CONFIDENTIAL: DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals Mary D. Naylor, PhD, RN Marian S. Ware Professor in Gerontology University of Pennsylvania School of Nursing Author Contact: 420 Guardian Drive Philadelphia, PA 19104-6096 Tele: 215-898-6088 Fax: 215-573-4225 Email: naylor@nursing.upenn.edu Acknowledgement: Paper commissioned for “Building Bridges: Making a Difference in LongTerm Care” AcademyHealth Colloquium sponsored by The Commonwealth Fund. Presented at 2007 Policy Seminar, February 14, 2007, Washington, D.C. CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals Abstract Elderly long term care (LTC) recipients who require acute care services must navigate a system characterized by gaps in care and poor “hand-offs”, often resulting in negative outcomes. This paper makes the case that health care quality among these elders may be enhanced by (1) avoiding preventable hospitalizations and (2) improving transitions to and from hospitals when such transfers are needed. Health care policy changes to prevent avoidable hospitalizations and to enhance necessary care transitions between LTC and acute care hospitals are suggested. Research priorities to inform future changes in standards of care for this population are recommended. Key Words: transitions, long term care; acute hospital care; frail elders 2 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals Introduction Long term care (LTC) encompasses a broad set of health, social, and environmental programs and services provided to older adults for a prolonged period in a range of settings including elders’ homes, assisted living facilities [ALFs], and nursing homes [NHs].[1, 2] These typically low-tech services are designed to help elders cope with physical, functional and cognitive deficits associated with multiple chronic illnesses and major disabilities, function as independently as possible and maintain a high quality of life. [1-3] Family caregivers often play a central role in decision making regarding these services.[1-3] In contrast, acute care hospitalizations are characterized by short term, high-tech medical services designed to treat acute illnesses or major injuries. [2] Family caregivers generally have limited involvement in decision making during episodes of acute hospital care.[4] The more vulnerable elderly LTC recipients often require acute hospital services. These ‘at risk’ older adults frequently move among components of the health care system that have vastly different goals and cultures with few bridges to connect them. Consequently, their transitions are frequently characterized by serious breakdowns in communication and gaps in care that have negative human and economic consequences. Building on emerging insights about the needs of frail elders who often require acute services, clinical and health services researchers have tested care innovations designed to enhance the quality of care and outcomes for this vulnerable group. Their work has highlighted effective care coordination, continuity and transitions as key to improving health outcomes and reducing healthcare costs. Available evidence suggests that two promising approaches to improving continuity of care are to increase elders’ access to selected acute and palliative care 3 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals services within the LTC sector, and to improve their “hand-offs” to and from acute care hospitals. This paper makes the case that quality among elderly LTC recipients who also require acute health care services may be enhanced by (1) avoiding preventable hospitalizations and (2) improving their transitions to and from hospitals when these transfers are needed. Policy recommendations and a research agenda to guide needed future changes in care for this population are offered. Transitions between LTC and Acute Care Hospitals Among Older Adults Frail elders’ transitions between LTC and acute care hospitals are often triggered by acute infections, adverse events such as falls, or exacerbations of chronic illnesses.[5] Patterns of use of acute hospital services by elderly LTC recipients, particularly those residing at home or in ALFs, have received limited attention. An early study conducted by Murtaugh and Litke[6] revealed that about 20% of the five million elders responding to the 1994 National Long term Care Survey received acute and post-acute services over a two year period with approximately 10% experiencing multiple hospitalizations. The few studies of acute hospital admissions directly from NHs suggest considerably greater movement among this subgroup.[7-11] In these studies, hospitalization rates between 56-83% within six months of admission to NHs were reported with multiple readmissions common among 13% to 18% of these residents.[7, 8] Problems Associated with Transitions in Care for this Population There is evidence of serious problems related to the transfer of older adults to and from acute care hospitals. Although some findings are based on studies of NH residents, the vast majority of supporting data have been generated from studies involving chronically ill elders not concurrently receiving LTC. This body of literature has identified four categories of overlapping problems that detrimentally affect the health outcomes of this population and have negative 4 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals economic consequences: poor communication; preventable declines in health status during hospitalizations; inadequate discharge planning; and serious gaps in care during transfers to and from hospitals. Poor communication. Inadequate communication between and among hospitalized elders, family members, and health care providers has been well documented.[12-15] The involvement of multiple providers in hospitals, long-term care organizations and the community (e.g., primary care provider) makes the coordination of information and decision making a major challenge. The absence of integrated management information systems and patient databases further hinders effective care transitions.[16, 17] Findings from a recent survey of 300 sequential admissions of older adults to ten sub-acute or skilled nursing facilities (SNFs) from 25 hospitals highlight problems related to the transfer of information.[16] Twenty-two percent of all transfers had no formal discharge summary and more than half of the available summaries were illegible. Unfortunately, health care providers, insurers and purchasers are reluctant to invest the resources required to develop data systems to facilitate efficient transfers of information. Negative effects of hospitalization. While hospitals are often the most appropriate site to address acute care needs, an increasing body of evidence suggests that frail elders’ health and safety may be compromised in these settings. For example, inadequate management of cognitive impairment during elders’ hospitalizations frequently triggers a cascade of adverse clinical events such as de-conditioning, falls, malnutrition and incontinence.[18-22] Consequently, cognitive impairment among hospitalized elders has been independently associated with increases in functional disability, lengths of hospital stay, hospital readmissions, and health care costs.[23, 24] 5 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals Inadequate discharge planning. Study findings reinforce that little attention is paid to helping older adults and their caregivers understand the issues they will confront immediately following hospital discharge.[25-28] Studies have consistently demonstrated that elders and their caregivers do not know essential steps in managing the elder's condition.[26, 28-30] Family members, in particular, have expressed high levels of frustration related to the absence of their “voice” in the decision making process and their lack of preparation to meet elders’ care needs following discharge.[4, 31, 32] Gaps in Care During Transfers. As noted earlier, poor communication, inadequate transfer of information and the absence of a single “point person” to assure continuity contribute to gaps in care during critical transitions. These gaps are evident in problems commonly reported during the immediate post-discharge period such as accessing essential supplies and services in a timely manner, and managing symptoms, medications and other therapies.[26, 33] When questions or concerns surface, elders and their caregivers are usually unable to contact acute care providers for guidance.[26, 28-30] As a result of these problems, the “hand-offs” of hospitalized older adults among multiple providers and across settings have been linked to acute clinical events, serious unmet needs, and poor satisfaction with care. Readmission rates among elders recently discharged from hospitals are very high, with one-quarter to one-third considered preventable.[29, 30] While most of these findings are derived from data of elders not concurrently receiving LTC services, there is no evidence to suggest that their experience is different from those receiving LTC. Indeed, the latter group may be at higher risk for negative outcomes because of overall poorer health status complicated by increased frailty and higher rates of cognitive impairment. Studies are needed to understand the impact of transitions in care among frail elders. 6 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals Barriers to Addressing Transitional Care Problems Clinical and non-clinical factors combine to pose significant barriers to addressing the problems associated with transitions between the LTC sector and acute care hospitals. Prominent among clinical barriers are: lack of providers’ knowledge, skills and resources; limited use of palliative care; and a lack of quality performance measures. Regulatory and financial issues as well as pressures from family caregivers and health care administrators are among the major non-clinical barriers. A brief description of the nature and effects of each of these factors follows. Provider Deficits. A poorly understood barrier to effective care of frail elders is that acute care providers often lack the knowledge, skills and resources needed to address LTC needs during elders’ hospital stays.[2] Findings from focus groups involving teams of acute providers highlight these issues.[34] For example, hospital providers reported that they often do not have the skills or time to implement feeding, toileting or mobility strategies to ensure that elders are adequately nourished or their functional abilities are maintained. Hospital staff’s challenges are compounded by the lack of information from LTC staff regarding successful strategies to meet elders’ unique needs. As a result, the nutritional and functional status among hospitalized frail elders is often compromised, contributing to poor and costly outcomes.[34] LTC providers face similar challenges in caring for elders prior to and following hospital discharge. Data suggest that a high proportion of transfers to acute care settings may not be necessary.[13],[35] Clinical experts in one study reported that about 40% of transfers of NH residents to either the emergency department or hospital were avoidable because these elders had health problems that could be safely cared for in the NH.[35] Reimbursement of most LTC organizations has limited the availability of registered nurses and other highly skilled 7 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals professionals. Currently, certified nursing assistants or home health aides are the primary provider of most LTC services.[2] These paraprofessionals generally lack the knowledge and skills needed to early identify and intervene on behalf of elders experiencing acute care problems.[2] High turnover rates and inadequate investment in staff’s continued education compound the problem.[2] Similar issues affect the quality of elders’ care during the immediate post-discharge period. Limited Use of Palliative Care. The unique barriers to the use of palliative care within the LTC sector are noteworthy. Many elderly LTC recipients have debilitating, life-limiting conditions for which on-site palliative care would be more appropriate than transfers to acute care hospitals. Pain and uncontrolled symptoms affect between 25% and 50% of elders living in the community and as many as 45% to 80% of NH residents.[36] Consequences include depression, decreased function and socialization, poor quality of life and increased health care utilization and costs.[36] The major foci of palliative care are effective management of pain and other distressing symptoms and enhanced continuity of care.[12, 13] Typically, paraprofessionals are not adequately prepared to identify and manage pain and other symptoms in this population.[37] Elderly LTC recipients often have limited contact with physicians or nurse practitioners, making effective palliation challenging. Additionally, nurses and physicians are reluctant to use scheduled analgesics for chronic pain, particularly in NHs, because of state and federal regulatory scrutiny related to the use of medications.[37] Multiple factors reinforce the use of medical solutions and thwart the implementation of palliative care models, even at elders’ end-of-life. Up to 40% of elders receiving LTC are transferred to the hospital in the 30 days prior to their deaths.[14, 15] Each year, 500,000 NH residents in the U.S. die in need of palliative care or with palliation delayed until the last few 8 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals days of life.[14, 15] Lack of advanced care planning, difficulty recognizing terminal status of noncancer diagnoses, poor communication regarding elders’ wishes, legal liability concerns, and, a narrowly defined Medicare Hospice benefit also hinder access to appropriate end-of-life care for these elders.[12-15, 38] Lack of Quality Performance Measures. The dearth of measures that capture effective care coordination, continuity and transitions is one of the more significant barriers to improving quality for this population. The selection of sensitive process and outcome indicators to promote effective care in these areas is a major challenge. There is limited understanding of the natural history of changes in health and quality of life among elders receiving LTC and on the contributions of both individual and organizational characteristics to these trajectories. The relationships between changes in health related quality of life, identified by leading scholars as a focal point for elders receiving LTC, to other indicators of quality such as acute hospitalization rates also are poorly understood.[1, 39-41] These data are essential to inform measure development. The National Institute of Aging has recently funded a longitudinal study to begin to address these knowledge gaps.[42] The identification of providers accountable for transitions in care across hospitals and LTC organizations also hinders quality measurement. Currently, mechanisms to ensure accountability have followed the same pattern as health care reimbursement and financing. The majority of existing standards reinforce healthcare delivery “silos” by focusing on processes and outcomes within rather than across settings. Few focus on the actual experiences of frail elders and family caregivers during transfers. Clearly, both acute and LTC providers are responsible for the care and outcomes of these elders but identifying measures that capture their shared accountability is challenging. 9 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals There is some evidence that federal quality assurance programs and accrediting bodies have begun to focus on the measurement of care transitions among elders.[3, 43-49] For example, the National Quality Forum (NQF) recently endorsed the Care Transition Measure (CTM-3), developed to assess the quality of care transitions from hospital to home from the perspective of patients or their proxies.[44, 50] Continued investment in the design and testing of robust measures of effective care coordination, continuity and transitions and facilitating their integration into national performance measurement sets must be a priority for this population. Regulatory Challenges. There are substantial regulatory barriers to assuring effective care coordination and transitions among acutely ill elders, not receiving LTC. Medicare regulations, for example, promote the delivery, monitoring and payment of acute care services within separate and distinct silos including hospitals, home health care agencies or SNFs. As noted earlier, gaps in care are common in a system that pays little attention to the continuing care needs of elders moving across these silos. Discontinuities are compounded when elders are also receiving LTC services. Within and across the acute and LTC sectors, different eligibility rules, quality monitoring systems, criteria for reimbursement and funding streams create confusion and sometimes conflicts for providers and, without question, add to the burden of family caregivers, providers and administrators. Collectively, these structural barriers make the design and implementation of rational, streamlined packages of services to meet elders’ needs very difficult. Financial Challenges. There are multiple dimensions to the financial challenges associated with effective care of LTC recipients who also need acute care services. Currently, financial incentives encourage the use of hospitals to address frail elders’ acute care needs. Acutely ill, frail elders fill empty hospital beds and also generate revenues for acute care providers. Some LTC organizations, notably NHs, benefit from increased reimbursement for the 10 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals post-care of elders in their skilled nursing units. While hospitals may not be the best site of care to treat commonly occurring acute infections or acute episodes of chronic conditions, there are few incentives for LTC organizations to offer such services. In addition to regulatory barriers, these organizations are inadequately reimbursed to support the level and quality of staffing essential to meet the needs of these acutely ill, frail elders. While few challenge the need for improved care coordination for frail elders transferring to and from hospitals, nurses, physicians and other providers are not reimbursed by for such services in the fee-for-service system. The lack of financial incentives for care coordination for this population is especially problematic given the aforementioned challenges to achieving coherent plans of care. Recent national attention on improved care coordination and pay for performance (PFP) promises to place a spotlight on existing financial barriers to improving healthcare quality and decreasing costs for chronically ill elders. The Centers for Medicare and Medicaid Services’ (CMS) care coordination initiatives and demonstration projects evaluating PFP measures (e.g., tying Medicare hospital payments to quality of care measures) are examples of such efforts.[51] Bridges to Excellence, a multi-state, multiple employer initiative, encourages advances in quality across the healthcare system through measurement, reporting and financial rewards.[52] The recently passed health coverage bill in Massachusetts outlines a PFP system in which healthcare providers must meet certain quality standards in order to receive additional Medicaid dollars.[53] As care coordination models and PFP programs develop and mature, several key features emerge as focal points. First, collaboration among all stakeholders across the system will be essential for success. Second, government programs such as Medicare and Medicaid will likely adopt and influence widespread use of proven approaches. Finally, findings from these efforts will extend quality measurement and reporting across the system, facilitate the adoption of 11 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals information technology to improve healthcare efficiency and promote the alignment of financial incentives to achieve quality and value. To date, the unique issues faced by elderly LTC recipients who require acute care services have not been a focal point of these demonstrations. Pressures from Families and Healthcare Administrators. Even when LTC staff members are prepared to address the acute care needs of elders, pressures from family members who want their loved ones to receive the “best” care may contribute to unnecessary transfers to acute care hospitals.[34] Similarly, LTC administrators, concerned about malpractice actions, may pressure staff to transfer elders to acute hospitals.[34] Lack of advanced care planning to clearly identify elders’ wishes, poor communication with families before and legal liability issues are substantive barriers to avoiding preventable hospitalizations.[34] Once hospitalized, acute care staff also may be pressured by hospital administrators to discharge these elders as quickly as possible to maximize reimbursement. Search for Solutions to Address Barriers to Care Coordination, Continuity and Transitions There are few studies of interventions designed to address the problems and barriers to effective care transitions among acutely ill, frail elders, especially among those residing at home or in ALFs. However, analyses of findings from the following related lines of inquiry suggest areas for quality improvement: efforts to fully integrate acute and LTC; transitional care innovations targeting chronically ill elders not concurrently receiving LTC; and innovative care models focused on NH residents. Results from these efforts place a spotlight on the potential benefits associated with avoiding preventable acute care hospitalizations and improving transitions between LTC and acute care hospitals. Avoiding Preventable Acute Care Hospitalizations. A number of government and provider-led initiatives have attempted to strengthen the connections between the LTC and acute 12 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals care sectors to better address the needs of frail elders. Analyses of findings from evaluations of federal programs such as the Program of All-Inclusive Care for Elders (PACE) and Social Health Maintenance Organizations [SHMOs],[2],[54-56] state efforts such as the Minnesota Senior Health Option and Wisconsin Partnership,[41, 57, 58] and provider initiatives such as those spearheaded by the National Chronic Care Consortium have informed our understanding of the unique challenges confronting frail elders and receiving care from the LTC and acute care sectors and highlighted the potential benefits of avoiding preventable acute care hospitalizations for this population.[59-63] Early identification of elders’ acute care needs and increased access to selected, evidence-based management of common conditions and palliative care services are prominent among the key strategies suggested by available data. Results from studies of the following care models designed to avoid preventable hospitalizations for NH residents or chronically ill elders not simultaneously receiving LTC reinforce the potential value of this strategy but also raise issues that warrant additional study. Evercare Model. Findings from studies of the Evercare Model reveal the impact of more intensive primary care provided to NH residents by certified nurse practitioners (NPs) in preventing avoidable transitions.[57, 58, 64] This program enrolls NH residents in a risk-based HMO, with nursing home costs covered by Medicaid or private insurance.[2] Evercare pays for all medical services incurred by residents, regardless of the site where they are delivered. Thus, there is no incentive for NHs to shift costs by hospitalizing residents. In one study of this Model, over 1,470 NH residents receiving NP services in five sites were compared with two sets of controls, a group of 831 residents in the same sites who did not enroll in Evercare and a group of 1,350 residents in NHs that did not participate in Evercare.[41, 58] In general, the active use of NPs was positively viewed by family members. The incidence of hospitalizations was twice as high 13 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals among controls compared to Evercare residents. This difference corresponded to Evercare’s use of intensive service days within NHs.[64] On average, using an NP resulted in an estimated annual savings in hospital costs of $103,000 per NP, suggesting the value of this approach in allowing cases to be managed more cost-effectively.[64] Kane and colleagues suggest that more effective use of these NPs is possible. In this study, the NPs major role was to guide NH staff to more effectively care for residents.[58] Increased direct clinical involvement by NPs in the care of elders at high risk for hospitalizations may be associated with additional improvements in outcomes for this group but this hypothesis needs to be tested. Hospital at Home. A recent report of a “hospital at home” program demonstrated the clinical feasibility and efficacy of providing acute care in an elder’s home.[65] This prospective, quasi-experimental study enrolled 455 community-dwelling older adults not currently receiving LTC who would, in the absence of such a program, be hospitalized for an acute exacerbation of pneumonia, heart failure, chronic obstructive pulmonary disease or cellulitis. At two of three study sites, approximately 70% of those offered the option chose “hospital at home” over traditional hospital care. At the third site, only 30% chose this option. The investigators hypothesize that the launch of a new disease management program, the effects of a local nursing shortage and other organizational factors affected the enrollment rate at this latter site. Enrolled patients were identified in the emergency department, discharged to home where they received a combination of nursing, physician and other services guided by a prescribed protocol. Compared to acute hospital care, this innovation achieved similar quality standards and resulted in shorter lengths of stay and reduced overall costs.[65] A higher proportion of elders were satisfied with treatment in the “hospital at home” program with statistically significant differences reported in the following four of nine domains assessed: satisfaction with their physician, comfort and 14 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals convenience of care, admission processes and the overall care experience.[66] The applicability of this approach to meeting the complex needs of acutely ill, community-based elderly LTC recipients needs to be examined. The Day Hospital. Modeled after the program offered within the British health care system, the day hospital is based in a community setting. The Collaborative Assessment and Rehabilitation for Elders (CARE) program at the University of Pennsylvania was an example of such an initiative.[67],[68] The CARE program operated as a Medicare-certified comprehensive outpatient rehabilitation facility (CORF).[69] This geriatric nurse practitioner (GNP) directed interdisciplinary program targeted frail elders at high risk for hospitalization and other poor outcomes. Older adults in this program had access to a range of health and rehabilitation services for a few days each week up through a nine week period.[69] A quasi-experimental study revealed improved function and decreased hospital use among the patients in the study group.[70] Notably, there were no differences in outcomes between cognitively intact and impaired elders, suggesting that this challenging latter group also benefited from rehabilitation services.[70] Changes in reimbursement of CORFs resulted in the closing of this program.[69, 71, 72] Larger scale evaluations of this model are needed. Palliative Care in Nursing Homes. In 1996, the Palliative Care Program of the Medical College of Wisconsin, in collaboration with Wisconsin’s Bureau of Quality Compliance and Department of Health (regulatory agencies that monitor LTC in this state) launched a project involving 87 LTC facilities designed to improve pain management practices.[37] Administrators and directors of nursing at each site were required to sign letters of commitment. The intervention included a series of four educational workshops spread over one year attended by facility staff and administrators, and completion of a facility-specific action plan. Each facility 15 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals was assessed at baseline and following completion of the intervention using 14 indicators of effective pain management developed from national standards. At baseline, 14% of facilities had met more than half of 14 indicators compared to 64 facilities post-intervention. The partnership with state regulators helped to address facilities’ regulatory concerns. Key barriers identified among the facilities that demonstrated little progress in this effort were staff turnover, lack of an on-site champion and time. The key facilitator identified among successful organizations was senior leadership commitment. Noteworthy is the fact many of these facilities have continued their relationship with the faculty of the Palliative Care Program through quarterly meetings and other palliative care projects.[37] This promising systems approach to improving and sustaining “best practices” in palliative care is worthy of replication in other LTC organizations. Improving Transitions Between LTC and Acute Care Hospitals. Transitional care services optimally bridge the gap among a diverse range of providers, services and settings by the systematic application of evidence-based interventions that promote the safe and timely transfer of individuals.[73, 74] Influenced by an understanding of common problems during “handoffs” in care, these multidimensional interventions have typically incorporated strategies to improve communication and transfer of information among elders, family caregivers, hospital and primary care providers, enhance discharge follow-up and decrease gaps in care through the use of a single, consistent provider. Among chronically ill elders transitioning from hospital to homes, findings studies of predominantly nurse-led, interdisciplinary interventions have consistently demonstrated improved quality and cost savings.[29-30, 75-77] The following are examples of such approaches to care. Care Transitions “Coaching” Intervention. A multidisciplinary team at the University of Colorado Health Sciences Center has been testing an intervention designed to encourage patients 16 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals and their family caregivers to assert a more active role during care transitions. In an earlier quasiexperimental study, patients and caregivers who received tools and support from a nurse “transitions coach” were significantly less likely to experience rehospitalizations during the six months following hospital discharge.[50] A more recent randomized clinical trial (RCT) of this “coaching” intervention tested the impact of a set of tools (e.g., personal health record) to promote cross-site communication and continuity across settings and guidance from an advanced practice nurse (APN) among community-based older adults hospitalized with common health problems in an integrated delivery system.[77] Study findings revealed that intervention patients had lower all-cause rehospitalization rates through 90 days compared to controls. Mean hospital costs were approximately $500 lower for intervention patients compared to controls at six months.[77] Rigorous testing of this approach to care with the population of acutely ill elder receiving LTC is needed. APN Transitional Care Model. Since 1989, a multidisciplinary team based at the University of Pennsylvania has been testing and refining an innovative model of care coordination delivered by APNs for high risk older adults transitioning from hospitals to home. The model incorporates state of the science interventions that focus initially on optimal monitoring and managing elders’ symptoms and subsequently on preparing elders and their family caregivers to better manage the elder’s care. In collaboration each elder’s physicians and other health team members, a master’s prepared nurse assumes primary responsibility for optimizing patient’s health during hospitalization and coordinating follow-up care. The same nurse implements this plan for a defined period of time following discharge via home visits and seven day per week telephone availability, substituting for traditional visiting nurse services. Study findings from three RCTs have consistently demonstrated the capacity of this model of 17 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals care to improve elders’ satisfaction, reduce rehospitalizations and decrease health care costs. The most recently reported multi-site RCT tested a protocol directed by APNs designed to address the health problems and risks common among elders throughout an acute episode of heart failure.[30] When compared to the control group, members of the intervention group demonstrated enhanced physical function, quality of life and satisfaction with care in the short-term and fewer total rehospitalizations through 52-weeks post-discharge resulting in a mean savings of $5,000 per elder. [30] This approach to coordinating care for high risk, chronically ill elders needs to be rigorously tested with elders receiving LTC who are transferred to and from acute care hospitals. Collectively, results from these bodies of research suggest that the following are key elements to improving care transitions: use of interdisciplinary teams guided by a single, highly skilled nurse to communicate with elders, family caregivers and providers and coordinate care; streamlined care delivery; information systems that span traditional settings; implementation of evidence-based approaches; use of quality measures and other incentives to promote accountability; and, availability of flexible funding and benefits. Policy Solutions Appreciation of the barriers to high quality care for acutely ill, elderly LTC recipients coupled with evidence from evaluations of innovative care models suggest policy solutions to improve health outcomes and reduce costs. The conceptual model described by Walter Leutz offers a framework to present policy options. Conceptualization. Recognizing the challenges imposed by the current context of care, Leutz[54, 55] conceptualized potential strategies to integrate medical and social services for persons with disabilities and chronic illnesses. He defined integration as the “search to connect the health system with other human services in order to improve outcomes” (p. 78).[55] Leutz described 18 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals three levels of possible integration: linkage, coordination and full integration. Linkage allows individuals with mild to moderate needs to be appropriately cared for by existing systems by improving transfer of information and communication between systems. Full integration applies to the small subset of high risk, typically dually eligible, frail elders and requires pooling of clinical and financial resources and the creation of new programs to meet their needs. PACE is an example of full integration. The level in the middle, coordination, focuses on individuals with progressively increasing acute care and LTC needs. While operating primarily within existing sectors, this level encourages the use of additional structures to address discontinuities and enhance coordination of care delivery and benefits. Leutz’s concept of the level coordination appears relevant to address the problems and overcome the barriers to effective transitions between acute and LTC. Key Assumptions. A number of assumptions underpin proposed policy solutions. The first is that, for the foreseeable future, the financing and delivery of acute and LTC care in the U.S. will continue to be a patchwork of public and private services and funding sources. The second is that there is adequate evidence to justify a) increasing access to selected acute care as well as palliative care services within LTC, and b) using nurse directed interdisciplinary teams, guided by evidence-based care protocols, to facilitate transitions to and from hospitals for this population. Structures and Other Incentives to Enhance Coordination of Care Delivery. The design and testing of robust quality indicators of care coordination, continuity and transitions from the perspectives of frail elders, family caregivers and providers and integration of these indicators into national performance measurement sets are essential to enhance the delivery of care 19 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals coordination. The implementation of overarching monitoring systems that focus on the quality of care elders receive across “silos” may help to mitigate structural barriers. The development and use of clinical information systems that allow hospital, LTC and primary care providers to access data related to elders’ health status and care needs and enable quality assessment and improvement activities in the areas of care transitions also are essential. Information alone, however, will be insufficient to address the care coordination challenges for this population. Effective implementation of evidence-based strategies to prevent avoidable transfers and improve cross-site care coordination will require new investments in the preparation of existing and future health professionals. Increased support is needed for educational programs that emphasize geriatrics, palliative care, interdisciplinary team care, advance care planning and care coordination. Policy-makers should work with educators to disseminate “best practices” in teaching each of these content areas to health professional schools, acute hospitals and LTC organizations nationwide. Policies that encourage the recruitment, staff development and retention of paraprofessionals also are needed. Particular attention should be paid to skill development so these staff can better address the needs of elders confronting common acute health problems or coping with chronic pain and other common symptoms. Structures and Other Incentives to Improving Coordination of Benefits. Eliminating regulatory barriers and creating financial incentives are prominent among the major policy implications associated with increasing access to evidence-based approaches to care for this population. Increased flexibility in funding with incentives to link funding streams and minimize cost shifting could improve alignment of financial incentives with elders’ service needs. Financial and other incentives are needed to support the level and quality of staff within LTC organizations essential to manage common acute conditions and offer palliative care. 20 CONFIDENTIAL DO NOT CITE OR QUOTE Transitions of Elders Between Long-Term Care and Hospitals Collaboration among relevant stakeholders such as state and federal regulatory bodies and providers organizations in the design and implementation of these models should be encouraged. Adequate reimbursement is necessary to support adoption of evidence-based transitional care across settings and sectors. Finally, modification of the Medicare Hospice benefit to decrease constraints on optimal use of available services by this population is recommended. Conclusions Available evidence suggests care of the rapidly growing population of frail elders in this country requiring acute and LTC services could be enhanced by focusing on care coordination, continuity and transitions. Two promising strategies to improving quality in these areas are to avoid preventable acute care hospitalizations and improve the transitions between LTC and acute hospitals when these transfers are needed. Health care leaders and policy makers need to recognize both the challenges to optimizing quality and cost outcomes for this population and the promise of evidence-based models of care. Unquestionably, investment in rigorous studies is needed to understand the impact of transitions on frail elders, determine the most effective and efficient models to enhance care coordination, continuity and transitions, and identify the incentives to foster adoption of evidence-based models. While awaiting these findings, we are fortunate that clinical and health services researchers have provided a blueprint for immediate action. 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