Denise Marzullo, MBA, LMHC President & CEO Mental Health America of Northeast Florida April 22, 2015 They don’t call me sad. They don’t call me bad. They don’t call me mad. They don’t call me. ©William McKnight Problem of knowledge = Ignorance Problem of attitudes = Prejudice Problem of behavior = Discrimination Stigma is a negative view of a group or a person based on a perception about them Often people living with a mental illness experience stigma as a result of how they were perceived at a period when they were not well Stigma is rarely the result of maliciousness toward the mentally ill Stigma is perpetrated and fueled primarily by insensitivity and ignorance Worse then the stigma received from others because of ignorance and insensitivity, is the often self-stigmatizing those living with a mental illness do to themselves Negative attitudes toward people with mental illnesses have persisted over time >70% of population would not want a person with depression to marry into their family 70% of respondents rated people with schizophrenia as dangerous 73% of characters with mental illnesses in TV dramas were portrayed as violent Only 19% of people said they would be comfortable around someone with a mental illness People with mental illness are viewed more negatively than are ex-convicts TV is one of the main sources of information on stigma Myth #1: Psychiatric disorders are not true medical illnesses like heart disease and diabetes. People who have a mental illness are just “crazy.” Fact: Brain disorders, like heart disease and diabetes, are legitimate medical illnesses. Research shows there are genetic and biological causes for psychiatric disorders, and they can be treated effectively. Myth #2: People with a severe mental illness, such as schizophrenia, are usually dangerous and violent. Fact: Statistics show that the incidence of violence in people who have a brain disorder is not much higher than it is in the general population. Those suffering from a psychosis such as schizophrenia are more often frightened, confused and despairing than violent. Myth #3: Mental illness is the result of bad parenting. Fact: Most experts agree that a genetic susceptibility, combined with other risk factors, leads to a psychiatric disorder. In other words, mental illnesses have a physical cause. Myth #4: Depression results from a personality weakness or character flaw, and people who are depressed could just snap out of it if they tried hard enough. Fact: Depression has nothing to do with being lazy or weak. It results from changes in brain chemistry or brain function, and medication and/or psychotherapy often help people to recover. Myth #5: Schizophrenia means split personality, and there is no way to control it. Fact: Schizophrenia is often confused with multiple personality disorder. Actually, schizophrenia is a brain disorder that robs people of their ability to think clearly and logically. The estimated 2.5 million Americans with schizophrenia have symptoms ranging from social withdrawal to hallucinations and delusions. Medication has helped many of these individuals to lead fulfilling, productive lives. Myth #6: Depression is a normal part of the aging process. Fact: It is not normal for older adults to be depressed. Signs of depression in older people include a loss of interest in activities, sleep disturbances and lethargy. Depression in the elderly is often undiagnosed, and it is important for seniors and their family members to recognize the problem and seek professional help. Myth #7: Depression and other illnesses, such as anxiety disorders, do not affect children or adolescents. Any problems they have are just a part of growing up. Fact: Children and adolescents can develop severe mental illnesses. In the United States, one in ten children and adolescents has a mental disorder severe enough to cause impairment. However, only about 20 percent of these children receive needed treatment. Left untreated, these problems can get worse. Anyone talking about suicide should be taken very seriously. Myth #8: If you have a mental illness, you can will it away. Being treated for a psychiatric disorder means an individual has in some way “failed” or is weak. Fact: A serious mental illness cannot be willed away. Ignoring the problem does not make it go away, either. It takes courage to seek professional help. Myth #9: Addiction is a lifestyle choice and shows a lack of willpower. People with a substance abuse problem are morally weak or “bad”. Fact: Addiction is a disease that generally results from changes in brain chemistry. It has nothing to do with being a “bad” person. Myth #10: Electroconvulsive therapy (ECT), formerly known as “shock treatment,” is painful and barbaric. Fact: ECT has given a new lease on life to many people who suffer from severe and debilitating depression. It is used when other treatments such as psychotherapy or medication fail or cannot be used. Patients who receive ECT are asleep and under anesthesia, so they do not feel anything. One in every four Americans suffers from a diagnosable mental illness in a given year Statistics show that only one-fourth of these individuals seek treatment Four of the ten leading causes of disability worldwide are mental illnesses Mental illness does not discriminate – affects people of every race, gender and economic background Mental illness is a serious medical condition and must be treated as such Direct cost of mental health services in US is approx. $69 billion What Is Mental Illness? Mental illness is a term that refers to disorders that are characterized by disturbances in thinking, mood, or behavior, or a combination thereof, associated with distress or impaired functioning. Mental illness can be caused by physical illnesses, biochemical abnormalities in the brain function, stress and other environment factors. Often a combination of these factors contributes to causing a mental illness. A person with a mental illness may complain of certain symptoms. These are subjective feelings and sensations that the person is aware of. The person may also show signs of mental illness. These are objective observable behaviors that the person demonstrates. For example: A person may say: “I feel low, sad and depressed”. These are symptoms of depression, and the person may look very sad, and move and speak very slowly. These are signs of depression. The more symptoms and signs a person has, the more likely it is that she/he has a mental illness. Remember that it is important to obtain as much information as possible, both from the person who may have a mental disorder and from other people (family members, friends, community members). Agitation: Because the symptoms of mental illness can be very distressing, a person may become very agitated, upset, and restless. Anxiety: This is a very common symptom and sign of many serious mental illnesses, including depression and psychotic illnesses. The person may show signs of excessive fear such as sweating, breathing very fast, and being agitated. Abnormal mood: In acute phases of mental illness, there are unusual or extreme qualities to the person’s mood. Moods can also change very quickly from a reduced emotional response (indifference, apathy) to an extreme of emotions (ecstasy or omnipotence). Confusion: This is a general term and could mean that the person is disoriented or incoherent (unable to conduct an understandable conversation). Incoherent speech: Persons with mental illness may not be able to conduct a coherent conversation. Their speech may ramble from one unrelated topic to another, they may not be able to answer questions, and they may also talk about things that are strange or unrealistic or not speak at all. Changes in eating and sleeping: A marked change can also indicate a problem. Unusual beliefs or delusions: A person with a mental illness may have strange beliefs and ideas, such as someone trying to destroy them or that they have special powers, or that they are being persecuted or threatened in some way (being poisoned, followed, under threat of assassination). Sometimes it is not possible to know whether these beliefs are true, unless one has additional information from others. Hallucinations: Sometimes persons with mental illness experience disturbances in sensory perception (of sight, hearing, smell, taste or touch); they may say that they are hearing voices or that they are feeling things in their body. Aggression or violent behavior: Although most people with a mental illness do not become aggressive, some may do so, and such persons can display any type of aggression (verbal, physical). Appearance: In an advanced stage a person with mental disorder may look neglected, unwashed or may not have changed their clothes for sometime, or may be dressed strangely. Other unusual behavior: The person may be wandering in the streets, appear to be homeless, may also walk into direct traffic, shout in the street and become verbally abusive or aggressive to bystanders. Adjustment Disorders Anxiety Disorders Dissociative Disorders Eating Disorders Impulse-Control Disorders Mood Disorders Personality Disorders Psychotic Disorders Sexual Disorders Sleep Disorders Somatoform Disorders Substance Disorders Reluctance to seek help or treatment Lack of understanding by family, friends, co-workers or others you know Fewer opportunities for work, school or social activities or trouble finding housing Bullying, physical violence or harassment Health insurance that doesn’t adequately cover your mental illness treatment The belief that you will never be able to succeed at certain challenges or that you can’t improve your situation Adverse reactions by family – ex. lazy and weak Negative reactions to family members High rates of homelessness Neighborhood reactions to residential care Loss of husband/wife/partner Disappearance of friends Impaired long-term sexual relationships Get Treatment You may be reluctant to admit you need treatment. Don't let the fear of being labeled with a mental illness prevent you from seeking help. Treatment can provide relief by identifying what's wrong and reducing symptoms that interfere with your work and personal life. Don’t Let Stigma Create Self-Doubt and Shame Stigma doesn't just come from others. You may mistakenly believe that your condition is a sign of personal weakness or that you should be able to control it without help. Seeking psychological counseling, educating yourself about your condition and connecting with others with mental illness can help you gain selfesteem and overcome destructive self-judgment. Don’t Isolate Yourself If you have a mental illness, you may be reluctant to tell anyone about it. Your family, friends, clergy or members of your community can offer you support if they know about your mental illness. Reach out to people you trust for the compassion, support and understanding you need. Don’t Equate Yourself with Your Illness You are not an illness. So instead of saying "I'm bipolar," say "I have bipolar disorder." Instead of calling yourself "a schizophrenic," say "I have schizophrenia." Join a Support Group Some local and national groups, such as the National Alliance on Mental Illness (NAMI), offer local programs and Internet resources that help reduce stigma by educating people with mental illness, their families and the general public. Some state and federal agencies and programs, such as those that focus on vocational rehabilitation or the Department of Veterans Affairs (VA), offer support for people with mental health conditions. Get Help at School If you or your child has a mental illness that affects learning, find out what plans and programs might help. Talk to teachers, professors or administrators about the best approach and resources. If a teacher doesn't know about a student's disability, it can lead to discrimination, barriers to learning and poor grades. Speak Out Against Stigma Consider expressing your opinions at events, in letters to the editor or on the Internet. It can help instill courage in others facing similar challenges and educate the public about mental illness. Mental Health America of Northeast Florida (904) 738-8426 www.mhajax.org Email: denise@mhajax.org