Contents Preface xi Acknowledgments xiii About the Editors xiv About the Contributors xv SECTION I: Advances in Health Care and Coping With Loss in Schools Chapter 1: Advances in Health Care and Medical Science: Presenting New Challenges for Schools Paul C. McCabe and Steven R. Shaw Advances in Medical Science Increased Survival Rates Greater Specificity of Medical Diagnosis and Treatment Increased Emphasis on Outpatient Care Changing Role of Schools Increase in Pharmacological Interventions Multidisciplinary Approach Chapter 2: Grief and Bereavement: Roles for Educators Steven R. Shaw, Tiffany Chiu, and Khing Su Lin Introduction Background Implications for Educators How to Tell Students About a Death Notification and Announcement Procedures Parent Notification Determine the Degree of Trauma Concerns About Death Due to Suicide Educational Strategies The Roles of Principals The Roles of Teachers The Roles of Counselors, School Psychologists, and Social Workers 2 3 3 3 4 5 5 6 7 8 9 10 10 11 11 12 12 13 13 14 14 Discussion Questions Research Summary Resources Handout—Grief and Bereavement in the Schools 14 15 15 16 SECTION II: Chromosomal, Genetic, and Metabolic Disorders Chapter 3: Rare Chromosomal Disorders Shohreh M. Rezazadeh and Steven R. Shaw Introduction Background Genetics Evaluation Chromosome Abnormalities Potential for Intervention Future Work Implications for Educators Educational Strategies Discussion Questions Research Summary Resources Handout—Children With Rare Chromosomal Disorders Chapter 4: Phenylketonuria (PKU): Implications for Educators and Schools Paul C. McCabe and Lindsay Glasser Introduction Background Prevalence, Symptoms, and Treatment Cognitive and Neurological Effects Maternal Phenylketonuria Timing and Degree of Exposure Implications for Educators Dietary Compliance Educational Strategies Discussion Questions Research Summary Resources Handout—Promoting the Well-Being of Children With PKU Chapter 5: Genetics of Autism: Theories, Findings, and Implications Sarah Glaser and Tia Ouimet Introduction Background Knowing Which Families Are at Risk Techniques to Identify Genetic Contributions Known Genetic Causes 20 21 21 22 22 23 24 25 25 26 26 27 28 29 30 30 30 31 32 32 33 34 35 35 36 36 37 38 39 40 40 40 41 Multiple Gene Complications and Unknowns Possible Environmental Causes The Role of Genetic Counseling and Testing Implications for Educators Home- and School-Based Treatment and Interventions Educational Strategies Discussion Questions Research Summary Resources Handout—The Genetics of Autism Chapter 6: The Biology of Shyness Paul C. McCabe, Sarah E. Groark, and Brian Dalpiaz Introduction Background The Role of the Amygdala Amygdala and Cortisol Levels: The HPA System Psychological and Immune Correlates of HPA Activation Implications for Educators Educational Strategies Discussion Questions Research Summary Resources Handout—Shyness in Children Chapter 7: Families of Children With Genetic Disorders Jennifer E. Bruce, Sara Quirke, and Steven R. Shaw Introduction Background Asking Questions of Professionals Managing Emotional Trauma Stressors Faced by Families of Children With Genetic Disorders Strengths in Families of Children With Genetic Disorders Educational Strategies Discussion Questions Research Summary Resources Handout—Helping Families With a Child With a Disability 42 43 44 45 45 46 46 47 47 48 50 51 51 51 52 52 53 55 55 56 56 58 59 60 60 60 61 61 64 65 65 66 66 67 SECTION III: Acquired Disorders of Childhood Chapter 8: Prenatal Alcohol Exposure: Biological and Behavioral Outcomes Erica J. Deming and Paul C. McCabe Introduction 70 71 Background Neuroanatomical Effects of Prenatal Alcohol Exposure Alcohol’s Effect on the Neocortex, Hippocampus, Cerebellum, and Neurotransmission Typical Anatomical Features of Children With Fetal Alcohol Exposure Neurobehavioral Effects of Prenatal Alcohol Exposure Implications for Educators Educational Strategies Discussion Questions Research Summary Resources Handout—Effects of Prenatal Alcohol Exposure on Children Chapter 9: Prenatal Exposure to Antidepressants Paul C. McCabe and Caryn R. DePinna Introduction Background Types of Antidepressants Untreated Depression Conclusion Implications for Educators Educational Strategies Discussion Questions Research Summary Resources Handout—Information About Prenatal Exposure to Antidepressants Chapter 10: Celiac Disease and Youth: Implications for Educators and Allied Professionals Jessica B. Edwards George, Jessica A. Hoffman, and Debra L. Franko Introduction Background Prevalence Symptoms Diagnosis Treatment: The Gluten-Free Diet Issues in Treatment of Celiac Disease Implications for Educators Strategies to Support Students With CD Educational Strategies Discussion Questions Research Summary Resources Handout—Celiac Disease: Helpful Hints for Educators 71 72 72 74 74 75 76 77 77 78 79 80 81 81 82 83 83 84 84 85 85 86 87 88 89 89 89 90 90 90 90 92 92 94 94 95 95 96 Chapter 11: Postpartum Depression and Its Relationship to Behavior Problems in Children Danielle Parente and Paul C. McCabe Introduction Background Maternal Depression and Childhood ADHD Child-Family Dynamics Implications for Educators Educational Strategies Discussion Questions Research Summary Resources Handout—Identifying and Treating Postpartum Depression Chapter 12: Pediatric Responses to Asthma: An Overview for Educators Adrienne Garro Introduction Background Experience of Symptoms Impact on Student Functioning Psychosocial Implications Implications for Educators Educational Strategies Discussion Questions Research Summary Resources Handout—Pediatric Responses to Asthma Chapter 13: Food Allergies and Intolerances: What Educators Need to Know Doris Páez and Gillian W. Thomas Introduction Background What Is a Food Allergy? How Can an Allergy Cause Death? How Do Food Allergies Develop? Does Food Allergy Management Differ by Developmental Stage? What Social-Emotional or Behavioral Issues Are Associated With Food Allergies? What Is the Status of Research on Causes and Treatments? Implications for Educators Create a Core Team Food Allergy Emergency Plan 98 99 99 101 102 102 103 104 104 104 106 107 108 108 108 109 110 111 112 112 113 113 114 115 116 117 117 117 118 118 119 120 120 120 121 Storing of Medications Label Literacy Empowering Children With Food Allergies and Their Peers Educational Strategies Discussion Questions Research Summary Resources Handout—Successfully Managing Food Allergies in Childhood 121 122 122 123 123 124 124 125 Chapter 14: Developmental Effects of Type 1 Diabetes Sarah A. Bassin, W. Mark Posey, and Elizabeth M. Schneider Introduction Background Acute Effects Long-Term Effects Implications for Educators Educational Strategies Discussion Questions Research Summary Resources Handout—General Information About Type 1 Diabetes 126 127 128 128 128 130 131 131 132 132 133 Glossary 134 References 144 Index 160