National Disability Insurance Scheme Programme National Disability Insurance Scheme Transition Personal Helpers and Mentors Operational Guidelines 2015–16 July 2015 Preface The Australian Government Department of Social Services (DSS) has a suite of Programme Guidelines which provide information about each Programme that provides grants funding, and the Activities that contribute to that Programme. They provide the key starting point for parties considering whether to participate in a Programme and form the basis for the business relationship between DSS and the grant recipient. These Operational Guidelines are to assist organisations delivering services under the Persona Helpers and Mentors Activity, within the National Disability Insurance Scheme Transition component of the National Disability Insurance Scheme Programme. They should be read in conjunction with the National Disability Insurance Scheme Programme – National Disability Insurance Scheme Transition Guidelines. DSS reserves the right to amend these Operational Guidelines, and other documents in the Programme Guidelines suite, from time to time by whatever means it may determine in its absolute discretion and will provide reasonable notice of these amendments. Contents 1 Programme overview - National Disability Insurance Scheme (NDIS) ................................... 6 2 Programme component overview - National Disability Insurance Scheme Transition .......... 6 3 Personal Helpers and Mentors (PHaMs) .................................................................................... 7 3.1 PHaMs overview ........................................................................................................................... 7 3.2 PHaMs aims and objectives ........................................................................................................... 7 3.3 Clients / target groups................................................................................................................... 8 3.3.1 Client eligibility ................................................................................................. 8 3.3.2 Additional client eligibility criteria for specialist PHaMs services: ...................... 8 3.3.3 Ineligible persons ............................................................................................. 9 3.3.4 Target groups .................................................................................................. 9 3.3.5 How to access PHaMs services ..................................................................... 10 3.3.6 Fees .............................................................................................................. 10 3.3.7 What clients can expect ................................................................................. 10 3.3.8 Client rights and responsibilities ..................................................................... 11 3.3.9 Exiting PHaMs ............................................................................................... 11 3.4 Service delivery and eligible and ineligible PHaMs activities ................................. 12 3.4.1 Team approach to service delivery ................................................................ 13 3.4.2 Mandatory caseloads for PHaMs teams......................................................... 15 3.4.3 Duration and intensity of support.................................................................... 15 3.4.4 Individual Recovery Plans .............................................................................. 16 3.4.5 Mental Health Crisis Response ...................................................................... 16 3.4.7 Supporting families and carers....................................................................... 17 3.4.8 Family-sensitive services ............................................................................... 17 3.4.9 What PHaMs cannot provide ......................................................................... 17 3.4.10 Eligible activities .................................................................................................. 17 3.4.11 Ineligible activities ................................................................................................ 18 3.4.12 Service coverage areas ....................................................................................... 18 3.4.13 Funding for PHaMs .............................................................................................. 19 3.5 Links and working with other agencies and services ............................................. 19 3.5.1 Local coordination and collaboration .............................................................. 19 3.5.2 PHaMs Employment services ........................................................................ 20 3.5.3 Partners in Recovery ..................................................................................... 20 3.5.4 Interpreting services ............................................................................................... 20 3.6 Special requirements for PHaMs ........................................................................... 21 3.6.1 PHaMs practice principles.............................................................................. 21 3.6.2 National Standards for Mental Health Services .............................................. 21 3.6.3 Compliance with Relevant Legislation ............................................................ 21 3 3.6.4 Privacy and complaints handling .................................................................... 21 3.6.5 Incident reporting ........................................................................................... 22 3.6.6 Volunteer worker support ............................................................................... 22 3.6.7 PHaMs promotional products ......................................................................... 23 3.7 Activity performance and financial reporting .......................................................... 23 3.7.1 Activity performance reporting ....................................................................... 23 3.7.1 Financial reporting ......................................................................................... 24 4 Contact Information ................................................................................................................... 24 Glossary ............................................................................................................................................... 25 Attachment A: PHaMs Practice Principles ...................................................................... 28 Attachment B: Eligibility Screening Tool and Client Data ................................................. 33 What is the EST .............................................................................................................. 33 Nine life areas ................................................................................................................. 33 How to use the EST?....................................................................................................... 34 Informed consent ............................................................................................................. 35 Consent to provide data to DSS ...................................................................................... 35 Attachment C: Client transfers, turning away referrals and exiting clients ........................ 36 Turning away referrals ..................................................................................................... 39 Exiting clients .................................................................................................................. 39 Attachment D: The PHaMs team and roles ...................................................................... 40 Personal qualities ............................................................................................................ 40 Roles ............................................................................................................................... 40 Attachment E: Individual Recovery Plans (IRP) ............................................................... 45 IRP principles .................................................................................................................. 45 Developing an IRP........................................................................................................... 45 Key elements of an IRP ................................................................................................... 45 Attachment F: Individual Recovery Plan SAMPLE ........................................................... 47 Attachment G: Organisational cultural competence ......................................................... 52 Definition of cultural competence ..................................................................................... 52 Culturally competent services .......................................................................................... 52 Organisational cultural competence................................................................................. 52 Attachment H: Incident Report Form ............................................................................... 54 Attachment I: Using the Personal Helpers and Mentors logo ........................................... 56 PHaMs logo and branding instructions ............................................................................ 56 PHaMs - using the logo ................................................................................................... 56 Attachment J: PHaMs services operating in NDIS sites ................................................... 59 Attachment K: PHaMs services operating in an NDIS My Way Site ................................. 61 4 5 1 Programme overview - National Disability Insurance Scheme (NDIS) The Department of Social Services (DSS) works to provide improved independence, participation and lifetime wellbeing for people with disability, people with a mental illness and their carers. The NDIS intends to ensure people with disability are supported to participate in and contribute to social and economic life to the extent of their abilities. People with disability and their carers will have certainty that they will receive the individualised care and support they need over their lifetime. The NDIS aims to improve the wellbeing and social and economic participation of people with disability, and their families and carers, by building a National Disability Insurance Scheme that delivers individualised support through an insurance approach. This Programme also includes existing supports that are transitioning in to the NDIS in a phased approach as well as services to support the market, sector and workforce to adjust to the NDIS environment. 2 Programme component overview - National Disability Insurance Scheme Transition The NDIS is the new way of providing individualised support for eligible people with permanent and significant disability, their families and carers. The changes that are required to existing disability support systems are significant. Arrangements are being made to ensure the NDIS can be introduced gradually, ensuring a smooth transition for people with disability and support providers. The NDIS Transition component supports the market, sector and workforce transitioning to the NDIS environment by funding eligible organisations that provide: early intervention service, information and support to eligible children with a disability, and their family and carers short-term or immediate respite to carers of people with severe or profound disability and respite services to young carers at risk of not completing secondary education outside school hours care for teenagers with disability Australian Disability Enterprises assisting supported employees, and support services for people whose lives are affected by mental illness (including Personal Helpers and Mentors services). The NDIS Transition component aims to manage the transition of existing activities identified to ensure: existing clients are sensitively transitioned into the NDIS in line with the full rollout of the Scheme services and service providers are transitioned gradually to the NDIS in line with the full rollout of the Scheme continuity of service throughout trial sites for clients that cannot access individualised packages under the NDIS, and 6 an effective framework for transitioning the information, linkages and capacity building elements of transitioning programmes to provide systemic-level support. The NDIS will support choice and control by providing needs-based, individualised funding to be used in a market-based environment. This will be a large shift for providers and clients currently delivering and receiving services under transitioning programmes. In particular, over time, there will be a move away from grant and block-funded one-size-fits-all services towards a purchaser/provider model individually funded by the choice of consumers. While there will be some provision for information, linkages and capacity building as well as individually funded services, wherever possible disability services will be provided in line with this new approach. All grant recipients funded under the NDIS Transition programme will, therefore, be required to work closely with DSS and the NDIS to make the shift to this new model. 3 Personal Helpers and Mentors (PHaMs) 3.1 PHaMs overview PHaMs provides increased opportunities for recovery for people aged 16 years and over whose lives are severely affected by mental illness, by helping them to overcome social isolation and increase their connections to the community. Clients are supported through a recovery-focused and strengths-based approach that recognises recovery as a personal journey driven by the client. PHaMs workers provide practical assistance to people with mental illness to help them achieve their personal goals, develop better relationships with family and friends, and manage their everyday tasks. N.B. Funding for PHaMs is gradually transitioning to the National Disability Insurance Scheme. PHaMs providers located in NDIS sites have requirements in addition to those outside NDIS sites. These are detailed in Attachments J and K. 3.2 PHaMs aims and objectives PHaMs aims to improve the independence, participation and lifetime wellbeing of people severely affected by mental illness, including building personal resilience and supporting them to sustainably manage the impacts of their illness. The aims of the PHaMs service model are to: support recovery for people severely impacted by mental illness reduce their social isolation, and improve their employment outcomes. This is achieved by providing intensive one-to-one support to people severely impacted by mental illness to increase: access to appropriate support services at the right time personal capacity, confidence and self-reliance the ability to manage daily activities, and community participation (both social and economic). 7 3.3 Clients / target groups 3.3.1 Client eligibility To be eligible for PHaMs, persons must: be aged 16 years and over (except for remote PHaMs, which may accept clients of any age) have a mental illness (a diagnosis is not required) experience severe functional impairment because of their mental illness (denoted by a score of 3 or more on the functional assessment section in the Eligibility Screening tool, except for remote services where the functional assessment may not be appropriate) be willing to participate in the service voluntarily and able to make an informed decision to participate be willing to comply with health and safety policies of the service agree to address any dual-diagnosed/comorbid drug and alcohol issues during the course of participation in PHaMs reside in the coverage area of the PHaMs service where they are seeking support (unless homeless or seeking support from a remote PHaMs service) not be restricted in their ability to fully and actively participate in the community because of their residential settings (e.g. prison or a psychiatric facility) not be receiving non-clinical community support similar to PHaMs through state or territory government programmes. Mainstream PHaMs services may assist up to 10 per cent of clients from outside their nominated coverage areas without seeking DSS approval. Clients may also transfer from one service to another if they move to another area or state, or if they are having difficulties achieving their goals with the current provider, for example where the current provider does not have staff of the appropriate age or gender. PHaMs providers may encourage PHaMs clients to seek medical assistance through clinical mental health services if they are not accessing treatment, but may not exclude clients who prefer not to. PHaMs uses a functional assessment rather than clinical diagnosis to determine the impact of mental illness on the client’s life. There is a functional assessment section in the Eligibility Screening Tool (EST), specifically developed by DSS, which looks at nine life areas (see Attachment B: Eligibility Screening Tool and Client Data for further information). Funded providers are required to complete an EST for all potential clients, to determine their eligibility for the service and to assess the extent to which their mental illness is impacting on their capacity to function in the community. 3.3.2 Additional client eligibility criteria for specialist PHaMs services: For PHaMs Employment Services a person must: be in receipt of the Disability Support Pension or other government income-support payment be engaged, or willing to engage, with an employment service include goals relating to employment in his/her Individual Recovery Plan. 8 For Remote Services – organisations may also work intensively with community and family members as an appropriate way of supporting people with a mental illness, and to build local capacity to respond to people with mental illness. PHaMs Targeted Services for Vulnerable Groups – some PHaMs providers are funded to target high-need, vulnerable groups within the community. These vulnerable groups include Indigenous Australians, homeless people and humanitarian entrants. Arrangements for delivery of these services, including targeting, are negotiated on a case-by-case basis with each funded organisation. To be eligible to access support from a targeted service, a person must be within the prescribed target group for the relevant service type: Indigenous – a person, who is of Aboriginal or Torres Strait Islander descent, identifies himself or herself as an Aboriginal person or Torres Strait Islander, and/or is accepted as such by the Indigenous community in which he or she lives. Humanitarian Entrants – people who hold, or have held, a humanitarian visa. Homeless – there are three kinds of homelessness: o Primary homelessness, such as sleeping rough or living in an improvised dwelling o Secondary homelessness including staying with friends or relatives and with no other usual address, and people staying in specialist homelessness services, and o Tertiary homelessness including people living in boarding houses or caravan parks with no secure lease and no private facilities, both short and long-term. 3.3.3 Ineligible persons People who are not eligible for PHaMs services are: those who have a mental illness that does not result in functional impairment those only with conditions other than mental illness, such as, but not limited to: Acquired Brain Injury; Intellectual Disability; neurological conditions; Alzheimer’s Disease or Dementia; and physical disabilities, and those whose residential settings limit, restrict or reduce their ability to participate fully in the community such as in prison, or specialised drug and/or alcohol treatment service, or a residential mental health or aged care service. 3.3.4 Target groups PHaMs identifies a number of groups of people as facing additional disadvantage, including, but not limited to: Indigenous Australians, including members of the Stolen Generations people with culturally and linguistically diverse backgrounds, including humanitarian entrants and recently arrived migrants and refugees young people aged 16 to 24 years people who are homeless or at risk of homelessness people who have previously been institutionalised (including Forgotten Australians, care leavers and child immigrants) young people leaving out-of-home care people who have been previously incarcerated, and people with drug or alcohol co-morbidity. 9 Services are required to prioritise and actively target these special needs groups, or others identified locally, for which there are significant populations in their coverage area, or who are inadequately supported. The Department expects services to develop the relevant expertise to be able to focus on these special needs groups and to manage their caseloads to ensure that uptake is representative of special needs groups in the local community. Targets for special needs groups will be negotiated with service providers on a case-by-case basis and specified in Grant Agreements. The following considerations will assist with promoting and targeting services to special needs groups. Become known in the community – people need to understand the service provided and see the value in accessing the service. Accessible – having an open-door approach, using outreach not just drop-in or appointment services. Being accepting – not stigmatising or devaluing further, being acceptable and relevant to the local community and reflecting its ethnic and cultural values. Providing good case management – by using bottom-up approaches to planning and service delivery based on the needs and strengths of individual clients. Continuity – providing long-term support and enabling a relationship to develop. 3.3.5 How to access PHaMs services PHaMs service providers are required to maintain open referral and access pathways into the service. Potential clients are able to access PHaMs through a broad range of entry pathways including self-referral, referral by friends and family or other community services. A formal referral from community mental health or clinical services is not required, and there is no requirement for potential clients to be a registered client of state mental health services. PHaMs service providers must ensure that assessment and intake procedures are personfocused, non-threatening and conducted at a pace that potential clients are comfortable with. This includes using outreach for initial meetings and assessment in familiar places such as a person’s home or a local library/community centre. 3.3.6 Fees Services provided by PHaMs must be free of charge to clients. 3.3.7 What clients can expect Clients can expect support to be provided according to the PHaMs practice principles listed in paragraph Attachment A. Recovery Approach: PHaMs services must support clients using recovery-focused and strengths-based approaches. In PHaMs, recovery is about a personal journey that is driven by the clients’ points of view, focuses on their strengths, hopes, wishes, goals and achievements, provides ways for them to cope better within the confines of their illness, and equips them to overcome difficulties and challenges that they face along the way. Recovery means that clients learn ways to manage the difficulties in their lives, regain control, make choices and decisions for themselves, strive to achieve their goals, and develop skills to help them overcome future challenges. 10 DSS expects that each service will be tailored to meet the needs of the individual PHaMs clients who engage with the service. Services should be designed to take into account not just mental health issues but also any additional issues faced by people because of past experiences, trauma or disadvantage. Recovery services must aim to: provide reassurance of safety restore hope, meaning, confidence and motivation build connections and community strength promote human dignity demonstrate understanding and caring maintain a respectful and accepting attitude reduce the sense of isolation provide opportunities to share experiences reinforce capacity to problem solve and take control look for, and identify, strengths that can raise self‐esteem set realistic goals provide links with groups or agencies that are understanding and supportive, and facilitate coping and problem-solving skills. Consent: PHaMs workers are required to gain written consent from PHaMs clients for the release of information to specific agencies or organisations they are referring clients to, and separate consent for the PHaMs service to release de-identified client data to DSS for Government reporting purposes. 3.3.8 Client rights and responsibilities PHaMs is delivered in accordance with the National standards for mental health services, applying to all mental health services, including government, non-government and private sectors across Australia. Please see Implementation Guidelines for Non-government Community Services. Rights: Standard 6 of the national standards lists rights applying to consumers of mental health services. They include that consumers must be treated with respect, have their privacy protected, and receive services appropriate to their needs in a safe and healthy environment. Responsibilities: Clients have a responsibility to provide accurate information about their needs and circumstances in order to be provided with quality services. They are required to comply with the rules and regulations for engaging with services and behave in a manner that does not compromise the health and safety or privacy of others. 3.3.9 Exiting PHaMs Clients may exit the PHaMs service at a time they choose, or as agreed with the service provider. This is most likely to happen when one or more of the following occurs: the client states he/she wishes to exit PHaMs the goals of the client have been reached PHaMs is unable to assist the client with his/her identified goals a PHaMs team leader or service manager judges that the client presents a risk to the safety of other clients or service staff the client is incarcerated for a period greater than six months (clients can remain eligible for services as non-active clients within the PHaMs service, but be classified as 11 ‘inactive clients’, for a period up to six months. or comes under the care of state or territory judicial system the client moves into long‐term (six months or more) psychiatric accommodation, or the client does not return to the PHaMs service following a period of inactivity (six months). PHaMs service providers must ensure clients exiting PHaMs have adequate alternative supports in place should they require them. This may include access to relevant alternative support services, family support, and strategies in place to deal with crises should they occur. The clients should be given assurances they can seek to return to PHaMs at a later time if appropriate, and pending available places. Processes for exiting PHaMs clients are detailed at Attachment C: Client Transfers, Turning Away Referrals and Exiting Clients. 3.4 Service delivery and eligible and ineligible PHaMs activities PHaMs providers are funded to: manage entry to PHaMs through eligibility and functional assessments support and mentor clients to achieve goals in their Individual Recovery Plans, including assisting clients to make and attend appointments, manage daily tasks, facilitate transport, address barriers to social and economic participation, secure stable housing, and improve personal, parenting or vocational skills, etc. coordinate support services and help clients navigate the mental health and community sector supports, and liaise and work with other stakeholders to make and receive appropriate referrals for people with mental illness. Some PHaMs services are funded to provide specialist support to particularly vulnerable groups, either through funding for a targeted service or funding to deliver additional targeted services as part of an existing general service. This includes PHaMs Employment Services, Remote services and services targeted to particular groups such as homeless or Culturally and Linguistically Diverse (CALD) people. PHaMs Employment Services: Organisations are specifically funded to provide specialist support and work with employment services, such as Disability Employment Services, Job Services Australia, state-funded services and social enterprises, to assist clients to address non-vocational issues that are barriers to finding and maintaining employment, training or education. These services assist people with a mental illness who receive the Disability Support Pension or other Government income support payments and are participating in, or willing to engage with employment services, and have economic participation as a primary goal in their Individual Recovery Plans. PHaMs Employment Services also work to increase the capacity of other PHaMs providers to better assist clients who wish to achieve an employment or training outcome. This could include assisting other PHaMs services to navigate the employment services system or training other PHaMs staff. PHaMs Employment Services play a role in increasing the capacity of employment services to deliver better outcomes for job-seekers with a severe mental illness as well. PHaMs Remote Services: In addition to supporting individual clients, PHaMs are funded to provide and build local capacity to deliver community mental health support in remote communities so that members can identify and respond appropriately to emerging mental 12 health issues. The Department recognises that these services may need to be tailored to suit the specific communities in which they are delivered and arrangements are therefore negotiated on a case-by-case basis with each funded organisation. Delivery of PHaMs in remote localities recognises and promotes the spiritual, cultural, mental and physical healing for Indigenous Australians living with mental illness in remote communities. In order to support people with severe mental illness in remote communities PHaMs Remote Services: use a community development approach – this means support will be provided to individuals, as well as their support network which includes family, carers and the community use innovative service delivery models that build on existing local infrastructure and services train local people to undertake PHaMs team roles over time, and encourage the development of suitable activities to enable social inclusion and strengthening of family and community relationships for people participating in the service. A portion of funding (10 per cent) is allocated in remote services specifically for community leadership and training. This funding is to be used to provide appropriate training and development to clients, family and community members to increase their knowledge of mental illness and how to manage it, to increase their personal skills and self-confidence, develop leadership skills and to improve the overall resilience and capacity of the community to respond to the mental health needs of its members. PHaMs Remote Services are also funded to undertake community development. While the focus of PHaMs is on improving outcomes for individuals with mental illness, it is recognised that this may require intensive work with family members and the community in which a client lives. This recognises that there are limited resources and support services in small and isolated communities. In undertaking community development, the service must demonstrate the beneficial impacts of this work on individuals and families. Community development should work as an adjunct to intensive assistance to individuals and families. Services are also expected to deliver assistance in ways that are locationally and culturally appropriate, safe and relevant. 3.4.1 Team approach to service delivery Personal helpers and mentors must work together in teams, to ensure the most effective service delivery and to ensure better outcomes for clients. Team structures are determined by service providers according to local need, the needs of clients, the availability of staff, and worker profile. DSS expects a standard PHaMs service to employ a team of about five full-time equivalent workers. A standard PHaMs team would comprise five personal helpers and mentors, however some services have been funded for additional positions, specified in Grant Agreements. Variations may be negotiated with DSS on a case-by-case basis and will be reflected in Grant Agreements. PHaMs services must assign a worker to each client to: help clients better manage their daily activities and reconnect to their community connect clients to outreach services if needed provide referrals and links with appropriate services, such as clinical, drug and alcohol, employment and accommodation services 13 work with clients to develop Individual Recovery Plans which focus on their goals and recovery journey engage and support family, carers and other significant people in clients’ lives, and monitor and report progress against clients’ Individual Recovery Plans. PHaMs team members must have varied backgrounds, personalities, academic qualifications, work experiences and knowledge. This will enable the team to offer choice to clients, bring different knowledge and experience to the team and find innovative solutions to the many complexities the team will face. Some team members may have professional backgrounds as social workers and psychologists. This knowledge and experience helps to build the capability of the team, however, team members are employed as personal helpers and mentors, not to undertake specified professional roles such as social workers or psychologists. All PHaMs services must have a Team Leader and must employ at least one peer support worker with lived experience of mental illness. The role of the peer support worker within the PHaMs team can vary and be tailored to the particular service. The team must be designed to: provide a diverse knowledge base among workers that can be shared to benefit the whole team (by valuing and selecting workers with varied backgrounds and experiences) allow for team support, ongoing training and development, and direct supervision, debriefing and shared learning experiences and opportunities, and offer choice for clients (around the gender and culture of their worker where possible) as well as who they might prefer to build a long-term relationship with. There are distinct roles that must be filled within each team. These roles include: a team leader, a peer support worker, and general caseworkers. These roles are outlined in Attachment D: PhaMs Team and Roles. Where a PHaMs service is funded to deliver a specialist service, the PHaMs team must also include specialist workers, such as employment specialists in Employment Services or cultural brokers in Remote Services. PHaMs Employment Services are required to employ workers with a background in delivery of both community mental health and employment services. While it may not be possible to recruit workers with both of these skill-sets, it is important that the PHaMs Employment team as a whole has a mix of these skills and experience. PHaMs Remote Services are also required to operate through a team structure. The starting point for PHaMs Remote services is a team of five workers (they do not have to be full-time workers). DSS recognises that team structures may be impacted by factors such as difficulty attracting and retaining workers in remote areas, increased operating costs and the need to tailor service models to the site’s coverage area. The team structure should be identified as part of the initial strategic planning process. PHaMs remote services are encouraged to employ local Aboriginal and Torres Strait Islander people to undertake roles within the PHaMs team. Information on the roles of PHaMs Employment Workers and Cultural Brokers is at Attachment D. 14 3.4.2 Mandatory caseloads for PHaMs teams There are different caseload requirements for specialist and non-specialist PHaMs services. Requirements in relation to minimum service caseloads are detailed in Grant Agreements. Caseloads for each worker (an FTE ‘worker’ may be one person employed full time or a number of part-time workers whose hours equate to a full-time worker’s hours, e.g. If two staff work 50 per cent of the hours of one FTE they would have equal minimum caseloads of five each. If one worked 60 per cent of the hours of one FTE and the other worked 40 per cent, the caseloads would be six and four respectively) should be a minimum of 10 and a maximum of 12 active clients requiring complex support. Higher caseloads are permitted where several clients with lower levels of support equate to a complex case. This upper limit recognises the complexity of support needed and longer‐term relationships required to assist clients in their paths to recovery as well as ensuring the quality of service provided is maintained at a high standard. PHaMs workers may have clients in their caseloads who require intermittent or periodic support. This recognises the episodic impacts of mental illness and that people may only require occasional support to independently maintain their recovery journey. Base funding for non-specialist PHaMs services provides for a minimum service caseload of 45 clients at any point in time. This allows for lower active caseloads for team leaders and some flexibility in structuring the most appropriate role for peer support workers within teams. Some PHaMs services will be funded at higher levels and will be required to have larger overall caseloads based on the number of increased FTE provided through the additional funding. PHaMs Employment Worker: Each FTE PHaMs Employment worker is required to have a minimum caseload of 10 intensively supported clients and 10 less intensively supported clients. The maximum caseload is 24 active intensive clients (12 intensive and 12 less intensive) for each FTE worker. A PHaMs Employment Service funded to employ five workers is required to carry a minimum caseload of 90. This includes a minimum caseload of 45 intensively supported clients and 45 less intensively supported clients. This allows for lower active caseloads for team leaders and some flexibility in structuring the most appropriate role for peer support workers within teams. PHaMs Remote Services have caseloads of up to 45 clients. Recognition is given to broader community and family capacity building activities undertaken by PHaMs workers in remote services that aid the recovery journey of individual clients, and exact caseloads will be negotiated on a case-by-case basis. Staff should be supported to remain within their caseload capacity to avoid high staff turnover, which is very disruptive to clients. 3.4.3 Duration and intensity of support There is no time limit on how long a client can be supported by PHaMs services, as services are intended to support clients with diverse and complex needs. The intensity of support provided to PHaMs clients is flexible, negotiated with each client, and adjusted from time to time as part of Individual Recovery Plans. This recognises the need of some clients for varying levels of support over an extended period of time due to the episodic impacts of mental illness. Generally, intensive support is provided to clients until such time as they have stabilised their situation and addressed the priorities and goals identified in their Individual Recovery Plans. 15 PHaMs providers are responsible for managing their caseloads to ensure they can meet the needs of clients requiring intensive support, as well as those requiring less intensive periodic support. As places become available because existing clients reduce the level of support needed or exit the service, new clients should be accepted, with priority going to those with the highest need. For PHaMs Employment Services, the duration of intensive support, to overcome nonvocational barriers to employment, provided to clients will be around six months with a maximum period of 12 months. Once employed or in the workforce, clients will be offered less intensive support to maintain employment and participation opportunities. Clients may return to intensive support if required and if there are vacancies with the service. Details of each client’s agreed, ongoing support arrangements, including any arrangements for support after hours must be documented in his/her Individual Recovery Plan. PHaMs services are not expected to provide after-hours services but may agree to support clients on a case-by-case basis at their discretion, if it is considered important to individuals’ recovery journeys. Any after-hours arrangements must have the prior approval of the Team Leader. PHaMs workers must not be coerced into being available after hours if they do not wish to be. 3.4.4 Individual Recovery Plans PHaMs provides ongoing, one-to-one support to people with diverse and complex needs, directed by Individual Recovery Plans developed with each PHaMs client. Support is focused on providing practical assistance, facilitating increased community participation and ensuring access to required services in line with goals and priorities identified by the client and documented in his/her Individual Recovery Plan. Providers must ensure that, for each person accepted into PHaMs, an Individual Recovery Plan is developed with the PHaMs client. The Plan identifies: the person’s strengths and recovery goals activities and supports a care/crisis plan in the event that the client becomes unwell or crisis occurs, and expectations for any out-of-hours contact. Clients will be asked to commit to working towards achievement of goals in their Individual Recovery Plans. They can expect their worker to help them do things for themselves – PHaMs workers must not take over and do things for clients. More information about Individual Recovery Plans is at Attachment E. 3.4.5 Mental Health Crisis Response Arrangements, should a client become unwell or have a crisis, are to be documented in each client’s Individual Recovery Plan. However, PHaMs is not a crisis service and PHaMs workers are not expected to be the contact for mental health emergencies or to manage clients through such an event. Clients experiencing mental illness episodes should be encouraged and assisted to seek clinical mental health support. 16 3.4.7 Supporting families and carers Because of the significant role of family members and carers in supporting people with mental illness, PHaMs services should also support families and carers through: engaging them as early as possible in Individual Recovery Plans (provided the client have consented) making information about mental health services available providing advice and support in managing mental illness, including recognising symptoms such as behavioural change providing support when the person with the mental illness is acutely unwell, and sharing information, including referral, to support a carer to return to work. Members of the PHaMs team must have the appropriate skills to work with families and carers and if required, staff should be trained in working sensitively with families and carers. 3.4.8 Family-sensitive services It is often difficult to balance the rights of the clients with the expectations of families and carers. However, families and carers often make the point that the information they need does not have to breach confidentiality. For example, carers require information about services that are available for the person they care for and strategies to help them cope with difficult situations. Carers also make the point that sometimes they do not need to be told anything, and what they most want is to be listened to and contribute to the recovery of clients. The input of families and carers can be invaluable because they know the client better than anyone else does. Families and carers will often be the first to see changes in the client or behaviours that are out of the ordinary. 3.4.9 What PHaMs cannot provide PHaMs must not provide: provision of clinical services or specialist medical services, although PHaMs workers may assist clients to access appropriate services purchase of goods and services for clients (PHaMs Remote services may use PHaMs funding to purchase items needed to build community capacity or develop supports that are unavailable in remote communities, such as food for nutritional cooking classes, supplies for art classes, etc.), although PHaMs workers may help clients obtain goods and services they need by helping them budget, seek sources of funding and/or apply for services, including education and training, and provision of personal care and domestic help for clients, although PHaMs workers may show clients how to do things, prompt them to do tasks and help them find assistance to undertake tasks they cannot manage themselves. 3.4.10 Eligible activities PHaMs funding may be used for: staff salaries and on-costs which can be directly attributed to the provision of PHaMs support as per the Grant Agreement employee training for paid and unpaid staff, Committee and Board members, that is relevant, appropriate and in line with the delivery of PHaMs, and operating and administration expenses directly related to the delivery of PHaMs, such as: 17 o o o o o o o o o o telephones rent and outgoings computer/IT/website/software insurance utilities postage stationery and printing accounting and auditing travel/accommodation costs (Including accommodation costs incurred where PHaMs workers are required to travel to distant or remote locations to service carers, or costs for staff travelling to attend training or personal development activities), and assets as defined in Grant Agreement Terms and Conditions, including motor vehicle purchase or lease. PHaMs Remote Service funding may be used to broker services to maximise support for people with a mental illness in remote areas. The planned use of brokered services must be part of a strategically planned approach, and approved by the Department. PHaMs Remote Services funded from 2013 are required to use 10 per cent of annual funding for community leadership and training. The Terms and Conditions outline how funds must be spent, acquitted and repaid (if necessary). 3.4.11 Ineligible activities PHaMs funding may not be used for: costs not directly related to PHaMs service delivery overseas travel purchase of goods and services for clients, or profits, dividends, etc. to directors or other stakeholders. 3.4.12 Service coverage areas Each PHaMs service is allocated a site with a defined service coverage area. The service coverage area is specified in the Grant Agreement. As a principle, DSS expects services to provide access to people living within their defined site coverage areas. Servicing clients outside of the site’s coverage area It is possible to service someone living outside of the defined site coverage. Up to 10 per cent of a service provider’s client caseload can come from outside a site’s coverage area. These clients are referred to as out-of area clients. Servicing someone from outside the site’s coverage area should be considered on a case-by-case basis and consideration should be given to the following: first and foremost, what is in the best interest of the client in the long term? is there another PHaMs provider that could service the client? what is the site's capacity to service this individual and what, if any, impact could this have on servicing clients from within the designated site’s coverage area? how difficult will it be to service that individual (e.g. if there are long distances for workers to travel to service that individual, will that individual actually receive the quality of service expected – would they be better serviced by another provider)? 18 Permission from a DSS Grant Agreement Manager to service one-off clients from outside of the site’s defined coverage area is not required. A service provider must seek the approval of a DSS Grant Agreement Manager to service more than 10 per cent of its caseload outside of its defined coverage area. Servicing areas that are allocated to another PHaMs site Service providers can negotiate with one another to support clients that reside in areas that are not allocated to them. There may be circumstances in which it is easier for another provider to service a particular suburb rather than the provider that has been allocated the suburb. A PHaMs provider should not begin servicing clients (other than one-off cases or those within the 10 per cent allocation) in areas allocated to other providers without agreement from the other PHaMs provider. DSS should be notified of any agreement between service providers on servicing areas outside of allocated site coverage area. A service provider should request a permanent change to its coverage area when it wants to cease servicing an area or increase coverage to another area. DSS will consider the requested change and, if agreed, will vary the Grant Agreement accordingly. This will ensure accurate information is available on PHaMs service coverage for client referrals. 3.4.13 Funding for PHaMs PHaMs services are funded under a standard formula based on the geographic location of service delivery and client caseload size. Funding levels will, however, vary from service to service, e.g. where services have been expanded because of high demand. As at 1 July 2015, annual base funding (GST excl.) for a standard PHaMs service is: $453,960 for a metropolitan service $502,298 for a non-metropolitan service, and $545,908 for a remote service. Funding for PHaMs is provided through block funding to providers. A portion of block funding for PHaMs in NDIS sites is notionally allocated to the National Disability Insurance Agency, further detailed at Attachments J and K. 3.5 Links and working with other agencies and services 3.5.1 Local coordination and collaboration To achieve the best outcomes for clients, PHaMs services should complement and intersect with other services in the local area, including both clinical and non-clinical community services. This approach is designed to build on existing arrangements and ensure services are coordinated to provide holistic and flexible support. PHaMs service providers are expected to form partnerships and establish formal links with a range of local networks, services and other stakeholders. This may include: developing referral processes and managing referrals to other services, including to housing support, employment and education, drug and alcohol rehabilitation, independent living skills courses, clinical services and other mental health and allied health services participating in inter‐agency meetings to ensure better services for clients participating in case coordination and related meetings, as required. 19 PHaMs services should also refer carers of clients to Mental Health Respite: Carer Support or the Young Carers Respite and Information Program, and children, young people and their families to Family Mental Health Support Services, where appropriate. 3.5.2 PHaMs Employment services These services are required to have formal parallel servicing arrangements in place with local employment providers, including DES, JSA agencies and other employment services such as Social Enterprises. These could take the form of memoranda of understanding or an exchange of letters that sets out how the arrangements will operate, the process for managing referrals, and the respective roles and responsibilities of each party. It is not acceptable for an organisation funded to provide a PHaMs Employment service, which is also an employment service, such as a DES, to only have internal parallel servicing arrangements in place. Arrangements with a number of different employment providers ensure diversity in service delivery and choice for clients. 3.5.3 Partners in Recovery Partners in Recovery (PIR) is an Australian Government initiative managed by the Department of Health. PHaMs services are required to work collaboratively with PIR arrangements established at the local level. PIR aims to support people with severe and persistent mental illness with complex needs, and their carers and families, by getting multiple sectors, services and supports they may come into contact with (and could benefit from) to work in a more collaborative, coordinated and integrated way. PHaMs and PIR must work in a complementary way to achieve better outcomes for people with severe and persistent mental illness. Both initiatives are underpinned by principles of person-centred recovery and are designed to help people access services that are coordinated, integrated and complementary. PHaMs must continue to provide one-to-one support to individuals in their recovery journey by building long-term relationships and helping clients to access the range of supports and services that they need. PHaMs services will continue to work with individuals and their families to achieve clients' stated goals, which may include working with regional PIR organisations to ensure the services required by people with severe and persistent mental illness and complex needs are coordinated, integrated and complementary. 3.5.4 Interpreting services Interpreting services may be required in order to assist participants undertake Assessment or attend services activities. For this reason, DSS will pay the cost of interpreting services provided by the Translating and Interpreting Service (TIS National) that are required by each funded MHR:CS service to assist clients. Grant Agreement Managers can advise on cost recovery for alternative translating or interpreter services (e.g. Indigenous language interpreter services or interpreter services for hearing impairment). Service providers should discuss their requirements with their Grant Agreement Managers prior to engaging the services. Grant Agreement Managers will arrange for providers to be allocated specific TIS National client codes for each site, as requested. It is important that the correct code/s be used for interpreting directly related to the funding, as DSS will be directly billed by TIS National for these interpreting services. DSS may require organisations to demonstrate that correct codes have been used and that use of TIS was warranted. 20 TIS National provides both telephone and on-site interpreting (one-week notice using the Interpreter booking form located on the Interpreter booking form webpage www.tisnational.gov.au/Agencies/Forms-for-agencies/New-Job-booking-form). Before booking an interpreter, the provider should consider the time and cost advantage of using a telephone service rather than an on-site service. For more information about TIS National interpreting services contact the Client Liaison and Promotions Team: Telephone: 1300 655 082 Email: tispromo@border.gov.au. 3.6 Special requirements for PHaMs Funded organisations are required to deliver services in accordance with relevant legislation and industry standards. There are a number of special requirements of PHaMs providers as follows. 3.6.1 PHaMs practice principles All PHaMs services must subscribe to a set of practice principles that underpin delivery of support to carers and their families. The principles are detailed at Attachment A. 3.6.2 National Standards for Mental Health Services PHaMs must be delivered in accordance with the National standards for mental health services, applying to all mental health services, including government, non-government and private sectors across Australia. The National Standards were endorsed by the Commonwealth and state and territory Health Ministers in 1996. They have since been revised with a particular focus on their implementation in the community mental health sector. The national standards focus on recovery and are based on values related to human rights and dignity. They promote the empowerment of consumers of mental health services, their carers and families. They emphasise practices which support continuous improvement in service quality. 3.6.3 Compliance with Relevant Legislation Service providers must ensure that services are delivered in accordance with all relevant Commonwealth and state and territory legislation, regulations and standards. Service providers should be aware of any case-based law that may apply or has an effect on their service delivery. Providers must also ensure that the services meet health and safety requirements and all licence, certification and/or registration requirements, in the area in which they are providing services. 3.6.4 Privacy and complaints handling Privacy: personal information should be only shared with client consent, and it should be kept safe and secure from access by others. It is very important service providers understand privacy and confidentiality obligations. DSS also expects providers to meet their obligations under the Privacy Act 1988 and any relevant state or territory privacy legislation. Handling complaints: a complaint is defined as: “Any expression of dissatisfaction with a product or service offered or provided”. Complaints, queries and feedback are considered a valuable opportunity for PHaMs service providers and DSS to review and improve their processes and the quality of services provided. Service providers must have an internal complaints procedure in place and it must be prominently displayed. The procedures should allow confidentiality of clients/carers in order for clients/carers to express concerns without 21 any fear of their complaint impacting on the support or assistance they receive. PHaMs complaints handling procedures must: have commitment from all levels of the organisation be fair to all concerned, including the complainant, the organisation and the person complained about allow for the involvement of advocates ensure the complainant does not suffer retribution or intimidation be accessible – promoted internally and externally, in English and other languages as appropriate have flexible methods of making complaints with assistance available to complainants as necessary. This is particularly important for a service dealing with a vulnerable and disempowered client group be responsive – a full impartial and timely process with fair and reasonable remedies be effective – must address individual complaints, use information to improve overall service delivery and inform planning decisions be open and accountable so clients can judge for themselves whether the system is working effectively afford privacy, dignity and confidentiality provide information about alternative avenues for any complaint that cannot be resolved internally (including referral to DSS) be provided free of charge, and where the client/carer does not receive satisfactory resolution of their concerns, the complaint should be referred to the DSS Contact Person as named in the Grant Agreement. 3.6.5 Incident reporting Service providers must notify DSS of any incidents such as accidents, injuries, damage to property, errors, acts of aggression, etc. that may adversely impact the delivery of services to carers, or on the Department. The PHaMs Incident Report Form at Attachment H should be completed by the service manager and forwarded to his/her DSS Grant Agreement manager within 24 hours of occurrence/discovery. Reportable incidents include: Death, injury or abuse of a client while in a provider’s care Death, injury or abuse of staff or volunteers undertaking delivery of PHaMs tasks Inappropriate conduct between a participant, especially a child or young person, and employee Significant damage to or destruction of property impacting service delivery Adverse community reaction to the PHaMs activities, or Misuse of the PHaMs funding. Information supplied to DSS should be de-identified. Names and addresses may be requested if DSS becomes involved in judicial proceedings as a result of the incident. 3.6.6 Volunteer worker support 22 Where service providers engage volunteers, they are required to have operational policies and procedures in place for engaging, training and supporting volunteers. The policies and procedures need to be understood, implemented and maintained at all levels of the organisation. The National Standards for Volunteer Involvement, available on Volunteering Australia’s website at www.volunteeringaustralia.org, provide a sound basis for the engagement of volunteers and should form the basis of the operational policies and procedures developed by PHaMs services. They cover the following elements: the jobs of volunteers are documented and regularly reviewed the work of volunteers is controlled and supported by defined processes and procedures information is gathered about work satisfaction appropriate support is available, including access to professional debriefing effective channels of communication with volunteers are established appropriate processes are established to monitor, identify and address all health, safety and work satisfaction issues. 3.6.7 PHaMs promotional products Service providers may access PHaMs brochures electronically here. DSS expects service providers to distribute the promotional materials to local services that could be entry and referral points for PHaMs. Brochures should be distributed to potential clients that visit the service or request information. Service providers should include their site contact information on brochures. If service providers create any additional promotional materials, they should be approved by DSS in the first instance. Service providers may use other forms of promotion, including references in local newsletters, email newsletters and local media. Service providers working in designated remote service sites may want to work with local community members or artists to design more appropriate service imagery to be used to promote PHaMs in their site. Final imagery should be approved by DSS before being used. For information on using the logo and branding instructions, see Attachment I. 3.7 Activity performance and financial reporting 3.7.1 Activity performance reporting The focus of activity performance reporting is to obtain meaningful information about service delivery outcomes. The following Performance Indicators apply to PHaMS services: Number of clients assisted Number of events / service instances delivered Percentage of clients with improved knowledge, skills, behaviours and engagement with services, and Percentage of clients from priority target groups/communities 23 Reporting includes: Client eligibility screening tool (EST) data into an online system (PHaMs Portal) on-line reporting through the DSS Data Exchange an annual financial report (as prescribed in Grant Agreements) other reports requested by the Department. Reports will be required on the due dates as specified in the Grant Agreement unless otherwise negotiated with DSS and approved in writing. The Department has implemented improved programme performance reporting processes in Grant Agreements. These arrangements are supported by a new and simple to use IT system, known as the DSS Data Exchange (DEX). DEX: is a web based portal; allows submission of data through external approved third party applications, and supports submission of data through other approved methods. Performance information required to be collected may include (but is not limited to): Client consent (where required) Client identity characteristics Client demographic characteristics Service delivery information Client outcomes. Services will receive support on IT matters and data collection activities to assist them in complying with DSS reporting requirements. The DSS Data Exchange Helpdesk can be emailed at dssdataexchange.helpdesk@dss.gov.au. 3.7.1 Financial reporting The activity must be managed to ensure the efficient and effective use of public monies. This must be consistent with best value in social services principles, the DSS Grant Agreement, and will aim to maintain viable services and act to prevent fraud upon the Commonwealth. Financial documents must be provided to DSS as outlined in the Grant Agreement. 4 Contact Information For enquires regarding current Grant Agreements, service providers should contact their Grant Agreement Managers. For general programme enquiries contact Program.help@dss.gov.au or phone 1800 020 283. Department of Social Services website: www.dss.gov.au 24 Glossary Caseload – the number of clients that each member of the PHaMs Team may be providing with intensive support at any given time. Community capacity building – community development activities to improve community wellbeing through collaborative projects with community groups such as promoting mental health awareness and first aid and stigma reduction. This can also include establishing relationships and trust in communities to allow services to be delivered most effectively. Co-morbidity – the co-occurrence of one or more diseases or disorders in an individual. Co-morbidity of mental disorders and substance use disorders is widespread and often associated with poor treatment outcomes, severe illness and high service use. Coverage Area – the geographically defined area in which clients of the PHaMs service must reside in order to qualify for services from that service provider. Cultural competence – the ability to interact effectively with people of different cultures, particularly in the context of non-profit organisations and government agencies whose employees work with persons from different cultural/ethnic backgrounds. Culturally and Linguistically Diverse (CALD) – people who identify “…as having a specific cultural or linguistic affiliation by virtue of their place of birth, ancestry, ethnic origin, religion, preferred language, language(s) spoken at home, or because of their parents’ identification on a similar basis” (from Victorian Multicultural Strategy Unit (2002) in Australian Psychological Society Ltd 2008). Cultural sensitivity – the quality of being aware and accepting of other cultures and cultural beliefs. Duty of Care – can be defined as “an obligation, recognised by law, to avoid conduct fraught with unreasonable risk of danger to others”. Service Providers have a duty of care to take reasonable care to ensure that their acts or omissions do not cause reasonably foreseeable injury to their clients (from The Law Handbook, Fitzroy Legal Service Inc.) Eligibility Screening Tool – DSS’s purpose-built tool designed to assess an applicant’s eligibility for PHaMs services. Employment Worker – a personal helper and mentor employed in a PHaMs Employment Service. Family – is a relative, friend or neighbour who has a family‐like relationship with the person with mental illness. Forgotten Australians – people raised in institutional or other out-of-home care in Australia in the 20th century. Homelessness – homelessness does not simply mean that people are without shelter. It can also mean that people are without stable or permanent accommodation. A stable 25 home provides safety and security as well as connections to friends, family and a community. There are three kinds of homelessness: primary homelessness, such as sleeping rough or living in an improvised dwelling secondary homelessness including staying with friends or relatives and with no other usual address, and people staying in specialist homelessness services, and tertiary homelessness including people living in boarding houses or caravan parks with no secure lease and no private facilities, both short and long-term. Humanitarian entrants – people who are subject to substantial discrimination amounting to gross violation of their human rights in their home country, are living outside their home country and have links with Australia. (Dept of Immigration and Border Protection) Incarceration – where a person is detained in a prison, remand centre or other corrective institution for being suspected of, or having committed a criminal offence. Indigenous – a person, who is of Aboriginal or Torres Strait Islander descent, identifies himself or herself as an Aboriginal person or Torres Strait Islander and is accepted as such by the Indigenous community in which he or she lives. Institutionalisation – the term ‘institutionalisation’ generally refers to the committing of an individual to a particular institution. However, it is also used to describe both the treatment of, and damage caused to vulnerable people, when a person becomes accustomed to life in an institution so that it is difficult to resume normal life after leaving. Mental health – a state of wellbeing in which an individual realises his or her own potential, can cope with the normal stresses of life, can work productively and fruitfully, and is able to make a contribution to his or her own community. Mental illness – a diagnosable disorder that significantly interferes with an individual's cognitive, emotional or social abilities. The brochure ‘What is mental illness?’ on the Department of Health and Ageing website provides more information. NDIS site – Service outlet located in an area that is a prescribed area for the purposes of a person meeting the residency requirements under section 23 of the National Disability Insurance Scheme Act 2013 (an NDIS prescribed area). Non‐qualifying ‘conditions’ – conditions other than mental illness or mental health conditions which do not cause severe functional limitations. Out-of-home care – refers to foster care, kinship care and therapeutic residential care. It focuses on those children and young people with Children’s Court ordered care arrangements, where the parental responsibility for the child or young person has been transferred to the Minister/Chief Executive. It does not refer to young people who just happen not to be living at home. Client – a person assessed as eligible for and receiving services from, a PHaMs-funded service. 26 Peer support worker – a worker with a lived experience of mental illness, who is living well and is able to support others experiencing mental illness to work towards recovery. PHaMs Employment service – a specialist PHaMs service specifically to help people with mental illness on, or claiming, the Disability Support Pension or other income support, who are also engaged, or willing to engage, with employment services. Refugees – people subject to persecution in their home country. Remote sites – PHaMs remote sites are categorised as such based on the Australian Standard Geographical Classification - Remoteness Area (ASGC-RA) for their coverage area. As at 30 June 2012, there were 11 PHaMs sites funded as remote sites. Team leader – a worker who provides guidance, instruction, direction, leadership and work oversight for the PHaMs team. Terms and Conditions – means the terms and conditions of the standard Grant Agreement between the Department and successful Applicants. For further details see http://www.dss.gov.au/grants-funding/general-information-on-funding/terms-andconditions-standard-funding-agreement. Volunteer worker – a person who provides services without being paid, though costs incurred by the worker are reimbursed by the service provider. Volunteer workers may undertake a variety of roles under appropriate supervision by the organisation. Young people leaving care – young people who have been in the formal care of the state and are in the process of transitioning to independence. 27 Attachment A: PHaMs Practice Principles Professor Anthony Williams Ph.D (1993) described eight principles as important in understanding a recovery-based approach to serious mental health problems. These principles must be used in designing and delivering PHaMs services. These principles include recognising that: each person’s recovery is different recovery requires other people to believe in and stand by the person recovery does not mean cure. It does not mean the complete disappearance of difficulties recovery can sometimes occur without professional help. People hold the key to their own recovery recovery is an ongoing process. During the recovery journey there will be growth and setbacks, times of change and times where little changes recovery from the consequences of mental distress (stigma, unemployment, poor housing, loss of rights etc.) can sometimes be as difficult, or more difficult than recovery from the mental health issue or illness itself people who have or are recovering from mental health issues or illness have valuable knowledge about recovery and can help others who are recovering (peer support) a recovery vision does not require a particular view of mental health problems. All PHaMs services must operate with a strengths-based recovery focussed orientation and subscribe to a set of practice principles that underpin delivery of assistance to PHaMs clients. The following principles expand on the principles set out in Part C of the Activity Guidelines Suite– Personal Helpers and Mentors Service Operational Guidelines. The principles should guide the development and operation of PHaMs services. Principle 1: Respect, Trust and Understanding – each client will be made to feel welcome and valued by their PHaMs worker and treated with respect, dignity and understanding as a unique person. Service providers have knowledge and understanding of mental illness and the impacts it has on people’s behaviours and lives The lived experience of mental illness and the consumer perspective of the recovery process are valued and respected by service providers and incorporated into service delivery. Service providers build meaningful relationships with clients based on openness and trust Service providers take all practical and appropriate steps to prevent abuse and neglect of clients and to uphold client legal and human rights 28 Principle 2: Empowerment – clients are empowered to gain the knowledge, skills and attitude needed to cope with the changing circumstances in which they live, regain control of their lives, and undertake valued and meaningful activities in the community. Clients have the opportunity to participate as fully as possible in making decisions about the events and activities of their daily lives in relation to the service they receive Service providers develop Individual Recovery Plans with clients guided by the client's choices, goals and aspirations Service providers foster a sense of hope for the future and help clients to improve selfimage and overcome stigma Service providers assist clients to access appropriate services and supports so that clients can develop the skills they need to achieve their personal goals Service providers work with clients, their family and carers to understand the needs and choices of clients in their recovery journey The service provider promotes the belief and ability of clients to fulfil valued roles in the community Service providers build relationships and collaborate with other community and clinical services to provide clients with the support they need to achieve their goals and lead meaningful and rewarding lives in the community Service providers support clients by developing or finding meaningful activities or opportunities for clients to improve their quality of life, participation and involvement in the community Principle 3: Privacy and Confidentiality – each client's right to privacy, dignity and confidentiality in all aspects of life is recognised and respected. The service provider complies with the Privacy Act 1988 in order to protect and respect the rights of individual service recipients The service provider only collects necessary information and uses it for the purpose for which it was collected. Information is only released to others with the written consent of the client The service provider promotes tolerance and respect for each client’s personal needs and circumstances The service provider ensures the protection of information and data from unauthorised access or revision, to ensure that the information or data is not compromised through corruption or falsification The service provider stores information and records in a secure place and disposes of them in an appropriate manner Principle 4: Accessibility – services are delivered in a way that ensures all potential clients in the PHaMs target group are able to access them. This includes delivery through outreach and in clients’ homes. The service provider actively seeks out and maintains broad referral and entry pathways for clients 29 The service provider has effective strategies for promoting the service to people who are traditionally more difficult to engage, such as those who are homeless or transient, or who do not wish to access traditional mental health services The service provider enables people without a formal diagnosis of mental illness to access the service by applying the Eligibility Screening Tool The service provider is non-discriminatory in respect of age, gender, race, culture, religion or disability, consistent with the PHaMs Grant Agreement with the service provider and the purpose of the service The service provider’s entry and exit procedures are fair and equitable and consistently applied The service provider promotes the PHaMs service, engages with other community and clinical services to open up referral pathways and service options for clients The service provider promotes awareness of mental illness, community acceptance and the reduction of stigma for people with mental illness Principle 5: Flexibility, Choice and Appropriateness – services are designed to meet the individual needs and personal recovery goals of clients. Recovery goals are established objectively to reflect the client's individual needs and aspirations Each client’s recovery goals are recorded in an Individual Recovery Plan and used as the basis for service provision, with the service provider undertaking a process of planning, implementation, review and adjustment to facilitate the achievement of these goals Service providers ensure that clients only undertake activities of their choice and participate in the service voluntarily The service provider uses strengths-based recovery approaches in delivering services The service provider delivers outreach support to PHaMs clients in an environment that is safe and comfortable for both clients and PHaMs team members The service provider works collaboratively with other programs, services and agencies and helps clients to navigate the complex range of services and support available The service provider manages caseloads effectively to ensure the best support and outcomes for clients and in accordance with the Grant Agreement The service provider actively tailors services to meet the needs of special needs groups The service provider (as appropriate) engages with and supports the family and carers of clients to achieve the best possible outcomes for clients Principle 6: Cultural Competency – services are culturally appropriate. Cultural competence is embedded in the philosophy, mission statement, policies and key objectives of the service provider The service provider has a strong understanding of the cultural profile of their site and where possible, culturally and linguistically appropriate team members are employed 30 Cultural competence resources are readily available to team members in the workplace Team members are encouraged to be flexible in their approach and seek information on specific cultural behaviours or understandings Team members receive appropriate training for cultural competence Principle 7: Appropriate Staff – PHaMs workers have appropriate attitudes, backgrounds, experiences and qualifications to meet the needs of clients in their site and receive appropriate training, support and supervision. This includes engagement of paid peer support workers by PHaMs services. Service providers provide team members with appropriate training, support and supervision to perform their role well The service provider ensures that team members have appropriate attitudes and the relevant skills and competencies to undertake their role Each PHaMs site has at least one paid Peer Support Worker (see 8.4 for an explanation of the Peer Support Worker role) The service provider ensures the provision of appropriate and relevant training and skills development for each team member The service provider ensures that team members have the resources and equipment to do their jobs effectively, efficiently, lawfully and in a fair and reasonable way Principle 8: Service Development and Improvement – the service provider’s service delivery practices are regularly reviewed and revised to meet the needs of clients. PHaMs clients and their carers/family are aware of the service provider’s procedures for complaints handling PHaMs clients and their carers/family are encouraged to raise, and have resolved without fear of retribution, any issues, dissatisfaction, complaints or disputes they may have about the service provider or the service they receive Complaints and feedback are taken seriously by the provider, and are investigated, addressed and used to improve ongoing services The service provider has quality management and financial systems in place to ensure standards of service and optimal outcomes for clients are met The service provider fosters a flexible and learning culture to ensure improved outcomes for clients The service provider understands the community and environment that they service The service provider identifies and addresses any issues and risks that might impact on service delivery The service provider has mechanisms in place to plan future service delivery and set objectives or goals to improve service delivery The service provider has strong and effective leadership to provide strategic direction and uphold and exemplify the PHaMs values and standards The service provider performs effectively against goals and standards, and annual service plans 31 The service provider is accountable for their decisions and actions and complies with legislation, policies, guidelines, instructions and standards The service provider ensures their activities are being delivered effectively, efficiently, lawfully and in a fair and reasonable way 32 Attachment B: Eligibility Screening Tool and Client Data What is the EST PHaMs does not require a formal diagnosis of mental illness by a clinician before a person can enter the service. This is to ensure that the service is accessible. DSS worked closely with the Australian Institute of Health and Welfare to develop an assessment tool for PHaMs eligibility that became known as the EST. The EST is a functional assessment tool that determines a person’s level of functioning in managing daily activities, and living independently in the community. The EST provides a way to ensure that PHaMs support is accessible and the right people are being targeted – people who are severely impacted by mental illness. The EST is designed to collect the minimum amount of information required to work out eligibility and meet PHaMs reporting requirements. An EST assessment must be completed for each client and entered on the DSS portal. Nine life areas The EST is based on gauging a person’s level of functioning across nine life areas. The nine life areas are: Personal capacity Activities Interpersonal interactions actions and behaviours of an individual and relationships to make and keep friends and relationships, behaving within accepted limits, coping with feelings and emotions Learning, applying knowledge understanding new ideas, remembering, solving and general tasks and managing problems, making decisions, paying attention, demands undertaking single or multiple tasks, carrying out daily routine Communication being understood, in own native language or preferred method of communication if applicable, and understanding others Community participation activities Working actions, behaviours and tasks to obtain and retain paid employment Education the actions, behaviours and tasks an individual performs at school, college or any educational setting Community (civic) and recreation and leisure, religion and economic life spirituality, human rights, political life and citizenship, economic life such as handling money 33 Independent living activities Domestic life organising meals, cleaning, disposing of garbage, housekeeping, shopping, cooking home maintenance Mobility moving around the home and/or moving away from home (including using public transport or driving a motor vehicle), getting in or out of bed or a chair Self-care washing oneself, dressing, eating, toileting How to use the EST? It is important that PHaMs workers understand how to use the EST appropriately. The EST is designed to be simple and easy to use and not take too much time to complete (although it may take some time to collect the information). The EST is accessed and completed on the DSS PHaMs Portal. To gain access to the Portal complete the USER Registration Form and fax it to the Mental Health Data Team. The information required for the EST can be collected manually (on paper) and then entered in the DSS PHaMs portal at a later time. Blank paper copies of the EST can be printed from the DSS portal. The EST is not designed to be an interview tool. Information should be collected from clients appropriately and sensitively using techniques normally used with clients. Clients should not be asked to complete the EST themselves or handed a computer and asked to answer the questions. It is the responsibility of the PHaMs staff member to gather the required information and complete the EST. The EST questions should be answered after an appropriate discussion with the potential client or others (such as carers or GPs – with the person’s permission). Information from a variety of sources can be considered to answer the questions. The EST is not designed to be completed all at once in one session on the same day that the information is collected. It is expected that it might take up to 4 weeks to collect the necessary information (due to the sensitive and complex nature of some of the information required). The questions do not have to be asked exactly as they are written in the EST. It is the responsibility of the PHaMs worker to approach the issues with sensitivity and compassion. The client can be given a copy of their EST assessment. Clients may want to use it to assist with other assessment processes for other community or clinical services. The EST is currently a point-in-time assessment to determine eligibility. In the future it may also be used to access clients’ progress. A comprehensive EST data guide that explains each of the EST questions and the scoring process is available on the DSS PHaMs portal or from DSS. 34 Informed consent Informed consent means that the person is provided with enough information on the service to freely make a decision on whether to participate in the service. Service providers must ensure that the person understands: the voluntary nature of PHaMs the potential benefits and limitations of what PHaMs can provide their rights and limitations of privacy and confidentiality what information or data will be collected about them and how it will be used or shared and in what circumstances how they will be assessed. If there are concerns that the explanations are not sufficient for a client or their level of understanding, service providers will need to think about whether there is a third party, legal guardian or person with power of attorney, carer or loved one who can take on this responsibility. Written assurance of the person’s understanding of the points above is required. A copy of this written consent is to be provided to the client and a copy kept on their file. Some service providers may need to arrange to have the consent form developed in appropriate language(s) for use in their site. Consent to provide data to DSS The client must complete the DSS provided Consent to Collection, Use and Disclosure of Personal Information consent form which allows the transfer of data from funded service providers to DSS. This form must be completed before personal information about the client is collected or recorded using the EST. Clients are to be reassured that information provided is de-identified (that is – data may be about them but DSS can’t identify who they are – DSS does not see the client’s name or address). The ‘Consent to collection, Use and Disclosure of Personal Information’ form and a plain English information sheet is on the DSS portal and the Targeted Community Care Collaborative workspace. This consent form is a legal requirement and cannot be used for any other purpose and cannot be altered by service providers. The wording on the form has specific legal meaning and can’t be changed. A plain language information sheet is provided with the consent form to assist explaining how and why the information about the client will be shared. A copy of the signed consent form must be kept on the client’s file. Service providers are required to develop their own consent forms for use where they want to make a referral to another service and require the client’s consent to share information. 35 Attachment C: Client transfers, turning away referrals and exiting clients Client transfers The procedures for facilitating a transfer of a client between PHaMs service providers will differ depending on circumstances. Scenario 1 (example only): A client moves to an area where there is another PHaMs service provider and the current service provider is made aware prior to the move. A PHaMs client is receiving support from a PHaMs service provider in NSW. The client is moving interstate to Victoria, an area covered by another PHaMs service provider. The client advises their current PHaMs worker of the move. The client asks to continue assistance in Victoria with the new PHaMs service provider and gives permission for their details to be sent to the new service provider. Procedure for original service provider (NSW) Original service provider (NSW) contacts the new service provider (Victoria) and ensures the new service provider has capacity to take on the new client. If the new service provider is full, the original service provider completes an exit form to exit the client – stating why they exited PHaMs. If they do have capacity, then the original service provider (NSW) should do the following to facilitate the transfer of the client: Fill in the transfer form with the client to ensure client’s consent to transfer their information. This includes transferring: the client’s contact details a copy of the client’s EST assessment results a copy of the client’s Individual Recovery Plan copies of other relevant information. Contact the new service provider and discuss the timing of the move (if known) as well as the client’s progress and requirements. Procedure for receiving service provider (Victoria) The PHaMs worker must ensure the client completes the new PHaMs consent form to collect, use and disclose personal information. File a copy of the transfer form and ensure all contact details are recorded. Work with client as outlined in the Individual Recovery Plan. 36 If the client has been active in PHaMs and receiving support, a new Eligibility Screening Tool assessment does not need to be undertaken by the receiving service provider. Scenario 2 (example only): A client moves to an area where there is another PHaMs service provider and the current service provider is made aware after the move has occurred. A PHaMs client is receiving support from a PHaMs service provider in NSW. The client moves interstate to Victoria, to an area covered by another PHaMs service provider. The client does not advise their current PHaMs service provider that they will be doing this. The client approaches the service provider in Victoria and asks them to continue to provide support. The client gives permission for their details to be sent to the new service provider. Procedure for receiving service provider (Victoria) Receiving service provider contacts the original service provider (NSW). Fill’s in the transfer form with the client to ensure client’s consent to transfer their information. Discusses the client’s progress and requirements with the original service provider. Send’s a copy of the transfer form to the original service provider. Ensures the following information is received to facilitate the transfer of the client: the client’s contact details a copy of the client’s EST assessment results a copy of the client’s Individual Recovery Plan copies of other relevant information. The PHaMs worker must ensure the client completes the new PHaMs consent form to collect, use and disclose personal information. Files a copy of the transfer form and ensure all contact details are recorded. Works with client as outlined in the Individual Recovery Plan. Procedure for original service provider (NSW) Original service provider is expected to do the following: file transfer form send requested information to the new service provider (Victoria). supports the receiving service provider with information about the client’s progress and requirements. 37 Scenario 3 (example only): A client moves to a PHaMs Employment service provider and the current service provider is made aware prior to the move. A PHaMs client is receiving support from a PHaMs service provider. The client wishes to be considered for a PHaMs Employment Service. The client gives permission for their details to be sent to the new service provider. Procedure for original service provider Original service provider contacts the PHaMs Employment service provider to ensure that they have capacity to take on new clients and ensure they are eligible for PHaMs Employment. The original service provider should do the following to facilitate the transfer of the client: Fill in the transfer form with the client to ensure client’s consent to transfer their information. This includes transferring: the client’s contact details a copy of the client’s EST assessment results a copy of the client’s Individual Recovery Plan, and copies of other relevant information. Contact the PHaMs Employment service provider and discuss the timing of the move (if known) as well as the client’s progress and requirements. Procedure for receiving service provider Support the original service provider with information about the eligibility requirements for PHaMs Employment services. Confirm whether the service has capacity and if the client is eligible. The PHaMs Employment worker must ensure the client completes the new PHaMs consent form to collect, use and disclose personal information. The updated form specifically addresses consent to disclose their Centrelink Customer Reference Number (CRN), which is a requirement of PHaMs Employment services. Send an email to the Mental Health Mailbox (mentalhealth@dss.gov.au) requesting that the transferring client’s EST be reopened in order to enter the clients PHaMs Employment information. DSS will confirm by email that the EST has been reopened and is accessible to make changes/update. The PHaMs Employment worker should then enter and complete the PHaMs Employment section (Question 42-46) of the EST, accept the applicant and finalise the EST. Note: When a client moves from one area to another and a referral is made from the current PHaMs provider to the new PHaMs provider, the new provider should proceed in a proper, fair and equitable manner and follow due process. 38 Priority should be given to a current transferring client over a new referral. The exception would be if the receiving service did not have the appropriate mechanisms in place to support the requirements of the client being referred. For example, the client may have special needs and the receiving organisation may not have the experience or skills to take on the referral. PHaMs providers must not reject any client based on hearsay or previous history. Turning away referrals In the event that demand for services exceeds caseload recommendations, service providers will need to turn away new referrals. DSS expects service providers to provide the potential client with information about alternative services which could assist them in the community. DSS requires service providers to collect turn away number totals and reasons as part of routine reporting. DSS does not require service providers to keep a list detailing people who have been turned away (although service providers may wish to for purposes of filling vacancies as they occur). Exiting clients When a client exits a PHaMs service, the service provider must complete the exit form which is located on the DSS portal. This form captures information about the reason for exit, general client demographics, and any referrals or supports established for the client. This information forms part of the regular reporting obligations to DSS. PHaMs service providers will ensure that clients exiting PHaMs have adequate alternative supports in place should they require them 39 Attachment D: The PHaMs team and roles Personal qualities Service providers are expected to employ Personal Helpers and Mentors with a range of backgrounds, qualifications, skills and knowledge, relevant to working with people who have a mental illness. All Personal Helpers and Mentors team members should have the following attributes, personal skills and knowledge: compassion, patience and ability to empathise genuine commitment to helping people who have a mental illness in their recovery, a capacity to relate to them with dignity and respect, and as a unique person ability to think and act calmly and deal sensitively with distress and unpredictable behaviour knowledge of mental illness and skills in working with people experiencing mental illness ability to promote the rights, responsibilities, and recovery of clients effective listening and communication non-judgmental knowledge of when to seek help or supervision and how to work in a team environment capacity to understand and promote mental health issues and consumer rights and responsibilities creative approach to problem solving promotion of ethical behaviour and anti-discriminatory practice that treats clients, family and staff with dignity and respect, and balances the right to privacy and confidentiality with duty of care cultural competence ability to work safely knowledge of local community resources. Roles Each PHaMs worker is expected to have a caseload of clients. There are also additional roles that a PHaMs worker may undertake, including specialist roles such as a Peer Support Worker, Cultural Broker or PHaMs Employment Worker. A PHaMs worker may have more than one specialist role within the team and more than one team member can undertake the same specialist role. Each role within the PHaMs team has been carefully considered and developed to form an integral part of the overall PHaMs team and is crucial to the success of the team. No one role is more or less significant than any other – they each play their own part in ensuring a balanced team. 40 Team Leader role Ideally, the Team Leader should be the most qualified or experienced member of the team as it is their responsibility to provide direction and support to the whole team and to facilitate team connections with local community and clinical services. Peer Support Worker role The Peer Support Worker is a specialist role within the PHaMs team. Peer support workers are individuals with a lived experience of mental health issues. In PHaMs, the Peer Support Worker engages with clients at a personal level, assisting or supporting them through their recovery journey using their own experience of mental illness and recovery. Peer Support Workers know what it is to have a mental illness, the difficulties and the challenges to be faced. They can engage and encourage clients in a way that no-one else can because they have lived or shared a different but similar experience and learned how to get through it and regain better control of their life. Peer Support Workers can share their own recovery journey (the ups and the downs) and show that recovery is possible. They can encourage clients to share their own stories and experiences, help them to reflect on their progress and provide them with hope and optimism for the future. They may also be able to provide practical ways to cope or manage difficulties based on their personal experiences. The Peer Support Workers role has been designed to focus on: Promoting a team culture where the views and preference of clients, family and carers for recovery are recognised, understood, valued and respected. Educating the PHaMs team about the personal experience of living with a mental illness in addition to any clinical or text book knowledge of mental illness. Representing the perspective of the client to the PHaMs team to ensure workers understand how mental illness affects the client, their family, their life and how they want PHaMs to help them on their recovery journey. The Peer Support Worker may provide support to clients where they are unable to clearly explain their thoughts or experiences to another team member. Providing support to clients that comes from the perspective of someone who has already lived or experienced the recovery journey and can understand, support and encourage them. The Peer Support Worker may also take an active role establishing and participating in client support groups. A Certificate 4 in Mental Health Peer work has now been established. DSS encourages on-going training for all Peer Support Workers. Case Worker role The Personal Helpers and Mentors Case Worker role is focused on developing a relationship with a client, understanding the client's personal needs, goals and aspirations. They then provide opportunities, support and services to develop or redevelop the client’s skills, build their confidence and help them to reconnect with the community. The PHaMs Case Worker also ensures that services accessed by PHaMs clients are appropriate, coordinated and integrated. They provide direct and personalised assistance through outreach services and link the client with other appropriate services that support 41 their needs. This is not just a paper referral process rather a personal support that could and often does involve going with a client to ensure they feel safe and secure and supporting them until they are comfortable doing it on their own. PHaMs case workers are directly involved with PHaMs clients – from assessing eligibility and needs (using the EST and other methods) through to developing and monitoring IRP’s that reflect the client’s goals and aspirations and linking them with other clinical and community support services and case managers. The role could involve some advocacy, mediation, conflict resolution with family and others, and supporting the development of skills for daily life and independent living. It is a complex and very varied role but is always focused on developing a trusting, respectful relationship. Cultural Broker role The Cultural Broker helps to bridge the gap between the PHaMs service and the local community. The Cultural Broker builds team awareness and understanding of the cultural factors of the community and of the ways in which these factors influence the community. Cultural Brokers are an important specialist role for sites in remote Indigenous remote communities. Cultural Brokers can be also considered for targeted PHaMs services or in a site with a high number of CALD community members. Cultural Brokers should have a history and experience with the local community, which means that they have: the trust and respect of the community knowledge of the values, beliefs, and health practices of the community knowledge of different groups within the community and how they identify an understanding of traditional and Indigenous wellness and healing networks within the community experience and knowledge of the PHaMs service and health and community support services in the community. The Cultural Broker can have many roles: Liaison and advocacy – help to ensure more effective communication and liaison between clients (family, carers and community members) and the PHaMs team. Advocate for clients to ensure that the services they receive are most effective and meet their needs. Cultural competency – can help the PHaMs team to incorporate culturally and linguistically competent principles, values, and practices. They can ensure the PHaMs team environment is safe, non-threatening and non-judgemental for clients and community members. They can advise about non-traditional ways to deliver services that could be more effective in the local community context. They can help to develop educational and promotional materials that will help clients and the community to learn more about the PHaMs service and mental health more generally. Mediation – Cultural Brokers can help to ease the historical and inherent distrust that may exist between the community and the PHaMs team (as outsiders to the community). To do this, the Cultural Broker must be able to establish and maintain trust and have the capacity to devote sufficient time to build meaningful relationships between the PHaMs team and clients. The use of the Cultural Broker in this role should improve access to PHaMs services in the community. 42 Models and mentors – They model and mentor behavioural change, which can break down bias, prejudice, and other institutional barriers that exist. They work toward changing attitudes and relationships, so that the PHaMs team can build capacity from within to adapt to the changing needs of the community. Cultural Brokers have a range of skills that enable them to: communicate in a cross-cultural context communicate in two or more languages (at least one should be English and the other language from the community) interpret and/or translate information from one language to another advocate with and on behalf of clients and community members negotiate health care and other service delivery systems mediate and manage conflict. The benefits of using a Cultural Broker include: more positive experiences for clients and an increased likelihood of access to services service delivery that is more effective and better received because it respects and incorporates community cultural perspectives community members are more likely to seek support (and sooner) if they know that the PHaMs team understands and respects their cultural values and health beliefs and practices clients will be better able to communicate their needs more effectively and better understand their support and recovery options. PHaMs Employment worker The role of the PHaMs Employment worker will include providing intensive support to 10 to 12 clients, for a maximum of 6-12 months. This will include: working directly with the clients and providing practical support to address issues in their lives that have been identified as barriers to employment, for example securing stable housing and improving relationships with family. supporting the client’s family and support networks as needed to ensure they understand and support the client’s transition to work. communicating with clinical and primary care providers to ensure they are aware and supportive of client’s employment goals and tailor treatments accordingly. assisting clients to navigate employment services and Centrelink systems, including referring clients to appropriate employment services and accompanying clients and advocating for them at appointments and assessments. providing less intensive ongoing support to 10 to 12 clients, for 1-2 years, including ‘checking in’ with clients on a regular basis about their progress. being available to both the client and employer to assist if circumstances change and/or a client’s job is in jeopardy (for example, the person has an episode of their mental illness). The PHaMs Employment worker will be required to work closely with employment consultants, including: Coordinating supports for clients, to ensure roles are complementary, not duplicatory. 43 preparing client profiles which can be given to an employment consultant to assist their understanding of a client’s background, current circumstances, skills and employment goals. providing on-the-job support as necessary, to assist the client to maintain a job – particularly beyond the 13 and 26 week points, when the capacity of employment consultants to provide ongoing support reduces. facilitating employment peer support networks and activities. The PHaMs Employment worker will have an important role in building the capacity of general PHaMs services to better assist clients to achieve employment goals, through such things as assisting services to navigate the employment services system and training of PHaMs workers. This capacity building role will also include: providing an education service for both employment services and employers to build their capacity and willingness to work with clients and employees with mental health issues. publicising and marketing the availability of PHaMs employment support to employment services and other referring agencies. promoting the benefits of employment for people with mental illness. 44 Attachment E: Individual Recovery Plans (IRP) The Individual Recovery Plan (IRP) is central to PHaMs effectiveness and success, as it is the basis around which all activities take place. It is how a client’s aspirations, goals, planned activities and services, achievements and progress are recorded. Every client in PHaMs must have an IRP tailored to meet his/herneeds. Service providers operating in designated remote service sites or who are providing services to CALD clients may need to arrange to have the IRP developed in the client’s first language or develop other suitable arrangements to ensure clients are aware of and kept informed about changes to the content of their IRPs. IRP principles The IRP is central to the PHaMs principle of client empowerment. The following principles must be followed when working with clients to develop recovery plans. The client is central to all planning processes. Discussions between the client and their PHaMs worker should be based on the client’s life goals, not just their mental illness. The IRP should focus on the client’s goals aspirations and preferences and affirm the strengths, talents and capacities of the person. Other people involved in the IRP development need to be personally invited by the client. The IRP is a living document and can and should be regularly reviewed to reflect the person’s recovery journey. It should be updated six monthly as a minimum. At this time, PHaMs workers are encouraged to seek feedback from the client on their experiences of the service and any recommendations they may offer. The IRP is owned by the person and not the PHaMs service. It is considered as ‘Mary’s IRP’ rather than ‘the IRP for Mary’. The client should always be able to have a copy of their plan and know exactly what is in it. Nothing should be in the IRP that the client did not agree to. The IRP should use the client's language or way of expressing their needs and goals and not service or clinical language. The process of planning and developing an IRP is a shared responsibility between a PHaMs worker and the client. It is not something prepared without the client. The plan should be entirely directed by the client. The client should have all the options presented and explained to them and be allowed to make choices that are always to be respected. Developing an IRP A sample IRP is provided at Attachment F and it is also on the PHaMs portal. Service providers adapt the sample template or develop a new plan template. However, there are some key elements that should be contained in any IRP that is used for PHaMs. Key elements of an IRP The key elements that must be contained in a PHaMs IRP are: identifying a client’s strengths, goals and aspirations 45 identifying areas where support is needed by the client (this can be done through using the EST based on conversations with the client) detailing any planned activities that the client wishes to undertake (including when and how these are to occur and who is responsible for arranging them) recording any referrals made to other services a crisis/care plan which documents what is to happen in the event that the client becomes unwell or a crisis occurs. 46 Attachment F: Individual Recovery Plan SAMPLE Case Example: Fred is a 24-year-old man who has experienced several occasions where he hears voices commenting on and directing his behaviour. Fred’s first experience of this was during his teenage years when he was living with his family in a rural area, and it was apparent it interfered with his schoolwork. Fred and his family gained assistance through their GP and local mental health service. With therapy and the support of family and community, the voices disappeared and Fred was able to complete his schooling and gained entry to a tertiary institution in the city. In the city, Fred slipped into a demanding study, social and part-time work schedule. At the end of his first-year exams, he heard voices again but found that alcohol and sleeping later helped to manage them. During his break, he focused on employment to save for the year ahead, and the voices went away. Over the next two years Fred found that the voices would return with more frequency and he needed to drink and sleep more to prevent them interfering. Unfortunately, during this time he stopped studying, lost his employment as a result of his drinking and eventually lost his accommodation. Fred goes to a homeless centre for food, company and to gain any other help he needs. He has been living on the streets and in homeless shelters. Last week, he went to the centre and said he does not want to keep living this way and wants to regain his life but does not know where to start. The worker in the homeless centre discussed the Personal Helpers and Mentors Activity with Fred, who agreed to give the Activity a try. Fred met a Personal Helper and Mentor, agreed to an assessment and was found to be eligible. The Eligibility Screening Tool highlighted a number of areas Fred might focus on for his recovery journey. Fred has discussed these with his Personal Helper and Mentor and prioritised his goals and considered his next steps. Fred, in discussion with the Personal Helper and Mentor has identified the following plan which he would like to follow for the next three months. 47 Personal Helpers and Mentors Program Individual Recovery Plan – SAMPLE Client Name Fred Areas of need identified in assessment Nowhere to live Sometimes can’t control voices and this distresses me and stops me from doing things No money, usually benefit goes on alcohol Difficulty changing lifestyle because can’t access help Loss of contact with supportive people who can help recovery My strengths Good sense of humour A relaxed attitude towards self and others, used to be a good mate to others Previously had a strong relationship with family A good mind and academic ability - commenced environmental studies Able to survive when homeless Know when becoming unwell A good and willing worker when well and holds employment skills – able to work on farms, in hospitality, and in research and related to environment Previously played sport: soccer, tennis, cricket My goals and aspirations Find somewhere to live Stay well for longer Gain work Planned activities – Refer to planning worksheet at the end of this document What I can do to stay well Get some help when I notice I am becoming unwell. Limit alcohol. Slowly become more involved with activities and people that I enjoy which will support recovery. People who can support me 48 Who Phone number What I need them to do Toby – Personal Helper and Mentor 55501555 Reassure me that I can manage this; remind me of the steps to take. Help me get the assistance I need; including food and payments. Jenny – Homeless Centre Worker 55015555 Listen to me and help with getting assistance if Toby is not available Nathan – Friend 55555501 Tell me if I am losing it; help me phone Toby and Joe; make sure my bills are paid and I stay in touch with people. Joe – GP 55550155 Listen to what I am experiencing and help me with medication and getting the levels right. I do not want the following people involved in any way in my care (list names and (optionally) why you do not want them involved) Joanne – ex-girlfriend. Do not want her involved because she convinces me to drink more. Signs that I may be beginning to feel worse: anxiety, excessive worry, overeating, sleep disturbances When I don’t get enough sleep, when others are pressuring me for money or to drink, and when I notice I am beginning to worry, my mind goes over and over things, I can’t make a decision, and I begin to hear voices. What I can do if I am starting to feel worse: mark those that you must do--the others are choices *Tell Toby and Nathan what is happening. *Follow the directions of Toby and Nathan. What I want from my supporters when I am well Listen to me and respect that I know what I am doing and what I need to do. Help with moving towards my goals. What I don’t want from my supporters when I am unwell To make decisions about me and what I should do. To talk to others about me without my agreement. How I want disagreements between my supporters settled I will decide what will happen for me. 49 If I am unwell I trust Jenny to settle the disagreement because she has known me a long time. Things I can do for myself I can speak to others on my own behalf, although at times I may need someone to provide supportive references. I can judge when I am becoming unwell. Record of referrals Name of Agency referred to Date referred Date accepted Ongoing assistance/support required SAAP/Community Housing Priority access for housing GP Treatment review, Application for DSP Centrelink Application for DSP Budget advisor Discuss options for managing money and gaining bond money Community cricket Return to sporting activities Contact This plan was completed on / ___________________________ ________________________________ Client name Signature Original to Clien Copy on file / 50 Planning Worksheet (SAMPLE) Task or Responsibility Step When you would like to take this step Get to know Toby Meet Toby twice a week for two weeks at the Homeless Community Centre for coffee and a talk. Decide in 2 weeks if the Personal Helpers and Mentors Activity is right for me. Immediately Apply for assistance to gain accommodation Appointment with Housing to apply for private housing assistance. Toby will come with me. Next week Money for rental bond Appointment with budget counsellor to help with letter of support. Appointment afterwards with Centrelink for rental assistance. Toby will come with me. Next week Get better control of voices Appointment with GP Joe and Tony to discuss voices and how best to manage these. This week Get better control of alcohol Appointment with Alcohol counsellor to talk about strategies. Two weeks Reconnect with others that will help maintain health Return to cricket through the local community cricket game. Starts next month 51 Attachment G: Organisational cultural competence Definition of cultural competence Cultural competence is the ability to interact effectively with people across different cultures. It has four main components: being aware of one’s own cultural worldview (one’s own assumptions and biases that could affect decision making and actions) having a positive, respectful and accepting attitude towards cultural differences having knowledge of different cultural practices and world views having good cross-cultural communication skills. A person who is culturally competent can communicate sensitively and effectively with people who have different languages, cultures, religions, genders, ethnicities, disabilities, socio-economic backgrounds, ages and sexualities. Culturally competent staff strive to provide services that are consistent with a person’s needs and values. Culturally competent services In delivering culturally competent services, service providers should: Seek to identify and understand the needs of specific special needs groups (Indigenous, Culturally and Linguistically Diverse (CALD), Humanitarian Entrants etc) within the site. Investigate, understand and take into account a client’s beliefs, practices or other culture-related factors in designing services. At all times be respectful of a client’s cultural beliefs and values. Ensure that the work environment and practices are culturally inviting and helpful. Ensure that services are flexible and adapted to take account of the needs of specific special needs groups and individual clients. Provide access to culturally specific training and supports to improve team understanding of the local community groups and effective communication methods. Regularly monitor and evaluate cultural competence of the service and staff (including obtaining input from clients and the community). Use information and data about specific special needs groups to inform planning, policy development, service delivery, operations, and implementation of services. Organisational cultural competence It is important that cultural competence is valued and is a key consideration at the organisational level. Consideration of the following will assist to improve organisational cultural competence. Is the organisation’s governing body educated about cultural competence? Are community members represented on the governing body and advisory committees? 52 Does the organisation have both formal and informal alliances and links with local community representative groups? Are regular reports provided to key stakeholders on the cultural competence activities undertaken? Is cultural competence embedded in the philosophy, mission statement, policies and key objectives? Does the organisation have formal cultural competence-related policies (that were formulated with input from the community) regarding staff recruitment and retention, training and staff development, language, access and communication, cultural competence-related grievances and complaints? An effective complaints mechanism is important to all clients that are vulnerable and should also be easily accessible and useable by CALD or Indigenous Australians with specific cultural needs. Does the organisation have processes in place to obtain client, community and staff input in the development of cultural competence-related plans? Does the organisation regularly self-assess cultural competence? How can the organisation collect client-level cultural competence-related information, conduct regular community needs assessments and evaluate cultural competencerelated activities? How will this data inform service quality improvement activities? How are Individual Recovery Plans conducted for clients where English may not be a first language? What types of culturally appropriate materials are required to communicate effectively? Is signage and key written materials available in the language(s) of the local community and appropriate to the literacy level of your community? This can be expensive so are there alternative strategies that can be use? Does the organisation recruit staff with suitable skills and experience who are connected with the local community and can provide appropriate support? Are there any cultural issues in doing this? 53 Attachment H: Incident Report Form PERSONAL HELPERS AND M ENTORS INCIDENT REPORT ORGANISATION: _________________________________________________________________ SERVICE ACTIVITY (PHAMS ):______________________________________ SITE:_________________________________________________________________________ DETAILS OF INCIDENT DATE OF INCIDENT:________________________TIME OF INCIDENT:____________________________ NO. OF INDIVIDUALS INVOLVED: ______________GENDER OF INDIVIDUALS INVOLVED:___________ AGE OF INDIVIDUALS INVOLVED: ______________STATUS OF INDIVIDUALS INVOLVED (STAFF, CLIENTS ETC):____________________________ WHERE DID THE INCIDENT TAKE PLACE?__________________________________________________ WHAT OCCURRED? (DESCRIPTION OF INCIDENT)___________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ RESPONSE TO THE INCIDENT:___________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________________ ACTION THAT HAS BEEN TAKEN OR CAN BE TAKEN TO PREVENT THE INCIDENT FROM HAPPENING AGAIN:_______________________________________________________________________________ _____________________________________________________________________________________ _____________________________________________________________________________ ________ _____________________________________________________________________________________ _______________ HAS THERE BEEN OR IS THERE LIKELY TO BE MEDIA COVERAGE OF THE INCIDENT;_____________ _____________________________________________________________________________________ NAME OF SITE MANAGER:__________________________________DATE:________________________ 54 SIGNATURE OF SITE MANAGER: _________________________________________________________ GUIDELINES FOR REPORTING INCIDENTS Providers should report incidents to their DSS Grant Agreement Manager within 24 hours of occurrence/discovery. Reportable incidents include: death, injury or abuse of a client while in a provider’s care death, injury or abuse of staff or volunteers undertaking delivery of PHaMs tasks inappropriate conduct between a participant, especially a child or young person, and employee significant damage to or destruction of property impacting service delivery adverse community reaction to the PHaMs activities misuse of the PHaMs funding. 55 Attachment I: Using the Personal Helpers and Mentors logo PHaMs logo and branding instructions The logo has been issued for the purposes of the promotion of the Personal Helpers and Mentors service only. The PHaMs logo should be used according to the following guidelines: the logo should appear in its entirety. the logo should appear in colour (see CMYK and Pantone values below) or greyscale ONLY. No other variation is permitted. the CMYK values for the colour logo are 73.100.0.0. The Pantone value is 527C. the logo should be no smaller than 40mm wide to ensure the text remains legible, and no other font should be substituted. if the logo is resized, the proportions must be maintained. the logo must contrast strongly with the background: it should not be placed on colours similar to the blue and purple used in the design. for ease of use, the preference is for the logo to be used against a white background. the greyscale and white version of the logo should be used when the document will be printed in black and white. the logo and its component parts should NOT be distorted or modified in any way. the ‘Personal Helpers & Mentors’ text font is Helvetica Neue. PHaMs - using the logo The logo should always include the "An Australian Government Initiative" text. The logo must be either greyscale logo (with shades of grey and black) OR colour. Do NOT distort the logo. The logo should NOT appear on merchandise or stationery. The logo should NOT be used with service provider or auspice body branding. The logo has been issued for the purposes of the promotion of the Personal Helpers and Mentors service only and has been given to PHaMs service providers on this basis. If you have any queries, please contact your PHaMs Grant Agreement Manager. 56 The logo should always include the ‘An Australian Government Initiative’ text The logo must be either: greyscale logo (with shades of grey and black) OR Colour Do NOT distort the logo 57 The logo should always include the ‘An Australian Government Initiative’ text The logo should NOT appear on merchandise or stationery PLEASE NOTE The logo can only be used with the permission of the Australian Government Department of Social Services. If you have any queries, please contact your PHaMs Grant Agreement Manager. QUERIES 58 Attachment J: PHaMs services operating in NDIS sites The National Disability Insurance Scheme Funding for Personal Helpers and Mentors (PHaMs) is transitioning to the National Disability Insurance Scheme (NDIS). To facilitate the transition of PHaMs funding to the NDIS these Guidelines take into consideration the different transition arrangements across the country. Each site is transitioning to the NDIS with different timeframes and for different cohorts. It is the responsibility of each PHaMs service to understand when the NDIS is being phased in for their clients. Information about transition to the National Disability Insurance Scheme is available at www.ndis.gov.au Registration Services operating in an area where the NDIS is available are required to register with the National Disability Insurance Agency. The registration form and other important information is available at www.ndis.gov.au. Services must register to enable the use of in-kind funds for NDIS-eligible clients. Funding PHaMs services in NDIS sites operate on an ‘in-kind’ arrangement. This means PHaMs services will continue to receive block funding with a portion notionally committed to the NDIA by the Commonwealth, to fund supports provided to NDIS clients. In-kind service provision is when an organisation provides a support to an NDIS client and lodges a claim (also known as ‘drawing down’) against its notional in-kind allocation. The in-kind allocation has been calculated based on the number of clients in the service area who are expected to be eligible for the NDIS. In-kind allocations, do not impact on existing levels of funding for providers. Claiming in-kind on the NDIS portal does not generate a payment from the NDIS however it draws down against the allocated in-kind amount. Claims are made against the NDIA catalogue of supports. Providers can only claim for supports they have registered to provide. In-kind services can be provided either to existing programme clients who have become NDIS clients, or new clients with an individually funded support package through the NDIS who become PHaMs clients. DSS will advise the amount of in-kind allocations for providers. These figures are also available on the NDIS Provider Portal. Providers must make their best efforts to draw down their in-kind allocations. The Department will monitor draw-down and will work with providers to address any issues or concerns. Once providers have exhausted their in-kind allocation they can claim fee for service through the NDIA. Please note that providers must not claim fee for service through the NDIA and use PHaMS block funding for the same support provided to the same client. Any supports provided through an NDIS individually funded plan must be either funded by drawing down against the in-kind allocation or claimed as fee for service from the NDIA. 59 National Disability Insurance Agency (NDIA) PHaMs service providers are expected to work closely with the NDIA in their localities in order to: • support existing clients to test their eligibility for NDIS support • refer applicants for PHaMs services to the NDIA if they are potentially eligible for NDIS support, i.e. the applicant meets geographic and/ or age cohort requirements • establish and/or promote referral pathways to the NDIA (where relevant) so that people who are potentially eligible for NDIS support are referred to the NDIA in advance of PHaMs services • participate in local planning and coordination activities as relevant. Clients As the NDIS becomes available in PHaMs service catchment areas, service providers are required to support clients (meeting geographic and age cohort requirements) to test their eligibility for the NDIS. This may involve assisting clients to gather relevant documentation, complete application forms and attend meetings with the NDIA. If a client is deemed eligible for the NDIS, the PHaMs service can continue to provide support to that client. The PHaMs service must draw down against its in-kind funding for any services delivered that are identified in a client’s Individually Funded Package (IFP). Please note that providers must not claim fee for service through the NDIA and use PHaMs block funding for the same support provided to the same client. Any supports provided through an IFP must be either funded by drawing down against the in-kind allocation or claimed as fee for service from the Agency. Caseloads The time required to assist clients to access the NDIS, or the extra supports clients are receiving in their IFPs, may impact caseloads. Services must discuss any difficulties in meeting their caseloads with their Grant Agreement Managers. The Department will work with providers to address issues that are impacting on caseloads as they are identified. Reporting In addition to reporting through the DSS Data Exchange, providers in NDIS sites must complete a table that identifies clients accessing the NDIS and the outcomes of the access process. This must be completed quarterly to enable the Department to monitor the transition of PHaMs to the NDIS and to understand the experiences of people with psychosocial disability and providers to inform the full roll out of the NDIS. 60 Attachment K: PHaMs services operating in an NDIS My Way Site The Western Australia (WA) NDIS My Way Model From 1 July 2014, Western Australia started participating in a two-year trial of the National Disability Insurance Scheme (NDIS). The NDIS trial in WA includes the implementation of two different models in different locations over a two-year period: the Commonwealth’s National Disability Insurance Agency (NDIA) NDIS model and the State Government's WA NDIS My Way model The WA trial provides an opportunity to compare and contrast the two different models. Both models will be independently evaluated over the two-year trial period and the outcome will inform how disability services are provided into the future in WA and nationally. The WA NDIS My Way model is being implemented by the WA Disability Service Commission (DSC). Registration Organisations wanting to provide supports and services as part of the WA NDIS My Way trial need to apply to be on the Disability Services Commission’s Panel Contract for Individually Funded Services. Funding PHaMs services in NDIS My Way sites operate on an ‘in-kind’ arrangement. This means PHaMs services will continue to receive block funding with a portion notionally committed to the WA Disability Services Commission by the Commonwealth, to fund supports provided to NDIS My Way clients. The in-kind allocation has been calculated based on the number of clients in the service area who are expected to be eligible for the NDIS. WA Disability Services Commission (DSC) PHaMs service providers are expected to work closely with the DSC in their localities in order to: • support existing clients to test their eligibility for support • refer applicants for PHaMs services to the DSC if they are potentially eligible for support, i.e. the applicant meets geographic and/ or age cohort requirements • establish and/or promote referral pathways to the DSC (where relevant) so that people who are potentially eligible for support are referred to the DSC in advance of PHaMs services • participate in local planning and coordination activities as relevant. Clients As the NDIS My Way becomes available in PHaMs service catchment areas, service providers are required to support clients (meeting geographic and age cohort requirements) to test their eligibility for the NDIS. This may involve assisting clients to gather relevant documentation, complete application forms and attend meetings with the DSC. Please note that providers must not claim fee for service through the DSC and use PHaMs block funding for the same support provided to the same client. Caseloads The time required to assist clients to access the NDIS, or the extra supports clients are receiving in their IFPs, may impact caseloads. Services must discuss any difficulties 61 meeting caseload requirements with their Grant Agreement Managers. The Department will work with providers to address issues that are impacting on caseloads as they are identified. Reporting In addition to reporting through the DSS Data Exchange, providers in NDIS My Way trial sites must complete a table that identifies clients accessing the NDIS and the outcomes of the access process. This must be completed quarterly to enable the Department to monitor the transition of PHaMs to the NDIS and to understand the experiences of people with psychosocial disability and providers. 62