WHAT OUR PATIENTS SAY Patient Experience Annual Report 2013/2014 1 Contents Foreword 1. Introduction 2. Sharing their experiences 3. What we measure 4. Innovation 5. Complaints and compliments management 6. Feedback results 7 6.1 Paramedic Emergency service 6.2 Patient transport service 6.3 Urgent care service 6.4 Feedback from community groups Learning from experiences 7.1 Action Plans 7.2 How we learn 8 Summary and Future Focus 2 Foreword by Director of Quality I am delighted to present the Trust’s annual patient experience report for 2013/14. We are committed to gathering and considering all the feedback we receive with a view to providing high quality services which meet the needs of our patients. This report seeks to present the feedback we have received from patients and the wider public about their care and our services and identify key themes. Importantly, the report also focuses on how we learn from these experiences and improve our services as a result. The report is presented to the Board of Directors as well as being shared internally and externally with all stakeholders, and published on our website. Thank you for taking the time to read the report. Sarah Faulkner Contact details: Sarah Smith, Assistant Director Corporate Communications sarah.smith@nwas.nhs.uk Fiona Buckley, Head of Risk and Safety fiona.buckley@nwas.nhs.uk 3 1. Introduction The experiences of our patients, their carers’ and their families are gathered from surveys, focus groups, community engagement, complaints, concerns and compliments. This enables us to create a full picture of our patients’ views and to understand the top issues, key themes and identify areas of improvement. The report is separated into the services we provided: Paramedic Emergency Services (PES) – patients calling 999 who received a face to face assessment response Patient Transport Services (PTS) – patients who use our non-emergency service to take them to hospital appointments or for discharge after a hospital stay Urgent Care – patients calling 999 who are referred to our urgent care desk for further assessment and those patients who contact the NHS 111 service. There is also a section on the work we have undertaken with diverse groups in the communities to understand service experiences which spans across all service areas. A key section of the document is how we are learning from experiences which summaries the actions and improvements we have identified and implemented as a result. Finally, the report outlines the Trust’s future plans for gathering patient experience. 2. Sharing their experiences Feedback has been received via: 3661 surveys completed by patients calling 999, using patient transport services and referred to our urgent care desk 2080 complaints received across the Paramedic Emergency Service, Patient Transport Service and North West 111 Service 1082 compliments received 126 specialist patients attended focus groups 15 focus groups with community groups 12 public engagement events where feedback was collated This demonstrates the level of engagement, both proactive and reactive, the Trust undertakes and we always ensure the activities are representative across the large geographical area we cover. In total we engaged with over 7000 patients and members of the public to understand their views and experiences, as well as broader feedback via social media, website enquiries and public roadshows. 4 3. What we measure We set targets for the number of patients we wanted to receive feedback from, as part of our survey programme, as well as ensuring this was representative across all service areas. The table below summarises the different approaches in comparison to the previous year. Overall there is a significant increase in the number of surveys issued and completed. Patient Experience Programmes COMPARISON DASHBOARD Service Area PTS Outpatients 2013/14 Survey - Postal PTS 1%, PTS ALA & Cumbria Survey Channel Face to Face 2011/12 2012/13 581 2013/14 Survey - Postal Postal & Discharge Vehicles PTS Regular / Specialist User 2013/14 Survey Focus Groups & Postal PTS Observations Paramedic Emergency Service - PES 2013/14 Survey - Postal PES ALO, PRFs & PES Telephone OVERALL 467 2.2% 568 37 67 Postal Face to Face 101 Face to Face 1545 37 67 95 137 81.1% 44.2% 568 1572 67 72 67 72 137 95 31 Postal Silent 95 137 203 87 203 87 259 236 57.1% 9.9% 137 126 87 52 87 52 862 Telephone 199 236 52 236 5 130.8% 120 1023 52 120 120 1028 1227 1215 1215 3911 1.0% 7.5% 8.0% 40.2% 449.6% 1061 120 Postal TOTALS 276.8% 236 Postal Telephone Overall Movement 27 259 Urgent Care Desk Service 2013/14 Survey - Postal 2012/13 2013/14 Telephone 581 PTS Discharge Surveys 467 101 Postal Overall Movement 856.7% 321.9% The Trust uses a number of sources to establish the questions and topics on which to seek feedback; these include key themes from previous surveys, the Kings Fund’s published research “What Matters to Patients”, complaint themes and service improvement needs. Topics include Friends and Family Test (FFT) Overall Satisfaction Communication and Information Dignity and respect Care and compassion Both quantitative and qualitative data is collected and analysed across these themes. 5 Focus groups and community engagement sessions however have a much more fluid approach, with users and members of the public raising issues on any topics they wish to. The table compares three of the survey questions with last year’s results. Although this shows a decrease in satisfaction, they are still relatively high levels. There was a substantial increase in the number of surveys undertaken in 2013/14 and some variations in methods which give a more representative position of satisfaction with services. Also the changes in the patient transport service contract (and therefore patient expectations) may also be reflected in these results. 2013/14 Patient Experience Programme Survey Channels Overall Care - Rated Ambulance Service 8, 9 or 10 out of 10 (Percentage) (Postal/Telephone) SATISFACTION RESULTS PTS Outpatients Postal (1572) PTS Discharge Postal & Discharge Vehicles (72) PTS Regular User Specialist (126) PES Surveys ALO's/PRFs, Postal & Telephone (1061) Urgent Care Desk Service Postal (1028) Recommendation to Family or Friend (FFT) Cared for appropriately with Dignity, Compassion and Respect (Percentage) 2012/13 2013/14 2012/13 (Scored 8,9 or 10/10) 2013/14 (Extremely likely/Likely) 2012/13 (Strongly Agree / Agree) 2013/14 (Strongly Agree / Agree) 89.6% 89.7% 89.4% 93.0% 97.4% 95.7% 92.3% 88.7% 92.3% 94.5% 90.8% 94.4% 92.4% 76.2% 93.4% 84.9% 99.2% 96.0% 96.2% 95.0% 97.4% 95.9% 99.1% 97.1% 89.2% 76.4% 89.2% 85.9% 92.5% 88.2% In terms of measuring complaints, each service line’s Senior Management Team is updated on a monthly basis on the complaints received for their area along with identified trends. Trust wide complaints data is reported to the Clinical Governance Management Group (bi-monthly) and to the Quality Committee and Board of Directors (every six months) along with assurance reporting on the process for complaint handling. 4. Innovation The Trust has accessed CQUIN (in full) monies to support some of the innovative work in patient experience including development of the board games, public education and behaviour change projects, improvements to mental health services, patient stories and testing out different methods to gain feedback, including the family and friends test. Friends and Family Test In anticipation of the Friends and Family Test question being introduced to ambulance trusts by the end of March 2015, the Trust has actively tested the question through a number of routes: On all its surveys in 2013/14 Using postcards on vehicles Operating two Pathfinder projects on behalf of NHS England and Commissioners to test out methodologies for the FFT to inform future guidance on this important test More about the FFT is outlined in the Future Focus section. The introduction of Datix web has allowed for the development of more detailed reporting of complaints, focussing on the Trust’s ability to understand the outcome of investigations in more detail in order to identify lessons to be learned. 6 5. Complaints and Compliments The Trust has a well-established complaints policy and appropriate processes in place to both answer complaints as well as identifying areas where lessons can be learnt. The responsibility for managing all such enquires sits with the Making Experiences Count (MEC) Team who act as a point of contact for patients, relatives, carers, other NHS providers and members of the general public to share their opinions, thoughts and concerns on their experiences of the service. All enquirers have an assigned point of contact in the MEC Team who is responsible for ensuring the investigation is appropriately completed and maintaining contact. All complaints are risk assessed to guide the level of investigation and management approval. In light of one of the recommendations arising from the Public Inquiry into Mid Staffordshire NHS Foundation Trust, NWAS amended how queries being received are categorised. The previous Patient Advice and Liaison Service (PALS) function was removed with all enquiries being recorded as complaints or general enquiries. During the year, nine complaints were referred to the Parliamentary and Health Service Ombudsman as the complainant remained dissatisfied with the explanation offered by the Trust. The Ombudsman did not uphold any of the complaints against the Trust. Two minor learning points have been identified which have been addressed. During the year ending March 2014, the Trust received 2080 complaints. The table below details where the complaints were received each month: Apr 2013 May 2013 Jun 2013 Jul 2013 Aug 2013 Sep 2013 Oct 2013 Nov 2013 Dec 2013 Jan 2014 Feb 2014 Mar 2014 Total 72 47 49 68 47 69 74 62 51 60 86 79 764 90 65 60 63 62 62 62 68 51 66 107 97 853 30 33 21 31 25 29 43 27 31 35 32 37 374 Trust Wide 0 1 0 0 0 0 0 0 0 0 0 0 1 111 Service Call Centres 0 0 0 0 0 0 0 9 21 26 19 13 88 Total 192 146 130 162 134 160 179 166 154 187 244 226 2080 Cumbria and Lancashire (CAL) Cheshire and Merseyside (CAM) Greater Manchester (GM) As can be seen, with NWAS taking on the responsibility for the North West 111 provision from the end of October 2013, those complaint numbers are also included. 7 By combining the previously reported separate number of complaints and PALS received, it is clear that the overall number of queries decreased for the second year running though the overall trend over six years has slightly increased. In comparison to the combined data for year ending March 2013, there was a 24% decrease in complaints reported for year ending March 2014. (NOTE: Some queries previously categorised as PALS, are now classed as general enquires and therefore are not shown in these figures.) 3500 3000 2500 2000 Complaints / PALS recevied 1500 1000 500 0 2008/09 2009/10 2010/11 2011/12 2012/13 2013/14 Upon receipt all complaints are risk scored using a 1-5 matrix. This is in line with the consequence section of the Trust’s Risk Management Policy. The risk score can be amended as the investigation processes. The chart below details the risk score of the complaints received in year by area. The disparity between the overall total for Cumbria & Lancashire / Cheshire and Merseyside and Greater Manchester is related to the provision of PTS Services as the Trust currently does not provide this service for Greater Manchester. Minimum Minor Moderate Major Serious Total CAL 220 406 102 36 0 764 CAM 225 492 121 15 0 853 GM 53 177 110 31 3 374 Trust Wide 1 0 0 0 0 1 111 Service Call Centres 48 36 3 1 0 88 Total 547 1111 336 83 3 2080 Upon receipt, all complaints are categorised by a primary category, though there may be multiple strands to one complaint. The figure below details the reason for complaints: 8 12 5 Emergency Response 221 Staff Conduct 493 Communication and Information Navigation Driving Standards End Of Life Care PTS Transport 282 791 Care and Treatment Damage or loss to property 120 135 Safeguarding 19 2 The Trust also closed 2818 complaints and PALS records in the year, of which 434 were upheld or partly upheld. Details of reasons why complaints were upheld is detailed in Section 6. Alongside complaints and queries, the Trust also receives compliments which are detailed below. Staff have been commended for the care, kindness, being respectful, helpful, attentive, calm, friendly and professional. There were thanks for attending to dying patients, saving lives, helping with births (both over the phone and face to face), making scary situation better and for caring for the families of patients during often traumatic situations. Thanks have also been received for multiple occasions of care and very long journeys – particularly on PTS. Apr 2013 May 2013 Jun 2013 Jul 2013 Aug 2013 Sep 2013 Oct 2013 Nov 2013 Dec 2013 Jan 2014 Feb 2014 Mar 2014 Total Cheshire 9 5 6 18 20 6 14 13 7 16 11 10 135 Cumbria 18 15 18 22 18 9 23 20 12 8 13 5 181 Greater Manchester 18 14 19 20 13 14 15 13 16 21 25 17 205 Lancashire 32 23 27 30 26 20 31 26 27 35 36 29 342 Mersey 18 19 11 21 18 11 17 16 18 26 24 16 215 111 Service Call Centres 0 0 0 0 0 0 0 0 0 3 1 0 4 Total 95 76 81 111 95 60 100 88 80 109 110 77 1082 This amount of feedback gives us a comprehensive assessment of the quality of care our patients feel they are receiving. 6. Feedback Results 9 6.1 Paramedic Emergency Service (PES) Survey Analysis and Complaints Review 2013/2014 A survey is undertaken with members of the public following their need to contact our Paramedic Emergency Service either through telephoning ‘999’, or their GP contacting our Service, or contact made with the ‘111’ service and transferred to 999. Only patients who have received a response by either a Rapid Response Vehicle or Ambulance are contacted for this particular survey. Surveys have been previously undertaken by visiting a number of hospitals across the region and surveying suitable patients face to face that have attended Emergency Departments by ambulance. Whilst this method produces valuable feedback in terms of qualitative data, it is less representative in terms of the number and type of patient accessing the 999 service. The Trust was keen to increase the number of surveys undertaken in 2013/14 and two different methods have been trialled to obtain feedback from over 1000 patients who have used the service. These included: Ambulance Liaison Officers (ALOs) The primary role of the ALO is predominantly to ensure the smooth handover of patients and to work together with hospital colleagues to minimise any delays. They also had difficulties in identifying suitable patients during the limited time that they spent in individual Emergency Departments. The ALO’s were asked to hand out the surveys to patients within Emergency Departments– the return rate for surveys handed out by the Officers was low, due to sufficient time alongside their other commitments to identify suitable patients. Postal Surveys Patients were initially contacted by letter to obtain their consent to send a further postal survey within the following two weeks, unless they opted out by either telephoning or returning a tear off slip to a freepost address. We also offered patients the opportunity to participate in the survey over the telephone. Both postal and telephone methods produced good results. This method remains the most successful method to date in obtaining feedback from a more number of patients we treat and care for throughout the North West. 10 A total of 1061 patients were surveyed by 31 March 2014. The Friends and Family Test (FFT) Question is a national requirement that allows patients the opportunity to provide feedback on the care that they have received in ‘real time’. Current guidance for eligible patients is that the question is asked in real time or within 48 hours of receiving the care. Since April 2013, it has been mandatory all inpatient hospital wards and Emergency Departments to ask their patients this question and this is set to be extended across all NHS services in England, including ambulance services, mental health services, community nursing and outpatient appointments, by the end of March 2015. (Number in title reflects survey question numbers) In readiness for this NWAS, as part of the 2013/14 Patient Experience programme, this FFT Question forms the opening for all of our Patient Experience Surveys. These results are also supported with comments such as: I would recommend them to anyone. It took 2 hours for the ambulance to turn up. They were first class. In addition to the above question, patients were also asked a series of questions to obtain feedback on their experience relating to dignity, care, compassion, reassurance, making the emergency call, and communication. The themes are based on the Kings Fund What Matters to Patients research. They were fantastic. They were brilliant, they made me laugh, they brought gas and air and gave me morphine, and I think they even had the helicopter on standby as the crew member in the back said to his mate to cancel it. I can't give them enough praise - it was like time did not matter - I felt like I was the only person in the world that mattered to them. 11 12 Due to the serious nature of my mum’s condition, the crew treated my mum kind and caring in a difficult situation as my mum was particularly uncomfortable, they transported her safely and with care and compassion. It was such a life saver to know that I could telephone your service and someone would come. The Paramedic Emergency Service received a total of 1002 complaints in this reporting year. The reasons for complaining are detailed below. Complaints are received through letters, telephone and increasing via e-mail and through the Talk to Us section of the website. The overall number of complaints received remains very low, in comparison to the level of activity as the Trust received over 1.1m calls for assistance. This means that 0.09% of 999 calls received resulted in a complaint. Despite this the Trust takes complaints very seriously and uses them as an opportunity to understand what could be improved. The charts below detail when the complaints were received by area and the reasons for complaints against the Paramedic Emergency Service: 45 40 35 30 25 CAL 20 CAM 15 GM 10 5 0 Apr 2013 May 2013 Jun 2013 Jul 2013 Aug 2013 Sep 2013 Oct 2013 Nov 2013 Dec 2013 Jan 2014 Feb 2014 Mar 2014 13 7 4 145 Emergency Response 2 Staff Conduct Communication and Information 104 491 17 Navigation Driving Standards End Of Life Care 53 Care and Treatment Damage or loss to property 179 Safeguarding Themes from Surveys and Complaints Service users were asked what three factors were most important to them when telephoning for an emergency ambulance. There are a number of themes highlighted in the feedback: A fast response is one of the most important factors for our patients. Not only is it one of the most common factors cited in the top three, to the individual making the emergency call it also impacts on the satisfaction scores provided. However the feedback does show that there is a need to raise awareness with the public as to what constitutes an emergency and what requires an immediate response. For example, there are a number of comments about the time elderly patients who fall sometimes have to wait for an ambulance and how age should be taken into account that although the situation can be very distressing, it may not necessarily be an emergency situation. Where low levels of satisfaction have been scored, this is predominantly followed by feedback that an immediate response was not forthcoming. The importance of a timely response was reflected in complaints made against the Trust, for year ending March 2014. Complaints regarding emergency response time represent 49% (n=491) of all PES complaints received in year and is the second most common reason for initiating a complaint against the Trust. The chart below details when the complaints were received and historically, the months of January and February receive more complaints due to the pressures in the winter months. 1. Prompt response 2. Whether you feel as though everything possible was done? 3. CPR Advice 14 Emergency Response Complaints recevied by month 60 50 40 30 20 10 0 Apr 2013 May 2013 Jun Jul 2013 Aug 2013 2013 Sep 2013 Oct 2013 Nov 2013 Dec 2013 Jan 2014 Feb 2014 Mar 2014 Overall the Cheshire and Merseyside area received more emergency response complaints than the other areas. Why did it take over 2 hours to respond to my elderly father who was left lying outside getting cold and wet? There were 2 complaints risk assessed as Serious (consequence score 5). Both were in the Greater Manchester area and both involved patients who subsequently died. Greater Manchester also had the highest number of identified major (consequence score 4) complaints (n=11). These complaints are defined as having significant delays resulting in non-permanent harm to the patient involved. Minimum Minor Moderate Major Serious Total CAL 8 75 51 6 0 140 CAM 9 99 75 6 0 189 GM 5 76 69 11 2 163 111 Service Call Centres 0 1 0 0 0 1 Total 22 251 195 23 2 493 Emergency response complaints include concerns about the primary response, ambulance back up following the attendance of a solo responder on a car, transfers between hospitals and Healthcare 15 Professional booking delays. As can be seen from table above, most complaints were defined as minor i.e. causing distress rather than harm. Of the 456 emergency response queries closed within the reporting year, 94 were either upheld or partially upheld. The most common reason for upholding emergency response time complaints was that the response did not meet the caller’s expectation. Errors is call handling, dispatch, call coding as well as staff attitude were identified for a small number of complaints. The call taker advised that because they were so busy there may be possible delays but said that she would stay on the phone with me. Good communication is vital – this can be in the first instance between the call taker and the person making the emergency call but also between the ambulance staff and the patient/patient’s family. Feedback showed that when the call taker provided the patient with information such as whether the service was particularly busy at that time or where there may be delays then this helped to manage patient expectations surrounding response times, this also related to feedback from relatives or carers who were also present and received information and reassurance themselves. Being treated with dignity, respect, kindness and compassion is an aspect of care that is very important to our patients, 97.08 % of patients surveyed either agreed or strongly agreed that they were treated in this way. The two paramedics who cared for my father were wonderful. There kindness, professional command of the situation, their genuine compassion was so reassuring and comforting to his family and to my father. Staff conduct queries were the second most common reason for PES complaints this reporting year and represented 17.9% (n=179) of PES complaints received. The staff conduct category encompasses complaints about attitude, behaviour and comments and relates to staff both in the Emergency Operations Centre as well as on the road. The chart below when these complaints were received detailing October and March as the highest reporting months. Staff Conduct complaints recevied by month 30 25 20 15 10 5 0 Apr 2013 May 2013 Jun Jul 2013 Aug 2013 2013 Sep 2013 Oct 2013 Nov 2013 Dec 2013 Jan 2014 Feb 2014 Mar 2014 16 Complaints about staff attitude were fairly evenly distributed across each of the three areas with Greater Manchester having the most complaints and the most serious complaint. Staff conduct complaints assessed at being either major or serious are those where staff have displayed behaviour that would warrant either general or gross misconduct. Minimum Minor Complainant felt that the attending crew were dismissive of the patient’s family; lacked empathy, respect and were rude. This added to the stress of the situation. Moderate Major Serious Total CAL 14 22 14 1 0 51 CAM 12 40 10 1 0 63 GM 13 40 9 2 1 65 Total 39 102 33 4 1 179 The Trust also closed 302 staff conduct or attitude queries in the year, 32 were upheld. These were mainly where it was found that the staff’s attitude did not reach the standard expected by the Trust. Other findings included inappropriate staff comments, inappropriate staff behaviour and one case of intimidation. Patients were also asked to provide feedback on whether they were involved with decisions about their care and treatment options. Although the overall score for this is lower than other responses, 86.42% agreeing or strongly agreeing, there are a number of reasons for this. Patients seem unsure of what we are asking. Patients have a lot of confidence in the paramedic crews and put their trust in the decisions that they make, they don’t always feel as though they need to be involved in the decision making process as the paramedic has the knowledge to make the best choices for them. Also, the emergency situation or the medical condition of the patient may mean that it is not appropriate for the patient to be involved with decisions and choices have to be made on their behalf. I didn't want to go to hospital and once I was stabilised they spoke to the A&E doctor and then respected my wishes to let me stay at home. Care and Treatment complaints represented 14.5% (n=145) of PES complaints received in year. Receipt of these complaints varied throughout the year with more being received in July and November rather than other months. Given the higher volumes in activity over the winter months, there would be an expected rise in complaints in February and March. Why did the ambulance crew make the patient walk to the ambulance when he has poor eyesight and is so unsteady on his feet? During the transfer, he fell sustaining an injury to his knee. The patient was later diagnosed as having had a stroke 17 Care and Treatment complaints recevied by month 25 20 15 10 5 0 Apr 2013 May 2013 Jun Jul 2013 Aug 2013 2013 Sep 2013 Oct 2013 Nov 2013 Dec 2013 Jan 2014 Feb 2014 Mar 2014 Both Cumbria and Lancashire and Greater Manchester had more major level complaints than Cheshire and Merseyside with slightly lower overall numbers. Some of the issues raised in the major category have included patients falling in the crew’s care, patient sustaining injury in the crew’s care, inadequate assessment of presenting injuries, poor dynamic risk assessment leading to poor manual handling techniques undertaken and lack of immobilisation. Minimum Minor Moderate Major Total CAL 2 18 11 15 46 CAM 1 18 18 4 41 GM 2 22 19 15 58 Total 5 58 48 34 145 198 care and treatment complaints were also closed in the year, with 48 of them either upheld or partly upheld. The reasons for upholding these complaints included inadequate assessment and treatment, inappropriately leaving the patient at home, taking patients to an inappropriate destination (e.g. Urgent Care Centre rather than Emergency Department), failure to employ appropriate manual handling techniques and standard of completion of paperwork. The Paramedic Emergency Service also received a further 187 complaints that were about the following areas: 18 120 100 80 60 40 20 0 Communication and Information Navigation Driving Standards Our neighbour is a frequent caller of the ambulance service, however the attending crews often park inappropriately causing disturbance. Can this please be addressed? End Of Life Care Damage or loss Safeguarding to property As can be seen from the chart above, the most common reason for other complaints is driving standards (n=104). These complaints vary from concerns about how vehicles are being driven, where they are parked and the use of lights and sirens. Communication and information complaints (n=55) included concerns about information passed to and from the Emergency Operations Centre, information being passed between healthcare providers, patients requesting attendance to a particular hospital and not the nearest Emergency Department, difficulties in locating patients and Information for access to the key code length of time it took to pass a call from one was given to the 999 operator – why ambulance service to another. wasn’t this passed to the crew? The There were 17 navigation complaints which included crews attending incorrect addresses, difficulties in finding specific addresses and addresses which can be confused (i.e. different flats in communal living areas). patient had to crawl to the front door to let the crew in. The 7 damage / loss of property complaints varied from personal items to damaged doorways, walls and furniture in homes. Both End of Life care complaints related to the transport provision and the one safeguarding complaint concerned a previous safeguarding referral completed by ambulance staff. Of the 163 other complaints closed in this year, 21 were upheld for a variety of reasons including misuse of lights and sirens, poor driving standards, dispatcher error, delays with inter-hospital transfer, sub-standard driving skills, inappropriate staff comments and attitude. 19 Key Findings High levels of overall satisfaction are reported Qualitative feedback suggests that some patients expect an immediate response when calling 999 regardless of whether their condition is immediately life threatening. Low levels of understanding of the responsibilities and distance an ambulance can cover within one shift. Low levels of awareness of the role of Community First Responder. Patients who have fallen and cannot mobilise have no alternative but to ring 999, frequently they are uninjured and just need assistance. Some patients have reported waiting a long time for an ambulance response and many are elderly. The overall number of complaints received by the Trust has reduced this year in comparison to last year (taking the combined figure of complaints and PALS for 2012/13). Complaints arising from the work of the Paramedic Emergency Service remains very low in comparison to the number of requests for assistance Emergency Response time remains the most common reason for contacting the Trust. In most cases, patients were attended to by the first available vehicle though this did not meet the patient's expectation The Trust upheld 10.4% of all the PES complaints and PALS enquires closed in the year They are very good. Sometimes when my husband is on the floor we have to wait a long time for the ambulance to arrive, although we understand why. 6.2 A Community responder arrived first and he didn't give me anything for the pain, he didn't help me he just put something on my finger. Crew came from Cheadle to Macclesfield despite an ambulance station being very near. This took about 35 - 45 minutes (blues and twos) - too long. Patient Transport Service (PTS) Survey Analysis and Complaints Review 2013/2014 The North West Ambulance Service NHS Trust provides PTS in Cheshire, Mersey, Lancashire and Cumbria areas. As part of the current contract we aim to obtain feedback from a minimum of 1% of patients who have used the Service. The Patient Transport Service (PTS) Survey is undertaken with patients who have used our PTS to attend outpatient or hospital appointments throughout the North West area. 20 During previous patient experience programmes Surveys have been undertaken by visiting a number of hospitals across the region and surveying suitable patients that have attended Outpatient appointments by ambulance. Whilst this method produces valuable feedback in terms of qualitative data, it is less representative in terms of the number of patients the Trust provides services to. During the 2013/2014 Patient Experience programme, the team have trialled two new methods to obtain feedback from patients who have used the service. These included: Ambulance Liaison Assistants (ALAs) ALAs are based in hospital out-patient departments. The ALA’s were asked to hand out the surveys to patients within Outpatient Departments – the return rate for surveys handed out by the Assistants was very positive, with a total of 470 surveys being returned completed by 31 March 2014. Postal Surveys At the point of booking transport patients were informed that they may be contacted by the Trust to obtain there feedback on the service they had received. A random selection of patient names and addresses was provided to the team by Health Informatics and these patients were sent a letter and survey, along with a Freepost envelope to use to return the completed survey. A total of 1120 completed postal surveys have been returned. At 31 March 2014, in total 1572 surveys were completed by patients using PTS. 21 The Friends and Family Test (FFT) Question is a national requirement that allows patients the opportunity to provide feedback on the care that they have received in ‘real time’. Current guidance for eligible patients is that the question is asked in real time or within 48 hours of receiving the care. Since April 2013, it has been mandatory for all inpatient hospital wards and Emergency Departments to ask their patients this question and this is set to be extended across all NHS services in England, including ambulance services, mental health services, community nursing and outpatient appointments, by the end of March 2015. In readiness for this NWAS, as part of the 2013/14 Patient Experience programme, this FFT Question forms the opening for all of our Patient Experience Surveys. These results are also supported with comments such as: First Appointment told to be ready 1 hour before. Further apps. 1 3/4 Hours to 2 Hours to pick up before appointment. Arrived for an afternoon appointment 1 ½ hours early. All times Volunteer Drivers. Always been treated with care and respect. Some mornings I need more care than others and it's always there for me. In addition to the above question, patients were also asked a series of questions to obtain feedback on their experience relating to dignity, care, compassion, reassurance, booking ambulances, the assessment process and communication. All your staff treated me in a friendly and courteous manner and made the journey interesting. I even had a chance to reacquaint with one of your civilian drivers who was an old school mate last seen when we finished school in 1970. 22 The Trust received 982 complaints regarding the Patient Transport Service in this reporting year. The number of complaints received remains very low in comparison to the level of activity undertaken as 0.09% of all journeys result in a complaint. A small number of residual complaints were received regarding patients in the Greater Manchester area although NWAS no longer provides this service. As can be seen, the start of the new PTS contract in April 2013 did give rise to a significant number of complaints. Lancashire received most complaints over the year (n=320) however this county has the highest level of activity. Complaints represented 0.07% of all Lancashire journeys. 50 45 40 35 Greater Manchester 30 Lancashire 25 Mersey 20 Cheshire 15 Cumbria 10 5 0 Apr May Jun Jul Aug Sep Oct Nov Dec Jan Feb Mar 2013 2013 2013 2013 2013 2013 2013 2013 2013 2014 2014 2014 Themes from Surveys and Complaints As can be seen from the chart below, it is clear that the overwhelming number of complaints are related to transport issues (n=790 or 81%). This chapter will therefore concentrate on those complaints. The table below details the complaints received by area and risk score. As can be seen there are 4 complaints that were deemed to be major; these included one major patient injury, a lack of 23 transport leading to a loss of appointment and therefore delayed treatment which the complainant felt impacted on the long term care of the patient, and two complaints regarding sub-standard driving for Voluntary Car Service (VCS). These reach the major threshold as the standard for VCS would be lower than for others aspects of the service. The 12 moderate complaints included long delays, repeated transport issues, transport refused or wrong transport sent causing loss of appointment. It is clear however that most of the complaints are of a minor nature with 97.9% being score as minimum or minor. Minimum Minor Moderate Major Total Greater Manchester 1 6 3 1 11 Lancashire 77 168 3 2 250 Mersey 62 118 2 0 182 Cheshire 101 139 2 0 242 Cumbria 46 57 2 1 106 Total 287 488 12 4 791 Service users were asked whether when making a booking were they taken through an assessment process, 83.12% of patients agreed that they were taken through the assessment process, with 82.36% of patients confirming that they understood why they were asked these questions. 24 Patients were asked whether they were offered the option of the new booking reminder service, this service was introduced as part of the new contact in 2013. Disappointingly only 20.95% of patients were offered this service. Despite patients not being offered the reminder service, reassuringly 91% of patients surveyed confirmed that they are informed of a time to be ready when travelling with the PTS. However, when analysing the qualitative feedback the actual information varies quite considerably. With comments such as: I’m always ready 1 ½ to 2 hours before & Being ready to be picked up at 8.30am for an appointment at 11:15 am is ridiculous, or On several occasions the time to be ready and the time picked up, there was quite a gap in time. Being given a time would have helped instead of being ready by 8 am and just sitting waiting. 91% of patients surveyed confirmed that their call into PTS control was handled politely and respectfully. 25 Generally patients either strongly agree or agree that they are satisfied with the overall care provided (96%), however there are still concerns that patients feel they are waiting too long prior to the transport arriving and after their appointment waiting to go home. The Patient Transport Service has quality standards to meet for collection times, however patients feel that these waiting times are too long and most patients are not aware of what the quality standards are. Patients would benefit from additional information prior to the journey. On the homeward journey you are kept waiting a long time. No information as to when to expect ambulance. I gave a score of 10 - as I am well looked after from being picked up from my door till I returned home. They are all a great bunch of people who work on the transport. They treat me with respect and have a lot of patience. Well done to all of them! 26 A 10 would be appropriate but sometimes I have to wait until the vehicle arrives almost at my appointment time and the waiting to go home and not knowing when the ambulance will arrive, makes me anxious Waiting for transport, either to or from appointments, is often cited in complaints to the Trust. Complaints have varied though the most common reasons have been: Vehicle not arriving at home destination to take the patient in Vehicle arrive late at home destination to take the patient in Transport not suitable for the patient’s condition Vehicle did not arrive at the clinical destination to take the patient home Vehicle arrived late at the clinical destination to take the patient home Planning error in PTS control One other significant issue, raised under the PTS Transport category, was issues relating to the introduction of the eligibility criteria to decide whether patients could have transport or not. The criteria was set by the Trust’s Commissioners and lead to transport being refused to more patients where it was deemed that they were able to arrange their own transport. There were 192 other complaints as detailed in the table below. Staff Conduct Communica tion and Information Navigation Driving Standards Care and Treatment Damage or loss to property Total Greater Manchester 0 0 0 1 3 1 5 Lancashire 39 5 2 12 10 2 70 Mersey 14 2 0 4 14 0 34 Cheshire 21 4 0 9 12 2 48 Cumbria 18 3 0 5 9 0 35 Total 92 14 2 31 48 5 192 27 Care and Treatment complaints have included patient injuries where patients have being involved in minor traffic collisions, sustained skin tears, patients being walked to and from the vehicle when they should be in a chair, not carrying patient up steps when required and patients not being appropriately dressed for discharge. The Trust also closed 932 complaints and queries within the year, of which 206 (22.1%) were either upheld or partly upheld. Reasons for upholding complaints have included planning errors, poor staff attitude, comments or behaviour, inappropriate manual handling techniques, sub-standard driving skills, insufficient information passed to patients, late transport and incorrect eligibility criteria outcome. Patient reported that she asked the ambulance crew to help her but she states they were extremely rude, unhelpful and made unnecessary comments which upset her. Further transport had to be arranged. The patient reported this was totally different with a helpful crew. Key Findings High levels of satisfaction with the Friends and Family Test question. Low levels of patients received booking reminder service option High levels of satisfaction when patients are liaising with PTS control High levels of satisfaction and patients feeling reassured when travelling with operational staff on ambulances Low levels of awareness with standards and waiting times Level levels of awareness of the PTS Charter and Information leaflets Patients comments suggest that some taxi’s operating on behalf of NWAS do not provide a good service. The PTS Service continues to have a very low rate for complaints against the service. The timeliness of attendance to patients both for journeys into and out of hospital is the most common reason for complaining. 22.1% of complaints closed in year were upheld or partly upheld. Am happy but it should be less time waiting to return home I had a taxi last time but I was not happy about it, with one person wheelchair. 28 Specialist Patients who use Patient Transport Services This specialist group of patients include service users of our Patient Transport Service (PTS) who are either receiving haemodialysis or treatment for cancer. These patients attend their hospital clinics regularly and use the PTS around three to four times per week. As well as the survey work, the Patient Experience team have visited five hospitals (see below) within the North West area to engage with this specialist group of patients who regularly use the Patient Transport Service. In addition to the hospitals, the Trust also held focus groups with patients and spoken to clinical staff. We have also visited the Brain Tumour Support Group in Liverpool and the Head & Neck Cancer CNS in Lancaster. We used a variety of methods to engage with this group of patients and staff including our new Patient Experience board game and also asked specific questions to gain feedback on their experience of using our PTS, and also to gauge their understanding of the new Enhanced Priority Service element of the Patient Transport Service contract which was introduced in April 2013. During the 2013/2014 Patient Experience programme a total of 125 patients or their relatives/carers provided feedback on the service they have received using the Patient Transport Service to travel to and from appointments for haemodialysis or treatment for cancer. The graph shows the breakdown of areas in which we spoke to patients throughout the North West area. Greater Manchester area is not represented as we no longer transport patients to their appointments in this area. 29 All patients were asked the Friends and Family test question and the graph below shows the results. Of the 126 patients that provided feedback, 84.92% stated that they are either likely or extremely likely to recommend the ambulance service to their friends and family should they need similar care or treatment. High levels of satisfaction are recorded with comments as follows: Ambulance staff are very considerate. Ambulance men and women are brilliant with you. People like to have the same drivers. You get to know them, they use your first names - nice and friendly & very helpful. 30 Themes The majority of PTS bookings for this specialist group of patients are made by the hospital clinics, this minimises the information that can be provided prior to transportation. However, a marketing campaign raising awareness of the introduction of the next collection service could be implemented to inform our Healthcare professional colleagues of this recently introduced service. Feedback suggests that this patient group would prefer a telephone call or text to advise them when transport will be arriving. Afternoon patients would particularly benefit from this service on both the inward and outward journey. Patients were happy to be invited to provide feedback on the service they are receiving; their comments indicate that this makes them feel valued. Patients expect a reliable Service that will turn up on time, with friendly, professional staff, the results indicate that most patient are receiving this level of service with 89.63% of feeling that they are cared for appropriately with dignity, compassion and respect. Patients still feel as though the waiting time to go home is too long, however when entering into discussions this specialist patient group feel as though 30 minutes is an acceptable time to wait. Most patients said they had not waited more than 90 minutes. Patients state that since April 2013 their transport experience has either improved or remained the same (neither agree or disagree), but on expanding on this question most stated that they were happy and grateful with the service we provide. Despite the Patient Charter and Information leaflets being displayed in the waiting areas of the hospitals visited, patients reported they were not aware of either of these publications. Everything's good - sometimes you have to wait a while but most of the time it is fine. Waiting time to go home - always a bit of a bind when you have to go to the discharge lounge. It would be good to know that you don't have to wait longer than 15 minutes. 31 Key Findings High levels of satisfaction with the services the operational crews provide. Low levels of awareness of the new quality standards within the Enhanced Priority Service for both staff and patients. Low levels of awareness of the new PTS Charter and information available to enhance the patients experience. Low levels of awareness with Hospital staff about the Patient Transport Service who requested training and awareness raising of the eligibility criteria and booking system. Low levels of awareness of the ‘Next Collection Service’ Patients feel valued when asked for feedback on their experience. Low levels of satisfaction around waiting times to go home. 32 6.3 Urgent Care The Urgent Care Desk Service (UCD) Survey is aimed at members of the public who have called 999 and based on the nature of their call, have been referred to the urgent care desk for further assessment by a specialist paramedic. The UCD Service will undertake further assessment and clinical triage and based on the medical needs of the patient, advice or refer the caller to the most appropriate pathway or service for their needs. This ranges from Hear and Treat, See and Treat or Refer, See and Transport. Clinicians manually tag their incidents using codes which are then grouped into the one of the three outcomes: Hear & Treat ALTTRA Alternative Transport Found HATD Hear & Treat Discharge See & Treat HATR Hear & Treat Refer SATR See & Treat Refer SATD See & Treat Discharge Conveyance (Transport) PESI PES Response Inappropriate PTLIFT Patient Lift Only GRA Green Response Appropriate UPGR Upgraded due to Clinician Concern Previously in the 2012/13 Patient Experience Programme, over a four week period, users of the Urgent Care Desk service were asked by Urgent Care Desk (UCD) Paramedics if they would consent to taking part in a postal survey. For this year’s programme, to increase the survey sample size (in 2012/13 120 derived via the 351surveys sent out, a 34.2% return rate), a different approach was taken to capture records that were suitable for survey purposes. Every caller was advised that they may be contacted and asked about their experience. Where the caller indicated that they wanted to be excluded, this was added to the notes. This has been included in the UCD Service Standard Operating Procedure (SOP). Once all the clinical requirements had been met, at the end of the triage process/call, the following was added to the script: “You may be contacted and asked about your experience today”. From July to December 2013 a total of 3,698 postal surveys were sent out which saw a yield of 1,028 completed returned surveys, a success rate of 27.8%, with completed returns still coming in up to six months after surveys were initially sent out. Reponses were received from across all five areas that Based on your experience of our service, how likely are you to recommend our Ambulance Service to friends and family if they needed similar care or treatment? 1.6% 1.5% 2.4% 4.0% 1 - Extremely likely 4.7% 2 - Likely 15.9% 3 - Neither likely nor unlikely 70.0% 4 - Unlikely 5 - Extremely unlikely 6 - Don’t know No response provided 33 make up the North West Ambulance Service (NWAS) geographical responsibility, with 0.5% of them completed as telephone surveys. The Friends and Family Test (FFT) Question is a national requirement that allows patients the opportunity to provide feedback on the care that they have received in ‘real time’. Current guidance for eligible patients is that the question is asked in real time or within 48 hours of receiving the care. Since April 2013, it has been compulsory for all inpatient hospital wards and Emergency Departments to ask their patients this question and this is set to be extended across all NHS services in England, including ambulance services, mental health services, community nursing and outpatient appointments, by the end of March 2015. In readiness for this NWAS, as part of the 2013/14 Patient Experience programme, this FFT Question forms the opening for all of our Patient Experience Surveys. In addition to the above national question, patients were also asked a series of questions to obtain feedback on their experience relating to dignity, care, compassion, reassurance, awareness and understanding of our service and communication. The following pie charts show the results: When you called 999, you understood why you were not immediately provided with an ambulance and that you would be called within 60 minutes for further assessment. 5.1% 2.9% 8.9% Strongly Agree 12.1% Agree Neither Agree or Disagree 29.4% 41.6% Disagree Strongly Disagree No response provided The results show that a total of 71.05% of service users agreed that they understood they would not immediately receive an ambulance and would be called back within 60 minutes for further assessment. Analysis of the qualitative data demonstrated that patients have a good understanding of why they were not receiving an immediately response, but were provided with reassurance and felt confident that they would receive the appropriate care to meet their needs. This question is supported by the following comments: The person who answered my call was very helpful and clear in his advice. Care call made the 999 call. Ambulance Service kept in touch all the time. I received call back within 15 minutes – Great service. 34 “I fully understood the advice provided” 1.3% 0.4% 5.6% “The member of staff was polite and Strongly Agree respectful.” 9.3% 0.8% Agree 0.4% 3.5% 7.1% 40.7% 29.0% 42.8% Strongly Agree Neither Agree or Disagree Agree Disagree Neither Agree or Strongly Disagree Disagree 59.2% Disagree No response provided Strongly Disagree A small percentage (8%) of patients who provided a negative response to the above question provided feedback which would suggest high levels of pain and discomfort and delays in providing a call back impacted adversely on the patient’s experience. 88.22% of patients surveyed agreed that staff were polite and respectful. Patients report that they were provided with care by helpful and caring staff, in a courteous and polite manner with reassurance and support. Being told to phone back if you get worse is pretty depressing when you've asked for help. It was comforting to have everything explained. I understood that my case was not an emergency and that is why the wait was so long. High levels of satisfaction are reported from service users that they both fully understood the advice provided and that the staff listened to their concerns. However, the results show that there is still an expectation that when calling the emergency service an immediate response will be provided and that a small number of patients experienced anxiety at the prospect of receiving a call back. Feedback provided suggests that if a patient’s condition is suitable for an alternative pathway of care and this care or advice is not followed up within the agreed timeframe this has a negative impact on the patients experience if they are not kept informed of any unexpected delays or call backs. I did not know how long I would have to wait. First call 1pm, 5 or 6 calls made, ambulance came about 8pm. It took the Ambulance longer to arrive than advised on the Phone. 35 What did actually happen next? 0.6% 2.2% 0.2% 0.8% Received Ambulance straight away 0.0% 8.4% 54.7% 2.4% Referred to A & E by ambulance 8.0% Referred to A & E by own transport 22.8% Referred to Urgent Care / Walk in Centre by ambulance Referred to Urgent Care / Walk in Centre by own transport Ambulance attended but I was not transported Referred to GP Received self–care over the telephone Other No response provided This pie chart shows what pathway of care was provided for each patient who provided a completed survey, based on their views. Just over 20% of patients surveyed were referred or advised to use other services other than an emergency department. There were general high levels of satisfaction with the advice and care provided by the urgent care desk. Reassuring and prompt telephone triage, careful and considerate assessment I was directed by GP Practice on previous occasions - I would like to find another way to save these precious services for more serious cases “The member of staff who called you back listened to my concerns”. 0.5% 1.8% 10.8% 5.9% Strongly Agree 44.4% Agree Neither Agree or Disagree 36.7% Disagree Strongly Disagree No response provided 36 To assist with ongoing public education and the management of expectation, we also asked groups of patients what was important to them when calling 999. What is important to you when you make an emergency call for an ambulance. Getting an emergency ambulance 25.2% 21.9% Professionalism - how your call was handled 14.9% 20.2% Reassurance - listened to your concerns Assessment - of medical condition over the phone 17.8% Response time - how quickly you got to hospital “I was satisfied with the help and care provided” 1.4% 1.4% 3.7% Strongly Agree 8.7% Agree Neither Agree or Disagree 30.2% 54.6% Disagree Strongly Disagree No response provided As we were told someone would be with us and then we received the call - it would have helped if we were initially told it would be a return phone call. 37 I did have to wait over an hour for my ambulance with a dislocated shoulder but realised that they were VERY busy. Would have scored 10 for the guy on the phone, but the Ambulance staff were moody and very unhelpful, felt like they just wanted to get rid of me. Scored 4 out of 10 Scored 8 out of 10 It seemed a lot of time was wasted waiting for phone calls and waiting for the Ambulance when my mother needed to be in Hospital. Scored 4 out of 10 NHS 111 The Trust is currently operating the NHS 111 Service in the North West. NWAS has been delivering the service since October 2013. Patient surveys are also undertaken with patients using the 111 service. These are sent to a random sample of patients following consent provided over the telephone. I was just so glad that there was someone I could talk to in my hour of need Totally satisfied. Nurse was knowledgeable about the problem I had and also gave me advice on the adverse effects of previous antibiotics Recent patient surveys have revealed that 69 percent of patients were very satisfied with the NHS 111 service in the North West, currently being run by North West Ambulance Service. 36 percent of patients would have attended A&E or rang 999 for an ambulance if the NHS 111 service was not available and 85 percent of patients were either completely better or their conditions had improved seven days after calling NHS 111 My condition was experienced during the night time and was initially quite alarming. Although NHS111 were unable to diagnose the problem they gave me the comfort of knowing it was not serious and the directions to see my GP as soon as I could the next day, enabled me to cope with the situation. The service was very thorough and understanding. The 111 Service also received 88 complaints from the end of October 2013 until end March 2014. As mirrored across other parts of NWAS, the complaint rate for the 111 is also very low at 0.03%. The chart below details the primary category and risk score of the complaints received. Being a telephone based service it is understandable that communication and information is the most common reason for complaining. 38 One major complaint has been recorded during this time. The case involved the assessment and advice given to a mother regarding her new born baby. The advice was to attend the GP however the baby was rushed to hospital some hours later with a serious condition that been the subject of the 111 call. 25 20 15 Minimum Minor 10 Moderate Major 5 0 Emergency Response Staff Conduct Communication and Information Care and Treatment Safeguarding The moderate complaints (n=3) included the ambulance sent as a result of the 111 call attending the wrong house, inaccurate information on the call record passed to the Out of Hours service and the lack of appropriate assessment by the Clinical Advisor leading to inappropriate advice. Of the 85 complaints closed in the reporting year, 37 (43.5%) of the complaints were upheld. Reasons for upholding complaints have included: Talking over the caller or not listening fully to what is being said Call handling not up to approved standard Inappropriate attitude Lack of appropriate assessment Not following protocol in passing patient’s details to the Out of Hours Service Inappropriate referrals to Social Services Key Findings 1. High levels of satisfaction were reported across the core areas of experience in relation to making the emergency call, communication, dignity, care, compassion, reassurance and advice provided for both Urgent Care and the 111 Service. 2. Low levels of understanding that an ambulance may not be dispatched or delays may occur due to the patient’s condition not being immediately life threatening. 3. Low levels of satisfaction that the elderly are not given priority. 4. Communication is vital to ensuring a positive patient experience – patients need to be listened to, kept informed of any referral to another (such as GP or Out of Hours Service), 5. receiving a call back from a clinician or any potential delays in an ambulance attending 6. There is still reluctance for patients to consider using alternative healthcare providers. Patients still believe that they will be seen in Emergency Departments quicker if they arrive by ambulance. 39 7. The 111 Service upholds more complaints than other parts of NWAS. These decisions are more easily decided as the evidence is the recorded conversation. 6.4 Feedback from Community Engagement NWAS uses the NHS Equality Delivery System (EDS) to set out its strategic equality objectives including its plans to engage with its diverse communities. The community engagement programme of 2013/14 has included attendance at a number of large scale equality and diversity events as well as targeted engagement with the ‘vulnerable’ protected characteristic groups of people including: those with mental health conditions people with physical disabilities, children and young people the elderly people with sensory and learning disabilities representatives of populations in social deprivation areas The Trust uses a Patient Experience Board Game to facilitate the majority of this engagement as an aid to collect qualitative feedback on our services. The Game creates an engaging, informal setting to give a voice to groups which may be less likely to engage through other methods such as surveys or public meetings. This is usually in the form of face to face sessions or setting up the board game on a stand at a themed event. A second board game was recently commissioned and has been in use since April 2013. Where appropriate, further support to our engagement is provided by operational staff and an Ambulance vehicle. In addition to us receiving feedback on access to services and employment opportunities from these groups, we also try to: Give reassurance that all feedback we receive from our community engagement is valued and will be acted upon Promote partnership working including volunteering opportunities and FT membership Raise awareness of what to expect from the ambulance service and our commitment to equality and diversity Where applicable, raise awareness of the Trust support to health inequalities in the areas of stroke, cardiac arrest, obesity and mental health. Over 25 different community groups have been engaged with during 2013/14. The patient experience board game has been played at focus group events with the following seven community groups: Headway Brain Injuries Group, Preston; St Helen’s Carers Group, Cheshire; Remind Mental Health, Merseyside; Manchester BME Network; Liverpool Arabic Group; Bury Speak Easy Group; Rochdale Borough Wide Mental Health User Forum. ‘Group discussed issues that may be considered an emergency. One lady has children who have a nut allergy. If a child had accidentally eaten nuts or their derivatives, she wanted to know if this would be considered an emergency.’ (Liverpool Arabic Women’s Group) ‘My dad died on our way to hospital. When we wanted to go home we had to catch a taxi’. (St Helens Carers) You never get any feedback after completing a survey – waste of time (Headway Brain Injury Group) ‘Husband called the ambulance service – they were brilliant with me. I did not feel stereotyped at all, as a woman, and as a black woman, they were kind, so human, the experience was very positive.’ 40 Eight themed events attended, have included: FT Monitor Focus Group held at NWAS Lancashire Offices Broughton, Burnley College Health Fair (where we engaged predominantly with Black and Minority Ethnic (BME) young persons to receive their perceptions on employment with the Ambulance service); Blackpool Learning Disability Health Event; CODA (Children of Deaf Adults) Emergency Services Open Day, Winsford, Cheshire; Asian Elders Association – Eid, Diwali, Advent Event, Bolton; YAD - Year of Action on Dementia Event, Liverpool; Knowsley Health watch; PENN National Workshop Event, Broughton, Preston. I’m not scared of Ambulances. I went to an open day and they let me take a look around an Ambulance (Blackpool Learning Disability Health Event) As a patient you would love to be treated with dignity, for your views and opinions to be respected – it is really important for a medical professional to respect your views even if you are a patient with dementia, not all your views or opinions stem from the condition.( YAD - Year of Action on Dementia Event, Liverpool) Very rare you hear the Ambulance service has made a blunder. (Asian Elders, Bolton) Twelve of the large footfall Public Events attended include: Spirit of Bolton; Disability Awareness Day; Cheadle Mosque; Blackpool, Chester, Liverpool and Manchester PRIDE respectively; Preston, Leyland, Bolton and Fylde Coast Health Melas respectively; Chinese New Year Event, Blackpool. ‘I am writing to thank you for participating at Blackpool Pride Festival and for your feedback. Overall we were pleased with the event in the Winter Gardens, particularly on the Saturday. Certainly the public seemed to have enjoyed themselves’. (Tim Allan Blackpool Pride organiser) Matt Dunn, Advanced Practitioner and Red Ashcroft, EMT were both in attendance at the Bolton Health Mela. A PES Ambulance vehicle was available to view and many commented on how this ‘stole the event’. Mat and Red were gently peppered throughout the day by over 60 young people to be given the opportunity to see and receive practical Ambulance demonstrations. Matt commented on the Trust attendance at the Health Mela as being ‘a great way of having fun with our NWAS communities, whilst also being able to provide some very important Ambulance health messages to a number of young people’. (NWAS Regional Bulletin March 2014) 41 The charts below show the community engagement activities by NWAS areas and the differing protected groups engaged respectively. Protected Characteristics Engaged During 2013/14 2% 2% Race 2% All 15% 4% Learning Disability 4% Youth 6% Mental Health 13% 6% Religion Sensory Disability Physical Disability Socio Economic 8% 11% LGBT Older 8% Brain Injury 8% 11% Dementia Gender specific During 2013/14 targeted engagement using the board game has produced over 100 feedback comments: measured against the six best framework categories of: Communication (22), Access (19), Responsive Service (15), Information (29), Treatment as an Individual (27) and Quality of Care (20) ‘Picker’ NHS 42 Feedback by Category 2013/14 Quality of Care, 15% Communication , 17% Communication Access Treatment as an Individual , 21% Access , 14% Responsive Service Information Treatment as an Individual Responsive Service, 10% Quality of Care Information , 23% 7. Learning from Experiences It is essential that the Trust learns from all the feedback it receives. 7.1 Action Plans This section outlines the proposed actions and improvements to be undertaken as a result: PARAMEDIC EMERGENCY SERVICE Feedback Theme Proposed Improvement/Action Patients expectation of appropriate and timely response / clarity regarding the alternative pathways available Expectations management features in the Team 999 campaign. Perception survey results show awareness is increasing but continual education is required. Patient experience of timely attendance following 999 call Review and redistribution of specific Emergency Operations Centres (EOC) procedures in light of complaint investigations Individual feedback provided to EOC staff regarding call handling to ensure calls coded appropriately, correct codes followed, listening for potential reason to upgrade the call and care provided to Trust standard 43 Individual feedback provided to EOC staff regarding dispatch to ensure timely searches for vehicles completed, nearest available vehicle dispatched, importance of timely passing of information between hospitals and crews and calls upgraded as necessary More work regarding response categories required Information provided to hospitals to ensure transfer requests booked according to procedure Reminder sent to staff regarding adherence to second call procedure Concerns raised about care and treatment provided to patients Staff to undertake more training on pain management, care and dignity, manual handling, safeguarding referrals and application of paramedic pathfinder Individual feedback provided to individual staff in application of Cardiac Chest Pain policy including not walking patient to the ambulance and managing pain Individual feedback provided to staff in relation to completing falls referral and requesting appropriate back up befitting the presenting condition Bulletin issued for care of patients who are over 20 weeks gestation Reminder to individual staff about the application of seat belts as required Incident learning implemented to ensure treatment given is indicated for presenting condition Recognising the need for good communication and information Feedback to individual staff regarding the importance of ensuring patients attend the correct hospital and depending on clinical condition hospital of their choice Addresses flagged to provide more detailed information for the attending staff including access, medical and safety markers Learning for individual clinical assessment raised Guidance distributed to staff regarding application of the hyper acute stroke pathway Reflective learning implemented to variety of staff to ensure learning from individual incidents including pain management, application of diagnosis of death, 44 completion of Electro-Cardiograms and recognition of hypostasis Staff attitude Feedback provided to ensure staff were aware how they made patient feel, particularly for cases where difficult to draw definitive conclusion Customer care course identified Issues with documentation The importance of accurate Patient Report Form (PRF) completion has been reiterated with a number of staff and completion monitoring and audit was implemented for a small number of staff Requirement to provide more specialist vehicles for some patients Provision and introduction of specialist ambulances for bariatric patients Low levels of awareness of role of CFR Team 999 has included a focus on community first responders. Explore what further promotional activities can be undertaken regarding the role. PATIENT TRANSPORT SERVICE Feedback Theme Proposed Improvement/Action Availability of booking reminder/next pickup notification NWAS Control staff to be reminded about the need to offer this service and a guidance briefing provided Low levels of awareness of the new PTS Charter Create a new poster for hospitals which have information about the quality standards. Introduce new personal information cards for patients to help them understand what to expect from the service New marketing campaign to be launched in 2014 to help patients and carers understand more about the service. Charter booklet provided to complainants to explain service Low levels of awareness of waiting times to go home. Raise awareness of quality standards with all outpatient departments by introduction of new leaflets and posters which can be displayed in hospital areas Explanation provided to individual patients during complaints process 45 Difficulties with incorrect transport provided e.g. taxis/VCS Memo sent to control staff to ensure patient’s location for pick up is recorded on Cleric Pictorial Mobility Guide to be produced Working with bookers to ensure correct information is given to provide correct transport Completion of individual risk assessment for patients Greater level of support identified and provided to individual patients Mobility status of patients changed to reflect individual needs Difficulties between staff / volunteers and patients Individual staff and volunteers no longer assigned to particular patients Small number of volunteers removed from service and some reminded of expected standards Individual notes added to patient records to avoid some patients travelling with each other Issues arising during the journey Staff reminded of the importance of communication to patients in the event of a breakdown, delays with other patients or adverse conditions Booking and allowing escorts Advice provided to complainant (on behalf of new patient) on when escorts are allowed and how they can be booked SPECIALIST PATIENTS – PATIENT TRANSPORT SERVICE Feedback Theme Proposed Improvement/Action Low levels of understanding of both the PTS Information leaflet and Patient Charter Introduce new personal information cards for patients to help them understand what to expect from the service New marketing campaign to be launched in 2014 to help patients and carers understand more about the service. Hospital staff stated difficulties with booking system. NWAS to undertake further detailed work into usage and understanding of the online booking system and to develop improvements and materials to support this feedback. Individual feedback provided to staff further to complaint investigations 46 Low level invitation to use the advance notification/reminder service NWAS Control staff to be reminded about the need to offer this service and a guidance briefing provided Patients say that they are asked to be ready to travel up to 2 hours before their appointment time. NWAS Control staff to be made more aware of new quality standards for this specialist group and plan journeys accordingly. Patients feel as though the waiting time to go home is still too long. NWAS to continue to meet with this specialist group of patients and raise awareness of the quality standards. PATIENT TRANSPORT SERVICE - OBSERVATIONS Feedback Theme Proposed Improvement/Action Raise awareness of the needs of dementia patients with staff. Dementia Patient story should be shared at staff forums and mandatory training days Booking mobility concerns – the recently produced PTS pictorial guide to be made available to booking & hospital staff Ensure that publication is available on the Trust website and emailed to hospital patient experience leads for distribution Discharge Check list – Promote this checklist to all hospital contacts Ensure this checklist is available on the Trust PTS microsite and available to hospital staff URGENT CARE Feedback Theme Proposed Improvement/Action Low levels of satisfaction when agreed action is delayed e.g. no call back within 60 minutes. UCD to monitor call back rates and where possible keep patients informed of potential delays. Lack of understanding of the Urgent Care Desk processes and the Emergency Service. Address as part of the Team 999 campaign Incorrect information being provided by EMD at the point of the initial emergency call. Review information provided by EMD if patients are suitable for UCD intervention. UCD call handling did not meet Trust standard Use of UCD audit to provide feedback to individual staff Ensure appropriate upgrade applied to provide prompter response 47 111 SERVICE Feedback Theme Proposed Improvement/Action 111 staff not handling calls according to agreed procedure Individual staff feedback, some increased audit monitoring where identified COMMUNITY ENGAGEMENT Feedback Theme Proposed Improvement/Action Patients who have health passports and personal health information Raise awareness of NWAS staff of where these schemes exist and to check with patients on attendance Feedback from their contributions Ensure groups understand feedback is valued and acted upon. Share examples of where this has happened. Lack of awareness of ED tools Availability of ED communication tools e.g. language line, pictorial handbook is promoted more widely. Review any other tools or systems to improve communication further Awareness of mobility guide by hospital staff To be distributed more widely. Awareness of what happens next when call 999 Explore the options for team 999 in terms of targeted work with diversity groups as well as the marketing materials being translated into other languages What to expect at handover in hospital Individual patient information is available regarding this. Review if this is being widely used. Saying thank you Ensure the public can easily let the Trust know they would like to compliment the care received. 48 7.1 How we learn Action Plans The service improvement proposals are translated into action plans in partnership with service delivery leads and regular progress reports are requested. Where required, individual action plans are drawn up for individual staff members to ensure learning takes place. Staff may also be required to undertake a reflective piece of work, go through a retraining process or, in some cases, face disciplinary action. Patient stories The Trust has made extensive use of patient stories as an important learning tool. The Trust to date has produced 24 stories. The stories are filmed using actors but all the stories are based on real life situations. The stories come from the patient survey feedback, interviews with patients, complaints, compliments and experiences shared via community groups across the region. The stories are available on DVD, with learning points and briefing materials. They are played regularly at board meetings and generate discussions and action points. They are also shared with commissioners at their quality meeting. Service delivery managers use them in staff forums and meetings to highly both best practice examples as well as situations which didn’t go quite so well. The stories are using on the Trust’s mandatory training programmes as well as other learning opportunities. The stories are also used externally with community groups and for public education purposes. A number are available on the Trust’s website. All managers are asked to complete a feedback form when the stories are used so there is a record of who has watched them and the discussion that took place. Public Engagement The Trust launched #Team999 in 2013 as a direct result of feedback from patients and staff on improving education and engagement with the public about what to expect from the ambulance service. The campaign has been very successful to date, demonstrating high levels of awareness, and reach of the campaign as well as evidence of improving public perceptions of the service. The Trust uses the #Team999 brand to help share messages with the public and other partners which are a direct result from learning from patient experiences. The campaign uses members of staff to help explain to the public what happens when you call 999 and the alternative pathways available. The campaign uses social media extensively to engage with the public as well as undertaking face to face engagement with community roadshows and events. The campaign will continue to support the Trust is engaging with patients and the public and this year is introducing a new campaign to improve understanding of the Patient Transport Service. The Trust will also explore how it integrates the NHS 111 role within its public education work in conjunction with commissioners. 49 Team 999 car sticker Team 999 infographic You Said We Did This report and feedback received is published for patients and the public to view. In addition feedback is shared through posters and leaflets in hospitals, on the website and with staff on stations. 50 Working in Partnership Frontline staff involvement in how we improve the patient experience has always been an integral part of the Trust’s patient experience programme: 51 Each year, online ‘Talk to Us’ campaigns have been held to discuss with staff how we can improve services for our patients. One example of feedback which has led to improvement is: Top theme: More support for providing care for patients with mental health conditions. Response: The Trust has introduced new training packages for frontline staff to support improved awareness of mental health conditions. The Trust is also working with mental health partners to identify alternative care pathways for mental health patients. The staff working in the patient transport service have been coming together during 2013/14 to discuss how the service can be improved and the results of these discussions will lead to a new educational campaign for service users and health care professionals in 2014 to help them better understand the service and how it works. The Trust has worked closely with Health Watch organisations, other providers and commissioners to elicit patient feedback and work together to improve service provision. This has included reducing 999 call outs for fall in nursing homes, developing PTS patient information and a new dedicated website, testing out the FFT in different settings, holding patient focus groups and undertaking surveys. Examples of learning in action The Trust has undertake a number of service improvements as a result of learning and the following are some examples: Dignity posters These have been produced based on patients’ views on dignity. The posters are being widely distributed to staff across the Trust to highlight the importance of dignity and how patients want to be treated. 52 PTS personal information cards New information cards in wallets have been produced to give to PTS patients to explain how the service works, what the quality standards are and how they can contact us if they have any questions. 8. Summary The report demonstrates in the main high levels of satisfaction with the service but there is always room for improvement and ensuring services meet the needs of our patients. This report demonstrates that NWAS is committed to listening and learning from its service users and most importantly is able to demonstrate how it is improving its services as a result. We recognise there is always more work that can be done to gather more views and have more engagement with the public and we continue to look at ways to do this effectively. This report will be presented to the Board of Directors in July 2014 and subsequently published on the Trust’s website. In addition a link to the report will be shared with our stakeholders in our regular briefing document. 53 9. Future Focus A number of areas have been identified to improve our patient experience programme further: 1. Ensure the identified actions are shared with service delivery managers and there is evidence of progress. This evidence is provided to the Quality Committee for assurance. 2. The Trust continues to foster a learning culture to ensure patients’ experience inform service improvement. 3. The Trust will explore how it can ensure a sustainable programme of quantitative patient feedback so the number of patients who give feedback is more representative of the number of patients who use the service, but will always there are effective methods to gather rich qualitative information also. 4. Family and Friends Test The Family and Friends Test is being introduced in ambulance services by the end of March 2015. All NHS Trusts are expected to introduce the test to staff during 2014/15. By the end of March 2015 all staff employed, front line and corporate, have to be offered the test. The Trust has been piloting the FFT with patient groups for a couple of years and particularly, recently, undertaken two Pathfinder projects funded by NHS England, for a twelve week period, to test out the FFT in the ambulance sector to inform the national guidance. The Pathfinder projects will be completed and evaluated by 30 May and the results will be shared with NHS England to influence the national guidance for ambulance patients. 54