Good Practice Conference “…collating, disseminating and encouraging the adoption of good practice…” Understanding ASD: the Way to Effective Practice Professor Rita Jordan OBE Autism Centre for Education & Research University of Birmingham Good Practice Conference, Stirling 2009 Education & values • 'Education' often taken as synonymous with forms of therapeutic input directed at identified 'deficits' or difficulties • People with ASD challenge view that goal of education should be to make them ‘less autistic’ or to behave ‘normally’ • SEN not derived purely from a clinical condition SEN of ASD Jordan (2005) • children with ASDs have needs that are: – common (as children) – individual (as individuals - assessed needs) but also – group (related to ASD) • and it is only through awareness of group needs that individual needs can be recognised and met • all stakeholders (children, parents, teachers,aids, therapists, psychologists, headteachers, local authorities) saw lack of understanding as key barrier to inclusion (ACER, 2008) What’s Special about ASD? • need to learn explicitly what others acquire intuitively or through social tutoring – – – – – – – identity of self/ other saliency of social signals agency and intention relevance and priority social/cultural meaning nature of communication emotional consciousness Difficulties & Differences • executive functions – ‘monotropic’ attention – impulse control – idiosyncratic perception • imagination & reality testing • empathy & emotional/ conscious understanding • concept development – problems abstracting – rigidity of concept & schema boundaries Strengths • • • • • • • • sustained attention to interests no social distractions usually visual information careful attention to detail no social heirarchy - no deceit - get job done accurate detailed memories ‘fresh’ idiosyncratic art - visual/ poetry/ music vulnerability brings out the best in others (often!) Learning Style • visual or procedural rather than verbal • memory – cued – rote • ‘social’ a dimension of difficulty • emotions & cognition – use interests for engagement • often at sensory stage of meaning – presentation --> reference • repetition & consolidation • explicit strategies for problem solving • need to learn explicitly what others acquire intuitively The ‘ASD’ lens • individual needs determine learning and should determine teaching • individuality is even more the case in ASD • yet a lack of mutual empathy means – teachers have to use non-intuitive routes in teaching those with ASD – just as those with ASD have to use non intuitive routes in their learning Sensory challenges • if assessed as challenge for child – environmental / proximal adaptation – inform Behaviour Support Plan • if not assessed – be alert to sensory issues and develop understanding of environment to reduce sensitivity - likely to be either ‘over’ or ‘under’ sensitive to different senses Perceptual Challenges • staff need to be aware for all so that there is: – teaching for meaning (emphasise goals not parts of tasks, reward effort not success) – explicit rules & instructions (visual?) – time for processing – recognition of effect on learning & teaching – checks on child’s perspective Memory Challenges • recognition that ‘savant’ skills may be weakness • processes for teaching or generalisation of skills in functional environments • methods to enable memory cues across home/ school environments e.g. in homework • teaching a range of memorisation strategies Language & Communication Challenges • augmentative systems for those without speech – at right ‘meaning’ level • ’educational’ language – assumes communication – joint attention/ advance organisers/ gestures/ literality • SALT support for communication programmes for all with ASD • structured teaching to reduce reliance on social & linguistic mediation of learning • programmes for expressive and receptive speech – include communication gestures Social & Emotional Challenges • awareness of implications of lack of salience of social signals – teaching attention to social signals – use taught attentional signal as a signal • teaching social meanings – explicit teaching – allowance in behaviour management – enabling positive social experiences for practice • teaching emotional awareness & control – necessary understanding prior to ‘management’ or understanding of facial expressions Teaching for Purpose • different approach needed to suit – individual characteristics • • • • • sociability language cognitive level sensory issues age – goal – practitioner comfort/ ability/ knowledge Child factors: Sociability • Wing’s classification – withdrawn/ solitary -> passive/ responds -> ‘active but odd’ -> eccentric & sensitive • varies with conditions & with teaching • level suggests optimum form of approach – – – – withdrawn - 1:1 directive & desensitisation passive - interest & structured play experience active but odd - social rules & experience (context) eccentric - social skills in context e.g. buddy Curriculum for ASD • entitlement to culturally valued skills, knowledge & understanding • therapeutic needs from ASD difficulties • additional explicit content for otherwise ‘intuitive’ knowledge • long-term need for a ‘curriculum for life’ Later: Ecological Curriculum • assess individual • assess current and future environments & occupations • gaps in skills, appreciation, knowledge and experience form curriculum goals • teach in functional ways • practise in functional contexts Evidence • no single approach • evidence for: – structure – modern behavioural methods – training parents in social interaction & communication techniques • in all studies some do well and some do not • in all studies children tend to learn only what are explicitly taught Important Distinction (Mesibov 2009) • Evidence Supported Treatment (EST) – most common use – starts with treatment & asks if it works for a particular (narrow) group • Evidence Based Practice (EBP) – what we should do – starts with child and asks how we can achieve best outcome Importance of Process • sensitivity & flexibility of implementation at least as important as particular programme • rigid interpretation of manuals leads to poor outcomes • lack of understanding of ASD de-skills staff and prevents effective individualisation Definition of EBP • the integration of the best available research and clinical expertise within the context of patient characteristics, culture, values and preferences. (APA, 2006) • practitioner expertise involves interpersonal skills and not just single programme knowledge Single vs Eclectic Curricula Single • enables staff expertise • better monitoring & easier evaluation • builds staff & parent confidence • enables positive views Eclectic • can match to goal • all needs can be addressed • needs compatibility checks & child perspective • take strengths from each Conclusion • normal intuitive learning requires cognitive effort • normal levels of stimulation cause stress • lack of control from – poor self understanding – poor social understanding – poor communication • understanding & individualisation is key to effective support & education • treating students equally does not mean treating them the same but differently, to ensure equal access