Overview Strategies to reduce inequalities in child health: Perspectives from Aotearoa/NZ • Briefly describe two examples of ethnic health disparities and strategies to address these • Identify general principles necessary for achieving desired outcome Annual Health Services Research Meeting Seattle, 25th June 2006 Dr Sue Crengle • SIDS prevention • Meningococcal vaccination SIDS mortality rates per 1000 live births by ethnicity 1980- 1986 (Source NZHIS 2005) SIDS case control study • 1987-1990 nation-wide case-control study • Number of ‘unmodifiable’ factors R a te p e r 1 0 0 0 liv e b irth s 12 10 • Four ‘modifiable’ risk factors for SIDS 8 – – – – Mäori Other Total 6 4 2 Prone sleeping position Maternal smoking Not breast feeding Infant bed sharing 0 1986 1984 1982 1980 Mitchell EA, Scragg R et al NZ Med J 1991;104:71-6 Mitchell EA, Taylor BJ et al J Paediatr Child Health 1992; 29(Suppl 1):S3-8 Scragg R, Mitchell E et al BMJ 1993; 307: 1312-1218 SIDS mortality rates per 1000 live births by ethnicity 1980- 1994 (Source NZHIS 2005) SIDS reduction campaign 12 Rate per 1000 live births • Campaign to reduce these risk factors came out 1991/2 • Campaign to reduce these risk factors failed Mäori 10 8 Mäori 6 Other Total 4 2 0 1994 1992 1990 1988 1986 1984 1982 1980 1 SIDS prevention Key messages didn’t reach Mäori • Inappropriate and ineffective messages for Mäori community • 1994… – Mäori SIDS prevention team funded – Spent time listening and talking to community • 1996 • Inappropriate dissemination methods – developed Mäori appropriate education / prevention • No provision of culturally acceptable alternatives esp. with bed sharing • Sites • Messages • Staff SIDS prevention Mäori SIDS prevention • 1996 • 1996 – developed Mäori appropriate – developed Mäori appropriate education / prevention – Family assistance • Workers who go to SIDS death - work with family in short and sometimes longer term. • Sites • Messages • Staff – Work with coroners and others in sector to ensure safe and appropriate interactions between agencies and families NZ meningococcal vaccine programme SIDS mortality rates per 1000 live births by ethnicity 1980-99 (Source NZHIS 2003) • My role of previous permanent advisor Māori • Sub-serotype specific Men B epidemic since 1991 • Three strands to delivery 12 10 8 6 4 2 0 1998 prov 1997 Total 1996 1994 1993 Euro/Other 1992 1991 1990 1989 1988 1987 1986 1985 1984 1983 1982 1981 1980 Maori – Under 5 years – GP based delivery – 5 – 18 (at school) – school based delivery – Young people not at school – GP based delivery • MoH role • DHBs role 2 NZ meningococcal vaccine programme • ‘General’ population programme NZ meningococcal vaccine programme • Māori advice largely unheeded until serious inequalities in coverage apparent (c. early 2005) – Some Māori ‘add ons’ • ‘communication’ strategy – Further Māori media strategy – Increase outreach services – Media, stakeholders, providers • Use of Māori providers already delivering immunisation outreach (no increase in these services) • Accompanying discourses – ‘There are problems with the data’ – ‘Māori families are ‘low and slow’ to vaccinate their children’ • General population programmes usually increase inequalities e.g. SIDS prevention • School based programme in CMDHB – Māori highest consent rate but lowest coverage Doing it right… National coverage dose 1 and 3 at 23 april 2006 by age and ethnicity • Te Whānau ā Apanui health service • 1 doctor, 2 nurses, 1 receptionist • ~ 2000 registered patients 120 100 – ~160 under 5 y olds 80 Mäori % 60 Pacific 40 Other • 92% Māori • HIGHLY deprived / low SE area • Rural – ~ 2 ½ hours by road to nearest hospital 20 • LARGE catchment area 0 6w-4y 5-17y 18-19y 6w-4y 5-17y 18-19y dose 1 dose 1 dose 1 dose 3 dose 3 dose 3 Age and dose How? • Communication – Formal at sites in community several months before programme – With patients via newsletter – Informal communication with whānau in community • Appropriate service – Careful planning of approach – Sites of delivery • 100% coverage of < 5 year olds – Dose 1 and 2 over approx three weeks – Dose 3 over four to five weeks How?? • Practice systems to foster efficient implementation • Staff • Positive reinforcement for children • They also ‘took over’ the school programme and had similar results • At all clinics • At kohanga reo • At home (planned and “drive-by’s”) kohanga reo - Māori language child care centres Hapū tribal subgroup 3 Re-learning what we know… • ‘General’ programmes do NOT reduce disparities • Programme designed for those experiencing disparities works for all – Multiple points • Consultation, communication, service delivery etc • ‘80% of $ for last 20%’ – Maybe not if programme design approp 4