Current Trends in Surveillance Dr. David Mowat Director General Centre for Surveillance Coordination University of Toronto/alPHa 14 March, 2003 Overview The nature of surveillance History Surveillance and decision-making Surveillance and surveillance infostructure The Network for Health Surveillance in Canada ICTs and surveillance possibilities & progress What is surveillance? • Health surveillance is the ongoing, systematic use of routinely collected health data to guide public health action • Surveillance processes include data collection, collation, analysis, interpretation and dissemination followed by action Surveillance is not … • research • evaluation Information on: "health events" • • • • • • • morbidity mortality risk factors threats to health laboratory diagnosis adverse events etc. Information uses: • identifying emerging & re-emerging diseases • monitoring trends • identifying outbreaks • identifying unusual patterns • forecasting • generating hypotheses Information ultimately used for decisions • • • • policies programs practice public local health events provincial/territorial national actions John Snow Natural and Political OBSERVATIONS Mentioned in a following Index, and made upon the Bills of Mortality. By John Graunt with reference to the Government, Religion, Trade, Growth, Ayre, Diseases, and the several Changes of the said CITY. -- Non, me ut miretur Turba, laboro. Contentus paucis Lectoribus New Challenges • new threats • new concerns • new technologies e.g. bioterrorism e.g. biotechnology e.g. genomics ICTs in Health Sector Banks, insurance companies typically investing 10% -12% of budget in ICT’s Health is an intensive information-based business However: Invested only 1% - 2% in ICT’s during 1990’s Investments uncoordinated Health needs larger ICT investments, and an integrated approach Evidence-Based Decision-Making • information on events • information on interventions • information on context Surveillance & Surveillance Infostructure The infrastructure approach provides; • efficiency • power of integration • flexibility & responsiveness Design Considerations • • • • Start with the business Make the business explicit Document the purpose(s) Choose desired characteristics Developing Data Sources • • • • re-use "by-product" "transactional" preclinical/syndromic Bio-Surveillance Detection Timeline Detection Analysis Timeline Non-clinical and behavioral data Pre-diagnostic clinical data Diagnostic data T0 T SMC T Diag T Death W1 W2 W3 IDW Time of attack (Fixed) Time to seek medical care (Mean) Time of typical diagnosis (Mean) Time of death (Mean) Window to detect (Non-Traditional) Window to detect (Non-Trad. Medical) Window to detect (Trad. Medical) Improved Detection Window Ease of Detecting Bioagent Effects Over Timeline IDW T0 TONSET W2 TSMC W3 ~~ W1 T Diagnosis. Bio-Agent Impact Timeline T Death Developing Data Sources • • • • • re-use "by-product" "transactional" preclinical/syndromic intelligence Data Integration • data warehouses • data marts Analysis • power • business intelligence tools OLAP SOLAP presentation tools spatial tools Extracting Meaning • monitoring • alerts Access • • • • • connectivity language discovery manipulation permission Discovery The "virtual library" • store • classify • search/navigate/browse Inventories Health Canada Injury Environmental CHAIN The Infospace Vision • • • • • • • • • databases summary reports daily updates/news bulletins systematic reviews position papers practice guidelines regulatory notices dictionaries, references • tools: business intelligence Geographic Information System • automated alert function • discovery functions: inventories metadata search/navigation • continuing education • discussion environments • conference, job postings, etc. Schneider's lunchmate outbreak Canada, 1998 Schneider’s recall 1 (March 31) Number of Cases 40 35 30 25 Recall (March 20) Outbreak recognized (March 16) Outbreak recognized (March 25) 20 Lunchmate (386) ( < 386 ) No Lunchmate (127) Schneider’s recall 2 (April 9) Cheese recall (April 15) 15 10 5 0 Date of Onset Of Illness NN=513 < 513 CIPHS • • • • National Reportable Disease Database Communicable diseases, immunization, VAAE Data as a by-product of doing regular work Provides tools to local public health (PHIS) & to microbiology labs (LDMS) • Connects in near-real-time • Part of end-to-end strategy of HSWG Supporting end-to-end surveillance enteric disease Childillill Child Child Childillillill Child Hospital Hospital Hospital visit Hospital Hospital visit visit visit visit Family teaching, investigation, follow up Public Health Nurse calls or visits homes Outbreak plan becomes operational Alert report to MOH Benchwork work Bench Bench work in Provlab lab Bench work Bench work in Prov in Prov lab Provlab lab ininProv Food samples to lab Coordinate other prov agency investigation Alert report to Province Alert report to HC Is this a national outbreak or one involving CFIA? Supporting end-to-end surveillance (vaccine-preventable disease) Childillill Child Child Childillillill Child Immunization registry Hospital Hospital Hospital visit Hospital Hospital visit visit visit visit Exclusion, immunization, investigation, follow up Public Health Nurse calls or visits school Outbreak plan becomes operational Alert report to MOH Benchwork work Bench Bench work in Provlab lab Bench work Bench work in Prov in Prov lab Provlab lab ininProv Identify sources of vaccine Alert report to Province Alert report to HC National response; long term work on vaccine strategy Architecture Standards “The advantages of a uniform statistical nomenclature, however imperfect, are so obvious that it is surprising that no attention has been paid to its enforcement in bills of mortality…The nomenclature is of as much importance in this department of inquiry as weights and measures in the physical sciences, and should be settled without delay.” - William Farr, 19th Century CDC G. I. S. Geographic data Disease data GIS Denominator data G. I. S. • • • • access to data tools to download service consultation & training Skills Enhancement for Health Surveillance • Develop an Internet-based training program in both official languages. • For front-line public health professionals across Canada • To increase skills in the following areas: –Epidemiology –Surveillance –Information management Skills Enhancement's Role • • • • A continuing education training program NOT to replace existing training programs Support other educational programs To help fill the gap for accessible, flexible applied continuing education training for front-line public health practitioners Modules Currently Available • • • • Orientation to Online Learning Module 1: Basic Epidemiological Concepts Module 2: Measurement of Health Status Module 3: Descriptive Epidemiological Methods Key Information • Each module ranges from 10-20 hours in length. • Students must complete a module within 6-8 weeks. • Registrants can take a module at no charge, but are responsible for Internet costs & for hardware/software. Formats Offered Facilitated Students have access to an online facilitator whose role is to: answer content-related questions; encourage discussion; provide feedback on exercises; and guide students through the material. Unfacilitated Students progress through the course independently. Examples of Future Modules • Introduction to Surveillance • Introduction to Information Management • Basic Biostatistics • Survey Methods • Communicating Data Effectively • Moving Data to Action: Evidence-based planning • Applied Epidemiology 1: eg: Outbreak Management and Control • Applied Epidemiology 2: eg: Injury • Applied Epidemiology 3: eg: Chronic Diseases