Chapter 5: Palin Parent-Child Interaction Frances Cook and Willie Botterill Michael Palin Centre for Stammering Children London Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Introduction • Target population: children up to 7 years of age • Principles of program: – Understand child’s needs – Encourage ways parents already use to support natural fluency – Parents develop ability to deliver therapy at home – Discuss stuttering openly Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Introduction (cont.) • Goals of program: – Establish parental understanding, knowledge, skill, and confidence in managing stuttering – Reduce family anxiety about stuttering – Reduce stuttering to within normal limits (<3% syllables stuttered) Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Multifactorial Theoretical Basis • Onset of stuttering has a physiologic base affecting the delicate, complex balance of linguistic and motor skill development. – Genetics – Neurophysiologic factors – Speech motor skills – Communication environment: interaction styles Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Palin Center Multifactorial Framework Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Empirical Basis • Phase 1 investigations (small studies to examine potential benefit of treatment) – Matthews, Williams, & Pring (1997) single-case study of 4-year-old-male • Number of words stuttered measured at 6 weeks before, during, and after therapy • Reduction in stuttering during therapy and maintained at post-therapy measurement intervals Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Empirical Basis (cont.) • Millard, Nicholas, & Cook (2008) – 6 children under 5 years of age – At least 12 months post-onset – Number of words stuttered measured at 6 weeks before, during, and after therapy, and 1x/month for 1 year – Significant reductions in stuttering of 4 children by end of the Consolidation Phase (6 weeks post-treatment) – Stuttering in 5th child* decreased with one parent – Stuttering in 6th child* decreased by the end of follow-up period *Both received direct therapy during the 1-year follow-up. Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Empirical Basis (cont.) • Phase 2 investigations (how treatment works, which clients are suitable, amount of treatment needed) – Nicholas, Millard, & Cook (2003) findings • Parents make changes during Palin PCI. • Changes can be maintained over time. • Fathers significantly reduced requests for information and reduced their turn length. • Mothers reduced number of instructions. – Millard, Edwards, & Cook (2009) findings • 6 months post-treatment: reduction in expressive language scores of children with above average initial scores • Interpreted to support fluency-language trade-off Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Empirical Basis (cont.) • Phase 2 investigations (cont.) – Millard (2002) qualitative study of indicators of improvement based on parent feedback • Child outcomes • Reductions in stuttering frequency and severity • Reductions in child’s anxiety/frustration/concern • Increases in child’s confidence in speaking • Increases in turn-taking skills • Parent outcomes • Reductions in concern • Increases in confidence in managing stuttering • Positive impact on the family Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Empirical Basis (cont.) • Phase 3 investigations (large-scale efficacy research) – Combined findings of Millard, Edwards, & Cook (2009) and Millard, Nicholas, & Cook (2008) • Two-thirds of children showed reduction in stuttering in Clinic and/or Consolidation periods; no direct treatment needed Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Empirical Basis (cont.) • Phase 4 investigations (treatment effectiveness) – Early evidence that nonspecialist speech-language pathologists (SLPs) effectively implement Palin PCI – Matthews, Williams, & Pring (1997) nonspecialist clinician – Crichton-Smith (1002) replicated it with 4-year-old child. Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Empirical Basis (cont.) • Phase 5 (study of cost effectiveness, client satisfaction, and effect on quality of life) – Reflected in the phase 2 and 3 studies Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Practical Requirements • Three-day training workshop • Assessment skills in speech, language, social communication • Collaboration skills to work with families • Technical equipment – video camera/monitor/tripod • Sufficiently large clinic room • Requisite consent forms and documentation forms Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Practical Requirements (cont.) • Time requirements in first 3 months – Assessment/analysis = 90 minutes – Parent interview = 90 minutes – Treatment in clinic = six weekly 1-hour sessions – Consolidation phase = 6 weekly 10-minute contacts by phone, letter, or email • Subsequent time requirements – Clinic visit every 3 months for 1 year Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Key Components • Multifactorial assessment • Stage 1: Within-clinic sessions • Stage 2: Home-based consolidation period • Stage 3: Review session and clinical decision making • Monitoring only phase Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Key Components (cont.) • Multifactorial assessment – Evaluate child’s strengths and vulnerabilities • Receptive and expressive language • Articulation • Speech rate • Social communication skills – Detail case history via parent interview • Developmental, familiar, psychosocial, health, and personality factors influencing child’s stuttering • Parent rating scales Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Key Components (cont.) • Stage 1 – Initial session: Setting up Palin PCI • Open dialogue about stuttering and fluency • Establish expectation of joint responsibilities in PCI • Review assessment findings and address questions • Set up Special Time (ST) contracts (5-minute playtime each parent has with child 3-5 times per week) • Parent homework sheets to be completed after ST • Signing of video consent forms and taping of 5-minute interaction of child with each parent separately Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Key Components (cont.) – Sessions 2-6: Review ST and homework sheets, record new 5-minute video with each parent implementing their interaction targets • View video of parent-child interactions to identify interaction styles supporting fluency • Useful clinician questions: What is going well? What else can you see that is helping? What difference does that make? • Parents identify new goal for upcoming week’s ST Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Key Components (cont.) • Stage 2: Consolidation period – Introduced in 6th session of stage 1 – Parents continue treatment at home for 6 weeks • ST and homework sheets • Develop child’s confidence • Promote turn taking in family • Manage other relevant issues • Send homework sheets to SLP weekly • SLP monitors progress/responds • Review session at clinic at end of 6 weeks Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Key Components (cont.) • Stage 3: Review session – Parents complete rating scales – Discuss ST and other matters – Parents discuss changes they have made and effects – Formal fluency analysis from recorded speech samples – Parent-child interaction video made and viewed with both parents • Monitoring only phase Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Assessment Methods for Ongoing Decision Making • Initial assessment – Analyze recorded speech sample for percent syllables stuttered (%SS); document type and duration of stutters – Interview to gauge degree of child’s concern – Video record each parent/caregiver playing with child – Detailed case history from both parents – Parent rating scales to examine knowledge, concern, and confidence in managing child’s stuttering Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Assessment Methods for Ongoing Decision Making (cont.) • Progress monitored throughout the initial 6-week period and the subsequent 6-week consolidation period • Therapy session no longer indicated when stuttering is <3% SS in clinic and home and/or parents are no longer concerned • Follow-up data collected every 6-12 weeks for up to a year after treatment Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Tailoring Palin PCI to the Individual Child and Family • Consideration of personal/cultural factors • SLP works with family to identify what works for them. • Parents are not asked to use new style of interaction. • Professional interpreters assist in services and advise on cultural considerations. • If both parents are not available, the program proceeds with the available parent. Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Case Study • Onset at 2 years, 5 months • Monitored by SLP for 18 months; patchy fluency • Stuttering increased and confidence decreased over last 6 months • Assessment by Palin at 3 years, 8 months • Late talker with limited vocabulary • “Never spoken clearly and sounds weren’t right” • Parent increasingly anxious • Maternal family history of stuttering Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Case Study (cont.) • Initial assessment – 6.4% SS – Repetitions of up to 12 times – Prolongations lasted up to 6 seconds + facial tension – Delayed speech and language development – Mismatch in speech and language skills – 18 months since onset – Increase in severity over time – Maternal family history of persistent stuttering – Parental anxiety – Sensitive temperament and reactivity to errors – Prognosis: Moderate to high vulnerability for persistence Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Case Study (cont.) • Outcome after 6-week consolidation period: – Fluency had increased. – Parents were pleased with progress. – Parents were more confident in managing child’s fluency Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins Future Directions • Development of hypotheses regarding which children are likely to respond to Palin PCI • Further research needed to: – Understand the mechanisms by which Palin PCI reduces stuttering – Identify the components of the program that are essential – Document effectiveness in a range of nonspecialist settings Copyright © 2010 Wolters Kluwer Health | Lippincott Williams & Wilkins