Risk Communication and Risk Management Decision Making Daniel Krewski, PhD, MHA Professor and Director McLaughlin Centre for Populaiton Health Risk Assessment March 12, 2009 Outline • Evolution of Risk Science • Risk Communication • Case Study: Prion Diseases • Risk Perception • Web-based Risk Communication • Conclusions • Training McLaughlin Centre for Population Health Risk Assessment Frameworks for Risk Assessment and Risk Management 1983 1985 -U.S. National Research Council 1990 -Health Protection Branch 1991 -Canadian Standards Association 1993 1997 2007 -World Health Organization -Health Protection Branch -CPHA National Advisory Panel on Risk/Benefit Management of Drugs -Codex Alimentarius -Canadian Standards Association -U.S. Presidential/Congressional Commission on Risk Assessment and Risk Management -McLaughlin Centre for Population Health Risk Assessment McLaughlin Centre for Population Health Risk Assessment An Integrated Framework for Risk Assessment and Risk Management McLaughlin Centre for Population Health Risk Assessment Population Health Regulatory Economic Advisory Community Multiple Interventions Health Risk Policy Analysis Evidence Based Policy Health Risk Science Determinants and Interactions Biology-environment interactions Biology and Genetics Environment-social interactions Environment and Occupation Biology-social interactions Social and Behavioural Technological U.S. Presidential/Congressional Commission on Risk Assessment and Risk Management (1997) Problem/ Context Evaluation Risks Engage Stakeholders Options Actions Decisions McLaughlin Centre for Population Health Risk Assessment Risk Communication McLaughlin Centre for Population Health Risk Assessment Risk Communication “…risk communication is the act of conveying or transmitting information between interested parties about (a) levels of health or environmental risks; (b) the significance or meaning of health or environmental risks; or (c) decisions, action, or policies aimed at aging or controlling health or environmental risks. Interested parties include government agencies, corporations and industry groups, unions, the media, scientists, professional organization, public interest groups, and individual citizens.” Covello et al. (1987) McLaughlin Centre for Population Health Risk Assessment Risk Communication in Practice • Determine best ways to present scientific information on important risk issues • Develop guidelines on expert/public communications McLaughlin Centre for Population Health Risk Assessment Communications Processes Model Domain of Technical Risk Domain of Perceived Risk Mass Media Industry GOVERNMENTS General Public Public Interest Groups Independent Researchers Expert Sphere Public Sphere Risk Communication Flows McLaughlin Centre for Population Health Risk Assessment Managing Prion Disease Risks McLaughlin Centre for Population Health Risk Assessment Transmission of Mad Cow Disease to Humans 40000 30000 Number of Cases 20000 10000 0 McLaughlin Centre for Population Health Risk Assessment • Canada has been challenged both economically and socially by BSE since the first indigenous Canadian case was confirmed in May 2003 in a 6-year old Albertan beef cow. McLaughlin Centre for Population Health Risk Assessment BSE Risk Management in Canada • 1997: CFIA banned the use of brains, spinal cords and other parts, known as specified risk materials (SRM), in cattle feed. The feed ban also applied to the remains of sheep, goats, bison, elk and deer. • 2003: Slaughterhouses were to dispose of all SRMs from the bodies of cattle older than 30 months. • 2004: New regulations to prevent animal parts linked to BSE from being fed to pets and livestock such as chicken or pigs (not only cows and sheep). • 2006: Cattle tissues capable of transmitting BSE were banned from all animal feeds, pet foods and fertilizers. • 2007: CFIA introduces enhanced feed ban. McLaughlin Centre for Population Health Risk Assessment vCJD Risk Management in Canada • People not eligible to donate blood or plasma if they spent a cumulative total of > 3 months in U.K. or France between 1980 and 1996, or a cumulative total of > 5 years in Western Europe (outside U.K. or France) since 1980. • People not eligible to donate blood or plasma if have had a blood transfusion in the U.K., France or Western Europe since 1980. McLaughlin Centre for Population Health Risk Assessment Literature Reviews - TSE agents - Psychosocial impacts - Psychosocial interventions - Risk communication - Policy evaluation Managing BSE/vCJD Risks BSE Risk Assessment & Management (B-RAM) Framework Monitor & Evaluate Results Canadian Policy and Expert Framework Consultation Risk Communication International Expert Consultations: Canada, US, Australia, UK, Norway, EU, Japan BSE Risk Assessment & Management (B-RAM) Framework Community Focus Groups National Public Survey (n=1500) Analysis of Policy Instruments Analysis of Risk Assessments Expert Framework Consultations Identify Issue & Context Integration of Policy Individual Interviews International Expert Consultations: Canada, US, Australia, UK, EU, Japan Assess Risks & Benefits Involve Interested & Affected Parties Implement Strategy Identify & Analyze Options Select Strategy Prioritize Components - Risk Modeling - Farm family impacts - Psychosocial impacts - Public perception - Domestic Policy - International Policy context McLaughlin Centre for Population Health Risk Assessment Integration of Added Inputs Policy Uptake: Interpreting Science for Decision Makers Social Issues Scientific Data Economic Issues Interpretation Technological Issues Political Issues McLaughlin Centre for Population Health Risk Assessment Science Policy Toxicity Testing: Science Informing Risk Management www.nas.edu Prion Misfolding as a Toxicity Pathway McLaughlin Centre for Population Health Risk Assessment Communication with Animal & Health Policy Community Attendee Demographics Research 30% Provincial 9% Federal 35% Industry Associations 22% International 4% Attendees = 48 McLaughlin Centre for Population Health Risk Assessment International Communication Attendee Demographics Other etc.) (PAHO, ‘Prion 20% Government (Canada) Disease Risk Management’ 10% Industry Association 8% Government (U.S.) 42% Research 19% Government (Mexico & Costa Rica) 1% Attendees = 50 McLaughlin Centre for Population Health Risk Assessment Risk Management Policy Consultation Workshops 2008 Canada (Ottawa, June 25) North America (Washington, July 10) 2009 Canada (Regina) North and South America (Brasilia) Europe (Brussels) 2010 Canada (Edmonton) North and South America (Washington) Asia (Beijing) 2011 Canada (Ottawa) McLaughlin Centre for Population Health Risk Assessment Risk Perception McLaughlin Centre for Population Health Risk Assessment Public Perception of Risk Expert decision making Risk Assessment Risk Guidelines Risk Interventions Public decision making Risk Perception Risk Acceptability McLaughlin Centre for Population Health Risk Assessment Risk Behaviours Public Perception of Risk Cigarette Smoking Ozone Depletion Breast Implants Street Drugs Stress Chemical Pollution Crime and Violence Suntanning AIDS Motor Vehicle Accidents Nuclear Waste Alcohol & Pregnancy PCBs or Dioxin Nuclear Power Plants Climate Change Non-prescription Medication Asbestos Waste Incinerators Malnutrition High Volt Power Lines Food Irradiation Prescription Drugs Genetically Engineered Bacteria Outdoor Air Quality Bacteria in Food Moulds in Food Mercury in Fillings Tap Water Medical X-rays Indoor Air Quality VDTs Contraceptives Heart Pacemakers Bottled Water Contact lenses 0 20 40 Perceived High Risk (%) 60 80 Public Perception of Foodborne Risks Growth hormones M=2,7, SD=1,1 Mercury in fish M=2,6, SD=1,1 Pesticides M=2,5, SD=1,1 Food additives M=2,5, SD=1,1 Antibiotics in livestock M=2,5, SD=1,2 Improper food labelling M=2,5, SD=1,2 Imported food M=2,5, SD=1,0 Genetically modified foods M=2,3, SD=1,3 Artificial sweetners M=2,3, SD=1,3 Bacteria M=2,2, SD=1,1 Agroterrorism M=2,0, SD=1,4 MAD COW DISEASE M=1,9, SD=1,4 Food irradiation M=2,0, SD=1,2 Food packaging M=1,8, SD=1,2 WILD GAME DISEASE M=1,8, SD=1,2 T ap water M=1,7, SD=1,2 Foot and mouth disease M=1,7, SD=1,3 Bottled water M=1,4, SD=1,2 0% 10% 20% 30% 40% 50% McLaughlin Centre for Population Health Risk Assessment 60% 70% 80% 90% 100% Farm Family Focus Groups “Even the ‘better times’ are not really better because you are simply digging yourself out of the hole, recouping your losses” “As a young person [who was to take over the farm]…I will not go into farming and I want to tell that to the general public and the government…The message needs to get out that farming is no longer viable for families” McLaughlin Centre for Population Health Risk Assessment McLaughlin Centre for Population Health Risk Assessment Sources of Information on Population Health Risks Ne ws Me dia Me dical Doctors Inte rne t He alth Brochure s / Pamphle ts Frie nds and Re lative s Univ. Scie ntists / Sci. Journals Pub. Inte re st or Env. Groups Gove rnme nt Industry 0% 20% A lot Fair 40% Little 60% None 80% Don't Know / No Opinion McLaughlin Centre for Population Health Risk Assessment 100% Confidence in Sources of Health Risk Information Me dical Doctors Univ. Scie ntists / Sci. Journals He alth Brochure s / Pamphle ts Frie nds and Re lative s Ne ws Me dia Inte rne t Gove rnme nt Pub. Inte re st or Env. Groups Industry 0% 20% A lot Fair 40% Little 60% None 80% Don't Know / No Opinion McLaughlin Centre for Population Health Risk Assessment 100% Risk Beliefs Getting cancer mostly depends on the environment. 100 80 60 40 20 0 Disagree Agree Don’t Know / No O pinion Environment Getting cancer mostly depends on lifestyle. Getting cancer mostly depends on genetic makeup. 100 80 60 100 80 60 40 20 0 40 20 0 Disagree Agree Don’t Know / No O pinion Social McLaughlin Centre for Population Health Risk Assessment Disagre e Agre e Don’t Know / No O pinion Genetics Risk Beliefs I believe that a riskfree environment is an attainable goal in Canada. 100 80 60 40 20 0 Disagree McLaughlin Centre for Population Health Risk Assessment Agree Don’t Know / No O pinion Why Study Risk Perception? • Not to correct public misperceptions of risk • Understanding the factors that shape public attitudes and opinions about risk can lead to more effective risk communication • More effective risk communication can lead to increased public acceptance of risk management interventions • “When the public worries, it is our responsibility to worry.” » Dan Beardsley US Environmental Protection Agency McLaughlin Centre for Population Health Risk Assessment Web-based Risk Communication McLaughlin Centre for Population Health Risk Assessment www.emcom.ca The preferred source of information and commentary on endocrine modulation EM com ENTER HERE welcome to emcom bienvenue chez emcom McLaughlin Centre for Population Health Risk Assessment ENTREZ ICI Endocrine Toxicants An exogenous agent that interferes with the synthesis, secretion, transport, binding, action or elimination of natural hormones in the body that are responsible for the maintenance of homeostasis, reproduction, development and/or behavior" (USEPA 1997). McLaughlin Centre for Population Health Risk Assessment Session 6 – 22/29 Potential Population Health Risks • • • • • breast cancer endometrial cancers endometriosis fecundity and fertility increased rates of spontaneous abortion • sex ratios • • • • • testicular cancer ovarian cancer prostate cancer declining semen quality male reproductive tract abnormalities • precocious puberty McLaughlin Centre for Population Health Risk Assessment Website on Population Health Risks McLaughlin Centre for Population Health Risk Assessment Conclusions McLaughlin Centre for Population Health Risk Assessment Roles of Risk Communication Risk Management Media and Stakeholder Involvement Policy Debate Science Policy Interface Communication Public Science Interface McLaughlin Centre for Population Health Risk Assessment Training in Risk Science • Graduate Certificate in Population Health Risk Assessment and Management • MSc in Epidemiology • PhD in Population Health • Postdoctoral Fellows • Visiting Scientists McLaughlin Centre for Population Health Risk Assessment