LTC Claims Advisory Toolbox — Section 5 Plans of Care Terminally Ill A. Terminally Ill Defined A1. Insured’s who were independent with or without assistive devices in performing their ADL’s prior to: • Recent onset of or exacerbation of illness resulting in a life expectancy of 6 months or less. • The illness will result in irreversible impairment, permanently disabling the insured’s ability to regain functional independence. B. POC Objective B1. Maintain dignity throughout the dying process by supporting highest level of functioning and safety for the insured and the family C. General Considerations C1. Gather the following information to assist in developing a POC from the on site assessment (OSA): • Is death imminent or is a period of deterioration expected over next 6 months? • Results of Cognitive testing • Current physical living arrangements • Hospice involvement C2. It would be important to consider the goals of the insured and his/her family. If there is a stay at home focus, the POC should include all services being received to ensure to maintain the highest level of function, activity and safety. C3. The primary unpaid caregiver’s needs should also be considered. Information including hospice, educational brochures, Safe Return information, websites and local support groups should be provided, along with a plan to provide Inpatient Respite in combination with in home services. C4. Determine if the insured is receiving hospice services through Medicare and if he/she is then coordinate the LTC benefits with the hospice coordinator to ensure that the broadest coverage for all appropriate and needed services are available to the insured in a coordinated manner. LTC Claims Advisory Toolbox 2007 1 LTC Claims Advisory Toolbox — Section 5 Plans of Care Terminally Ill D. Environmental Factors D1. The following factors are considered in developing the POC: • Informal support system • Family dynamics • Paid and unpaid Services • Availability and utilization of community services • DME E. Cognitive Functional Status E1. The OSA will provide the following information which is important to factor into the POC especially if cognition is identified as a problem. • Level of Orientation • Safety issues identified as danger to self or others • Ability to appropriately administer prescribed medication • Behavioral issues • Level of ADL assistance needed related to cognitive impairment • Level of IADL assistance needed related to cognitive impairment F. Activities of Daily Living F1. Assess the level of assistance required to safely perform ADL’s and whether DME should be considered to assist the insured in performing daily activities to minimize pain, and to maintain as much independence as possible through the stages of their illness. G. Psycho- Social G1. Informal support systems including religious support groups, disease specific support groups contacted by the insured or the family can be a comfort to the insured and the family as they manage through this difficult period. These organizations should be noted as a resource in the POC. An understanding of the family dynamics and insured’s behavioral responses are also important to consider in establishing realistic objectives in a POC. H. IADL status H1. Offer support to the insured by providing an appropriate level of IADL assistance using formal and informal, homemaker services, chore services, transportation, companion/sitter. Coordinate these services with the hospice agency if there is one already working with the insured and his/her family. LTC Claims Advisory Toolbox 2007 2 LTC Claims Advisory Toolbox — Section 5 Plans of Care Terminally Ill I. POC Monitoring I1. If death is imminent weekly monitoring may be required to satisfactorily meet the needs of the insured. I2. If deterioration is expected over a period of several weeks monthly monitoring may be adequate to keep the POC current and ensure the needs of the insured are being met. J. Home Health Care Information J1. Include the following in the POC: • Covered and uncovered services including support systems • Type and frequency for all services and by whom • Time frame of anticipated services • Anticipation of increase or decrease in services • Anticipation of additional services needed • Payment source of services must include Medicare and Commercial products J2. Have a discussion with family about the possibility that progression of the illness may eventually lead to facility placement if unable to meet needs in a home environment. If a decision is made for placement, assist the insured and/or family in locating an appropriate facility if a hospice agency is not involved. When appropriate provide educational information to assist with the decision of a particular type of facility to meet their individual needs and preferences. If a hospice agency is involved the LTC insurer should coordinate discussions on this matter with them so that the insured and the family are not receiving conflicting information. K. Facility Care Information K1. Levels of care settings may range from an assisted living facility to an inpatient hospice facility. As always it is important to coordinate the POC with the hospice agency involved in managing end of life care and providing emotional and spiritual support to the family and insured so that LTC benefits compliment and do not conflict with hospice services already in place. K2. If the insured is at home and informs the insurer that they are moving into a facility, offer to help facilitate and coordinate the transfer from home care to the facility LTC Claims Advisory Toolbox 2007 3