Aging and Diversity • Within racial/ethnic minority groups there is further diversity. For example, Asian Americans comprise 26-census-defined sub-ethnic groups. While some segments of the Asian population have been in the United States for many generations, others have arrived only recently. They have come from more than two dozen countries. They do not share a common language, a common religion, or a common cultural background. Aging and Diversity • Approximately three million foreign-born persons 65 years of age or older live in the United States. Among them, more than one third were born in Europe, one third in Latin America, and one fourth in Asia. • In the future, increasing numbers of foreign-born older adults will likely be from Latin America and Asia ( He, 2002 ). • In 2050, 16 million of the projected 81 million elderly will be foreign born (Pew Center, 2008). Aging and Diversity • Older women represent over 58 percent of the population aged 65 years and over, more than two-thirds (69 percent) of the U.S. population aged 85 years and over, and 80 percent of the population aged 100 years and over. • The U.S. Census Bureau projects that by 2030, the number of women aged 65 years and over will double to 40 million (U.S. Census Bureau Population Division, 2006). Aging and Diversity • The number of lesbian/gay/bisexual/transgender (LGBT) older adults is increasing. The National Gay and Lesbian Task Force estimated that one to three million Americans over 65 have LGBT sexual orientation. By 2030, roughly four million older Americans will identify as lesbian, gay, bisexual or transgender (National Gay and Lesbian Task Force, 2005). Aging and Diversity • At later life this issue commingles with age in many ways that expand the need for cultural competencies beyond that of just getting older and have an LGBT identity. If the essence of cultural competence is to affirm and value the dignity of the person different from the mode, then issues of age and LGBT require special attention (National Gay and Lesbian Task Force, 2006 and the Task Force on Appropriate Therapeutic Responses to Sexual Orientation, 2009). Aging and Diversity • As the baby boomer generation in the U.S. ages, the rates of disability have dropped considerably. According to data from the National Long-Term Care Survey (NLTCS), the chronic disability fell from 26.5% in 1982 to 19% in 2005, suggesting that older adults are becoming healthier and less disabled. • In fact, the brunt of the disability process appears to occur earlier in the life span and not in old age (Martin, Freeman, Schoeni, & Andreski, 2009). Aging and Diversity • Unfortunately, racial/ethnic older adults, and those living in poverty do not share the same advantages as older adults with greater lifetime resources & access to health care (Bowen & González, 2008). – Among African American elders, 25.7% report mobility disability; – Native American or Alaska Native elders (or both), 20.6% percent report disability; – Hispanic older adults, the rates of disability appear to be similar to those of older Whites, at 18%; and – Asian elders, 20%. Aging and Diversity • Although racial/ethnic minority groups have also shown a decline in disability over the decades, those who are living in poverty have shown the smallest declines in disability (Schoeni, Martin, Andreski, Freedman, 2005). – Thus, the intersection of race, ethnicity and poverty can account for increased disability. Aging and Diversity • Mental disabilities in late life are also on the rise, as the number of people with severe and persistent mental illnesses are receiving better healthcare overall and are living longer than in the past (e.g. Palmer, Heaton & Jeste, 2004). Aging and Diversity • While most older adults are not poor, there are a significant number of older Americans living below the poverty line – 3.4 million older persons - and an additional 2.2 million “near poor.” – The proportion of older adults living in financially strained circumstances (living at or below 50% of their area median income, the definition HUD uses to determine eligibility for social programs) is even higher and is estimated to be approximately 10% of the older population. Aging and Diversity • Racially/ethnically diverse older adults experience poverty at a disproportionate rate: 21.9% of elder African-Americans and 21.8% of elder Hispanics were poor in 2001, compared to 8.9% of older Whites. Aging and Diversity • Almost half of older Hispanic women and African-American women who live alone or with non-relatives are poor (Proctor & Dalaker, 2002). • The median income for Native American men aged 65 or over is $9,967, as compared to $14,775 for comparable white males. • For women in this age group, the median income is $6,004 for Native Americans compared with $8,297 for whites. Overall, 20% of Native Americans (versus 10% of whites) 65 years or older live below the official poverty level. Aging and Diversity • While we celebrate the rich diversity among older adults, we recognize that culturally diverse older Americans often are at greater risk of poor health, social isolation, and poverty, than are their younger counterparts. • Evidence of racial and ethnic disparities can be found across a broad spectrum of health conditions and outcomes. • Excessive deaths and excess morbidity and disability are prevalent among racial and ethnic minority elders. Aging and Diversity • A higher incidence of obesity, diabetes, and hypertension, as well as an earlier onset of chronic illness is evident in minority older adults as compared to majority older adults (AOA, 2008). • Regarding older adults with an LGBT identity, the challenges are many, including poorer health care, and securing reasonable housing, and caregiving services. Resilient but Not Impenetrable 25% of the 65 year old and over population live in rural areas. Rural elders are becoming isolated. The proportion of older adults in rural communities is larger than the proportion in urban areas primarily as a result of younger populations moving to larger urban areas. Along with the out-migration of younger people is an in-migration of retired elderly. Resilient but Not Impenetrable Rural elders are one of the greatest at-risk groups for experiencing physical & mental health problems. In many rural communities there are no psychosocial services available to meet the needs of the rural elderly. "Take Care of Our Own" (Bushy, 2000) Traditional rural values stress: Self-reliance Conservatism Family network Work orientation Religion/ Fatalism Mistrust of health care professionals: Distrust of outsiders Fear associated with Tuskegee Syphilis Experiment "I don't know if that works for me." Families: Family Structure In the United states there are currently many three, four, and five generation families as a result of increased life expectancy. There are fewer persons born into each generation therefore, family trees are smaller. The number of existing generations in families along with the decreased numbers in each generation has produced what Qualls (1996) describes as “tall, skinny, family trees.” Families: Changing Family Structures Living Apart Together (LAT): is a more recent phenomenon, which seems to have the potential of becoming the third stage in the process of the social transformation of intimacy. In contrast to couples in ‘commuting marriages’, who have one main household in common, couples living in LAT relationships have one household each. This article presents data on the frequency of LAT relationships in Sweden and Norway, and explores the variation which exists within LAT relationships. The article argues that the establishment of LAT relationships as a social institution requires the prior establishment of cohabitation as a social institution. (Levin, I. (2004). Living apart together: A new family form. Current Sociology, 52(2), 223-240) Gay & Lesbian Aged Older lesbians & gay men have concerns that are related to their age & sexual orientation. Nursing home or inpatient placement for themselves or their mates. May lead to loss of contact. Often no legal capacity to make medical, financial or burial decisions for mate. Different from cohort of other older adults. Homosexuality was not “accepted” before 1969 Gay & Lesbian Aged Older lesbians & gay men have concerns that are related to their age & sexual orientation. Nursing home or inpatient placement for themselves or their mates. May lead to loss of contact. Often no legal capacity to make medical, financial or burial decisions for mate. Different from cohort of other older adults. Homosexuality was not “accepted” before 1969. Culture: Religion/Spirituality National surveys indicate that older adults attach a high value to their religious beliefs & behaviors. This is particularly true of ethnic & minority elders who show a high degree of religious involvement. The vast majority of research finds that religious involvement is associated with greater well-being & life satisfaction, greater purpose & meaning in life, greater hope & optimism, less anxiety & depression, coping with stressful life events, more stable marriages & lower rates of substance abuse. McFadden, S.H. , 1996; Crowther, Parker, Larimore, Achenbaum, & Koenig,2002; Koenig, 1990; Dull & Skokan, 1995 The SPIRITual History S P I R I T Spiritual belief system Personal spirituality Integration with a spiritual community Rituals or Restriction Implications for medical care Terminal events planning Maugans T. (1996). Arch Fam Med, 5: 11-16 SPIRITual History Questions What does spirituality mean to you? What aspect of religion/spirituality would you like me to keep in mind as I care for you? Would you like to discuss the religious or spiritual implications of your health care? Maugans T. (1996). Arch Fam Med, 5: 11-16 1. Which of the following would be good ways to promote cultural competence in your workplace? 2. Seek out information about the various customs, holidays and religions of cultures different from your own that you will encounter in your work. 3. Try to bring your patients into mainstream American culture as much as possible. It will be easier for them that way. 4. Learn how to respectfully ask questions about cultural beliefs. 5. Avoid talking to patients about anything other than medicine. CULTURAL COMPETENCE IN THE WORKPLACE Integrated Healthcare Interdisciplinary Awareness Collaborative relations across disciplines demonstrates a supportive, collaborative and interdisciplinary team focused on improving care for older adults. The structure of interdisciplinary teams has evolved from a hierarchy, with the physician in a "command" position, to a team interfacing many different kinds of health care professionals, each with separate and important knowledge, technical skills, and perspectives. (APA, 2007) Interdisciplinary Teams: Balance Several Factors (APA, 2007) Older People & Health Care System Older people are disadvantaged by a health care system not sensitive to their needs. Multiple morbidities Life span experiences Fragmented care Marginalization Ageism & Stigma Everyone doesn’t need integrated model. For example, someone with an earache. However, because older adults often have co-morbid conditions the integrated model is very useful. (APA, 2007) 1. What cultural factors could strongly influence a persons’ reactions to serious illness & decisions about healthcare? GROUP QUESTION: CULTURE & HEALTHCARE Joe, an 85 year old African American male, was diagnosed with hypertension 15 years ago. Joe exhibits dramatic fluctuations with his blood pressure due to noncompliance with prescribed treatment regimens. Joe’s physician discusses how Joe should manage his “hypertension”. 1. What wording could the physician have used to help Joe understand his condition? 2. What other disciplines may have been involved in helping Joe manage his hypertension better? CASE VIGNETTE: JOE “With so many factors to consider, how does one move forward with developing cultural competence without being overwhelmed with the complexity and the dangers of stereotyping, or reifying the culture of others? Practicing “cultural humility” is the key.” California Health Advocates, 2009 CULTURAL HUMILITY GROUP EXERCISE 1. Identify your own cultural and family beliefs and values. 2. Define your own personal culture/identity: ethnicity, age, experience, education, socio-economic status, gender, sexual orientation, religion… 3. Are you aware of your personal biases and assumptions about people with different values than yours? 4. Challenge yourself in identifying your own values as the “norm.” 5. Describe a time when you became aware of being different from other people. California Health Advocates, 2009 Cultural Humility Defined A lifelong process of self-reflection and self-critique. “The starting point for such an approach is not an examination of the client’s belief system, but rather having health care/service providers give careful consideration to their assumptions and beliefs that are embedded in their own understandings and goals of their encounter with the client. In practicing cultural humility, rather than learning to identify and respond to sets of culturally specific traits, the culturally competent provider develops and practices a process of self-awareness and reflection.” Dr. Melanie Tervalon and Jann Murray-Garcia , California Health Advocates, 2009 Cultural Humility: Values Openness Appreciation Acceptance Flexibility Mia Luluquisen, Katherine Schaff & Sandi Galvez, Alameda County Public Health Department (2009) Cultural Skills Across Domains Policy & Advocacy Organizational Program Planning: Interpersonal Personal Cultural Skills Across Domains Personal: Ability to regularly conduct self-evaluation about how values and beliefs impact worldviews Interpersonal: Ability to communicate with others who have different language and worldview Capability to translate ways of seeing and behaving from one culture into another Cultural Skills Across Domains Program Planning: Ability to show respect for another culture’s values and identity Capacity to include the cultural, social and environmental influences on communities in program design Talent for building trust, developing relationships and working with culturally diverse community members Organizational: Ability to establish organizational vision and leadership that promotes a positive multicultural work environment Capability to create and implement policies and procedures to foster diversity and inclusion Cultural Skills Across Domains Policy and Advocacy: Capability to assess and revise existing policies and procedures in the planning, delivery and evaluation of comprehensive programs and services for diverse populations Capacity to review and revise policies that allocate resources for culturally diverse populations, such as translation and interpretation services Cultural Competency & Cultural Humility Cultural Competency can include: mandates laws rules policies standards practices attitudes Cultural Humility is a process and a lifelong commitment to self-evaluation and critique to improve relationships and outcomes. On-line Resources Administration of Aging Achieving cultural competency: A guidebook for providers of services to older Americans and their families. http://www.aoa.gov/prof/adddiv/cultural/addiv_cult.asp Alzheimer’s Association Diversity Toolbox: Caring for Diverse Populations.http://www.alz.org/professionals and researchers_caring_for_diverse_populations.asp National Center for Cultural Competence http://nccc.georgetown.edu/index.html Cultural Competence http://www.alz.org/Resources/Diversity/downloads/GEN_EDU10steps.pdf Multicultural Outreach Manual http://www.alz.org/national/documents/GEN_OUTMulticulturalManual.pdf On-line Resources American Geriatrics Society Position Statement on Ethnogeriatrics. http://www.americangeriatrics.org/products/positionpapers/ethno_comm ittee.shtml Use of Interpreter During Clinical Encounters Position Statement http://www.americangeriatrics.org/products/positionpapers/interpreter_0 22307PF.shtml American Psychiatric Association Ethnic Minority Elderly Curriculum http://www.aagponline.org/prof/pdfs/08cultcompcur.pdf American Psychological Association Task Force on Diversity Education Resources: Teaching and Learning about Aging (2008) http://teachpsych.org/diversity/ptde/aging.php On-line Resources Stanford University, Geriatric Education Center Curriculum in Ethnogeriatrics http://sgec.stanford.edu/resources/ethno.html Ethnogeriatric Educational Resources including emergency preparedness; mental health and diabetes; and, on line training manuals on improving communication with elders of different cultures, and diversity, healing and healthcare;http://sgec.stanford.edu/resources/ Our Ethnogeriatric Imperative Powerpoint by G. Yeo; http://sgec.stanford.edu/pdf-word/Gwen_AAHPM.pdf On-line Resources Initiative to Eliminate Racial and Ethnic Disparities in Health (http://raceandhealth.hhs.gov/) Health Disparities Collaborative (http://www.healthdisparities..net/hdc/html/home.aspx) American Public Health Association. “Eliminating Health Disparities: Toolkit” (2004). http://www.apha.org/NPHW/toolkitPHW04-LR.pdf Suggested Future Readings American Society on Aging. (2002). Recognizing diversity in aging, moving toward cultural competence. Generations, 26(3). Jackson, J.S., Brown, E. and Antonucci, T.C., (2004). A cultural lens on biopsychosocial models of aging. In P. Costa & I. Siegler (Eds.) Advances in Cell Aging and Gerontology Vol. 15 (pp. 221-241). New York: Elsevier. Xakellis, G., Brangman, S. A., Ladson Hinton, W., Jones, V. Y., Masterman, D., Pan, C. X., Rivero, J., Wallhagen, M., & Yeo, G. (2004). Curricular framework: Core competencies in multicultural geriatric care. Journal of the American Geriatric Society, 52, 137-142. Yeo, G. & Gallagher-Thompson, D. (Eds.), (2006). Ethnicity and the dementias (2nd ed.), NY: Taylor & Francis. Suggested Future Readings LaVeist, T.A. (2005). Minority Populations and Health: An Introduction to Health Disparities in the United States. San Francisco, CA: Jossey-Bass Publication. Williams, D.R., Collins, C. (2001). Racial residential segregation: A fundamental cause of racial disparities in health disparities. Public Health Reports, 116, 404416. Baicker, K. Chandra, A. Skinner, JS, Wennberg, JE.(2004). Who are you and where you live: How race and geography affect the treatment of Medicare beneficiaries. Health Affairs. (www.healthaffairs.org) Lu MC & Halfon, N. (2003). Racial and ethnic disparities in birth outcomes: A life course perspective. Journal of Maternal Child Health 7 (1) 13 130. Satcher, D & Pamies, RJ (2006). Multicultural Medicine and Health Disparities. New York, NY, McGraw-Hill Medical Publishing Division, 2006.