DEAFwith DEMENTIA NHS Cognitive Disorder Clinic Project Dementia www.ucl.ac.uk/dcal/dwd Deaf signers are usually diagnosed late. Changes in the brain affect memory, language and problem solving. Ask your GP to refer you if Research and the Older Deaf Community you are a Deaf sign language user you or your family or friends have noticed big changes in your memory, thinking or behaviour Your GP needs to send a referral letter stating that you are a Deaf BSL user to: Dr Mummery, BOX 16, NHNN, Queen Square, London WC1N 3BG 5 Should I be worried? THANK YOU TO EVERYONE WHO HAS SUPPORTED OUR RESEARCH 2 1 4 3 5 Earlier diagnosis is important so that Deaf people can live well with dementia, access services and treatments, and plan for the future. 2 1 4 3 We developed new memory and thinking tests to help diagnose deaf people earlier. DCAL is working with UCL Partners Hospital for Neurology and Neurosurgery in London. They now offer appointments for older Deaf patients living in the UK. NO Small changes are part of normal ageing. Everyone sometimes: forgets names and faces loses glasses or keys YES Bigger changes, like getting lost in familiar areas, may point to a problem such as dementia. CONTACT US: Deafness Cognition and Language Research Centre, 49 Gordon Square, London WC1H 0PD www.ucl.ac.uk/dcal to see website for more information @ general enquires: dcal@ucl.ac.uk older adult research: joanna.atkinson@ucl.ac.uk Fax: 020 7679 8691 Would you like to volunteer for DCAL research? Register with our participant database: www.ucl.ac.uk/dcal/getting-involved/ Research_Participation Designed and illustrated by The Attic Design Studio Email: atticdesign@o2.co.uk DEAFNESS, COGNITION AND LANGUAGE RESEARCH CENTRE UNIVERSITY COLLEGE LONDON Research with older Deaf Signers. Healthy Deaf Ageing Parkinson’s Disease BSL Sign Bank Dictionary DCAL filmed Deaf people of different ages around the UK. Older signers used more regional signs than younger signers. For example, older people use many signs for “6" but younger signers tend to use only two of these signs. DCAL are creating an online dictionary which everyone can use. www.bslcorpusproject.org/data/ Before we can identify memory and thinking problems, we need to understand normal changes in Deaf people as they get older. Our research shows this still happens among older Deaf people today. We plan to look at younger signers to see if things are changing now that we have professional interpreters. email: r.adam@ucl.ac.uk They may have less face expression. Lip patterns and handwriting may get smaller too. We tested healthy deaf people aged 50-89 years at EDDJ holiday camp for older Deaf people. Now, if a Deaf person is worried, we can compare their test scores to healthy deaf scores, and identify dementia and other problems sooner. Deaf “translators” Did you know through history Deaf people have always supported other Deaf people with communication and translating English documents? Parkinson's is a movement disorder. Research shows Deaf people with Parkinson's sign slowly. Their movements become smaller and their handshapes become less clear. They still understand other people's signs. DEAF STROKE Stroke Research has shown that sign like speech is processed by the left brain. Deaf people with strokes on left side of brain sometimes have problems with sign language. This is called aphasia. They might not understand signs. P ro je c t They might not be able to produce signs.