ZERO PROJECT CONFERENCE 2015 INDEPENDENT LIVING AND POLITICAL PARTICIPATION: INNOVATIVE POLICIES AND INNOVATIVE PRACTICES FOR PERSONS WITH DISABILITIES 25–27th February 2015, United Nations Office/Vienna International Centre (VIC), Austria WEDNESDAY, FEBRUARY 25 United Nations Office/Vienna International Centre (VIC), M Building 17:00h-18:00h Registration & Welcome Innovative Policy and Innovative Practice Award Ceremony 2015 Martin ESSL & Michael FEMBEK, Essl Foundation, Austria Celebrating practices and policies that enable persons with disabilities to live independently and to access public and political life 18:00h-20:30h Jakob VON UEXKULL & Ingrid HEINDORF, World Future Council, United Kingdom Silvia BALMAS, European Foundation Centre, Belgium Lenín Voltaire MORENO, UN Special Envoy on Disability and Accessibility, Ecuador (via video) Representatives of Innovative Policies and Innovative Practices 2015 Welcome Reception Room: MO1 Simultaneous translation: English-German THURSDAY, FEBRUARY 26 United Nations Office/Vienna International Centre (VIC), M Building 08:00h-09:30h Registration, Coffee and Tea Welcome Christine STIX-HACKL, Permanent Mission of Austria to the UN in Vienna 09:30h-10:15h – A Room: MO1 Simultaneous translation: Martin ESSL, Essl Foundation, Austria Jakob VON UEXKULL, World Future Council, United Kingdom www.zeroproject.org English-German Lourdes MÁRQUEZ DE LA CALLEJA, EFC'sEuropean Consortium of Foundations on Human Rights and Disability, Spain Video: The Zero Project’s Innovative Practices and Policies 2015 Chair: Caroline CASEY, Kanchi, Ireland Opening Keynotes 10:15h-11:00h – B Room: MO1 Simultaneous translation: English-German Daniela BAS, Division for Social Policy and Development (DSPD), UN DESA Focal Point on Disability, USA Facundo CHAVEZ PENILLAS, Office of the High Commissioner for Human Rights (OHCHR), Switzerland Javed ABIDI, Disabled Peoples International (DPI), India Chair: Caroline CASEY, Kanchi, Ireland 11:00h-11:15h Break The Lumos Approach: How DeInstitutionalization Works in Eastern Europe Elena SAFTESCU, Alina CEBAN & Efimia CHIHAI (supported by Eugenia Godojora and Natalia Rotaru), Lumos Foundation, Moldova Children explaining, communicating and inspiring 11:15h-12:30h - C1 Room: MO1 Veliko KRASIMIROV VELIKOV, Diana VELIKOVA VELIKOVA, Mihaela DINKOVA IVANOVA & Dafinka GROZEVA NIKOLOVA (supported by Aneta Teneva and Boyan Nikolaev Tenev), Lumos Foundation, Bulgaria Veronika PESTOVA, Veronika ODVARKOVA, Nikola KÖHLEROVA (supported by Ingrid Hanzlikova and Zlata Bruzkova), Lumos Foundation, Czech Republic Simultaneous translation: English-German Chair: Georgette MULHEIR, Lumos Foundation, United Kingdom supported by Mihaela IVANOVA, selfadvocate, Bulgaria New Professions for Persons with Disabilities Elisabeth KRÖN, Specialisterne Austria 11:15h-12:30h - C2 Chair: Georg SCHÖN, Ashoka Austria Frank HOFFMANN, Discovering Hands, Germany Gregor DEMBLIN, Career Moves, Austria Room: MO3 Simultaneous translation: English-German www.zeroproject.org Worldwide Data and Statistics on Independent Living and Political Participation Daniela BAS, Director of the Division for Social Policy and Development (DSPD), UN DESA Focal Point on Disability, USA: The inclusion of disability in the Sustainable Development Goals 11:15h-12:30h - C3 Maria Alarcos CIEZA MORENO, World Health Organisation, WHO: The Model Disability Survey and the Community Based Rehabilitation Indicators Room: MO2 Silvia BALMAS, European Foundation Centre (EFC), Belgium: Results from the Zero Project Indicators 2015 Chair: Michael FEMBEK, Essl Foundation Voting and Elections in the Global South Innovative Practices – Presentations 11:15h-12:30h - C4 Room: MO6 Virginia ATKINSON, International Foundation for Electoral Systems (IFES): Strengthening electoral systems to be inclusive and accessible for all citizens with disabilities Libisi MAPHANGA, Electoral Commission of South Africa: The Universal Ballot Template Suraj SIGDEL, International Foundation For Electoral Systems, Nepal: Training to actively engage in civic rights Wilson N. RUVERE, Jairos Jiri Association: Enfranchising People with Disabilities in Zimbabwe Chair: Virginia ATKINSON, International Foundation for Electoral Systems (IFES) 12:30h-14:00h Lunch Break The Personal Assistance Budget Damjan TATIC, UN CRPD Committee of Experts, Serbia (via video) Innovative Practices and Policies – Presentations Jamie BOLLING, European Network for Independent Living (ENIL): The Right to Personal Assistance in Sweden 14:00h-15:30h - D1 Room: MO1 Simultaneous translation: English-German Dirk VANDERSTIGHELEN, Flemish Agency for People with Disabilities, Belgium: The Flanders’ Personal Assistance Budget Tove Linnea BRANDVIK & Vibeke MELSTRØM MARØY, ULOBA, Norway: Building a business: Personal assistance as a tool for independent living in Norway Javier ARROYO MENDEZ, Aspaym Madrid, Spain: Free personal assistance in Madrid Peter LAMBREGHTS, Onafhankelijk Leven vzw, Belgium: The European situation of Personal www.zeroproject.org Assistance Chair: Jamie BOLLING, European Network for Independent Living (ENIL), Sweden The Barometer of Inclusion: Comparison of Independent Living in Austria Albert BRANDSTÄTTER, Inclusion Austria: Results of the 2014 “Inklusionsbarometer” – A survey on independent living comparing the situation in the nine Austrian provinces 14:00h-15:30h - D2 Max RUBISCH, Federal Ministry of Labour, Social Affairs and Consumer Protection (BMASK), Austria Room: MO3 Herbert PICHLER, ÖGB Chancen Nutzen Büro, Austria Simultaneous translation: English-German Thomas DRIESSEN, alphanova Steiermark, Austria Service Providers & How Change Can Be Successful Franz WOLFMAYR, European Association of Service Providers for Persons with Disabilities, Austria Innovative Practices – Presentations Alison HARNETT, National Federation of Voluntary Bodies, Ireland: The Next Steps Project: Service Providers jointly offering individualized support 14:00h-15:30h - D3 Room: MO6 Chair: Albert BRANDSTÄTTER, Inclusion Austria Tara DOHENY, Genio Trust, Ireland Maarit AALTO, Nordic Centre for Welfare and Social Issues (NVC), Sweden: Community housing for people with intellectual disabilities Corina ZOLLE, Rhein-Main Inklusiv, Germany Errol COCKS, Curtin University, Australia Chair: Luk ZELDERLOO, European Association of Service Providers for Persons with Disabilities (EASPD), Belgium www.zeroproject.org Consultation: Technology and Disability-Inclusive Disaster Risk Reduction (DiDRR) Organized by SCRPD/DSPD/UNDESA Daniela BAS, Division for Social Policy and Development (DSPD), UN DESA Focal Point on Disability, USA 14:00h-15:30h - D4 Mechthilde FUHRER, EUR-OPA Major Hazards Agreement, France Room: MO2 Michael FEMBEK, Zero Project, Essl Foundation, Austria Hiroshi KAWAMURA, Disability Caucus-HFA2 Focal Point, Consultant on DiDRR/United Nations, Japan Aqeel QURESHI, Global Alliance on Accessible Technologies and Environments (GAATES), Japan Natalia ILIEVA, Asia-Pacific Broadcasting Union (ABU), Malaysia Benjamin DARD, Christoffel-Blindenmission (CBM), Haiti Alex ROBINSON, Arbeiter-Samariter-Bund (ASB), Indonesia Inclusive-DRR Adviser ASB, Disability-inclusive DRR Network (DiDRRN) partner, Indonesia Chair: Akiko ITO, Secretariat for the CRPD, DSPD UN DESA, USA Co-Rapporteurs: Betty DION, GAATES, Canada, & Hiroshi KAWAMURA, Disability Caucus-HFA2 Focal Point, Consultant on DiDRR/United Nations, Japan Independent Living for Everyone: Innovative Strategies of Cities, Regions and their Networks Johanna PACEVICIUS, Assembly of European Regions (AER), France 14:00h-15:30h – D5 Elena CURTOPASSI, Veneto Region, European Network for Social Authorities (ENSA) and European Local Inclusion and Social Action Network (ELISAN), Belgium Room: MO7 Interactive discussion in working groups Chair: Edwin MERMANS, Department of Social and Cultural Development of the Province of Noord Brabant, The Netherlands 15:30h-15:40h Break Supported DecisionMaking Oliver LEWIS, Mental Disability Advocacy Center, Hungary Innovative Practices and Maths JESPERSON, PO Skane, Sweden: The www.zeroproject.org Policies – Presentations Personal Ombudsmen system in Sweden 15:40h-17:00h - E1 Linda PERRY, Vela Microboard Association, Canada: How Microboards work Room: MO1 Simultaneous translation: English-German Cher NICHOLSON, Health & Community Services Complaints Commissioner, Australia Chair: Eilionoir FLYNN, National University of Ireland Galway, Ireland Peer Support Models for Austria 15:40h-17:00h - E2 Room: MO3 Simultaneous translation: English-German Klaudia KAROLINY, Independent Living Initiative of Upper Austria, Austria: Peer counseling as an approved profession Tamara GRUNDSTEIN, Independent Living Austria Self representatives and self advocate groups Chair: Walburga FRÖHLICH, atempo, Austria: How to make peer support work Technology and Software that support Independent Living John MCLACHLAN, Scope, United Kingdom: Connect to Control. Affordable equipment to make PCs accessible Innovative Practices – Presentations Kristina TSVETANOVA, BLITAB, Austria: A tablet for the visually impaired 15:40h-17:00h - E3 Presentations of new technologies and hands-on exercises to support the digital inclusion of all Room: MO7 Chair: Dave SHEPHERD, Barclays Bank, United Kingdom How Disaster Risk Reduction and Fire and Life Safety is DisabilityInclusive CJ WALSH, FireOx International, Ireland 15:40h-17:00h - E4 Room: MO6 Ase Kari HAUGETO, The Delta Centre, Norway Marnie PETERS, Global Alliance on Accessible Technologies and Environments (GAATES), Canada Betty DION, Global Alliance on Accessible Technologies and Environments (GAATES), Canada Chair: Mukhtar AL-SHIBANI, Global Alliance on Accessible Technologies and Environments (GAATES), Saudi Arabia Stephanie OUEDA, L’Oreal, France Corporate Strategies Supporting Employment and Inclusion Sunita Rebecca CHERIAN, Wipro Technologies, India 15:40h-17:00h - E5 Cecilia CONDE, European Network for CSR+D, Spain Yves VEULLIET, IBM, Belgium Chair: Maria TUSSY, Fundación ONCE, Spain www.zeroproject.org Room: MO2 Rapporteur: Susan SCOTT-PARKER, International Business Disability Forum, United Kingdom 17:00h-18:00h Break & Time for moving to UniCredit Center Am Kaiserwasser, Eiswerkstraße 20, 1220 Wien (appx. 10 min. walk from UNOV/VIC) Special Evening Event, UniCredit Center Am Kaiserwasser “Alles Walzer” - Waltz for All Welcome & introduction by moderator Monika KALCSICS, Austrian Broadcasting Corporation ORF 18:00h-21:00h - F Welcome by Martin BACHL, Unicredit Bank Austria Location: UniCredit Center Am Kaiserwasser, Eiswerkstraße 20, 1220 Wien (9 min. walk from Welcome by HE Peter LAUNSKY-TIEFFENTHAL, Federal Ministry for Europe, Integration and Foreign Affairs UNOV) Simultaneous translation: English-German Opening by Franz Joseph HUAINIGG, Member of Austrian Parliament Live music by MoZuluArt and AMBASSADE String Quartet Show act by the high-level-class wheelchair dance couple Brigitte KRÖLL and Werner KAISER Interview with Johanna MANG, Light for the World, Austria & Michael FEMBEK, Zero Project, Essl Foundation, Austria Inclusive dance show act & workshop by the inclusive dance company „ICH BIN O.K“ Reception & Dinner FRIDAY, FEBRUARY 27 United Nations Office/Vienna International Centre (VIC), M Building 8:00h-08:45h Registration, Coffee and Tea Zero Project Highlights & GAATES Award Caroline CASEY, Kanchi, Ireland Mukhtar AL-SHIBANI, Global Alliance on Accessible www.zeroproject.org Ceremony 8:45h-09:10h Room: MO1 Technologies and Environments (GAATES), Saudi Arabia Betty DION, Global Alliance on Accessible Technologies and Environments (GAATES), Canada Simultaneous translation: English-German New Models for Community-based Living Joris VAN PUYENBROECK, Hogeschool Universiteit Brussel: "Proefwonen" – fast access to affordable homes Innovative Practices – Presentations Yakir PNINI-MENDEL & Orly FRUCHTER, Israel Unlimited: Supportive Housing - Helping young adults to live independently 09:15h-10:45h - G1 Room: MO1 Simultaneous translation: English-German Roberto MEZZINA: Trieste - De-Institutionalization and Community Living since 1980 Borka TEODOROVIC, Association for Promoting Inclusion, Croatia: Living alone with individualized support Natalie DREW-BOLD, World Health Organization, Switzerland: Promoting Rights and Community Living for Children with Psychosocial Disabilities Chair: Ines BULIC, European Coalition for Community Living (ECCL) Self-empowerment and Political Participation in Austria Elisabeth KOMP, DIÖZESAN-CARITASVERBAND KÖLN, Germany: „Today I decide!“ – A 2-day-course to kick-start political participation Innovative Practices – Presentations Johannes UNGAR, Innovia, Tirol 09:15h-10:45h - G2 Chair: Erwin BUCHINGER, Disability Ombudsman Austria Room: MO3 Astrid EICHSTÄDT, European Ombudsman, Belgium Simultaneous translation: English-German The Right to Vote for Everyone Innovative Policies, Practices & Indicators – Presentations 09:15h-10:45h - G3 Room: MO2 Hitomi SUGIURA, Tokyo Law Advocacy Office; Nagase OSAMU, Ritsumeikan University and Inclusion International; & Seikichi NAGOYA, Japan: Enfranchising people under guardianship Tomislav IVASKOVIC & Damian JANUSEVIC, Association for Self Advocacy, Croatia: Voting without legal capacity Alexander PREOBRAZHENSKIY, Council of Europe, France www.zeroproject.org Patrick CLARKE, International Disability Alliance, Ireland Chair: Maureen PIGGOT, President of Inclusion Europe 10:45h-11:00h Break Self-empowerment and Self-representation Felipe RAMOS BARAJAS, Organization of American States: Regional network to promote legal capacity for persons with psychosocial disabilities Innovative Practices – Presentations 11:00h-12:15h - H1 Room: MO6 Janina GAARDE RASMUSSEN, Socialstyrelsen: Study kit about citizenship and personal rights, Denmark Matthijs VAN TRIGT, Patrick SCHELFHOUT, Tina GOETHALS & Danny VANDERPERRE: Our New Future Coaching for political discussions and participation across Flanders Peter LAMBREGHTS, Onafhankelijk Leven vzw, Belgium: Freedom School – 5-day-training for an active role in society Chair: Inmaculada PLACENCIA-PORRERO, European Commission How to Support Candidates and Political Representatives with Disabilities Innovative Policies – Presentations 11:00h-12:15h - H2 Room: MO1 Simultaneous translation: English-German Helene JARMER, Member of Parliament, Austria Jude PALMER, Managing Director Digital Outreach & Iain NEWTON, Access to Elected Office Programme Manager, United Kingdom: Access to Elected Office for Disabled People Fund Martin BABU MWESIGWA, UN CRPD Committee of Experts & National Union of Disabled Persons of Uganda (NUDIPU) & Helen Grace ASAMO, Member of Parliament of Uganda: Reserved seats for persons with disabilities Hendrietta BOGOPANE-ZULU, Deputy Minister of Social Development, South Africa: Ensuring equal access for Members of Parliament Chair: Luis GALLEGOS, Chair of G3ict and former Permanent Representative of Ecuador to the UNO at Geneva Rapporteur: Irina MORENO, Assistant to UN Special Envoy on Disability and Accessibility, Ecuador International Peer Support Models: Empowering Persons Ian LOYNES, Spectrum CIL: How User-ledorganisations work in the United Kingdom Silvio SAGRAMOLA, Info-Handicap, www.zeroproject.org with Disabilities Innovative Practices and Policies – Presentations 11:00h-12:15h - H3 Room: MO2 Luxembourg: Funding a national disability information and meeting center in Luxembourg Julia KISCH, Independent Living Movement Upper Austria: Peer counseling as an approved profession in Upper Austria Michael PAUL& Banane NAFEH, Disability Rights UK: Helpline and platform on personalized care John MCLACHLAN, Scope: Activities Unlimited - a “Brokerage” for short family vacations Chair: Errol COCKS, Curtin University, Australia Cooperation between East & West for Political and Social Participation in Europe Vasyl NAZARENKO, Union of Disabled People Organisations of Ukraine 11:00h-12:15h - H4 Room: MO3 George DZNELADZE, Coalition for Independent Living, Georgia Simultaneous translation: English-German Davud REHIMLI, Union of Disabled People Organisations of Azerbaijan Patrick CLARKE, International Disability Alliance / European Disability Forum / Down Syndrome International, Ireland Co-Chairs: Ilja SEIFERT, Allgemeiner Behindertenverband in Deutschland e.V. (ABiD), Germany, & Monika THARANN, Stiftung West-Östliche Begegnungen, Germany 12:15h-12:30h Break Towards Accessible Elections and Voting Processes Ana Cristina LÓPEZ LÓPEZ, Ministry of the Interior, Spain: Voting and participating in the electoral process Innovative Practices and Policies – Presentations 12:30h-13:45h - I1 Room: MO2 Video by New Zealand’s Electoral Commission: Improving access to electoral events Corinne CLERMONT, Nous aussi, France: Guidelines for accessible elections in Europe Maria FINSTRÖM, Finnish Federation of the Visually Impaired: Accessible candidates lists for elections Kate HEWITT, SCYTL, Australia: Software for the Visually Impaired Citizens in Australia Chair: Martha STICKINGS, European Union Agency for Fundamental Rights (FRA), Austria New Concepts and Ideas for Living in the Andreas VEGA, VbA-Selbstbestimmt Leben München: Persons with disabilities employing their assistants www.zeroproject.org Community in Austria Innovative Practices – Presentations 12:30h-13:45h - I2 Room: MO3 Simultaneous translation: English-German Birgit ROTHENBERG, Mobile - Selbstbestimmtes Leben Behinderter e.V. Dortmund: An all-round support program Corina ZOLLE: Rhein-Main Inklusiv e.V.: Personal assistance as an employer model Martin MÜLLER, Institut für Sozialdienste Vorarlberg: The model “Fundament” – Living self-reliant Bernadette BROS-SPÄHN & Wolfgang SPÄHN, Gemeinsam Leben - Gemeinsam Lernen e.V.: IGLU - Inclusive flat-sharing in Ludwigshafen, Germany Chair: Katharina MEICHENITSCH, Diakonie, Austria Solutions from the Global South Innovative Practices – Presentations 12:30h-13:45h - I3 Room: MO6 Kerry-Jo LYN, Director of Projects and Strategic Initiatives, Digicel Foundation Jamaica: Social enterprises financing independent living Stanley BAWDEN, The Living Link: Creating careers from disabilities in South Africa Jose RAMIREZ, Jr, Disabled Peoples International: Fighting Leprosy – the ignored disability Video: Supporting and Implementing a National Project to foster the Access to Health and Education for Persons with Hearing Impairment in Papua New Guinea Chair: Johanna MANG, Light for the World, Austria UNDP’s Approach to Addressing Disability: From Normative Standards to Partnership and Programming Marianna HARUTYUNYAN, Agency of the Ministry of Labor and Social Affairs, Armenia: International Classification of Functioning, Disability and Health (ICF) 12:30h-13:45h – I4 Sladjana PESIC, Ministry of Labour and Social Services, Montenegro: Social Welfare and Child Care System Reform - Design, plan, implementation of community-based social services Room: MO1 Simultaneous translation: English-German Andrei VOLENTIR, Central Elections Commission, Moldova: Promotion of access for persons with disabilities to voting stations and voting process Anna ZAKREVSKAYA, Department for Social Protection of the Institute of Labour, Ministry of Labour and Social Protection, Belarus: Innovative approaches for CRPD ratification, monitoring of changes in the lives of persons with disabilities and the impact of social protection interventions Chair: Milica BEGOVIC, United Nations Development Programme (UNDP), Istanbul Regional Hub, Turkey www.zeroproject.org 13:45h-15:00h Lunch Break The Dynamics between Major International Development Stakeholders’ Disability Programmes, Resources and Respective Roles Daniela BAS, Division for Social Policy and Development (DSPD), UN DESA Focal Point on Disability, USA 15:00h-16:00h - J1 Michelle FUNK, World Health Organisation (WHO), Switzerland Room: MO1 Simultaneous translation: English-German Leah MAXSON, United States Agency for International Development (USAID), USA (will be replaced by: Alexander PREOBRAZHENSKIY, Council of Europe, France) Milica BEGOVIC, United Nations Development Programme (UNDP), Istanbul Regional Hub, Turkey Chair: Frederique WIEMEIJER, Zero Project, Essl Foundation, Austria Women’s Empowerment Susan DUNN, Women's Institute on Leadership and Disability (WILD) Innovative Practices – Presentations Carol BOSCH, Cape Mental Health - Sexual Abuse Victim Empowerment Programme in South Africa 15:00h-16:00h - J2 Chair: Rana KOTAN, Sabanci Vakfi Foundation, Turkey Room: MO3 Simultaneous translation: English-German 16:00h-16:15h Break Final Plenary: Zero Project 2015 & 2016 – The Way Forward Michael FEMBEK, Essl Foundation, Austria 16:15h-17:15h – K Room: MO1 Simultaneous translation: English-German Ingrid HEINDORF, World Future Council, Switzerland Helene JARMER, Member of Parliament, Austria Akiko ITO, Secretariat for the CRPD, UN DESA, USA Patrick CLARKE, International Disability Alliance, Ireland Susan SCOTT-PARKER, International Business Disability Forum, United Kingdom Chair: Shuaib CHALKLEN, former UN Special Rapporteur on Disability & Councillor of the World Future Council, South Africa www.zeroproject.org Co-funded by the PROGRESS Programme of the European Union” This publication has been produced with the financial support of the PROGRESS Programme of the European Union. The contents of this publication are the sole responsibility of the Martin and Gerda Essl Sozialpreis gemeinnützige Privatstiftung and can in no way be taken to reflect the views of the European Union. www.zeroproject.org