Welcome Interconception Care Program Recruitment Strategies Housekeeping There are over 100 registered participants for this call. Phones will be muted during the webinar. If you have a question, please post it via the chat function. Questions will be taken from chat. Submit questions as soon as they come to mind – we’ll keep track of them. Slides, speaker bios and speaker contact info are available at www.everywomansoutheast.org. Acknowledgements March of Dimes Lori Reeves for TA with today’s webinar. The W.K. Kellogg Foundation Every Woman Southeast Volunteers Our Speakers What is Every Woman Southeast? A coalition of leaders in Alabama, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee to working together to build multistate, multi-layered partnerships to improve the health of women and infants in the Southeast. www.EveryWomanSoutheast.org Our Blog Monthly E-Newsletter Join Your State Team We have 9 state teams – one for each state. Find your team lead by clicking on your state webpage on our website. Contact the lead and connect. This is a great way to link up with the latest resources and opportunities on preconception health. Today’s Webinar Interconception Care Program Recruitment and Retention Strategies October 24, 2012 Why This Topic? Reducing risks indicated by a previous adverse pregnancy outcome is a top goal of the National Preconception Health and Health Care Initiative In the SE – 3 states have demonstration projects to provide interconception care to high risk women Limited information about best practices in serving this population Objectives Describe current efforts to promote interconception health care for high risk women Describe how to overcome at least one challenge to recruitment Describe at least two strategies that improved recruitment and retention Discuss ways that interested groups can continue to connect on this issue. Speakers Sarah Verbiest, DrPH, MSW, MPH Dean Coonrod, MD, MPH Jennifer Culhane, PhD, MPH Anne Dunlop, MD, MPH Betsy Bledsoe-Mansori, PhD, Mphil, MSW Carol Brady, MPH The Postpartum Plus Prevention Program in NC S a r a h Ve r b i e s t , D r P H , M S W, M P H Executive Director UNC Center for Maternal and Infant Health Director Every Woman Southeast Coalition The Postpartum Plus Prevention Program (P4) Designed to increase knowledge about how to provide health and wellness services to mothers of medically fragile infants. Services: postpartum visit, a wellness kit at 3 months, and contact with a nurse midwife at 3, 6, 9, 12 and 18 months postpartum. P4 also provided onsite medical care to any woman in the NICU who requested help. Enrollment Women were approached for enrollment by a nurse midwife while their infant was in the NICU. We didn’t have anyone decline participation. A convenience sample of 44 mothers was recruited from the Newborn Intensive Care Unit at UNC. Nearly all (87%) of the women had received a medical service from the nurse midwife prior to being recruited into the study. What We Found Almost every mother (97%) returned to UNC post- discharge for infant follow-up. Initial expectations were that mothers would only be reachable by phone but the majority of mothers also received in-person support. Mothers were open to talking with the nurse midwife during pediatric visits for their infant. Contacts We anticipated about 220 total contacts with the women in the study. We had 645 contacts! The nurse midwife had an average of 15 contacts with each mother. The number of contacts per woman ranged from 6 to 42 – the lowest number was still above our expectation. One third of the women went through a period of time where they had weekly contact with the nurse midwife – usually due to a crisis in their baby’s health. Content Almost all contacts began with a mother-led conversation about the infant’s health. The nurse midwife introduced wellness messages in the context of the impact of the mother’s health on the well-being of her infant. Mothers needed support for nonmedical issues such as relationship with the infant’s father, poverty, employment, and loss/grieving. Conclusions Mothers of medically fragile infants are receptive to tailored wellness messages when provided along with clinical care for themselves and their baby. The NICU provides a key opportunity for initial outreach to high-risk mothers. Telephonic support is a good option for providing services and support, especially when paired with inperson contact through pediatric services to the infant. Conclusions Mothers’ capacity to attend to their own health and wellness needs is linked to the immediate health status of their infant. Easy access to health care services from a professional they trusted was very important. Innovative partnerships between OB/GYN and NICU follow-up clinics should be considered to best serve both high-risk mothers and infants. ARIZONA’S INTERNATAL CLINIC Dean V Coonrod, MD-MPH Chair, Department of Ob/Gyn Maricopa Integrated Health System / District Medical Group University of Arizona College of Medicine Phoenix Context Preconception vs Interconception vs Internatal Care * = preconception care * * = interconception = pregnancy = no more kids! = internatal care Program Eligibility Index pregnancy Preterm birth 35 weeks or less Early pregnancy loss 15 weeks and more Stillbirth Low birthweight Prolonged NICU stay Initially 3 days now 5 days Not permanently sterilized Schedule of Visits 2 weeks 6 weeks Breastfeeding, review family planning Standard postpartum visit 6 months 12 months Yearly thereafter Preconception visit Our Visits Seen by care coordinator Introduce program Edinburg Postpartum Depression scale “6-week” intake form Go over education & goals for nutrition, exercise, dental care, folate Psychosocial support, stress management Our Visits Seen by physician Reason for visit Index pregnancy reviewed Neonatal status Breast feeding / back to sleep Prior ob history Reproductive life plan, contraception Gyn, STI history / screening PMH / PSH / Dental care Underlined = Done at all visits Our Visits Infection / immunization TB, Rubella, Tdap (pertusis), varicela, influenza Nutrition / exercise Anemia, food security, BMI, folate, exercise (type / amount) Meds / allergies Habits / Social / Exposures Behavioral health Tobacco, alcohol, drugs, DV, work, environmental exposures EPDS, other mental health, eating disorders Physical exam Weight (BMI), BP etc Problem focused exam Our Project Patients: End of 2010 696 approached 142 had a visit 90% Latina 71 seen for clinical services in the last 6 months and are considered active 71 have relocated or have been lost to follow up Final Results (n=102 women) In program for 12 to 18 months Of those pregnant at least 12 month interval Of those pregnant with first trimester care Of those pregnant, tob, ETOH, drug free Using contraception (if indicated) On folate Regular exercise (30 min 5 days a week) Normal BMI Those with oral health needs who have treatment Those with mental health needs who have treatment 64% 40% 87% 100% 88% 61% 23% 26% 20% 100% Follow Up Data Baseline 6-month 12-month Health is Excellent 46% 55% 70% Regular Exercise 23% 76% 70% Very Interested in Getting Preconception Information 53% 76% 69% Alcohol Can Effect Fetus 73% 83% 94% Watchful About Eating Fish 48% 77% 88% Lessons Learned Care coordination key Mothers / families after a pregnancy ending in stillbirth very interested Patients with preterm birth have varying levels of interest No show rate a significant problem Interval of visits often dictated by family planning or other issues / mental health Usually more frequent than the idealized one TLC is always provided and likely of benefit Thanks to our partners and funders: March of Dimes Maricopa Dept of Public Health ADHS BHS Mercy Care Plan University Health Plan Az Public Health Association Mayo Clinic Family Medicine Maricopa Integrated Health System Ob/Gyn MFM Family Medicine Ambulatory Social Work Southwest Human Development St Luke’s Health Initiatives AHCCCS Questions? Dean_Coonrod@DMGAZ.org The Philadelphia Collaborative Preterm Prevention Project Jennifer F. Culhane MPH, PhD The Study Before discharge from the post partum hospital stay – Consent including access to medical records – Conduct survey – Randomization – Smoking intervention begins – Schedule 1st postpartum visit (1 month) Postpartum Study Visits When: 1, 6, 12, 18, and 24 months postpartum Or, at 20 weeks gestation of the subsequent pregnancy Postpartum Study Visits Survey Periodontal exam (1, 12 and 24 months only) Vaginal fluid (self collection) Blood Urine Anthropometric measurements Blood pressure Transportation, flexible hours, childcare, barriers eliminated Intervention Arm Evaluated and offered treatment for: – – – – – – – Depression Periodontal disease Urogenital tract infections Abnormal BMI Housing instability/inadequacy Smoking Literacy Recruitment Rate 77.7% Figure 2. Webb, et al. BMC Medical Research Methodology, 2010, 10:88 Retention/Data Capture Rates for Study Population Randomization Intervention Group Control Total First Post Partum Assessment 83.5% 76.0% 80.0% Second Post Partum Assessment 67.6 57.5 64.6 Third Post Partum Assessment 60.0 48.9 54.4 Fourth Post Partum Assessment 54.2 46.3 50.3 Fifth Post Partum Assessment 47.3 40.8 43.6 Strategies to Improve Retentions • Two full-time staff dedicated to cohort maintenance • Provided transportation - either tokens or cab pick up • Evening and weekend hours • Child care and food provided • If required visit conducted at participant's home • Clinic had washing machines and dryers • Staff required to be courteous and totally participant -focused Risk Factor Prevalence, Acceptance Rates and Rates of Minimal Participation in PCPP Intervention Arms Prevalence/ Eligible (a) N (%) Acceptance Rate (b) N (%) Particpation Rate 2 N (%) 268 (57.1) 240 (87.9) 228 (85.1) Periodontal 265 (59.4) 233 (87.9) 136 (58.3) Smoking 185 (38.9) 99 (53.8) 53 (28.6) Depression 1 290 (61.1) 223 (76.9) 140 (48.3) Literacy 105 (22.1) 79 (75.2) 62 (59.0) Housing 389 (81.9) 356 (91.5) 319 (83.3) Intervention/ Treatment Infection 1 2 Depressive Symptomatology (CESD > 16) Percentages are based on the number of women eligible in column 1 Strategies to Improve Participation in Interventions Phone medicine for depression care available • Staff accompany participants to dentist • Provide valium for dental visits • Smoking intervention conducted in particpant’s home • Medicines delivered to particpant’s home • Food and caloric supplements delivered to participant's home • Selected Findings Exposures associated with adverse outcomes are moderately prevalent and cooccur. There is a wide range of participation across interventions- even with every traditional barrier to care addressed. Volunteering for treatment is MUCH different than random assignment to treatment- people who really need the Important Research Questions Why don’t some women avail themselves of care? Not just traditional barriers to care Complex decision making that may seem irrational to providers but may make perfect sense in certain contexts- what are those contexts? Important Research Questions RHIME factors (Racism, Housing challenges, Insufficient resources, Multiple burdens and Emergencies) play a role in women’s everyday lives and influence care participation We need to become aware of, document and address the ways various institutional structures, rules and ways of doing business create additional burdens for already stressed women Summary Truly ‘at risk’ women may not participate Even if an intervention “works” it may not be successfully implemented- what do we mean by works? More research needed to understand complex barriers to participation The Interpregnancy Care Program Overview of Engagement Strategy For Women Who Recently Delivered A Very-Low-Birthweight Infant Anne L. Dunlop, MD, MPH October 24, 2012 IPC Participants Eligibility: African-American women who qualified for indigent care and delivered a VLBW infant at Grady Memorial Hospital (GMH) during the feasibility phase (11/2003 through 3/2004). Recruitment/Enrollment: 29 women enrolled (of 38 eligible); 24-months of follow-up complete 3/2006. IPC Intervention Package Definition of an individualized IPC plan to address 7 areas epidemiologically linked to low birth weight/preterm delivery: Reproductive planning (assistance in achieving intendedness and spacing) Prevention, screening and treatment for sexually-transmitted infections Micronutrient supplementation & screening/treatment for nutritional deficiencies Prevention, screening and treatment for periodontal disease Management of chronic disease Treatment and referral for substance abuse Screening and treatment for depression, psychosocial stressors, & domestic violence Provision of health and dental services in accordance with the IPC plan for 24 months; Community outreach via a trained Resource Mother. Provision of IPC Contact with a multidisciplinary team: Family nurse practitioner, family physician, periodontist, nurse case manager, social worker, and Resource Mother; Initial contact with nurse case manager followed by Resource Mother during the delivery hospitalization. Primary care visits occurred every 1 -3 months (dependent upon extent of health problems) in a group setting with integration of group educational experiences according to the Centering Pregnancy Model of prenatal care; Home visits and telephone contact by the Resource Mother monthly to address psychosocial issues. Participation in IPC 21/29 (72%) actively participated; 8/29 (28%) not actively participated: 2 moved out of state; 3 electively disenrolled (2 prior to 1st IPC visit; 1 after single visit); 3 become lost to follow-up (2 prior to 1st IPC visit; 1 after single visit). Impact of IPC: Social Outcomes (Education) Educational Attainment: 18/21 (85.7%) active participants without h.s diploma or GED at study entry; Of those 18 without diploma or GED, 13/18 (72.2%) were assisted in earning diploma or GED during the study: 8/18 earned h.s. diploma or GED; 5/18 enrolled in G.E.D. training program, but did not complete the program. Impact of IPC: Social Outcomes (Training) Other Training: In addition to GED, 4 participants completed technical training (2 computer literacy, 2 medical assistance); In addition to h.s. diploma, 1 participant completed Upward Bounds (college preparatory program); A participant with a h.s. diploma completed technical training (administrative assistance). Impact of IPC: Social Outcomes (Housing) Housing Acquisition: 14/21 active participants with inadequate (crowded, dirty, unsafe) housing or homeless at study entry; Of those 14 who were homeless or with inadequate housing, 11/14 assisted in finding adequate housing. Cost of IPC per Participant: Full 24 months Health care: Mean charges = $ 2,397 (median = $2,104) Mean visits = 7 (median = 6) Mean cost per visit = $342 (median = $350) Resource mother outreach: Estimated $1,800 Total Program Cost per Participant per 24-Months: $4,197 Cost Analysis The 29 enrolled women received 24-months of IPC at $4,197 each, and delivered 1 LBW infant (initial hospitalization $55,576) conceived within 18-months of the index VLBW: Cost of program: 29 x $4,197 = $ 121,713 Cost of LBW infant: $ 55,576 $ 177,289 Based on the historical control cohort, we expected 5 LBW infants to be conceived within 18-months of the index VLBW: Cost of LBW infants: 5 x $55,576 = $277,880 Net savings: $100,591 Translation of IPC: “Planning for Healthy Babies” Georgia Medicaid Waiver, beginning January 2011, will expand Medicaid coverage for specific reproductive health services to Georgia women ≤ 200% FPL: ‘Interconception primary care, case management, and resource mother support’ for all women who deliver a VLBW infant after Jan 1, 2011. Services to be delivered through the Georgia Medicaid CMO’s: Family planning services (broadly) for all women of reproductive age; Amerigroup, Peach State, WellCare Small trial of NICU-based engagement in 3 metro area NICUs Engaging and Retaining Difficult to Reach Mothers in Treatment Services: Overview of a Brief Intervention. Betsy (Sarah E.) Bledsoe-Mansori, PhD, MPhil, MSW Assistant Professor – School of Social Work University of North Carolina at Chapel Hill October 24, 2012 Acknowledgements Pregnant women and adolescents from Pittsburgh, PA; Seattle and King County, WA; and Alamance and Wake Counties, NC who participated in the research studies supporting this work. Funding sources -- National Institute of Mental Health, National Institutes of Health, Horizons Foundation, Seattle, WA, Jane H. Pfouts Research Grant, ArmfieldReeves Innovation Fund, University of North Carolina Program on Ethnicity Culture and Health Outcomes, University of North Carolina Co-investigator s and collaborators: Nancy Grote, PhD; Holly Swartz, MD; Allan Zuckoff, PhD; Ellen Frank, PhD; Katherine Wisner, MD; Wayne Katon, MD; Carol Anderson, PhD; Sharon Geibel, MSW An Ecological Model of Barriers to Treatment Engagement and Retention Distal Influences ----> Proximal Influences Outcomes Community Barriers ----> Rx Adherence ----> Rx Helping System Barriers violence, safety concerns lack of support services unemployment; poverty lack of access to M.H. services bias or cultural insensitivity in environment, procedures, providers lack of evidence-based treatments lack of diversity in clients & staff provider overload and burn-out Social Network Barriers Client Barriers negative attitudes toward RX practical- time, financial, transportation, childcare social network strain psychological - stigma, low energy, negative RX experiences; previous or current trauma cultural – women’s view of depression; multiple stressors Barriers to Care Practical – Do I have time? Can I get there? Can I afford it? Psychological – Can I trust my therapist? Can she/he really understand me and help me? Cultural – Will treatment be relevant to my needs, goals, values, preferences and practices? Practical Barriers to Care Costs ◦ 40% African Americans and 52% Hispanics lack health insurance in the US (US Census Bureau, 2003) Access • Inconvenient or inaccessible clinic locations • Limited clinic hours • Transportation problems Competing Obligations • Child care and social network • Loss of pay for missing work • Time in dealing with chronic stressors Psychological Barriers to Care: STIGMA: “I don’t want to be that person to get the medication and be called “DEPRESSED”; my sister had to live with that label – and everyone avoided her and treated her like it was her fault.” NEGATIVE EXPERIENCES WITH SERVICE PROVIDERS: “I didn’t want the therapist to report my depression to child protective services because they might take my baby away. I felt betrayed.” CHILDHOOD TRAUMA AND LACK OF TRUST Greater risk of insecure attachment and lack of trusting others (Mickelson et al., 1997) Implications for seeking treatment: go-it-alone attitude; poor Cultural Barriers to Care: CULTURE OF POVERTY “My therapist seemed overwhelmed by all my practical problems, so how could she help me?” CULTURE OF RACE/ETHNICITY/NATIONALITY No – it doesn’t matter… “Sitting in front of a white therapist isn’t necessarily like she thinks she is better than me, BUT there are some white people who think they can look down on you and show favoritism to people of their nature and culture and treat you any kind of way.” Development of an Engagement Strategy Before Treatment Begins To deal with practical, psychological, and cultural barriers to care and ambivalence about going for depression treatment Integration of two theoretical approaches: ◦ Ethnographic interviewing ◦ Motivational interviewing Ethnographic Interviewing (EI) A method of eliciting information designed to help the interviewer understand the ideas, values, and patterns of behavior of members of another culture without bias (Schensul, Schensul, & LeCompte, 1999) ◦ Anthropological Uses Foreign cultures Sub-cultures - Motivational Interviewing (MI) Client-centered, goal-oriented method for enhancing a person’s own motivation to change by working with and resolving ambivalence (Miller & Rollnick, 2002) Principles of Engagement (Grote, Zuckoff, Swartz, Bledsoe, & Geibel, 2007) 1) Work to understand the perspectives and values of the woman without bias or agenda 2) Adopt a one-down position as learner 3) Help the woman to feel safe to tell her story (what’s bothering her) without fear of judgment 4) Find out how the depression or stress is interfering with what is important to her – this primary motivator for change! Principles of Engagement 5) Affirm the woman’s strengths and coping capacities (e.g., resilience, knowledge, spirituality, family) 6) Obtain permission before giving information or advice 7) Provide psychoeducation about the problem and effective treatments and elicit the woman’s reaction 8) Identify pros and cons about getting treatment (ambivalence); pull for the negatives 9) Express empathy, especially for the reasons against seeking treatment (as well as reasons for seeking treatment) Principles of Engagement 10) Foster personal choice and control ( “It’s up to you!”) 11) Problem-solve all the barriers with the woman 12) If the woman commits, collaborate with him or her to make the connection with mental health services 13) Offer hope, acceptance of ambivalence, affirmation 14) Leave the door open, if she does not commit Engagement Session: 5 components (Unpublished manual, Zuckoff, Swartz, Grote, Bledsoe & Speilvogle) Total time: 50-60 minutes -- These components can be used separately if time is limited or repeated as needed. 1) Getting the story 2) Past efforts at coping and attitudes toward treatment 3) Feedback and psychoeducation 4) Addressing barriers to care 5) Eliciting commitment and planning for treatment engagement Engagement Component 1: The Story Introduce session ◦ “During this time I would like to get to know you better – how you see what’s bothering you, whether you want help, and if so, what you would want out of treatment services.” ◦ “How have you been feeling lately and how is this interfering with what’s important to you?” Explore the Story A. Problem: understanding of the woman’s view of her depression/stress & how it is interfering with client’s life B. Context: social context of the problem: acute stressors (stressful life events; pregnancy) and chronic stressors (like poverty) C. Summary: empathically summarize client’s story; highlight concerns and wishes; identify and affirm strengths Engagement Component 2: Treatment History & Hopes for Treatment History of the problem: ask about past or current efforts to cope with the problem (e.g. spiritual beliefs, family, inspirational people); identify and affirm strengths – empathically summarize Treatment history: ask about client’s or family members’ experiences with or ideas about treatment; get both positive and negative; ask about experiences with social agencies/health care providers Treatment hopes/expectations: ◦ “What would you like to be doing if treatment worked?” ◦ “What do you want/not want in treatment or in a therapist?” Does race/ethnicity matter? ◦ Empathically summarize hopes and fears for treatment, capturing the woman’s ambivalence while highlighting hope Engagement Session Component 3: Feedback and Psychoeducation Feedback A. Elicit: “Would it be OK if I shared some of the results from the questionnaire you filled out?” or “my ideas about what you’re struggling with?” B. Provide: symptom severity, consequences of depression/stress C. Elicit: “What do you make of this?” “How does this sound?” Psychoeducation A. Elicit: “What is your view of depression?” “Would it be OK if I gave you some information about it and treatment options?” B. Provide: information about depression and treatment C. Elicit: “How does this sound to you?” “Does this make sense?” Engagement Session Component 4: Problem-solving the Barriers to Care Practical – “What might make it hard to come even if you wanted to?” Psychological – “Beyond these practical concerns, what else might keep you from coming?” Keep asking, “What else”? Transportation? Childcare? Scheduling? Finances? Negative attitudes about treatment? The burden of dealing with the symptoms of the problem? Guilt about taking time for self? Concerns that CPS might become involved? Doubts about whether treatment will help? Perceived stigma from family and friends? Cultural – “How is treatment viewed in your family or community?” 1) How can treatment help me with getting a job, house, food, etc.? 2) Preferred community approaches for treatment (e.g., church)? 3) Therapist differences in race, class, gender, age, nationality? ◦ therapist would judge, not understand, act disrespectful, not care ◦ therapist does not know how to cope with client’s problems – no experience Engagement Session Component 5: Elicit Commitment Grand Summary: summarize woman’s story, ambivalence, barriers and solutions; highlight her change talk – “I can’t take this anymore.” Change Plan: outline next steps, e.g., scheduling an appointment, number of treatment sessions Elicit Commitment:“What would you like to do?” “Does this sound right for you? Leave Door Open:“It’s fine if you want to think about it, you can give me a call.” Instill Hope:Affirm woman’s participation in the session and the strengths client brings to treatment; express optimism about treatment Randomized Study of Pregnant, Depressed Women: Rx Engagement and Retention (Grote, Zuckoff, et al., 2007) p<.001 p<.001 p<.001 1 0.9 0.8 0.7 0.6 0.5 0.4 0.3 0.2 0.1 0 No Engagement Engagement 1st session 4 plus 7 to 8 Less than 1/3 of phone intakes attend 1 Rx session in community mental settings Typical number of Rx sessions attended in community mental health = 1 % with Major Depression Diagnoses 1 0.9 0.8 0.7 0.6 0.5 0.4 0.3 0.2 0.1 0 92% 79% 42% 30% 5% Pre-Rx Pre – Post-Rx: p<.05 Post-Rx 0% Follow Up Pre – F/U: p<.05 Brief IPT Usual Care Feasibility Study of Depressed Pregnant Adolescents (Bledsoe,Wike, Olarte, et al, 2010) 88% of eligible adolescents entered and 93% completed. More Research on Engagement Session “PREMIUM” (Program for Effective Mental Health Interventions in Under-resourced Health Systems) in Goa, India funded by the Wellcome Trust, UK (Vikram Patel, PI) “Patient Navigation for Depressed Mothers in Head Start in Boston, MA- An Engagement Strategy funded by NIMH (Michael Silverstein, PI) Questions & Answers F a c i l i t a te d b y : Amy Mullenix Every Woman Southeast co-chair Please submit your questions via chat. Feel free to contact speakers after the webinar with a n y a d d i t i o na l q u e s t i o n s . Join us! Join our listserv http://www.surveymonkey.com/s/FQS2P3W Bookmark our website www.everywomansoutheast.org Follow the blog: www.everywomansoutheast.com “Like” our Facebook page (Every Woman Southeast) and Pin our page! Contact Sarah at sarahv@med.unc.edu or 919-843-7865 A woman's health is her capital. Harriet Beecher Stowe