Family Support Program Performance Framework Service Provider Help Guide April 2013 Contents Performance Framework Service Provider Help Guide.......................................................... 1 1 2. 3. 4. 5 Background ................................................................................................................ 3 1.1 Objectives ............................................................................................................ 3 1.2 FaHCSIA Standard Performance Framework ...................................................... 3 1.3 Development of the FSP Performance Framework .............................................. 4 1.4 FSP Performance Framework Edition 1 ............................................................... 4 1.5 Ethical considerations .......................................................................................... 8 Data collection for immediate client outcomes ............................................................ 9 2.1 Immediate outcomes / impacts: Did we make an immediate difference? ............. 9 2.2 Steps in collecting immediate client outcomes data ............................................. 9 Data collection for intermediate client outcomes ........................................................14 3.1 Intermediate outcomes / impacts: Did we make a lasting difference? .................14 3.2 Steps in collecting intermediate client outcome data ...........................................15 Other data collection for the FSP Performance Framework .......................................20 4.1 Service delivery quality: How well have we done it? ...........................................20 4.2 Service Outputs: How much did we do? .............................................................21 Key dates...................................................................................................................22 Attachments......................................................................................................................23 Attachment A: Pick list of questions for each performance indicator ..............................24 Attachment B: Sample surveys and data collection methods .........................................29 Attachment C: Family Support Program Ethical Framework for the Collection of Performance Information ...............................................................................................44 1 Background 1.1 Objectives This Help Guide is designed to assist service providers to collect the client outcome information required under the Family Support Program (FSP) Performance Framework. Client information, including demographic and client outcomes, constitutes a key component of the FSP national data collection. The purpose of the data collection is to collect and report reliable, nationally consistent information about the delivery of FSP services. This Help Guide should be used in conjunction with other FSP information provided on the FaHCSIA website. It is important for service providers using this Help Guide to be familiar with the FSP Guidelines, the FSP Approval Requirements, the FSP Performance Framework and the terms of their Funding Agreement. The information provided in this Help Guide relates only to the Performance Indicators in the FSP Performance Framework. Funding Agreement specific Performance Indicators are not covered by this Help Guide. 1.2 FaHCSIA Standard Performance Framework The Standard Performance Framework aims to provide a consistent, logical and streamlined basis for monitoring and reporting FaHCSIA’s performance in achieving Australian Government outcomes. Specifically, the Standard Performance Framework aims to ensure: there is a clear line-of-sight between monitoring and reporting the performance of individual funded activities, overall program performance and the contribution of these programs to the achievement of FaHCSIA outcomes; valid and comparable indicators are used to measure performance; and business efficiencies are achieved. The Standard Performance Framework is focused on high-level reporting to communicate our achievements against explicit performance requirements or expectations. The FSP Performance Framework mirrors the FaHCSIA Standard Performance Framework and aims to monitor and report the FSP’s performance in achieving the program outcomes. Family Support Program Performance Framework Service Provider Help Guide Page 3 of 57 1.3 Development of the FSP Performance Framework The FSP Performance Framework was designed using the FaHCSIA Standard Performance Framework as a base. Edition 1 of the FSP Performance Framework was developed as part of the implementation of the reformed FSP, which came into effect from 1 July 2011. The FSP Performance Framework is an outcomes-based approach to program reporting. FaHCSIA developed the FSP Performance Framework in partnership with a number of service providers within the Family Support Program. 1.4 FSP Performance Framework Edition 1 The FSP Performance Framework is available on the FaHCSIA website. Edition 1 incorporates service provider feedback from consultations and pilot testing activities on data collection methods. This Guide contains practical information to assist service providers to report data for relevant FSP Performance Framework performance indicators, including a list of questions that can be used to measure each performance indicator (Attachment A) and data collection methods (Attachment B). In addition to this Guide, FaHCSIA Activity Managers will support service providers to collect data in support of the FSP Performance Framework. Reporting against the FSP Performance Framework is a requirement under Section B.3 of the Funding Agreement Schedule and in Section 4 of the FSP Program Guidelines. Purpose of the FSP Performance Framework The FSP Performance Framework is one key way to demonstrate the effectiveness of the whole FSP. The FSP Performance Framework aims to: ensure services are clearly focussed on achieving positive outcomes for clients; provide a logical and consistent approach for measuring outcomes across the program; and link the performance reporting of specific activities to the overall program performance including the achievement of FSP outcomes. Outcomes-based approach of the FSP Performance Framework The FSP Performance Framework is outcomes-based, meaning that it details how the FSP operates and achieves its outcomes. Family Support Program Performance Framework Service Provider Help Guide Page 4 of 57 The FSP Performance Framework is divided into four sections. Intermediate outcomes: Client and community outcomes expected from the FSP in the medium term (3-6 months after service). Immediate outcomes: Client outcomes expected as a result of the FSP in the short term (at the time of service). These in turn contribute to the intermediate outcomes. Service delivery quality: How well the service is being delivered in order to achieve the immediate outcomes (for example, to the satisfaction of clients), in collaboration with other agencies. Service outputs: Outputs / deliverables of the FSP services that contribute to achieving immediate outcomes (for example, number of clients, number of service sites). In the past service reporting has largely focussed on measuring outputs and service quality, with some outcomes for clients reported through narratives or stories. Inclusion of intermediate and immediate outcomes in the FSP Performance Framework enables measurement of how much is being done, how well it is being done and the impact service activities are having for clients. Links between FSP Program outcomes and the Performance Indicators Reporting under the FSP Performance Framework is used to demonstrate the FSP is contributing towards achieving the FaHCSIA departmental Outcome 1: Families and Children. The objectives and outcomes in the FSP Performance Framework feed into the Families programs outcomes (see the line of sight between FaHCSIA Outcome and FSP Performance Framework – Diagram 1.1). Outcome 1: Families and Children1 Improved child development, safety and family functioning through support services for all Australians, payments for low and medium income families with children and child support policy. 1 FaHCSIA Portfolio Budget Statement 2012-2013, Section 2: Outcomes and planned performance, p37 Family Support Program Performance Framework Service Provider Help Guide Page 5 of 57 Program 1.1 Family Support Objective2 The Family Support program is a suite of services to support families, to improve children’s wellbeing, development and safety and to enhance family functioning. The reformed Family Support Program, which came into effect from 1 July 2011, provides increased support to vulnerable children and families, promotes collaboration, and reduces red tape for service providers. Program 1.1 Family Support Program Component: Family and Children Services To provide services to families, particularly those who are vulnerable, disadvantaged or live in disadvantaged communities, to improve family functioning and safety, and child wellbeing and development 2 FaHCSIA Portfolio Budget Statement 2012-2013, Section 2: Outcomes and planned performance, p40 Family Support Program Performance Framework Service Provider Help Guide Page 6 of 57 Diagram 1.1: Line of sight between FaHCSIA Outcome and FSP Performance Framework Portfolio Budget Statement FSP Performance Framework Families function well in nurturing and safe environments Client outcomes Children and families have the knowledge and skills for life and learning Intermediate outcomes Immediate Outcomes Families, including children, especially those who are vulnerable or disadvantaged, benefit from better social inclusion and reduced disadvantage To provide services to families, particularly those who are vulnerable, disadvantaged or live in disadvantaged communities to improve family functioning and safety, and child wellbeing and development Organisations provide integrated services and work in collaboration with other services and the community Service delivery quality Service system outcomes Service Outputs Services focus on vulnerable and disadvantaged families and children Family Support Program Performance Framework Service Provider Help Guide Page 7 of 57 Flexibility of the FSP Performance Framework As reporting for the FSP Performance Framework is required for all FSP services, some flexibility has been built into its design. All services will have the flexibility to choose the two intermediate (green) performance indicators most appropriate to their service. Flexibility has also been built into the questions used to collect information against the FSP Performance Framework. A list of questions service providers can ask clients for each performance indicator is provided at Attachment A. The list will assist service providers to select questions most appropriate to their service. Service providers have flexibility to select the most appropriate period in which to collect immediate and intermediate client outcomes. A range of sample documents that may be used for data collection is provided at Attachment B. Service providers can select the method most appropriate for their clients and service type. Service Providers may also adapt their own collection methods to collect data for the performance indicators. FaHCSIA data collection methods and reporting requirements aim to reduce the burden of collection on service providers and allow service providers to incorporate FSP data collection into their existing follow-up processes. 1.5 Ethical considerations Service providers must collect data in accordance with the FSP Ethics Framework for the Collection of Performance Information (Attachment C). This Ethics Framework was first developed in 2011. In 2012, the Ethics Framework was updated to include ethical considerations for surveying children. The Ethics Framework is based on best practice for collecting data for human research. Family Support Program Performance Framework Service Provider Help Guide Page 8 of 57 2. Data collection for immediate client outcomes 2.1 Immediate outcomes / impacts: Did we make an immediate difference? Immediate client outcomes refer to the performance indicators coloured pink and numbered 2.1 to 2.4 in the FSP Performance Framework. There are four immediate outcomes performance indicators in Edition 1. Note: All services are encouraged to collect feedback from clients in all locations throughout the year to assist with internal evaluation and continuous improvement of services. Immediate client outcomes (or client feedback) should be collected at or near the time of service. To report immediate client outcome data service providers must: select a 4 week period (20 consecutive representative working days); survey all clients from all locations attending the service/s in this period. It is expected a minimum of 50% of clients will respond; and where possible, collect immediate outcomes anonymously. The four week period should be a period of service delivery representative of usual provision, when sufficient numbers of clients can be asked for feedback. This means that if a service is delivered only one day a week, only four days of data collection is required. If the same clients access the service on each of those four days, they will only need to be surveyed once. A different 20 day period may be used for each Activity. Note: These data show outcomes at the service provider level and is used to assess service provider performance. 2.2 Steps in collecting immediate client outcomes data The following diagram shows steps service providers must undertake as part of the immediate data collection process. As service providers progress through the steps it may be useful to document a data collection plan for their records. The plan may vary for each Activity. Family Support Program Performance Framework Service Provider Help Guide Page 9 of 57 Immediate client data collection process Step 1: Identify the Performance Indicators by Activity. Step 2: Choose whether to adapt existing collection methods or adopt a new collection method Step 3: Identify appropriate questions for each Performance Indicator from pick list or seek approval for alternate questions Step 4: Discuss collection method and questions with FaHCSIA Activity Manager Step 5: Collect data Step 6: Collate data and report by Activity in Annual Service Report or Performance Report due 31 July These steps are expanded upon in the relevant sections below. Step 1: Identify the relevant FSP Performance Indicators Some of the immediate outcome performance indicators that service providers must report cross over with those listed in the Funding Agreements, while others are uniquely from the FSP Performance Framework. There are four immediate performance indicators included in the FSP Performance Framework. All services except Community Playgroups must collect data against all immediate PI’s. Community Playgroups collect data on PI 2.1 and 2.2 only. The table below outlines which services should collect information against each performance Indicator. Family Support Program Performance Framework Service Provider Help Guide Page 10 of 57 Ref Performance indicator FLS, FaRS, Specialist Services CfC Community Playgroups 2.1 Proportion of clients with increased knowledge and skills 2.2 Proportion of clients satisfied with the service they received 2.3 Proportion of clients with improved access / engagement with services N/A 2.4 Proportion of clients with improved family, community and economic engagement N/A Service providers experiencing difficulty collecting data for the required performance indicators, should discuss this with their FaHCSIA Activity Manager. Step 2: Adapt or adopt a collection method The next step is to choose the data collection method. Sample questionnaires are located in Attachment B. For immediate outcomes, the most suitable method is an anonymous survey supplied at the time of service (Sample 1, Attachment B). Service providers can use existing collection methods so that continuous monitoring is not interrupted. While anonymous data collection is preferred, in some cases, it may not be appropriate. Service providers who do not consider anonymous data collection to be appropriate should discuss this with their FaHCSIA Activity Manager. If an anonymous survey is not appropriate, alternate methods that may be considered suitable include: Interview (in person or via telephone). This may be most suitable for clients with limited English or literacy; Focus group. It may be appropriate to ask clients for feedback as part of a group session, depending on the activity and the clients; and Service provider judgement. This may be used when it is inappropriate or too difficult to elicit information directly from clients. In this method, the service provider would judge client achievement of the performance indicator. Observations for all clients should be reported (this can include ‘don’t know’). For example, for a group of 10 clients, 8 of whom increased knowledge and skills has been observed, the results reported would be total 10, 8 positive and 2 ‘don’t know’. Family Support Program Performance Framework Service Provider Help Guide Page 11 of 57 Samples of these collection methods are located in Attachment B. Step 3: Identify questions for each performance indicator relevant to the Activity and client/s For each performance indicator listed in Step 1, review the pick list of questions and select those appropriate / relevant to the Activity and clients (Attachment A). While different questions may be used on separate occasions, each client is to be asked to respond to only one question per performance indicator. This is to avoid the difficulty of reporting where a client may respond both positively and negatively for the same performance indicator. The service provider can select the most relevant question, or alternatively present a selection of questions with instruction for the client to select the most appropriate. The question/s used can vary to suit the client/s and activity. Questions in the immediate client data collection pick list are coloured pink. Alternative / modified questions to those on the pick list can be used after discussion with the FaHCSIA Activity Manager. In addition to the pick list questions, Service Providers are encouraged to include open-ended questions to collect qualitative data. Open-ended questions allow service providers to seek information on clients’ opinions about what works, what doesn’t work, and make suggestions for improvements to the service. Service providers are not required to report to FaHCSIA on qualitative feedback from clients. Where service provider judgement has been selected as the collection method, the last page of the pick list (Attachment A) provides guidance on considering how clients will be assessed. Note: Care must be taken not to use leading questions or questions that indicate an expected answer. Genuine responses, including negative responses, are more valuable for indicating service quality and identifying areas that can be improved. Step 4: Discuss collection method and selected questions with FaHCSIA Activity Manager All collection methods and questions should be discussed with the FaHCSIA Activity Manager before they are used. Activity Managers will check that. the method is suitable; questions used align with the performance indicators; and all required performance indicators have been included. Family Support Program Performance Framework Service Provider Help Guide Page 12 of 57 Step 5: Collect data Once the collection method and questions have been agreed with your FaHCSIA Activity Manager, data collection can commence. Immediate client data will be collected within a 20 consecutive representative working day period (four weeks), at any time during the financial year. The time of collection is chosen by the service provider. (That is, Community Partners can choose different 20 day periods from each other. Facilitating Partners will submit aggregated data for all Community Partners). The period selected must be representative of usual service delivery and may vary for each Activity. All clients from all service locations using the service during the four weeks should be given the opportunity to provide feedback. It is expected that at least 50% of clients will respond to the survey and that 80% of responses will provide a satisfactory rating. Each client should only respond to the survey once per Activity. A client is a person who receives direct service delivery, excluding intake and assessment, information only, and referrals. In some cases, services may only be delivered on a limited number of days in the collection period. If a provider delivers the service two days a week, then collection would only be needed on 8 days within the four week period. Information must be stored as required by the Privacy Act 1998. Step 6: Collate data and report Service providers are required to collate all responses gathered over the 20 consecutive working day period (four weeks) for reporting at the end of the financial year. The client outcomes data requested in the Annual Service Report or the January-June Performance Report will include: the number of clients accessing the service during the four week period; the number of clients who responded to the survey; and the number of clients who “agree”, “disagree” or “don’t know” for each performance indicator. All data must be reported for each Activity. The funded organisation must report for all sub-contracted organisations. Family Support Program Performance Framework Service Provider Help Guide Page 13 of 57 3. Data collection for intermediate client outcomes 3.1 Intermediate outcomes / impacts: Did we make a lasting difference? Intermediate client outcomes refer to performance indicators coloured green and numbered 1.1 to 1.4 in the FSP Performance Framework. There are four intermediate outcome performance indicators. Intermediate client outcomes are to be measured: 3 – 6 months after clients leave the service; or more than 6 months after commencing the service for clients who are still accessing services. Under the FSP Performance Framework, service providers must report on two intermediate performance indicators. Services should select at least two intermediate outcome performance indicators which are most relevant for their service. Intermediate outcomes should only be collected from clients who have accessed services within the current financial year and who have provided consent to follow-up. Clients should be asked for consent to follow-up at the time of commencing the service. Note: Clients must be asked for consent to follow-up to allow services to contact them at a later time. Where the client is aged under 16 years, the parent / guardian must provide consent and follow-up should be sought with this adult. Each service provider will be required to collect intermediate client outcome data on a small sample of their clients. The sample size will be based on the number of clients attending the service in the July-December period. The number of clients to be sampled will be provided by FaHCSIA at the end of March for each service type.3 The timing of this may be affected by the late submission of Performance Reports. Service providers will report their results in the Annual Service Report or six-monthly Performance Report due on 31 July each year. 3 The sampling will be based on FSP data at the Activity level. The sampling will be based on 5% confidence intervals with a 95% confidence level. Family Support Program Performance Framework Service Provider Help Guide Page 14 of 57 Note: Providers should not report on more responses than the sample number requested by FaHCSIA. The sample number has been determined to provide statistically significant results when combined across the program. Providing a larger number of responses skews the results making the data not meaningful for program analysis purposes. Exemptions from collecting intermediate client outcomes may apply in special circumstances. Service providers should contact their Activity Managers if difficulty arises in the collection of these data. Note: These data show outcomes at the program level, they are not used to assess service provider performance. 3.2 Steps in collecting intermediate client outcome data The diagram shows the steps service providers will undertake as part of the data collection process for intermediate outcomes. As service providers progress through the steps, it may be useful to document a data collection plan for their records. The plan may vary for each service type provided. Intermediate client data collection process Step 1: Identify the Performance Indicators by Activity. Step 2: Choose whether to adapt existing collection methods or adopt a new collection method Step 3: Identify appropriate questions for each performance indicator from pick list or seek approval for alternate questions Step 4: Discuss collection method and questions with FaHCSIA Activity Manager Step 5: FaHCSIA to provide number of clients to follow-up by Activity Step 6: Identify list of clients to survey Family Support Program Performance Framework Service Provider Help Guide Page 15 of 57 Step 7: Collect data Step 8: Collate data and report by Activity in Annual Service Report or Performance Report due 31 July These steps are expanded upon in the relevant sections below. Step 1: Identify the relevant FSP Performance Indicators Service providers should select a minimum of two FSP Performance Framework performance indicators listed below to report for each Activity. Performance Indicator 1.1 Proportion of clients with improved family functioning including child wellbeing. Performance Indicator 1.2 Proportion of children with improved development Performance Indicator 1.3 Proportion of clients that live in safer family and community environments Performance Indicator 1.4 Proportion of clients who are included in and socially connected to the community Service providers may select different indicators for each Activity. Step 2: Adapt or adopt a collection method The next step is to choose the data collection method. For intermediate outcomes, a telephone interview is the most suitable method (Sample 2, Attachment B). Service providers are able to use any question from the pick list for each performance indicator (Attachment A). Alternative questions can be used after discussion with the FaHCSIA Activity Manager. If an interview is not appropriate, other methods are: Focus group. This may be used in a situation where a group of clients is using a service for six months or more; Survey or questionnaire. This method has limited use for collection of intermediate outcomes due to low response rates for mailed surveys; and Service provider judgement. This may be used where clients are still using the service six months after commencement and it is inappropriate or too difficult to elicit information directly from them. In this method, the service provider would judge client achievement of the performance indicator. For this Family Support Program Performance Framework Service Provider Help Guide Page 16 of 57 method, a random sample of clients should still be used and reported (this can include ‘don’t know’). A sample of these collection methods is located in Attachment B. Step 3: Identify questions for each performance indicator relevant to the Activity and client/s For each performance indicator selected in Step 1, service providers choose a question from the pick list (Attachment A). Questions in the intermediate client outcome pick list are coloured green. Each client should respond to only one question per performance indicator. Service providers will be following up a small number of clients and should tailor questions to best suit individual clients/the Activity. In addition to the pick list questions, service providers are encouraged to include open-ended questions to collect qualitative data. Open ended questions allow service providers to seek information on clients’ opinions about what has worked, what didn’t work and make suggestions for improvements to the service. Service providers are not required to report to FaHCSIA on qualitative feedback from clients. Note: Care must be taken not to use leading questions or questions that indicate an expected answer. Genuine responses, including negative responses are more valuable for indicating service quality and identifying areas that can be improved. Step 4: Discuss collection tools and selected questions with FaHCSIA Activity Manager All collection methods and selected questions should be discussed with the FaHCSIA Activity Manager before they are used. FaHCSIA Activity Managers will check that: the method is suitable; questions used align with the performance indicators; and the required performance indicators have been included. Step 5: Sample numbers to be provided by FaHCSIA Intermediate client outcomes sample numbers are distributed by FaHCSIA to service providers at the end of March. The number of clients to follow-up will be based on the number of clients who attended the Activity in the July-December period of that financial year. The sample size will vary for different Activities with a minimum of 5 and a maximum of 30 clients per Activity. The sample is based on the number of clients utilising the service across the FSP and will provide statistically significant results at the Activity level. Family Support Program Performance Framework Service Provider Help Guide Page 17 of 57 Step 6: Identify the list of clients who can be followed up To identify appropriate clients for follow-up, check your client records for a list of clients who have: consented to be followed up (or parent / guardian consented where client is aged under 18 years); accessed the service within the required period (completed service within the last 3-6 months or receiving the service for 6 months or more); provided appropriate contact details; and no specific reasons not to follow-up (for example, mental health issues, substance abuse or could be placed at risk by contact.) (See Attachment C.) Step 7: Collect data Clients to follow-up for intermediate outcomes should be randomly selected from the list created above (for example, every third name). Where the client is aged under 18 years, follow-up should be sought from the consenting adult. Some clients may not give feedback or not be contactable. If this is the case, continue to contact clients from the list until the sample number has been reached. Since the sample number to follow-up is small, it is possible that the clients followed-up will not come from all outlets. Report data from all clients who provided feedback; both positive and negative results are expected. Follow-up will primarily be undertaken by a person who was not involved in providing the service. However, it may be preferable for the person who provided the service to assess whether follow-up is appropriate (referring to the Ethics Framework at Attachment C) and, in some special circumstances, conduct the follow-up themselves. Example: For some clients / groups, using the bond or trust established between the service provider and the client may be necessary to the client providing feedback. Random selection is an important aspect of the collection of intermediate outcomes. If a combined list of consenting clients from all Activities is difficult to create, outlet/s or Activities can be randomly selected. The consenting clients from these outlet/s or Activities can then be selected and contacted until the sample number has been reached. Some form of random selection must also be applied if the focus group or service provider observation methods are used. This could be to randomly select the Activity and clients (for example: the first 10 clients to arrive on a particular day). Where an Activity is located on more than one location, the sample number should be distributed across the sites. For example, if there was a sample of five clients to be surveyed and two sites delivering an Activity, three clients would be surveyed from one site and two from the second site. Information must be stored as required by the Privacy Act 1998. Family Support Program Performance Framework Service Provider Help Guide Page 18 of 57 Service providers who are unable to reach the required sample number, should discuss this with their FaHCSIA Activity Manager. Step 8: Collate data and report Service providers are required to collate their data in preparation for reporting at the end of financial year. The client outcomes data requested in the Annual Service Report or the January-June Performance Report will include: the number of clients who provided feedback; and the number of clients who “agree”, “disagree” and “don’t know” for each performance indicator. The data must be reported for each Activity. Family Support Program Performance Framework Service Provider Help Guide Page 19 of 57 4. Other data collection for the FSP Performance Framework In addition to the collection of immediate and intermediate client outcomes data, service providers will collect other forms of data for the FSP Performance Framework. The FSP Performance Framework contains two additional parts, relating to Service Delivery Quality and Service Outputs. Information collected for these performance indicators is part of the existing questions in the Annual Service Report and CfC Performance Reports. 4.1 Service delivery quality: How well have we done it? Service delivery quality performance indicators are shown in red in the FSP Performance Framework. There are three performance indicators in Edition 1. Performance indicator 3.1 - Proportion of clients from priority groups FaHCSIA’s priorities include providing services to a number of vulnerable groups. This includes engaging disadvantaged Australians in quality services under the FSP. Most FSP services are required to have a Client Access Strategy. FSP Services are required to collect and report data on vulnerable groups, which may include but are not limited to: Aboriginal and Torres Strait Islander families; Culturally and Linguistically Diverse families; low income families; and young parent families. Performance indicator 3.2 - Proportion of partner agencies reporting satisfaction with the contribution of the service providers to integrated service delivery Each second year, service providers will be required to nominate three organisations as ‘partner agencies’ that they work with. (Excludes sub-contracted agencies, e.g. Community Partners and consortia). It is recommended that service providers notify their partner agencies before this nomination and confirm contact details of the most appropriate person for FaHCSIA (or FaHCSIA contracted organisation) to contact. The nominated partner agencies will be asked to complete a survey on how satisfied they are with their relationship with the service provider. Responses will be provided in confidence. An example of the survey used in 2012 is in Attachment B, Sample 6. Details of any organisation contracted to conduct partner agency surveys will be given to service providers before the survey process commences. Family Support Program Performance Framework Service Provider Help Guide Page 20 of 57 Performance indicator 3.3 - Proportion of service providers that meet approval requirements FaHCSIA will measure the number of service providers who meet the items listed in the Family Support Program (FSP) Approval Requirements, which is available on the FaHCSIA website. This will be assessed through information provided in the Performance Reports or Annual Services Report and by FaHCSIA Activity Managers. 4.2 Service Outputs: How much did we do? Service outputs performance indicators are shown in yellow in the FSP Performance Framework. There is one performance indicator listed in Edition 1. Performance indicator 4.1 -Number of clients by demographic characteristics service events / activities service sites (and locations) FaHCSIA will collate the information from all service providers to report program-wide data. This will include details on the demographic characteristics of clients including vulnerable groups, total clients assisted, service type breakdown and locations / numbers of service sites. Family Support Program Performance Framework Service Provider Help Guide Page 21 of 57 5 Key dates Activity Date Collect client feedback over 20 working days (immediate outcomes) July 2012 to June 2013 July-December CfC Performance Report due 28 February 2013 FaHCSIA provides number of clients to follow-up 31 March 2013 Follow-up sample of clients (intermediate outcomes) April to June 2013 Report aggregated client data in Annual Service Report or January-June Performance Report 31 July 2013 Collect client feedback over 20 working days (immediate outcomes) July 2013 to June 2014 July-December CfC Performance Report due 28 February 2014 FaHCSIA provides number of clients to follow-up 31 March 2014 Nominate three partner agencies April 2014 Follow-up sample of clients (intermediate outcomes) April to June 2014 Report aggregated client data in Annual Service Report or January-June Performance Report 31 July 2014 Family Support Program Performance Framework Service Provider Help Guide Page 22 of 57 Attachments Family Support Program Performance Framework Service Provider Help Guide Page 23 of 57 Attachment A: Pick list of questions for each performance indicator The FSP Performance Framework came into effect from July 2011. This pick list contains questions for collection of data for each of the performance indicators for intermediate (green) and immediate (pink) client outcomes. Service providers are required to: select at least two intermediate (green) performance indicators to collect and report data; refer to the Help Guide for immediate (pink) performance indicators required to be collected and reported on; and select one question against each performance indicator. Alternative questions can be used for the performance indicators with approval from FaHCSIA. Service providers may ask clients other questions in addition to those used to collect client data for their own records or to assist with continuous improvement. PF Ref Performance Indicator Questions 1.1 % clients with improved family functioning including child wellbeing As a result of the service I received… Responses: disagree / agree / don’t know Relationships and communication in my family are improved My relationship with my child has improved Communication in our family has improved I feel more confident as a parent My relationship with my partner / ex-partner has improved My relationship with family members has improved My child’s relationships with others has improved Our parenting arrangements are workable There is better communication about our children’s needs My family gets along better My family talks more with each other I am able to deal with the relationship issues with my partner / ex-partner in a constructive / positive manner. My relationship with the other parent has become more relaxed during change overs Family Support Program Performance Framework Service Provider Help Guide Page 24 of 57 PF Ref 1.2 Performance Indicator % children with improved development Questions As a result of the service I received… Responses: disagree / agree / don’t know My child’s development has improved I interact more positively with my child I have and I use new ways to play with and teach my child I have used other service/s to help my child learn and develop I am better able to help my child to learn I have a better understanding of activities that help my child learn I have a stronger relationship with my child I have a better understanding of the role I play in my child’s learning I am better able to understand reasons for my child’s behavioural changes 1.3 % clients that live in safer family and community environments As a result of the service I received… Responses: disagree / agree / don’t know I feel safer in my own home I feel safer in my community There is less conflict in our family Members of our family feel safer My child experiences less conflict Attending this service makes my home life better I have skills to keep my child safe There is less conflict with my child's other parent 1.4 % clients who are included in and socially connected to their community As a result of the service I received… Responses: disagree / agree / don’t know I feel connected to my community I could find and go to services to help my child / family if I needed to in the future I have more contact within the community I feel more socially connected I am able to get support when I need it I feel more included in my community Family Support Program Performance Framework Service Provider Help Guide Page 25 of 57 PF Ref Performance Indicator Immediate outcomes / impacts Questions 2.1 As a result of the service I received… 2.2 % clients with improved knowledge and skills % clients satisfied with the service they received % clients reporting that the service was responsive / respectful of their needs and / or cultural background Responses: disagree / agree / don’t know I know more about how to care for and parent my child I am more able to care for and parent my child I know more about how to help and support my child to develop I know more about how to find help to support my child to develop I am more able to find help to support my child to develop I have new skills and knowledge to use in my family relationships My relationships with my family have improved Parenting arrangements are workable I am more confident in parenting my child I know what my child should do at this age I know more about how to help my child do new things I have new strategies to deal with conflict with my child’s other parent As a result of the service I received… Responses: disagree / agree / don’t know I am satisfied I received adequate information (including referrals to other services) to meet my needs I am satisfied with the service I received I would recommend this service to others I feel I was treated with respect I was clear about the expectations that my practitioner(s) and I were working towards The service was respectful of my cultural needs Family Support Program Performance Framework Service Provider Help Guide Page 26 of 57 PF Ref 2.3 2.4 Performance Indicator % clients with improved access / engagement with services % clients with improved family, community and economic engagement Questions As a result of the service I received… Responses: disagree / agree / don’t know I can find and go to services to help me with family issues when I need to I am able to use and get useful help from community services to help me with family issues I can find services when I need them I am more confident about finding and going to family services I am able to access community services to get help with family issues I have information about other services to meet my family’s needs As a result of the service I received… Responses: disagree / agree / don’t know I will have more contact with family, friends and / or community members I am aware of more activities in my community My relationship with my partner has improved My relationship with my children has improved My relationship with other family members has improved There will be less conflict in our family Members of my family are safer I feel better able to cope or deal with my issues I am more connected to people I now help or support others in my community Family Support Program Performance Framework Service Provider Help Guide Page 27 of 57 Service Provider observation For most clients, surveys to ask their experience of the service and what benefits they may have received is the best way to collect outcomes data. However, in some cases asking clients directly about outcomes from the service is not appropriate. All service providers must first discuss using observation to report on performance indicators with their FaHCSIA Activity Manager. PF Ref Performance Indicator Intermediate outcomes / impacts Observations As a result of the service I received… Responses: disagree / agree / don’t know 1.1 % clients with improved family functioning including child wellbeing 1.2 % children with improved development 1.3 % clients that live in safer family and community environments 1.4 % clients who are included in and socially connected to their community Immediate outcomes / impacts 2.1 % clients with improved knowledge and skills 2.2 % clients satisfied with the service they received % clients reporting that the service was responsive / respectful of their needs and / or cultural background % clients with improved access / engagement with services % clients with improved family, community and economic engagement 2.3 2.4 The client is better able to manage family issues of concern to them The child has demonstrated improvement in development The client’s safety in family and community environments has improved The client is more included and socially connected to their community As a result of the service received… Responses: disagree / agree / don’t know The client demonstrated that they are able to apply new knowledge or skills in parenting their child The client has demonstrated that they are able to apply new knowledge or skills in seeking help with their child’s development The client shows that they are happy with the service they received The client demonstrated that they know how to find and go to services when needed The client has shown an interest in becoming a volunteer or continuing to volunteer or seek / gained employment The client has shown that their relationships with their family, friends and / or community members have improved after receiving the service. Family Support Program Performance Framework Service Provider Help Guide Page 28 of 57 Attachment B: Sample surveys and data collection methods SAMPLE 1 – Immediate Outcomes Data Collection Client Survey or Interview Your feedback is valuable to us. By providing your view on the service you have received, you will help us improve the services we provide. No special knowledge is needed to answer these questions and there are no right or wrong answers. We are interested in your opinion. You can choose not to answer particular questions if you wish. Your answers will be kept confidential and you will not be identified in any of the results. How has your situation changed since you started using the service? For each of the following statements, please mark if you agree or disagree. As a result of the help I received…….. Disagree Agree Don’t know ... I am more confident in parenting my child. ... I am satisfied with the service I received. ... I can find services when I need them. … I have more contact with family, friends and / or community members. Any comments or suggestions? Thank you for your time. We value your feedback. Family Support Program Performance Framework Service Provider Help Guide Page 29 of 57 SAMPLE 2 – Intermediate Outcomes Data Collection Client Survey or Interview Hello, my name is <name of person following up> from <name of service provider>. A few months ago you participated in <name and / or range of services>. We are currently following up some of our past clients to see whether our services make a lasting difference to families. Would you mind answering a few brief questions over the phone? It will only take a few minutes. Taking part in the interview is voluntary. If you do take part, any answers you give will be treated confidentially. The feedback you give will be analysed together with other people’s feedback to give an overall picture. How has your situation changed since you started using the service? For each of the following statements, please mark if you agree or disagree. As a result of the help I received…….. Disagree Agree Don’t know … I interact more positively with my child. … I am able to get support when I need it. Any comments or suggestions? Thank you for your time. We value your feedback. Family Support Program Performance Framework Service Provider Help Guide Page 30 of 57 SAMPLE 3 – Immediate Outcomes data collection Client Focus Group Thank you for taking the time to participate in this focus group. My name is [insert name] and I am from [insert agency]. The purpose of this feedback is to collect your thoughts and feedback about the [insert service] which you have been involved in. We want to know how you feel the service may have helped you. We run these focus groups so that we can continue to improve our service as well as collect data to help us report back to our funder. Please be assured that your responses will be kept confidential and you will not be identified in any of the results. I need your consent to participate in this focus group. You are under no obligation to participate and you are not required to answer any questions you do not wish to. If you decide to leave the group part-way through, we will respect your decision. Could I please ask you indicate your consent to participate by raising your hand? As I mentioned before, my name is [insert name]. Does everyone here know each other? If not, we may like to spend some time before we begin, by introducing ourselves to the group. (Group members may introduce themselves.) Please note that we have a set of guidelines to help the focus group run as successfully as possible. These are: - Do not discuss the details of the discussion once the group is finished. - Respect others’ privacy and do not repeat their comments once outside the group. - Speak one at a time so everyone is respected and the note taker can capture the data. - Participants should feel that they able to express opinions freely and without criticism. How has your situation changed since you started using the service? For each of the following statements, insert number of observations in each category. As a result of the help I received…….. Disagree Agree Don’t know ... I know more about how to support my child to develop ... I can find and go to services to help me with family issues when I need to ... I have received adequate information (including referrals to other relevant services) to meet my needs … I participate in activities in my community more often Family Support Program Performance Framework Service Provider Help Guide Page 31 of 57 Any comments or suggestions? Are there any other comments that you would like to make about the service or how it has helped you? Thank you again for taking the time to participate in this focus group. Family Support Program Performance Framework Service Provider Help Guide Page 32 of 57 SAMPLE 4 – Intermediate Outcomes data collection Client Focus Group Thank you for taking the time to participate in this focus group. My name is [insert name] and I am from [insert agency]. The purpose of this feedback is to collect your thoughts and feedback about the [insert service] which you have been involved in. We want to know how you feel the service may have helped you in the long term. We run these focus groups so that we can continue to improve our service as well as collect data to help us report back to our funder. Please be assured that your responses will be kept confidential and you will not be identified in any of the results. I need your consent to participate in this focus group. You are under no obligation to participate and you are not required to answer any questions you do not wish to. If you decide to leave the group part-way through, we will respect your decision. Could I please ask you indicate your consent to participate by raising your hand? As I mentioned before, my name is [insert name]. Does everyone here know each other? If not, we may like to spend some time before we begin, by introducing ourselves to the group. (Group members may introduce themselves.) Please note that we have a set of guidelines to help the focus group run as successfully as possible. These are: - Do not discuss the details of the discussion once the group is finished. - Respect others’ privacy and do not repeat their comments once outside the group. - Speak one at a time so everyone is respected and the note taker can capture the data. - Participants should feel that they able to express opinions freely and without criticism. How has your situation changed since you started using the service? For each of the following statements, insert number of responses in each category. As a result of the help I received…….. Disagree Agree Don’t know ... relationships and communication in my family have improved ... I feel safer in my community Any comments or suggestions? Thank you again for taking the time to participate in this focus group. Family Support Program Performance Framework Service Provider Help Guide Page 33 of 57 SAMPLE 5: Integrated / Coordinated Service Delivery data collection Partner agency nomination We would like you to nominate up to three external organisations that you most commonly work with. You may also identify up to three internal partner agencies that are different parts of your organisation. If so, please list these on a separate nomination form. Please complete all the questions for each nomination. Organisation 1 Name of organisation Is this an external organisation Internal / External (please circle one) Type of organisation (for example, . non-government, school) Contact name (this person will receive the survey by email) Contact email Contact phone Briefly describe for what purposes your organisation interacts with the nominated partner agency (for example type of relationship, frequency of contact, level of involvement) Organisation 2 Name of organisation Is this an external organisation Internal / External (please circle one) Type of organisation (for example, . non-government, school) Contact name (this person will receive the survey by email) Contact email Contact phone Briefly describe for what purposes your organisation interacts with the nominated partner agency (for example type of relationship, frequency of contact, level of involvement) Family Support Program Performance Framework Service Provider Help Guide Page 34 of 57 Partner agency nomination Organisation 3 Name of organisation Is this an external organisation Internal / External (please circle one) Type of organisation (for example, . non-government, school) Contact name (this person will receive the survey by email) Contact email Contact phone Briefly describe for what purposes your organisation interacts with the nominated partner agency (for example type of relationship, frequency of contact, level of involvement) Family Support Program Performance Framework Service Provider Help Guide Page 35 of 57 SAMPLE 6: Integrated / Coordinated Service Delivery data collection Partner agency survey (2012) Online survey: Working with services funded by the Australian Government Family Support Program You are making a decision whether or not to participate in this online survey. Please read the invitation email carefully. If you continue with this online survey, we will assume that you have read the information provided in the invitation email and have decided to participate. From July 2011 the Australian Government’s Family Support Program (FSP) was reformed to increase support to vulnerable children and families, and promote collaboration amongst service provider organisations. For the purposes of this survey, collaboration is defined simply as organisations and agencies working together to meet the needs of the community, children and families. For more information on collaboration and the FSP, please visit the FSP Collaborative Service Delivery webpage on http://www.fahcsia.gov.au/sa/families/progserv/familysupport/Pages/collaborative_service_de livery.aspx. [Insert organisational name] nominated you as a Partner Organisation. Please consider your collaboration with this organisation when answering the following questions. ABOUT YOUR ORGANISATION 1. Which of the following best describes your role in your organisation? CEO, Director or General Manager Senior or area manager Service co-ordinator or service manager Frontline worker Other (please specify) ___________________________________ 2. Which of the following best describes your organisation? Not-for-profit organisation Private sector ‘for profit’ organisation Government agency or statutory authority Other (please specify) _____________________________________ 3. Does your organisation operate from more than one location in Australia? Yes No 4. Does your organisation currently receive any funding from FSP? Yes No Not sure 5. Approximately how many paid staff are employed in your whole organisation? (Please include all full time and part time staff but not casual or contract staff). 0 1-5 6-20 Family Support Program Performance Framework Service Provider Help Guide Page 36 of 57 21-50 51-100 101-200 200 plus 6. Please indicate the main sector(s) in which you provide services (you may choose up to FIVE main sectors). Indigenous families Culturally and linguistically diverse families Health Mental health Family relationships and counselling Family law Law enforcement and / or justice system Drug & alcohol Aged care Children with disability Adults with disability Community programs (including parenting programs and playgroups) Young parents Cultural or religious organisations Employment / training Education – school/preschool Education – secondary Early childhood services (eg. 0-5 years) Childhood services (eg. 6-12 years) Youth services (eg. 13-18 years) Welfare Child protection Foster, grandparent or kinship carers Emergency relief and / or money management Post-trauma and / or disaster services Housing Other (please specify)__________________ ABOUT YOUR WORK WITH THE FSP FUNDED ORGANISATION 7. What type of relationship does your organisation have with [insert organisation name]? (tick all that apply) Formal partnership (eg. memorandum of understanding, contract, consortium) Informal partnership Refer clients to and / or from Joint case management Have little or no relationship Other (please specify) ______________________________________ Family Support Program Performance Framework Service Provider Help Guide Page 37 of 57 8. How often does your organisation have contact with [insert organisation name]? Frequently –more than twice per month Occasionally – once or twice per month Infrequently – less than once per month Never 9. How important is it for your organisation that [insert organisation name] collaborates with your organisation? Very important Somewhat important Not very important Not at all important The Australian Government provides funding for FSP services in a number of specific areas. We would like to find out the service areas in which you collaborate with [insert organisation name] and how satisfied you are with their efforts to collaborate. 10. For each of the following service areas please indicate your level of involvement with [insert organisation name] and your satisfaction with their efforts to collaborate. Service area/s Please indicate your level of involvement How satisfied is with [insert organisation name] in this your organisation service area with [insert organisation name] efforts to collaborate Family Law Services (e.g. Family Relationship Centres; Post Separation Co-operative Parenting services; Supporting Children after Separation Program; Parenting Orders Program; Children’s Contact Services; and Family Dispute Resolution) Communities for Children Services (e.g. parenting support; group peer support for children, families or carers; case management; home visiting services; and other supports to prevent child abuse and neglect to families with children up to age 12) Not Applicable (automatically move to next service area) □ Low or none □ Medium □ High □ Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable □ Low or none □ Medium □ High □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Family Support Program Performance Framework Service Provider Help Guide Page 38 of 57 Communities for Children – Indigenous Parenting Services (e.g. support transitions to child care, pre-school and primary school; and assist Indigenous parents address social, cultural, personal, historical, financial and health factors) Family and Relationship Services (e.g. assistance with adult relationships; counselling for children; and education and parenting support within disadvantaged communities) Community Playgroups (informal gatherings for parents and caregivers with children under school age that provide an ideal place for children to learn and develop through play) □ Low or none □ Medium □ High □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable □ Low or none □ Medium □ High □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable □ Low or none □ Medium □ High □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Specialist Services (e.g. Specialised Family Violence Services; Kids in Focus – Family Drug Support; and Family Relationship Services for Humanitarian Entrants) □ Low or none □ Medium □ High □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable ABOUT YOUR COLLABORATION WITH THE FSP FUNDED ORGANISATION 11. We now list several activities commonly involved in collaboration between services. For each activity, please indicate your level of involvement with [insert organisation name] and your satisfaction with their efforts to collaborate. If the listed area is an area where your organisation is not wishing to collaborate with [insert organisation name], please select ‘not applicable’. Family Support Program Performance Framework Service Provider Help Guide Page 39 of 57 Area of collaboration Level of involvement with the FSP-funded organisation Satisfaction with [insert organisation name]’s efforts to collaborate Shared information (for example exchanging information about projects or funding sources, joint promotional campaigns, sharing client information) □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Joint planning (for example coordinating planning cycles or sharing membership of organisational structure) □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Referring clients to the FSPfunded organisation □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Receiving referrals from the FSP-funded organisation □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Joint service delivery □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Joint case management □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Sharing costs for services provided to shared clients □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Family Support Program Performance Framework Service Provider Help Guide Page 40 of 57 Joint quality monitoring of services □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Interagency meetings □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Co-location (sharing the same premises or infrastructure) □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable Professional development (common staff training or joint recruitment) □ Low or none □ Medium □ High □ Not applicable □Very dissatisfied □ Somewhat dissatisfied □ Somewhat satisfied □ Very satisfied □ Not applicable 12. The following question asks about processes for collaboration between your organisation and [insert organisation name]. For each statement, please select the answer that most closely matches your opinion. If a statement refers to something that you have no experience with or is not relevant, select the ‘Not applicable’ option. The FSP-funded organisation and its staff.... Not applicable Completely disagree Rating Somewhat disagree Somewhat agree Completely agree ...maintain adequate contact with our agency ...respond to requests ...are cooperative Family Support Program Performance Framework Service Provider Help Guide Page 41 of 57 ...are knowledgeable about our services ...contribute to our organisation’s objectives …undertake the role the community needs them to 13. Overall, how satisfied are you with [insert organisation name]’s contribution to integrated service delivery / service coordination? Very dissatisfied Somewhat dissatisfied Somewhat satisfied Very satisfied 14. Is there anything else you would like to say about the issues covered in this survey? Survey End - thank you for completing the survey. Family Support Program Performance Framework Service Provider Help Guide Page 42 of 57 SAMPLE 7: Data collation Immediate Outcomes Performance Indicator ACTIVITY NAME Questions used Total number of clients asked Number of client responses for these questions % Disagree Agree Don't know For example: I know what my child should know at this age 20 15 0.75 2 13 0 % Clients with improved family knowledge and skills Parenting arrangements are workable % Clients with improved family knowledge and skills % Clients satisfied with the service they received % Clients with improved access / engagement with services % Clients with improved family, community and economic engagement Family Support Program Performance Framework Service Provider Help Guide Page 43 of 57 Attachment C: Family Support Program Ethical Framework for the Collection of Performance Information 1. The Ethics Framework The Ethics Framework is informed by a broad risk assessment of issues likely to arise for FSP service providers when following up clients, and by known ethical dilemmas in the broad human research field. 1.1 Relationship to other guidelines, standards and principles These ethics guidelines provide principles and specific guidance for the different FSP service types, clients and data collections. It draws advice from the following sources: National Health and Medical Research (NHMRC) (2007). National Statement of Ethical Conduct in Human Research. This document covers ethics in human research in Australia. It clarifies the responsibilities for institutions and researchers for the ethical design, conduct and dissemination of results of human research in Australia. NHMRC (2003). Values and Ethics: Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research. NHMRC (2006). Challenging ethical issues in contemporary research on human beings. NHMRC (2007). Australian Code for the Responsible Conduct of Research. Law Library Congress (2007). Children’s rights: International and National Laws and Practice. Medical Research Council (2004). MRC Ethics Guide. Medical research involving children. Australasian Evaluation Society, (2002). Guidelines for the Ethical Conduct of Evaluations; British Association for Counselling and Psychotherapy (2004). Ethical guidelines for researching counselling and psychotherapy; National Children’s Bureau, UK (2011). Guidelines for research with young people; NSW Department of Community Services (2008). NSW Department of Community Services Research Ethics Guidance; NSW Law Reform Commission (2008). Young people and consent to health care. The National Academies (USA) (2004). The ethical conduct of clinical research involving children. Children’s Bioethics Centre, Murdoch Children’s Research Institute, Spriggs M (2010). Understanding consent in research involving children: the ethical issues. Family Support Program Performance Framework Service Provider Help Guide Page 44 of 57 1.2 United Nations (1989). Convention on the Rights of the Child. Western Australian Child Adolescent Service (revised 2009). Working with Youth. A legal resource for community based health workers. Assessing ethical issues and risks All ethics principles apply to both adult and child clients. This updated version of the FSP Ethics Framework highlights additional issues that providers should consider when assessing the ethical risks associated with collecting intermediate outcomes data from child clients. These additional issues for child clients include4: the capacity of the child or young person to understand what the data collection process entails; the capacity of the child or young person to give meaningful feedback. This risk can be managed by using age appropriate data collection methods and processes; protection and safety versus participation. Children are more susceptible to being affected by participating in research than adults—for example, feeling anxiety, fear of disapproval or failure—and their susceptibility will differ for individual children or young people. Yet children have the right to participate and have their view heard when this can be done without risks; possible coercion of children by parents, peers, service provider staff members or others to participate in data collection processes; the effect of a child’s stage of development on their ability to consent and understand and participate in data collection activities. For example, children at different developmental stages are likely to have different levels of understanding about how the research relates to their family; the effect of disadvantage on children’s response to research; and conflicting values and interests of parents / guardians and children. Individual service providers should always do a thorough risk assessment of the potential for any harm to participants prior to collecting client follow-up data, particularly intermediate outcomes. For each significant risk: gauge its probability and severity; assess the extent to which the risk can be minimised; determine if the research can be justified by potential benefits; and 4 National Health and Medical Research National Statement of Ethical Conduct in Human Research (2007); and DoCS research ethics guidance (2008). Family Support Program Performance Framework Service Provider Help Guide Page 45 of 57 1.3 determine how the risks can be managed. If necessary, the service should consult with relevant community groups such as Indigenous groups about ethical issues before following up clients who have left their service. Children’s right to participate FaHCSIA’s Performance Framework is intended to ensure that the experiences of clients can be used to improve services and ensure service quality. Possible benefits of involving children or young people (child clients) in giving feedback are increasing their skills, enhancing self-esteem and sense of connectedness with their community. The benefit for the FSP is that services will better meet the needs of child clients. The risks of involving children and young people in giving feedback on services should be balanced with a child’s right to participate in matters that affect them and the need for information from the child’s perspective about how to improve the quality of services aimed at children. The NHMRC National Statement says that “researchers must respect the developing capacity of children and young people to be involved in decisions about participation in research”5. The NHMRC National Statement on Ethical Conduct of Human Research and other authorities also point out that children may be vulnerable to exploitation during research as a result of the power balance in their relationships with the service and other adults. Providers must take care that participation is truly voluntary and not coerced. Australia is a signatory to the United Nations Convention on the Rights of the Child, which means service providers should comply with Articles 3 and 12 of the Convention (1989). Article 3 requires that in all actions concerning children, the best interests of the child must be the primary consideration. Article 12 requires that children who are capable of forming their own views should be granted the right to express their views freely in all matters affecting them, commensurate with their age and maturity. The rights and protection of children are governed by both Federal and State and Territory law. Persons below the age of 18 years are generally considered children. Under common law, a person under 18 has the legal capacity to consent to receive a service, provided the child or young person has sufficient intelligence and maturity to understand the nature of the service and any consequences in participating. FaHCSIA expects that parental permission should routinely be sought before a person under 18 years of age accesses an FSP service, however this may not be appropriate in all circumstances. In some jurisdictions, children may be able to give consent for health services where they are either over a statutory age (14 years to 16 years depending on the jurisdiction) or of sufficient maturity to be able to comprehend the procedure and give 5 National Health and Medical Research National Statement of Ethical Conduct in Human Research, 2007, chapter 4.2 Children and Young People, page 55. Family Support Program Performance Framework Service Provider Help Guide Page 46 of 57 informed consent.6 FaHCSIA recommends that service providers develop and implement policies to address service provision to children and young people under the age of 18 years. However, there is uncertainty about the legal position of involving young people in research, and case law on children’s competence is complex.7 In Australia, the NHMRC National Statement is the authority on issues on consent and participation in research by children. 2. Ethical principles for Family Support Program Services This section provides advice for Family Support Program providers about the ethical collection of client outcomes data. Service providers should always do a thorough risk assessment of the potential for any harm to clients, prior to collecting client outcomes data. For each significant risk the service provider should: gauge its probability and severity; assess the extent to which the risk can be minimised; determine if the research can be justified by potential benefits; and determine how the risks can be managed. If necessary, the service should consult with relevant community groups, such as Indigenous groups, about ethical issues before following up clients who have left their service. Information must be stored as required by the Privacy Act 1998. The following section details the general ethics principles and how they apply to the Family Support Program. Principle 1—Research merit and integrity Outcomes data should be collected using appropriate and sound methodology and researchers should be competent. If research does not have merit or integrity then it is unethical because of the waste of time and resources. Data should be collected in a way that means judgements / refinements to services are based on sound information. Research should be justifiable by its potential benefit—improving services. The outcomes data are collected according to a methodology specified for the FSP Performance Framework. The data play an important role in monitoring program outcomes and in fulfilling public accountability requirements. 6 Law Library Congress Australia (2007). Children’s Rights: International and national laws and practice. 7 NSW Law Reform Commission (2008). Young people and consent to health care, section 1.48. Family Support Program Performance Framework Service Provider Help Guide Page 47 of 57 1.1. Data should be collected by someone independent of the staff involved in directly providing the FSP service to the client. This will reduce the possibility of coercion and retain confidentiality. Indigenous Parenting Services ideally should use Indigenous workers to conduct interviews with clients. If this is not possible, then the researchers should have experience in working with Indigenous people and / or appropriate cultural training. 1.2. Providers whose clients come from special needs groups (for example, Indigenous, CALD backgrounds) may use alternative methods for collecting data, for example, face-to-face interviews or through key community informants. Providers will need to balance the amount of resources required to collect data from people from diverse backgrounds against getting views from a cross section of all program users. We suggest providers consult with relevant local groups about the most appropriate method to obtain feedback from clients who are part of special needs groups. 1.3. Service providers should have processes in place to respond promptly and fairly to complaints about the research process. 1.4. The service should collect outcomes data that are meaningful and related to substantive activities of the service. 1.5. Child clients have varying capacity to both understand what the data collection process entails and to give meaningful feedback. Service providers should manage this risk by using data collection methods and processes appropriate to the developmental stage of the child or young person. Broadly speaking8, for most child clients of secondary school age, methods that would be used with adults can be considered: for example, self-completion questionnaires, one-to-one interviews and focus groups; and for most child clients of primary school age, very formal or structured methods are less appropriate. For example, self-completion questionnaires are not generally appropriate for children under 12 years unless an appropriate level of support is available. 1.6. There is no lower age limit at which a child client can participate in outcomes data collection, as long as the appropriate methodology is used9. But to collect meaningful data from younger children—who are able to understand some relevant information and take part in limited discussion about their experiences of services—service provider staff or independent researchers should be suitably skilled, have allowed sufficient time to engage the child, and have access to dedicated resources. If these conditions are not met, it may be preferable to collect outcomes data from adults as a proxy for very young children, or not collect outcomes data at all. 8 UK National Children’s Bureau Research Centre (2011). Guidelines for research with children and young people, page 17. 9 UK National Children’s Bureau Research Centre (2011). Guidelines for research with children and young people, page 17 and ARACY Think Tank (2008). Involving children and young people in research. Family Support Program Performance Framework Service Provider Help Guide Page 48 of 57 1.7. When collecting outcomes data from child clients, service providers should: keep data collection processes brief and easy; aim to create an open and informal atmosphere; stress that there are no right or wrong answers; use short questions and simple language, avoiding abstract concepts; keep checking what the respondent means; ensure tools (length, format, content and language) are accessible given the developmental stage of the child and cognition. It may be necessary to have different versions for different ability groups; and pilot data collection tools. 1.8. Providers should make explicit in their policies and procedures how they will judge the child’s capacity to consent to participate and how they will inform the child client about the data collection process. Principle 2—Trustworthiness A distinct ethical dimension of counselling and psychotherapy is the trust placed by clients in practitioners and the sense of personal vulnerability that may be involved in the process. Identifying and responding to risks associated with outcomes research are basic ethical responsibilities for services. Where the service conducting the research is also the provider of services, the service should take steps to adequately protect clients’ interests and vulnerability in the way feedback is sought, the way responses are written up and how the findings are applied to improving services. Researchers should seek to maintain the highest possible levels of trustworthiness and integrity between themselves and those being asked for feedback. 2.1 The protection of personally sensitive information is an important ethical concern for all clients, but particularly for vulnerable clients or clients who have been in a counselling relationship. Honouring promises about confidentiality carries special ethical weight because it is central to maintaining trust. The standards and procedures to protect privacy should be as consistent as possible with those relevant to service provision and professional codes of conduct. The service should have a policy on the retention and storage of research data that covers: how to store responses securely; anonymity of responses; the duration of storage10; and 10 The Australian Code for the Responsible Conduct of Research (NHMRC, 2007) page 23, recommends that institutions store primary research data for a minimum of five years but qualify this by saying it depends on the type of data and also that researchers should retain primary materials for sufficient time to allow reference to these by other interested parties. Family Support Program Performance Framework Service Provider Help Guide Page 49 of 57 secure ways to dispose of data and access to databases and archives that are consistent with confidentiality requirements, legislation and privacy rules. 2.2 Where services are provided in partnership with other agencies, for example where a lead agency is directly responsible to FaHCSIA and other local agencies are contracted to provide early intervention, then lead agencies should consider what research information should be shared with contracted providers. Lead agencies should develop a policy on the ownership of the data and the form that it can be shared with delivery agencies, which clearly defines what is appropriate to report. Given the data is intended to help providers improve services, it is important that information about the delivery of specific programs be shared, but this should be balanced with maintaining confidentiality for small delivery agencies. A reasonable balance may be to report across all contracted services and not by each provider. 2.3 In small communities (including Indigenous communities), staff and clients may have “dual relationships”, where staff and clients commonly meet in situations outside the service, a client may feel that feedback is not sufficiently confidential and that there is a risk that personal information will be made known to others. If deemed necessary, service providers should contract telephone interviews to a service based in other locations. Service providers facing the same dilemma could work together to conduct the interviews on each other’s behalf. Alternatively, if the service is part of a larger group with sites in other locations the data could be collected by staff from another site. 2.4 When a service provider collates and reports its own data, a conflict with the ethical obligation to protect confidentiality may arise if the intended audience of the report includes staff within the service. Information collected through openended questions may put staff in a position to deduce the identity of individual clients. In such situations, care should be taken to protect people’s identity by, for example, conflation of several experiences into one representative account, or by explicitly producing a fictional account that conveys the salient aspects of research findings. 2.5 Where a parent has consented on behalf of a child, the parent should not have access to what the child has said because a child may be psychologically or even physically harmed if confidentiality is breached. Children’s trust in the service provider may be undermined if their responses are not kept confidential and they may choose not to receive other services in the future. When a parent refuses to give consent unless given access to the child’s response, the child should not participate. Family Support Program Performance Framework Service Provider Help Guide Page 50 of 57 2.6 There is a natural power imbalance between those collecting outcomes data (adults) and child clients, which could affect the quality of data collected. Steps to minimise the impact are11: create a relaxed atmosphere prior to collecting data e.g. have an informal chat before an interview or warm up activities at the start of a focus group; ensure data collection activities are not seen as tests and that all responses are equally acceptable, valid and welcome; and dress informally and avoid formal room layouts. Principle 3—Respect for the rights, privacy, dignity and entitlements of your clients or program clients Each person must be recognised as having inherent value and everyone has a fundamental right to privacy. Each person has the right to autonomy—to determine his or her own path in life. It follows that a person (including children) must be given the opportunity to decide whether they are involved in research, and that consent must be free, informed and given prior to the research. Before including a child or young person, service providers must establish that there is no reason to believe such participation is contrary to the child’s or young person’s best interest. This principle incorporates respect for a person (including child clients) to make their own choices, but also includes an obligation to protect those not sufficiently autonomous or mature to make their own choices. The cultural and religious heritage of participants and their communities must be respected and appropriate consultation occurs. Free consent is not forced, coerced or obtained by improper inducements. Informed consent is based on an understanding of what is to be done, why and what will happen with the results. Consent must be obtained before the research is begun. 3.1 Consent for follow-up for the collection of intermediate outcomes should initially be obtained at the time the client or parent / guardian commences service. However, client consent should be seen as a process, where consent is reviewed at key points, for example, when arranging and conducting interviews. At this time, the interviewer should also ensure the client understands that consent may be withdrawn at any time during the interview without consequences. These steps are particularly important for child clients. 3.2 Providers should obtain the consent of one parent or guardian of child clients, along with assent (or consent, if appropriate) of the child or young person to 11 UK National Children’s Bureau Research Centre (2011). Guidelines for research with children and young people, page 15. Family Support Program Performance Framework Service Provider Help Guide Page 51 of 57 participate in outcomes data collection processes. Agreement from a child to participate in outcomes data collection processes should be obtained at a separate time to consent to participate in service and checked regularly. 3.3 Providers must make a judgement whether or not a child or young person has the capacity to assent or consent. The NHMRC National Statement and other authorities do not specify a specific age where a child can be classified as having the capacity to assent or consent to participate in research. When working with family breakdown situations, it may be necessary to get the consent of both parents except where: one of the parents is not involved in the child’s life; or the Family Court has made a residence or specific issue order stipulating that one parent has sole responsibility for the child’s day-to-day care, welfare and development.12 3.4 Assessing a child or young person’s capacity to assent / consent is a judgement call for service providers, as maturity and intelligence varies from child to child. A child client’s capacity to participate and assent / consent also depends on the kinds of approaches and methods you intend to use to collect information. The National statement gives some guidance about different levels of maturity and of the corresponding capacity to be involved in research: a) infants, who are unable to take part in discussion about the research and its effects; b) young children, who are able to understand some relevant information and take part in limited discussion about the research, but whose consent is not required; c) young people of developing maturity, who are able to understand the relevant information but whose relative immaturity means that they remain vulnerable. The consent of these young people is required, but is not sufficient to authorise research. Consultations with FSP service providers indicates that children between the age of eight to 12 years are likely to fit in this category; and d) young people who are mature enough to understand and consent, and are not vulnerable through immaturity in ways that warrant additional consent from a parent or guardian. 3.5 Special circumstances exist where parental or guardian consent may not be appropriate or needed. In all cases, a young person must be mature enough to: understand and consent; not be vulnerable through immaturity in ways that would warrant additional consent from a parent or guardian; and 12 Western Australian Child and Adolescent Health Service. Working with Youth a legal resource for community workers, page 15. Family Support Program Performance Framework Service Provider Help Guide Page 52 of 57 the research involves no more than low risk. 13 Circumstances where parental consent may not be needed14 include: when a young person is estranged or separated from his / her parents or guardian, or living independently e.g. young people under 18 years who are living in a de facto relationship or married; young mothers under the age of 18 years; or when it would be contrary to the best interests of the young person to seek parental consent—for example, if parents are neglectful or abusive.15 In this instance, another adult or agency with responsibility may be able to provide consent. 3.6 When judging a child’s ability to willingly participate, service providers should pay attention to the child’s vulnerability. Consideration should also be given to whether the child is able to understand the nature of outcomes data collection processes, the likely use of their feedback, and how it relates to them and their family. Children suffering from anxiety are likely to be at greater risk from participating in the data collection process and should be excluded from participating. 3.7 It is sometimes appropriate for adults to provide feedback on behalf of a child client. Getting feedback from adults on behalf of their children is often easier from a practical and ethical viewpoint, however adults are often not reliable informants about children. Parents or guardians may also have conflicting values and interests—for example, where a family is in conflict or crisis. Whether it is appropriate for adults to provide feedback on behalf of child clients is closely linked to a young person’s capacity to assent or consent. The Handbook for HREC and Researchers advice is that: parents can give information about their child without the child’s permission16 when the child is too young or does not have cognitive capacity to speak for her or himself. This depends somewhat on the kind and complexity of the data collection methods. The information is something a child would not have knowledge about. it is not appropriate when the parent thinks the child or young person would be unwilling to participate. 13 National Health and Medical Research National Statement of Ethical Conduct in Human Research, 2007, section 4.2.8, page 56. 14 Spriggs M (2010). Understanding consent in research involving children: the ethical issues. Children’s Bioethics Centre. 15 NSW DoCS (2008). Research ethics guidance, page 15. 16 Spriggs M (2010). Understanding consent in research involving children: the ethical issues. Children’s Bioethics Centre, Murdoch Children’s Research Institute, page 6. Family Support Program Performance Framework Service Provider Help Guide Page 53 of 57 3.8 For providers of Indigenous Parenting Support Services, the collection of follow-up client data must respect the values, sensitivities and culture of Indigenous clients. Indigenous Australians have experienced little direct benefits in the past from participating in research and, as such, it is important to inform the local community about the results of follow-up research and consult about the best ways to give feedback, which may be written or verbally. 3.9 Researchers should identify themselves to potential informants and advise them of the purpose of the research and identify the service commissioning / conducting the research. 3.10 Some FSP clients are considered vulnerable because they are socially and economically disadvantaged, or may be in conflict and experiencing emotional distress, or in difficult situations such as domestic violence. These groups may use FSP services because they are more accessible than other services. When seeking consent, particular regard should be given to addressing potential ethical issues for vulnerable people. These are: fear of being identified and reluctance to give written consent. In these cases, verbal consent should be accepted; fear of losing access to services because of negative feedback. This concern should be addressed in information materials and / or when renewing consent; offering incentives: it is generally not appropriate to offer incentives as a recruitment method; and poor literacy skills mean that the person is not able to read or comprehend information on consent forms or formally indicate their consent using a signature. Information about the research should be explained verbally, covering all aspects of the research and verbal consent accepted. Consent should be confirmed by the interviewer at the time of the follow-up interview. 3.11 Services should be mindful of circumstances in which a commitment to confidentiality may conflict with other ethical considerations, particularly where there is potential for serious harm to the person or child client or others. Where a researcher may discover evidence of criminal activity or serious wrongdoing they have ethical and legal obligations to reduce further harm and fulfil obligations under the law or professional codes of conduct; however these obligations may conflict with confidentiality agreements. For Family Support Services, ethical issues are likely to be around how a service provider manages any disclosure of malpractice, abuse or criminal behaviour. Examples include: cases where an interviewee reveals illegal activity, such as domestic or child abuse, or other circumstances where a child is at risk of harm or breaching a court order. If considered a possibility, the service should warn the person about any legal limitations to confidentiality and specifically exclude confidentiality in those matters. Research protocols should cover how to deal with such disclosures, for example, explicitly reminding the person about the Family Support Program Performance Framework Service Provider Help Guide Page 54 of 57 terms of their consent, if needed during the interview. In the case of child clients, service providers must make explicit the circumstances under which the paramount welfare of the child overrides confidentiality in their instructions to independent researchers or staff. Where a child is being abused, the information should be passed on to the relevant authorities rather than being dealt with by the researcher or the service provider organisation, even when the person is a practitioner; confidentiality versus reporting of possible misconduct by a staff member of the service provider, in a context where there are few independent qualified persons to investigate, and where the staff member against whom the complaint is being made is a colleague of the interviewer. In this situation the interviewer should inform the person of his or her rights to report the matter to appropriate authorities, and also details of how to do so (complaints protocols). Adults have the right to choose whether or not to make a complaint—it is not the role of the researcher to act on the person’s behalf. For child clients, the researcher should pass on the complaint to the responsible managers of the service. Principle 4—Beneficence (doing good) The service is responsible for ensuring the client does not come to harm due to participating in the research. The design of the research should minimise risks of harm to clients, clarify the benefits of the research and any risk of harm, and ensure the welfare of clients in the data collection process. For the FSP clients, benefits will be for other service users more generally, rather than the individual person or child or young person providing feedback directly. 4.1 There is an ethical responsibility to ensure interviewees do not come to harm because of the interview process. Follow-up interviews may trigger unwanted emotions or stress, or a client may reveal the need for further assistance during the follow-up interview. Services should assess whether this is a potential risk for the specific group and individuals being followed-up, and consider providing additional support or remedial services for clients in need. 4.2 Service providers need to balance their duty of care and the safety and protection of the child against the benefits of participating for the child and improving services for other children. Children are more susceptible to being affected by participating in research than adults—for example, feeling anxiety, fear of disapproval or failure—and susceptibility will differ for individual children or young people. In addition, children at different developmental stages are likely to have different understanding about how the research relates to their family. Service providers need to assess the potential risks, and consider if these might be addressed through appropriate processes or if feedback should not be collected from child clients. Family Support Program Performance Framework Service Provider Help Guide Page 55 of 57 4.3 Service providers should also consider the potential coercion of children by parents, peers, service provider staff members or others to participate in data collection processes, and the effect a child’s stage of development will have on his or her ability to consent, understand and participate in data collection activities. 4.4 The researcher doing the interviews has no specific responsibility to assist a client (including a child client) who requires additional assistance. The service conducting interviews should develop protocols around actions a researcher should take during and after the interview if confronted by a client requiring further assistance (see also 3.10). The service could also consider specific training for researchers to manage such situations. 4.5 The circumstances in which outcomes data is collected from child clients should provide for the child or young person’s safety, emotional and psychological security and well-being. 4.6 When collecting outcomes data from a child client in person, it is prudent practice for another adult to be present during interviews, preferably with the same gender as the child being interviewed.17 Principle 5—Justice The benefits and burdens of the research process should be distributed fairly and the process of recruiting clients be fair. Indigenous-specific services should reference the ‘NHMRC, Values and Ethics: Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research (2003)’ when applying this principle. 18 Vulnerable children (such as those in out of home care) have often had a high level of scrutiny and been involved in assessments and interviews. Consideration must be given to the balance of benefit and the burden placed on children or young people, even when the research will have long term benefits for service quality. 5.1 Services should use fair and defensible processes to select or exclude clients, taking into account the objectives of collecting outcomes data. 5.2 Potential effects of differences and inequalities in society related to race, age, gender, sexual orientation, physical and intellectual disability, religion, socioeconomic or ethnic background, should be taken into account when considering how follow-up information is collected. 17 NSW DoCS (2008). Research ethics guidance, page 17 18 NSW Office of the Children’s Guardian, Information about conducting research issues paper, page 7 Family Support Program Performance Framework Service Provider Help Guide Page 56 of 57 5.3 Indigenous Australians have experienced little direct benefits in the past from participating in research and as such it will be important to share the results of the research and / or any changes needed to service delivery with the community in a manner approved by community elders or relevant community groups. 5.4 Ensure all clients are treated respectfully and with adequate cultural sensitivity. 5.5 Child clients have the right to participate in matters that affect them, and it is important to collect information about services from the child’s perspective so the quality of services can be improved. Any risk from participation must be minimised and the provider should consider whether inclusion is justified if the child is from a vulnerable group. Providers should facilitate the participation of child clients in outcomes data collection by gaining assent or fully informed consent (where appropriate). Where a child client is not in receipt of direct services, then he or she should not be included in outcomes data collection processes. Family Support Program Performance Framework Service Provider Help Guide Page 57 of 57