Marlin 1 Mardee Marlin Professor Christie Bogle English 1010 24 June 2015 How One Decision Changed My Whole Life Imagine being 11 years old full of life, energy and hope until you received news, which would change the way you lived life...forever. “In a moment everything can change” is the perfect song to describe what happened to me. If someone made “One Decision, That Changed Your Whole Life”, would you blame them for your struggles? January, 2001 my grandma passed away. My grandpa got remarried in the fall of 2003 and moved to Washington. My mom decided to keep her childhood home in the family, so she bought the home. My family and I moved from American Fork to Orem. We lived in American Fork for 11 years of my life. I had a very stable life. I was popular, I was the top student of my 6th grade class, and I was in choir, dance, and “Annie” the musical. My hobbies included playing soccer, riding my bike, rollerblading, and running, doing pageants, performing, and playing with my older sister, Mindy and all my friends. I never realized how hard it would be to uproot my life in the middle of a semester. I was so angry at my mother for making me lose all of my friends and make me quit all the things I tried out for. My first day of school at Foothill Elementary was very nerve wracking since I was starting in the middle of the school year. I had never been more upset at my mom, then I was that morning. I was so stressed about trying to catch up in class, and what if I wouldn’t find any new friends? The boys took a special liking to me right away and the girls were very intimidated by me, “the new girl.” I adapted to my new school and home right away, but never got to see my old friends since it was too far away. A few months after school started, I was getting sick every week or two. I would have to miss school and soon got behind in my school work. This continued for one whole year. I have always tried to stay positive, and my mom taught me to never let anyone see my discomfort. Doctors continued to give me medicine for all the various flu’s and colds. My mom did everything she could think of to see what Marlin 2 was causing me to get sick. She took me to a homeopathic doctor, a gastrointestinal doctor, an allergist, she had a mold dog company check our house for mold. I was so frustrated and people close to me thought I was faking it, just because I didn’t want to go to school. After a full year of getting dozens of tests done, I finally got the result that I had Mono. By this time, I was in Junior High at Canyon View. I had missed nearly half of the school year and was failing a couple classes. I was soon known for the girl who “was always sick” or the girl who had “Cooties.” I used to be so full of energy, and now I couldn’t get out of bed. I used to be a girl who would only cry if I got hurt, but now I was quickly slipping into a depression. I ended up getting a district teacher, Mrs. Anderson who would come to my house or the hospital 3 times a week to teach me everything I should be learning in school. My only glimpse of the outside world was with my teacher. My new so called friends, didn’t want to visit, because they thought they would get sick. I had no social life, I was taking care of myself because my mom was always working, and I never really left the house. My mother loved the attention my illnesses gave her from her friends and family. Some of you may know mono as the “kissing disease.” I had wished that is where I got it from! The stress of the move wore down my immune system and made me susceptible to this illness. Infectious Mononucleosis or Gland Fever are other names for this infection. Mono is caused by an infection called Epstein - Barr virus. The most common symptoms of mono include, loss of energy, fatigue, swollen glands, fever, sore throat and chills. I soon started to resent my mom for making me move. I secretly blamed her for me getting sick. In the fall of 2005, two towns later, I was finally feeling up to going back to school….or so I thought. One month into the semester, I began throwing up everything I ate. My friends and family just thought I was becoming bulimic. I was hospitalized for dehydration. I thought mono was bad, until this illness came on. I was soon unable to get out of bed, feed myself, shower, go to the bathroom without assistance, let alone see friends or go to school. A couple months later, we moved back to Orem, for which I was thankful, because Mrs. Anderson came to teach me once again. It was such a huge blessing to Marlin 3 me, because I could finally see someone who wasn’t afraid I would infect them. I was having to go to the doctor every two weeks, and was quickly put on anti-depressants. Adding this pill to my daily regimen brought me up to 12 pills in one day. They ran more tests and soon learned I had developed an Autonomic Nervous System Disorder caused by my lack of immune system due to Mono. According to heathline.com “Your Autonomic Nervous System is made up of nerves that control those things that are “automatic” and needed for you to survive. A few of those necessary things include blood pressure, heart rate, sweating and digestion of your food.” Some of my symptoms include dizziness and fainting upon standing (Orthostatic Hypotension), inability to alter heart rate with exercise, digestion difficulties such as vomiting, constipation and diarrhea. The years passed, we moved a handful more times and my sickness held on like a blood- sucking leech. My depression worsened. I finally convinced my mom to let me spend my money I had saved to buy a dog. She knew she would be the one taking care of it sooner or later, but she knew I was not in a good place. That was one of the best decisions, to this day that I have ever made. Candee is her name, she is a 12 pound Yorkie. She always stays by my side. She gives me motivation to get out of bed every day. I would wake up, take her outside and sit and watch her. This really gave me something to again live for. I soon made this a pattern, which helped me feel better and have more energy. I soon was well enough to go back to school, which I was now high school and got a job at Red Robin. I soon overworked myself and became bedridden once more. My parents thought I was stupid for even trying to go back to school, because they “knew I would fail”. The middle of my Junior Year of High School, I was failing every class I had taken at school and I started to believe my parents. I started to push away my friends, because “no one wants to be friends with, or date a broken car, when they could have a new one.” Or so says my mom. Mrs. Anderson did not agree what so ever. She helped me pass not only my Junior Year, but my Senior Year of High School all 1 year before my graduating class, with a 3.9 GPA. I could not have been happier. Mrs. Anderson made me believe that I could do and be anything I wanted, no matter my disability or what anyone said to me. Marlin 4 As soon as I graduated I moved out of my mom’s house and moved into my dad’s Utah house while they were living in Texas. That did not last long. My step mom accused me of lying about being sick “since she never sees me pass out or throw up” so I moved out on my own, at 17 right away. I soon pushed all my family and friends away, because I was sick of putting on a show and a happy face every day. Because of my illnesses I was only able to work, and not go to school at the same time. I did have a year or so that I was able to work, and live a semi- normal life. I met Adam in 2013 when I was working at Red Robin in Salt Lake, who didn’t see me as a “broken car.” He helped me learn to manage my stress and depression so it would not get out of hand. I will not lie, I have considered suicide many times, but I convinced myself that it would be selfish because so many people would blame themselves due to their lack of sympathy. August of 2014, made me feel worse than I ever have. I began to pass out 1-5 times daily. I was hospitalized 4 different occasions, seen by a dozen doctors, 2 cardiologists and a neurologist. I was a barely living, breathing mystery. No doctor could figure out what was wrong with me. I had a Loop Monitor implanted above my heart in April, 2015 to monitor my rhythms. I had to quit my job at Red Robin that I had, had for 6 years and apply for Disability. Once again, I could no longer shower by myself, drive, walk alone, or get out of bed other than to use the restroom. The tests continued to show negative results other than low blood pressure. Yet I continued to pass out which resulted in many black eyes, and hundreds of weird stories to tell. I had to stay with my step mom and dad for a couple weeks, because my dad hired me to do his payroll for his Texas companies. My step mom soon apologized for accusing me of faking my illnesses once she saw me in this state. I still have a hard time getting over the scar she left on my heart years ago. To this day, I do not have an official diagnosis. I live day to day, and some days I feel better than others. I still struggle with depression, but Candee, and my boyfriend of 2 years have helped me realize that I am here for a reason, and I need to keep my head up and try to live each day as if it were my last. It is easy to blame my mother for my health issues, but I have come to realize we all have certain trials in our lives, and health is just one of mine. I am so thankful for the life I now live and things I can do that Marlin 5 other people with serious diseases cannot. I am working on opening up to my friends and not just hiding my pain. I do think that Mrs. Anderson to this day made me realize my potential, and for that I am truly thankful! I am in college now, and with the help of the Disability Resource Center at SLCC and public transportation, I feel I am almost living the life of a regular college student, other than being able to do extracurricular activities of course.