Concept—Initiate a National
Dementia Friendly Community Effort
Supporting steps:
1) Establish an organizing
coalition that can activate state
level, cross-sector DFC
initiatives
2) Develop a shared resource
portal and technical assistance
vehicles that foster dementia
friendly communities at a local
level
1
Rationale—
• Dementia friendly = age-friendly and
intergenerational
• Dementia friendly = quality of life and
costs
• Dementia friendly = earlier detection and
participation in clinical trials
2
Background on Possible
Foundational Model
ACT on Alzheimer’s DFC effort
and resource portal:
1) Content support
2) Process support
3
Content—DFC Resource Portal
Agreed upon
elements and
resources for
age and
dementia
friendly (guided
by WHO agefriendly criteria)
4
Sector-Specific Resources
Dementia-friendly action
steps for:
• Businesses
• Community supports
• Faith communities
• Health care
• Legal/financial services
• Local government
• Residential settings
• Meaningful engagement
*All filtered for cultural
competency
5
Process–Four-Phase Tool
1. Convene key community leaders and members to form an
Action Team.
2. Assess current strengths and gaps within the community.
3. Analyze findings to understand your community’s needs
and develop a plan to take action.
4. ACT Together to pursue priority goals that foster
community readiness for dementia.
6
Replication Need
• Currently queried by states and countries to
help them replicate the model
• Efficiencies and scale could be achieved by a
centralized resource IF that resource lends
itself to local ownership and implementation
7
Replication of Effort
• Benefits:
– Enhance resources through collective contributions
– Share burden of development and maintenance
– Continuous collaborative learning and shared goals
and principles
– Share evaluation effort
• Challenges:
– Effective, time-limited process for developing
consensus-based resources and standards
– Clarity of shared ownership/accountability
– Result must feel locally owned and driven
– Funding
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Potential Process Map *
(Goal: DFC Pilots in 10-15 states/communities with
preliminary results; learnings; and recommendations)
Convene
Stakeholders and
Develop Blueprint
3/31/15
•Convene national coalition that can activate state work
•One day development session to craft DFC blueprint
•Electronic revision and telephonic approval of plan
•Secure initial implementation resources
•Initial start up planning, branding and messaging
Build/
Enhance DFC
Portal
10/30/15
•Specific work groups to enhance portal content
•Website workgroup enhances/automates structure and process
•Local TA/delivery workgroup develops state training materials
•Plan kick off campaign and promotion
•Funding workgroup seeks pilot seed funding grant opportunities
for states/communities
Kick Off via
National
Challenge
3/31/16
•Initiate two month campaign and outreach
•Convene states with Alzheimers plans to participate
•Organize/train TA vehicles and train on TA process
•Issue RFPs and award pilot/seed grants to qualified States and/or communities
• Evaluation designed and funded
Initial
Implementation
and Study
12/15/16
*During implementation process, continue to engage with and align efforts and
resources of other countries doing similar work; if possible, explore ways to combine
efforts that could result in an international DFC resource portal
•States/communities begin to implement DFCs
•Evaluation plan implementation
•Social media tracking campaign
•Convene to review learnings to date
Shared
Learnings,
Evaluation
•Challenge anniversary and awards
•Ongoing improvement and
maintenance of resource
•Continued tracking and learning
•Permanent sustainability positioning
Ongoing
3/31/17
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Development Organizing Structure
Charged with: 1) general oversight, framing,
branding, communications, and strategy;
2) implementation team, including convening,
facilitating, synthesizing, communicating and
tracking work group progress
Charged with developing
guidelines for states in
providing technical
assistance to communities
(e.g., process facilitation,
resource finding, media use,
convening)
Local
technical
assistance
delivery work
group
Charged with identifying sources
for DFC implementation (e.g., portal
implementation, technical
assistance and community piloting)
Charged with enriching sector based
resources categorized under WHO agefriendly criteria (e.g., faith, business, public
spaces, transportation, housing, clinical etc.)
Sector
specificresource
work groups
(8)
Steering Team
and Supporting
Infrastructure
(includes
people with
dementia)
Fund
development
work group
Cultural
capability
work group
Portal
architecture
work group
Charged with adding
and adjusting
resources to ensure
cultural inclusiveness
Charged with creating,
automating and
enhancing web-based
resource
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IMPACT MODEL
Inputs
• National Coalition
• Website/resource
portal
• Four Phase
culturally
competent
community toolkit
• Technical assistance
training process
• Technical assistance
(centralized and
local)
• Communications/
outreach/
promotion
Outputs
• Formation of 15 or
more DFC
communities in 2016
• Assessment and
analysis of current
needs/strengths re:
dementia
friendliness in each
community
• Prioritization of one
or more cross-sector
shared community
goals
• Goal implementation
work plan and funds
Process/Implementation
Impact/
Short Term
Results
•
•
•
•
Increased awareness of
dementia w/n and across
community sectors
involved in DFC effort
Implementation of DF
practices w/n community
sectors that enhance
access for PwD and CPs
Implementation of crosssector DF goals that
enhance access for PwD
and CPs and/or raise
awareness of AD/OD
Increased DF services
(existing and new) that
support PwDs or their
CPs
Outcomes
•
•
•
•
•
•
Increased community
awareness
Increased sensitivity to
and confidence in
supporting PwD and CPs
in community sectors
Increased DF services
(new and existing)
Increased rates of
detection/diagnosis and
participation in clinical
trials
Increased rates of
advance planning
Increased rates of “living
well” for PwDs and CPs
via agreed upon
indicators
Outcome/Effectiveness
Source: Paone and Associates--Adapted from: Mary Davis, DrPH, MSPH, The North Carolina Institute for Public Health, University of
North Carolina, Chapel Hill
Questions to Answer
1. Is there appetite for and interest in this
effort?
2. If so, do we think there is collective capacity
for it and, if so, what is required to achieve
that capacity?
3. How might we move forward and what are
immediate next steps?
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