Canadian Aboriginal AIDS Network and the Aboriginal HIV & AIDS Community Based Research Centre’s Collaborative Centre National Aboriginal Research Advisory Committee (NARAC) Terms of Reference Background: • The purpose of the Aboriginal HIV &AIDS Community-Based Research Collaborative Centre’s (the AHA Centre) National Aboriginal Research Advisory Committee (NARAC) is to produce community-based research on HIV and AIDS and co-morbidities that is ethically and methodologically-sound, culturally-appropriate, respectful, and relevant. Mandate: • To provide leadership, advice, support, vision and direction in all areas of research within CAAN and the AHA Centre, drawing from past and continued involvement in the Aboriginal and/or the Community-based Research community, for all of CAAN’s and the AHA Centre’s research initiatives. Directly Accountable to: • • • Aboriginal (First Nations, Inuit and Métis) Peoples affected/infected by HIV and AIDS (APHAs); CAAN, its partners & members; Canadian Aboriginal HIV and AIDS Communities and Researchers. Decision Making All decisions made by NARAC will be made by consensus. When a decision is required by a specified deadline, consensus will be reached with the sitting members of NARAC at a meeting. Sitting members are those in attendance during a given discussion. When there is flexibility with deadlines, email will be used prior to finalization, giving all members of NARAC an opportunity for comment. Should it be impossible for NARAC to agree upon a final decision, a vote will be used with the decision carried by 50% + 1. Operations Team members and Co-Chairs are ex-officio during consensus vote. Elders will decide whether they wish to participate in voting activities or not. They will provide direction and guidance in decision making activities. Elders are given the freedom to provide guidance anytime they feel that it is necessary pg. 1 throughout NARAC meetings. Proxy for decision making will be accepted by the NARAC member through email to the Co-Chairs. All final decisions will be communicated via e-mail land clearly identified as a record of decision. Reporting Methods: • • Minutes of all proceedings to be filed within two weeks following a NARAC meeting at the AHA Centre’s Nova Scotia office, and made available, upon committee approval, to the general public in both official languages. NARAC meeting minutes will be sent to the Governing Council prior to Governing Council meetings for their records and consideration. Composition: • • • The membership of NARAC will include representation from the following groups: APHAs, Elders, Aboriginal HIV and AIDS and/or Research Community, Academics, Youth, and CAAN Board of Directors. APHAs will attend the CAAN APHA Caucus. Total membership of the NARAC will not exceed 10 members, excluding AHA Centre staff. NARAC membership will respect GIPA, MIPA and MEPA principles and will demographically reflect cultural diversity, gender, and regional balance. The following list of skills, attributes, abilities, knowledge and experience will be considered during membership selection: Expertise and lived experience in HIV & AIDS, Hep C, STBBI, Mental Health, Aging and related co-morbidities prevention, diagnosis, care, treatment and support issues; research ethics/law/human rights issues; and knowledge and/or front–line experiences with Aboriginal Peoples related to health. Understanding of and adherence to the policies for research laid out in the Tri-Council Policy Statement (TCPS2), with a particular focus on Chapter 9: Research Involving The First Nations, Inuit and Métis People of Canada. Professional/technical expertise related specifically to sexual health; Indigenous, decolonizing and community-based research fields; Knowledge and respect for the diversity of Aboriginal populations and the historical context of policy in Canada; Commitment to collaboration and cooperation; and ability to actively participate in discussions and effectively communicate ideas; Belief that respect is a cornerstone of all discussions. Commitment: National Research Advisory Committee Terms of Reference – May 2013 pg. 2 • • • • All members of the National Aboriginal Research Advisory Committee will participate in the committee for two years. Time commitments include one (1) face to face meeting per fiscal year and up to four (4) teleconferences per year. Time for review of documents and related materials will also be required. Replacements to NARAC will be appointed by the AHA Centre Operations Team as needed. Agreeing to participate on NARAC means that each individual will attend the scheduled meetings. Communication: • • • The National Aboriginal Research Advisory Committee will communicate by telephone and e-mail as necessary. Members agree to make their e-mail addresses known to all members of the Committee and to provide the Governing Council with up-to-date contact information. The Canadian Aboriginal AIDS Network, the AHA Centre’s Operations Team will distribute all electronic documents in Adobe PDF format. Hard copies will be made available upon request to the AHA Centre’s Operations Team. The AHA Centre’s Operations Team will provide background material and meeting agendas one week prior to all meetings. NARAC Resources NARAC is supported with administrative and appropriate technical resources primarily through the AHA Centre Community-based Research Managers (East and West) with support from the CAAN Executive Research Assistant. Standing Agenda The order of business at all meetings of the GC shall be determined by the Chairperson(s) prior to the meeting, subject to change with additions by members of the GC. The meetings will commence with organizational business conducted in a discussion format. The general order of business will be as follows: Opening Prayer Call to order Regrets Opening remarks of the Chairperson(s), articulating the agenda for the meeting Introductions (if necessary) Review and approval of previous Meeting Record Business arising from the minutes Report of Chairperson(s)/Members Report back from standing committee’s National Research Advisory Committee Terms of Reference – May 2013 pg. 3 Business (list) o xxxx o xxxx Action Agreements Date, Time and Place of Next Meeting Closing Prayer Adjournment The Community Based Research Managers: • • • Will Chair and organize the meetings. Will provide a standing agenda as well as any other additional information to the committee a week prior to the scheduled meeting. Will take minutes and keep accurate records of each meeting. Conflict Resolution Conflict is sure to arise when diverse groups come together to address a common goal. In recognition of that, the NARAC shall develop culturally appropriate dispute resolution mechanisms, including but not limited to the use of Elders, Talking Circles, and other Aboriginal traditional ceremonial practices. NARAC is also open to engaging with diverse means of dispute resolution and mediation. CAAN Organizational Code of Ethics In order to be a member of good standing of the Canadian Aboriginal AIDS Networking Inc. an individual member group must subscribe to the following principles: A. It must be a community directed organization, define itself as a member group if the Canadian Aboriginal AIDS Network Inc. and have aims and objectives of the network; B. It must first and foremost show respect and honour for all Aboriginal beliefs and customs and must act with pride and dignity that Aboriginal heritage demands; C. It must be committed to information sharing, referrals and social activities. Cultural reinforcement, community development/capacity building and similar activities which ensure that Aboriginal people will be afforded no matter the cost to a better quality of health, life and wellness through Aboriginal ownership, access and control; D. It must support unity amongst Aboriginal people without regard to legal distinctions which may be drawn between Status and Non-Status individuals or amongst Metis, Indian, or Inuit People; E. It must support and work towards achieving the stated aims and objectives of the Network; F. It must be tolerant of diversity, forthright in expressing its views on particular issues National Research Advisory Committee Terms of Reference – May 2013 pg. 4 and respectful of the opinions of other CAAN member group organizations and Aboriginal group; G. It must agree to bring grievances, comments, or complaints relating to the Network to the attention of the Board of Directors of the Network (similarly the network will bring any grievance, comment, or complaint the Network may have with respect to a particular CAAN member group organization to the attention of the Board of Directors of the CAAN member group organization); H. It must endeavour to work in a cooperative manner with other CAAN member group organizations to solve problems of mutual concern; I. It must endeavour to work in a cooperative manner with other groups and organizations, be they Aboriginal or non-Aboriginal, in order to develop a humane society of equal opportunity for all people and respect for all living things; and, J. Its members must honour and respect the commitments of the CAAN member group organization to the Network. National Research Advisory Committee Terms of Reference – May 2013 pg. 5