Susie Essex and Margaret Hiles

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Susie Essex and Margaret Hiles

Review of Literature

Labels for FII:

Munchausen's Syndrome by Proxy (MSbP) - Meadow, 1977

Factitious Illness by Proxy - Bools, 1996; Jones & Bools, 1999

Induction Syndrome - Gray et al, 1995

MSbP - thought to be almost impossible to work with

Planned risk reduction - not considered

But this was in the 1990’s…..

A decade on - how much has changed?

“Fabrication of induction of illness in children still provokes considerable fear among professional groups and leads to difficulties within the professional system itself.”

Bass, C & Adshead, G 2007

“A mother who smothers her infant is not necessarily mentally ill.

She has demonstrated harmful behaviour; she may or may not have a medical diagnosis as well.”

Gwen Adshead, 2005

Now, in 2008:

“The key issue is not what term to use to describe this type of abuse, but the impact of fabricated or induced illness on the child’s health and development, and consideration of how best to safeguard and promote the child’s welfare.”

(Supplementary Guidance on Working Together to Safeguard Children, HM Department for

Children, Schools and Families, 2008)

Fabricated or Induced Illness is a form of child abuse, no matter how it may be described or labelled

Commentators agree that FII is a relatively rare form of child abuse

One study suggested:

キ the incidence of FII, non-accidental suffocation and poisoning for children under 16 was

5 per million of the population.

キ this incidence was found to be considerably greater for children under 1 year old - 28 per million.

キ sibling abuse was more common than re-abuse of the previously abused child.

Source: McClure et al (1996)

Some key aspects of FII

  

Perpetrator - usually mother, but not always

  

First manifested through primary care settings

  

Most cases confirmed in a hospital setting

  

Detection requires detailed and painstaking enquiry

  

Can take time for FII abuse to be detected

Safety Planning in High Risk Cases, Fabricated or Induced Illness,

Susie Essex and Margaret Hiles. August 2008

The Carer’s Behaviour - 1

Fabrication and falsification:

  

Fabrication of signs and symptoms

  

Fabrication of past medical history

  

Giving false accounts of symptoms such as

‘she suddenly stops breathing’ or ‘he is having fits’

  

Falsification of hospital charts and records

  

Providing a false specimen of bodily fluids e.g. putting substances in a child’s urine sample

The Carer’s Behaviour - 2

Induced Illness:

  

Inducing symptoms of illness:

  

  

  

Administering medications inappropriately

Smothering to simulate apnoea attack

Tampering with hospital equipment

  

Exaggeration of illness to gain the attention of professionals, resulting at times in unnecessary and possibly invasive investigations

A significant number of children in whom illness is fabricated will have been known to health professionals from birth

The Carer’s Behaviour - 3

Recognising the Problem Behaviour

  

Identifying the abnormal behaviour

  

Awareness of cultural behaviour and practice

  

Assessment and opinion of expert specialist psychiatrist

“psychiatric expertise cannot determine what happened when facts are disputed, and no diagnosis determines behaviour, either past or future.”

(Gwen Adshead, 2005)

  

2008 - Guidance from the UK Government Department for Children, Schools and Families

“Following identification of fabricated or induced illness

in a child by a carer, the way in which the case is managed

will have a major impact on the developmental outcomes for the child…..

…..however the extent to which the parents have acknowledged some responsibility will also affect the outcome .”

2008 UK Government guidance

No recent UK research on outcomes

Available evidence from the 1990’s is of generally poor outcomes for children who had illness fabricated or induced

Although there could be positive outcomes…..

Positive outcomes where:

  

Cases were managed within a child protection framework

  

Therapeutic interventions were focused on the protection of the child

  

A thorough assessment was undertaken of the family's functioning and its ability to change and protect the child

  

Clear decisions were made about where the child should reside

Our practice results concur with this view, and raise questions about the need for parental admission of culpability

‘Certain topics are so emotionally laden that some people seem to think that systemic ideas do not apply in such cases....’

Cecchin, Lane and Ray Irreverence 1992

The empirical evidence is that lack of compliance, rather than denial, is the best indicator of re-abuse.

(E Farmer, M Owen 1995)

By leaving denial relatively unchallenged the

Resolutions approach allows families to comply, in cooperation and partnership with agencies, about the future safety of their children.

Partnership is based on

  

Openness

  

Respect

This light globe seems faulty

This light globe

Still seems faulty… …but now we’ve installed a whole new lighting system!

Innate personality traits

Internal inhibitions

External inhibitions

Access to child

(Based on the work of D.Finkelhor 1986)

Based on

  

  

  

Not being rude

Not getting in their way

No gratuitous opinions

Conversation with George Walker and Helen Young 1998

For further reading to understand the stance in a risk reduction program see chapter 3 in

‘ Working with ‘Denied’ Child Abuse, The Resolutions Approach.’

Susie Essex and Andrew Turnell

1.

2.

3.

4.

5.

6.

Timescale, based on research

Significant people, know the concerns

Safety network, prepared to be active and proactive

Professional network prepared to be active

Network members, give active support and a non-critical gaze

Other practical issues, meals, snacks, medicines etc

Rota and active help to address key aspects of literature

  

Pretend, what if scenarios

  

Worker thinking of pretend scenarios, informed by literature

  

Pretend and practise, telephoning and response

1.

Parent telephoning

2.

First person visits

1.

2.

3.

4.

Active cover each day and each night

Need first person in day and first person in night

Clear about who does weekends and what about holidays?

If all going well progress to non-active cover

Family Members

  

  

  

  

  

Mother: Mari 24

Father: Ralph 32

Jodie

Dual Heritage 2 nd Generation

White UK

born Autumn 2006

Hospital age 1 month Apnoea attack

age 6 weeks Apnoea attack and rash

age 3 months rash possible Apnoea

Previous Child Death

New Baby Due

Boy Eli age 10 months in 2005

Easter 2008

The Safety Network

  

Grandmother: dual heritage white UK and black British

  

Great Uncle Frank and girlfriend Jo (Grandpa died 2005, white UK)

  

Godmother: Connie

  

Church friends: Pastor Mark and Cheryl etc….

DAY First

Monday Tuesday Wednesday Thursday Friday

Granny God- mother

Connie

God- mother

Connie

Granny Pastor

Mark

Reserve Cheryl Cheryl Granny Great

Uncle

Frank and Jo

Cheryl

NIGHT First

Reserve

Godmother

Connie

Granny Granny

Granny God- mother

Connie

God- mother

Connie

Godmother

Connie

Great

Uncle

Frank and Jo

Granny Godmother

Connie

DAY First

Saturday Sunday

Great

Uncle

Frank

Pastor

Mark

Reserve Cheryl Godmother

Connie

NIGHT First God- mother

Connie

Granny

Reserve Granny God- mother

Connie

HOLIDAYS

Granny will go with the family to her caravan , she can call Connie for help

Or...

Great Uncle Frank and

Jo will go with the family to their apartment in

Portugal

Words and Pictures for Jodi

In 2006, in the Winter, Jodi had a rash on her face.

The doctor came to see Jodi.

Grandma Sophie was there, as she had been looking after Jodi.

The doctor gave Mum and Dad a letter, saying ‘Please take Jodi to Hospital.’

Jodi went to the Hospital. Mummy told them Jodi seemed a bit floppy in the night. The doctors said ‘The rash might be a virus, but we need to check.’

Jodi stayed in Hospital.

The doctors were worried as this was the third time in 3 months that Jodi had come to Hospital since she was born.

The doctors talked to another doctor…..

…..then they talked to Social Services and other people.

There was a big meeting - a Case Conference.

The doctor said ‘We are very worried about Jodi’s rash.’

The Case Conference decided to ask another doctor in London to see Jodi.

In London, Mummy and Daddy said Jodi had one rash and had been to hospital lots because she was ill.

The doctors seemed to say different things.

The Social Worker said this is confusing and worrying.

We need a Judge to help sort it out.

If there is any sort of emergency, e.g. grandma or Connie is ill, or anything where someone needs extra help. there is a rota of help people on the family list.

Ralph, Mari, Grandma or Connie will ring someone on the rota.

(There is a back up for advice, e.g.

Health Visitor 9036128 Social Worker 9061572 or the Pastor Mark 9045829).

They will always phone Children and Young People Services Social

Care to let them know any unexpected changes either day or night.

•   These guidelines are based on Ralph as the primary carer and

Mari as the supportive carer.

•   This means Ralph will have to take care of Jodi and the new baby and be responsible for the intimate care.

Mari will have someone else present at all times.

(this will help to create clarity about future responsibilities as outlined in previous reports)

•   Initially, when the new baby is born, Grandma will come to stay.

Connie will also come every day to help.

There will be an approved person present at all times.

•   If Grandma or Connie need to go to the toilet etc. they will make sure

Jodi is safe in a room with her toys, and take the new baby with them.

Mummy and Daddy will stay in the kitchen or living room.

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