Children’s Mental Health in A Public Mental Health Triangle Model: Hospital Level Care, Placements out of School, Home, Community, Intensive Family to Family or Peer Support. RENEW/Wrap Home, School or Community ) Based Group or Individual Supports Family and Youth Support and Education Mental Health Promotion and Prevention, Anti-Stigma and Awareness , Primary Care . Tier 3/Tertiar y Tier 2 2-5% of population: complex challenges, require highly individualized support 15% of population: Less complex individual and/or group supports, therapies 80% of population: Universal: “universal” health promotion and prevention interventions, broad based assessment activities Some of What We Know: History of poor outcomes for children/youth with emotional/behavioral disturbance and their families Schools are spending significant resources to address the needs of the students who need Tier 3 supports, often with limited positive outcomes. This cost and issue decreases with investment in PBIS. Special education identifications are up in many districts Suspension rates are too high Restrictive placements are too high Intervention… Needs to happen sooner for many youth/families Gets tougher with each system failure When MTSS are in place…it saves $ and students. (Kate Salvati, SLC) 1 Engagement is an Intentional and Active Intervention Failed Interventions are Never Neutral (Eber) Engaging Families in MTSS Tier 1: Familiar and “easiest” Tier 2: Unfamiliar and challenging Tier 3: We have a context, but rarely engage at the highest level of mutual trust and high performance Paradigm Shift in Service Delivery Systems for Children and Youth with Emotional Disturbance From Osher, Trina W. and David M. Osher. The Paradigm Shift to True Collaboration with Families. Journal of Child and Family Studies, Vol. 11, No. 1, March 2002, pp. 47-60. Paradigm Provider-driven Family-driven Source of solutions Professional and agencies Relationship Child and family viewed as a dependent client expected to carry out instructions Child, family, and their support team Partner/collaborator in decision making, service provision, and accountability Orientation Isolating and “fixing” a problem viewed as residing in the child or family Ecological approach enabling the child and family to do better in the community Assessment Deficit oriented Strengths based Expectations Low to modest High Planning Agency resource based Access to services Limited by agency’s menus, funding streams, and staffing schedules Individualized for each child and family Comprehensive and provided when and where the child and family require Outcomes Based on agency function and symptom relief Based on quality of life and desires of child and family 2 Family Engagement Stages of Family Team Development Professional Centered: Professionals are the experts. At Tier 3, families may be viewed as a hostile and resistive force, in the way of achieving professional goals. At Tier 1, families may be fundraisers or popcorn makers (little policy impact). At Tier 2, families are ? Family Focused: Professionals are the experts, families may be helpers or allies. Professional knows best, decides both the rules and the roles for team members. Focus is on getting the family/community to ally toward the professionals’ goals. Stages of Family Team Development Family Allied: Tier 3: Family-Centered: Professionals seen almost as Families are viewed as the customer, professionals strive to attune the services/structure to the needs and desires families. Tier 1 and 2: Families are seen as colleagues who have knowledge and ideas but that choice may be limited by what folks “internally” know is available or allowed. Collaborative but not equal. “employees” of the family- families are the experts and professionals exist to support them and their role as the primary agent in helping their children reach their goals. 3 The Team Stage Team Centered: Decision making with a full team of school, community, and family. Team strengths and resources are collected and used to select strategies most likely to work, at all levels. Planning and intervention rest on the combined skills and flexible resources of a diversified and committed team. Decision making rests with the collective power of the team working together, without shame or blame, in a supportive manner. At “TEAM”- we know we are there when: Families play an active role in planning, implementation and evaluation of interventions at all 3 levels. Family Voice: why does the school run this way? How can we together make it run better? Families with students supported at all 3 Tiers are actively engaged in MTSS Activity: Assessing Stages What stage of Team Development are most of the teams you work with currently at? What roles do outside resources, including families, play at each tier? Think about 3 ways in which you might help your teams move to the next “level”. Move into groups- i.d. 3 solid strategies to advance toward a “team centered” model 4 Some Barriers to Team Often, policies and rules of individual agencies are barriers to full engagement- name some. Families and professionals may both have had multiple negative experiences that they bring to the table Service and support teams are a “false/forced” construct- not the way relationships normally develop Members of a team may not all have a common goal Finding and incorporating natural and community supports can be difficult- strategize. Some agencies may have limits on employee time due to billing constraints FUNCTION: Why do it? How? It’s all about function- and data Definitions- for example, who is defining what a welcoming environment and climate feels like within the school? Who defines the “hat policy”? Data- how are families reacting to changes within the school? What do they know? How can they contribute? Tier 1: Universal How are parents engaged at Tier 1? Who is engaged? (reflective of community?) What are the benefits of parent engagement at Tier 1? What are the challenges of parent engagement at Tier 1? What can you do better? 5 Tier 2:Targeted What are the functions of your Tier 2 team? How are parents engaged at Tier 2? What skill sets/perspective can parents offer at Tier 2? What processes are in place to incorporate parent perspective into planning and implementing interventions and supports? Tier 2, Targeted Cont’d. What decision making roles do parents have in regard to behavior/”discipline”? What data do parents access and give input about? What are the barriers to parent engagement at Tier 2? What can be done better? What will you do next? Tier 3: Intensive How are we doing engaging parents at Tier 3? Are we hitting high performance as teams at Tier 3? What are some successful strategies for parent engagement at Tier 3? What can be done better? What will be done next? 6 Activity Family Engagement Checklist- Muscott and Mann (2004) from Epstein (2003) and Fullen (1991) How is your school doing, if you look at it through the lens of this tool? What could or should be modified about or added to this tool? (10 years old now) Team Member Strategies: Who do We Need to Be? Listeners first and above all Equals in power and responsibility NOT saviors or martyrs (Tier 2 and 3 especially) Communicators: Open, honest, constant and clear Informed about resources and open to non-traditional approaches Respectful of differences of culture and values Understanding of each other’s limits and limitations Tools for building family engagement: Tier3 Hear their story – Set a time to meet that works for them Begin with a conversation, not a “meeting” Use active listening skills such as Clarification, empathizing, reframing, mirroring, summarizing Help elicit/identify strengths Make a conscious effort to remain non-judgmental Accept hospitality!!!! Use a Person Centered Planning “Mapping” approach 7 The Unique Culture of Intergenerational Poverty Skills learned to survive poverty are not the same as the skills that make us successful in school- examples? Cultural elements most often decried by providers: the “big screen tv” issue- entertainment in poverty Families who are “in for what they can get” Hospitality as an element of family culture. Fluid lines of family definition “Retro- Rich” Ruby Payne: The Culture of Poverty Resources PIC, GSFFCMH, NAMI NH Muscott and Mann 2004 Tool Parent Professional Partnership- National Federation of Families for Children’s Mental Health Takeaways 8 Scenario: -You struggled in school and dropped out in 10th grade so you could work and help your family -You have a family history of mental illness -You have been out of work for 8 months -Your car needs brakes and isn’t inspected -Your assistance check was unexpectedly $500 less this month -You can’t pay rent and you are at risk of being evicted -Your son was just suspended for the 8th time and the school wants you to come to a meeting… How are you feeling now?? (Thanks and credit to Kate Salvati, Strafford Learning Center) Scenario: You manage to get a ride to the meeting from a neighbor You arrive on time but everyone else is already at the table talking You are still thinking about the food shortfall you will have this month The room is full of professionals: Teacher, principal, guidance counselor, school psychologist, special ed. teacher, behavior specialist, truancy officer, Special Ed. Director and 2 others that you didn’t catch They are having a “Manifestation Determination” meeting – it sounds serious but you don’t know what it means And how are you feeling now?? Scenario Continued: The meeting starts with everyone talking about all the trouble your son is causing at school and in the community The team spends 45 minutes giving examples of what he has been doing wrong They tell you the next time he gets in trouble at school you will have to come pick him up They tell you to call the police the next time he leaves the house without permission They tell you that you have to get him to school even when he refuses (he’s 5’10 and 180 lbs)or you can be filed against for educational neglect They ask you if you have gotten him to counseling like they told you to last time They ask you if you have any questions How are you feeling now?? 9 Do You Feel Engaged? Is Your Energy for Participatio n in Future Meetings Very High Right Now? Are You Very Excited to Answer the Phone? Activity: Initial Engagement You have just received word that you will now be working with the most difficult and “notorious” family that your school and agency support. What 3 things can you do right away to ensure that your efforts to engage with this family are more successful than past efforts? What is Wraparound? Wraparound is a planning process, based in a clear set of values and principles. Wraparound teams have dynamic rather than static membership. Wraparound is a process that begins with the strengths of individual youth and families. Wraparound is not a service or set of services. Wraparound is a good tertiary level planning intervention 10 What is Wraparound? Wraparound is a process that is child centered and family focused Wraparound connects families to supports and services in their communities, and always includes a mix of public, private, and natural supports. Wraparound is a process that respects families’ culture and values. Wraparound is led by a trained facilitator. Wraparound Is Not: A specific set of services offered A typical team meeting Any meeting held without family or youth An immediate or quick solution A crisis intervention or response A standing interagency team 11 Wraparound in Simplest Terms Work until it works. When barriers arise--- People haven’t failed- the plan has failed. Strengths plus Needs= Actions Voice and choice. If it doesn’t feel like help, it probably isn’t. No shame, no blame Activity: Reframing Reframe our own perspective on family challenges Reframe the words we use to describe youth and families Reframe deficits and challenges as strengths Critical Elements of High Fidelity Wraparound Youth Guided Strengths-Based Family-Driven Needs-Driven Individualized Culturally Relevant Unconditional Community-Based Team-Based Accountable Accessible Outcome-Based Cost- Effective Flexible Promoting Self-sufficiency Comprehensive Collaborative 12 The Research Base: Challenges Wraparound is considered a promising practice; more research projects using control groups (not receiving wraparound) need to be done to establish it as a true evidence based practice. Wraparound is not yet “manualized”- there are recognized national trainers and several curricula, but no standard manual. Many kinds of planning are being done with families that are called wraparound but may or may not include all of the “critical elements” that have been widely agreed upon as necessary to good wraparound. Fidelity measures vary. Wraparound is not fully and well defined…but we are getting closer. Most EBPs are not designed for children- wraparound is, but is not manualized. The Research: What has Been Done from: Burchard, JD, Bruns, E.J, & Burchard, SN (2002) The Wraparound Process and B. Burns, K. Hoagwood, & M. English. Community Based Interventions for Youth, NY: Oxford University Press Fifteen studies have been done: two qualitative case studies, 11 pre-post studies, two quasi experimental studies, two studies involving clinical trials. This research is not sufficient to qualify wraparound as an evidence based practice in the strictest definition of the term, but is significantly promising. Eleven National Published Pre-Post Studies Improvement in self-control Improvements in home, school, and community, role performance Decrease in problem behaviors 85% decrease in arrests Improvement in permanency Decrease in hyperactivity Decrease in abuse related behaviors Decrease in substance use Decrease in hospital admissions Decrease in out-of-home placements. 13 Research: Pre Post Studies This can be compared to the findings of the National Adolescent and Child Treatment study, which found that of children with SED who received only “traditional” services via residential facilities and were discharged successfully, 32% were placed back in residential or incarcerated within 12 months. After 6 years, recidivism was 75%. National Published Studies Two Randomized Published Studies Increase in home, school, community functioning Improved permanency Decrease in days and number of suspensions Decrease in runaway behavior Decreased incarceration (2.6 times less likely) Decrease in delinquency and conduct disorder Decrease in problem behavior. Issues with the Evidence It is not clear that the “wraparound” being done in each of these trials and projects was exactly the same– i.e. it is not clear that there was fidelity to a single practice model. Often, “values” and adherence to them are taken as fidelity measures, as opposed to objective, quantifiable elements that can be clearly seen as present or absent. 14 What Does the Research Add Up To? Fidelity to a Practice Model= Better Outcomes for Children and Families. Critical Elements of a “good” wraparound process (i.e. one that will result in good outcomes) have been developed and are largely agreed upon by experts and practitioners in the field. The Portland University Research and Training Center has published these critical elements and they are becoming widely used. Common shortcomings in Wraparound– nationally and in New Hampshire •Failing to incorporate full complement of important individuals on the wraparound team. •Failing to engage the youth in community activities the youth does well, or activities that will allow him or her to develop appropriate friendships •Failing to use family/community strengths to plan and implement services •Failing to use natural supports, such as extended family members and community members •Lack of flexible funds to help implement innovative ideas that emerge from the ongoing team planning process •Inconsistent outcome & satisfaction assessment • Under use of trained facilitators- facilitators experience a decrease in confidence and skills. From patterns of WFI element and item scores (Bruns, 2004) Family Engagement as a Critical Element in Wrap/RENEW Defining “Family”: a family unit is defined by its members, and each family defines itself Can include bio or adoptive parents, foster parents, partners, siblings, extended family, friends who provide extended support to a child or primary caregiver: may be fluid. 15 Phase 1: Engagement and futures planning: -Orient Families to Renew Process -Highlight Roles -Describe how RENEW helps the family Phase 2:Team Developmen t- Initial Planning: -Youth Present Futures Plan to Family --Engage Family during Team Development Phase Phase 3: Implementat ion and Monitoring: -Family has roles during implementation and Monitoring -Family celebrates Successes Phase 4: Transition: -Family has a role in transition planning -Family has a role in connecting youth to follow up supports The Wraparound Process and its Current Place within the Research Base on Treatments for Children, Youth, and Families Eric J. Bruns, Ph.D. Acting Assistant Professor University of Washington Department of Psychiatry and Behavioral Sciences Division of Public Behavioral Health and Justice Policy Division of Public Behavioral Health and Justice Policy ebruns@u.washington.edu Grand Rounds University of Washington Division of Child & Adolescent Psychiatry Children’s Hospital and Regional Seattle, Washington February 4, 2005 16