TRINITY HOSPICE QUALITY ACCOUNT FOR 2012/13 Our vision is of a community in which all people have access to skilled, compassionate end of life care at the time that is right for them and in the place of their choice. Quality Account 2012/13 June 2013 Page 1 PART 1 CHIEF EXECUTIVE’S STATEMENT Trinity Hospice aims to provide the best possible care for people at the end of life. Our vision is of a community in which all people have access to skilled, compassionate end of life care at the time that is right for them and in the place of their choice. At Trinity we support people to live every moment. We focus everything we do on the care of the patient and their family – directly through our care services and through our education and support programmes with other care providers in our community. Our care is centered on the unique physical, emotional and practical needs of the individual. Our tailored care programmes respect personal and cultural wishes and aim to: Help people to regain the confidence they need to maintain independence for as long as they want Give people real choices about their care and empower them to make their own decisions for as long as they can Are flexible and responsive to what may be rapidly changing needs. Our skilled and experienced staff understand that living with a life-threatening illness will raise many questions and worries and we take time to listen to our patients, their families and carers. We are committed to finding ways to continuously improve the services we provide to patients and their families and have a robust clinical and corporate governance framework that supports these aspirations. In this, our first Quality Account, we set out our priorities for quality improvement for 2013/14. These priorities will be reviewed against our performance in our Quality Account for 2014/15. I and Trinity’s team of senior managers have been closely involved in this review and in developing these priorities which have been ratified by the Board of Trustees. I am able to confirm that the information in this Quality Account is, to the best of my knowledge, accurate. ANNE HOOPER CHIEF EXECUTIVE “Trinity’s specialist nurses and other team members are priceless. The quality of care is outstanding. The human warmth is inspiring. A visit to Trinity helps me – and many other patients - to soldier on. I have made many new friends there, and they say the same - Trinity makes our lives better.” Quality Account 2012/13 June 2013 Page 2 PART 2 PRIORITIES FOR IMPROVEMENTS We have identified six areas for improvement in the coming year under each of the domains of quality set out in the Department of Health Report, High Quality Care for All, - patient safety, clinical effectiveness and patient experience. Patient safety 1.1 Test out Trinity’s major incident plan What are we aiming to achieve? We will ensure that we have in place all the appropriate components of an effective major incident plan, that staff are fully trained and aware of their roles within the plan. How will we know what we have achieved? We will carry out a table top exercise with staff and will have identified any areas where our major incident plan needs to be modified. 1.2 Review our medicines management and safety priorities What are we aiming to achieve? We will review our medicines management and safety priorities to ensure they are relevant, appropriate and fit for purpose. How will we know what we have achieved? We will have in place all relevant policies, procedures, key reference documents and staff pocket guides. 2. Clinical effectiveness 2.1 Review of discharge procedures What we are aiming to achieve? We will ensure that we have in place effective discharge protocols to ensure the safe and timely discharge of patients and to support effective communication channels with commissioners and other relevant professionals. How will we know whether this has been achieved? We will undertake an audit of all discharges to ascertain that we have met our criteria for safe and timely discharges. 2.2 Review of referral and admission process What we are aiming to achieve? We will review our referral and admission protocols to ensure that they provide for effective and, where required, rapid access to inpatient and community services. How will we know whether this has been achieved? We will undertake an audit of all discharges to ascertain that we have met our criteria for effective access to our services. Quality Account 2012/13 June 2013 Page 3 3. Patient experience 3.1 Evaluate our home visiting programme What we are aiming to achieve? We will commission an evaluation of our volunteer home visiting service to understand the value it adds to patients, families and carers. How will we know whether this has been achieved? We will report on the evaluation findings and use them to direct the continuing development of this service. 3.2 Implement VOICES What we are aiming to achieve? We want to understand how the current support we provide to families and carers meets their needs and whether there are unmet needs that we could provide for. How will we know whether this has been achieved? We will use the outcomes of the surveys to identify how we can best target our support for families and carers. We will review progress in relation to each of these six priority areas at Patient Services Committee meetings twice a year and produce a final report for the Board meeting in March 2014. Quality Account 2012/13 June 2013 Page 4 PART 3 REVIEW OF QUALITY OF SERVICES 2012/13 3.1 Service improvements During 2012/13 we have continued to experience increased demand for all services. Most of our care is provided to people in their own homes (including care and nursing homes). During 2012/13 we expanded this team so it can provide more care and support to more people in the future. Trinity’s team of specialist community nurses support people by providing expert symptom control and supporting the co-ordination of services with the person’s GP, district nursing team, hospital team and social services. The team provides home visits 7 days a week as well as a 24/7 telephone support service. The team are highly effective at ensuring people can die at home if that is their choice. Overall in London only 20% of people die at home – 73% of people being cared for by Trinity’s community nurses die at home. Our outpatient facilities have been expanded and upgraded during 2012/13 and offer a range of flexible outpatient services aimed at helping people to improve their sense of wellbeing and feel stronger and more confident so they can cope with the changes that may be happening in their life. This might involve supporting people with things like managing troubling symptoms such as pain, breathlessness, depression or fatigue, helping people cope and come to terms emotionally with the changes in their life caused by their illness, staying independent and mobile, relaxation and relief from stress and advice on life’s practicalities. Our award winning inpatient centre continues to provide excellent care and support to patients and their families. During 2012/13 we have successfully rolled out a new electronic patient record system within the centre which has the advantage of enabling patients to be more involved in their care if they choose. We have been successful in gaining additional funding to support our dementia project as well as on-going funding for our work in care homes. We have introduced a new community visiting programme which has trained volunteers providing support to patients and their families and carers at home. Our bereavement team have introduced new bereavement support groups (in addition to our one to one support) which enable us to provide more support to more people. In the year Trinity has achieved full N3 compliance. 3.2 Review of services During 2012/13 Trinity Hospice supported the commissioning priorities for Lambeth, Wandsworth, Richmond & Twickenham, Hammersmith & Fulham, Kensington & Chelsea and Westminster with regard to the provision of local specialist palliative and end of life care services by providing: Inpatient care Care to patients in their own homes (including care homes, nursing homes, sheltered accommodation, prisons and the street homeless) Outpatient services Quality Account 2012/13 June 2013 Page 5 Bereavement services Education to health and social care professionals Patients have access to expert nursing, medical, social work, counselling, physiotherapy, OT, pharmacy, creative and complementary therapies, welfare, practical and financial advice services. 3.3 NHS contribution towards total cost of providing Trinity’s services Statutory funding contributed £2.9million in 2012/13. This equates to approx. one third of Trinity’s total cost of £9.5million. The remaining £6.6million is raised through local fundraising, legacies and retail activities. 3.4 Quality reports for Commissioners Trinity has a community contract with service specification and service activity targets. Contractual compliance and quality assurance are reviewed quarterly by our Joint Commissioning Group which comprises all our PCT commissioners. Reports contain the following information: Service activity – contracted v. actual Clinical staffing levels Incidents and alerts User surveys Ethnicity Complaints SUIs CQUIN updated Deaths by location PPC/PPD - recording PPC/PPD – achieved Future service developments Quality report contents 3.5 CQUINS agreed with commissioners for 2012/13 A proportion of the funding Trinity receives from its NHS commissioners is contingent on achieving quality improvement and innovation goals. In 2012/13 the following CQUINS were agreed with our Joint Commissioning Group: In depth inpatient survey Delivery of NHS Continuing Healthcare Both CQUINS have been fully achieved and the results for each as at end March 2013 are as follows: Inpatient survey – four surveys carried out during 2012/13 – for results see section 3.7 Delivery of NHS Continuing Healthcare – continuing care protocols were audited and reviewed quarterly by the Joint Commissioning Group and reviewed in the light of those findings to ensure maximum effectiveness 3.6 CQC inspections Trinity is registered with the Care Quality Commission and provides the following regulated activities: Treatment of disease, disorder or injury Diagnostic and screening procedures Trinity Hospice was last inspected by the CQC on 12th March 2013 and was found to be fully compliant with all standards. The CQC has not taken enforcement action against Trinity Hospice during 2012/13. Quality Account 2012/13 June 2013 Page 6 3.7 Review of quality performance Our audit programme reviews the effectiveness of our clinical care as does feedback from patients under our “What you say matters” programme. 3.7.1 User surveys During 2012/13, four inpatient surveys have been completed, one survey of our community service and one survey of our bereavement service. The outcomes of the inpatient surveys in 2012/13 demonstrated very high satisfaction rates with key aspects of care: Outcomes 2012/13 Not affected by pain 98% Not at all/slightly/moderately Not affected by other symptoms 94% Not at all/slightly/moderately Food and drink - received what you want at the right time 95% Always/most of the time Has the envrionment/facilitie smet your needs 99% Always/most of the time Have you been as involved as you want in your care Always/most of the time 96% Full information given to you 96% Practical issues addressed 98% All addressed/being addressed Outcomes of inpatient surveys 2012/13 During 2012/13 we undertook annual surveys of our community patients and families which also showed high levels of satisfaction they had with the services we provided to them. Outcomes 2012/13 Was the referral made at the right time Just right 91% Too early 1% Too late 8% Did seeing a Trinty nurse help with the problems you had Helped with all/most 97% Quality Account 2012/13 June 2013 Page 7 Outcomes 2012/13 Did your Trinity nurse explain their role in your care Yes 90% Do you feel you were involved in planning your care Always/most of the time 91% During visits do you feel you are treated with respect and dignity Always 94% Do you have the opportunity to ask questions when you need to Always/most of the time 96% Outcomes of community survey 2012/13 Outcomes 2012 How satisfied were you with the telephone call you received from the bereavement service: Very s a tis fi ed/s a tis fi ed 100% Did you find the written information your received: Very hel pful /hel pful 90% Did you find your counsellor: Very hel pful /hel pful 95% Were there any difficulties in meeting your counsellor: No 100% Thinking about how often you saw your counsellor, was it: About ri ght 80% Not enough 20% Do you think the number of sessions you had was: About ri ght 89% Outcomes of bereavement survey 2012 3.7.2 Clinical audit programme As an independent sector hospice, Trinity does not participate in the national NHS clinical audit programme that covers subjects that do not apply to hospices. However, we do have an annual programme of audits which are selected according to internal and external (network and/or commissioner related) priorities. Quality Account 2012/13 June 2013 Page 8 In 2012/13 we carried out the following audits: Subject matter Implications for practice/outcomes of audit Follow up actions Review of inpatient admissions An audit was undertaken for the period AprJun12 and demonstrated that 71% of admissions achieved the target. To further improve accessibility we have set a target which includes weekend admissions as standard. This audit resulted in better information on the 24/7 OOH telephone service being sent to all GPs An audit conducted between Ap-Dec12 confirmed that 82% of community patients had a discussion about their PPC/PPD An audit conducted between Apr-Dec12 confirmed that 71% of community patients who died in this period and who had expressed a preference for their PPD achieved it. An audit was conducted in Jan-Mar13 of Trinity community patients who died in hospital during this period and demonstrated that for 16 patients (14% of total community patient deaths during this period) hospital was not their PPD. Clinical teams are considering the feasibility of direct admission from the acute sector to Trinity’s inpatient centre to reduce this number. An audit was conducted between Apr-Dec12 demonstrated that no grade 3 or 4 pressure sores were acquired during a patient stay. 100% of patients with a risk factor >10 had a pressure sore risk reduction care plan implemented Monthly audits confirmed that every inpatient has a falls risk assessment completed on admission and that all required preventative measures were in place and being appropriately used. An audit in Jan-Mar13 identified that the arrangements for patient discharge are robust with evidence of careful consideration of patient and family needs. Delays in discharge arrangements were found to be mainly those beyond our control i.e. patient deterioration and/or family delays An audit in Mar13 demonstrated that the new electronic patient records provide accurate and timely records. Staff are to be given further training in recording new demographic information when it becomes available and improved recording of information to external agencies post death. A very high standard of cleaning was found in all clinical areas Continue to monitor Out of hours calls Preferred place of care/death – community patients – recording of PPC/PPD Preferred place of death – community patients – achieving PPD Deaths of community patients in the acute sector Pressure sores Patient falls Delayed discharges Use of electronic patient records Cleaning audits Quality Account 2012/13 June 2013 Page 9 No further action Continue to monitor Continue to monitor Continue to monitor Continue to monitor Continue to monitor Continue to monitor Continue to monitor Continue to audit 3.7.3 Feedback from patients and carers “That there is such a wonderful and dedicated centre where help of a most professional kind is at hand is beyond comforting.” “Your wonderful palliative care nurse worked closely with the nurse from CJD unit to enable my husband to die peacefully in his own home as he wished. She also ensured his request for end of life care were implemented and was a great support to me at this difficult time.” “Help and support before and after husband's death was amazing. Counselling for our son (aged 6) was vital and so appreciated. Thank you so much.” “Humanity at its very best. Kindness and care when it is most required. You light up a life even as the brightness dims.” “Care given was superb. As a trained nurse I'm aware of professional attitudes and care and found the staff of a very high standard - thank you.” “Everybody was so kind and caring, from volunteers to doctors and nurses. They made the last three weeks of my husband’s life so peaceful, we will forever be grateful. Thank you all.” 3.8 Clinical governance We have a comprehensive system of reviewing patient safety issues including a high level monthly synopsis of key data – see below. Electronic recording of all clinical incidents provides real time reports with all red and amber classified incidents escalated to senior clinical staff and the Chief Executive immediately on report. All senior managers and the executive team receive the monthly synopsis and this is evidence of the way we track critical areas of care. It also confirms that we have continuing low rates of complaints, significant clinical incidents (including RIDDOR incidents), pressure sores and infections. CLINICAL QUALITY SCORECARD Apr12-Mar13 Apr12-Mar13 Red clinical incidents 0 No. hospice acquired pressure sores RIDDOR incidents 0 - grade 3 0 Serious untoward incidents 0 - grade 4 0 Amber incidents 6 No. hospice acquired infections 0 Green incidents/near misses: 236 No. complaints - slips/trips/falls 133 - upheld - assault/abuse 5 - partly upheld - manual handling 1 - unsubstantiated - property loss/damage 1 - theft 1 Actions taken as a result: - contact with heat/cold 1 - improved information regardung benefits claims process - security 0 - improvements made to message taking for community team - medicine related 86 - equipment failure 8 - clearer information on patient confidentialty Quality Account 2012/13 June 2013 Page 10 12 3.9 Data quality Trinity Hospice submits annual Minimum Data Set (MDS) returns. We maintain regular quality checks on our data including our electronic records system. During 2012/13 we achieved the Information Governance toolkit requirements required to utilise the NHS spine and are a full partner in the use of Co-ordinate my Care. 3.10 Clinical coding error rate Trinity Hospice was not subject to the Payment by Results clinical coding audit during 2012/13 by the Audit Commission. 3.11 Opportunities to give feedback on this quality account We welcome feedback on this quality account. If you would like to do this please email ahooper@trinityhospice.org.uk or write to: Anne Hooper Chief Executive Trinity Hospice 30 Clapham Common North Side London SW4 0RN Quality Account 2012/13 June 2013 Page 11 Quality Account 2012/13 June 2013 Page 12