English Longitudinal Study of Ageing: Methods and Forward Look 7 July 2006
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English Longitudinal Study of Ageing: Methods and Forward Look 7 July 2006 British Academy, London Carli Lessof National Centre for Social Research ELSA is... z A study of people aged 50+ and their younger partners z Multi-disciplinary - health, economic and social circumstances z Longitudinal - change over time z Comparative - United States (HRS) and Europe (SHARE) z Policy relevant - applied research with long term aims ELSA is run by a consortium... z International Centre for Health and Society, UCL z Institute for Fiscal Studies and UCL Dept of Economics z National Centre for Social Research z Universities of Cambridge, East Anglia, Exeter, Imperial The research team z z z z z z z z z z z z Sheema Ahmed James Banks Richard Blundell Elizabeth Breeze Lisa Calderwood Hayley Cheshire Laura Conway Kate Cox María Casanova Panayotes Demakakos z Bob Erens Edlira Gjonça z z z z z z z z z z z z Elizabeth Hacker Felicia Huppert Martin Hyde Mary Janevic Roger Jowell Saffron Karlsen Meena Kumari Iain Lang Michelle Lee Carli Lessof Peter Lynn Anne McMunn Brenda McWilliams z z z z z z z z z z z z Michael Marmot David Melzer James Nazroo Susan Nunn Dan Philo Mary Pierce Keeley Ribas Shaun Scholes Zoë Smith Nick Steel Gemma Tatlow Rebecca Taylor The research team z z z z z z z z z z z z z z z Sheema Ahmed James Banks Richard Blundell Elizabeth Breeze Lisa Lisa Calderwood Calderwood Hayley Cheshire Laura Laura Conway Conway Kate Cox Mar Marííaa Casanova Casanova Panayotes Demakakos Bob Erens Edlira Gjonça z z z z z z z z z z z z z z z z z z z Elizabeth Hacker Felicia Huppert Martin Hyde Mary Mary Janevic Janevic Roger Roger Jowell Jowell Saffron Saffron Karlsen Karlsen Meena Kumari Iain Lang Michelle Michelle Lee Lee Carli Lessof Peter Peter Lynn Lynn Anne Anne McMunn McMunn Brenda McWilliams z z z z z z z z z z z z z z Michael Marmot David Melzer James Nazroo Susan Nunn Dan Dan Philo Philo Mary Pierce Keeley Keeley Ribas Ribas Shaun Scholes Zoë Smith Nick Steel Gemma Tatlow Rebecca Taylor Management Group z z z z z z z Michael Marmot (UCL) Elizabeth Breeze (UCL) Bob Erens (NatCen) James Banks (IFS) Richard Blundell (IFS) Carli Lessof (NatCen) James Nazroo (UCL) Advisory Group z z z z z z z z Baroness Sally Greengross Michael Bury Tom Kirkwood Tom Ross Jacqui Smith Anthea Tinker Christina Victor Alan Walker Consultants Group z z z z z z z z David Blane Mike Hurd Martin Hyde Jim Smith Beth Soldo Mike Wadsworth Bob Wallace Bob Willis Funders z National Institute on Aging z Department for Education and Skills Department for Environment, Food and Rural Affairs Department of Health Department of Trade and Industry Department for Work and Pensions HM Treasury HM Revenues and Customs Department for Communities and Local Government Office for National Statistics z z z z z z z z Study Design HSE HSE++Nurse Nurse 1998-1999-2001 1998-1999-2001 Sample Design at Wave 1 z Sample is representative of population aged 50 and over, living in private households in England z Drawn from Health Survey for England (HSE) z Three years of HSE used - 1998, 1999 & 2001 z Annual cross-section of approximately 16,000 adults z Core content, supplemented by varying modules z Health measures provide ‘pre-baseline’ information z Household response - HSE (74% to 76%) z Individual adult response - HSE (67% to 70%) HSE Content for ELSA pre-baseline z z z z z z z z z z z General health Use of health services MRC respiratory questionnaire, chest pain, CVD Physical activity Eating habits, smoking, drinking Height and weight (collected in interview) Waist and hip, demi-span (by nurse) Parental history GHQ12 Blood pressure; blood sample Prescribed drugs; vitamins; nicotine replacements HSE HSE++Nurse Nurse 1998-1999-2001 1998-1999-2001 ELSA ELSAWave WaveOne One2002 2002 Main MainInterview Interview(12,100) (12,100) Eligibility for the Study at Wave 1 z Core sample members born on or before 29th Feb 1952 z In household sector in England at baseline (ELSA W1) z All age eligible individuals (unlike HRS which selects) z Younger partners cohabiting with core sample at HSE z New partners who joined household since HSE z Some data about other household and family members z No interviews in institutions or outside England at baseline Interview Content at Wave 1 z Household demographics z z z z Individual demographics Health Social participation Work and pensions z z Income and assets Housing z z z Cognitive function Psychosocial health Expectations z z z Final questions (including consents) Timed walk Self-completion Response at Wave 1 z Issued sample of 18,800 individuals (11,600 households) z Main interviews with 12,100 individuals (7,900 households) z z Of which 11,400 interviews with core sample members z Remainder partners: 640 younger and 70 new Response among core sample members z Household response 70% z 96% responding within households z Overall individual response rate of 67% z Individual response rate for new partners 68% z Individual response rate for younger partners 63% Achieved Sample Size - All Sample Types Numbers % Age Men Women Total Men Women Total Under 50 50-54 55-59 60-64 65-69 70-74 75-79 80+ 104 920 1030 813 806 680 498 485 472 1156 1171 883 912 797 596 777 576 2076 2201 1696 1718 1477 1094 1262 2 17 19 15 15 13 9 9 7 17 17 13 13 12 9 11 5 17 18 14 14 12 9 10 Total 5336 6764 12100 100 100 100 HSE HSE++Nurse Nurse 1998-1999-2001 1998-1999-2001 ELSA ELSAWave WaveOne One2002 2002 Main MainInterview Interview(12,100) (12,100) Wave WaveTwo Two2004 2004 Main Main(9,432) (9,432) Wave WaveTwo Two2004 2004 Nurse Nurse(7,666) (7,666) Response at Wave 2 z Achieved main interviews with 9432 individuals z Of which 8780 interviews with core sample members z Remainder partners: 57 core, 501 younger and 94 new z Of the 8780 interviews, 92 were by proxy informant z Report based on 8688 core who responded in person Interview Content at Wave 2 z Household demographics z z z z Individual demographics Health and quality of care Social participation Work and pensions including job change and retirement z z Income and assets Housing including house moves and further consumption z z z z z z z Cognitive function Psychosocial health Expectations and relative deprivation Effort and reward of caring and voluntary activities Final questions (including consents) Timed walk Self-completion including loneliness and life satisfaction Further changes at Wave 2 z As well as additions to the questionnaire z Modifications to measure change z Amendments to following rules z outside of England z moves into institutions z partners to be followed for one wave after split z Exit interviews z Nurse Visit with 7666 core members Nurse Visit - Core Sample Members Only z Blood pressure z Lung function z Blood sample (fasting where possible, DNA) z Standing and sitting height; weight, waist and hip measurement z Physical performance: grip strength, balance, leg rise, chair raise z Saliva sample to measure cortisol four times in one day z Leave behind nurse self-completion (for one in ten households) Bloods Samples in Wave 2 z Fibrinogen z Total cholesterol z HDL cholesterol z Triglycerides z Ferritin z C-reactive protein (CRP) z Apolipoprotein E (ApoE) z Fasting glucose z Haemoglobin z Glycated haemoglobin z Genetics Response among core members at Wave 2 z Household contact rate 97% z Individual co-operation rate 84% z Individual field response rate 82% z Three-quarters of non-response was refusal (1,530) z High schedule and item response z Self-completion 89.8% z Nurse visit 88.2% Achieved Sample Size - Core Full Respondents Numbers Age Men % Women Total Men Women Total 52-54 55-59 60-64 65-69 70-74 75-79 80+ 345 845 663 654 559 427 413 396 998 805 738 640 537 668 741 1843 1468 1392 1199 964 1081 11 23 17 16 13 11 10 9 20 16 14 13 12 16 10 22 16 15 13 11 14 Total 3906 4782 8688 100 100 100 Achieved Nurse Visits Numbers Age Men % Women Total Men Women Total 52-54 55-59 60-64 65-69 70-74 75-79 80+ 310 752 578 596 501 362 352 354 906 710 677 555 452 561 664 1658 1288 1273 1056 814 913 9 22 17 17 15 10 10 8 21 17 16 13 11 13 9 22 17 17 14 11 12 Total 3451 4215 7666 100 100 100 HSE HSE++Nurse Nurse 1998-1999-2001 1998-1999-2001 ELSA ELSAWave WaveOne One2002 2002 Main MainInterview Interview(12,100) (12,100) Wave WaveTwo Two2004 2004 Main Main(9,432) (9,432) Wave WaveTwo Two2004 2004 Nurse Nurse(7,666) (7,666) HSE HSE++Nurse Nurse 1998-1999-2001 1998-1999-2001 ELSA ELSAWave WaveOne One2002 2002 Main MainInterview Interview(12,100) (12,100) Wave WaveTwo Two2004 2004 Wave WaveTwo Two2004 2004 Wave WaveThree Three2006 2006 Wave WaveThree Three2006 2006 Main Main(9,432) (9,432) Main MainInterview Interview Nurse Nurse(7,666) (7,666) Retrospective Retrospective HSE HSE++Nurse Nurse 1998-1999-2001 1998-1999-2001 HSE HSE++Nurse Nurse 2001-02-03-04 2001-02-03-04 ELSA ELSAWave WaveOne One2002 2002 Main MainInterview Interview(12,100) (12,100) Wave WaveTwo Two2004 2004 Wave WaveTwo Two2004 2004 Wave WaveThree Three2006 2006 Wave WaveThree Three2006 2006 Main Main(9,432) (9,432) Main MainInterview Interview Nurse Nurse(7,666) (7,666) Retrospective Retrospective Changes at Wave 3 z New sample of 50 to 53 year olds z New or rotating questions z services and transport z dental health, fruit and vegetables z expectations for the future z Anchoring vignettes in additional self-completion z New consents for refreshment sample z Retrospective interview HSE HSE++Nurse Nurse 1998-1999-2001 1998-1999-2001 HSE HSE++Nurse Nurse 2001-02-03-04 2001-02-03-04 ELSA ELSAWave WaveOne One2002 2002 Main MainInterview Interview(12,100) (12,100) Wave WaveTwo Two2004 2004 Wave WaveTwo Two2004 2004 Wave WaveThree Three2006 2006 Wave WaveThree Three2006 2006 Wave WaveFour Four2008 2008 Wave WaveFour Four2008 2008 Main Main(9,432) (9,432) Main MainInterview Interview Main MainInterview Interview Nurse Nurse(7,666) (7,666) Retrospective Retrospective Nurse NurseVisit Visit Available Data z www.ifs.org/uk/elsa z Economic and Social Data Service English Longitudinal Study of Ageing: Methods and Forward Look 7 July 2006 British Academy, London Carli Lessof National Centre for Social Research Weighting z Imputation for missing values in economic variables z At Wave 1 z Weighting to take account of non-response z Post-stratified to the relevant population using Census 2001 z Weights now available for self-completion (c.92%) z At Wave 2 z Weighting to take account of further non-response z Additional weights for nurse visit and bloods z Weights anticipated for self-completion (c.90%) Long-term Response z ELSA Wave 1 is the baseline sample - exclude all those who are ineligible for follow-up - 82% z Exclude households which did not include an age-eligible respondent who agreed to be re-contacted - 52% z Exclude households for whom age data was never collected at Wave 0 - non-cooperating households at HSE - 47% z Account for all losses, including those who were never interviewed (including for Wave 0) and never issued - 35% Linkages to administrative data z NHS Central Register (HSE, W2 boost) z New employers for private pension plans (W1-W3) z Hospital Episodes (W1, W2 update, W3 refreshment) z National Insurance Contributions (as above) z Benfeits incl. state pensions and tax credits (as above) z Tax records, savings, private pensions (W3 refreshment)
