Medicine Pediatrics Career Paths: Advocacy to Improve Transitions of Care NMPRA October 2015 Mary R. Ciccarelli, MD Professor of Clinical Medicine-Pediatrics tran·si·tion (def.) tranˈziSH(ə)n,tranˈsiSH(ə)n/ noun; 1. the process or a period of changing from one state or condition to another, such as from childhood to adult life. 2. in healthcare, the process which supports patients to move safely and seamlessly from one health setting or provider to another. If you don't like something, change it. If you can't change it, change your attitude. - Maya Angelou Objectives Attendees will: Review career paths of medicine pediatric physicians in U.S. Recognize med-peds’ role and opportunities in transition Consider the charge to be agents of change to improve transition processes AAMC Center for Workforce Studies Projected 2020 shortage 12,500 to 31,100 PCPs 28,200 to 63,700 non-primary care 5,100 to 12,300 medical specialists 21,00 to 31,600 surgeons 2,400 to 20,200 other specialists The Evolution in Medical Specialties 1920’s Generalist Physician 1930’s Pediatrics Internal Medicine 1940’s Subspecialties Subspecialties 1970’s 1990’s Med/Peds Family Medicine IM/FP Onady G. WSU. “It’s not the strongest species that survive, or the most intelligent, but the most responsive to change.” - Charles Darwin Medicine Pediatrics Careers: Changes in the Clinical World Primary care Academic medicine Subspecialty care Adult, Pediatrics, Both Hospital medicine Adult, Pediatrics, Both Other AMA Workforce - 2013 Masterfile Med Peds Active Physicians – AMA 2013 Masterfile N= 4,396 Least over age 55 – 5.4% Female 3rd highest – 50.9% Practice in state of GME 5th highest – 54.4% Growth over last 5 years 6th highest – 29% % U.S. allopathic grads 8th highest – 83.1% Graduating Med-Peds residents Survey - 2003-2007 Females - 58% in 2007 45% in 2003, p = .01 URM 9% - stable Hispanic, Black, Native American AMG - 83% in 2007 95% in 2003, p < .001 997 residents (56% response) Chamberlain JK. J Peds, 2012. Career choices – 2003-07 Med-Peds fellowship, n=91 ID Allergy Endocrine Adult/Peds ICU Cardiology Pulmonary Rheumatology 18.7% 11% 9.9% 9.9% 7.7% 6.6% 5.5% Nephrology Gen academic Adolescent Emerg Med Gastroenterology Heme-Onc Dev-Behav NICU Chamberlain JK. J Peds, 2007. Med peds graduates in Hospital medicine 26.4% hospitalists (n=275) 0% fellowship 65% both adult and pediatric O’Toole JK. Hosp Peds, 2015. MP Career Transitions - Factors 64% of UNC graduates 1980–2007 (n=68) had transitioned jobs 20 graduates interviewed (29.4% eligible) Transitioned less likely to see both adults and children 40% transitioned vs. 60% of non-transitioned Reasons - personality, work environment, lifestyle, family, finances Residency experiences insufficient to predict future job satisfaction Work post-training necessary to find career preferences Perceived lack of control in the workplace Appreciated broad training regardless of career path Sense of regret if not seeing both adult and children Burns H. No Carolina Med J,2011. Who else is in the game? Family Medicine Workforce Med peds 4,396 Petterson SM. Ann Fam Med, 2012. Pediatrics– Career choices First time ABP candidates – 2014 N=3,252 72.3% female, 77.4% AMG Chief residents Fellowships Hospitalists Gen peds Other 10% 37.9% 11% 33.6% 2014 ABP Pediatric Subspecialty Fellow Tracking n=4,273 Neonatal Heme/Onc EM Crit care Cardiology GI Endo ID Pulmonary Nephrology Dev behav Adolescent Rheum Child abuse 819 527 517 511 465 297 259 196 186 134 110 86 85 38 (19.2%) (12.3%) (12.1%) (12.0%) (10.9%) (7.0%) Med Peds ID 10 Med Peds Rheum 8 Med Peds Endo 5 Med Peds Neph 4 Med Peds Cardio 2 Med Peds Crit Care 1 Ped Pulm/Adult ICU/Pulm 1 Internal Medicine data 2009-11 In-Training Exam surveys 45% female, 48.1% U.S. med schools Gen med Hospitalist Fellowship Other 21.5% 9.3% 64.2% Cardiology Pulm/CCM Heme/Onc GI Neph ID Geriatrics Endo Rheum What does it take to care for teens and young adults? National Ambulatory Medical Care Survey 2012 http://www.cdc.gov/nchs/data/ahcd/namcs_summary/ 2012_namcs_web_tables.pdf NAMCS Ages 15-24 166 visits/100 person years Gender – female 211.5, male 121.8 visits Race – white 188.5, black 121.8 27.6% preventive (decrease w/age across life) Preventive care in males – lowest at 19.5/ 100 person yrs c/w injury 17.7/100 person yrs 43.4% new problem 18.0% chronic problem routine (increase w/age) 5.7% chronic problem flare 4.4% pre/post-op Canadian Community Health Survey (CCHS) 2005 Ages 12-24 Use vs. non-use – having regular MD, geography Non-user – underweight, poor mental health Non-predictive of use - income, young adults with chronic condition High vs. low user – young adult females, living with spouse/children, more chronic conditions Ryan BL. BMC Family Practice, 2011. National Ambulatory Medical Care Survey - 2000 to 2006 Fortuna RJ, Acad Med, 2009. Teens and Young Adults Key Points 1. Adolescents and young adults share similar developmental and health issues 2. The health of adolescents and young adults has not improved over the last few decades to the same degree as in younger children 3. Makes sense to place them together for medical care. Patterns of risk behavior Prevalence of mental health problems Changing patterns of chronic illness Develop and evaluate models of care that improve the health of young people Caring for teens with chronic illness: risky business? Subspecialty Workforce U.S. population 28% of popln are children ages 0-19 18% have SHCN 11,000 pediatric subspecialists 13 pediatric subspecialists/100,000 children Access issues i.e. GI and Pulm new appts ~2 mos 72,000 medicine subspecialists 36 internal medicine subspecialists/100,000 adults Adult subspecialists likely to care for children if nearest peds subspec > 50 miles Jewett EA. Pediatrics 116(5) 2005. Adolescent Medicine 500 ABP certified practitioners mean age 49.6 years State distribution – 0-2.7 per 100,000 child 7% practice in rural settings 170 ABIM/ABFM certified practitioners 66 fellows in training 2005-06 Althouse LA. J Peds, 2007. Med-peds physicians - 2003 73% primary care, 27% subspecialty Primary care n=726 Over ¾ care for all ages 26% care for adults with disabilities of childhood 56% referrals from FM, 61% referrals from pediatrics 20% academic, 88% full-time Part-time - 24% women, 7% men Subspecialists 8% Peds, 38% MP, 54% IM 74% care for adults with disabilities of childhood 60% academic Part-time – 10% women, 3% men Freed GL. Acad Med, 2005. What are possible roles in the transition from pediatric to adult care? Leadership Agent of Change – (def.) leader who helps members of an organization adapt to or create organizational change. Leaders "walk the way they talk." They have: the ability to translate intention into reality and to sustain it with action and behavior Leaders: The Strategies For Taking Charge by Warren Benis and Burt Namus Culture of medicine Characterize the profession Language, thought processes, styles of communication, customs, beliefs White coat Doctor talk Conceptualization of health Specialty-related concepts Culture of Pediatric vs. Adult Medicine Pediatrics Adult Medicine Family-centered Developmentally oriented Focus on wellness Prescriptive Nurturing Interdisciplinary Autonomy Disease oriented Expect disease progress Collaborative Self-responsibility Multidisciplinary Eiser C. Diabet Med 10:285–259, 1993. The Adolescent-Young Adult Specialist Requires expertise in Developmental model of care Interface between physical & mental health & health-related behaviors Family and environmental interventions Anxiety, depression, chronic fatigue, functional & somatizing disorders Interactions with peers and education systems Substance use and other risk behaviors Therapy non-adherence Sexuality and reproductive health Steinbeck K. J Paeds Child Health, 2014. AYA specialist Expertise in 2 different medical cultures Quality research that supports the practice of adolescent and young adult medicine Education of other professionals WHO DOES THIS SOUND LIKE TO YOU? “I alone cannot change the world, but I can cast a stone across the waters to create many ripples.” ― Mother Teresa Pediatrician’s Role Provide regular health care until transfer age (18-21 yo) Address transition issues early and regularly Promote health self-management, system navigation Create and implement transition plan Work with specialists, schools, other resources Identify adult health providers Handoff with effective “handshake” to adult provider Follow up with youth to verify connection to the adult system Promoting self-management Include youth in the discussion of their health and related issues starting in early school years. Encourage children to participate actively in health care visits and report their concerns and accomplishments. By early adolescence, set some time during each visit aside for private discussions with the child. Increase private time, until the teen has essentially private office visits with the doctor. In early adolescence, discuss transition-related issues Education about condition, treatments and medications, general health issues, transition and transfer to adult health care Adult physician’s roles Introduce young adults into adult system Promote privacy and confidentiality Involve family and caregivers as appropriate Collaborate with other providers Assess resources to learn about conditions and utilize other supports Expand skills in management of adherence and health concerns unique to young adults Consider adaptations to usual methods, i.e. alternate scheduling options and care coordination supports Adult physician’s concerns Family involvement Need for family in caring for adults with ID Patient maturity Youth readiness vs. need for parental help System issues Building new relationship while dealing with disability or end of life Providers' medical competency Need for super-specialists – i.e. spina bifida Patient psychosocial needs & coordination of transition process Clinical time expectations Peter NG. Pediatrics, 2009. Promoting adherence in teens & young adults Predictors of non-adherence in pediatric transplant recipients - meta-analysis Major factors Psychiatric comorbidities Child responsibility for medication General Factors Inadequate regimen knowledge, depression and anxiety, poor health-related quality of life, low social support, substance abuse, life stress, barriers to medication access, poor physician–patient relationship Specific factors - Adolescent transplant recipients – Increased disease frustration, poor regimen adaptation, cognitive issues, difficulty with ingestion (e.g., number of medications, taste), lack of parental monitoring and involvement Fredericks EM. Curr Opin Organ Transplant, 2010 Attending to the vulnerable subpopulations Homeless Incarcerated Refugees and immigrants Rural and remote youth Adolescent-young adult mothers Those with limited social competencies The Five E’s of Change Leadership Experiment with new approaches Educate others about what lies ahead Exemplify openness yourself Empower others to control what they can control Engage everyone who is affected by the change The Magnetic Boss: How to Become the Boss No One Wants to Leave, by Linda D. Henman, PhD Six core elements Pediatric Care Setting Adult Care Setting 1. Transition policy 1. Young adult privacy & consent policy 2. Registry 2. Registry 3. Transition preparation – readiness assessments 3. Transition preparation 4. Transition planning – written 4. Transition planning plan 5. Transition and transfer of care – medical summary, plan of care 5. Transition and transfer of care 6. Transition completion 6. Transition completion Information Motivation Behavior - IMB model 1. Provide effective health info re: health behavior, condition, population. 2. Increase personal motivation and social support. 3. Skill-train to increase self-efficacy for performing a health behavior. Low income urban women in HIV risk avoidance program - 12-16% increase in condom use IMB intervention - condom info, social norms and perceived risk training, practice of condom negotiation and procurement skills Anderson ES. Ann Behav Med. 2006 Collaboration The "medical neighborhood" A framework for structured, reciprocal relationships that integrate specialty care and extend the principles of the medical home to all practicing physicians. Collaborative care agreement Outline mutual expectations for primary care and specialists as they care for patients together. Preconsultation exchange between referring physician and consultant Consultation Subsequent comanagement of patients over time Greenberg JO et al. JAMA Int Med 2014. Teaching others in health system Do you want to be an Agent of Change? To move with the changing world? To make a difference in the world? Because you care about …fill in the blank…health care, medicine-pediatrics, transition? The best thing you can do is the right thing; the next best thing you can do is the wrong thing; the worst thing you can do is nothing. -Theodore Roosevelt Thank you! Steinbeck K; Towns S; Bennett D. Adolescent and young adult medicine is a special and specific area of medical practice. J Paeds & Child Health, 2014 Jun. Hamdani Y; Jetha A; Norman C. Systems thinking perspectives applied to healthcare transition for youth with disabilities: a paradigm shift for practice, policy and research. Child: Care, Health & Development. 37(6):806-14, 2011 Nov. Mappa P; Baverstock A; Finlay F; Verling W. Current practice with regard to 'seeing adolescents on their own' during outpatient consultations. 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The effect of dual training in internal medicine and pediatrics on the career path and job search experience of pediatric graduates. J Pediatrics, 2007 Oct. Burns H; Auvergne L; Haynes-Maslow LE; Liles EA Jr; Perrin EM; Steiner MJ. A qualitative analysis of career transitions made by internal medicine-pediatrics residency training graduates. North Carolina Med J . 72(3):191-5, 2011 MayJun. Freed GL; Fant KE; Nahra TA; Wheeler JR; Research Advisory Commitee of the American Board of Pediatrics. Internal medicine-pediatrics physicians: their care of children versus care of adults.Academic Medicine. 80(9):858-64, 2005 Sep. Freed GL; Research Advisory Committee of the American Board of Pediatrics. Comparing perceptions of training for medicine-pediatrics and categorically trained physicians. Pediatrics. 118(3):1104-8, 2006 Sep. Goodman DC. AAP Committee on Pediatric Workforce. The Pediatrician Workforce: Current Status and Future Prospects. 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