Gifts from Grief …And because of you I was born, and life began anew. Hope Cherishing Love c. 1904 by Harry Mileham May these messages from parents who have known the deepest sorrowlift your heart, inspire you to seek light and beauty, and yes, when ready, invite you to uncover gifts that will bless your life. –Sherokee Ilse Mother of 2 living sons and 3 in heaven who are always within my heart. Because our children lived, we are forever changed. And somewhere between their birth and the unspeakable sorrow of their death, arises enlightenment, inspiration, friendship, compassion, and hope. Gifts from grief. Gifts from our children. Because they lived. The Gift of Giving My son Jeffery was stillborn at 37 weeks on November 8, 2006. Jeffery For his first birthday in Heaven, we decided to donate toys to a local charity in his memory... By Jeffery’s first birthday, we had 95 toys to donate to the Orange County Ronald McDonald House! We went there on his birthday with our truck full of toys and they were very compassionate, grateful and kind. Keeping Memories Alive One year after my son was stillborn, a woman knitted 10 blankets in his memory. I donated them to Threads of Love, an organization of women who knit blankets, clothing, and hats for premature babies then donate the items to local hospitals. They had never accepted items in a baby’s memory. They put tags on each one that said “In memory of Jeffery Andrew Goltara.” In July 2009, a woman gave birth to a baby who wasn’t expected to survive. Her mother-inlaw was the woman had donated the blankets in Jeffery’s memory. The nurse gave the family a blanket – one of Jeffery’s blankets - for the baby. Little gifts such as these keep me going strong and help Jeffery’s memory live on. The friend who can be silent with us in a moment of despair or confusion, who can stay with us in an hour of grief and bereavement, who can tolerate not knowing... not healing, not curing...that is a friend who cares. Henri Nouwen Providing Comfort I have always been empathetic toward others and have reached out to friends who were hurting, but I've never known quite what to do when someone is grieving. Matthew Now, I am more than comfortable in reaching out to someone who is feeling devastating pain. Losing my son also makes me know how fragile life is and makes me hold on tighter to my daughters than ever before. I hope that my loss brings me to be the best mom I can possibly be to my girls. Krista Anderson Mother of Matthew Stillwater, MN Although the world is full of suffering, it is full also of the overcoming of it. Helen Keller Enlightenment When we lost our daughter Alyssa on January 26th, 2009, our world was shattered, but just that she existed has touched us greatly in a positive way as well. Alyssa After she was born still, we found out that my husband and I have a rare genetic blood clotting disorder which our children have also tested positive for. This information has potentially saved my [live] daughter’s life, and has given a reason for the mysterious pregnancy losses in my husband’s family. I have become an activist in memory of my dear Alyssa. Her death gave me the courage to stand up and speak out. I no longer care so much what other people think. Her sweet little life has made an indelible mark on our family that has blessed us immeasurably. Brianne Kraus Gifts of Love and Loss My whole life since March 3, 2005 has been a gift from my son Avery. Everything. Avery Nothing that has come my way or that I have endeavored to do since then has been without meaning, without purpose, without joy -- even the difficult and painful things. My heart has never been more full of love -for my family and friends, for other bereaved parents, for my subsequent child. All of the things I have earned, achieved and labored for since Avery was born still in my arms have been because he gave me the gift of profound loss. Because only in the deepest grief do we know the potential for love we hold in our hearts. Suzanne Pullen Mother of Avery Pullen, Stillborn 3/05 Perspective Never in a million years would I ever believe I would have a gift from my grief. Beyond the obvious, the birth of my daughter Alison and subsequently my son Adam, when I think about the journeys’ arc, there is a gift, and that gift for me is perspective. Solomon Before I had my children, I never had reason to think about perspective, whether I had it, whether it was situational or what to do about it. Since losing Solomon, perspective has become a major foundation of my psyche. It’s the tool I use to measure stress. It’s the gift I engage when facing a bumpy path in the road. It’s the realization that the death of my child is my rock bottom, and anything short of that can be triumphed over. Perspective helps me weigh the pros and cons of any situation in my life. It’s a gift I hope to give my own children. Amy Abbey www.PregnancyJourneysAfterLoss.com mom to Solomon, stillborn 3/8/00 at 19w 6d Baby Z, miscarried 10/23/00 Alison and Adam, my miracles; stepmom to Alex Michael Kindness, Appreciation, Joy, Awe On May 19th, 2003 my husband Luke and I lost our first child, Grace, at 31 weeks of pregnancy. Grace The days and weeks that followed I just focused on surviving. I knew in my heart that I would be happy again, but I just didn’t know how or when I was going to get there. I know Grace made me a better person and a better mother. Grace has given me so many gifts it’s hard to name them all: a wonderful marriage, awareness of the kindness of others, appreciation for old friends… …the ability to revel in simple joys, to awe at beauty, to truly see the important things in life and the great gift of 3 healthy children, each specially hand-picked just for us by their big sister. Kerry Biondi-Morlan Des Moines, IA The only cure for grief is action. ~George Henry Lewes Empowerment One Friday morning in March of 2004 I met for coffee with 3 women who had also lost daughters from late-term stillbirth. I immediately connected with each of these ladies, and for the first time I felt hope. Grace These remarkable women showed me that I could CHOOSE how the loss of Grace was going to define me. From that day on I learned I didn’t need to be a victim of my circumstances. I was empowered. I joined their efforts in getting Iowa to pass the nation’s first Stillbirth Registry, and helped lobby for funding. I contributed to protocol used to collect stillbirth data, and conducted in-services for labor and delivery nurses on how to care for families after a loss. We started a local parent-to-parent network that connects families who have had past and more recent losses. We formed a non-profit organization called Healthy Birth Day and have launched a state-wide Count the Kicks campaign. Kerry Biondi-Morlan Mother of Grace Des Moines, IA Friendship doubles our joy and divides our grief. Swedish proverb Friendship Grace’s life is also a story about friendship… We have rejoiced over healthy babies, cried over miscarriages and prayed during very scary pregnancy complications. We celebrate birthdays, honor our daughters, pray for ill parents, get together for meals and late night wine. Grace We call each other for no reason, take vacations together; and meet at the coffee shop. And most of all, I think, we laugh. These women are my family. Our friendship is effortless, deep and real. And even though it was pain that brought us together, we feel we are the luckiest women in the world. Our daughters gave us the gift of a very special friendship. And for that, I will be forever thankful. Kerry Biondi-Morlan Samantha While the loss of my daughter, Samantha, still leaves my heart broken in two, it has brought lasting friendships into my life that would not have happened otherwise. Paige Ricci (ANA Board Member, CBRS Bill advocate) Happiness I have learned that life is too short and too beautiful to spend it being unhappy. So I have chosen to be happy. And I love being happy! D.K. The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not just happen. Elisabeth Kubler-Ross Purpose Three years after we lost our son I felt a pull to do something...I just didn't know what. My mother suggested I help other mothers who have had a baby die. And immediately the pull was gone. I found my "something". Billy I found a nurse that was willing to help, and together we have created packets and memory boxes for families with all the information I wish I would have had. I am also starting a support group for bereaved families. I truly believe that my babies died so that I could help others. I believe that everything happens for a reason, and the reason that I searched for "why" when I lost our son, I have found. Trinity Cook Helping Others I still think about Billy and my angel baby every day. But instead of such deep sadness, I use that to think of what I can do for other families, so that they don't feel so alone. Billy Trinity Cook Son Billy stillborn at 20 wks, baby miscarried at 12 weeks in same year There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are messengers of overwhelming grief...and unspeakable love. Washington Irving Grief and Love After my son, Bryce, was stillborn one week before my due date, I was beyond paralyzed with the searing pain of grief. Bryce I couldn’t imagine how I could ever go on to live a happy life after having my precious baby die in my womb. Sometime after my loss, I was given advice by my support group leader that I really took to heart. She said that in order to get through my profound grief, I would need to allow myself to fully go through it. So that is exactly what I did… ...I allowed myself to feel the pain with all of its intensity. My hope was that this would allow me to “get through it.” It absolutely became my mission to grieve and that’s what I did. After almost two years of grieving all out, I felt like I was able to finally begin to see some light. Instead of feeling devastated every time I looked at Bryce’s picture, I found I was feeling more & more love for my son who had died. Less pain……more love. Moving Forward…Together Just like with a (live) new baby and a parent, I felt more in love with my baby and more fully bonded to him each passing day. Death did not end my love for Bryce. It did not stop it from growing (quite the opposite in fact)! I then realized that I would forever be connected to Bryce by the never-ending bond of love that a parent and their child naturally has. How content this new way of viewing my loss made me feel. So I was moving forward, with Bryce…not leaving him behind…moving forward together. But I was not the same person (not even close.) My experience had forever transformed me. No Excuses Who was I now then? I am still me to a certain extent, but I have become a person who no longer uses the excuse, “I’m feeling uncomfortable……so I’m not going to do it.” My new motto is, “Its okay to feel uncomfortable…….but do it anyways!” Participant of Life I now support newly bereaved families in their grief journeys whenever I can, and I support medical staff in this very heartbreaking part of their job. I am not afraid of tears or grief anymore (mine or others), I love more deeply, I hug those I love harder, find beauty in every day things, and I play more full out. be. I am a participant of life now and not the spectator that I once used to Bryce I will no longer let ‘feeling uncomfortable’ stop me in life or stop me from lending a hand to a grieving heart. What a huge gift from my precious, much loved, baby boy Bryce! Lori Martini Mother to Bryce Neily Martini stillborn11/30/04 due to Placental Abruption www.healingfromthestart.com She was no longer wrestling with the grief, but could sit down with it as a lasting companion and make it a sharer in her thoughts. George Eliot Compassion I have received a lot of gifts since losing William. I do believe the gift I received that I cherish most is compassion. I learned who my friends were and what I am, what my family is, and what my friends are truly made of. William I am stronger than I ever thought possible, and so are my family and friends. My favorite gift is that I found my love of Nature again. I take more time to look and appreciate the scenery, to smell the proverbial roses and to enjoy all that nature has to offer. Yes, in Nature I see my son. William, to me, is a Hawk; I see him often and love that I believe he comes to see me. I thank all of my fellow bereaved parents and consider them all gifts of this thing called grief! Amy Lang Mother of William Courage is being afraid, but going on anyhow. Dan Rather Hope is the thing with feathers That perches in the soul, And sings the tune without the words, and never stops at all. Emily Dickenson Hope Even though it has been 7 years since we lost Kaylee, it is still very hard. It brings comfort to know that Angel Names Association is here with their support to guide us through our dark days of grief. It brings us HOPE for the future. This is what has proven to make a positive impact in our lives....to remain strong, always think positive and to never ever give up hope. Lisa Dumar How wonderful it is that nobody need wait a single moment before starting to improve the world. Anne Frank Repairing the World Tikkun olam is a Hebrew phrase that means "repairing the world." That is what I set out to do. Solomon While my son Solomon would never be alive, I knew I could help others by sharing my story. Publishing "Journeys: Stories of Pregnancy After Loss," allowed me to heal and I hope brings healing to others. It is just one small way my life can have a positive impact on others. Amy Schwartz Abbey Grief can awaken us to new values and new and deeper appreciations. Grief can cause us to reprioritize things in our lives, to recognize what's really important and put it first… Grief can heighten our gratitude as we cease taking the gifts life bestows on us for granted… Grief can give us the wisdom of being with death… Grief can make death the companion on our left who guides us and gives us advice… None of this growth makes the loss good and worthwhile, but it is the good that comes out of the bad. Roger Bertschausen Life, Love, Joy Nicholas’ life was a beautiful, glorious gift. I was filled with such joy while anticipating his arrival, reveling at every movement, hiccup, and kick. Nicholas He was the first little love of my life. Though his stillbirth brought immeasurable sorrow, it is his life I choose to celebrate. His life led me to you, to all who have endured this loss and give me the gift of your story, your strength, and the joys you experience along your journey. The gifts are too numerous to mention – the kindness of friends, love of family, knowing that so many remember my son even though his time here was so short. The moments when Nicholas’ little brothers are almost hurt, but by some miracle, they escape harm – and my feeling that he is watching over them, keeping them safe. I have been blessed with beautiful friendships – meeting so many who share such a tragic life experience, but one that brought us together. Yes, his stillbirth shattered my heart. I am sorrowful that I have to live my life without my precious son. BUT, I am blessed because Nicholas lived. Michelle Mosca mother of Nicholas, stillborn at 37 weeks Even the most reticent of us learns how to be a part of the forward momentum required of living things Some of us will seem as if we can't forget. We just aren't afraid of remembering. Others of us will seem "normal." It's easier for some to think of us that way. Some of us will raise a call to action --We see what went wrong and want to make it right Some of us will weave words into memorials --Because our babies were the most beautiful poems we ever wrote And some of us will help the world remember the gift our babies were in our lives even if they never took a breath --Because not a single one of us will ever forget. Excerpt from “The Secret Club” by Suzanne Pullen in memory of Avery Pullen 3/3/05 …And because of you, we were born. A mother, a father. Our life, born anew. Acknowledgments Thank you to the families who shared some of the blessed gifts from their children. This presentation was made possible through a partnership between internationally acclaimed author, Sherokee Ilse, and Michelle Mosca, Co-founder and President of Angel Names Association. The Gifts of Grief ©2010 ANA and Wintergreen Press