EVIDENCE BASED PRACTICE UNIT Part of

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Part of
EVIDENCE BASED PRACTICE UNIT
A note from the Director:
“The heart of our work is helping
services most effectively support
young people and their families
to get on with their lives and
to flourish.”
Miranda Wolpert
Evidence Based
Practice Unit
EBPU
Everything you need to know
Website: www.ucl.ac.uk/ebpu
Website: www.annafreud.org/ebpu
Hampstead site: 12 Maresfield Gardens, London NW3 5SD
Tel: 0207443 2218
Email: EBPU@annafreud.org
Twitter: @CAMHS_EBPU
King’s Cross site: 4-8 Rodney Street, London, N1 9JH
Tel: 0207443 2225
Email: CORC@annafreud.org
Twitter: @CORCcentral
CONTENTS
Who we are 5
What we do 6
Our partners 8
Our team 8
Our services 9
10
Services for pupils in schools
Youth Wellbeing Directory
11
11
12
12
What’s-Up
Services for young people thinking of
getting mental health support
My CAMHS Choices
Services for young people getting mental health support
13
13
Services for funders and providers of
specialist mental health support
Payment Systems
14
14
Services for policy makers
15
CAMHSWeb
Child Policy Research Unit (CPRU)
Services for therapists working with children and
young people with mental health issues
UPROMISE
15
16
16
Services for collaborations of funders,
professionals and service users
17
Closing the Gap: Shared decision making in CAMHS
17
Spreading Improvement
Services for researchers
HeadStart evaluation
17
18
18
CLAHRC 18
Data collection and analysis of Children and Young People’s
Improving Access to Psychological Therapies (CYP IAPT)
19
DIY Health evaluation 19
Perinatal Mental Health Value Score Card evaluation 20
SAFE 21
EPBU and the Child Outcomes Research Consortium
CORC in schools
22
23
Who we are
The Evidence Based Practice Unit (EBPU) is a not for profit
organisation committed to supporting mental wellbeing for children,
young people and their families.
EBPU is part of University College London (UCL), one of the world’s
leading research institutions and child mental health charity The
Anna Freud Centre. We also provide the central team for the Child
Outcomes Research Consortium (CORC).
5
Together, we are:
Collaborators
We work with partners across
education, government and
the health service to develop
cutting-edge services for child
mental health.
Enablers
We bridge the gap between
academic research and frontline
practice to provide real world
solutions for child mental
health services.
Innovators
We use the latest techniques and
technologies to effectively engage
with children and young people.
Networkers
We share the latest evidencebased research and information
to support children, young people
and healthcare professionals alike.
Researchers
We research and evaluate best
ways to support young people’s
mental wellbeing.
What we do
The World Health Organisation estimates that by 2020, mental
disorders will become one of the five most common causes of serious
ill health among children.
To help tackle this growing health issue we provide professionals with
the tools to inform their services, while empowering young people to
take an active role in their treatment.
6
EBPU Everything you need to know
For professionals we:
• Work collaboratively to help them explore different ways
of improving the help that they offer
• Provide online and published resources and training
• Evaluate a broad range of services to support suggestions
for improvement
• Publish regularly in international peer-reviewed academic
journals to advance knowledge in supporting youth
mental wellbeing.
For young people and their families we:
• Provide online and published resources to help them make
choices about different forms of support
• Undertake cutting-edge research into what supports
mental wellbeing for young people
• Publish material relevant to young people and their
families through our publishing arm, CAMHS Press.
For commissioners and policy makers we:
• Offer advice and suggestions for service standards and
policy objectives
• Provide frameworks for performance management and
outcome monitoring.
Our partners
Effective collaboration is key to our success. We work with partners
from both the public and private sectors to ensure the services we
provide are informed by research; tested in the field; and tailored to
young people’s needs.
We work with:
•
•
•
•
•
•
Academic researchers
Service providers
Experts with experience of using services
Policy makers
National funding bodies
Service development networks.
Our team
Our highly experienced team is made up of professionals from a
wide range of disciplines. We share a collective commitment to the
health and wellbeing of young people and their families.
We are:
•
•
•
•
•
•
•
8
Postdoctoral researchers
Mental health support providers
Design experts
Project managers
Quality improvement experts
Administrators
Statisticians.
EBPU Everything you need to know
Our services
More than 20 percent of young people seen in specialist services do
not return after one meeting, and up to 56 percent report not feeling
listened to by their service provider. In addition, schools regularly
tell us that they don’t know what services are on offer, or how they
can recognise quality. Ultimately, this means that children and
young people do not take an active enough role in decisions about
their care.
To address this we are not only looking at the services that are provided,
but at how they can be best communicated. Our current projects will
collectively reach over 130,000 children and young people, together
with more than 200 Child and Adolescent Mental Health Services
(CAMHS) nationally. This will lead to an improvement in young people’s
understanding of their conditions and choice of treatment providers, and
as a result, reduce dropout rates.
Over the next 13 pages you will find details of these projects and
services, together with the programme of research and evaluation that
underpins them.
9
Youth Wellbeing Directory
fast facts
The Youth Wellbeing Directory is a
free online directory of child and
adolescent mental health service
providers. Designed for anyone
using these services, the directory
also includes information on best
practice and a glossary of terms.
∙∙ Online, interactive directory
of mental health support and
information providers
∙∙ Designed for potential
funders and service users
∙∙ Encourages service providers
to work to a recognised set
of quality standards.
further information
www.youthwellbeingdirectory.co.uk
Services for pupils in schools
What’s-Up!
The What’s-Up! interactive
website supports 11-16 year olds
with behavioural or emotional
difficulties. Funded by the
Department of Education, the
portal is being rolled out to schools
and youth centres to support
young people’s mental health
and wellbeing.
fast facts
∙∙ Website with information and
interactive support materials for
11-16 year olds
∙∙ Working with 13 schools, 13
youth centres and 4 policy
research units
∙∙ Supports emotional wellbeing.
further information
whatsup@annafreud.org
11
Services for young people thinking
of getting mental health support
My CAMHS Choices
The My CAMHS Choices website
has been created in collaboration
with young people to demystify
the CAMHS process. Using video
footage of both young people and
professionals, together with FAQs,
contact details and links to other
resources, it is designed to allay
the anxiety and worry associated
with having involvement with
mental health services.
fast facts
∙∙ Online resource created
in collaboration with
young people
∙∙ Designed for anyone
considering using, or currently
working with CAMHS
∙∙ Includes video footage of young
people and professionals’
CAMHS experiences.
further information
www.mycamhschoices.org
12
EBPU Everything you need to know
Services for young people getting
mental health support
CAMHsWeb
CAMHsWeb is an interactive
website to support children and
young people accessing CAMHS
across England. Through a range
of online resources including tips
and games, it enables them to
become active participants in their
care, personalise their treatment
packages and make informed
decisions about forms of treatment
and choices of providers.
fast facts
∙∙ Interactive website for
young people
∙∙ Works with 70 CAMHS
across England
∙∙ Empowers young people
to take control of their
therapeutic journey.
further information
camhsweb@annafreud.org
13
Services for funders and providers of specialist mental
health support
Payment Systems
The Payment Systems project aims
to find the best way to facilitate
the allocation of funds to CAMHS
providers in accordance with the
needs of children and young people.
fast facts
∙∙ Project to develop a payment
system for CAMHS
∙∙ Designed for CAMHS
professionals and
service providers.
further information
www.pbrcamhs.org
pbrcamhs@annafreud.org
14
EBPU Everything you need to know
Services for policy makers
Child Policy Research Unit (CPRU)
The EBPU leads on the mental
health strand of this Department of
Health research project. We are
exploring service transformation in
CAMHS and investigating which
aspects of CAMHS are associated
with the most positive outcomes.
fast facts
∙∙ Multidisciplinary project
across paediatrics and
adolescent health, public
health, health economics,
clinical psychology,
sociology, social policy
and care
∙∙ Provide better understanding
of child development
and learning
∙∙ Improve transition
to parenthood and
the wellbeing of ill/
disabled children.
further information
www.ucl.ac.uk/cpru
15
Services for therapists working with children and young
people with mental health issues
UPROMISE
UPROMISE, or Patient Related Outcome Measures to Improve Service
Effectiveness, provides professionals with a series of structured learning
activities on how to make the most effective use of patient feedback.
fast facts
∙∙ Service for
CAMHS professionals
∙∙ Designed to improve quality
of services
∙∙ Enables practitioners
to make the most of
patient feedback.
further information
ebpu@annafreud.org
Services for collaborations of funders, professionals and
service users
Closing the Gap: Shared
decision making in CAMHS
Spreading Improvement
Closing the Gap operates
across four UK CAMHS sites
to examine best practice for
shared decision making. Themes
include: agreeing problems and
goals; understanding available
options; agreeing on an option;
reviewing progress; and making
necessary changes.
Spreading Improvement is informed
by the findings from previous work
on developing shared decisionmaking and personalisation of
care in CAMHS, and is based
around a structured training course
consisting of nine regional master
classes which are supported by
online materials.
fast facts
fast facts
∙∙ For commissioners, service
providers and users
∙∙ Training for commissioners,
service providers and users
∙∙ In collaboration with
Child Outcomes Research
Consortium (CORC) and
Young Minds
∙∙ In conjunction with Child
Outcomes Research
Consortium (CORC)
∙∙ Allows consideration
of different ways of
developing services.
∙∙ Ensures that patient-centred
care is at the heart of all
CAMHS activity.
further information
further information
ebpu@annafreud.org
ebpu@annafreud.org
Services for researchers
HeadStart evaluation
CLAHRC
HeadStart is a two-year
programme trialling a broad
range of initiatives for improving
resilience in 10-14 year olds.
Funded by the Big Lottery, it is
being piloted across a number of
different community-based schemes
in twelve locations.
Collaborations for Leadership
in Applied Health Research and
Care (CLAHRC) will evaluate the
What’s-Up! website (see page
11) during its trial phase at
selected schools in East London
and the North Thames area.
The evaluation will test a sample
group who have both physical
and mental health problems
and address the portal’s cultural
acceptability for different
ethnic groups.
fast facts
∙∙ Community-based scheme
aimed at 10-14 year olds
∙∙ In collaboration with
Big Lottery, University of
Manchester and Common
Room Consulting Ltd
∙∙ Aims to develop a consistent
measurement to assess a
broad range of initiatives.
further information
www.biglotteryfund.org.uk/global-content/programmes/england/
fulfilling-lives-headstart
18
EBPU Everything you need to know
fast facts
∙∙ Evaluation of the
What’s-Up! website
∙∙ Sample group includes
those with both physical and
mental health problems
∙∙ Addresses its cultural
acceptability for different
ethnic groups.
further information
whatsup@annafreud.org
Data collection and analysis
of Children and Young
People’s Improving Access to
Psychological Therapies
(CYP IAPT)
DIY Health evaluation
CYP IAPT is a training project for
evidence-based treatments, service
development and leadership using
routine outcome monitoring. The
project teaches clinicians how to
use immediate feedback to inform
their work and improve services.
The DIY Health project aims to
increase the skills, knowledge and
confidence of parents in managing
children’s health and to reduce
attendance in primary care and
urgent NHS care services among
children under five for self-limiting
conditions such as coughs, colds,
fever and feeding.
fast facts
fast facts
∙∙ Training for clinicians on
how to use immediate
feedback
∙∙ Project to improve parents’
confidence and skills in
managing children’s health
∙∙ In conjunction with Child
Outcomes Research
Consortium (CORC) and
MegaNexus
∙∙ Assesses the impact of the
DIY Health project
∙∙ Findings disseminated
to NHS to inform
service transformation.
∙∙ Determines if and how to
distribute the DIY Health
project more widely.
further information
further information
www.corc.uk.net/resources/cypiapt-data/
ebpu@annafreud.org
19
Perinatal Mental Health Value
Score Card evaluation
The scorecard is used as a quality
improvement tool to ensure that all
perinatal women and their families
receive the best quality care to
strengthen their mental health.
fast facts
∙∙ Evaluation of services for
perinatal women
∙∙ Determine what perinatal
women need from health
visitors to protect their
mental health
∙∙ Ensure perinatal women
receive the best quality care.
further information
ebpu@annafreud.org
SAFE
fast facts
∙∙ Ensuring children’s wards
become safer places
The Situation Awareness for
Everyone (SAFE) programme
looks at ways to improve safety
on paediatric wards. EBPU is
evaluating the impact of this to
inform improvements, reduce
patient harm and drive changes in
staff, patient and family attitudes.
∙∙ Working with professionals
across 12 healthcare sites
∙∙ Gaining knowledge of what
situational awareness looks
like on wards.
further information
www.rcpch.ac.uk/safe
twitter.com/SAFE_QI
EPBU and the Child Outcomes Research Consortium
The Child Outcomes Research Consortium (CORC) is an
integral part of the EBPU. The CORC central team is based
within the EBPU enabling collaborative working on a range
of projects.
CORC is a collaboration of mental health specialists from over 70
Child and Adolescent Mental Health Services (CAMHS). It aims to
foster the effective and routine use of outcome measures in work
with children and young people that experience mental health and
emotional wellbeing difficulties. It does this by:
• Collecting questionnaire responses from children
and families they work with to gain insight into their
experiences of care and support
• Processing the pseudonymised data and providing
support and feedback to members
• Using this information to help improve practice and in
turn, outcomes
• Providing national governing bodies with the data to
inform national policies.
22
EBPU Everything you need to know
CORC in schools
CORC is available to schools,
academies and local authorities,
with support offered regionally.
CORC schools members have
access to training materials and
systems of support from both
regional and central teams.
CORC’s first beacon site is being
developed at The Anna Freud
Centre’s family school, which caters
for pupils aged 5 to 14 who are at
risk of exclusion and struggling to
achieve their potential.
further information
corc@annafreud.org
www.corc.uk.net
“CORC has been invaluable
in enabling us to consider and
demonstrate our impact, show how
and with which children we are
making a difference, as well as guiding
us through areas of improvement.”
Wendy Traynor,
Young People’s Advisory Service,
Liverpool CAMHS
23
Free publications
from CAMHS Press
CAMHS Press is the publishing arm of the Evidence Based Practice Unit (EBPU)
and is placed at the Anna Freud Centre, North London. CAMHS Press brings
you the worlds of academic research and mental health practice, through a
series of booklets, leaflets and other publications to support children, young
people and mental health practitioners. CAMHS Press publications are free
of charge. CAMHS Press is proud to work with front line practitioners, service
users and policy makers to share knowledge and information and is committed
to serve its readership.
Guide to
Using Outcomes
Feedback Tools
and
with Children, Young People and Families
Formally known as COOP Document
PDF
PDF
edited by
Dr Duncan Law & Dr Miranda Wolpert
Child Outcomes
Research Consortium
ISBN 978-0-9572096-6-4
ISBN 978-0-9572096-7-1
guide to using outcomes and
using cyp iapt feedback and outcomes forms
feedback tools
to aid clinical practice
With Children, Young People And Families
(Former Coop Doc), 2014
Key Messages, (2015)
Edited by Duncan Law and Miranda Wolpert
this guide provides a tool-kit setting out the
forms recommended by CYP IAPT and CORC,
in a coherent and structured way, setting out
their uses clinically and as evaluation tools. It
provides helpful tips and advice on using the
forms in everyday clinical practice.
Created by Duncan Law, Melanie Jones and
Miranda Wolpert, this guide provides advice and
support for using feedback and outcome forms in
clinical practice. It outlines why, how and when to
use forms, with simple steps to get started.
PDF
PDF
ISBN 978-0-9572096-4-0
ISBN 978-0-9572096-0-2
goals and goal based outcomes (gbo’s)
current view tool
Some useful information, 2013
Completion Guide, 2013
The booklet was written by Dr Duncan Law, a
member of the CORC Committee and Board,
and offers information and advice on using
Goals and Goal Based Outcomes.
This booklet was developed by members of
CAMHS EBPU as part of the Payment by Results
in CAMHS Pilot Project. It gives an overview of
the Current View Tool and provides guidance
on completing the tool.
PDF
PDF
ISBN 978-0-9572096-2-6
ISBN 978-0-9553956-9-7
ebpu log book
the kidstime workshops
Learning from Experience, 2013
A Multi- Family Social Inter­vention for the
Effects of Parental Mental Illness, 2012
A booklet developed by CAMHS EBPU to
help front line practitioners learn from their
experience. Use the PDSA forms when you want
to try something new to improve your practice.
Every time you finish a PDSA cycle you start
a new one trying to improve what you’ve
done in the previous cycle and it becomes a
learning process.
This booklet provides informa­tion on what is
needed to set up and run Kidstime Workshops.
‘Kidstime’ is an approach, developed over
the past 12 years, for helping the children of
parents with mental illness.
Resources aimed at Children and Young People
PDF
PDF
ISBN 978-0-9553956-8-0
i gotta feeling
ISBN 978-0-9553956-7-3
how to get up and go when
Top tips for feeling good
(aimed at primary school children), 2011
This booklet has been designed by Help4Pupils
to help children when they are feeling sad,
worried or troubled. It is full of fun simple tips
on what to do to improve their mood and
maintain emotional wellbeing.
you’re feeling low
Top tips for feeling good
(aimed at secondary school pupils), 2011
This booklet has been designed by Help4Pupils
to help children when they are feeling sad,
worried or troubled. It is full of fun simple tips
on what to do to improve their mood and
maintain emotional wellbeing.
NOT JUST A NUMBER!
Forms may use numbers for each
question and your counsellor can add
these to the information you have shared
discussions to get the best picture of
TANDING inyour specific needs.
UNDERSD
YOUR
YOU AN
TIES:
DIFFICUL
D
AN
S
HOW FORM AIRES CAN HELP
NN
QUESTIO
IN SITUATIONS WHEN:
there isn’t time to say everything
you might want to
you feel embarrassed or scared to
say things out loud to a therapist
or counsellor
the issue might not seem so
important - but actually is
you feel too ‘under the spotlight’ in
counselling, particularly early on
IF YOU NEED EXTRA HELP
WITH QUESTIONNAIRES
AND FORMS:
your therapist or counsellor will be
able to help by reading questions
aloud and explaining them, but the
bottom line is that the questionnaire or
form should be helpful and you should
feel comfortable completing it.
OR IF YOU WANT TO:
say things in a different way
PDF
remember things that you want to say
write things that might be more
difficult to say aloud.
Having a shared understanding with your
therapist is important, which is why forms
might be used at different times including:
It is OK not to fill in a questionnaire or form – you should never feel pressured
to complete something that you don’t
understand or want to do – this is
about you after all!
the first time you go for counselling or therapy
after each session
before you leave counselling
or therapy.
ISBN 978-0-9553956-2-8
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CYP-IAPT
www.cypiapt.org
www.corc.uk.net
1/3
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6.0
EDE-Q
choosing what’s best for you
What scientists have found helps children
and young people who are sad, worried or
troubled, 2007
A booklet that explains the latest research in
this area to children and families to help them
make treatment choices. More than 25,000
copies have so far been distributed across the
UK and beyond. The booklet has been translated
into Swedish.
understanding, and helping you and your
problems – how forms and questionnaires
can help
2014
This short leaflet explains a young person’s
journey through CAMHS.
websites that might be of interest
PDF
.org
www.mycamhschoices
My CAMHS Choices is a website
featuring real life experiences
of mental health services for
young people and families,
by young people and professionals.
youth wellbeing directory
my camhs choices
The overarching aims of this directory and
quality assessment tool are to guide and
facilitate funders’ decisionmaking and
to provide templates to enable providers
to self-report good service provision and
innovation across a range of contexts (statutory
services, non-statutory voluntary sector organisations and private companies).
This website features video interviews with real
clinicians and young people. You might like to
look at this with a friend, trusted adult, or your
CAMHS worker.
corc website
choosing website
www.youthwellbeingdirectory.co.uk
http://mycamhschoices.org
This website has been created by young people
with experience of Child and Adolescent Mental
Health Services (CAMHS).
www.corc.net
www.choosing.org.uk
This grassroots learning collaboration offer
free training to the members, consultancy to
interested parties and advise government.
This site aims to help you make the best choices
for you. Knowing “the facts” makes it easier to
make choices, but working out what “the facts”
are is not always easy.
All CAMHS Press produced material is free of charge.
Requests for a copy of our booklet can be sent to our
email: EBPU@annafreud.org
PDF
A copy of our booklet can be downloaded as a PDF file from EBPU website:
www.ucl.ac.uk/ebpu or CORC website: www.corc.uk.net
CAMHS Press, 21 Maresfield Gardens, London NW3 5SD
CAMHS Press is the publishing arm of the Evidence Based Practice Unit and is
placed at the Anna Freud Centre, North London. CAMHS Press brings to you
the worlds of academic research and mental health practice, through series
of booklets, leaflets and other forms of publications related to mental health in
support of children, young people and mental health practitioners. CAMHS
Press publications are free of charge. CAMHS Press is proud to work with front
line practitioners, service users and policy makers to share knowledge and
information and is committed to serving its readership.
Contact CAMHS Press by email: EBPU@annafreud.org
EBPU website: www.ucl.ac.uk/EBPU Child Outcomes
Research Consortium
Child Outcomes Research Consortium is a learning collaboration of
mental health professionals dedicated to improving the quality of Child and
Adolescent Mental Health Services CAMHS nationwide. Every year over a
quarter of a million children, young people and their carers attend CAMHS in
the UK. CORC wants to understand what helps them best. Over 70 member
services across the UK and Scandanavia are committed to ensuring that young
people and their families receive the best help possible. CORC trains CAMHS
professionals in how to use outcome data by offering free training to members,
consultancy to interested parties and advice to government.
Contact CORC by email: CORC@annafreud.org
CORC website: www.corc.uk.net
Evidence Based Practice Unit, at the Anna Freud Centre and UCL, bridges the
worlds of academic research and mental health practice, whether in clinics,
schools or elsewhere. We develop and share the latest evidence with mental
health professionals who want to reflect on and improve the support they
provide to children, young people and their families. Our unit brings together
researchers, clinicians, statisticians, graphic designers and trainers. We work
with front line practitioners, service users, service managers, commissioners,
policy makers and others to improve service provision by shining a light on
current practice. The EBPU draws on and contributes to the latest research, and
develops practical tools, training and information.
Contact EBPU by email: EBPU@annafreud.org
EBPU website: www.ucl.ac.uk/EBPU
Anna Freud Centre  12 Maresfield Gardens London NW3 5SU  Tel: 020 7443 2218
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