Beth A. Stroul, M.Ed. 4th Annual DC Summit Now is the Time: Promoting and Implementing Evidence-Based Solutions for Mental Health October 8, 2014 What are states and communities doing to improve outcomes and investments, why they’re doing it, and how they’re doing it…….. What? Expanding the system of care approach Why? Evidence-based practice with documented positive outcomes How? Developing and implementing strategies for wide-scale system change 20% with diagnosable mental health condition 2-5% serious condition with functional impairment, one of most expensive populations across systems New Medicaid data on 29 million children (Pires, et al) › For children using behavioral health services, mean physical and behavioral health care expenditures $8,520/year – 5 times higher than Medicaid children in general ($1,729/year) › Expenditures driven by behavioral health services used Substantial resources still being invested in highend, high-cost services across systems over and above Medicaid High cost of doing nothing (Pires) Pyramid of Population of Children and Service Needs More complex needs 2 - 5% Intensive MH Services +Supports Intermediate MH Services + Supports 15% Less complex needs Pires, 2006 80% Basic MH Services or No MH Services Universal MH Promotion and Prevention Universal Screening or for AtRisk Populations Early Identification Poor outcomes › School dropout › Substance use › Suicide › Poor vocational success › Correctional system involvement › Inability to live independently High financial costs across state systems, high social costs to families and nation What? The System of Care Approach Framework and philosophy for children’s mental health services Shaped the work of states, communities, tribes, and territories – some elements in nearly all communities Shaped national policy (Surgeon General’s Report, President’s New Freedom Commission Children’s Sub-Committee) Used as framework for reform by partner child-serving and some adult systems Broader application than for youth with serious mental health conditions (e.g., recovery-oriented SOCs for substance use conditions) “A spectrum of effective, community-based services and supports for children and youth with or at risk for mental health or other challenges and their families, that is organized into a coordinated network, builds meaningful partnerships with families and youth, and addresses their cultural and linguistic needs, in order to help them to function better at home, in school, in the community, and throughout life.” Home and Community-Based Treatment and Support Services Assessment and evaluation Individualized “wraparound” service planning Intensive care management Outpatient therapy – individual, family, group Medication management Intensive home-based services Substance abuse intensive outpatient services Mobile crisis response and stabilization Family peer support Youth peer support Respite services Therapeutic behavioral aide services Therapeutic mentoring Behavior management skills training Youth and family education Mental health consultation Therapeutic nursery/preschool School-based behavioral health services Supported education and employment Supported housing Transportation Out-of-Home Treatment Services Therapeutic foster care Therapeutic group home care Residential treatment services Inpatient hospital services Inpatient medical detoxification Crisis stabilization services Specific evidence-informed interventions and culture-specific interventions can be included in each type of service 1. Family driven and youth guided 2. Community based 3. Culturally and linguistically competent 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. Broad array of evidence-informed services and supports Individualized services Least restrictive, clinically appropriate setting Families and youth as full partners at all levels Cross-system collaboration at system level Care management for coordination at services level Services and supports for young children and their families Services and supports for youth and young adults in transition to adulthood Incorporate or link with mental health promotion, prevention, and early identification and intervention Continuous accountability mechanisms Rights protection and advocacy Nondiscrimination Not a “model” to be “replicated” like a manualized treatment Not a single “program,” but a coordinated network of services across agencies Not a “treatment or clinical intervention” that directly improves child and family outcomes without accompanying changes at the practice level to provide effective services and supports to achieve positive child and family outcomes System Change + Practice Change = Improved Outcomes Paradigm shift, vision, value base Organizational framework for system reform Not a prescription, but a guide with flexibility to implement in a way that fits each state, tribe, territory, community Adapt the approach based on context (political, administrative, fiscal) Multilevel intervention – Changes at state, local system, and practice levels Why? Evidence of Improved Outcomes and Investments Federal Children’s Mental Health Initiative established by Congress in 1992 to fund communities, tribes, and territories to implement the SOC approach National evaluation of the CMHI and other studies have found: › Positive outcomes for children and families › Improvements in systems and services › Better investment of limited resources Results have led to efforts to expand implementation of the approach so more children and families benefit Stroul, Goldman, Pires, & Manteuffel, 2012 Decrease behavioral and emotional problems (depression, anxiety, aggression) Decrease suicide rates Decrease substance use Improve school attendance and grades Decrease involvement with juvenile justice Increase stability of living situations Increase strengths Decrease caregiver strain Increase capacity to handle their child’s challenging behavior Improve problem-solving skills Increase ability to work Increase peer-to-peer support Increase family education and supports Improve the service experience of caregivers and youth Improve system management Create interagency partnerships (structures, agreements, braided funding) Result in systematic development and implementation of strategic plans to improve services Improve requirements in contracts with MCOs, providers, regulations, Medicaid rules, standards, practice protocols Improve accountability and use of data for quality improvement and decision making Expand services to broad array of home and community-based services Customize services with individualized, wraparound approach to service planning and delivery Improve care management and coordination (especially for youth with most complex, costly problems) Increase family-driven, youth-guided services Increase cultural and linguistic competence of services Increase use of evidence-informed practices Increase training of children’s mental health workforce Redeploy resources from higher cost restrictive services to lower cost home- and community-based services and supports Increased utilization of home- and communitybased treatment services and supports Decreased admissions and lengths of stay in out-of-home treatment settings (e.g., psychiatric hospitals, residential treatment, juvenile justice, and out-of-school placements) Cost data demonstrating impact on costs across systems (e.g., reduced out-of-home placements in child welfare and juvenile justice with substantial per capita savings) New ROI document shows savings in short term and future Stroul, Pires, Boyce, Krivelyova, & Walrath, 2014 Outcome Cost Savings Reduced Inpatient Use Average cost/child reduced by 42% $37 million saved when applied to all children in funded SOCs Reduced ER Use Average cost/child reduced by 57% $15 million saved when applied to all children in funded SOCs Reduced Arrests Average cost/child reduced by 39% $10.6 milling saved when applied to all children in funded SOC Reduced School Dropout Fewer school dropouts in SOCs (8.6%) than national population (20%) Potential $380 million saved when applied to all children in funded SOCs (Based on monetizing average annual earnings and earnings over lifetime) Reduced Caregiver Missed Work Estimated 39% reduction in average cost of lost productivity (Based on imputed average daily wage of caregivers) Outcome Cost Savings Oklahoma 41% reduction in average total behavioral health charges vs. 17% reduction for control group 60% reduction in average inpatient charges vs. 17% for control group Savings of $357 per youth per month, projected $18 million savings if all youth in study participated in SOC Wraparound Milwaukee $3,200 average total all-inclusive cost per child per month vs. $6,083 group home, $8,821 correctional facility, $9,460 residential treatment, $39,100 inpatient Massachusetts, Mental Health Services Program for Youth (MHSPY) Total per child per month Medicaid claims expense less than half for SOC group vs. comparison group (both physical and behavioral health) Claims 31% lower for ER, 73% lower for inpatient Child Welfare – Alternatives to out-of-home care with high costs and poor outcomes Medicaid – Alternatives to inpatient and PRTFs Juvenile Justice – Alternatives to detention and correction facilities with high costs and poor outcomes Education – Alternatives to out-of-school placements and high special education costs Substance Use – Alternatives to out-of-home treatment, improved outcomes for youth with co-occurring conditions Pires, 2006 Evidence-Based Practice Approach In Systems of Care Team-based, collaborative process for implementing individualized, tailored care plans Primary strategy for operationalizing the SOC approach at service delivery level Typically for children with complex needs and their families, but can be applied for all levels of need Evidence-based “process” that cuts across all clinical interventions and formal and informal supports Resources from National Wraparound Initiative Child and Family Team – Family members (and youth as appropriate), involved providers, members of the family’s support network collaborate to create a customized care plan Intensive Care Coordination – Dedicated wraparound facilitator/care coordinator organizes and manages process across systems (small ratio) Individualized Service Plan – Includes and coordinates the entire array of needed services and supports require Partnership with Families and Youth – experts in analyzing the issues in their lives and potential strategies to address them Peer Support – Peer support for families with “family partners” with lived experience and increasingly youth peer support Collaboration – All agencies and providers work together to reduce fragmentation and ensure coordination Strengths Based – Incorporates strengths and assets to build on, enhances engagement and resiliency Ecological Perspective – Addresses multiple life domains Mental Health Family/ Surrogate Family Educational/ Vocational Living Arrangement Social/ Recreational Crisis/Safety Cultural/ Linguistic Substance Use Medical Income Legal Spiritual Move to less restrictive environments Improved functioning based on CAFAS scores Improved school attendance and grades, fewer disciplinary actions Fewer out-of-home placements and days in placements Fewer arrests, less detention, lower recidivism rates Improvement on standardized measures of behavioral and emotional problems ROI, such as 29% reduction in Medicaid spending, 74% lower inpatient costs, 32% lower ER costs, 29% lower residential treatment costs, expenditures half of comparison group Bruns & Suter, 2010 How? Strategies for Expanding Systems of Care Innovation to Widespread Adoption Purpose to expand the SOC approach statewide and throughout territories and tribes Planning grantees develop strategic plans for expansion Implementation grants provide up to $1million per year for 4 years to support implementation of the SOC approach statewide Informed by a study of expansion strategies that identified five core strategy areas for SOC expansion (implications for widespread adoption of any innovation) System of Care Expansion Planning and Implementation Need and Inputs Need Need for wide-scale adoption of SOCs: • SOCs are in selected communities but not yet implemented broadly • Positive outcomes for SOCs documented • More children, youth, and young adults and their families could benefit State-Community Partnerships Expansion Planning Activities Expansion Implementation Activities State, tribes, or territorial systems and community system(s) create partnerships for twolevel expansion strategy including: States, tribes, territories, and communities develop comprehensive strategic plans for SOC expansion including: States, tribes, territories, and communities implement SOC expansion strategies at system and community levels including: State, tribal and territorial grantees identify and link with communities for focus of expansion efforts Inputs Federal lnputs: • SOC Expansion Grants for TwoPhase Process of Planning and Implementation • Federal TA • National Evaluation Jurisdiction Inputs: • Previously developed SOC expansion plans • Previous community-level SOC grants • Previous SOC expansion efforts • Resources committed to SOC expansion Community grantees link with lead state agency for youth with mental health conditions for systemic changes to support SOC expansion efforts • Create SOC Expansion Team • Conduct self-assessment and determine areas to be addressed to expand SOCs • Determine goals for expansion at state, tribal, and territorial system level and at community level • Determine overall approach to expanding SOCs with two-level strategy • Identify expansion strategies in core strategy areas of policy, services, financing, training, and strategic communications • Complete a strategic plan that includes key elements • Establish priority goals and strategies • Develop a financing plan Systemic changes in: • Policy and partnerships • Services and supports • Financing • Training and workforce development • Generating support through strategic communications • Evaluation/CQI SOC implementation: • Develop SOC infrastructure • Develop treatment services and supports based on SOC philosophy • Provide services • Collaborate across childserving systems • Incorporate family-driven, youth-guided approaches to systems and services • Incorporate cultural and linguistic competence into systems and services and address disparities Evaluation/CQI – Refine Expansion Strategies Outcomes Outcomes are achieved at the state, tribal, and territorial system level, the community level, and the child and family level including: State, Tribal, and Territorial Level Systemic changes are implemented: • Changes in policy, requirements, interagency partnerships, evaluation/CQI • Changes to develop/expand services and supports based on the SOC philosophy • Changes in financing and resource investment • Changes in training, TA, and workforce development • Changes in support for SOC expansion Community Level SOC approach is implemented: • SOC values/principles are implemented • Home- and community-based services and supports are implemented • SOC infrastructure is implemented • Resources are invested in home- and community-based services and supports • Services and supports are provided to increasing numbers of children with SOC approach Child and Family Level Children and families benefit: • Children and families receive effective home- and community-based services and supports with the SOC approach • Children and families experience positive clinical and functional outcomes • Children and families are satisfied with their service experience Five Core Strategy Areas: 1. Implementing Policy, Regulatory and Partnership Changes 2. Developing or Expanding Services and Supports Based on the SOC Philosophy and Approach 3. Creating or Improving Financing Strategies 4. Providing Training, TA, and Coaching 5. Generating Support Overlapping and Interrelated Organizational locus of accountability for SOCs (state and local) Interagency structures, agreements, and partnerships for coordination and financing Rules, regulations, guidelines, standards, and practice protocols SOC requirements in requests for proposals and contracts SOC approach in data systems and monitoring protocols for outcome measurement and quality improvement Linking with and building on other system change initiatives (e.g., health reform, reforms in other systems) Expanding family and youth involvement at policy level Improving cultural and linguistic competence at policy level Array of home- and community-based services and supports Individualized, wraparound practice approach to services Family-driven, youth-guided services Care coordination and care management Care management entities Provider network with new providers and retooled residential providers Evidence-informed and promising practices and practice-based evidence approaches Cultural and linguistic competence of services Reduce racial, ethnic, and geographic disparities in service delivery Use of technology (e.g., electronic medical records, telemedicine, videoconferencing, e-therapy) Intensive care coordination, wraparound approach Intensive in-home services Mobile crisis response and stabilization Parent and youth peer support services Respite Flex funds Specific evidence-based practices Medicaid Mental Health Block Grants Redeploying funds from higher cost to lower cost services Funds from partner child-serving systems Federal SOC grants and grants to create sustainable financing Case rates or other risk-based financing State mental health and substance use funds Use of federal entitlements other than Medicaid New financing structures and funding streams (e.g., health reform) Local funds Training, TA, and coaching on the SOC approach Ongoing training and TA capacity, training and TA institutes, centers or other structures and processes Training, TA, and coaching on evidence-informed and promising practices and practice-based evidence approaches Strategies to prepare future workforce to work within SOC framework Establishing strong family and youth organizations to support SOC expansion Generating support among high-level policy makers and administrators at state and local levels Using data on outcomes and return on investment to promote SOC expansion Partnerships with providers, provider organizations, managed care organizations, and other key leaders Social marketing and strategic communications directed at key audiences Cultivating leaders and champions for the SOC approach Family-driven, youth-guided approaches to services and systems Cultural and linguistic competence in services and systems and addressing disparities Cross-system collaboration in services and systems Offers tested models for many ACA provisions to address unique needs of children with behavioral health challenges › › › › › › Essential benefits for Medicaid and Health Insurance Exchanges Medicaid and CHIP expansion Health homes 1915(i) state plan amendments Money Follows the Person ACOs Systems of care and their care management entities can be health homes – Improve quality and manage costs for populations with serious disorders, provide intensive care management, individualize care, link to needed services and supports across systems Wotring & Stroul; Pires et al – Center for Health Care Strategies Useful Tools Complete as a group exercise or leadership group Invite multiple stakeholders to complete the self-assessment individually Tabulate results across stakeholders Not an evaluation, but a diagnostic tool Assess areas of progress and areas that need attention in SOC work 4. Promulgating Rules, Regulations, Standards, Guidelines, and Practice Protocols a) Promulgating rules and regulations that require elements of the system of care philosophy and approach to support expansion of the system of care approach Rating of Progress: 0=None 1=Some 2=Moderate 3=Significant 4=Extensive Notes: 5. Incorporating the System of Care Approach in Requests for Proposals (RFPs) and Contracts Incorporating requirements for elements of the system of care philosophy and approach in RFPs and contracts with providers and managed care organizations to support expansion of the system of care approach Rating of Progress: 0=None 1=Some 2=Moderate 3=Significant 4=Extensive Notes: SOC values and principles are implemented Services and supports consistent with SOC approach are implemented SOC infrastructure is implemented Resources are invested in home- and community-based services Services and supports are provided to increasing numbers of children with SOC approach 1. SOC values and principles are implemented › Individualized, wraparound approach › Family-driven approach › Youth-guided approach › Coordinated approach › Culturally and linguistically competent approach › Evidence-informed approach › Least restrictive approach › Broad array of home and community-based services › Data-driven continuous quality improvement and accountability approaches 2. Services and supports consistent with SOC approach are implemented › Availability of specific treatment services and supports provided in SOCs (non-residential) › Availability of out-of-home treatment services for short-term treatment goals that are linked to home- and communitybased services and supports 3. SOC infrastructure is implemented › › › › › › › › › › › › › Point of accountability structure for SOCs Financing strategies for SOC infrastructure and services Structure/process to manage care for high-need populations Interagency partnerships/agreements Structure/process for partnerships with family organizations/leaders Structure/process for partnerships with youth organizations/leaders Structure/process to advance culturally and linguistically competent services and address disparities Defined access/entry points to care Provider network to deliver comprehensive service array Structure/process for training, TA, and workforce development Structure/process for measuring and monitoring quality, outcomes, and costs and using data for continuous quality improvement Structure/process for strategic communications/social marketing Structure/process for strategic planning and resolving barriers 4. Resources are invested in home- and community-based services › Increased utilization of home- and community-based services and supports › Decreased admissions and lengths of stay in out-of-home treatment settings (e.g., psychiatric hospitals, residential treatment centers, juvenile justice placements, out-of-school placements) › Cost data demonstrating impact on costs across systems by utilizing home- and community-based services and supports 5. Services and supports are provided to increasing numbers of children with the SOC approach › Identification of areas within the jurisdiction that have high levels of SOC implementation › Increased number and description of children with serious mental/behavioral health challenges and their families served with the SOC approach within the jurisdiction Developed to assess progress in implementing the SOC approach Provides “snapshot” of implementation of key elements of SOCs at a point in time Method to derive an estimate of the “level” of implementation of the SOC approach Identify areas of strength and areas needing improvement Use as progress assessment/evaluation across multiple communities/regions in a larger jurisdiction (state, tribe, territory, large geographic area) Use at regular intervals to track progress (e.g.,annually) Level 1 –No Implementation Level 2 – Some Implementation Level 3 – Moderate Implementation Level 4 – Substantial Implementation Level 5 – Extensive Implementation Designed for approximately 10+ respondents per community or region – scores are averaged Can be customized to each community re number and type of respondent › Local Community- or Regional-Level Director or Manager of › › › › › Services for Children with Behavioral Health Challenges Lead Provider Agency Director or Manager Family Organization Director or Family Leader Youth Organization Director or Youth Leader Local Community- or Regional-Level Director or Manager of Services for Children with Behavioral Health Challenges from a Partner Agency Other Key Stakeholders Identified by Lead Contact Person for a Community or Region LEVEL OF IMPLEMENTATION RATING (0) Score LEVEL I NO IMPLEMENTATION LEVEL II SOME IMPLEMENTATION (1 – 100) (1% – 25%) LEVEL III MODERATE IMPLEMENTATION (101 – 200) (26% – 50%) LEVEL IV SUBSTANTIAL IMPLEMENTATION (201 – 300) (51% – 75%) LEVEL V EXTENSIVE IMPLEMENTATION (76% – 100%) (301 – 400) TOTAL SCORE STRATEGIC PLAN SCORE (MAX = 4) PRINCIPLES SCORE (MAX = 152) SERVICES SCORE (MAX = 136) INFRASTRUCTURE SCORE (MAX = 48) COMMITMENT SCORE (MAX = 60) TOTAL SCORE (MAX = 400) % (0%) Score % To improve outcomes for children, youth, and young adults with serious mental health conditions and their families through systems of care