Dementia End of Life Conference
Thursday, 12th September 2013, 10.00 am – 4.00 pm
Venue: Arundel Suite, Crowne Plaza Hotel, Crawley, RH11 7SX
AGENDA
9:30 – 10:00
Registration & Refreshments
Welcome & Introductions
10:00 – 10:05
David Clayton-Smith, Chairman
Kent Surrey Sussex AHSN
Important clinical conversations for those
living with dementia –
is advance care planning appropriate?
Dr Catherine Gleeson, Consultant in Palliative Medicine,
St Catherine’s Hospice
10:05 – 10:25
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10:25 – 10:45
Defining optimal supportive and palliative care for people with
dementia;
Priorities when planning future care in dementia – carer and
patient perspective;
Clinician’s role in facilitating discussion of priorities –
discussion of timing and how to introduce important topics;
Preparing for end of life care.
Developing end of life care education
for people with dementia
Laura Myers, Lecturer Practitioner, St Catherine’s Hospice
Gold Standards Framework - enabling care home
residents to live well until the end of their lives
Jane Berg, Head of Education Princess Alice Hospice
10:45 – 11:05
Princess Alice Hospice is a Regional training Centre for the GSFCH
programme. The care home training programme is an organisational
approach to ensure that the special relationship often built up with
residents can be continued to the end of life and the support offered
for the person to die with dignity at home if they wish.
11:05 – 11:20
Refreshment break
11:20 – 11:40
Carers perspective
Marion Langton
Working together to improve
end of life care for people with dementia
Facilitated by Eleanor Langridge, End of Life Project Manager,
Brighton & Hove CCG
The session will look at what actions people and organisations need to
take to increase the number of people with dementia getting what they
want, as far as is possible, at the end of their life. Delegates to work in
groups and consider the following key questions:
11:40 – 12:30
12:30 – 13:45
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What patient stories/examples do we currently have that
demonstrate people with dementia dying in the right place
with no last minute acute transfers from care homes?
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What lessons can we learn from these examples? (What key
pathway improvements need to be made to reduce emergency
admissions from care homes?
Lunch
(The Cube Restaurant)
Dying to talk: How can people with dementia
achieve real choice in their care if
they are never asked?
Dr Jayne Chidgey-Clarke, Director of Training & Development,
National Council for Palliative Care
13:45 – 14:05
This session will look at reasons why early discussions with people
living with dementia or mild cognitive impairment are vital to ensure
good quality end of life care, choice and effective use of resources.
Drawing on evidence and practical examples of training to support
compassionate conversations about end of life care and advance care
planning, it will offer practical ways forward to improve dementia care
towards end of life, in all care settings, and to help avoid unnecessary
hospital admissions.
PEACE project
(Proactive Elderly Persons’ Care Plan)
14:05 – 14:25
Dr Elena Mucci, Consultant Physician & Geriatrician,
East Sussex Healthcare NHS Trust
A document to help Health Care Professionals deliver the best care to
frail, older people with life-limiting illnesses (such as those with
Parkinson's, Advanced Dementia and Cancer) who are anticipated to
be in the last year of their life and reside in a care home. The PEACE
plan has increased the number of people who spend their last days in
the familiarity of their care home.
SECAMB and end of life patients with dementia
14:25 – 14:45
Elizabeth Davis, Consultant Clinical Quality,
South East Coast Ambulance Service
An interactive discussion of issues and potential joint working
14:45 – 14:55
Refreshment break
Working with care homes in Kent
Linda Caldwell, Senior Associate,
Kent & Medway Commissioning Support Unit
14:55 -15:15
Drawing on the experience of the multi-agency approach to working
with care homes in Kent to improve the quality of care, including end
of life care
Good death –
Palliative care and helping people die well at home
Steven Parker, Client Services Director, Home Group
15:15 – 15:35
Outlining Home Group’s work on the ‘Good Death’ palliative care pilot,
which demonstrated how providers of housing and support services
can provide palliative care and aid in helping older people die well at
home.
The ‘Good Death’ pilot recently won the Innovation award at the 2013
Independent Specialist Care awards.
15:35 – 15:45
Research wrap up & close
Kay Mackay, Director Service Improvement, KSS AHSN