Worldwide Activities
Report of Known Activities
Foreward
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This is a report of “known” activities performed on March 3, 2015 – World Birth
Defects Day
It includes only known activities reported by the 12 Promoting Organizations or by
their Members and those detected on browsing internet
The report includes very few examples of Facebook and echos in newspaper
without a website
Aims
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To thank all the known supporters
To evaluate the performance of WBDD activities in 2015 (first year) and have a
basis to evaluate performances on next years
To learn what has been done by others to get inspiration for the next year
The full report will be presented on freetime slots during the
42nd Annual Meeting of the ICBDSR,
10-13 Sept, 2015; Spoleto, Italy
Any comment or update is welcome, please send to: centre@icbdsr.org
Worldwide Social Network
Supporters from at least 34 Countries
in the five Continents
North America
Promoting Organizations
CDC – Centers for Disease Control and Prevention
ICBDSR – International Clearinghouse
MoD – March of Dimes
NBDPN – National Birth Defects Prevention Network
Thunderclap
Dissemination
Social Network Participation
Echos in websites
Latin America
Messages on:
Promoting Organizations
Pan American Health Organization
Neonatal Alliance
ECLAMC
Website
Facebook
Twitter
Linkedin
Conferences
Ministry of Health and
Official Decision Makers
Press Conference and
Release
Costa Rica
Cuba
Nuevo Leon, Mexico
Bogotà, Colombia
Paraguay
Presentation of
National Program
of Birth defects
Prevention
TV or Newspaper interview and news:
Mexico Nuevo Leon and Costarica
Echos in websites
Country
News on
Website
Argentina
2
Carribean Islands
2
Cayman Island
1
Chile
6
Colombia
6
Costa Rica
2
Cuba
1
Ecuador
1
Jamaica
4
Honduras
1
Mexico
11
Panama
2
Paraguay
1
Uruguay
2
Europe
Promoting Organizations
EDRIC EUROCAT
IFSBA PMNCH
Conferences
Press Release
Messages on:
Website
Twitter
Newsletter
Enniskillen, Northern Ireland
Budapest, Hungary
Ministry of Health
Joint Conference
IFSBA , Rare Diseases, Ulster University
Rare Diseases and World Birth Defects Day
Observance
Echos in websites
Country
Telephone Service
Germany, Saxony-Anhalt BDSP
Stand
Catholic University
Policlinico Gemelli, Rome
Videos
Czech Republic
6
 Ukraine, BDSP
 Italy, Bambino Gesù Pediatric Hospital, Rome
 Italy, Prima della Gravidanza Website
Germany
4
Italy
17
Malta
10
Spain
4
Northern Ireland
2
Wales
2
Press release
Local TV interview
Campania BDSP
New fact sheets
News on
Website
 EDRIC, Organization for Dysmelia
in English, German and Italian
 Wales, BDSP
 On. Paola Binetti MD, Deputy of Parliament
 EDRIC – Italy
 Local Health Authority Verbano-Cusio-Ossola
Malta, BDSP
BDSP: Birth Defects Surveillance Program
South East Asia
Promoting Organization
WHO South East Asia Regional Office
Dissemination
Conference, Awareness and Education
Promoted by Dr. Anita Kar
Interdisciplinary School of Health Sciences
Savitribai Phule Pune University Ganeshkhind, Pune
Social Network
Participation
Echos in websites
and newspaper
Bangladesh
India
Sri Lanka
Thailand
Africa, Saudi Arabia, Western Australia
Conferences
TV interview
 Nigeria
 Saudi Arabia
Translation
of leaflets
Saudi Arabia
 Nigeria
 Saudi Arabia
 Western Australia
Saudi Arabia
Echos in websites
and newspaper
China
New Zealand
Nigeria
Saudi Arabia
Stand, Distribution of
Information Material,
and Quiz
Western Australia
More Information on Slides’ Folders
1. Thunderclap, Buzz Day, Twitter
2. North America
3. Latin America
4. Europe
5. South East Asia
6. Africa, China, New Zealand, Saudi Arabia
Western Australia
Contributors to collect activities
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Olubunmi Aiyedun (Nigeria)
Amal Alhashem (Saudi Arabia) *
Geoff Adams-Spink (Sweden) #
Adriana Benavides Lara (Costa Rica) *
Yudelkis Benitez (Cuba) *
Eva Bermejo Sanchez (Spain)*#
Carol Bower (Western Australia) *
Aurora Canessa (Chile) *
Mark Canfield (USA) *#
Silvia Castillo (Chile) *
Pam Costa (CDC) *#
Viviana Cosentino (ECLAMC) *#
Melinda Csáky- Szunyogh (Hungary) *
Helen Dolk (Ulster Univ)
Pablo Duran (PAHO & Neonatal Alliance) #
Marcia Feldkamp (USA) *#
Miriam Gatt (Malta) *
Jose Alberto Gutierrez Rodriguez (Mexico)*
* ICBDSR Member;
# WBDD Promoting Organizations
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Anita Kar (India)
Ahmed M Kurdi (Saudi Arabia)*
Ewa Kampelmann (IFSBA)#
Maria Luisa Martinez Frias (Spain)*
Cecilia Mellado (Chile)*
Margery Morgan (Wales)*
Rosa Andrea Pardo (Chile)*
Anna Pierini (Italy)*
Neena Raina (WHO-SEARO)#
Anke Rißmann(Germany)*
Beverly Robertson (MoD)#
Antonin Sipek (Czech Republic)*
Gioacchino Scarano (Italy)*
Elena Szabova (Slovak)*
Diana Valencia (CDC) #
Salimah Walani (MoD) #
Wladimir Wertelecki (Ukraine)*
Ignacio Zarante (Colombia)*