30 years of caring Annual Quality Account 2011 - 2012 Registered charity no.297798 Chief Executive’s Statement Hospiscare is committed to providing high-quality palliative care, in all settings in our locality, that exceeds patient and family expectations. I am pleased to present this Quality Account 2011/12 and confirm, to the best of my knowledge, that it is accurate and a fair representation of the quality of healthcare services provided by Hospiscare. We provide high-quality care at our hospice in Exeter, through our community palliative care teams, day care services and through our hospital support team at the Royal Devon and Exeter Foundation Trust. Glynis Atherton Chief Executive Officer Hospiscare is a charity and raises 75% of its income from Hospiscare voluntary sources and receives the remaining 25% as a grant from NHS Devon. Our commitment to quality is underpinned by a robust clinical governance structure that includes meetings of the Clinical Governance Committee (a sub-committee of the Board of Trustees) significant event analysis and regular audits. “I would like to say a big ‘thank you’ to everyone at Hospiscare, which includes cleaners, kitchen workers and volunteers. The compassion and dedication of everyone is truly amazing.” (Relative) Hospiscare was registered with the Care Quality Commission on 1 October 2010. They assessed our declarations and evidence and found that we were meeting all their standards. 1 Hospiscare’s Values Hospiscare's values underpin everything we do and flow to meet the spiritual, emotional, social and physical needs of people approaching the end of their lives. throughout the organisation. We provide timely and accessible services We strive to make Hospiscare’s service accessible to all who need it when it is needed. We work to remove unnecessary barriers to access, and have a ‘no waiting’ culture. Why we are here: We believe that dying is an important part of living The last chapter of people’s lives is of high value, so we strive for the best possible quality of life, including freedom from pain and fear, during this period. We make best use of the resources given to us by the community The effectiveness and sustainability of Hospiscare depends on robust systems which promote efficiency and accountability and reassure supporters that best value is delivered. Respect for the individual We respect individuals’ choices for how they live every moment of their life. We treat every patient as an individual, personalising our service to their needs. Balance in life to achieve well-being For patients, we recognise the need to balance unpleasant treatments with positive therapies such as massage. For patients’ relatives, we recognise the need to grieve, but we encourage them to live as well. For staff, we recognise the importance of a work/life balance. We act fairly according to the needs of patients and our staff, both paid and voluntary We value equity: impartial provision of service that is fair according to need. Our aim is to ensure that similar levels of need are met to similar degrees, but we recognise that achieving this does not necessarily require identical services everywhere or identical conditions for all staff. How we behave: We put the needs of patients, and those close to them, at the centre of all we do The needs of patients are the reason we exist as a charity. As long as there are incurable diseases, Hospiscare will strive We are sensitive, honest and clear in all our communications Communication is key to our work. We listen carefully to patients, staff and volunteers to find out how they feel and what their needs are. With patients, we explain the situation clearly and 2 honestly and support them in the choices they make. We recognise times when honesty may be distressing, but even then we will not mislead people. We communicate clearly and consistently about the services we provide. We work in teams, cooperating with colleagues internally and externally Hospiscare is committed to working cooperatively as the best means of meeting the needs of patients and their families. We recognise that good teamwork requires consultation and listening, and a willingness to make and back decisions which will sometimes be difficult or unpopular. We employ a multi-disciplinary team to work in close collaboration with other government and non-government agencies that can provide a benefit for patients. Our volunteer groups work closely with our nursing teams to provide the best service in patients’ homes and in the hospice. “Thank you for the personal care you gave to Mum and the nursing care you arranged towards the end of her life. This allowed Mum to fulfil her wish to die at home. Words cannot express the amount of gratitude we feel as a family.” (Relative) 3 Hospiscare’s Services Hospiscare is a local charity that delivers and develops adult end-of-life care across Exeter, mid and east Devon. We achieve this through the expert treatment, care and support provided by our specialist teams at Exeter Hospice, at our day care centres, in the Royal Devon and Exeter NHS Foundation Trust and at our 10 community nursing bases. All our services are supported by the extraordinary efforts of our team of volunteers and are free at the point of delivery. a seven-day service and an invaluable overnight advice line via the Hospice in-patient unit. This means that our health and social care colleagues can access our expert knowledge and advice around the clock. Hospital Support Team Hospiscare employs and jointly funds the team of specialist nurses and doctors who work alongside the medical and nursing teams looking after patients in the Royal Devon and Exeter Hospiscare Community Teams Hospital. Hospiscare’s specialist nurses and doctors visit patients Hospiscare has an average caseload, at any one time, of around and their families on the wards, helping them to discuss their 650 adults living with a life-limiting illness. Most of these patients feelings, their illness and how it affects them, their treatment and wish to remain in their own home, or within a familiar community future options. setting, supported by the expertise of our community palliative care teams. Hospiscare’s Hospital Support Team works closely with other services provided by Hospiscare, as well as NHS and social care The teams are based at GP surgeries, community hospitals or teams.They do their best to ensure that, with the patient’s permisHospiscare centres. They work closely with existing NHS and sion, appropriate information is shared with colleagues to social care teams to facilitate the wishes of individual patients facilitate the best possible outcome for them and their families. and their families. The person with the illness is central to all our care and the specialist nurses, registered nurses and assistant The Hospice practitioners work together to provide the best possible personal- The Hospice in Exeter provides 12 beds for patients whose sympised care, irrespective of diagnosis or circumstance. toms are complex and difficult to control, or who require roundthe-clock nursing care at the end of their life. Hospiscare employs Our community nurses have immediate access to Hospiscare’s a team of specialists in palliative medicine who are available to multi-disciplinary team based at Exeter Hospice. They provide assess and respond to patients’ medical needs 24 hours a day. 4 The average length of stay is 10 days and around 50% of patients are discharged home or into other care settings. Exeter Hospice aims to provide treatment and care in a pleasant, comfortable environment with maximum emphasis placed on the comfort, dignity and wishes of the individual patient and family. Overnight accommodation is available for visitors and the staff will do everything in their power to meet the needs or wishes of individual patients and their families. Meals are freshly cooked on the premises by Hospiscare’s chefs. Hospiscare also provides a chaplain, care managers, complementary therapists, bereavement support and volunteer services. All of these can be made available to patients as appropriate. Hospiscare Day Care Centres Hospiscare has three day care centres; at our Mid Devon Day Hospice in Tiverton, at Exeter Hospice, and in Seaton Community Hospital. The centres are open between two and four days a week and offer an individualised patient-needs assessment, bathing, hairdressing and a range of therapies including complementary and craft-based therapies, alongside social activities. All three centres are staffed by Hospiscare trained staff who are supported by Hospiscare trained volunteers. In many cases, transport to and from the centre is also offered. Day care such as this offers real benefits to patients and their families when a life-limiting illness is making it hard to get out, curbing normal physical activities, or causing social isolation and loneliness. Carers and families can enjoy a day for themselves without worrying about their friend or loved one. 5 Hospiscare Multi-Disciplinary Team Hospiscare provides a range of services from the allied professionals who make up our multi-professional team. This includes carer support, care management and onward care planning, religious and spiritual care and pre and postbereavement care for the patient and family if required. All these services are based at the Exeter Hospice but are available to any patient referred to Hospiscare. Complementary Therapy Hospiscare offers complementary therapies within the Hospice; at our three day care centres, at our carer and bereavement support groups, in the RD&E Hospital and at community hospitals, at care homes or in the patient’s own home. Hospiscare has approved the use of massage, reflexology, Indian head massage and aromatherapy. These therapies are used alongside conventional medicine to relieve stress and tension, to aid relaxation and to promote a sense of wellbeing. Therapies also help some patients with symptom control. Hospiscare complementary therapies are available to the patient as well as the patient’s family or carer. Education and Learning Hospiscare’s education and training team work together with local and regional colleagues to share best practice in education and information on topics relating to end-of-life care. Hospiscare is committed to supporting our staff, volunteers and others in their professional and personal development. We offer a range of education events, placements and learning opportunities to help inform and educate. 6 Priorities for Improvement 2012 -2013 Hospiscare is being funded by the Phoebe Wortley-Talbot Charitable Trust to pilot this service at our Mid Devon Day Hospice in Tiverton from October 2012. The aim of the service is to offer specialist palliative and end-of-life care to those who have complex needs that are not met by current day care services. A project group has been formed and sub-groups are working on several areas, such as recruiting volunteers who have experience in dementia care, developing a dementia education programme with Devon County Council’s support; identifying staffing needs and training and designing referral criteria, processes and systems of work in partnership with local interest groups and Devon Older People’s Mental Health Services. Future planning Priority 1 Day care for people with a diagnosis of dementia Hospiscare is committed to offering expert specialist end-of-life care treatment and support to adults suffering from a life-limiting illness, irrespective of diagnosis or circumstances. We aim to share our knowledge, skills and experience with local health and social care professionals as well as the community at large. Devon is home to a growing aging population and as people live longer they are more likely to be struggling with co-morbidities, one of which could be a dementia diagnosis. The National Dementia Strategy (2009) cites the increase in the population over 85 years old and the need for more effective end-of-life care pathways and carer respite. The more recent National Institute for Clinical Excellence (NICE) Quality Standards for Dementia describes 10 Quality Statements for dementia patients and their carers, three of which relate directly to end-of-life care and carer respite. This is a real opportunity to address the unmet needs of people who are suffering from dementia as well as other life-limiting conditions such as Parkinson’s disease, heart disease, cancer and motor neurone disease. Priority 2 Developing palliative care at home services Over half a million people die in England each year, two-thirds of these are aged over 75. The majority of deaths in the last century follow a period of chronic illness such as heart disease, cancer, stroke, chronic respiratory disease, neurological disease or dementia. Hospiscare has proven expertise and experience in these areas which we believe we can share by working more closely with our colleagues in the area of mental health in older people, and through the provision of dedicated day care for dementia patients. 7 The End of Life Care Strategy (2008) aims to improve quality of care and enable greater choice and control for all dying people, regardless of their diagnosis and place of care. Given a choice most people would prefer to die in their own home, but in reality most people die in hospital. “It is with great enthusiasm that the DNs applaud Hospiscare for piloting this service that we have needed for so long.” (District Nurse) Hospiscare has a reputation for working closely with primary care practitioners in Exeter, east and mid Devon. Our figures show that 88% of patients referred to Hospiscare’s community nursing service will die at home or near to home (38% home, 14% care home, 18% hospice, 18% community hospital); 12% die in the acute hospital. This is significantly different to the Devon average of 49% of deaths in acute hospitals. The RT works collaboratively with existing services and has set up systems of effective communication to prevent confusion, aid structured case review and to avoid burdening patients and their families. The RT sits within the Exeter community nursing team and includes an experienced Staff Nurse and an Assistant Practitioner. The RT operates for 22.5 hours a week on Monday, Thursday and Friday and includes bank holidays. On 1 March 2012 a Hospiscare Response Team (RT) pilot scheme was set up to provide an additional layer of expert palliative and end-of-life care in complex cases. It identified that highly responsive, hands-on nursing care alongside the clinical nursespecialist community service could facilitate greater numbers of ‘good’ deaths in the patient’s preferred place of care. In the first three months, the RT received 38 referrals to the service and carried out 62 separate episodes of care. Of these referrals, 93% of the patients were seen within two hours of receipt of the referral, and the remaining 7% were seen later on the same day or the following day. Hospiscare recognised that working in an integrated partnership with health and social care colleagues presented an alternative to the traditional ‘hospice at home’ model, enabling smoother continuity of care, greater shared learning and the opportunity to build relationships. Patients and their families coping with deteriorating circumstances or the dying phase of an illness need practical support, confidence that help will be on hand and that the professionals giving the care are skilled, experienced and can access assistance if needed. Of the 38 patients referred to the RT, 76% died within 6 weeks and the average time spent on the RT caseload was 11 days - and 90% of these patients have died in their preferred place of death. Of those patients who did not achieve their preferred place of death, two had an appropriate admission to the RDEFT due to medical emergencies and one had an appropriate admission 8 to Exeter Hospice due to carer exhaustion. The remaining 24% remain in their preferred place of care. It is intended that during the remainder of the pilot period the RT will continue to collect evidence to demonstrate • The RT’s contribution to preventing inappropriate admissions to acute hospitals • The wishes of the carer regarding their preference for place of care and death and how this contributes to the eventual outcome • The views of GPs, District Nurses and Social Care professionals regarding the value and effectiveness of the RT as a partner. We aim to build on this experience to develop a flexible and expert nursing response team that the people of Exeter, east and mid Devon need and our colleagues value. As finances and commissioning opportunities arise, Hospiscare will invest in the growth of this type of skill mix within each locality, while continuing to explore the impact on patients and their families. Priority 3 Monitoring and measuring performance Hospiscare staff and volunteers strive to provide the highest quality treatment and care to our patients, their families and other service users. Hospiscare’s internal clinical governance mechanisms and incident and accident reporting systems are robust and regular minutes and reports are reviewed by the Senior Management Team and Board of Trustees. A User Feedback Leaflet is available in the hospice and 9 Priority 4 Developing staff Hospiscare is committed to developing its clinical staff to ensure they grow in skill, knowledge and expertise. Throughout the Formal complaints are low, so a mechanism for auditing and coming year the Nurse Leadership Team will continue to develop analysing Significant Events (SEA) was introduced to encourage competency frameworks for all staff providing nursing treatment a culture of root cause analysis and structured criticism. Over the and care. These competencies will be based on the Knowledge next 12 months we plan to divide SEA’s into ‘internal’ and ‘external’ and Skills Framework and St Christopher’s Hospice End of Life performance, to identify those incidents which relate specifically Care Competency Framework, and formed around four domains to Hospiscare’s performance and those that relate to external of management and quality, clinical practice and leadership, partners. We will agree and implement, with our external provider communication and education and training. partners and commissioners, which mechanisms are the most effective for reporting SEAs and monitoring outcomes. In addition, Hospiscare’s In-patient managers and our Learning and development officer are working with our health care Hospiscare is an active member of The South West Regional assistants (HCA) to ensure they access and complete nationally Hospice Group. Best practice and innovative mechanisms for recognisable qualifications in health and social care. benchmarking performance quality are shared and developed through this group and the South West Clinical Informatics Hospiscare has commenced a programme encouraging and Project. Recent audit work has focused on analysis of promoting clinical staff to rotate into our daycare centres and inappropriate admissions to acute hospitals and how this might community services. It is our intention to develop more structured be prevented in future, and the standardisation of medicines career opportunities for both registered and unregistered nursing incidents reporting and monitoring. and care staff, commencing with registered nursing staff by the end of March 2013. Hospiscare’s In-patient Unit manager developed a root cause “...visits to the house when things were very analysis tool following a number of unconnected low-level medicines incidents. This form of enquiry asks what, why and difficult and reassuring telephone calls when how, rather than seeking to find blame and encourages a culture things were okay made all the difference. of real understanding of system weakness or risks, which in this Prompt action with provision of equipment case led to a simple but effective resolution provided by the staff concerned. was very helpful.” (Relative) distributed to all service users. Staff and volunteers are encouraged to log verbal feedback with the appropriate line manager or direct to the Director of Nursing. 10 Review of Quality Performance 2011 -2012 Priority 1 Mid Devon Day Hospice, Pine Lodge, Tiverton Following a successful grant application to the DoH and the extraordinary support of the local community, Hospiscare opened a new Day Hospice at Pine Lodge, Tiverton, in June 2012. out-patient appointments, complementary therapies, as well as meeting and education space. Hospiscare’s Tiverton Support Group, Carers and Bereavement Group meet at Pine Lodge and local health and social care groups can also use the facilities. Priority 2 The single-storey building in a rural setting is attractive, inviting Dignity in Care and wheelchair friendly. It provides day services on Wednesdays Hospiscare staff and volunteers strive to ensure that all service and Fridays for up to 10 patients, including bathing, hairdressing, users are afforded the same dignity and respect we would complementary therapies, crafts, specialist out-patient review, expect for ourselves and our families. It is important to us as an care planning, social support, stimulation, and carer respite. organisation that the end-of-life care we deliver is offered with openness and compassion, and gives service users opportunities Meals are freshly prepared by a Hospiscare chef on the to make choices in their treatment and care. premises, and the gardens and pathways surrounding the building have been designed by the distinguished gardener In 2011 Hospiscare underpinned its commitment to this high Michael Hickson. The garden provides a beautiful and enjoyable standard of care by introducing the role of Dignity Champion environment, with areas of seating for relaxing and private and by forming a Dignity in Care Group chaired by the Director reflection, aided by stunning views of the local countryside. of Nursing. Mrs Mavis Seeley, a Hospiscare Trustee, became the Patients and their families tell us the new centre is bright, sunny first Dignity Champion and a core member of the Group. and very welcoming and is giving patients with more complex physical needs the chance to access local specialist facilities for The role of the Dignity Champion is described on the Hospiscare the first time. The Day Hospice is staffed by Hospiscare staff and website and service users are encouraged to contact Mrs Seeley, local Hospiscare volunteers. in addition to the normal feedback or complaints procedure, if they feel this would be more appropriate or easier for them Hospiscare’s Tiverton specialist community nursing team have to describe their worries or concerns. Mrs Seeley has met with an office in Pine Lodge and can use the facilities there to offer day care patients, carers and bereaved carers in informal focus 11 groups to listen to their feedback and inform them of her role. The Dignity in Care Group meets quarterly to identify and act on: • Themes or dignity in care issues identified in feedback, complaints or significant event analysis • Education and training initiatives • Information, media and relevant documentation • Local or national dignity agendas • The most effective methods to help keep staff and volunteers informed and aware of this subject matter and their responsibilities. Regulatory Agency (MHRA). Hospiscare is also a member of the South West Hospices Informatics Project and utilises the in-patient unit quality metrics benchmarking process to capture and compare common areas of information relating to pressure ulcers, falls and medication incidents. The hospice in-patient services managers and Hospiscare’s infection prevention and control champion have considered user All staff attend Essential Staff Updates each year. In 2012, this includes a session on Dignity in Care facilitated by a member of the group. The Dignity in Care Group makes recommendations to the Senior Management Team and the Clinical Governance Committee, a sub-committee of the Board. The Dignity Champion presents an annual report to the Board of Trustees. Priority 3 Patient and service user safety Hospiscare’s 12-bed hospice in-patient unit collects and reports incidents such as trips and falls to the Clinical Governance Committee. It complies with the Reporting of Injuries, Diseases and Dangerous Occurrences Regulations (RIDDOR) and the Care Quality Commission (CQC) regarding reporting of serious accidents or incidents. Hospiscare logs, records and reports outcomes to the Clinical Governance Committee or the Health and Safety Committee all relevant ALERTS received via the Medicines and Health Products 12 feedback, conducted ‘tests of change’ and reviewed current policies and procedures, the results of which have led to the following initiatives. the viability and reliability of the Graseby syringe driver pump, Hospiscare changed to the McKinley syringe driver. This decision was made because of accumulating evidence that the McKinley driver was safer and because this pump could generate a digital record of its use which made it easier to spot faults or errors. In the 12-month period January 2010 to 2011, prior to the change of pump, the In-patient Unit reported three incidents relating to syringe-driver failure, since January 2011 just one incident has been reported. This is a significant improvement in patient safety in an area where use of syringe drivers is commonplace. • A thorough and comprehensive review of Hospiscare’s prevention and control of infection policies taking into account national legislation, the local NHS Infection Control Link Group and Regional Hospice Control of Infection Network Group recommendations. This has resulted in new policies being generated and cascaded to clinical staff regarding; MRSA, clostridium difficile, decontamination, gastro-intestinal illness, hand hygiene, standard precautions, source and aseptic technique policies, plus a new overarching infection, prevention and control policy. • Even in a hospice environment where staffing ratios are much higher than average, patients can still feel isolated or anxious, or be at additional risk due to their deteriorating health and increased frailty. This is more likely if the patient concerned is in a side room and is not aware of when they are being observed by staff. As a result of patient and family feedback and consultation with the in-patient staff an ‘intentional rounding’ tool was designed and introduced in February 2012. • The development of a new handbook entitled ‘infection prevention and control information for all staff and volunteers’. This handbook provides staff and volunteers with the principles of good infection prevention and control, as well as more detailed guidance and signposting for frontline clinical staff and volunteers. It has been issued both in hard copy and electronically to all staff and volunteers. The purpose of the tool is to identify and monitor patients who would benefit from an additional ‘check’ from staff. It is designed to ensure they are comfortable, safe and that they feel cared for and reassured. This is particularly important in the case of bedbound, highly dependent patients, and for those whose mental acuity is failing and thus find it more difficult to remember simple instructions. The tool requires specific questions to be asked and responses recorded. It helps to identify a pathway of decline that may require additional staff or resources to be utilised. • The purchase of a hand hygiene glow box and facilitated informal handwashing drop-in sessions raised hand-hygiene awareness generally, and has been an effective tool in the teaching of handwashing techniques for clinical staff. • In the first quarter of 2011 as a result of a ‘test of change’ and in response to information received from the MHRA as to 13 Priority 4 Improved volunteer training The recruitment, training and retention of volunteers is vital to maintaining the high standard of Hospiscare’s services. Our success was evidenced by being awarded the Queen’s Award for Voluntary Service in June 2011. Added to this, of our 977 volunteers more than 420 of them have given more than five years of service, providing valuable, well-experienced and knowledgeable support. A review of recruiting and training volunteers has helped to highlight areas of success and areas where improvements can be made. There has been a steady increase in the number of requests for drivers and homecare support. After a meeting between the community clinical nurse specialists and volunteers, the need for a more centralised approach was identified. Standard forms were introduced to give relevant information before a visit with a reflective feedback form, helping volunteers to carry out tasks with maximum confidence and professionalism. Importantly, the feedback prompts the volunteer to make any concerns or unexpected problems known to the clinical team. To fulfil requests for more homecare support and drivers, one-to-one training has been developed. Alongside the training, comprehensive role guidelines have been developed for reference on what to do in unexpected situations and for general support. As a result of work completed by our education team, more volunteers now attend education sessions. These sessions give them the skills and confidence to work closely with patients and families as well as learning to care for themselves emotionally and enjoy a good volunteering and life balance. A new Volunteer Handbook was introduced, together with guidelines on specific volunteer roles. This means that staff and volunteers have a clear understanding of expectations and boundaries, reducing risk and increasing productivity. 14 Hospiscare volunteers offer warm, caring, friendly support to patients and their families. Sometimes this can be emotionally draining and distressing for volunteers. The impact of accumulated loss or sadness, if left unresolved, can have a lasting effect on the volunteers. To value and equip our volunteers for the challenges of their role, a workshop has been devised and implemented to promote appropriate coping strategies, raise awareness of potential risk to the volunteer’s well-being and guide them in how to work within the emotional boundaries of their roles. will now be described as belonging to one of three different domains: • Service user compliments and ‘thank yous’ • Significant event analysis - internal Hospiscare events • External significant events involving health and social care partners Service user compliments and ‘thank yous’ 2011 - 2012 Number of Route/ comments method of logged delivery What patients and families say about the service they receive We believe it is important to capture accurately the experience and feedback of those who use our service in all clinical environments. At Hospiscare, we understand that it is important to enable service users to have a voice, and to have concerns or issues heard, understood and acted upon where appropriate. 86 57 - Letters and cards 4 - Website 3 - Verbally 22 - Feedback forms Emerging issues Outlines and or service user communications themes to staff/line managers 5 suggestions 2 – catering relating to 2 – inpatient • Menus services manager • Overnight kit 1 – control of • Fridges infection lead • Newspapers It is appreciated that these numbers do not accurately reflect the significant number of verbal and written compliments and ‘thank yous’ received by Hospiscare staff, but is an initial attempt to capture such comments. In the coming year each service user will receive a Hospiscare feedback form during each episode of care, and the Hospiscare website will be updated to facilitate easier online feedback. It is hoped that the Hospiscare Dignity Champion will also present an opportunity for feedback via focus groups and the Dignity Champion telephone number. Hospiscare took part in the Help the Hospices 2010/11 Hospice Patient Survey alongside 38 other hospices, which was carried out by the Centre for Health Studies at the University of Kent. This activity helps us achieve compliance with the Care Quality Commission (CQC) Essential Standards of Quality and Safety 2010. During the past year work has been undertaken to explore and develop the different types of feedback we receive, how best to capture and analyse the feedback and how to report the actions that occur as a result. As a consequence, Hospiscare feedback 15 Significant Event Analysis Significant event analysis (SEA) presents an opportunity to reflect on an episode, or a whole period of treatment and care received by a patient under the care of Hospiscare. Our aim is to learn from our experience in order to improve the quality of treatment and care we provide, while influencing and facilitating improvements in the treatment and care provided by others where appropriate. The Hospiscare SEA process cultivates a positive culture of investigation, learning, change and resolution for all concerned including the service user where possible. For SEA diagrams see pages 18 and 19. patients preferred place of care or death, use of the national end-of-life care register and the availability of an advance care plan. This will be done through Hospiscare’s electronic patient record system. Throughout the past year Hospiscare has worked with nine other hospices in the south west to produce data relating to In-patient Unit patient falls, pressure ulcers and medicines management incidents. This work has been collated by the South West Informatics Project and shared between participating hospices in order to facilitate joint working and to raise awareness of good practice. Formal service user complaints (2011 - 2012) For the 12-month period under review benchmarked against the other regional hospices Hospiscare has reported: Number of Investigating manager Result of complaints / director investigation 5 3 – Director of Nursing 1 – Chief Executive 1 – Community Cluster Team Leader 3 – not upheld following investigation 2 – partially upheld following investigation and learning or service improvements applied as appropriate Hospiscare Hospice Average 8.4 falls* 0.3 pressure ulcers* 5.7 medicines incidents* Occupied bed days 76.2% 8.5 3.5 6.2 75.4% * Per 1000 occupied beds Audit Hospiscare carries out regular audits relating to patient experience, safety and quality of service. Hospiscare also submits data to the National Minimum Data Set for specialist palliative care, and participates in audits carried out by the Peninsula Cancer Network. In the next year Hospiscare will further develop the ability to collate quantitative data relating to a Care Quality Commission (CQC) Hospiscare is subject to periodic review by the CQC and was re-registered by the CQC under the Health and Social Care Act 2008 on 1st October 2010 following the completion of a compulsory self assessment. Hospiscare has not participated in any special reviews or been the subject of any CQC enforcement action or investigations during 2011/12. 16 Significant event analysis - internal Hospiscare events Number of events reported: 7 Hospiscare Departments: 4 – in-patient unit 2 – community team 1 – overnight advice line Outcomes and service improvement recommendations made as a result of the SEA investigation: • • • • • • • • Pilot and introduction of new complex assessment tool Review and changes to discharge care plan Improve record keeping / staff understanding Identify training needs for bank staff Purchase of new models of higher quality device Pilot and introduction of ’intentional rounding’ Flagging system for staff awareness New community team leaflet planned and being produced September 2012 with clarity of service 17 Emerging issues or service user themes: 1 – assessment of highly complex needs 1 – discharge planning 2 – checking out patients own drugs - medication skills of bank staff 1 – quality of listening devices and monitoring of those patients without speech 1 – user information as to our role External significant events involving health and social care partners Number of events reported: 10 Health and social care partners involved: 3 4 – NHS provider weekend services – DDOC* 1 – RDEFT** 2 - SWAST*** Outcomes and service improvement recommendations made as a result of the SEA investigation: • Reminder to DDOC of the availability of Hospiscare advice line service and the expert resource available • Pilot of Response Team commenced in Exeter Cluster May 2012 • Review with GP and key family member following the death. Benefits of proactive prescribing in allaying family fears • Unable to move patients within their own home as not within contract. Agreement for funding required in advance. Led to 1 patient being inappropriately admitted • October 2011 – discussion between Hospiscare and SWAST*** plans made to prevent this happening again • August 2012 – following a number of phone calls and meetings instigated by Hospiscare and subsequent contract review, static movement is now within the SWAST*** contract • Led to patient’s admission to the hospice for robust assessment and care planning • Discussed with RDEFT Ward involved • Palliative Discharge Team commenced May 2012 -RDEFT** and Hospiscare pilot 18 Emerging issues or service user themes: 3 – OOH**** assessments. Understanding what we have to offer 2 – capacity of weekend provider service to respond to complexity/deterioration – challenges of the informal carer role when supporting a dying relative at home 2 – movement of ‘static patients’ contract 1 – inadequate discharge planning and lack of communication with family * Devon Doctors ** Royal Devon and Exeter Foundation Trust *** South West Ambulance Service Trust **** Out of hours Statements from LiNK Devon Exeter and East Devon Locality and NHS Devon LiNK Devon Exeter and East Devon Locality Though LiNK were very happy to receive a copy of this Quality Account Caroline Lee, LiNK Devon Community Involvement Co-ordinator reported that unfortunately due to capacity issues during the transition period they were unable to comment. Caroline has however included Hospiscare in the information for Healthwatch regarding organisations who are expected to submit a Quality Account in 2013/14. NHS Devon This Quality Account has been sent to the nominated individual at NHS Devon for comment. 19