the research team to formulate recommendations that they believe will improve the program and increase the potential for successful aging in place. The research team also believes that with the appropriate modifications, the program will be ripe for replication. Evaluation of the WellElder Program 59 References Centers for Disease Control and Prevention. (2006). 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Developing appropriate rental housing for low-income older persons: A survey of Section 202 and LIHTC property managers. Washington, DC: AARP Public Policy Institute. Evaluation of the WellElder Program 60 National Center for Heath Statistics. (2007). Early release of selected estimates based on data from the January-March 2007 National Health Interview Survey, September 26 release. Retrieved from: http://www.cdc.gov/nchs. National Library of Medicine. (2010). Health Literacy. Retrieved from: http://nnlm.gov/outreach/consumer/hlthlit.html. Office of Disease Prevention and Promotion. Quick guide to health literacy. Washington, DC: U.S. Department of Health and Human Services. Retrieved from: http://www.health.gov/communication/literacy/quickguide/Quickguide.pdf Redfoot, D. and Kochera, A. (2004). Targeting services to those most at risk: Characteristics of residents in federally subsidized housing. Journal of Housing for the Elderly, 18, 137-163. Redford, L. and Cook, D. (Fall 2001). 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Evaluation of the WellElder Program 61 Appendix A: Group Education Sessions Date Topic Provided By Attendance Property 1 October 2009 How Gender Roles Have Changed Since 1900s Sexuality Educator 11 December 2009 Community Collage SC & HE* 15 February 2010 New Year New Foods SC & HE 24 April 2010 Spirituality and Sexuality Sexuality Educator 6 April 2010 Gratitude and the Great Things about Getting Older SC & HE 17 May 2010 “Gotta Dance” movie presentation SC & HE 9 May 2010 Nintendo Wii demonstration SC & HE 12 September 2009 Importance of Touch SC & HE 10 November 2009 Community Collage SC & HE 10 January 2010 New Year New Foods SC & HE 16 March 2010 Gratitude and the Great Things about Getting Older SC & HE 18 May 2010 “Gotta Dance” movie presentation SC & HE 11 May 2010 Nintendo Wii demonstration SC & HE 9 August 2009 Dental Health Lifeways/OnLok 41 September 2009 Osteoporosis Lifeways/OnLok 49 October 2009 Maintaining Your Brain Lifeways/OnLok 40 October 2009 Flu/H1N1 Class HE 33 November 2009 Arthritis Lifeways/OnLok 25 February 2010 Common Questions About Diet and Cancer: Part One HE 41 September 2009 Importance of Touch SC & HE 16 December 2009 Community Collage SC & HE 15 January 2010 New Year New Foods SC & HE 18 March 2010 Gratitude and the Great Things about Getting Older SC & HE 16 SC & HE 20 Property 2 Property 3 Property 4 May 2010 Nintendo Wii demonstration *SC=Service Coordinator; HE=Health Educator Evaluation of the WellElder Program 62 Appendix B: Resident Self-Administered Survey Results, by Membership ABOUT YOU 1. What is your age? Member n=294 Nonmember n=104 Mean 78.7 74.5 Range 56-95 38-93 2. .0005 What is your gender? Member N=297 Nonmember N=105 Male 36.0% (107) 40.0% (42) Female 64.0% (190) 60.0% (63) 3. 4. P-value .4824 Are you of Hispanic or Latino origin? Member N=269 Yes P-value 8.2% (22) Nonmember N=94 11.7% (11) P-value .3033 What is your race? (check all that apply) Member N=294 White Nonmember N=105 P-value 36.1% (106) 29.1% (31) .2342 Black or African American 2.0% (6) 3.8% (4) .2955 Asian 57.7% (169) 58.1% (61) 1.0 Native Hawaiian or other Pacific Islander 0 1.0% (1) .2632 American Indian or Alaska Native .3% (1) 2.9% (3) .0576 Other 3.1% (9) 1.0% (1) .4658 5. Were you born in the United States? Member N=294 Yes 6. 13.5% (40) Nonmember N=105 16.3% (17) .5143 Is English your first language? Member N=295 Yes P-value 14.2% (42) Nonmember N=104 19.2% (20) Evaluation of the WellElder Program P-value .2700 63 7. What is your current marital status? Member N=296 Nonmember N=103 Married 39.9%(118) 47.6% (49) Separated 4.7% (14) 4.9% (5) Divorced 6.8% (20) 7.8% (8) Widowed 37.5% (111) 28.2% (29) Single 11.2% (33) 11.7% (12) 8. Yes Nonmember N=104 62.4% (184) 53.8% (56) P-value .1317 Do you have any children? If YES, how many? Member N=256 Nonmember N=85 Yes 256 85 Mean 2.9 2.7 Range 1-10 1-7 10. .5126 Do you live alone? Member N=295 9. P-value P-value .5503 How long have you lived in this apartment building? Member N=287 Nonmember N=97 Mean 9.2 6.3 Range .5-35 .5-30 P-value <.0001 YOUR HEALTH 11. In general, would you say your health is: Member N=290 Excellent 1.7% (5) Nonmember N=104 1.9% (2) Very good 7.9% (23) 8.7% (9) Good 16.9% (49) 23.1% (24) Fair 50.7% (147) 48.1% (50) Poor 22.8% (66) 18.3% (19) Evaluation of the WellElder Program P-value .6304 64 12. Because of a health or memory problem, do you have difficulty with any of the following activities? Member Nonmember P-value Bathing/Showering 39.6% (111) 28.7% (28) .0671 Dressing (pick out clothes, dress and undress yourself) 27.0% (75) 22.7% (22) .5008 Transferring from bed/chair/car 30.7% (85) 21.6% (21) .1157 Using the toilet 23.4% (65) 18.6% (18) .3943 Incontinence (wetting or soiling yourself) 25.3% (71) 26.0% (26) .8942 Eating 21.6% (60) 15.3% (15) .2391 Using the telephone 21.3% (60) 19.8% (19) .8846 Shopping 51.4% (144) 38.0% (38) .0265 Preparing meals 49.8% (138) 40.0% (40) .1024 Housekeeping 61.9% (172) 43.0% (43) .0014 Doing laundry 49.1% (135) 37.0% (37) .0462 Traveling to places out of walking distance 54.3% (150) 40.6% (41) .0201 Taking medications 27.0% (76) 22.5% (23) .4291 Managing money or finances 21.0% (58) 20.8% (21) 1.000 Multiple ADLs Member Nonmember P-value* 0 41.8% (116) 59.0% (59) 1+ 58.2% (162) 41.0% (41) .0019 2+ 39.1% (109) 28.0% (28) .0420 *Calculated using a logistic regression with those having less than the number of ADLs in the specified row as the reference category Multiple IADLs Member Nonmember P-value* 0 24.3% (70) 35.9% (37) 1+ 75.7% (218) 64.1% (66) .0241 2+ 69.1% (199) 46.6% (48) <.0001 *Calculated using a logistic regression with those having less than the number of IADLs in the specified row as the reference category Evaluation of the WellElder Program 65 13. Have you ever been told by a doctor that you have any of the following health conditions? Member Nonmember P-value High blood pressure or hypertension 68.0% (198) 64.7% (66) .5422 Diabetes or high blood sugar 29.1% (84) 34.0% (35) .0636 Cancer or a malignant tumor 9.8% (28) 8.9% (9) 1.000 Chronic lung disease 8.1% (23) 6.1% (6) .6602 Heart problems 43.7% (124) 38.2% (39) .3526 Emotional, nervous, or psychiatric problems 26.5% (75) 31.4% (32) .3680 Memory-related disease 37.7% (107) 29.0% (29) .1444 Arthritis or rheumatism 71.3% (206) 54.3% (57) .0024 Parkinson’s disease 7.1% (20) 3.9% (4) .3423 Multiple Health Conditions Member Nonmember P-value 0 7.8% (23) 10.4% (11) .1054 1+ 92.2% (273) 89.6% (95) .4093 2+ 80.0% (237) 74.5% (79) .2338 3+ 57.0% (169) 48.1% (51) .1117 4+ 36.1% (107) 27.3% (29) .1020 *Calculated using a logistic regression with those having less than the number of conditions in the specified row as the reference category 14. Have you ever had any of the following health events? Member Nonmember P-value Stroke 12.9% (35) 5.9% (6) .0628 Hip fracture 13.4% (36) 6.9% (7) .1013 Cataract surgery 43.7% (121) 42.3% (44) .8177 15. Are you often troubled with pain? Member N=292 Yes 78.1% (228) Nonmember N=103 64.1% (66) Evaluation of the WellElder Program P-value .0083 66 16. If YES, how bad is the pain most of the time? Member N=231 Nonmember N=68 Mild 16.8% (39) 20.6% (14) Moderate 59.7% (138) 57.4% (39) Severe 23.4% (54) 22.1% (15) 17. 18. 34.2% (97) Nonmember N=101 24.8% (25) Nonmember N=24 Mean 1.9 1.7 Range 1-10 1-9 20. Nonmember N=102 20.7% (58) 17.6% (18) Nonmember N=18 Mean 1.9 1.8 Range 1-7 1-37 22. .6790 P-value .5642 P-value .4874 During the past 12 months, have you had any outpatient surgeries? Member N=276 Yes P-value If YES, how many times have you been in the hospital overnight? Member N=57 21. .0832 During the past 12 months, have you been a patient in the hospital overnight? Member N=280 Yes P-value If YES, how many times have you gone to a hospital emergency room? Member N=97 19. .7790 During the past 12 months, have you gone to a hospital emergency room? Member N=284 Yes P-value Nonmember N=98 26.0% (72) 24.5% (24) P-value .7894 If YES, how many times have you had an outpatient surgery? Member N=69 Nonmember N=23 Mean 2.0 1.7 Range 1-12 1-12 Evaluation of the WellElder Program P-value .5478 67 23. During the past 12 months, have you fallen down? Member N=277 Yes 24. Nonmember N=100 36.1% (100) 32.0% (32) Nonmember N=32 Mean 2.2 2.2 Range 1-10 1-10 Nonmember N=95 Mean 6.2 5.2 Median 6 4 Range 0-19 0-21 Nonmember N=84 Mean 2.4 1.8 Range 0-18 0-7 P-value .0317 P-value .0126 During the past 30 days, for about how many days have you felt sad, blue, or depressed? Member N=182 Nonmember N=68 Mean 8.3 6.8 Range 0-30 0-30 28. .9454 How many over-the-counter medications do you take? Member N=221 27. P-value How many prescription medications do you take? Member N=273 26. .5411 If YES, how many times have you fallen down? Member N=100 25. P-value P-value .2893 How many days during the past 30 days was your physical health not good? Member n=194 Nonmember n=75 Mean 12.8 9.5 Range 0-30 0-30 P-value .0314 SUPPORT NETWORK 29. Do you have family, a significant other or friends in the area who can assist you when needed? Member N=278 Yes 88.5% (246) Nonmember N=102 83.3% (85) Evaluation of the WellElder Program P-value .2258 68 30. How often does the family member, significant other or friend you have the most contact with call you? Member N=274 Daily 50.4% (138) Nonmember N=103 45.6% (47) Weekly 37.6% (103) 42.3% (44) Monthly 5.5% (15) 2.9% (3) Less than monthly 3.6% (10) 5.8% (6) Family members never call 2.9% (8) 2.9% (3) 31. .6045 How often does the family member, significant other or friend you have the most contact with visit you? Member N=267 Nonmember N=94 Daily 20.2% (54) 24.5% (23) Weekly 49.4% (132) 45.7% (43) Monthly 12.6% (33) 12.8% (12) Less than monthly 10.9% (29) 14.9% (14) Family members never visit 7.1% (19) 2.1% (2) 32. P-value P-value .3031 How would you describe the level of assistance your family members, significant other or friends provide you? Member N=270 Nonmember N=101 Do not provide assistance 7.4% (20) 5.0% (5) Limited assistance 28.5% (77) 26.0% (26) Moderate assistance 23.7% (64) 21.0% (21) Considerable assistance 32.6% (88) 30.0% (30) I do not need assistance 7.8% (21) 19.0% (19) Evaluation of the WellElder Program P-value .0659 69 SERVICE USE 33. What types of services or activities do you typically use? Member % (number using service) Non-member % (number using service) Unadjusted P-value Adjusted Odds Ratio (95% CI)* 43.6% (122) 28.0 (28) .0062 1.53 (0.87-2.69) Homemaker services 71.7 (208) 46.2 (48) <.0001 2.87 (1.44-5.73) Meals programs 23.5 (64) 18.6 (19) .4016 1.38 (0.74-2.56) Assistance with medications 30.1 (84) 20.6 (21) .0707 1.00 (0.53-1.89) Personal care assistance 32.3 (91) 21.6 (22) .0434 0.92 (0.45-1.85) Adult Day Care 9.6 (25) 5.8 (6) .3009 1.17 (0.40-3.42) PACE 4.1 (10) 5.1 (5) .7715 0.64 (0.17-2.38) Exercise programs 27.5 (72) 16.0 (16) .0279 1.83 (0.95-3.54) Mental health counseling or therapy 18.8 (49) 15.2 (15) .4451 1.17 (0.55-2.48) Case management 6.7 (17) 1.1 (1) .0313 NA Bill paying assistance 13.8 (37) 17.0 (17) .5074 0.45 (0.22-0.94) Services Transportation services *Adjusted for property, age, presence of at least one ADL or IADL. 34. Do you get services through MediCal? Member N=267 Yes 80.5% (215) Nonmember N=93 77.4% (72) Evaluation of the WellElder Program P .5502 70