IDEA-NW Project Linkages as of April 1, 2012 Data source Date

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IDEA-NW Project Linkages

as of April 1, 2012

Data source

Idaho

Cancer registry 1 , 1992-2009

Births, 2006-2010

Deaths, 2006-2010

Oregon

STD/HIV, 2000-2009

Medicaid 2 , all medical clients since 1/1/2002

Cancer registry 3 , 2009-2010

Births 4 , 2006-2010

Deaths, 2006-2010

Orpheus 5 , all records as of 10/10/11

Childhood blood lead registry, 2005-2010

Washington

CHARS (hospital discharge) 6 , 2010

Date

5/25/2011

2/9/2012

2/9/2012

Cases sent for linkage

111,043

117,473

52,002

11/5/2010

9/2011

9/28/2011

179,367

2

36,307

10/6/2011

10/6/2011

242,039

158,075

10/24/2011 301,345

7/11/2011 91,836

Matches

520

1,142

462

2,019

14,513

199

3,226

1,155

4,664

788

Number (%) misclassified among matches

203 (39.0%)

217 (19.0%)

59 (12.8%)

959 (47.5%)

8,032 (55.3%)

94 (47.2%)

856 (26.5%)

457 (39.6%)

2,771 (59.4%)

482 (61.2%)

Percent of misclassified coded as

White

97.0%

92.2%

94.9%

70.2%

15.0%

92.6%

91.5%

43.3%

46.1%

14.1%

Percent of misclassified with unknown or missing race

2.0%

0%

3.4%

20.5%

10.1%

7.4%

0.2%

42.5%

47.6%

84.9%

AI/AN in database prior to linkage

454

2,456

602

2,007

10,782

239

6,003

1,426

5

1,568

AI/AN in database after linkage

657

2,673

708

2,966

18,814

333

6,859

1,883

5

2,050

Percent increased ascertainment of

AI/AN

44.7%

8.8%

17.6%

47.8%

74.5%

39.3%

14.3%

32.0%

5

30.7%

Misclassification prevalence among all post-linkage

AI/AN

30.9%

8.1%

8.3%

32.3%

42.7%

28.2%

12.5%

24.3%

5

23.5%

6/27/2011 746,029 9,846 6 6 6 6 6 6 6

Deaths, 1980-2010 6/30/2011 1,207,305 8,896 1,478 (16.6%) 94.1% 0.4% 14,426 15,904 10.2% 9.3%

Cancer registry 7 , 1992-2010 10/17/2011 590,240 3,759 7 7 7 7 7 7 7

1 Match & misclassification numbers reported are cumulative across all NPAIHB linkages with the Cancer Data Registry of Idaho

2 Match completed by DMAP staff; total records sent for linkage is unknown. Very limited dataset retained by NPAIHB

3 Earlier diagnosis years had been previously corrected

4 Match completed with moms’ identifiers. Race collection/coding changed between 2007 and 2008 from single to multiple race reporting. For 2008-2010 data we used any mention of AI/AN as an AI/AN record.

5 Communicable disease data system. We did not retain a data file for analysis following this linkage so we are unable to report on AI/ANs coded in Orpheus but not matched to the Tribal Registry; DHS should have this information.

6 CHARS 2010 data did not include any race information due to coding errors. We were not able to evaluate misclassification, just identify AI/ANs through the matching process

7 We linked with WSCR so their data could be corrected prior to the annual call for data and release of annual statistical files. We have not yet received an analytic data set.

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