Co-production and mental health – discussion in Scotland 1 July 2014 Background The meeting was arranged by Outside the Box, as a broad discussion about mental health and co-production. There were no fixed outcomes or aims for the day – it was an exploratory discussion to see what emerges, what the issues particularly are on mental health and co-production in Scotland, and about what could most usefully happen as a result. The discussion was prompted in part by the excellent literature review from the New Economics Foundation and Mind on co-production and mental health, which has given rise to similar discussions about “what next?” in England. You can see the report at: http://www.neweconomics.org/publications/entry/co-production-in-mental-health-aliterature-review We started with the definition of co-production from nef and Mind: "We understand co-production to be a relationship where professionals and citizens share power to plan and deliver support together, recognising that both partners have vital contributions to make in order to improve quality of life for people and communities." The session also built on ideas that are coming from the Getting There project, which brings together user-led services who are working to promote and share ideas around Self-directed support. The people taking part came from a wide mix of settings, roles and interests in coproduction. This note is for: The people who took part in the discussion Others who wanted to come but were not able to Other people with an interest in the topic. The day was facilitated by Anne Connor from Outside the Box (anne@otbds.org) and Rich Watts from the National Development Team for Inclusion (NDTi, rich.watts@ndti.org.uk). To what question(s) might co-production with people with mental health problems be an answer, or part of an answer? Power imbalances One size fits all service solutions Getting services that work well for people and reflect their needs and preferences A way to make the resources we have go further and be used with more impact Creating more choices for people, especially in context of SDS Tokenistic involvement of people who use services Seeking legitimacy and shared responsibility and accountability for reform Taking a holistic view of public sector change, rather than service-by-service 1 What facilitates effective co-production in mental health? Capacity building of all relevant stakeholders Trust between all relevant stakeholders, for example through regular contact between people, irrespective of their position or organisation Evidence and evaluation: making an economic case for co-production and demonstrating added value that comes from co-production Finding allies and leaders for co-production, as well as persuadable people Being strategic about the contribution that co-production can make Positive stories and examples about the difference co-production has made Building capacity around the practice of co-production with people who have mental health problems - having examples about the practicalities of how to do co-production well Training and support for staff on how to do co-production Making the most of the best opportunities wherever they offer themselves – from the small and practical to the large and strategic A wide pool of people with relevant experience and expertise to contribute to co-production Leadership is values driven Reassurance that co-production isn’t going to lead to a terrible outcome compared to doing something a service-led way What are the barriers to effective co-production in mental health? Stigma of mental health users – how other people perceive us and people’s low expectations for themselves Money – not enough resources for service users to be involved in the planning and developing. (Often very small sums compared to the costs of providing services.) It is seen as time- and/or money-intensive, and there feels to be a lack of space and time to explore issues through co-production (system pressures) There is often a risk averse culture within public sector organisations that isn’t conducive to co-production approaches The current approach to commissioning, and the culture of competition in public services Lack of understanding that small and local solutions can be just as good (if not better) than large solutions Many organisations do not have structures or systems designed to identify of make the most of the contribution different people could make if given the opportunity Confusing / jargonistic language The current culture of professional services is not conducive to effective coproduction in mental health There is no easy model of change to which co-production is seen to contribute Is there something unique/different about co-production with people with mental health problems? If so, what might this be? Stigma and self-stigma are big issues that don’t always come up for other groups 2 The process of co-production can have benefits for participants as well as the outcomes of co-production. For example, being part of co-production can support people to become or feel more resilient, more confident, improve their self-esteem or promote their wellbeing It can help give people a sense of belonging to a collective What needs to be done differently to help enable more co-production in mental health? Education Examples are essential Understanding why it might be scary for people Strategic shouting – telling people making decisions and setting policy that this works and is something we want to see more of, that good practice helps make it work Addressing the barriers highlighted above and enhancing the facilitating factors) What might be most useful to think about doing next when it comes to coproduction and mental health? Have a peer support group for people who are trying to take forward co-production in mental health. The contact list from today’s event is a good starting point! Link in with the Scottish Coproduction Network - see below for more information from Olivia Hanley (http://www.coproductionscotland.org.uk/) Pull together as many examples / stories / evidence of co-production – both on the results it is achieving and the process of how this has been achieved Produce and disseminate a summary/outline of the journey of co-production – from the nub of an idea through to the impact it had This can include stories in a range of formats, poetry and other creative ways of people explaining what co-production does and how it makes a difference. Share and promote these examples across all relevant government departments Find evidence that the process of co-production itself is beneficial for people with mental health problems Map other opportunities for co-production and mental health available at the moment, including showing how it links to 2020 vision (http://www.scotland.gov.uk/Topics/Health/Policy/2020-Vision) Use the Public Bodies Bill consultation (http://www.scotland.gov.uk/Publications/2014/05/6659) Contribute suggestions on the development of the Integrated Care Fund It will be useful if individual people and local groups all put in their own submissions We can cover the questions which we feel are important See below for more details Share ideas and information on possible sources of funding for services based on 3 co-production and for smaller sums to support participation by people who have lived experience of mental health problems Try to secure more funding from Government for co-production (need to define what the funding would be for, how it would improve things for people etc.) Explore the link between co-production and procurement – how councils specify the services they want to buy Identify who the leaders might be for co-production and mental health Make links with relevant teams or people – at national, regional and local level Host a repeat event/discussion in a few months Include a short summary of today in as many organisation newsletters as possible, so that we can convey to people this is something we’re all keen to do and trying to build more interest in it – see below. More information from Olivia Hanley at Scottish Co-production Network: The Scottish Co-production Network – www.coproductionscotland.org.uk and information about recent activities attached. We do an e-bulletin, events, case studies and resources on the site. We use #coproductionscotland for any tweeters. We also used #copro2014 at the national conference (write up and storify from this here http://www.coproductionscotland.org.uk/events-and-news/news/copro2014/) This is a video from one of our learning seminars around evaluation where Julia Slay of nef talks about some work they are doing around the wellbeing impact of coproduction http://www.youtube.com/watch?v=OdRjLZYruCk People Powered Health and Wellbeing programme in case anyone doesn’t know about it http://www.alliance-scotland.org.uk/what-we-do/projects/people-poweredhealth-and-wellbeing/ CHEX – Community Health Exchange – is a good place to share and find useful information about what other people are doing: www.chex.org.uk Consultation on Health and Social Care Integration implementation Comments are due back to Scottish Government by 1 August. The form should be sent directly to Alison.beckett@scotland.gsi.gov.uk Or by snail mail (but to arrive no later than 1st August please) to: Alison Beckett, Scottish Government Area 2 E.R., St Andrews House, Regent Rd, Edinburgh, EH1 3DG This is the link to the whole document if people would like to respond to other parts: http://www.scotland.gov.uk/Publications/2014/05/5284/downloads#res449846 Shona has given an outline which says why mental health and wellbeing are important. We’ve attached a copy for people to use or adapt. 4 Gathering examples of good co-production with people who have mental health problems, and the difference it makes We are looking for examples of co-production at any stage or aspect: People planning service Identifying the need or gap Designing services Delivering services Aspects such as developing assessment tools and information about services Assessing the impact We can share these through several routes: The new Joint Improvement Team website which will be ready soon Scottish Co-production Network The Getting There project based at Outside the Box Short paragraph – to get you started in your newsletters etc Co-production is when people who use services, or people from a local community, work alongside professionals to plan and then to deliver the service together. People from user-led groups and other organisations came together on 1st July to look at ways to promote co-production with people who use mental health services. The meeting was organised by Outside the Box and the reports and other materials which people are sharing will be on the Getting There website: www.gettingtheresds.com Some of the things that we agreed to do to help raise awareness about the benefits of co-production are gathering examples of the benefits a co-production approach brings for individual people and for wider services. [something about who came from your organisation and what you will be doing next] Contact, and for examples and stories about the impact of co-production Outside the Box 0141 419 0451 admin@otbds.org www.otbds.org www.gettingtheresds.com 5