LTC Claims Advisory Toolbox — Section 5 Plans of Care Long Term Progressive A. Long term-Progressive Condition Defined A1. A long term progressive condition (LTP) is a progressively debilitating condition leading to a steady and irreversible decline of functional ability- e.g. Parkinson’s, end stage renal disease, etc. [Alzheimer’s and dementias are addressed under Cognitive Impairment]. Impairment is expected to last greater than 6 months with often-unpredictable progression of functional decline. No improvement in long term functional status is expected. These conditions can have physical as well as cognitive deficits. Examples are cognitive impairment associated with Parkinson ’s disease or cardiovascular disease. B. General Considerations B1. General consideration in the development of the LTP POC • Evaluate both immediate and long-term viability of informal support system to supplement formal services. Family members, friends, neighbors, etc provide informal care. LTPs will generally require increasing hours of low intensity care as the disease progresses. As such, long term care benefits should augment but not replace functioning, established informal care. A well functioning/supportive informal support system will most often be necessary in order to keep the LTP in the community as long as possible. Address any service coordination/coverage issues specific to informal care system. Information can best be obtained through self- report at time of on-site assessment. • Claimants with functional impairment requiring 24/7 assistance/supervision due to safety/social concerns not covered by LTC policy and not being implemented for any other reason can be referred to the appropriate state social services dept. • The POC should be developed when possible to optimize benefits over the longest period of time when an insured has a limited lifetime maximum benefit. Considerations are insured’s age, as in many cases insureds with neurological conditions are younger than the general LTC population, and prognosis as it relates to anticipated progression of functional decline and the insured’s plan of benefits. • In home assessment should address history of depression and document if insured is exhibiting/reporting feelings of depression. • POC should address the needs of caregivers as well as those of the insured. This may include interventions such as exploring the potential for respite care, support groups or reference to educational material LTC Claims Advisory Toolbox 2007 1 LTC Claims Advisory Toolbox — Section 5 Plans of Care Long Term Progressive related to the specific condition. Services should be considered either through the LTC benefit or through community resources. C. Activities of Daily Living C1. Since ADL functioning is a major component of the POC it will be important to establish level of dependency in those ADL’s that are characteristically more predictable/schedulable i.e. bathing, dressing from those that are considered, “care on demand” i.e. transfer, toileting. The later will likely require some form of continual access to a caregiver. While medical records are helpful an on-site evaluation will provide a more accurate assessment. Incorporate use of DME to replace human assistance when appropriate. Also consider Occupational Therapy to increase potential for self-care and/or train the primary caregiver on techniques to assist them in caring for the insured in the home. These will both conserve benefit dollars as well as maintain an optimum level of independence. Address any service coordination/coverage issues among family members. The POC should include care management interventions that address care-giving issues that are raised by the family. Services that are not related to the policy benefits should also be factored into the POC as they are instrumental in helping the insured achieve the goals established in the POC D. Cognitive D1. Although primarily physically based LTP conditions can also include cognitive components e.g. Parkinson’s. If cognitive deficits are identified in medical records or on-site assessment, the level of impairment must be factored into the POC. E. Psycho-Social E1. LTP illness can often include an associated depression as a result of decreasing independence and the need for significant lifestyle changes. Assessment should address history of depression and identify if insured is exhibiting/reporting feelings of depression. When appropriate include recommendation of counseling on the POC. If lack of socialization is a contributing factor to psycho-social problems consider community recourses such as a local senior center, ADC etc. Information on such services may be obtained through organizations such as the local area agency on aging. LTC Claims Advisory Toolbox 2007 2 LTC Claims Advisory Toolbox — Section 5 Plans of Care Long Term Progressive The POC should address the needs of caregivers as well as those of the insured. This may include exploring interventions such as respite care, support groups, counseling services etc. . F. Instrumental Activities of Daily Living F1. If appropriate and at request of claimant/family assist in the evaluation for community based service alternatives such as MOW, ADC and community outreach programs. Medication safety should be considered as many LTPs have extensive medication regimes, numerous ordering physicians and frequent medication changes. The potential for polypharmacy always exists. It is most often best to work through the primary caregiver to ensure that all physicians caring for the insured are aware of all medications being taken by insured. However if the caregiver is unavailable or unable to perform this task, the POC should address how this information will be conveyed to those physicians caring for the insured. G. Environmental Considerations G1. Insureds with long term progressive diseases are increasingly susceptible to falls as a result of generalized weakness and gait disturbances as their condition progresses. The risk of falls can be reduced if the insured is functioning in a safe barrier free environment. The POC should consider evaluation of the environment when indicated as a concern during the on site assessment. The POC should include follow up on implementing these recommendations that address safety issues such as slippery floors, unsecured rugs, electrical cords, bathroom safety, as well as procurement and use of equipment such as a tub bench, raised toilet seat, safety rails, etc. Occupational therapists are trained to perform such assessments and make recommendations to address adverse findings. They can also evaluate the appropriateness for home modifications such as ramps, expanding doorways etc. to help the insured and their caregivers in managing day to day activities. H. Place of Service H1. Home Health Care Include all services both covered/uncovered, paid/unpaid being received and recommended. H2. Facility Care LTC Claims Advisory Toolbox 2007 3 LTC Claims Advisory Toolbox — Section 5 Plans of Care Long Term Progressive Assist the insured and their family in finding the most appropriate care setting to meet their needs and provide guidance on conservation of benefits when possible. LTC Claims Advisory Toolbox 2007 4