Trends In Autism Spectrum Disorder (ASD) Report to the Fairfax County Board of Supervisors Human Services Committee June 9, 2008 April 2007 Board of Supervisors FY-2009 Budget Guidelines, paragraph #6: “The Board of Supervisors also requests that Fairfax County Public Schools provide information on the growing population of children with autism in County Schools to assist the County as it plans for future services. The Board of Supervisors hopes to work closely with the School system on these issues and add discussion of them to a future joint School/County meeting.” 6-9-2008 Report to BOS Human Services Committee 2 Committee Members Chris Johnston—Fairfax County Public Schools Ginny Brennan—Fairfax County Public Schools Ann Long –Fairfax County Public Schools Matthew Barkley—Disability Services Planning & Development Bob Eiffert—Long Term Care Coordinating Council Staff Dennis Brown—Fairfax Falls Church CSB Doug James—Virginia Department of Rehabilitative Services Woody Witt—FA-DSB & Parent of a son with Autism 6-9-2008 Report to BOS Human Services Committee 3 CDC Definition Autism is one of a group of disorders known as autism spectrum disorders (ASDs). ASDs are developmental disabilities that cause substantial impairments in social interaction and communication and the presence of unusual behaviors and interests. Many people with ASDs also have unusual ways of learning, paying attention, and reacting to different sensations. The thinking and learning abilities of people with ASDs can vary—from gifted to severely challenged. An ASD begins before the age of 3 and lasts throughout a person's life. It occurs in all racial, ethnic, and socioeconomic groups and is four times more likely to occur in boys than girls. 6-9-2008 Report to BOS Human Services Committee 4 Characteristics of Autism May have difficulty with social interactions May have difficulty with verbal and nonverbal communication May exhibit repetitive behavior May experience sensory sensitivities (e.g., sensitive to touch, noise) May have difficulty with executive function (e.g., decision-making, problem-solving) Wide range in intellectual abilities 6-9-2008 Report to BOS Human Services Committee 5 Autism in America 6-9-2008 Report to BOS Human Services Committee 6 Autism in Virginia 7000 6000 5000 Students with Autism eligible for special education services in Virginia 4000 3000 2000 1000 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 0 6-9-2008 Report to BOS Human Services Committee VDOE 7 Autism in Fairfax County Public Schools 2007 2005 2006 2003 2004 Students with Autism eligible for special education services in FCPS 1997 1998 1999 2000 2001 2002 1800 1600 1400 1200 1000 800 600 400 200 0 6-9-2008 Report to BOS Human Services Committee 8 Autism in FCPS FCPS Autism Prevalence *2007 Unofficial Data % of all Students with Disabilities 10% 8% 5% 6% 4% 3% 3% 6% 7% 4% 2% 0% 2002 2003 2004 2005 2006 2007 Years 6-9-2008 Report to BOS Human Services Committee 9 Autism in FCPS FCPS Autism Prevalence by Age: 2002-2007* *2007 Unofficial Data 180 160 Number 140 120 100 80 60 40 20 0 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 Age 2002 6-9-2008 Report to BOS Human 2003 2004 2005 Services Committee 10 2006 2007* 22+ Autism in FCPS Autism Services (from FCPS FY 2009 Proposed Budget, p. 97) 2007 Actual 2008 Actual 2009 Proposed Total K - 22 1307 1444 1475 Level 1 = < 50% Special Ed Time 30% 27% 27% Level 2 = 50%+ Special Ed Time 70% 73% 73% 6-9-2008 Report to BOS Human Services Committee 11 Autism in FCPS: Services Early Intervention Services Improves readiness to learn Transition from Infant/Toddler to Preschool Preschool PAC, Noncategorical Instructional Support K-12 Enhanced Autism Services and Applied Behavior Analysis (ABA) Special education services in neighborhood schools Inclusive School Resource support Transition to Post-school Transition linkages from high school to adult services 6-9-2008 Report to BOS Human Services Committee 12 Autism and DRS Autism Cases DRS 1985-2007 Unduplicated ASD Cases DRS 1985-2007 300 255 200 200 150 Series1 135 124 100 78 47 50 35 4 5 6 9 19 86 19 87 19 88 19 89 19 90 12 2 20 9 20 42 85 93 50 32 22 10 20 07 20 06 20 05 20 04 20 03 20 02 20 01 20 00 19 99 19 98 19 97 19 96 19 95 19 94 19 93 19 92 19 91 0 19 85 Number of Clients Identified with Autism 250 State Fiscal Year Client Eligible 6-9-2008 Report to BOS Human Services Committee 13 Autism and DRS Demographics of ASD Population Determined Eligible By DRS Majority Most Mean were male (85%) significantly disabled (72%) age was 21.4 years 6-9-2008 Report to BOS Human Services Committee 14 Autism and DRS Only 1.3% of all current DRS clients have ASD as a primary or secondary disability But… DRS Counselors serving FCPS show an ASD prevalence rate of 7.3% on their caseloads And… average cost to serve ASD clients within DRS is 82% higher vs. non-ASD 6-9-2008 Report to BOS Human Services Committee 15 Autism and the CSB Co-Occurring Mental Illness and ASD There are 75 adults with co-occurring diagnoses Co-Occurring Mental Retardation and ASD There are 121 adults and children with co-occurring diagnoses of mental retardation and autism No Co-occurring Mental Retardation or Mental Illness and ASD They are not served by CSB 6-9-2008 Report to BOS Human Services Committee 16 Current System Limitations All Agencies: Diminishing Resources Schools: Services Limited to Education and Age DRS: Services Time-limited & Employment Focused CSB: Eligibility Based on Diagnosis DSB & LTCCC: Lack of Funding State: No Responsible Entity, Funding or Medicaid Waiver Slots 6-9-2008 Report to BOS Human Services Committee 17 State Legislative Activities Joint Commission on Health Care (JCHC) Behavioral Health Care (BHC) Subcommittee has studied issues since 2006 to determine a “home” for ASD. HJR 105 directs the Joint Legislative Audit and Review Commission (JLARC) to study ASD with 1st report due 11/30/08. 6-9-2008 Report to BOS Human Services Committee 18 Service Needs Individualized Services to Include: Employment Supports and Training Life Skills Support (Marcy Sims) Opportunities for Socialization Full-day Services such as Day Support Affordable and Accessible Health Care Housing Options Transportation 6-9-2008 Report to BOS Human Services Committee 19 Priorities Those not eligible for any available services Those on waiting lists for services Those who need long-term employment support 6-9-2008 Report to BOS Human Services Committee 20 Questions? 6-9-2008 Report to BOS Human Services Committee 21