Continence Self-Assessment Framework (2014) Clinical Commissioning Group (CCG) About this document The purpose of the NHS England self-assessment framework for continence is to: Establish baseline data on continence commissioning by CCGs in England Support CCGs to begin to establish a dialogue with providers in relation to local continence pathways and services Identify priority areas for action to strengthen commissioning and improve patient outcomes Background It is estimated that between three and six million people in the UK are living with symptoms of urinary incontinence. Evidence collated through the most recent National Audit of Continence Care (2010) and through patient group and clinician feedback suggests that the quality of care for people with incontinence is highly variable and symptoms are underdiagnosed and poorly managed1, 2, 3, 4. Of particular concern, evidence heard through the Francis Inquiry found that 22 out of the 33 cases presented as oral evidence included “significant concerns” about continence care 5. Poor continence care has a negative impact on patient outcomes and experiences and can also lead to unnecessary morbidity and service use by raising the risk of infection, pressure sores and falls6, 7. Given that the prevalence of incontinence increases with age, population changes are likely to lead to the intensification of these issues over time8. The NHS has estimated annual spending for treating urinary and faecal incontinence in adults at £500 million 9 but at present there is very little information about the commissioning of continence services within the NHS. A number of assessments of service provision have been undertaken in the past10, 11, 12, but the extent to which CCGs understand local needs and take steps to plan and commission services to support people with incontinence is unknown. This means that there is no up to date assessment of current service levels and the quality and impact of services on individual outcomes. The evidence, reporting requirements and outcome frameworks information is included at pages 7 and 8. Self-assessment framework questions Introductory How many people are there in your CCG area with continence needs (request by age group)? How many people with a long term condition have incontinence as a comorbidity? How many people were admitted to hospital as an emergency for an incontinence-related condition (such as a UTI or fall)? How many people in residential, nursing care and domiciliary care in your area have an identified continence need? Have many complaints have been received in relation to continence and toileting care? The SAF questions should be answered with reference to the measures and scoring guide. For each question, CCGs should report: A score (red, amber or green); An explanation for the score; A link to substantiating information and evidence 1 Measure Red Amber Green Part A: Data and service design 1. Data on local needs CCG holds local data on the number of people with continence needs in primary care, acute, nursing, residential and domiciliary settings. The number of people with continence needs across settings is not known. Data exists on the number of people with continence needs in some but not all settings (eg primary care) There is comprehensive local data on the number of people with continence needs across care boundaries. There is a record of the continence needs of high risk patients such as: people with a long term condition (eg cardiovascular disease, respiratory disease, stroke, dementia, learning disability, cancer13) the over 65s pregnant women 2. Evidence-based commissioning CCG can demonstrate that they use a range of collated evidence/information/data including the needs of high risk populations to ensure evidence-based commissioning. Data should inform a range of person-centred and cost effective options across the care pathway. 3. Continence service specification A local continence service is in place. The service specification covers recording and reporting of the number of patients with incontinence, and the assessment, diagnosis, treatment of incontinence, as well as ongoing treatment, care and support. This should detail levels of management available: Level 1: a nurse or physiotherapist Level 2: a specialist nurse (continence, urogynaecology, urology) or specialist physiotherapist Level 3: secondary care consultant Level 4: tertiary care 4. Cost of services CCG has up to date information on the cost of managing incontinence and is able to evaluate the cost effectiveness of local services, to include: Incontinence is not routinely recorded among high risk groups. Local data does not inform commissioning along a care pathway and there is a lack of person-centred options available to people with incontinence and family carers. There is no local continence service in place. Incontinence is partially recorded (X%) of at risk groups. Local data informs the range of options and care pathways available to some people with incontinence, their family and carers in a range of settings. The CCG can demonstrate the use of evidence-based quality assurance frameworks to improve patient outcomes. Local care pathways are being developed and there is some evidence of community teams to avoid hospital admissions. The CCG can demonstrate the use of contractual levers to improve quality of continence care. A continence service is in place based on a specification that covers part of the pathway. Service specification is in place and covers all levels. There is a designated local continence lead responsible for the whole service. Cost data is not held or is held at the level of urology block contract. Cost data is held and is partially disaggregated to help inform cost effectiveness. CCG actively uses disaggregated cost data to plan cost effective service models in partnership with providers. CCG can provide assurance for 25% of contracts, or if single contract is in place, no CCG can provide assurance for 50% of contracts, or if a single contract is in place, CCG can demonstrate use of contractual levers for improving safety, quality and outcomes for basic and specialist assessment conservative management therapeutic treatment containment products surgical treatment unplanned admissions and hospital stays (UTIs, falls, pressure ulcers) care home admissions Part B: Quality assurance 1. Outcomes and quality assurance CCG is assured through commissioning, procurement and contract monitoring with providers that quality, safety and outcomes for people with incontinence are being improved in line with statutory duties and agreed quality metrics. There are full records of the continence needs of high risk patients. 2 Self-assessment Readiness (R/A/G) Comments Process measures: Initial assessment (including appropriate diagnostic tests) Lifestyle, physical and behavioural interventions Choice of temporary containment products Pharmacological treatments and timely medication review Information and support Specialist assessment and investigation Surgical and invasive treatment Outcome measures: Symptom reduction Quality of life Ability to self-care Reduction in emergency admissions associated with poor management (UTIs, urinary retention, pressure ulcers, falls and fractures) Patient experience (see separate measure below) 2. Contractual incentives The CCG uses payment and incentive schemes, such as CQUINS, to incentivise providers to deliver quantified quality improvement goals, such as: Improving the identification, assessment, diagnosis and treatment of urinary incontinence Achieving a reduction in urinary tract infections Achieving a reduction in unnecessary catheterisation 3. Identification and assessment of needs CCG is working in partnership with providers to ensure that people with continence needs have access to a full range of healthcare assessments in line with policy and best practice. Staff working across different settings are trained in order to be able to refer or signpost people with continence needs to an appropriate healthcare professional. 4. Personalised care plans CCG has evidence that patients are offered a personalised care plan (or their continence needs are included in an existing care plan and/or a personal health budget) which documents patient-defined goals, is based on shared decision-making and is reviewed at regular interviews in line with NICE guidance. As part of this process, patients should be given appropriate information to help them make decisions. 5. Patient experience CCG can demonstrate that there is evidence of patient experience, review and analysis of complaints and use of the whistle blowing policy affecting people with continence leading to improved practice. assurance is provided that a full scheduled annual contract and service review took place. assurance is provided that a full scheduled annual contract and service review took place. all contracts and that a full scheduled annual contract and service review took place. CCG cannot demonstrate a range of process indicators and outcomes supporting quality assurance. CCG can demonstrate monitoring of a range of process and outcomes metrics. CCG can demonstrate a range of process and outcomes metrics and evidence of improvement. There are no CQUINS or other payment schemes in place. There are CQUINS in place but there is no demonstrable improvement against quality goals and incentives have not been awarded. CQUIN/s are in place. The provider has satisfied quality goals and incentives have been awarded. There is no systematic process for assessing people at risk of continence problems within primary care. There is an agreed process in place for identification and assessment of continence needs, but the extent to which this is followed is unknown. Staff follow agreed protocols for identifying and assessing patients. There is no basic continence awareness training for non-specialist staff in different care settings. There is basic continence awareness training available for staff in different care settings but uptake of training is unknown. Staff who support high risk individuals have received basic continence awareness and promotion training and are able to support and signpost patients appropriately. Less than 50% of patients have been offered a personalised care plan which documents patientdefined goals and is reviewed at regular intervals. Evidence that at least 75% of patients have been offered a personalised care plan which documents patient-defined goals and is reviewed at regular intervals. Evidence that more than 90% of patients have been offered a personalised care plan which documents patient-defined goals and is reviewed at regular intervals. Patient feedback is not collected or it is not possible to identify the experience of people with continence needs. Patient feedback and complaint system in place which provides data about the experiences of patients with continence needs. No Patient feedback system and complaints are in place specifically providing data about the 3 6. Training and competencies CCGs should be assured that healthcare professionals involved in assessing, caring for and treating incontinence have sufficient and appropriate training and competencies to identify, assess, treat and manage patients with continence needs as described in relevant NICE clinical guidance. Part C: Involvement and integration 1. Patient and public involvement CCG can demonstrate that patients, families and carers are involved in service planning and decision-making in order to ensure that their needs, choices and preferences are understood and that services are patient-centred. 2. Health and wellbeing boards CCG can demonstrate that the health and wellbeing board has been informed of the continence services commissioned and assured that the services will deliver in line with agreed quality metrics. evidence can be given of specific service improvement as a result of the feedback. experiences of patients with continence needs. There is no evidence of appropriate training and competence. There is partial evidence of appropriate training and competence. There is comprehensive evidence of appropriate training and competence. There is no evidence that people with continence needs and their carers have been involved in service planning and decision-making. There is evidence that people with continence needs and their carers have been involved in coproduction but this is limited. There is clear evidence of co-production and CCGs use this to inform commissioning practice. Continence service is not reported or known to the health and wellbeing board. Continence service is known to the health and wellbeing board but does not play an active role in continence planning and scrutiny Health and wellbeing boards are aware of the continence service and play an active role in integrated planning and scrutiny Commissioner can provide evidence of integrated governance structures. Commissioning arrangements are integrated and provider organisations share information and work to agreed protocols. Health and wellbeing board does not play an active role in continence planning and scrutiny. There is evidence of specific service improvement as a result of the feedback. 3. Integrated working There are well functioning partnership agreements between health and social care commissioners and providers of continence care. There is no evidence of integrated governance structures such as Section 75 agreements. There are no joint commissioning functions in place. There is no evidence of joint working across health and social care providers. Monitoring is undertaken jointly and key partners are involved at Partnership Board level. There are some joint commissioning functions in place and joint working between health and social care provider organisations. There is a local continence lead responsible for service integration. 4 References 1 Royal College of Physicians, National Audit of Continence Care, 2010 2 All Party Parliamentary Group for Continence Care, Continence care services: survey report, 2013 3 Expert group on lower urinary tract symptoms, 2 in 3: Delivering world class services for people with continence, lower urinary tract and bowel symptoms, 2011 4 Robert Francis QC, The Mid Staffordshire NHS Foundation Trust Public Inquiry, 2013 5 Robert Francis QC, The Independent Inquiry into care provided by Mid Staffordshire NHS Foundation Trust, 2010 6 Health and Social Care Partnership South East, Prevention and early intervention continence services, 2011 7 Expert group on lower urinary tract symptoms, Commissioning for incontinence, lower urinary tract and bowel symptoms - an audit, 2012 8 Department of Health, Good practice in continence services, 2000 9 National Institute for Health and Clinical Excellence, The management of faecal incontinence in adults – Draft Scope, 2005 10 All Party Parliamentary Group for Continence Care, Cost effective commissioning for continence care, 2011 11 Expert group on lower urinary tract symptoms, Improving outcomes for people with lower urinary tract symptoms: commissioning guide, 2014 12 Expert group on lower urinary tract symptoms, Commissioning for incontinence, lower urinary tract and bowel symptoms - an audit, 2012 13 Macmillan Cancer Support, Throwing light on the Consequences of Cancer and its Treatment, 2013 5 Evidence, reporting requirements and outcome frameworks Joint strategic needs assessment Risk profiling and care management scheme (enhanced service for 2013-14) Patient records (including electronic) in general practice and for inpatients National CQUINs (NHS Safety Thermometer, dementia and delirium) NICE pathways: urinary incontinence in women, lower urinary tract symptoms in men, faecal incontinence in adults Local enhanced service (eg nurse-led rapid access clinic) Local incentive schemes NHS Outcomes Framework 2014-15 and CCG Outcomes Indicator Set 2014-15 (2.1, 2.2, 2.3, 2.4, 2.6, 3a, 3.6i, 4a, 4b, 4c, 4.5, 4.9, 5a, 5.3) Any qualified provider implementation pack specification Local enhanced service NICE clinical guidelines CG171 urinary incontinence in women, CG97 lower urinary tract symptoms in men (and QS45), faecal incontinence in adults (CG49) NICE urinary incontinence in women and LUTS in men costing templates CCG Assurance Framework 2014-15 (Better Care Fund indicators: avoidable admissions, bed days, residential care admissions; Financial indicators) CCG quality premiums (avoidable emergency admissions, friends and family test) Right care: commissioning for value CCG Assurance Framework 2014-15 (NHS Constitution indicators, Outcomes and Quality indicators OF domains 2,3,4,5) CCG Quality Premium 2014-15 (FFT) A national response to Winterbourne View Hospital DH response to Francis Inquiry Hard truths: the journey to putting patients first (volume 1 and volume 2) CQC fundamental standards (dignity and respect; care and treatment) NICE quality standards, clinical and technology appraisals and interventional procedure guidance: CG171, CG97, CG49, QS45, forthcoming female UI quality standard (NB this list is not exhaustive at present) NHS Outcomes Framework and CCG Outcomes Indicator Set 2014-15 NICE UI and LUTS audit tools NHS England CQUIN pick-list 6 Skills for Care: Care Certificate for care assistants (NB pilots do not include incontinence and this needs to be addressed – action for group) NICE baseline assessment tool for urinary incontinence in women, lower urinary tract symptoms in men and faecal incontinence in adults. NHS Outcomes Framework (Domain 2) NHS Mandate 2014-15 NICE quality standards, clinical and technology appraisals and interventional procedure guidance: CG171, CG97, CG49, QS45, forthcoming female UI quality standard (NB this list is not exhaustive at present) NHS Constitution (involvement in decision-making) Right care: Lower urinary tract symptoms decision aid NHS guidance on the “right to have” a Personal Health Budget in Adult NHS Continuing Healthcare and Children and Young People’s Continuing Care Francis Inquiry and DH response to Francis Inquiry Hard truths: the journey to putting patients first (volume 1 and volume 2) National CQUIN (Friends and Family Test) CCG quality premium (Friends and Family Test) Whistle blowing policy NHS Constitution (dignity, privacy, respect and feedback) NICE quality standards, clinical and technology appraisals and interventional procedure guidance: CG171, CG97, CG49, QS45, forthcoming female UI quality standard (NB this list is not exhaustive at present) NHS Constitution Commitment to carers NHS Outcomes Framework 2014-15 and CCG Outcomes Indicator Set 2014-15 (2.1, 2.2, 2.3, 2.4, 2.6, 3a, 3.6i, 4a, 4b, 4c, 4.5, 4.9, 5a, 5.3) DH Review following Winterbourne View A national response to Winterbourne View hospital Better Care Fund planning Joint health and wellbeing strategies 7