Anne Niec, MD, FRCPC Professor, Pediatrics Faculty Lead, Professionalism 2012 Medical Expert The health of my patient will be my first consideration; Communicator I will give to my teachers the respect and gratitude that is their due; Collaborator My colleagues will be my sisters and brothers; Scholar I will not use my medical knowledge to violate human rights and civil liberties, even under threat; Professional I will respect the secrets that are confided in me, even after the patient has died; I will practise my profession with conscience and dignity; Health Advocate I will not permit considerations of age, disease or disability, creed, ethnic origin, gender, nationality, political affiliation, race, sexual orientation, social standing or any other factor to intervene between my duty and my patient; I will maintain the utmost respect for human life; Manager I will maintain by all the means in my power, the honour and the noble traditions of the medical profession; What is Advocacy Why do it How do you do it in Orthopaedics Think of the last time you were on call. The day is often busy, chaotic and hectic During those 24 hours (or more) of working in the hospital, which of the following CanMeds Roles did you fulfill? Take some time and consider all of the various aspects of your work as a resident: How many patients did you see? How many procedures did you do? How many families did you meet with? How many other health professionals and care providers did you interact with? How many pages? How many phone calls? How many decisions did you make? How much time did you have for yourself? video Defined by the Dictionary..... Speaking out Expressing one’s opinion on a matter of importance The act of supporting a cause or proposal Storytelling leadership In Canada, advocacy is an important part of our democratic government process. It means voters “speak up” and make their request for change known to their elected representatives. .. to carry out the requested action or initiate the requested change.....For charitable organizations, advocacy is speaking out on behalf of the people they serve, and encouraging those same people to help make the voice louder..for the people the COF serves, it means telling your story and helping your elected representative to reflect the needs of his or her constituents in legislature....Canadian orthopaedic patients can effect positive change... Definition: Orthopedic Surgeons responsibly use their expertise and influence to advance the health and well being of individual patient, communities, and populations. Competencies: Orthopedic Surgeons are able to…. 1. Respond to individual patient health needs and issues as part of patient care 2. Respond to the health needs of the communities that they serve 3. Identify the determinants of health for the populations that they serve 4. Promote the health of individual patients, communities, and populations 1. Respond to individual patient health needs and issues as part of patient care 1.1. Identify the health needs of an individual patients 1.1.3. Identify determinants of health particular to an individual patient Adapt patient assessment and management according to particular determinants of health Determine a patient's ability to access various services in the health and social systems 1.2. Identify opportunities for advocacy, health promotion and disease prevention with individuals to whom they provide care 1.2.3. Promote injury prevention with respect to recreational activities Identify risk factors that can lead to nonunion, ulceration, amputation, Charcot joints, and malignancy, and advise patients on lifestyle modifications to improve outcomes Advise athletes on the risks and side effects of performance enhancing drugs and substance abuse 2. Respond to the health needs of the communities that they serve 2.1. Describe the practice communities that they serve 2.2. Identify opportunities for advocacy, health promotion and disease prevention in the communities that they serve, and respond appropriately 2.2.1. Identify workplace and farming factors that lead to an increased risk of trauma 2.2.2. Identify sport/recreational factors that lead to an increased risk of trauma 2.3. Appreciate the possibility of competing interests between the communities served and other populations 3. Identify the determinants of health for the populations that they serve 3.1. Identify the psychological, social and physical determinants of health of the populations that they serve, including barriers to access to care and resources 3.1.1. Identify "at risk" populations within a given orthopedic practice in conjunction with Orthopedic Surgery specialty societies and other associations 3.2. Identify vulnerable or marginalized groups within the population served and respond appropriately 3.2.1. Apply available knowledge regarding prevention to "at risk" groups 3.2.2. Contribute to the generation of population-based data for improved understanding of orthopedic problems within “at risk” populations 4. Promote the health of individual patients, communities, and populations 4.1. Describe an approach to implementing a change in a determinant of health of the populations they serve 4.1.1.Explain the need to advocate to decrease the burden of illness (at a community or societal level) of a condition or problem relevant to orthopedics through a relevant orthopedic society, community-based advocacy group, other public education bodies, or private organizations 4.2. Describe how public policy impacts on the health of the populations served 4.3. Identify points of influence in the healthcare system and its structure 4.3.1.Discuss key issues regarding the Canadian health care system, indicating how these changes might affect societal health outcomes 4.4. Describe the ethical and professional issues inherent in health advocacy, including altruism, social justice, autonomy, integrity and Idealism 4.5. Appreciate the possibility of conflict inherent in their role as a health advocate for a patient or community with that of manager or gatekeeper “almost every household in America is affected in some way by disease of bones, joints, muscles, and skin….as orthopaedic surgeons, we have the unique opportunity to improve our patients’ lives….it is worth pointing out to our lawmakers how costeffective MSK care can be….it keeps younger people working and enables many seniors to live independently” Dr. Katz, AAOS video Timely access to care Recognition of IPV and offering assistance to its victims (IPV Working Group, Mohit Bhandari – Chair) Models of care for foot and ankle surgery Hip Hip Hooray – credibility with the public and a unified front between surgeons and the patient community as a campaign with MOH Pediatric Orthopedics issues such as device development and approval, general pediatric-specific health care issues (obesity, wellness, disease and injury prevention, school screening for scoliosis) “not just about getting patients their MRI or hip replacement faster…needed at a higher level in support of public policies that aim to reduce poverty and social exclusion and to promote the rights of all Canadians…Adoption of a population health approach is important that addresses the social causes of poor health – integral to practicing good medicine”. Focus on the social contract between medicine and society: “priority health concerns of the community, region, and or nation they have a mandate to serve” “Medical education and practice needs to be sensitive to the SDH and health care needs of people who are vulnerable and marginalized” Professionalism and health advocacy seen to align closely with social responsibility “Expect physicians to address health needs of communities served, identify the determinants of health of the population, promote health at individual community and populations levels.” AMA: declaration of professional responsibility – calls on all physicians to advocate for social, economic, educational, and political changes that ameliorate suffering and contribute to human well-being “Social responsibility is about ensuring, protecting and contributing to the collective welfare of society. A commitment to social responsibility is part and parcel of physicians concerns and the core values of doctoring.” Residents need opportunities to practice advocacy; preceptors must model the behaviors they wish to see in future physicians Its about identifying and involving yourself in advocacy activities related to your discipline, applying evidence regarding prevention and health promotion initiatives at the patient, community and population levels Need to identify and respond to factors outside the clinical scenario that influence health; examine and respond to factors that led to barriers in care; take a scholarly approach to advocacy by encouraging and /or participating in research that contributes to a better understanding of the issues at stake Working to address the root causes of the problems patients face….. It is a translational activity….. It is a core element of professionalism….. Earnest et al, Acad Med Jan 2010 Health care influences whether people get well when sick Determinants of health influence why some people are healthy and others are not Consistent correlation between life expectancy/health status and various measures of social status In order to improve health, need to think and act: upstream about determinants outside of health care 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. Income and Social Status Social Support Networks Education and Literacy Employment/Working conditions Social Environments Physical Environments Personal Health Practices and Coping Skills Healthy Child Development Biology and Genetic Endowment Health Services Gender Culture Recognize that you make a difference You have the power to make change in the community Be well prepared as an advocate – map out your key messages Be patient and persistent – change does not happen overnight Create and cultivate relationships with opinion leaders and decision makers Work with others – including people from other sectors Put a human face to your issue by telling your patients stories Be positive Always be sure of your facts Stick to issues that correspond to your experience and expertise Present yourself as constructive, well prepared, reasonable, well informed and solutions oriented Take the time to thank those who have listened to you or helped you advance your issue If not successful first time round, you may be building the foundation for positive change in the future Be realistic – remember change is about compromise Invest a lot of time and energy in something that you don’t have strong feelings about Bite off more than you can chew (if you only have time for a phone call then that’s what you do) Assume that your audience knows the issue as well as you do Use jargon, technical terms or acronyms Criticize and complain – negativity will turn off the people who have power to make change Underestimate public officials Leave an influential person’s office without leaving behind your business card 1. Choose an issue 1. Get the data 1. Frame your message 1. Choose your methods of communication About universities (consider medicine)…. “we tell stories: old stories about evolution….and we make up new stories…we call the old ones teaching, and the new ones research (quotes Prof. Edward Chamberlin). This description is based on humanity and its emphasis on narrative. It’s about people – about those of us on faculty here, telling old stories and with the help of our students and staff, writing new ones. And about our students,…preparing to write their stories in a world full of challenges that our generation has left them.” video