COLORECTAL CANCER SCREENING PROGRAMS AND STRATEGIES IN CANADA ENVIRONMENTAL SCAN March 2013 Background Quarterly, the Canadian Partnership Against Cancer collects information from the provinces/territories on the status of population-based colorectal cancer screening programs and/or strategies. The information is collected through provincial and territorial leads represented on the National Colorectal Cancer Screening Network supported by the Canadian Partnership Against Cancer. March 2013 National Colorectal Cancer Screening Network The Colorectal Cancer Screening Network serves as a national forum to discuss and take action on matters of mutual interest or concern related to the implementation of organized colorectal screening programs. March 2013 Presentation Outline Current National Guidelines Colorectal Cancer Screening Program Status/Availability Entry Level Tests Program Recruitment Colonoscopy Increased Risk Population Strategies Promotion/Education/Human Resources Quality Assurance March 2013 Canadian Task Force on Preventive Health Care Guidelines Canadian Task Force in Preventive Health, 2001: For people at normal risk there is good evidence to support the inclusion of annual or biennial fecal occult blood testing (A recommendation) and fair evidence to include flexible sigmoidoscopy (B recommendation) in the periodic health examinations of asymptomatic individuals over 50 years. March 2013 Colorectal Cancer Screening Program Status Date of Program Announcement Program Status Program Name Agency responsible for Program Administration NU No organized program No organized program No organized program No organized program NT No organized program No organized program No organized program No organized program YK No organized program No organized program No organized program No organized program BC 2009 Pilot in three areas Colon Check BC Cancer Agency AB March 2007 Program-wide phased program components Alberta Colorectal Cancer Screening Program (ACRCSP) Alberta Health Services SK January 20, 2009 Program-wide phased program components Screening Program for Colorectal Cancer Saskatchewan Cancer Agency MB 2007 Phased in, province wide ColonCheck CancerCare Manitoba ON January 2007 Full program province-wide ColonCancerCheck Cancer Care Ontario March 2013 Colorectal Cancer Screening Program Status, cont’d Date of Program Announcement Program Status Program Name Agency responsible for Program Administration QC December 2010 Planning phase Programme québécois de dépistage du cancer colorectal (PQDCCR) Ministry of Health and Social Services NB 2009 Planning phase New Brunswick Colon Cancer Screening Program New Brunswick Cancer Network (NB Ministry of Health) NS 2009 Province wide program completed March 2013 Colon Cancer Prevention Program Cancer Care Nova Scotia PE 2009 Conducting second pilot PEI Colorectal Cancer Screening Program* Health PEI NL March 19, 2010 Program-wide phased program components Newfoundland and Labrador Colon Cancer Screening Program Eastern Health, Cancer Care Program Colorectal Cancer Screening Program Availability Entry Level Test: Fecal Occult Blood Test (FOBT) All programs use, or plan to use, a fecal test as primary screening modality for average-risk individuals Guaiac FIT N/A – No organized program NU NT Not programmatic N/A – No organized program YK BC AB Comments OC Auto Micro 80, 2 samples, either sample ≥ 100 ng/ml =positive Plans to launch FIT province wide 2013 SK MB ON Hemoccult Sensa QC NB NS PE Fecal Occult Blood Test (current use) ; moving to FIT in Sept.. 2011 NL Completed a validation study comparing FIT to guaiac and colonoscopy results in 2011 Moving to fit in 2013 March 2013 Entry Level Test: FOBT Follow-up Screening Interval Standard follow-up diagnostic procedure for abnormal test Average time from abnormal result to follow-up procedure or ‘Wait time target’ NU No organized program No organized program No organized program NT No organized program No organized program No organized program YK No organized program No organized program No organized program BC 2 years Colonoscopy Not available AB 1 year or at least 2 years Colonoscopy Not available at this time and will vary by Zone SK 2 years Colonoscopy Median time was 12 weeks in May 2011 MB 2 years Colonoscopy Not available ON 2 years Colonoscopy Median time was 7 weeks in March 2009 QC 2 years Colonoscopy < 60 days (target) NB 2 years Colonoscopy To be defined NS 2 years Colonoscopy Target is 8 weeks PE 2 years Colonoscopy Variable NL 2 years Colonoscopy < 60 days, with 90th percentile within 180 days March 2013 Summary of Key Program Activities Across Canada As of July 2011 key activities in colorectal cancer screening across Canada include program: Program Expansion Evaluation of Entry Level tests Development of Quality Indicators March 2013 FOBT: Recruitment Strategy/ Invitation Method Physician Self-referral Self-referral through pharmacy* Mailed invitation letter Mailed fecal test Other NU No organized program No organized program No organized program No organized program No organized program No organized program NT No organized program No organized program No organized program No organized program No organized program *CRC guidelines in place in March 2011 YK No organized program No organized program No organized program No organized program No organized program No organized program BC AB ( future plan) SK MB ON (primary method) (by calling Call Centre to register to participate) (primary method) (~ 1 month after letter) (by calling Program) (primary method) (3 weeks after letter or on request) ( by calling or emailing Program, and through Breast Check ) (media) QC (by calling Telehealth ON) (planning for 2013-2014) Pick-up kit at hospital or community laboratory target: Letter sent every 2 years to the target population NB Invitation by Program Marketing & education campaign focused on Physicians, Public and Health care professionals NS (2 weeks after letter) Will mail fecal test on request Posters, other promotional material at Family Health Centres and Medical Clinic Kits mailed weekly to participants Public advertizing (radio/print/web) Media and advertising Referral through breast screening centers PE NL *pick-up kit at pharmacy Process Following an Abnormal Result Process following abnormal results NU No organized program NT No organized program YK No organized program BC Navigator contacts participant to discuss follow-up AB Province wide abnormal result letters, navigation planning underway SK Primary care practitioner notified Participant advised to see their doctor/nurse practitioner to review result and discuss follow-up Practitioner or Client Navigator (in 1 RHA) refers participant for diagnostic testing (e.g., colonoscopy) MB Primary care provider notified Navigator contacts participant to discuss results and referral process Brochure “Colonoscopy” mailed to participant Program arranges follow up colonoscopy for majority of participants ON Primary care provider contacts participant to follow-up; unattached patients are referred to a family physician for follow-up (phone and letter) QC Target: Participant will be contacted by letter. Pre-colonoscopy evaluation is done by a nurse NB Planning that participant is contacted by phone to discuss results and follow-up procedures. Pre-colonoscopy assessment is done by a Program Nurse who refers appropriate participants for colonoscopy NS Letter sent to participant and primary care provider indicating that district screening nurse will follow-up to discuss diagnostic procedure, followed by telephone call to participant by district screening nurse PE Program sends results letter to primary care provider and patient. Unattached patients are sent a results letter and referred to a family physician for follow up NL Nurse Follow up Coordinator makes telephone contact with FIT positive participant to provide test results and discuss possible follow up colonoscopy. Results letter sent to primary care provider and participant. Nurse Coordinator will help navigate FIT positive participant through to colonoscopy Re-screening Recommendations for +FOBT and Negative* Colonoscopy Recommendations Years before recall to program NU No organized program NT No organized program YK No organized program BC FIT re-screening in 2 years 2 AB Return to FOBT screening every 1 to 2 years 10 SK Physicians may indicate patient return to screening program if still meet eligibility requirements at 5 or 10 yrs after normal colonoscopy (under review) 5/10 MB Recalled for FOBT in 5 years 5 ON Recalled for FOBT in 10 years (under review) 10 QC Invitation letter for FOBT screening after 2 years (FOBT - : recall every 2 years) 10 (if negative colonoscopy) NB Recalled after 10 years 10 NS FOBT offered in 2 years 2 PE Recalled for FOBT in 5 or 10 years (under review) 5/10 NL Recalled after 5 years 5 * No cancer or polyp found March 2013 FOBT – No physician Fecal Test – No Physician NU No organized program NT No organized program YK No organized program BC Program assistance in finding physician for patients with abnormal result AB Not applicable Fecal test must be ordered by physician SK Program assistance in linking individual to health region to find a physician for patients with abnormal result. Client navigator program will expand provincially and will complete referral and ensure follow-up is completed. MB Program assistance in finding physician for patients with abnormal result ON Kit available from community pharmacy or Telehealth; for abnormal results program refers participant to family physician for follow-up QC Target: If FOBT +, reference directly to colonoscopy. The procedure associates a physician only if needed. NB Program assistance in finding a physician for patients with out a primary care provider (Under review with DoH) NS District Health Authorities have local processes for attaching screening program participants PE The program has recruited a physician to take unattached patients NL Medical Director acts as the referring physician for the FIT analysis in the lab and for any follow up colonoscopy. Program will provide information on provincial processes for finding a family physician March 2013 Colonoscopy Standard follow-up diagnostic procedure following abnormal fecal test Standard procedure for increased risk individuals Performed by gastroenterologists; surgeons; internal medicine-specialists; or, in some cases, general practitioners In hospitals or external clinics March 2013 Increased Risk* Population Strategies Increased Risk*: A level of risk that is above that of the general population, where the individual is still eligible for screening (and not diagnostic workup or surveillance) Increased risk population: Planning to advise high risk population to see their Primary Care Provider through invitation letter in NB Identified by physician in AB, MB and ON Self-identified by program participant in which case, participant is advised to see primary care provider in NS Self-identified in BC and SK Information is documented separately in BC, AB, SK-may change Are evaluated based on Medical and Nursing Clinical Practice Standards for colonoscopy (algorithms for moderate, slightly or moderately increased risk , with a personal history of polyps and with a personal history of colorectal cancer) in QC. *Is also referred to as: above-average risk, elevated risk, moderate risk, high risk March 2013 Increased Risk Screening Recommendations* NU NT YK BC AB SK Definition of increased risk No organized program No organized program No organized program ≥2 first-degree relatives with CRC diagnosed at any age OR 1 first degree relative diagnosed under age 60 1) First-degree relative with CRC diagnosed <60 OR ≥2 first-degree relatives with CRC at any age 2) First-degree relative with CRC diagnosed ≥ 60 1) First-degree relative with CRC <60 2) First-degree relative with CRC ≥60 Screening recommendation for increased risk population No organized program No organized program No organized program Referred to Colonoscopy 1) Colonoscopy at age 40 or 10 year younger than earliest case, whichever comes first 2) Same as average risk but beginning at age 40 1) Colonoscopy beginning at age 40 or 10 years younger than the earliest case in the family 2) Same as average risk but beginning at age 40 Increased risk screening follow-up recommendations after normal colonoscopy No organized program 1) Repeat colonoscopy every 5 years 2) Same as average risk 1) Repeat colonoscopy every 5 years 2) Same as average risk (Offered voluntary FOBT) No organized program No organized program *Not all programs coordinate referrals of increased risk population If 1 first degree relative with CRC ≤ 60 OR ≥2 firstdegree relatives at any age: Repeat colonoscopy in 5 years Follow-up as per CAG guidelines and close monitoring by a physician Increased Risk Screening Recommendations* cont’d MB ON QC NB Definition of increased risk 1) First-degree relative with CRC or advanced adenomatous polyps <60 2) ≥2 first-degree relatives with CRC or advanced adenomatous polyps at any age ≥1 first-degree relative with CRC 1) Slight or moderate increased risk : relative(s) with CRC or advanced adenomatous polyps at >60 years old 2) With a personal history of polyps : 3) With a personal history of colorectal cancer Detailed algorithms are available from QC 1) With personal history of : - CRC (colorectal cancer) -adenomatous polyps -One 1st degree family history of CRC >60 years - 2 second degree relatives with polyps or CRC Detailed algorithm is available from NBCN Screening recommendation for increased risk population The Program recommends colonoscopy. Referral is not coordinated by the Program, it is the responsibility of the primary care provider to coordinate Colonoscopy at age 50 or 10 years younger than earliest age of diagnosis of relative, whichever comes first 1) Same as average risk or starting at age 40 if 2 relatives at riskcolonoscopy every 5 years at 40 2) Same as average risk, colonoscopy every 5 or 10 years or every 3 years for advanced adenomas 3) Colonoscopy 1 year after surgery or 3 years if exam is normal. Follow-up every 5 years Detailed algorithms are available from QC The Program recommends follow up with their Primary Care Provider or regular Endoscopist (if they have one) to determine and coordinate screening follow up. Detailed algorithm is available from NBCN Increased risk screening follow-up recommendations after normal colonoscopy Recommendations at the discretion of the endoscopist Repeat colonoscopy every 5 - 10 years 1) Same as average risk 2) Colonoscopy every 10 years or every 5 years if advanced adenomas 3) Colonoscopy every 3 years or every 5 years if results are normal Detailed algorithms are available from QC Recommendations to return to Program or continue ‘high risk’ follow up at the discretion of the Endoscopist *Not all programs coordinate referrals of increased risk population Increased Risk Screening Recommendations* cont’d NS (under revision) PE NL Definition of increased risk 1) 1 first-degree relative with CRC or adenoma diagnosed <60 OR ≥2 second-degree relatives with CRC or adenoma <60 2) 1 first-degree relative with CRC or adenomatous polyp >60 OR ≥2 seconddegree relatives with CRC or adenoma diagnoses in their 60s or 70s First-degree relative with CRC OR ≥2 second-degree relatives with CRC •One first degree relative with colorectal cancer (CRC) or adenomatous polyps before age 60 •Two or more first degree relatives with polyps or colorectal cancer at any age •Two or more second degree relatives with CRC or adenoma before age 60 •Personal history of extensive ulcerative colitis or Crohn’s colitis Screening recommendation for increased risk population 1)Colonoscopy at 40 or 10 yrs younger than the earliest case in the family, whichever comes first 2)FOBT at age 40 or colonoscopy every 10 yrs10 yrs younger than the earliest case in the family, whichever comes first Promote CAG guidelines. Recommendation is at discretion of the physician. (Referral is not coordinated by the Program) Promote CAG guidelines Increased risk screening followup recommendations after normal colonoscopy 1)Repeat colonoscopy in 5 years 2) Repeat FOBT every 2 yr or colonoscopy every 10 years Recommendations at the discretion of the endoscopist Recommendations at the discretion of the endoscopist *Not all programs coordinate referrals of increased risk population March 2013 Program Education/Promotion: Health Care Community Education/Promotion Initiatives NU No organized program NT No organized program YK No organized program BC Education sessions; Focus group testing; Healthcare professional fact sheet, and CME presentation developed AB Provincial program provides education/information (content) and disseminates province –wide and uses Zone representatives to disseminate locally SK Education sessions (in person, web conferences, etc.) - in future may offer CME credits; Resources: Practitioner Postcard and Information Package (fact sheet, FAQ, CRC screening guidelines summary, sample kit, poster, forms); Newsletters, direct mail, website, magazine ads and articles MB Newsletters, direct mail, lunch and learn presentations, webpage, continuing education day (CME credits); Resources: fact sheet, FAQ, recommendations summary ON Regional and Provincial education sessions including CME and provider incentives for screening; Mail-outs to providers at launch of program; Participation in professional conferences and trade shows; Professional publications QC Target: letters send to participants every two years, web page, CME, mail-outs to providers . NB Involvement in multi-disciplinary advisory committees; plans for province-wide education sessions and workshops. NS CME events and lectures (no incentive); Articles in magazines, direct mail, resources; Colonoscopist apply to be “credentialed” by program in order to perform abnormal FOBT follow-up procedure; Skills training workshop for credentialed colonoscopists PE CME presentation at medical society of PEI; PEI division of CCS developing “screening kits"; education materials for physicians NL Information packages sent regularly to family physicians in the target areas, includes posters, brochures, business cards and referral forms. Continuing education sessions are offered to family physicians by the program Medical Director. There are general awareness presentations available for health care professionals and the general public. The program also networks with community and provincial groups with information on the screening program. Program runs various advertizing ads on radio, print and web to promote access to the program along with earned media opportunities Program Education/Promotion: Health care Community cont’d Avenues for Feedback NU No organized program NT No organized program YK No organized program BC Contact program directly; Physician surveys; Colonoscopist and navigator focus group AB Physicians invited to Working Groups/Committees; Physician Specialty Review Panels arranged; Province-wide surveys SK Education session (e.g., Telehealth and Webinars); contact program directly (email, phone, website); Participate in working groups, committees, other special meetings, focus groups, key informant interviews, surveys, etc. MB Contact program directly in person, via phone, email, or website; Participation in committees ON Regional Primary Care Leads working with providers; Call centre or email QC Target: Evaluation of the participant satisfaction before, during and after the colonoscopy exam. NB Plan for direct Colon Screening Program telephone line. NS Contact program directly; Q&A and Rounds; Participation in advisory committees, surveys, facilitated feedback workshops, local implementation committees PE NL The screening program has a website with information and option to email the program for a home screening kit or provide feedback. Participants can contact the program toll free to provide feedback ask questions or request a kit. Program to develop a participant questionnaire to gauge satisfaction with the screening program March 2013 Program Education/Promotion: Public Promotion Initiatives Education Initiatives NU No organized program No organized program NT No organized program No organized program YK No organized program No organized program BC Brochures, website Brochures, website AB Brochures, radio campaign, promotional materials, website, web advertising, use of local health promotion practitioners and health providers to promote program Brochures, website, toll-free phone to answer questions, use of local health promotion practitioners and health providers to educate on CRC screening SK Community events (e.g., Tradeshows & Fundraisers) , Brochures, TV campaign, radio campaign, promotional materials, website, and newsletter Events (e.g., Giant Colon), Brochures, website, personal counseling- Early Detection Coordinator, Client Navigator MB Brochures, TV campaign, radio campaign, promotional materials, website, newspaper ads, outdoor ads, e-flyer Brochures, website, personal counseling, video ON Promotional materials, regional/local campaigns Brochures, website QC Promotion is planed in a communication plan Nurses and physician information kits (brochures), website, toll-free phone to answer questions NB Marketing & Communications strategy in planning and development phase – Media (print ads or announcements,), Website, and promotional materials Education Strategy in planning and development phase – brochures, website, Colon Cancer Screening Program telephone service NS Brochures, radio & print campaign, promotional materials, website, newsletters, posters, PR activities Brochures, website, personal counseling, public lectures- Screening Project Officer and District Screening Nurses PE Social Marketing of program via Health Fairs, radio, television, and print ads Toll-free phone to answer questions, posters, bookmarks distributed at all family health centres and medical clinics NL Brochures, facts sheets, radio, web and print ads, awareness posters, website Program website, educational presentations Human Resources: Navigation/Consultation/Coordination Position Title NU No organized program NT No organized program YK No organized program BC Colon Check Navigator AB Precolonoscopy consultation Centralized intake/triage for booking Tracking patients* Data collection Yes No Yes Yes Yes -Planning Yes-Planning Decentralized Yes Planning Yes Planning SK Early Detection Coordinator Client Navigator No Yes No Yes (1 RHA so far) Yes Yes MB Follow-up Coordinator Yes (Nurse Practitioner) in some areas Yes, in some areas Yes Yes Other Assist with data quality review, identification of data issues & resolution; Assist with education about screening; Assist with program monitoring * Tracking patients from abnormal screen to diagnosis/treatment March 2013 Human Resources: Navigation/Consultation/Coordination Cont’d Position Title Precolonoscopy consultation ON Nurse Navigator (CCO pilot program) Yes QC Project coordinator in each demonstration site (hospital) Program regional responsibilities (coordinator and director) NB Centralized intake/triage for booking Tracking patients* Data collection Other Yes (books follow-up) Yes Yes Note: Diagnostic Assessment Programs not part of ColonCancerCheck, but is a related CCO initiative.3 of the 7 pilot sites focus on CRC -Roles vary among sites Yes (nurse) Yes (nurse) Yes (nurse, 30 days after colonoscopy) Yes (Starting with the eight experimental sites) Planning - Program Access Coordinator(s) Yes -Planning Yes -Planning Yes -Planning Yes-Planning Refer patients (Planning) NS District Screening Nurse (DSN) Yes (includes patient education) Yes (at DHA level) Yes Yes Refer to colonoscopy where appropriate (7% of cases are also referred to colonoscopist for consultation); Patient education is significant role of the DSN PE Provincial Coordinator Carried out with primary provider No Yes Yes Refer to colonoscopy where appropriate NL Nurse Follow up Coordinator Yes Yes Yes Yes * Tracking patients from abnormal screen to diagnosis/treatment Refer to colonoscopy where appropriate and offer avenues for public education Current Quality Assurance Activities Planned or Underway Examples of Quality Assurance Activities Provinces Patient Satisfaction Surveys/ Program Implementation Evaluations BC,SK,NS,PE,AB, NL, MB, NB Endoscopy Standardized Reporting MB, AB,SK, NS, NL, QC Global Rating Scale (GRS) Tool Implementation BC,AB,NS,SK,NL, QC Follow up of Every Patient with Abnormal Result (Until declared negative, diagnosis and treatment) PE, NL, MB Cancer audits/monitoring interval cancers SK, NS, MB, NB Follow-up QA – credentialing endoscopists SK, AB, NS, NL, NB Implement an information system to monitor the quality indicators of the program QC, AB, NL, MB, NB Establish a Central Assurance Quality Committee to monitor the Program QC, AB, NL, NB March 2013 Reference Slide Please use the following reference when citing information from this presentation: Colorectal Cancer Screening in Canada: Programs and Strategies. Cancer View Canada. Available at: [Enter Link], Accessed: [Enter Date Accessed]. March 2013