Vision for the Cancer
Registry
Moving Towards 2020
(and Beyond)
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Data…
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This Data…
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That Data…
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What Data?...
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OMG MORE DATA!...
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Buried by Data…
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Can You Relate?
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Why 2020?
Healthy People 2020
• Federal Government Initiative
• Overarching Goals
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Attain high-quality, longer lives free of preventable
disease
– Achieve health equity and eliminate disparities
– Create social and physical environments that
promote good health
– Promote quality of life, healthy development,
healthy behaviors across life stages
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Why 2020?
The True “Tipping Point”
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Healthy People 2020 - Cancer
Cancer-Specific Goals
• http://www.healthypeople.gov/2020/topicsobjectives/topic/cancer/objectives
• A few examples
– Reduce overall cancer death rate
– Reduce late stage female breast cancer
– Increase the number of central, population-based
registries from the 50 States and the District of
Columbia that capture case information on at
least 95 percent of the expected number of
reportable cancers
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Healthy People 2020 - Cancer
Cancer-Specific Goals
• A few (more) examples
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Increase the proportion of adults who receive a
colorectal cancer screening based on the most
recent guidelines
Increase the proportion of women who were
counseled by their providers about mammograms
Reduce the proportion of adolescents in grades 9
through 12 who report using artificial sources of
ultraviolet light for tanning
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Healthy People 2020 - Cancer
Cancer-Specific Goals
• And even a few more examples
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Increase the proportion of men who have
discussed the advantages and disadvantages of
prostate-specific antigen (PSA) test to screen for
prostate cancer with their health care provider
Increase the mental and physical health-related
quality of life of cancer survivors
Reduce cancer death rates in a variety of specific
cancers including lung, cervix, melanoma and
several others
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Healthy People 2020 - Cancer
Potential Impact on Registries & CTRs
• Several questions need to be answered
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How will COC incorporate these goals into the
accreditation process?
– Will your facility/health system “embrace” these
goals and pursue achieving them?
– Who will be responsible for collecting the data
associated with these goals and the system in
which this information will be stored?
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IMHO
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Cancer-Related Data
The Cancer Registry’s “Sandbox”
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You are the cancer data expert
You “talk the talk”
Oncologists listen to what you say
Surgeons actually respond to your requests
You know where the data “hides”
You know that HER2/neu is not a character in
the new Star Wars movie
• Nobody does it better!
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Evolving Role
Not “just” a CTR – you are:
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The Cancer “BIG DATA” Abstractor
The Cancer PI
The Cancer multitasking specialist
The Cancer lingo guru
The Cancer expert translator of synoptic
pathology reports!!!
• The Cancer data troubleshooter
• The Cancer data expert who keeps your
manager “looking good”!
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Dinah’s Question
“If your son was considering a
career in cancer-related data
management, how would you
counsel him regarding this
choice?”
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Connor
Student at FGCU studying Professional
Golf Management
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Connor
20th Birthday Celebration in Lahinch, IRL
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Cancer Data Manager
Role in Population Health Management
• Why do we collect data
COC
• To support the efforts to improve evidence
based cancer care
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Cancer Data Manager
Future in Your Hands
• Educational Preparation (Biostatistics,
Epidemiology, Actuarial Science)
• Data Management Skills
– “What do you want the data to say?”
• Enhance your public speaking/presentation
abilities
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Be the cancer data spokesperson
• Be The Cancer Data Experts
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Otherwise nurses will take over!
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Bibliography
Macios, A. (2012). Filling the Void: Unraveling the Cancer
Registrar Shortage. For the Record,24(16), 14-14.
Petros, S. (2009). Certified Tumor Registrars, Oncology
Data Specialists. Oncology Times, 31(14), 3-3.
Severson, A. (2015, May 1). Shedding light on the role of
cancer registrars, the search for a cure.Las Cruces Sun
News.
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