Quality Account 2012/13 Our quality performance, initiatives and priorities Contents 1 1 2 2 3 4 5 5 6 11 12 14 16 17 17 17 18 18 19 19 20 32 32 33 Who we are and what we do Commendations Part one: our priorities for quality Joint statement from our Chief Executive and Chair of Trustees Our vision and values Our services map Part two: our priorities for improvement Our progress against our priorities for improvement 2012/13 Priority 1: Service user experience. To develop tools to measure how person-centred support is delivered in our services Priority 2: Service user safety. To manage the risk of harm from medication Priority 3: Effectiveness. To further develop partnerships in care delivery Priority 4: Service user experience. To measure the mealtime experience Priority 5: Service user experience. To ensure service user and staff safety by reducing the risk of sharps injury Part three: our priorities for improvement 2013/14 Priority 1: Service user experience. To further develop tools to gain feedback on how person-centred support is delivered in our services Priority 2: Service user safety. To manage the risk of harm from medication by piloting new ways of working with technology Priority 3: Effectiveness. To further develop our activities programme Priority 4: Service user experience. To measure our culture for care delivery and safety using a culture barometer Priority 5: Service user experience. Ensure learning from complaints and concerns and publishing this information when it relates to up held complaints regarding care delivery Priority 6: Service user experience. To measure the effectiveness of new equipment for service user and staff safety following the introduction of ‘safer sharps’ Part four: indicators Part five: annexes Annex 1: Legal requirement Annex 2: Statement from Lead Commissioning Primary Care Trusts (PCTs), the Overview and Scrutiny Committee (OSC) and Local Improvement Networks (LINks) Who we are and what we do Sue Ryder provides care and support for people living with complex, end of life and specialist palliative care needs. We are a large national charity in England and Scotland. We aspire to create a world where everyone has access to personalised and compassionate care. We deliver services within local communities through our day care, respite care, hospices, specialist palliative care, community nurse specialists and Hospice at Home. As well as long-term residential care, extra-care housing support, homecare in Scotland and community integration. This year we’re celebrating 60 years of providing care. The aim of Sue Ryder from the outset was to provide care and support where it is needed most. Today we still operate on the same principle. This document, the Sue Ryder Quality Account, demonstrates our continued commitment to quality improvement. It outlines our quality improvement measures over the last year and our priorities for the year ahead. Our approach to quality is shown below Commendation Organisational values “I was very impressed with everything at the hospice from the doctors to the cleaners. I don't think anyone could wish for more. Excellent in every way.” Family we supported at one of our hospices Operational and clinical staff Audit programme “They treat me as an individual and look after my needs. I get a say in my care and sit in on interviews to meet new staff.” A resident we support at one of our neurological care centres “Gave me a break and strength to carry on.” External validation Sue Ryder – Quality Account 2013/14 Participant in one of our community support programmes 1 Part one: our priorities for quality Position and status on quality Joint statement from our Chief Executive and the Chairman of Trustees Welcome to the fourth annual Quality Account, a summary of our performance against selected quality measures for 2012/13 and our initiatives and priorities for 2013/14. We have looked at the learning from the terrible occurrences at Mid Staffordshire NHS Foundation Trust outlined in the Francis Report (February 2013), and our Quality Account this year outlines the actions we intend to take following a comprehensive review of our own services, as a response to the report. We have engaged all of our heads of care, service managers and many of our front line staff, through attendance at a series of local workshops on the Francis Report in March 2013, ensuring we as an organisation embed the learning the report highlights. This Quality Account is produced to inform current and prospective service users, their families, our staff, supporters, commissioners and the public, of our commitment to ensure quality across all our services. The contents have been influenced by and, have the endorsement of our national Service User Advisory Group, which is a representative body of our service users known as ACORNS. As an organisation we produce this information across all of our services, enabling us to benchmark our quality standards. best suit individual needs. Some of the residents took the opportunity to move to localities closer to their loved ones and some moved to our care centre, Holme Hall, near York, which was expanded by three beds. All of the care centre’s residents have been successfully accommodated in alternative services. As part of our five year strategy we will be developing new centres for our complex neurological care, the first of which is planned to open in 2015, and we also aim to expand our end of life care provision. We keep the service user at the centre of our thinking with the development of our services. We have delivered the Royal College of Nursing (RCN) Clinical Leadership Programme for the third consecutive year resulting in a number of initiatives which ensure continued development of our staff and measurable outcomes for the people we support. Examples of the service improvement projects have been embedded throughout this year’s account. The closure of Hickleton also saw us move our continuing health care service to our offices in Doncaster. After a short period of time, the service was not attracting enough people to remain cost effective and at a break-even level, despite numerous efforts to make the service work, and the service was closed. The community based services run from Hickleton were re launched at the end of 2012 and we have seen an increase and fresh interest in the support they provide to people with complex needs living within the local community. In September 2012, we closed our Hickleton Hall care centre in Doncaster after successfully finding alternative accommodation and care arrangements for its 27 residents. The decision to close the care centre was taken after personal care plans developed for each resident showed a clear wish to be closer to their families and amenities. This coupled with no referrals from local commissioners for some time clearly showed that Hickleton Hall was not best suited to providing care that its residents and the local population wanted. Over a period of 12 months we had in-depth discussions with residents and their families and loved ones, as well as commissioners and staff, about what models of care would 2 Sue Ryder – Quality Account 2013/14 We have also expanded our community support projects, specifically within Suffolk and Aberdeen. In Suffolk, working in partnership with Age UK Suffolk and Suffolk Family Carers, we successfully gained funding to develop services for people with dementia and their family carers. In September 2012, we launched a dedicated helpline, advisor service and localised dementia projects. In Aberdeen, we work with four other charitable organisations, and Aberdeen Council of Voluntary Organisations, to provide a service across Aberdeen city for adults over the age of 55. The service was launched in January 2013 and has over 100 referrals for support. Working with each of our centres and hospices we have shaped our five year plan (2013-2018) to help us provide more incredible care. We hope you find our Quality Account useful. We welcome suggestions for future accounts. This Quality Account and the information it contains is accurate and has been reviewed via our internal governance structures. 1. We will deliver an increased range of high-quality and 2. 3. 4. 5. 6. responsive care services, and give those we care for more choice and control over how and where they are supported We will use the experiences of people who are touched by our care to develop our national voice and campaign to improve the lives of everyone living with end of life and long-term neurological conditions We will support our international partners to continue their care provision and build their capacity to become self-reliant We will develop and use our networks to inspire and engage our supporters to grow our income so that we can meet the aspirations of Sue Ryder We will be a great place to work with an environment in which our people can flourish, live our values and deliver our strategy We will ensure all our systems and processes are effective and efficient to support the delivery of our strategy Paul Woodward Chief Executive Roger Paffard Chairman of Trustees Our vision We aspire to create a world where everyone has access to personalised and compassionate care. Our values At Sue Ryder we’re passionate about giving people the care they want, that’s why we always aim to: • do the right thing • push the boundaries • make the future together Sue Ryder – Quality Account 2013/14 3 Our service map Head Office 1. Central Office, London Registered Office 2. Sudbury Office, Sudbury Extra Care 3. Sue Ryder – Heyeswood, Merseyside Aberdeen 20 22 11 17 4. 5. 6. 7. 8. 9. 10. Palliative Care Sue Ryder – Manorlands Hospice, West Yorkshire Sue Ryder – Wheatfields Hospice, West Yorkshire Sue Ryder – Thorpe Hall Hospice, Peterborough Sue Ryder – St John’s Hospice, Bedfordshire Sue Ryder – Nettlebed Hospice, Oxfordshire Sue Ryder – Leckhampton Court Hospice, Cheltenham Sue Ryder – Duchess of Kent House, Reading 11. 12. 13. 14. 15. Complex Needs Sue Ryder – Dee View Court, Aberdeen Sue Ryder – Holme Hall, East Yorkshire Sue Ryder – The Chantry, Suffolk Sue Ryder – Stagenhoe, Hertfordshire Sue Ryder – Cuerden Hall, Lancashire 18 Elderly & Dementia 16. Sue Ryder – Birchley Hall, Lancashire Homecare services (in Scotland) 17. Angus Homecare 18. Stirling Homecare Supported Living 19. Supported living unit, Suffolk 20. Supported living unit, Aberdeen Leeds 4 15 5 21. 22. 23. 24. 12 Liverpool 16 3 21 Other services Befriending schemes (dementia & volunteer), Doncaster Befriending Scheme for older people, Aberdeen Dementia Helpline and localised projects, Suffolk PEPS service, Bedfordshire Nottingham 6 Birmingham 24 7 9 14 Oxford London 8 10 4 Sue Ryder – Quality Account 2013/14 1 23 19 2 13 Part two: our priorities for improvement Our priorities for 2012/13 have been influenced by service user experience and involvement, national standards and learning from enhanced quality performance data. Over the course of the last year a number of projects have culminated in improved information relating to user experience, incidents, complaints and compliance with Sue Ryder policies and procedures. The priorities for 2012/13 were: Priority 1 Service user experience To develop tools to measure how person-centred support is delivered in our services Priority 2 Service user safety To manage the risk of harm from medication Priority 3 Effectiveness To further develop partnerships in care delivery Priority 2 Service user safety To manage the risk of harm from medication by piloting new ways of working with technology Priority 3 Effectiveness To further develop our activity programmes Priority 4 Service user experience To measure our culture for care delivery and safety using a culture barometer Priority 5 Service user experience To share learning from complaints and concerns, and publishing this information when it relates to up held complaints regarding care delivery Priority 6 Service user experience To measure the effectiveness of new equipment for service user and staff safety following the introduction of ‘safer sharps’ In November 2012, we published a new report, The Forgotten Millions: reforming social care services for people living with Priority 4 To measure the mealtime neurological conditions. It presents an in-depth analysis of the Service user experience experience strengths and weaknesses of Local Authority neurological care provision. It was compiled following freedom of information Priority 5 To ensure service user and staff requests issued to Local Authorities in England to determine if Service user experience safety by reducing the risk of sharps injury there were sufficient strategies, resource allocation and data collection processes in place to plan appropriate services for people with neurological conditions. The report found out that only 5% of 131 responding Local Authorities know how many The priorities for 2013/14 are summarised below: individuals with any neurological condition they care for. The Priority 1 To further develop tools to gain report highlights that there must be improved choice, and Service user experience feedback on how person-centred services should be provided in an integrated way by working support is delivered in our services with health services where possible. At Sue Ryder, we reviewed the key findings and learning from the Francis Report with each service area and with our service user group; ACORNS; looking at the implications for Sue Ryder from this national learning and how the service user experience can continue to be enhanced. We continue to improve service user and family experience in our care, both on a local and national level. The priorities for 2012/13 and 2013/14 do not fully represent all that we are doing, but they give an indication of particular areas of focus. Our quality strategy focuses on the same three overarching key areas identified in previous Quality Accounts and these are: • service user experience • service user safety • effectiveness These priorities have been approved by ACORNS (our Service User Advisory Group), the Executive Leadership Team (ELT) and our Board of Trustees. Sue Ryder – Quality Account 2013/14 5 Priority 1: Service user experience Progress made in 2012/13 Standards fo r For people we person-centred planni ng support To develop tools to measure how person-centred support is delivered in our services ✓ We said, we would review the finding from the Think Local, Act Personal benchmarking audit to change our policies and procedures to reflect the person-centred approach to all our care and support activities. We have worked with our national and local service user groups to review our support planning records. As a result of this we have developed individual support plans that are person-centred and support ‘no decision about me without me’. Whilst reflecting support needs, these plans also highlight an individual’s wishes, preferences and aspirations. Our support planning and review policy has also been revised to reflect the changes in services’ approach to supporting individuals. Through national and local user groups we have agreed a service user charter. The charter sets out service user and organisational expectations through engagement. We have also worked with our service users to develop a set of person-centred standards for service users, staff and volunteers. A volunteer at one of our hospices supported the development of these by producing some hand-rendered illustrations for the document, which were welcomed by staff and service users. Sarah, a ward sister at St John’s Hospice, introduced a pre-admission checklist to aid the inpatient admission process. This was designed to identify requirements a patient may have prior to their admission. As well highlighting the potential need for specific equipment (i.e. oxygen therapy, appropriate bed and mattress type, bed rails & moving and handling equipment), it also considered the patient’s condition & ability (i.e. mobility, skin condition, infection risk and safety considerations). The completion of a checklist helps ensure that 6 Sue Ryder – Quality Account 2013/14 As an organisation, for the past three years, we have held the Information Standard. It is our way of ensuring the information we produce for the people we support is clear, accurate and can be trusted. In August 2012, we reviewed our service user’s views of the standard, and one comment that came back was about having a quality mark that clearly shared their involvement. This has now been developed and appears on the publications developed in conjunction with service users and/or service user champions. appropriate information is cascaded to the inpatient unit, allowing staff to identify any specific needs, allocate a suitable bed space and prepare the environment accordingly. This work was enhanced by Suzanna, a ward sister also at St Johns Hospice who developed a pre-admission information leaflet, designed for community settings and for those coming to the hospice. The leaflet was developed and circulated to key colleagues and the hospices user group to ensure it contained the right information. It has now been shared within the wider community, increasing understanding of the hospice, facilities, what we do and what people can expect from a stay with us, making them better prepared prior to admission. Cheryl, a sister at Manorlands Hospice, took on a project as part of her Clinical Leadership Project to review the information leaflets available to patients and families in the inpatient unit. A survey was conducted collecting the views and ideas of patients and their families, as well as staff comments by email. New materials were developed. The hospice now has more readily available and pertinent information, which is easily accessible, helping communication with patients and families. introduced, designed to aid communication. They would all form part of a welcome pack available to patients and families on admission. Susan, a ward sister at Thorpe Hall, took Having separate leaflets on specific on a similar project following feedback areas lets patients and families only from a patient that during their stay who read what they need to, as well as said they hadn’t received any information ultimately increasing confidence in before or on admission. The current our service by having information information materials were reviewed readily available. and a series of new leaflets were ✓ We said, we would measure personalisation in practice by looking at observations of care, reviewing how staff demonstrate empathy and compassion in care delivery. Processes These outcomes relate to experiences that individuals have when using our services, and if process outcomes are not embedded then this can have a significant negative impact on achieving quality or life and or change outcomes. We have carried out a number of quality audits focusing on user experience and observations in practice. These audits Service users told us were conducted in and out-of-office-hours, to allow us time to accurately review user experience within a 24-hour period. “They treat me as an individual and look after my needs. I get a say in my care and sit in on interviews to meet new staff.” We developed an audit tool to measure services person“It's like a family, if I want anything they come straight away. centred planning. The audit has been completed for all I get the best attention; it's like home in a way.” services’ using our new records. “I attend another day service but you don’t get the personal touch like you do here.” “I like going horse riding and spending time in the activity room with the team.” comment from one of our service users “I can do what I like, like having a room on my own.” We shared the learning from each of the audits with service leads, these findings were incorporated into local quality improvement plans in response to identified areas of improvement. Learning was shared across the organisation through our quality action group meetings. ✓ We said, we would measure personalisation in practice by conducting detailed service user surveys. The surveys focused on what it feels like to be treated as an individual and actions from care-givers which illustrate this. We mapped these to the following outcomes: Quality of life These may be referred to as maintenance outcomes, as they reflect aspects of a person’s whole life that they are working to maintain or achieve. These outcomes are balanced across all services that interact with users and can be reflective of integrated working. Sue Ryder – Quality Account 2013/14 “I couldn't fault the services provided by you.” “Please keep up the good work, your help, kindness and caring helped me to understand and know what exactly was going on, thank you.” “Excellent support – always someone available to talk to” 7 Priority 1: Service user experience Progress made in 2012/13 ✗ We said, we would measure personalisation in practice, using our volunteers as mystery shoppers in questioning staff attitudes and values towards compassion, dignity and person-centred approaches to care. Our ACORNS members asked to be better informed inbetween meetings. We introduced an ACORNS newsletter to update ACORNS members as well as those not involved within the meeting. The newsletter includes topics such as workstream updates, opportunities for members to develop content or share a story, and in each edition we feature a staff and trustee profile, so our service users get a better insight into the background of those that support the organisation and their motivations. We have received really good feedback from service users and a member of the ACORNS group co-edits the content for each edition. We did not implement this fully, but used this as a tool for reviewing our Scottish homecare services, which was a very paper based approach that did not reflect in real time an individual’s experience of our service. The value placed on the interpersonal relationship between our care staff and the individual receiving care was critical to measuring personalisation in practice. Moving forward we aim to capture service user experience as an ongoing process utilising Personalisation goes deeper than having person-centred hand-held devices. plans and understanding an individual’s needs and wants. It’s about actively listening and making the changes needed to ✓ We said, we would engage further with ACORNS enable people to live their lives the way they want to, it tends and our 2012/13 Clinical Leadership Programme leads in to be the small things that make a difference. The projects developing evidence based tools, and refining and adjusting undertaken as part of the Clinical Leadership Programme these based on feedback and observations of care delivery. have been evidence of this, and examples of these have been included within our Quality Account for this year. Lesley, head of care at Dee View Court care centre, undertook a project entitled ‘hear me’. The aim of the project was to improve service user involvement at the centre, allowing the residents to be involved in the service’s decision making process. Lesley consulted with the residents and as a consequence the residents’ meetings were altered to focus more on resident issues – ‘no decision is made about me, without me’. Residents now feel able to talk about real issues affecting them, and not just listen. A resident now chairs the meetings; they feel more valued and have a clearer insight into some of the challenges faced within the service. Lesley also looked at other ways residents could be involved within the centre. Residents are now active members of interview panels for new staff, hold menu meetings to liaise with the chefs about what food is provided and have recently renamed the recreational therapy group, the ‘sunshine group’. 8 Sue Ryder – Quality Account 2013/14 Varsha, a nurse at our neurological centre near York, undertook a project looking at end of life care in a neurological setting. Varsha initiated the project by identifying the areas of care that were non-existent or those that required improvement. Varsha talked with residents about their priorities of care, collated this, and cascaded the information which included relative and staff feedback of past experiences of supporting individuals at the end of life, into staff training. There is now a better understanding of end of life care, thus enabling a better service to be offered. ✓ We said, we would use quality-themed visits to explore The ACORNS group was made aware of and supported our and report on the service user experience of care and support, approach to themed quality visits and it was through these visits that we identified that a greater focus needs to be given and plan to focus on this within our planned visits. to the provision of meaningful activities for service users in our residential neurological care centres. It was for this reason Throughout the year, all services had a themed visit that that we identified the development of this work as a priority focused on person-centred care carried out by the Clinical for 2013-2014. Quality Team. These visits focused on the involvement of service users in planning their own care, and evidence of responses to points made within surveys and complaints. There was a review of the information readily avaliable to service users in public areas and at least three service users were interviewed during the visits and asked: • what is going well? • what is not going so well? • is there anything you would want to see changed? Any actions identified were then reported to the service manager for incorporation into their Quality Improvement Plan. The visit was also used to find out whether service users had noticed a change since the ‘Our Mealtimes’ standard had been introduced. Sue Ryder – Quality Account 2013/14 Service user comments One service user reported that the food was good. She liked the fact that there was no longer a four week rolling menu and she was asked each day what she would like to eat. One patient who has coeliac disease talked about how the hospice had consulted her and ensured she had a wide variety of menu choices. The patient compared this to her experience in hospital where she said she got the same meal every day for 3 weeks. One patient said “you can have whatever you want, when you want”. She went on to say how staff had made her cheese on toast at 3am because it was what she wanted. 9 Priority 1: Service user experience Progress made in 2012/13 Johanna, day services manager at Thorpe Hall Hospice undertook a project to look at introducing personalisation and person-centred planning within the service. The work was to ultimately identify and work towards the personal goals and objectives of the individuals attending the day service, by having a greater awareness of these. Johanna started by organising a series of workshops with service users and staff to discuss themes such as ‘what is important to me?’, ‘If I could I would’. From this a pilot group of six service users was set up, with one-to-one meetings held with all participants, Johanna worked with each individual in developing their own monthly activity plans. Staff and volunteers worked together in supporting individuals to achieve what they had set out in their plans. The progress of the pilot group was discussed as an agenda item at monthly staff meetings, to ensure it remain active and a live piece of work and to gain feedback. Through working in this way, service users have become more active in the community by accessing additional services, having the confidence to do more things or activities they thought they could no longer do, such as rowing or swimming. It has also had positive effects on staff with increased morale, highlighting the importance of roles such as volunteers in the delivery of support by utilising their strengths, skills and past experience. Ruth, a unit lead at Stagenhoe, our neurological centre set within rural Hertfordshire took on a project to improve the surrounding areas to improve access to the gardens for residents. The aim of the project was to facilitate an area where residents could walk, sit and generally enjoy the outside area without risk of wandering into unsafe areas. “Whilst working as unit lead, I was caring for a client with Parkinson’s who was on half-hourly checks as he wandered. I observed the reaction of a staff member who noticed that the client was ‘missing’. When checked, he was found only moments later in the garden, but the staff member was very unsettled that the client had ‘got out’. The area of garden was not enclosed and as the home stands in eight acres of parkland surrounded by farm and woodland it was not safe for the clients to be outside unattended.” 10 Sue Ryder – Quality Account 2013/14 Some quotes from service users involved in the personalisation project: “Everyone seems to be on a computer nowadays, I don’t want to be left behind. It also helps me keep in touch with my friends and family. I am going to buy my own computer.” “I used to sail, it’s great to have control of a boat again, it’s so peaceful out there on the water.” “I want to learn more about baking for myself. I really enjoy it. Having the cake stall gave me a lot of confidence and I wanted to raise some money and give something back.” “My French is going well, I have a great teacher. Everyone should speak at least one other language. I hope to go to France one day.” Ruth in conversation with the management team determined a budget for fencing and resources. A volunteer group from a local pharmaceutical company offered their services and the work was undertaken to make the area safe for residents. Staff and residents assisted with the task. Residents are now able to enjoy a safe outside area, where they can sit and enjoy their surroundings, without staff becoming anxious about their safety. The resident with Parkinson’s who prompted the idea for the service improvement project is reported to have many more ‘on’ days where he can enjoy the fruits of his labours. No longer a contained client, now a contented gardener. Priority 2: Service user safety Progress made in 2012/13 To manage the risk of harm from medication ✓ We said, we would ensure 100% of medicine related incidents were overseen by a member of the Clinical Quality Team (CQT), and that medicines management incidents are a standing item on every centre’s Quality Improvement Group (QIG). 100% of medicine related incidents have been reviewed by a member of CQT and audit results demonstrated that medicine management incidents are a standing item on every centre’s QIG. In addition we audited compliance against our medicines management policy, which encompassed all aspects of medicines management, from prescribing, ordering and supply through to storage and administration, staff training and disposal methods. The hospices have additional standards to meet regarding the accountable officer role for controlled drugs, which was part of the audit. Bi-annual education and review of medicines competencies are in place for all registered nursing staff. Our audit and subsequent action plan demonstrated that all centres have robust staff training plans in place for this aspect of care delivery. The medicines policy for homecare (Scotland) and social care (including extra care and Birchley Hall) has been updated. All services that have non-medical prescribing in place (Duchess of Kent House and Wheatfields Hospice) have this detailed within the service risk register and actions and support (as detailed in the policy) are in place to support clinical practice. ✓ We said, we would ensure that the recording of ‘other’ as a subcategory within our electronic incident reporting system (Datix) is reduced by 75%. This will help us to better analyse incident trends. There are configuration changes required to our system to enable additional categories to be added. We have ensured that the recording of ‘other’ as a sub category within medicines errors was reduced to zero. We have achieved this by better educating our staff and responding to incidents immediately. Sue Ryder – Quality Account 2013/14 11 Priority 3: Effectiveness Progress made in 2012/13 To further develop partnerships in care delivery Working together, Sue Ryder – Thorpe Hall Hospice and Cruse Bereavement Care run Charlie Chimp’s Club, a support In our last Quality Account we talked about the different group for bereaved families. The club is open to anyone living initiatives that had taken place throughout the year, with lots in and around Peterborough with children and young people of examples of working in partnership. This year is no different. aged 7-14 years, following an initial assessment of their needs. In September 2012, we launched a Dementia Helpline that The club helps children and young people to: has already received over 300 calls from people living within • make friends and support each other the local community who were worried about memory • remember the person who has died loss or dementia. We work with Age UK Suffolk and Suffolk • learn about death and bereavement Family Carers to offer a collective service, supporting the • express and understand their feelings Helpline with a local Dementia Advisor service, that visits • find ways to cope with their loss people at home or in their place of choice and provides them • strengthen their emotional muscles with a single point of contact as their condition progresses, “What helped me the most was talking to new friends as well as advice and information on support available to who shared the same sadness.” them. We have also launched two dementia village projects within very rural areas of Suffolk. Operating within a four-mile Emma, 6 years radius, we are running a number of workshops, events and “The first time I went, I felt relaxed, because someone focus groups to map out the local needs and work with else was in my situation.” local people to develop these, meeting the needs of the Warren, 11 years local community. By working in partnership, we aim to: • raise awareness and understanding of dementia across Suffolk • increase early diagnosis rates, access to treatment and help to enable those affected by dementia to manage and live well with the condition and be able to plan what future support will be needed • identify the gaps in local provision and ensure we have the right services in place for the future “What helped me the most was not being judged and being with people my age because they understand me.” Harriet, 12 years There is also an informal support group for parents and carers, while the children and young people take part in the club, they benefit from the mutual support of other parents and carers who have also recently experienced an bereavement. “Knowing that we were not the only family that was grieving so badly really helped me.” Our Synergy Café supports people with dementia and their Kabira, mum carers in a relaxing and safe environment. The café has received interest from Orbit Housing, who have replicating “What helped me the most was being able to chat about many the model and in March 2012 launched a new service in Newmarket, in partnership with us. We are also expanding this subjects, pitfalls, and finding common ground, also similarities in how you cope.” as part of the work we have been doing with developing Steph, mum dementia-aware communities. This will see a Synergy Café being run in four different locations within Suffolk, in addition “He has definitely benefited from the club – meeting children to those run in partnership with Orbit. that have been through bereavement and understanding feelings.” In 2011/12 we launched a MND (Motor Neurone Disease) Tom*, dad Coordinator role within one of our hospices and due to the success of this it has been further extended, and now delivers essential coordinated care to more people locally. We also run a clinic from the hospice on a weekly basis. *name has been changed 12 Sue Ryder – Quality Account 2013/14 In January 2013, in partnership with British Red Cross, Bethany Christian Trust, The Living Well Project, and Parish Nursing, we launched a Befriending service in Aberdeen, titled ‘Aberdeen City Befriending Partnership for older people’. The Befriending Partnership is funded by the Aberdeen City’s Reshaping Care for Older People Change Fund. Within the first year of service, we had 1051 patients registered on our system. 40% of these were from relatives or carers of a patient, with 18% from community district nurses or Macmillan nurses, and the remainder from other healthcare professionals, including on call doctors (7%). 620 of these patients had died, 65% of these died at home, which was where they wanted to be supported and eventually die. Only 11% died in an acute hospital, the percentage was greater prior to PEPS. The charities have come together to provide a service across the city, with Aberdeen Council of Voluntary Organisations (ACVO) as the lead partner responsible to the Change Fund for the delivery of the service. The aim of the service is to help We are working to improve the time when a person is referred people achieve a good quality of life and give them the added to the service to identify real savings in hospital admissions, confidence they need to remain independent in their own but indications to date have showed that when a person was home. It is early days but we have already received some admitted to hospital their length of stay was reduced through really positive feedback on the service. As our contribution, working with the PEPS service. we have taken the lead in producing all the marketing “the time I had left with him, I was able to be his wife, materials for the service, as well as developing a contact not his carer.” system and evaluating the service as it progresses. ✓ We said, we would review our service evaluation in 2012/13, and look at satisfaction levels amongst service users and their families, satisfaction levels amongst staff, achievement of key outcome measures and stakeholder engagement. Comment from a lady we supported as part of the PEPS service We continually evaluate all our services. We have set measures to evaluate the services outlined above at key points over 2013/14. We continue to explore partnership working and approaches to our care delivery when we develop new services. In December 2011, we launched a new service, coordinating 24-hour palliative care and support. Bedfordshire Partnership for Excellence in Palliative Support (PEPS) is an integrated partnership of 15 organisations from the health, social care and voluntary sectors, which have come together to form a central Coordination Centre, hosted by Sue Ryder. Through working together, across a diverse range of providers, we have been able to achieve cross-boundary working in practice, instigating a true culture change for the benefit of the patient. The PEPS service brings together a shared electronic patient record for the first time. PEPS supports the local implementation of the national quality standards for Electronic Palliative Care Coordination Systems, as well as putting into practice the End of Life QIPP programme. In October 2012, it was featured within the Department of Health’s End of Life fourth annual report as an example of good practice, and the service was also a finalist in the Patient Centred Care, Health Service Journal awards. Sue Ryder – Quality Account 2013/14 “There is someone to call at night; don’t feel alone, people appear when they say they will” Comment from a relative we support 13 Priority 4: Service user experience Progress made in 2012/13 To measure the mealtime experience ✓ We said, we would extend the Service User Nutrition and Eating Experience project to embed the ‘Our Mealtimes’ standard. The ‘Our Mealtimes’ standard was launched in June 2012, where we brought together cooks from our services to share ideas for applying the ‘Our Mealtimes’ standard in practice. This was the first time this staff group had met together and one of the aims of the day was to help reinforce the importance of our catering teams in providing a good experience for our service users. The job descriptions of cooks and other members of the catering team working within our care centres and hospices were reviewed, to ensure consistency and reflect the activities they were carrying out. This has helped us to recruit a number of new cooks who collectively bring a wealth of experience and enthusiasm into the organisation. The cooks were brought together again in April 2013 to share the excellent things they have done locally to embed the ‘Our Mealtime’ standard. There were examples of new menus presented in ways that ‘would rival a first class restaurant’ and a tasting session of sweet dishes prepared by the cooks that was very well received and prompted an exchange of recipes. One care centre was working with residents to grow vegetables for use in the kitchen and another had re-decorated the dining area in consultation with service users. The cooks who attended the day shared ideas with regard to how to get real time feedback about the mealtime experience, and how they could become more involved in discussing preferences with service users and their families, and working with nursing staff to support nutritional assessment. ✓ We said, we would analyse the success of the ‘Our Mealtimes’ standard using a themed survey. A survey was circulated during February 2013 and examples of some of the comments are below: “We have lovely place mats and cruet sets which brighten up the café and make it more homely. The addition of comfy seats has also made mealtimes better for some residents.” “The dining room has been painted, and we have chosen new curtains and there are now plants to decorate the room.” Our survey indicated that in some services we need to make our snack menu more visible as not all service users who responded were fully aware of the range of snacks available. The introduction of new ways of obtaining real time feedback will enable us to further improve the mealtime experience and a review of the ‘Our Mealtimes’ standard is planned for 2013/14. ✓ We said, we would look to find a way to incorporate a review of compliance with the revised Nutrition and Hydration Policy into our themed quality visit process. We ensured that a section was incorporated into the ‘Person Centred’ themed quality visit that assessed each service’s approach to meeting the ‘Our Mealtimes’ standard and to assess their compliance with policy by checking records to see how nutritional needs were being assessed and managed. In one of our hospices a patient said that although she had a small appetite, staff had been happy to provide her with little snacks that she had fancied at any time of the day. The dining room expe rience Our mealtimes designed by people A series of standards s with the aim of the who use our service experience for all me best possible mealti Where we choose to eat in a designated dining area we would like: • the choice of where to sit (where possible) and who to sit with • designated dining areas to be clean and tidy • the option to have our food plated or served at the table from serving dishes • tables to be wheelchair friendly where appropriate Special consideratio ns For those of us who have to have our food specially prepared we would like: • these to be prepared to meet our specific dietar y needs • soft food presented in an appetising way • nutritional supplemen ts served in a way that is attractive • referral to a dietician for advice and support if we have special nutritional needs Involvement From the outset, we wou ld like the opportunity to tell staff what our special preferences regarding mealtimes and diet are. We would like to be able to speak with the cook or catering assistants so that about the range of menu we can give feedback options and the qualit y of service and food. Where we are in a reside ntial care setting we would like to have the oppor tunity to have our own ‘food group’ where we can discuss and influence menu options, the mealtime experience and other related factors. Other consideratio ns: We would like: • hot and cold beverages available 24 hours a day • biscuits and fresh fruit availa • a choice of snacks availa ble 24 hours a day ble for out of normal kitchen operating hours • locally grown fruit and vegetables where possib le • the chance to take part in some home growing of produce where we are in a residential care centre and where there is the facility to do so 14 Sue Ryder – Quality Account 2013/14 ✓ We said, we would continue to consult with our national service user advisory group on nutrition and mealtime priorities. The ACORNS group have been updated at each meeting about the progress in introducing the ‘Our Mealtimes’ standard and have enthusiastically supported the project having been influential in initiating the project in the first instance. At the meeting in March 2013 there were reports from two of our care centres that residents were starting to grow vegetables and herbs to support the production of meals within the care centre kitchen. This demonstrated further progression towards the ‘Our Mealtimes’ standard. ✓ We said, we would review the food safety procedures. There is a new Food Safety Policy and supporting guidance documents for ‘food handlers’. To test compliance with food safety principles we used an external company to carry out inspections in all of our kitchens. The Health and Safety Team have provided assurance to the Health and Social Care Governance Committee that any identified actions have been addressed, and there will be an annual audit reporting to our Health and Social Care Governance Committee. Myla, a unit lead nurse from one of neurological centres, looked at the development of a clinical skills competency assessment for staff and student nurses for Percutaneous Endoscopic Gastrostomy (PEG) feeding as her RCN Clinical Leadership Project. Myla wanted to address the nutritional needs of service users needing PEG feeding as well as increasing the knowledge of guidelines around PEG feeding amongst staff, especially new starters. Myla created a competency assessment to demonstrate learner knowledge and skills for safe and effective practice, with staff having an increased understanding and skills, improving the overall experience of care for the people we support. Sue Ryder – Quality Account 2013/14 15 Priority 5: Service user experience Progress made in 2012/13 To ensure service user and staff safety by reducing the risk of sharps injury ✓ We said, we would adhere to the European Union directive to standardise sharps assessments and increase awareness for all front line staff on better sharps management by May 2013. The Infection Prevention and Control Lead has worked alongside heads of care and health and safety in identifying the risky procedures carried out in our services. Each service was asked to identify what equipment could be replaced with safety engineered alternatives or a sharp not to be used at all. We have issued a ‘Learning for Safety’ memo on sharps injuries and are producing procedures on better sharps management. ✓ We said, we would hope to have all our staff suitably skilled and equipped with the right tools to minimise the risk of needle stick injury. Working closely with local NHS care providers, each service has identified the locally favored safety equipment, purchased the new equipment and initiated staff training, either through medical equipment representatives or through the ‘train the trainer’ approach. Ensuring that each service uses equipment familiar to community and acute local services will minimise the risk of incorrect usage by intern, bank and agency staff. All services have been provided with small sharps boxes in order to ensure any sharp/needle is safely disposed of at the patient’s side. Needle stick and sharps reporting has shown that a higher number of staff are being treated correctly following an incident and being immediately assessed by a doctor either via accident and emergency or by the in-house doctor. 16 Sue Ryder – Quality Account 2013/14 ✓ We said, we would aim to assess the risk of sharps injury in every centre. Every incident reported through our electronic reporting system, Datix, is monitored by the Infection Prevention and Control Lead. Each service is contacted after the event and offered support, suggestions and guidance about responding to the incident but also looking at ways to minimise the risk of this incident, happening again. A support staff member is identified to offer support to any staff member who is required to give a blood sample to test for any acquired blood borne virus acquired during this exposure. There are no reports of any staff member acquiring a blood borne virus whilst working in our centres this year. There have been 15 needle stick incidents this year, 12 in palliative care services and three in our neurological services. The higher number from palliative services reflects the high use of equipment in these clinical care environments. ✓ We said, we would identify safer sharps equipment and clinical practice to minimise injury. We have reviewed our sharps materials and equipment and are standardising safer sharps procurement. Each service area has a comprehensive list of safer sharps equipment and has reviewed practice regarding sharps management. ✓ We said, we would aim to offer consistent teaching programmes, identifying those at risk and ensure they are offered appropriate immunisation. By the end of 2013 we will be offering immunisation within all our neurological, homecare and palliative care services for blood borne viruses. The infection prevention and control training is mandatory and provided annually to all staff. Our education staff have been supported by the Infection Prevention and Control Lead to ensure this is consistent across the organisation. Part three: our priorities for improvement 2013/14 Priority 2: Service user safety Priority 1: Service user experience To further develop tools to measure how personcentred support is delivered in our services To manage the risk of harm from medication by piloting new ways of working with technology In 2013/14 we will: In 2013/14 we will: • explore and embed the use of hand-held devices in hospice settings to gain feedback in real time • review current systems available electronically in hospices for prescribing and administration • develop electronic tools for capturing feedback consistently across all hospices • raise awareness about medicines risk for all staff by including case studies in the two-yearly competency review • expand the skills and commitment of our volunteers by piloting a development programme to equip them to gain feedback from patients and carers outside of the professional workforce • review the medicines competencies and ensure all education leads receive reports on incidents, and include this information as standard in training • continue specialist review of all medicines incidents • enhance links with volunteer coordinators in each hospice to deliver local education and support programmes to help us capture user experience Executive Leadership Team (ELT) Sponsor Steve Jenkin, Director of Health and Social Care Executive Leadership Team (ELT) Sponsor Steve Jenkin, Director of Health and Social Care Implementation Lead Sue Hogston, Head of Clinical Quality and Nurse Lead Implementation Lead Sue Hogston, Head of Clinical Quality and Nurse Lead Programme Manager Angela Kilip, Quality Manager and Service User Experience Lead Mark Woodfield, IT Systems Manager Programme Manager Helen Press, Quality and Risk Manager Mark Woodfield, IT Systems Manager Sue Ryder – Quality Account 2013/14 17 Priority 3: Effectiveness Priority 4: Service user experience To further develop our activity programmes To measure our culture for care delivery and safety, using a cultural barometer In 2013/14 we will: In 2013/14 we will: • review service user survey results for activity groups that run at our neurological and palliative care centres • work with service users to develop a standard, which reflects our approach to person-centred care and support for meaningful activities and pursuits • ensure there is a launching of the standard, bringing together staff and volunteers who facilitate activities and pursuits • have a facilitated self assessment workshop and action plan for each centre, working with their linked quality manager • report on the overview of safety culture maturity to be presented at Health and Social Care Governance Group • monitor service actions via local Quality Improvement Groups and assess through quality visits and audits • measure progress through existing surveys, audits and the ACORNS group Executive Leadership Team (ELT) Sponsor Steve Jenkin, Director of Health and Social Care Executive Leadership Team (ELT) Sponsor Steve Jenkin, Director of Health and Social Care Implementation Lead Sue Hogston, Head of Clinical Quality and Nurse Lead Implementation Lead Sue Hogston, Head of Clinical Quality and Nurse Lead Programme Manager Rudo Nyakuhwa, Quality Manager Education and Training Programme Manager Helen Press, Quality and Risk Manager 18 Sue Ryder – Quality Account 2013/14 Priority 5: Service user experience Priority 6: Service user experience To share learning from complaints and concerns and publishing this information when it relates to up held complaints regarding care delivery To measure the effectiveness of new equipment for service user and staff safety following the introduction of ‘safer sharps’ In 2013/14 we will: In 2013/14 we will: • revise the Complaints Policy and associated templates (following national recommendations from the Francis Report 2013) • conduct a specialist review of all sharps injuries throughout the year • revise the information for service users on how to express a concern or make a complaint • monitor compliance against national standards for availability of equipment and staff attendance at our vaccinations programme • provide multiple ways through which concerns regarding care delivery can be raised and ensure these are published widely in our centres and central offices Executive Leadership Team (ELT) Sponsor Steve Jenkin, Director of Health and Social Care Executive Leadership Team (ELT) Sponsor Steve Jenkin, Director of Health and Social Care Implementation Lead Sue Hogston, Head of Clinical Quality and Nurse Lead Implementation Lead Sue Hogston, Head of Clinical Quality and Nurse Lead Programme Manager Helen Press, Quality and Risk Manager Programme Manager Lesley Bates, Quality and Effectiveness Manager Sue Ryder – Quality Account 2013/14 19 Part four: indicators 1. Service user experience – all services Service user experience is measured within the annual service user surveys in the following ways: • percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ • percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity Neurological care Palliative care l 2011/12* l 2012/13 l 2011/12 l 2012/13 Rated overall care Rated overall care Treated with respect and dignity Treated with respect and dignity 0 10 20 30 40 50 60 70 80 90 100 % 90 100 % *2011/12 results for neurological care included Hickleton Hall Community support and homecare services l 2011/12 l 2012/13 Rated overall care Treated with respect and dignity 0 20 10 20 30 40 50 60 70 Sue Ryder – Quality Account 2013/14 80 0 10 20 30 40 50 60 70 80 90 100 % In 2012/13 we introduced the NHS Net Promoter Score to our hospices which measures how likely service users are to recommend the service to family and friends. Our overall hospice score = 95 The response rate to our surveys is dependent upon those who are willing or able to complete the survey and therefore does not necessarily represent the experience of all. 1.1 Neurological care 2012/13 Survey Centre Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity 93% 85% 95% 93% 95% 76% 100% 95% 95% 87% 95% 83% Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity Those likely to recommend the service (Net Promoter Score) 100% 100% 99% 98% 98% 99% 98% 100 94 89 n/a 94 100 100 Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity 81% 100% 96% 94% 95% 97% 1.2 Palliative care 2012/13 Survey Hospice Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ Leckhampton Court Manorlands Nettlebed St Johns Thorpe Hall Duchess of Kent House (West Berkshire services) Wheatfields 100% 99% 99% 99% 98% 98% 100% 1.3 Community support and homecare services 2012/13 Survey Service Angus Homecare Heyeswood Stirling Homecare Sue Ryder – Quality Account 2013/14 21 1.4 Person-centred care audit In 2012/13 we developed a set of person-centred standards for our service users in neurological care. As part of an audit of these standards we interviewed 21 service users across our centres to measure how well we are meeting these standards. We measured the percentage of service users in the sample who responded ‘Always’ or ‘Sometimes’ to the following questions. We felt this was a better means of applying the principles of a ‘net promoter’ type score within neurological care provision. Survey Responded ‘Always’ or ‘Sometimes’ Feel involved in writing their support plan Feel they are treated with privacy and dignity Feel confident that their support plan will be changed to reflect their needs and wants changing Feel they have the opportunity to influence menus Feel they have the opportunity to eat where and with who they want to Feel listened to Feel confident that they can talk to any staff member The service provides activities that are meaningful to you 86% 100% 85% 86% 95% 95% 95% 95% 1.5 Formal complaints We define a formal complaint as ‘an expression of discontent to which a response is required’. With reference to our Complaints Policy, the complaint is considered formal when it is received orally, in writing or electronically and cannot be resolved within 24-hours of receipt. 40% (n=10) of our services had no complaints between April 2012 and March 2013. The target in the Complaints Policy for the initial holding response to complaints is three working days. Where the complaint was initially received by a service, and where the complaint was by a named complainant 100% were acknowledged within the timescale. This is an improvement on last year when 76.4% of complaints were acknowledged within three days. The target in the Complaints Policy for the final written response to a complaint is 20 working days, however the policy does acknowledge that in some instances this is not possible. This would usually be where the investigation is complex. In these cases all services aim to maintain contact with the complainant, giving a report of progress. Of those complaints where the complainant gave their name and where they requested a formal response, in 17 out of 18 instances the 20 working day target was met. Where the target time was not met the complainant was sent a holding letter to explain the delay. All complaints were resolved locally. These figures are comparable with last year’s data. 22 Sue Ryder – Quality Account 2013/14 The tables below show formal complaints figures for all services for April 2012-March 2013: Neurological care Complaints Centre Number of formal complaints in 2011/12 Number of formal complaints 2012/13 Percentage of formal complaints aknowledged within 3 days Percentage of formal complaints responded to in writing within 20 days 0 2 2 0 0 3 0 1 2 0 0 0 – 100% 100% – – – – 100% 100% – – – Number of formal complaints in 2011/12 Number of formal complaints 2012/13 Percentage of formal complaints aknowledged within 3 days Percentage of formal complaints responded to in writing within 20 days Upheld/ Not upheld Leckhampton Court 5 2 100% 100% 1 upheld 1 partially upheld Manorlands 1 1 100% Did not want a formal response Yes Nettlebed 3 1 (CNS Service) 100% 100% Partially St Johns 2 0 – – – Thorpe Hall 1 2 100% 100% 1 upheld Duchess of Kent House (West Berkshire services) 8 10 100% 90% 5 partially upheld 3 upheld 1 not upheld 1 anonymous complaint with insufficient detail to be investigated Wheatfields 0 Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagehhoe Upheld/ Not upheld – 1 upheld 2 partially upheld – – – Palliative care Complaints Hospice Sue Ryder – Quality Account 2013/14 Where not met a holding letter of explanation was sent 1 100% 100% 1 upheld 23 Community support and homecare services Complaints Service Number of formal complaints in 2011/12 Number of formal complaints 2012/13 Percentage of formal complaints aknowledged within 3 days Percentage of formal complaints responded to in writing within 20 days Upheld/ Not upheld Fourways Suffolk 0 0 – – – Angus Homecare 0 3 – – 2 upheld 1 partially upheld Heyeswood Extra Care 0 0 – – – Stirling Homecare 8 1 100% 100% 1upheld Doncaster Befriending Service Doncaster Community Service 0 0 – – – – 0 – – – 2. Safety 2.1 Incidents There have been no incidents that have resulted in the death of service users in 2012/13. There was one incident relating to permanent harm, for a fracture which occurred following a fall, and was investigated fully with family and commissioners involved. A like for like comparison of current services shows a small reduction in incidents, however we shall monitor this and ensure reporting of incidents will continue to be a priority for us in 2013/14. We commend our staff for ensuring that all accidents, incidents and near misses are appropriately reported so that we can learn from such incidents and strive to improve our care in order to minimise patient safety issues. The National Patient Safety Association recognises that high reporting is a mark of a ‘high reliability’ organisation. Research shows that providers with significantly higher levels of incident reporting are more likely to demonstrate other features of a stronger safety culture. 2.2 Number of incidents affecting service users 2012/13 Indicator Neurological care 2011/12 2012/13 Number of incidents resulting in death Number of incidents resulting in permanent or long term harm Number of service user slips, trips or falls resulting in hospital visit Number of reports under RIDDOR – – 13 1 – 1 2 0 Palliative care 2011/12 2012/13 – – 1 0 – – 4 0 Homecare 2011/12 2012/13 – – 10 0 Within our homecare services, slips, trips and falls have been reported by the service but have not occurred during active care delivery. Our health and safety team review all incidents reported by services. They have supported frontline staff to ensure guidance regarding RIDDOR* reporting is understood. * RIDDOR – Reporting of Injuries, Diseases and Dangerous Occurrences Regulations 24 Sue Ryder – Quality Account 2013/14 – – 6 0 2.3 Number of medication incidents 2012/13 Neurological care Centre Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Total Minimal harm, person required extra observation or minor treatment Moderate (short term harm – person required further treatment) – 9 1 1 2 6 19 – – – – – – – There have been no medication incidents causing moderate or severe harm to service users in neurological care. We encourage reporting of all incidents involving medicines, for example, any issues with late administration or of obtaining prescriptions to identify trends and learning across care settings. The above represents 38% of all medicine incident reports in neurological care. Palliative care Hospice Leckhampton Court Manorlands Nettlebed St Johns Thorpe Hall Duchess of Kent House (West Berkshire services) Wheatfields Total Minimal harm, person required extra observation or minor treatment Moderate (short term harm – person required further treatment) 1 5 5 3 13 6 6 39 2 – – – 1 – – 3 There have been no medication incidents causing severe harm to service users in palliative care. We encourage reporting of all incidents involving medicines. These include, for example, any issues with late administration or of obtaining prescriptions to identify trends and learning across care settings. The above represents 13% of all medicine incident reports in palliative care. Community support and homecare services Service Heyeswood Angus Homecare Stirling Homecare Minimal harm, person required extra observation or minor treatment Moderate (short term harm – person required further treatment) – – – 1 – – There have been no medication incidents causing severe harm to service users in homecare but one causing moderate harm, this incident was reviewed using a root cause analysis approach and we openly communicated with the patient and their family from the initial incident until resolution, which did require treatment at an acute hospital. We encourage reporting of all incidents involving medicines, for example any issues with late administration or of obtaining prescriptions to identify trends and learning across care settings. The above represents 10% of all medicine incident reports in community support services. Sue Ryder – Quality Account 2013/14 25 2.4 Regulatory inspection results Neurological care Centre Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Date of last check from CQC Standards of treating people with respect and involving them in their care Standards of providing care, treatment and support which meets people’s needs Standards of caring for people safely and protecting them from harm Standards of staffing Standards of management 6 March 2013 11 January 2013 17 September 2012 ** 4 July 2012 2 November 2012 ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ** Dee View Court is inspected by the Care Inspectorate in Scotland Centre Dee View Court Date of last quality visit Quality of care and support Quality of environment Quality of staffing Quality of management and leadership 17 August 2012 6 (Excellent) 5 (Very Good) 6 (Excellent) 6 (Excellent) Palliative care Hospice Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent House Wheatfields 26 Date of last check from CQC Standards of treating people with respect and involving them in their care Standards of providing care, treatment and support which meets people’s needs Standards of caring for people safely and protecting them from harm Standards of staffing Standards of management 1 March 2013 4 January 2013 20 February 2013 20 November 2012 13 December 2012 4 January 2013 29 December 2012 ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ Sue Ryder – Quality Account 2013/14 Community support and homecare services Service Date of last check from CQC Standards of treating people with respect and involving them in their care Standards of providing care, treatment and support which meets people’s needs Standards of caring for people safely and protecting them from harm Standards of staffing Standards of management Fourways (supported living unit) 24 November 2012 Heyeswood 2 January 2013 ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ Service Angus Homecare Stirling Homecare Date of last quality visit Quality of care and support, Quality of environment Quality of staffing Quality of management and leadership January 2013 May 2013 4 (Good) 6 (Excellent) Not assessed Not assessed 4 (Good) 6 (Excellent) 4 (Good) 5 (Very Good) For more information about our inspection results for our palliative, neurological and community support services in England, please visit the Care Quality Commission website. For more information about our inspection results for our services in Scotland, please visit the Care Inspectorate website. Sue Ryder – Quality Account 2013/14 27 3. Effectiveness Health Care Acquired Infections (HCAI) and pressure ulcers The number of infections and pressure ulcers across all neurological and palliative centres reflects the period between April 2012 and March 2013. Cases are identified as those which were acquired by the service user whilst under our care, and those acquired prior to the service user being admitted to one of our services. Number of HCAI (2012/13) Neurological care Health Care Acquired Infections Acquired external to service Acquired within own service Acquired external to service Acquired within own service Acquired external to service 0 0 0 0 0 0 0 0 0 0 0 0 0 2 0 0 0 0 0 2 5 6 0 0 0 0 0 0 0 11 7 0 5 5 3 1 2 0 0 23 5 6 0 0 0 0 0 0 0 11 7 0 5 7 3 1 2 0 0 25 Number of HCAI (2012/13) Health Care Acquired Infections (2012/13) l acquired within own service l acquired external to service Clostridium Difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) Hepatitis (A, B or C) Tuberculosis Influenza 28 2 4 6 8 Total Acquired within own service Clostridium Difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) Hepatitis (A, B or C) Tuberculosis Influenza Total 0 Palliative care 10 Sue Ryder – Quality Account 2013/14 new cases Number of HCAI by service (2012/13) Neurological care Centre Constridium Difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Constridium Difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) 4 0 3 0 1 1 3 12 0 1 0 0 0 0 5 6 1 1 2 0 0 1 0 5 4 0 0 0 1 0 0 5 0 1 1 0 0 1 0 3 0 0 0 0 0 1 0 1 Birchley Hall Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Total Hepatitis Tuberculosis (A,B or C) 0 0 0 0 0 0 0 Influenza 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Hepatitis Tuberculosis (A,B or C) Influenza Palliative care Hospice Duchess of Kent House Leckhampton Manorlands Nettlebed St Johns Thorpe Hall Wheatfields Total  1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3.1 Pressure ulcers 2012/13 The number of pressure damage reports has increased over 2012/13. This increase is reflected in both those admitted to our services with pre-existing pressure damage and reports of pressure damage occurring whilst patients and residents are within our services. It is important to note that 2011/12 saw a focus on education and recognition of pressure damage across all services, this has continued into 2012/13. The increase in reporting reflects the overall increase in reporting; all incidents of pressure damage are investigated. All service users have an assessment of their skin integrity. Pressure relieving equipment is available in all care settings. In 2012/13 we had three incidents of grade 3 damage; two of these occurred in our hospice care. We use a root cause analysis approach (one of the recommended National Patient Safety Agency tools) to review such incidents. In all instances the care was assessed to be of high quality, with damage directly linked to a pre-existing irreversible condition. These instances are reported to identify trends and themes and will be one of our priorities for next year.  Pressure ulcers (2012/13) l acquired within own service l acquired external to service Neurological care Palliative care 0 50 100 150 200 Sue Ryder – Quality Account 2013/14 250 new cases 29 Number of pressure ulcers by service 2012/13 compared with previous year Neurological care Centre 2011/12 Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Total 2012/13 Acquired within own service Acquired external to service Acquired within own service Acquired external to service 5 4 0 3 3 1 16 – 2 1 4 1 4 12 7 11 0 3 4 4 29 2 2 1 0 1 0 6 Palliative care Hospice 2011/12 Duchess of Kent House Leckhampton Court Manorlands Nettlebed St Johns Thorpe Hall Wheatfields Total 30 Sue Ryder – Quality Account 2013/14 2012/13 Acquired within own service Acquired external to service Acquired within own service Acquired external to service 2 15 14 11 13 2 12 69 11 23 29 9 51 23 14 160 8 17 5 10 18 22 9 89 19 26 19 15 54 47 11 191 Number of pressure ulcers (compared to last year) (2011/12 adjusted for Hickleton) Pressure ulcers (acquired within Sue Ryder) l 2011/12 l 2012/13 Pressure ulcers (acquired external to Sue Ryder) l 2011/12 l 2012/13 Neurological care Neurological care Palliative care Palliative care 0 50 100 150 200 250 new cases 0 50 100 150 200 250 Neurological care Palliative care Pressure ulcers (acquired within Sue Ryder) l 2011/12 l 2012/13 Pressure ulcers (acquired within Sue Ryder) l 2011/12 l 2012/13 Birchley Hall Duchess of Kent House The Chantry Leckhampton Cuerden Hall Manorlands Dee View Court Nettlebed Holme Hall St John’s Stagenhoe Thorpe Hall 0 2 4 6 8 10 12 new cases Wheatfields 0 Sue Ryder – Quality Account 2013/14 new cases 5 10 15 20 25 new cases 31 Part five: annexes Annex 1 There is a legal requirement to report on this section: • during the period of this report, 1 April 2012 to 31 March 2013 Sue Ryder provided NHS-funded Community Health Services through its 7 Adult Hospices, 8 Day Hospices, 1 Hospice at Home service, 3 Community Nursing Services, 5 Care Homes with Nursing*. In addition to these services we also delivered care within 1 Care Home without nursing, 1 Supported Living Service and 1 Extracare Service • Sue Ryder has reviewed all the data available to it on the quality of care in all of the services detailed in the preceding section • the percentage of NHS funding is variable depending on the nature of the service and ranges from 35 per cent to 90 per cent of the total cost of providing the service. The shortfall is met from Sue Ryder charitable income • the income generated by the NHS services reviewed in the period 1 April 2012 to 31 March 2013 represents 100 per cent of the total income generated from the provision of NHS services by Sue Ryder for the period 1 April 2012 to 31 March 2013 • during the period from 1 April 2012 to 31 March 2013 there were no national clinical audits or national confidential enquiries covering the NHS services that Sue Ryder provides – Sue Ryder sets an annual core audit programme that runs from April – March each year. The core audit programme is risk driven, and for hospices and neurological care centres includes record keeping, medicines management, falls prevention, manual handling, pressure ulcer assessment and management, care at end of life (neurological centres), infection prevention and control including environmental and hand hygiene audit – the monitoring, reporting and actions following these audits ensure care delivery is safe and effective. Each service reports audit findings into their local Quality Improvement Group. The Healthcare Governance Committee for Sue Ryder receives a twice yearly overview of audit results and actions taken in response. Learning from audits is summarised and shared across health and social care via Learning for Safety Memos • from 1 April 2012 to 31 March 2013 Sue Ryder was not eligible to participate in national clinical audits • the number of patients receiving NHS services provided by Sue Ryder from 1 April 2012 to March 2013 that were recruited during that period to participate in research approved by a research ethics committee was 20 patients • Sue Ryder income in this reporting period for three hospices was conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment agreed via local commission groups from PCTs 32 Sue Ryder – Quality Account 2013/14 • Sue Ryder is required to register with the Care Quality Commission and its current status is registered. Sue Ryder’s registration is subject to conditions. These conditions include the registered provider, number of beds for the following areas: 31 March 2013 – accommodation for persons who require nursing or personal care – diagnostic and screening procedures – nursing care – personal care – transport services, triage and medical advice provided remotely – treatment of disease, disorder or injury • Sue Ryder has not participated in any special reviews or investigations by the CQC during the reporting period • Sue Ryder did not submit records during the period from 1 April 2012 to 31 March 2013 to the Secondary Uses service for inclusion in the Hospital Episode Statistics which are included in the latest published data • Sue Ryder will be eligible to be scored for the period April 2012 to 31 March 2013 for Information Quality and Records Management, assessed using the Information Governance (IG) Toolkit. The eligibility to be scored this year is due to a change in our organisation type and amendments to the IG Toolkit. Previously the only option that was available to Sue Ryder, when first taking NHS services, was as a “Commercial Third Party”. This did not focus on Information Quality and Records Management. Last year a new organisation type within the IG toolkit, “NHS Business Partner”, was introduced and, since it is applicable to us, we self assessed and submitted our evidence for level 1 (Amber) • Sue Ryder was not subject to the Payment by Results clinical coding audit during the period 1 April 2012 to 31 March 2013 by the Audit Commission • Sue Ryder will be taking appropriate actions to improve data quality. We will do this through – increased awareness in the importance of reporting – training including how to use our documentation templates – identifying trends through our balanced scorecard reporting system – ‘learning for safety’ memos for when systems and processes change • some of the people we support may be local authorityfunded, dependent on their needs Annex 2 Statements from Lead Commissioning Primary Care Trusts (PCTs), the Overview and Scrutiny Committee (OSC) and Local Involvement Networks (LINk’s) Feedback from NHS Leeds CCGs “Leeds South and East Clinical Commissioning Group welcomes the opportunity to comment on this quality account from Sue Ryder. Leeds South and East CCG is also providing this comment on behalf of Leeds North and Leeds West CCGs, all of whom commission services from Wheatfields Hospice. We believe the Account to be a fair representation of the quality of services provided by the hospice. As none of the information included in the Account is reported to the CCG as part of the contractual arrangements, we are unable to verify accuracy, although we have no reason to believe otherwise. We feel that the Account is concise and readable, and provides a good overview of quality within the organisation. With respect to the review of progress against last year’s priorities, we are pleased to see the progress made in measuring how patient-centred support is delivered but note the partial delivery of measuring personalisation of care through the use of ‘mystery shoppers’. We are pleased to note the intention to look at the development of technology-based solutions in the future. It is not clear from the narrative what progress was made in developing evidence based tools through engaging with ACORNS and the clinical leadership programme other than the introduction of a newsletter. We acknowledge and commend the continued high scores for patient satisfaction, but feel that combining number of patients who responded ‘sometimes’ with those who responded ‘always’ in the neurological centre person centred care audit could present a misleading position. Showing percentage of each type of response may have presented a clearer picture. We commend the organisation on being open with regard to the number and types of incidents affecting service users. We note the significant reduction against the previous year in reported falls in neurological services and the increase in falls in palliative care services. We are pleased to note full compliance with all standards following CQC and Care Inspectorate visits. We note the general increase in number of service-acquired pressure ulcers compared to 2011-12. We are supportive of the proposed priorities for 2013-14 but feel that the inclusion of proposed actions to reduce the number of pressure ulcers as one of the priority areas would have demonstrated a clearer response and commitment to this issue. We support the organisation in the priority areas proposed for 2013-14 including the identification of those responsible for implementation. We are particularly pleased to note the intention to further develop activity programmes as this is an issue commonly raised by users. We are also pleased to note the intention to publish learning from complaints and concerns. We would like to thank Sue Ryder for providing the Leeds CCGs We are pleased to note that all services received a visit from the with the opportunity to comment on this Quality Account, and national Clinical Quality Team focusing on person-centred care, look forward to improvements in service quality and patient and that as a result the provision of meaningful activities for care as a result of the priorities outlined within it.” service users in neurological care centres was identified as an area requiring improvement. We are pleased to note the focus on reducing the risk of harm from medication and the work that has taken place to support this, including all medicine related incidents being reviewed by a member of the Clinical Quality Team. We were particularly pleased to note the sharing and spread of good practice in relation to the introduction of a pre-admission checklist and development of an information leaflet. The development of initiatives in support of those affected by dementia and a club to support bereaved children is also highly commended. We also note the progress made in measuring and improving the meal time experience and the work undertaken in support of reducing the risk of sharps injury to service users and staff. Sue Ryder – Quality Account 2013/14 33 Annex 2 Aylesbury Vale & Chiltern Clinical Commissioning Groups (CCG) “Aylesbury Vale & Chiltern Clinical Commissioning Groups have reviewed the Sue Ryder Quality Account against the three domains of Quality: Patient Experience, Patient Safety and Clinical Effectiveness. There is evidence that the organisation has relied on both internal and external assurance mechanisms an example of such being the Care Quality Commission reports and the commissioners are satisfied as to the accuracy of the data contained in the Account. The report provides a balanced overview of the Trust. It not only identifies their achievements to date, but also areas within their service delivery where improvements could be made. The Clinical Commissioning Group’s (CCG) welcome the openness and transparency of this approach and are committed to supporting Sue Ryder in achieving improvement in the areas identified within the Quality Account through existing contract mechanisms and collaborative working. The key purposes of the Quality Account are to support the organisation’s Board in assessing quality of the services they offer and to help patients make choices between different providers. The report is mainly successful in this area; however the commissioners would have liked to see some form of benchmarking against other providers. Whilst we acknowledge that it is difficult to find peer trusts delivering the same profile of care, comparisons with other specialist services would be possible. The Trust clearly understands the need for integrated working; this is clearly evidenced within a number of new initiatives, which have come on line during 2012/13. What was not clear is whether the initiatives piloted at singular sites, have or will be rolled out across all Sue Ryder localities. Patient experience: The Quality Account describes the commitment of Sue Ryder to use the experiences of people who are touched by their services to develop their services. Examples of this is the development of the pre admission pack for in-patients, their commitment to support patient centred care through the “No Decision about me, without me” initiative and the use of Patient Participation Groups (ACORNS). As commissioners we welcome this approach and would encourage its continuation. In the setting in which Sue Ryder operates, it is essential to ensure the highest standard of patient experience. We are pleased to see that this is being achieved and where this falls short, steps are taken to correct. 34 Sue Ryder – Quality Account 2013/14 It was positive to see the survey results for patient experience had improved from 2011/12. We note a marked improvement in the neurological setting. The results highlighting service users views of the Sue Ryder is also to be commended with nearly all palliative care settings receiving a 100% in the “good to excellent” section, in relation to the service users overall care. Patient Safety: The Commissioners wish to commend Sue Ryder for the continuation of the Clinical Leadership Programme; this is now in its third year. As commissioners we see leadership as a key element to the delivery of patient safety and experience. The development work in relation to the education for PEG feeding appears to be a positive step forward in ensuring that Sue Ryder staff have the knowledge and skills to perform challenging tasks. This also provided assurance that the nutritional requirements of patients were being considered as well as the assurance that patients challenged in this area were being safeguarded. The report shows that the number of reportable incidents reduced from the previous year. The commissioners were concerned at the proportion of Slips, trips and falls experienced across the services and would have liked to see some reassurance about actions planned to reduce this in 2013/14. We also note that the number of pressure ulcers acquired whilst in the care of Sue Ryder has almost doubled from the previous year, the commissioner note the education in recognising pressure ulcers which took place in 2011/12, however we are not assured that this alone has been the primary cause for the increase and would like further assurance that this area is of the highest priority with an associated action plan for the 2013/14 year. Clinical effectiveness: We recognise the commitment to partnership working as a key tool to enhancing effectiveness, as commissioners we are reassured to see this commitment move forward from 2012/13 to the 13/14 year. The work with Age UK is a good example when setting up the Dementia helpline. We were unclear however, whether this success would be shared and replicated to cover Buckinghamshire patients. Good nutrition is recognised as a key to promoting health and wellbeing, Sue Ryder has clearly made a commitment to increasing the standards in this area and have launched the scheme known as “Our Mealtime Standards” we welcome this as a positive step forward. The Future: The 2013/14 priorities contained in the Quality Account are consistent with priorities agreed with both commissioners and those within the Francis Report. We are particularly pleased with the initiatives, which Sue Ryder has committed to in order to deliver enhanced quality. Conclusion: This Quality Account provides a comprehensive overview of the quality of care within the organisation and commissioners look forward to continuing to work with the provider in meeting the quality aspirations of local users, carers, partners and staff. It is clear that the organisation is positively embracing an integrated style of working across the health and social care sectors and welcomes the benefits this will bring to service users and their families/carers.” Gloucestershire Clinical Commissioning Group “Gloucestershire Clinical Commissioning Group is pleased to have the opportunity to comment on the Sue Ryder Quality Account. We continue to have an excellent relationship with our Sue Ryder colleagues in Gloucestershire and are pleased to see the progress that has been made in a number of areas over the last year; particularly the focus on patient experience and patient centred care. The following organisations received our Quality Account for 2012/13 but were unable to provide comments or feedback this year. • Bedfordshire Clinical Commissioning Group • Bradford NHS • Camden Healthwatch • Central Southern Commissioning Support Unit • Suffolk County Council ACORNS The Quality Account priorities for 2012/13 were agreed by ACORNS at their meeting in March 2013. The draft Quality Account was then circulated for comment. A summary version of the Quality Account will be developed for service users, their families and for display within our centres, as this has proved popular. Sue Ryder is an integral and valued partner in the delivery of local palliative care services and we are delighted to see the high levels of patient satisfaction reported in the Account. There are regular meetings with the local commissioning lead at which reports and information supporting the delivery of quality services is shared. While we note the increase in the numbers of falls and incidence of pressure sores in palliative care this does not necessarily identify a trend and we believe Sue Ryder should be commended for their transparency and honesty in reporting these incidents. We look forward to working closely with our colleagues to support improvement and understanding in these areas. Gloucestershire CCG welcomes the setting of clear priorities for 2013/14 and looks forward to continuing to work collaboratively on new initiatives to improve services across Gloucestershire for patients.” Our response to the comments we received The comments we have received from commissioners are important to us and we value the time taken in reviewing our performance, initiatives and priorities for the year ahead. Each of the comments and particularly the areas for improvement will be factored into our Quality Improvement Plans, specifically on falls and pressure ulcers prevention. We will document the progress made and actions taken in next year’s Quality Account. Sue Ryder – Quality Account 2013/14 35 Sue Ryder 1st Floor 16 Upper Woburn Place London WC1H 0AF For more information call: 0845 050 1953 email: healthandsocialcare@sueryder.org visit: www.sueryder.org This document is available in alternative formats on request. Sue Ryder is a charity registered in England and Wales (1052076) and in Scotland (SC039578). Ref. No. 001850/B/NP/H © Sue Ryder. June 2013.