Te l l i n g M e d i c a l P r o v i d e r s W h a t t o D o W h e n Y o u C a n ’ t Te l l T h e m W h a t Yo u W a n t T h e m t o D o : A d v a n c e Directives & Medical Orders For Scope of Treatment (MOST ) Good to Go October 20, 2015 John A.K. Boyd, MD MRMC Ethics Committee Chair revised 9/14/15 Historical Perspective • 1930 – my grandfather builds the first hospital in Wickenburg AZ (penicillin not discovered till 1928 and not available until 1941) • 1960 – my father dies in the Phoenix VA hospital of an MI at the age of 43 (the first ICU was established in 1958) • 1972 – I start medical school (high tech life support now available) Dr. James Alfred Copeland (18711941), circa 1937 2 Common Problem Case Scenarios • Grandpa breaks his hip. – develops pneumonia and ARDS – aunt Lucie from California shows up at the 11th hour • Persistent Vegetative State (PVS) 3 Persistent Vegetative State (PVS) • due to injury of the upper brain sparing the brain stem • characterized by the return of sleep-wake cycles and of various reflex activities, but wakefulness is without awareness • can “live” for years on tube feedings 4 Informed Consent • the basis for modern medical ethics • historically a response to the Nuremburg trials 5 Informed Consent Prior to being treated: – the patient will receive a description of the treatment to include its risks, benefits and alternatives, and – the patient will agree to accept the treatment. MRMC Policy Definition of Decisional Capacity A patient has decisional capacity to consent to or to refuse treatment when the patient has: 1) the ability to comprehend information relevant to the treatment being offered, and 2) the ability to deliberate in accordance with his/her own values and goals, and 3) the ability to communicate with care givers. 7 Advance Directives Available in Colorado • Living Will • Medical Durable Power of Attorney • CPR Directive “Advance Directive” means an expression of treatment preferences, guidelines, or instructions regarding medical treatment made by an individual, or for an individual by that individual’s authorized agent, in advance of the need for such treatment. 8 Living Will • a written statement made when a patient (declarant) has decisional capacity which gives directions for withholding or withdrawing certain life- sustaining procedures when the patient: 1) has a terminal condition or PVS and 2) has lost decisional capacity. 9 “Terminal Condition” Colorado Law Definition “Terminal Condition” means an incurable or irreversible condition for which the administration of life-sustaining procedures will serve only to prolong the dying process.” Living Will • • • • must still have 2 witnesses two physicians must certify terminal condition or PVS may include other instructions for care following certification of terminal illness/PVS may include a list of persons to be notified of that certification, as well as a list of persons with whom healthcare providers may discuss the declarant’s condition and care 11 Medical Durable Power of Attorney (MDPOA) • a written statement made when a patient has decisional capacity which appoints specific surrogate decision-makers (agents) • not limited to a terminal condition or PVS • takes effect at time of signature or when patient loses decisionality • witness recommended but not required When Can Your MDPOA Agent Begin Making Decisions? Living Will vs MDPOA Proxy Decision-Makers For Medical Treatment CRS 15-18.5-103 • Used to establish a surrogate decision maker when there is no Medical Durable Power of Attorney or Guardian. • Physician must declare that the patient has lost decisional capacity. • Physician (or representative) contacts “interested persons.” • “Interested persons” choose the proxy decision-maker. 23 Colorado Designated Beneficiary Act (CRS 15-22-101-111) • allows for two adult (over 18) persons to designate each other as beneficiaries of a number of items and instruments related to health care, medical emergencies, incapacity, death, and administration of estates • the two adults cannot be married to each other or anyone else nor party to any other DB agreement • a DB may assign the other DB the right to act as a Proxy Decision-Maker CPR Directive • A written order signed by a patient with decisional capacity and his/her physician instructing pre-hospital emergency personnel and other providers to withhold CPR (cardiopulmonary resuscitation). • May be signified by wearing a necklace or bracelet. CPR Directive Bracelet or Necklace A unique and easily identifiable logo is engraved on the front side of the metal bracelets and necklaces. The name, birth date, sex, and race of the declarant are engraved on the back side along with the words "DO NOT RESUSCITATE." Wearing a bracelet or necklace is encouraged but not mandatory. Ordering a No-CPR Bracelet or Necklace For more active folks with CPR directives, a special no-CPR bracelet or necklace can be obtained from: • Award and Sign Connection (http://awardandsign.com/ or 303.799.8979) or • MedicAlert Foundation (http://www.medicalert.org/ or 888.633.4298). Out-of-Hospital CPR Outcomes UpToDate 1/22/15 • “resuscitation from out-ofhospital Sudden Cardiac Arrest (SCA) is successful in only onethird of patients” • “only about 10 percent of all patients are ultimately discharged from the hospital, many of whom are neurologically impaired” 28 In-Hospital CPR Outcomes UpToDate 1/22/15 • “the outcome of patients who experience SCA in the hospital is poor” • “49 percent of patients had return of spontaneous circulation” • “15 percent overall survival to hospital discharge” Nursing Home CPR Outcomes Prehosp Emerg Care; Apr-Jun, 1997; “Outcomes of cardiac arrest in the nursing home: destiny or futility?” • 182 nursing home patients received CPR from July 1989-December 1993 • none survived UpToDate Review 2/5/15 • “Other studies have reported that only 1 percent of individuals who arrested in a SNF survived to be discharged from the acute hospital.” 30 CPR Directive Legislative Changes 2010 • ANY form clearly stating refusal of CPR, signed by patient and patient’s physician is valid. • Even if NOT signed by physician, any form signed by a patient should be honored. • Copies, faxes, scans are just as valid as original. • Downloadable template on Colorado Advance Directives Consortium and CDPHE Web sites. • Do Not Resuscitate ≠ Do Not Treat! Palliative care should always be provided. Medical Orders for Scope of Treatment (MOST) • A document that consolidates and summarizes patient preferences for key life-sustaining treatments. • Persons may refuse treatment, request full treatment, or specify limitations. • It is primarily intended to be used by the chronically or seriously ill person in frequent contact with healthcare providers, or already residing in a nursing facility. • Translates patient preferences into physician’s orders. • “Travels” with the patient and is honored in any setting: hospital, clinic, day surgery, long-term care facility, rehab facility, hospice, or at home. • Prompts patients and providers to regularly review, confirm, or update choices based on changing conditions. MOST Orders 1. CPR: Yes or No 2. Medical Intervention & Transfer: Full Treatment, Selective Treatment or ComfortFocused Treatment 3. Artificially Administered Nutrition & Hydration: Long Term, Short Term, or None 35 36 Practical Suggestions • Consider Five Wishes – it incorporates a Living Will and A Medical Durable Power of Attorney. • Discuss your Advance Directives with close friends and family – especially with the agent(s) designated in your Medical Durable Power of Attorney. • Talk to your physician if you are considering a CPR Directive. 37 Colorado Advance Directives Consortium • http://coloradoadvancedirectives.com/ • website contains great sample forms and educational materials