1 National Community Child Life Directory 2 Table of Contents Chapter 1: Bereavement Programs– Funeral Homes, Hospice, Grief Counseling, Palliative Care, End of Life, Bereavement in Schools………………………………………………5 Chapter 2: Therapeutic Medical Camps/Grief Camps & Programs Camps for Medically Fragile children, Grief, Illness, and Siblings…………………..16 Chapter 3: Community Mental Health……………………………………………………………………26 Chapter 4: Regional Centers- Early Childhood Intervention…………………………………35 Chapter 5: Child Development Centers- Head Start Programs and Medically Fragile Children Centers………………………………………………………………………………………………………………42 Chapter 6: Pediatric Home Care Programs………………………………………………………………58 Chapter 7: Pediatric Dental Settings…………………………………………………………………68 Chapter 8: Private Practice, Consulting, Play Therapy…………………………………..75 Chapter 9: Legal Systems- Court Appointed Special Advocates & Child Advocacy Centers……………………………………………………………………………………………………………………………84 Chapter 10: School Setting – Educational Consult for Children with Chronic or Life Threatening Diseases………………………………………………………………………………………….90 Chapter 11: Child Life in a Nonprofit Community Service/Support Agency and Nonprofits Providing Child Life Services ……………………………………………………….93 Chapter 12: Child Abuse Centers – Family Programs and Shelters ………………..97 Chapter 13: Wellness Centers………………………………………………………………………………….106 Chapter 14: Ronald McDonald Houses……………………………………………………………………108 3 Introduction Child Life Programs have become standard in most large hospital settings, building on individual and family strengths, promoting optimal development, and minimizing the adverse effects of stressful events in their lives. Today Child Life Specialists are beginning to make the same essential contributions within the community. This National Community Child Life Directory provides Child Life Specialists with alternative settings outside the hospital environment. The directory includes the programs and settings where child life practice may be incorporated and delivered in a variety of settings nationwide. This directory provides CLS with a hands-on resource for exploring the endless opportunities open to Child Life Specialists. The abbreviation “CLS” is used throughout the directory. This abbreviation is short for Child Life Specialist. Each chapter in this Community Child Life Resource Guide lists the name of the program or setting along with a description of the setting. The contact information including address, phone number and website of each program is listed as well as a chapter introduction on how CLS can use their skills and expertise in each setting. Each chapter is split into the following regions- East Coast, Midwest, West and West Coast. Child Life Specialists can be found in many new areas in which children and families find themselves coping with challenging and overwhelming situations. This resource guide provides CLS with unique practice areas where child life services can be used to benefit the needs of families outside of hospital settings. 4 Instructions This National Community Child Life Directory was created to help Certified Child Life Specialists with job opportunities in alternative settings nationwide. This directory can be helpful for CLS looking for opportunities outside the hospital setting. This child life directory can be used by all cultures, genders and generations looking for opportunities in the child life field. The directory lists many settings where Child Life Specialists knowledge, skills and expertise with children and families can be beneficial. This directory provides a variety of settings where child life can be delivered in many settings. The directory was created as an introduction to unique settings in which CLS can use their expertise to help children and families. There are many opportunities for child life services in alternative settings, this directory is only an introduction to the many areas in which Child Life Specialists can help children and their families coping with challenging situations. I hope you find this directory helpful in beginning your search as a Child Life Specialist looking for new areas and settings in which child life services can be beneficial. Welcome to a new world of opportunity for Child Life Specialists! 5 Chapter 1: Bereavement Programs – Funeral Homes, Hospice, Grief Counseling, Palliative Care, End of Life and Bereavement in Schools Program www.hospiceofhuntington.org A Child Life Specialist can find working in bereavement programs a good fit. In the hospital setting, the CLS works with families and children with issues of loss such as identity, independence, function, limb and life. The experiences CLS have from the hospital setting, especially dealing with grief and loss can benefit them when working in an alternative bereavement setting. Child Life Specialist’s skills such as the ability to work with a diverse population, communication skills, knowledge about grief and loss and developmental knowledge are well suited to working with children and families experiencing loss through death. These same skills are adaptable to the bereavement setting, where families are under stress and are in need of the same support and care. In this chapter bereavement settings are listed in many states within the U.S. where children and their families are coping with the loss of a loved one. 6 West States- Montana & Colorado Peace Hospice of Montana This children's bereavement program is specially created to meet the needs of children ages 5 - 18 who have experienced the death of a loved one. The support group provides a safe environment for grieving children to ask questions and experience emotions with peers and caring adults. It is the mission of Peace Hospice to extend this environment to all aspects of a child's life through his / her program sponsor, family, school, and community. Children Bereavement Services 1101 26th Street South Great Falls, MT 59405 (406) 455-3040 www.benefis.org Judi’s House Hope and Healing for Grieving Children and Their Families Helping Grieving Children and Teens in School Program Judi’s House staff works cooperatively with all school districts in the Denver metro area. In school, a peer support group facilitated by trained Judi’s House grief counselors can provide a safe forum for grieving children to express their thoughts and emotions concerning the death of someone special. Such school-based activities help to decrease the child’s sense of isolation in their grief experience. To get started, the school must identify at least 6 children who could benefit from a peer support group. Group max is 12 participants. During our visit, we combine grief education with a mix of fun hands-on activity that bring the students closer together and provide them with tools for life. 1741 Gaylord St Denver, CO 80206 Phone: 720-941-0331 www.judishouse.org 7 Midwest- Michigan & Minnesota Arbor Hospice Arbor Hospice is an independent, non-profit, community-based organization and has been providing the highest quality hospice and grief support services for adults, children and families since 1984 in Washtenaw County and the surrounding seven counties. 1. Art from the Heart Support Group: Facilitated by an art therapist, this group is specifically designed for any child in Kindergarten through 8th grade who is grieving an important person in his or her life. Art from the Heart meets the first and third Saturdays of the month at The Residence of Arbor Hospice from 1 – 3 pm. 2. Memory Book Group: This program is open to adults and children who are interested in organizing photos of loved ones in a fun and creative way to create a memory book. Materials are provided through funding by the Kiwanis Club of Ann Arbor; participants just need to bring photos. The Memory Book Group meets the second Saturday from 1 – 3 pm at The Residence of Arbor Hospice Administrative Office The Residence of Arbor Hospice & The Arbor Hospice Foundation 2366 Oak Valley Drive Ann Arbor, Michigan 48103 734-662-5999 www.arborhospice.org Mattson Funeral Home and Cremation Service Children and Grief Programs The Star Program (A Special Time to Always Remember) Through the STAR program, our staff helps explain what a funeral hearse, eulogy and more is, to kids. The program is geared toward kids 3-18 but can be helpful for people of all ages. Kids begin with a coloring book, telling the story of Grandpa Amos dying. The funeral home provides literature featuring traditional and cremation funerals, depending on which service is taking place for that family member. The half-hour program takes place during the visitation for family, and can also be good for parents to observe, to know how to talk to their children about death. Aside from reading through the coloring book on death, we give each child a keepsake picture of their loved one that they can write or draw a message on and remember their loved one forever. The children also receive a Star that they may write a message on and can put in the casket with the deceased 8 343 North Shore Drive Forest Lake, MN 55025 651-464-3556 info@mattsonfuneralhome.com www.mattsonfuneralhome.com Children’s Grief Connection Children’s Grief Connection is a nonprofit organization that works in partnership with Minnesota’s funeral directors to provide grief programs for children and teens who have experienced the death of someone important to them. It is specially designed to provide the support and information children need, in a way they can understand. 72351 Pine River Road Willow River, MN 55795 877.226.7632 www.childrensgriefconnection.com East Coast- New Jersey, Pennsylvania, Maryland, Massachusetts & Delaware Kids Connect/Parents Connect Bereavement Groups Meets monthly on Wednesday afternoons. This program is designed for families who have lost a parent to cancer. Two groups meet simultaneously – one for the children who have lost a parent to cancer and the other for the surviving parent. The Wellness Community of Central New Jersey an Affiliate of the Cancer Support Community 3 Crossroads Drive Bedminster, NJ 07921 908-658-5400 www.cancersupportcnj.org Roberta’s House- Family Grief Support Center Roberta's House is a Grief and Loss Center with the focus of restoring children and families to a place of wholeness as they experience grieving the loss of a loved one through the development of healthy coping skills that lead to positive outcomes. 9 Programs for Children Roberta's House serves children between 5-17 years of age with the understanding and commitment that no child (or adult) should grieve alone. Following a death children often have many questions. Roberta's House is a safe place where they can explore their questions as they are ready. It's a place where they receive support and encouragement from their peers and caring adults. Children work in age appropriate groups for "Kiddles" ages 5-8 years, "Middles" ages 8-12 years and "Teens" ages 13-17 years. Through the use of creative arts expression, crafts, and meaning making through memory treasures children are able to begin the journey of accomplishing the tasks of grief work. Annette March-Grier, Executive Director Roberta's House Inc. 1900 N. Broadway, Suite 101 Baltimore, Maryland 21213 410-235-6633 robertashouse.org Our Mission To enrich quality of life by providing expert care, support, education and consultation for those affected by life-limiting illness, death and loss. Children and Grief Services Our free children's support groups offer a dedicated, safe forum for children in different age groups to express feelings associated with the death of a loved one. Open to any child dealing with loss, our groups are free of charge and occur on an ongoing basis, with the option to attend as many groups as desired. Some of the additional ways we help: Grief assessments Emergency debriefing 10 Detailed age-appropriate curriculum on grief Annual Camp Stepping Stones for children and their families Phone consultations Remembrance services and activities Comprehensive lending library Consultations to help parents and children, both during illness and after a loss Collaboration with area schools, hospitals, parents’ groups and other organization Kaplan Family Hospice House 78 Liberty Street Danvers, MA 01923 978-774-7566 www.hns.org Family Hospice and Palliative Care o Pediatric Palliative Care The Pediatric Palliative Care Program provides comprehensive palliative care services to meet the unique needs of children with a life-limiting illness and their families in a variety of settings - the hospital, at home, or in any location desired by the family or primary caregiver. o The experienced interdisciplinary Pediatric Palliative Care team collaborates with each child's primary physician to provide specialized services that focus on pain relief, symptom management and comfort care. Visits by team members are flexible and individualized to the needs of the child and family. The Pediatric Palliative Care Program Provides: 24 hour on-call availability Specialized services that focus on pain relief, symptom management and comfort care Emotional and spiritual support for the child, family and others meaningful in the child's life Bereavement support for patients, siblings, and extended family members Administrative Offices and The Center for Compassionate Care 50 Moffett St Pittsburgh, PA 15243 (412) 572-8800 1-800-513-2148 www.familyhospice.com 11 Funeral Bereavement Program at Doherty Funeral Home Only a few funeral homes offer comprehensive bereavement programs and services. When a loved one dies and you need help making sense of your grief experience; we are here for you. 1. Our Bereavement Coordinator is trained and Certified in Thanatology (dying, death, and bereavement) to better assist you and your family. 2. Let's talk about the Funeral is an individualized program developed right here at Doherty Funeral Homes to help children and teenagers better understand their loss and the planned funeral/memorial service. 3. Our annual Holiday Hope program and memorial gives grieving families and individuals a framework to help them cope through the holiday season. 1900 Delaware Avenue Wilmington, DE 19806 Phone 302 652-6811 www.dohertyfh.com West Coast- California & Oregon The Dougy Center for Grieving Children and Families The mission of The Dougy Center is to provide support in a safe place where children, teens, young adults and their families grieving a death can share their experiences. The Dougy Center 2228 NE Glisan Street Portland, OR 97232 Phone: 503-775-5683 Toll Free: 866-775-5683 Email: help@dougy.org www.dougy.org 12 George Mark Children’s House is a nonprofit organization that provides the gift of time to children with life-limiting illnesses and their families. We serve as a medical model for interdisciplinary palliative care for children and their families. We have doctors and nurses who provide 24/7 medical care for our children, and our Interdisciplinary Team also includes a licensed social worker, psychologist, child life specialist, and chaplain who address the emotional, social, psychological, and spiritual needs of the entire family. Types of Care Our forms of care include respite care (round-the-clock), transitional care, pain and symptom management, and end-of-life care for children with life-limiting illnesses and their families. Additional services include ongoing support and bereavement programs. 2121 George Mark Lane San Leandro, CA 94578 (510) 346-4624 www.georgemark.org South- Alabama, Florida & South Carolina The Healing Place At The Healing Place, our focus is young people ages 3-19 and their families who have experienced the death of a sibling, parent, grandparent, friend or other loved one that may need support or guidance in dealing with the grief associated with that loss. Tuscumbia Alabama Location: 5604 Ricks Lane P.O. Box 740356 Tuscumbia, Alabama 35674 Phone: 256.383.7133 www.thehealingplaceinfo.org 13 SunCoast Hospice The Stepping Stones for Kids Palliative Care Program offers families and children choices in care. A variety of care programs are available, each unique and focused on providing care tailored for your seriously ill child’s needs. Stepping Stones offers home, school, hospital or hospice service centers based support services and strives to help children and families live each day to the fullest with optimism, courage and hope. Children’s Hospice & Palliative Care Program This service provides interdisciplinary care for children with life limiting illnesses and conditions. Services include: Nursing Visits Counseling Support Pastoral Care Volunteer Support Pain & Symptom Management Training & Education for Caregivers Children’s Home Health Care This service provides interdisciplinary care for children with long-term chronic illnesses. Services include: Nursing Visits Counseling support Pain & Symptom Management Training & Education for Caregivers Shift care Nursing Wound care Sibling Support Counseling is available for children coping with the serious illness or death of a sibling. Counselors, specialized in pediatrics and child development, use treatment interventions such as art and play to help the sibling understand the seriously ill child’s illness. 5771 Roosevelt Blvd Clearwater, FL 33760 (727) 523-3458 www.thehospice.org 14 School Grief Support Group In cooperation with local schools and guidance counselors, HospiceCare staff provides support groups on site to grieving children and teens at the elementary, middle, and high school levels. These groups help the youth cope with their grief and commemorate their loved one. This program lasts five-weeks. This school Grief Series which will be hosted and facilitated by HospiceCare of the Piedmont staff HospiceCare of the Piedmont, Boardroom 408 West Alexander Avenue Greenwood, SC 864.227.9393 www.hospicepiedmont.org Gilda’s Club of South Florida Cancer Support for the Whole Family-The Whole Time Gilda’s Club South Florida is a free cancer support community for women, men, children, and teens with all types of cancer and their families and friends. Noogieland™ is both a concept and a place where children and teens find that they are never alone with a cancer diagnosis. It is for children and teens that have a loved one with cancer, who have lost a loved one to cancer, or who have cancer themselves. In Noogieland™ children get a chance to play and laugh with other children who know what they are going through. They find healthy ways to express their emotions through art and play. They share their “expertise” about living with cancer with the other children. And they participate in weekly, monthly, and annual special events and celebrations that provide inspiration and hope. Noogieland™ has a Teen Group to meet the special needs of adolescent 119 Rose Drive Ft. Lauderdale, FL 33316 954-763-6776 www.gildasclubsouthflorida.org Gilda's Club Chicago* This Club also has the Noogieland Program 537 North Wells Street Chicago, Illinois 60654 www.gildasclubchicago.org 15 Chapter 2: Therapeutic Medical Camps/ Grief Camp Programs Camps for Medically Fragile children, Grief, illness, and siblings intheloopkids.com Child life can play an important role in the camping environment. Child life specialists can assist in many aspects of camp planning, programing, and implementation of child life services, and they are a valuable addition to the camping staff. The fundamental understanding of the psychosocial impact of illness is imperative while addressing issues and concerns that arise at camp. The child life specialist can be the staff member who helps provide campers with appropriate support and intervention when any issue arises. A child life specialist can make valuable contributions to camp setting, particularly those with special medical needs. In the chapter camps in a variety of states within the U.S are listed. Each of the camps is unique in the services they provide for children. 16 East Coast- New York, Pennsylvania & Connecticut Bereavement Camps for Children Camp Dragonfly Camp Dragonfly is a free weekend bereavement camp for children ages 6-12. On the surface, it’s much like any other camp. Kids and their buddies sleep in enclosed cabins on bunks. They play games, make crafts, swim, go boating and gather around the evening campfire. But at this camp each child is paired with an adult "big buddy," a specially trained volunteer who provides companionship, support and supervision throughout the weekend. Medical staff is on site throughout the weekend. Through this combination of play and camaraderie, Camp Dragonfly leads children through loss, grief and recovery. Two sessions are held each year, one at Camp Swatara (ages 6-12), Bethel and one at Camp Hebron (ages 6-15), Halifax. Please call Stephanie Schaefer, Coordinator of Volunteers, at 1-800-889-1098 for the Camp Hebron site or Cathie Davidavage, Bereavement Counselor, at 1-800-222-5236 for the Camp Swatara site. PinnacleHealth Hospitals PO Box 8700 Harrisburg, PA 17105-8700 www.pinnaclehealth.org Camp Jonathan, one-week day camp for bereaved children. The purpose of Camp Jonathan is to help children ages 6 through 12 who have suffered the death of a significant person in their lives. Using the creative arts as a therapeutic mode combined with small group support and administered by professional pediatric grief counselors, Camp Jonathan is a unique resource for grieving children. For more information please call: Mary Peitler, New Milford VNA Community Education Coordinator, (860) 354-2216 17 New Milford Visiting Nurse Association, Inc. 68 Park Lane Road (Route 202) New Milford, CT 06776 Comfort Zone Camp Comfort Zone Camp is a nonprofit bereavement camp that transforms the lives of children who have experienced the death of a parent, sibling, or primary caregiver. The free camps include confidence building programs and age-based support groups that break the emotional isolation grief often brings. Comfort Zone Camps are offered to children 7-17, and are held year-round in California, Massachusetts, New Jersey, and Virginia. www.comfortzonecamp.org Camp Good Days and Special Times Camp Good Days and Special Times is non-profit organization that is dedicated to improving the quality of life for children, adults and families whose lives have been touched by cancer and other life challenges through summer camping experiences and year-round events and activities. Camp Good Days & Special Times Central New York 356 North Midler Ave Syracuse, NY 13206 315-434-9477 Camp Good Days & Special Times Southern Tier 179 Graham Rd. Suite B Ithaca, NY 14850 607-266-9180 Camp Good Days & Special Times Central Florida PO Box 292 3956 Town Center Blvd Orlando, FL 32837 www.campgooddays.org South- Virginia, North Carolina, South Carolina and Florida Camp Rainbow Children between the ages of 5-12 who have lost a family member or friend are invited to apply for participation in Camp Rainbow. 18 Any child who is experiencing difficulty with the grieving process, and who would benefit from learning more about grief and loss, may attend the camp, regardless of the length of time since the death or the cause of death www.hospicesupportcare.org/camprainbow.html Hospice Support Care, Inc. 1701 Fall Hill Ave., Suite 109 Fredericksburg, VA 2240 (540-361-7071) Camp ReLEAF Is a spring weekend bereavement camp for youth (grades kindergarten through eighth grade) who have recently experienced the death of a significant person. At Camp ReLEAF, children come together in a safe environment to explore their feelings with other children who have had similar losses. Camp ReLEAF offers all the fun of camp while creating a safe place for youth to express and deal with their grief. Our camp offers youth the following benefits: Help young people develop skills for coping with loss An opportunity to be with peers and know they are not alone A fun way to feel safe in expressing and dealing with grief 20 years of experience dealing with bereaved teens The camp is staffed by Duke Hospice Bereavement Services staff and trained volunteers Camp ReLEAF UNICORN BEREAVEMENT CENTER 1001 Corporate Drive Hillsborough, NC 27278 919-644-686 www.dukehealth.org/services/duke_home_care_hospice/programs/duke-bereavementservices/camp-releaf/ Camp Good Grief Camp Good Grief is a 3 day camp held in the fall, winter, and spring. Our fourth camp is a reunion camp held during the summer for campers to share memories and new experiences. Who Attends? 19 Children, ages 5-15, who have lost a loved one and are residents of Palm Beach and Broward Counties Where is it Located? Camp is held in a serene wooded setting in Lake Worth, FL complete with 12 air conditioned cabins, dining facilities, and recreational areas. (561) 416-5059 or (561) 416- 5106 www.campgoodgrief.org/about.htm Camp Celebrate Hope Camp Celebrate Hope is an annual weekend retreat for youth ages 6-14 who are grieving the death of a loved one. The camp is uniquely designed to help participants share memories and explore feelings with others who have had a similar loss. The Camp consists of educational, interactive groups as well as recreational time for activities such as swimming, and arts and crafts. A special memorial service also allows the campers to commemorate their loved one. HospiceCare of the Piedmont, Boardroom 408 West Alexander Avenue Greenwood, SC 864.227.9393 www.hospicepiedmont.org/index.php?content=grief_support Camp Courage Camp Courage creates an unforgettable recreational experience for children and teens with cancer or blood disorders from the Upstate of South Carolina, western North Carolina, and Northeast Georgia. Camp Courage takes places at The Pleasant Ridge Camp & Retreat Center between Greenville SC and Asheville North Carolina. (864) 455-8741 www.ghschildrens.org/camp-courage.php West Coast- Washington State Camp Erin Camp Erin is the largest nationwide network of bereavement camps for children and teens ages 6-17 who have experienced the death of someone close to them. 20 There are currently more than 40 camps in over 25 states including one in Canada. It is a weekend-long experience filled with traditional, fun, camp activities combined with grief education and emotional support -- facilitated by grief professionals and trained volunteers. At Camp Erin, children are comforted knowing that there are other children who understand exactly what they are feeling and experiencing. At Camp Erin, grieving children have an opportunity to address their feelings and memorialize their loved ones. They are provided with tools and resources for use during and after camp, including memories and friendships that last long after camp is complete. www.moyerfoundation.org The Moyer Foundation 2426 32nd Ave W Seattle WA, 98199 (206) 298-1217 Camps for Medically-Fragile Kids Fresh air, new friends, crafts, and of course campfire skits: Even medically-fragile kids can be happy campers at summer camps designed for their specific needs. Pediatric Home Service (PHS) encourages families to consider summer camp for their kids. Counselors, staff members, cooks, guides, therapists, and 24-hour on-call health care professionals bring unique training, expertise, and enthusiasm for working with medicallyfragile kids. Most of all, kids learn they’re not at all alone. The summer camps Listed below are for medically-fragile kids in the Twin Cities and surrounding areas. I only listed a few as the brochure listed below is a great resource for the remaining camps not listed. For more camps check out the PDF brochure located at www.pediatrichomeservice.com/docs/Summer%20camps%20for%20medicallyfraigle%20kids.pdf Contact Information: Social Worker Monica Handlos at 651-789-9215 or email her mlhandlos@pediatrichomeservice.com. 21 You may also contact United Way First Call for Help for additional camps at 651-291-0211 or 1-800-543-7709 Midwest- Minnesota, Minneapolis & Wisconsin Camp SuperKids in Loretto, Minneapolis (YMCA Camp Ihduhapi) Cynthia Piette, Director of Camp SuperKids at 651-268-7587. Camp Superkids is an educational and fun summer camp where children with moderate to severe asthma learn to better manage and control their disease. At educational sessions, campers learn what asthma is, how asthma attacks start, how they can be avoided, and how asthma can be better managed They learn the difference between medications they take to prevent attacks and the medications they take to help stop an attack Providing support for the families of children with asthma can be just as important as educating the child themselves. Our Lung HelpLine provides year-round support to answer any questions campers and their families may have - free of charge Camp Needlepoint Camp Needlepoint is a residential camp for children with diabetes ages 8 to 16. Programs encourage independence and self-management with appropriate medical supervision to ensure the best possible experience for every camper. For example, younger campers have fun in a stable, structured program, while older campers welcome the challenge of canoeing, sailing or rock climbing adventures. Camp Needlepoint is located at YMCA Camp St. Croix, south of Hudson, WI on a wooded bluff along the St. Croix River. American Diabetes Association Office Address 5100 Gamble Drive, Suite 394 St. Louis Park, MN 55416 Camp Address: YMCA Camp St. Croix 532 County Road F Hudson, WI 54016 www.diabetes.org/living-with-diabetes/parents-and-kids/ada-camps/camps/2011/adacamp-needlepoint-session-1-2011.html 22 Camp Odayin for children with heart disease. There are three different camps available to children throughout the year: Camp Odayin's residential program is for children with heart disease between 8 and 17 years of age, who would benefit from connecting with other young people who may share similar health, emotional, and social concerns. Camp Odayin's Family Camp takes place in Mid-October each year. It begins on a Friday afternoon and runs until lunch on Sunday. Family Camp is for families with a child with heart disease, who would benefit from connecting with other families who share similar health, emotional, and social concerns. Camp Odayin's Day Camp is for children with heart disease that are 6 and 7 years of age, who would benefit from connecting with other young people who may share similar health, emotional, and social concerns. CAMP ODAYIN P.O. Box 2068 Stillwater, MN 55082 E-Mail: info@campodayin.org Telephone: 651.351.9185 www.campodayin.com/default.htm Camp Sunshine A RETREAT FOR CHILDREN WITH LIFE-THREATENING ILLNESSES AND THEIR FAMILIES Nestled alongside the shores of beautiful Sebago Lake, Camp Sunshine provides respite, support, joy and hope to children with life-threatening illnesses and their immediate families through various stages of a child’s illness. Families with a child diagnosed with diseases such as cancer, kidney disease, lupus, solid organ transplants, and other life threatening illnesses attend one of the weeklong camps. Our focus is on alleviating the strain that a life threatening illness takes not only on the sick child but also on other family members. Families have an opportunity to rebuild their relationships together and meet other families facing similar challenges. 23 Camps for Siblings with Medically Fragile Brothers or Sisters Hey What about Me? Super Sibs- Camps for medically fragile children and their siblings. These camps are located throughout the United States and Canada. www.supersibs.org/programs-and-services/sib-camp-find-a-sib-camp.html#CN Website has a map of the United States and Canada, click on the state and a list of camps are listed with information and contact information for the camp(s). Special Needs Therapy and Respite Camps for Kids 4 My Child Help and Hope for Life This website lists camps throughout the United States and Canada for children with special needs. www.cerebralpalsy.org/news/special-needs-therapy-and-respite-camps-for-kids/ 24 Chapter 3: Community Mental Health Programs www.wccp-online.org Child Life Specialists work to support children and families during periods of stress and trauma, times when the child and/or family’s ability to cope is challenged. This support has traditionally been given within the hospital setting. It can be transferred to the community setting to those children and families experiencing periods of mental health stress and trauma. Child life specialists can make the same essential contributions you see in the hospital and apply them to the community mental health settings. For children and youth struggling with mental health issues, CLS can help communities by providing child life services to those in need. In this chapter community mental health services provided to children and youth are listed by state. 25 West Coast- California & Washington State Santa Cruz County Health Services Agency Child and Adolescent Mental Health and Substance Abuse Services o o We serve eligible youth who are at risk for out of home placement and are seriously emotionally disturbed. The goals of service are to help families achieve positive outcomes, reduce out of home placements, maintain family and foster care stability, and decrease the return to Juvenile Hall, psychiatric hospitalization, and out of home placement. Services include assessment, individual, family, and group therapy, school based day treatment, family support, and evaluation for psychiatric hospitalization. Services are located at multiple school and community sites. 1080 Emeline Avenue, Santa Cruz, CA 95060 831 454 4000 www.santacruzhealth.org/cmhs/2children.htm Centra Mental Health Services Children’s Center- Meeting Family Mental Health Needs Children’s Center offers specialized outpatient mental health counseling and psychiatric services for children and adolescents. We believe that successful treatment occurs through the strength of the therapeutic alliance with the child and family. Our treatment approach concerns itself with solutions; it is both positive and non-judgmental. Our approach is collaborative in nature and focuses on family strengths. Our therapists work toward achieving positive outcomes identified by the family by building on those strengths. Children’s Center also provides a school-based mental health program for children and youth identified as having behavioral or emotional problems that impact their ability to function successfully in school. Mental health services are available onsite at selected schools in the Evergreen and Vancouver school districts. 415 W. 11th Street Vancouver, WA 98660 (360) 699-2244 www.thechildrenscenter.org/mentalhealth.php 26 School-based Services We provide mental health services to children and teens at 30 schools in four school districts in the county. Therapists work closely with teachers to provide early intervention, prevent the development of further emotional and behavioral problems, and help increase a child’s chance of success in the classroom. 4760 South Sepulveda Boulevard Culver City, California 90230 (310) 390-6612 info@didihirsch.org www.didihirsch.org/services/family Kitsap Mental Health Services Madrona Day Treatment – Madrona Day Treatment combines a supportive therapeutic environment with individualized academics to serve severely emotionally and behaviorally disturbed children who cannot be accommodated in their home schools. The goal of MDT is to help children develop the skills necessary to be successful at home, in school and in their relationships with others. 5455 Almira Drive NE Bremerton, WA 98311 360-479-4994 www.kitsapmentalhealth.org West- Colorado & Nevada Early Childhood Mental Health Services – birth to six years of age Early Childhood Mental Health Services provides services to children between birth and six years of age with emotional disturbance or high risk factors for emotional and behavioral disturbance and associated developmental delays. The goal of services is to strengthen 27 parent-child relationships, support the family’s capacity to care for their children and to enhance the child’s social and emotional functioning. Behavioral and psychological assessments, Individual, family, and group therapies and behavioral management, Psychiatric services, Day treatment, In-home crisis intervention, Childcare and pre-school consultation, outreach, and training, Clinical case management. 4126 Technology Way, Room 100 Carson City, NV 89706-2009 (775) 684-4000 www.dcfs.state.nv.us Mental Health Center of Denver- Community Based Child and Family Services Intensive In-Home Family Therapy Services – Ages 3-17 This intensive program serves children, and youth with serious emotional disturbances and serious disruptive or delinquent behavior who are at risk of outof-home placement, juvenile detention or hospitalization. It also serves children and youth who are transitioning from higher levels of care (i.e. hospitalization) back into the community. Helping families The Intensive In-Home Family Services team utilizes cutting-edge research supported approaches to address the needs of clients and their families. Helping families develop effective coping skills to meet the challenges of raising a child with serious emotional or behavioral disturbance. This program encourages and helps the family develop a network of community support. 4141 E Dickenson Place Denver, CO 80222 303.504.6500 www.mhcd.org 28 South- Virginia Intensive In-Home Services Services are currently offered in Lynchburg, Roanoke, Lexington and surrounding counties. We serve children between the ages of 4 to 18 with: Emotional and behavioral challenges which put them at risk of removal from their homes. Difficulty in maintaining healthy personal relationships, resulting in conflicts with those around them. Previous interventions through the schools, judicial system, residential treatment, hospitals or other mental health providers. Diagnoses of, but not limited to, attention deficit disorder (ADD), posttraumatic stress disorder (PTSD), anxiety, depression, conduct disorder, schizophrenia, autism spectrum disorders and attachment issues. 1920 Atherholt Road Lynchburg, VA 24501 For Lynchburg and surrounding counties, please contact Melissa Buick at 434.444.5865. For Lexington, please contact Teresa Kennedy at 540.588.9648. For Roanoke, please contact Carla Warner at 540.525.8447. mentalhealth.centrahealth.com/services/community-based-programs East Coast- Massachusetts, Maine & Pennsylvania North Suffolk Mental Health Association CASAStart Program CASASTART is a school-centered positive youth development program aimed at preventing substance abuse and violence among high-risk 8 to 13-year-olds and helping them to improve their school attendance, grades, and behavior. Offers children a safe place and support outside regular school hours to get the tools they need to succeed. All programs are composed of eight core services: social support, family services, education services (such as tutoring/homework assistance), out-of-school/summer activities, mentoring, morale-building incentives, community policing and juvenile justice intervention. Each child enrolled in CASASTART receives an individual service plan featuring all eight core services. Each student has a case manager who meets with them several times per week. 29 Case managers also meet with their families at least once a month and make regular home visits to address the family context and see what additional services may be needed. 151 Pauline Street Winthrop, MA 02152 617-539-5849 northsuffolk.org/programs/child-family-services/casa-start/ Child and Family Focus, Inc. Family Based Mental Health Services Family Based Mental Health Services are designed to provide community based therapy and support services to children and adolescents with emotional and behavioral problems. FBMHS provides therapy in a family’s home by a two-person team under the supervision of a Program Director. The goal of the program is to enhance parents’ feelings of empowerment and selfefficiency so they can help themselves and their children become psychologically and financially self-sufficient. The function of FBMHS is to assist families with maintaining their child in the home rather than in a psychiatric or residential facility. Child & Family Focus, Inc. P.O. Box 365 Valley Forge, PA 19481 (610) 783-1788 www.childandfamilyfocus.org/services/family-based-mental-health-services Community Health and Counseling Services Multidimensional Treatment Multidimensional Treatment (MT) is an evidenced-based practice that provides an alternative to group or institutional placement for adolescents, ages 12-17, with disruptive and complex co-morbid disorders who meet the criteria for out-of-home placement regardless of custody status. These youth may have a history of law violations and other problems, such as school failure, family problems, aggression, drug and alcohol use, poor peer relations, poor coping and social skills, minimal work skills, and low self-esteem. 42 Cedar Street Bangor, Maine 04402 207-947-0366 www.chcs-me.org 30 Canada- Ontario Safe Haven Shelter Safe Haven Shelter offers Waterloo Region youth a safe alternative to living on the street. Serving vulnerable 12-15 year olds who are at risk of being homeless, this program offers immediate admission and services for up to 10 youth on a 24 hour/7 day a week basis. In a safe, caring environment, staff coach youth to address needs and help them return home (if appropriate) or find another safe living arrangement. Our program uses a client focused, strengths-based approach to develop life and social skills, build self-esteem, manage emotions and promote health and wellness. The center also offers: Food, clothing, laundry, shower facilities and access to medical care. Assistance with family reintegration. Assistance attending school and community activities. Links to other community-based youth and family supports and services. Prevention-based Services Family support Runaway prevention Skill-development Educational support Community resource support 41 Weber St W Kitchener, ON N2H 3Z1 519- 749-8305 www.lutherwood.ca/mentalhealth/services/safe-haven-shelter 31 Midwest- Illinois Family Service and Community Mental Health Center Child & Adolescent Program This Program focuses on assisting youth and their families in addressing issues that affect their healthy developmental growth and well-being. This Program serves youth of both sexes up to the age of 18 who are experiencing problems resulting from divorce adjustment, low self-esteem, parent-child relationships, physical or sexual abuse, depression, substance abuse, attention deficit disorder and other issues. 4100 Veterans Parkway McHenry, IL 60050 815-385-640 www.familyserviceonline.org www.familyserviceonline.org 32 Chapter 4: Regional Centers- Early Childhood Intervention www2.ku.edu A major role of a child life specialist is to advocate for children and families in the healthcare setting. A CLS working in an early intervention program also serves as a parent educator by teaching parents what he or she can do to enhance their child’s development. Many child life skills can be used in early intervention settings. Listening skills and the ability to build a relationship with each family is important. Knowledge of child development and the impact of chronic conditions on the child and family are essential. Understanding sibling’s needs and including them in helping them understand is important as well. Overall, the child life specialist’s unique skills are an asset in the field of early intervention. In the chapter early childhood intervention centers in a variety of states will be listed. The centers listed provide services to children from birth to three years and are provided in the early intervention centers. 33 South- Texas & Kansas Early Childhood Intervention: Making a Difference Early Childhood Intervention (ECI) serves babies and toddlers with developmental delays or atypical development as well as those with medically diagnosed conditions such as autism, spina bifida, cerebral palsy and Down syndrome. ECI providers create customized therapy programs for each child, using specialized teams of physical, occupational and speech therapists, social workers, dieticians and early intervention specialists. ECI services are designed to enhance children’s long term development and ensure they reach their full potential. ECI services are delivered in children’s natural environments, such as their homes or daycares. This allows services and therapies to be a part of the daily life of the child and family. Families are integrated into ECI therapy programs; because of this, parents have to learn how to address their children’s unique needs and help their children develop and learn. ECI is available for children from birth to age three. After their third birthday, children may be eligible to receive services through their local school district. Westpark Building 3, Suite 240 • 8140 North Mopac Expressway • Austin, Texas 78759 512.794.9268 www.txcouncil.com/early_childhood_intervention.aspx 34 Family Service and Guidance Center's Early Childhood Intervention Program is a comprehensive treatment program for children birth to six years of age who are experiencing difficulties with their emotional or behavioral development. FSGC's Preschool Development Center is unique in that they work on skills like communication, peer relationships, listening, attending, appropriate problem solving, self-soothing techniques, relaxation and complying with the group's expectations. 325 SW Frazier • Topeka, KS • 66606 785.232.5005 www.fsgctopeka.com/programs_ecip.cfm West- New Mexico ENMRSH, INC. EARLY CHILDHOOD INTERVENTION Services Early intervention services will be provided in settings where the child typically spends their day (for example, home, childcare, with other family members or other community settings). Children learn and develop through the ongoing relationships with their parents and others in their life. Early Intervention services can help families find opportunities for learning within in their child's daily routines such as playtime, mealtime, bedtime etc. Early Intervention services offered through ENMRSH ECI may include: Audiology Family education, counseling and home visits Occupational therapy Physical therapy Service coordination Special instruction Speech-language therapy Bilingual Service Providers (English or Spanish) 35 2700 East 7th Street PO Box 1989 Clovis, NM 88101 575.762.3718 www.enmrsh.org/early.php www.enrsh.org West Coast- California Intervention Center for Early Childhood Our programs, which serve children from birth to 6 years of age, enhance the development of children with known or suspected delays. ICEC provides in-center programs and in-home programs. Our programs, which are delivered in a small group setting, are comprehensive and include speech therapy, physical therapy, occupational therapy, sensory integration, general developmental therapy, behavior management, and social/academic skill development. Additional services include counseling for family members, respite care, developmental assessments and a preschool interaction with typical peers. We believe families are a big part of the process. At ICEC we provide a parent participation early intervention program that will train and assist parents in helping their child to maximize their developmental potential. ICEC's staff and the parents work together to provide an individually tailored program for each child, thereby maximizing a child's development. 16269 Laguna Canyon Road Irvine, CA 92618 Phone (949) 788-9236 www.iceckids.org/html/programs.htm 36 www.icekids.org Midwest- Minnesota Minnesota Department of Health Help Me Grow Minnesota's Early Intervention System Minnesota's early intervention system - Help Me Grow - includes two programs for eligible children. Help Me Grow: Infant and Toddler Intervention are special services and supports for children birth through age two and their families. These services are provided for children who may be experiencing delays in their development for several reasons, including special health conditions. Help Me Grow: Preschool Special Education is for eligible children ages three to five years. Minnesota children eligible for Help Me Grow can receive services in their home, child care setting or school. These services are based on the needs of preschool children who meet state eligibility criteria for developmental delay or other disability, and who are experiencing challenges in their learning and development. Children may be eligible if they are not able to learn, speak or play like other children who are the same age P.O. Box 64975 St. Paul, MN 55164-0975 651-201-5000 www.health.state.mn.us/divs/fh/mcshn/ecip.htm East Coast- New York & New Jersey Arc’s Children’s School for Early Development provides educational, social and support services for children, from birth to five years of age, and their families. 37 Early intervention programs serve children from birth through three years of age. Services include: Evaluations which may be performed at home or in community setting; Service coordination which assists families in accessing and monitoring services and resources for their child; Home and community intervention, which provides special instruction, speech therapy, occupational therapy, physical therapy and social work services either at home or in community programs; Full inclusion parent-child programs at pre-schools located throughout Westchester County; and parent-child support groups, which meet monthly to share concerns, information and support, and to enjoy family playtime. Pre-school serves children from three to five years of age. Services include: Evaluations performed by a team of professionals at our centrally located site or at community settings throughout Westchester; Related services and Special Education Itinerant Teachers (SEIT), assistant teachers, aides and speech therapists who provide their services at community programs; Special classes in an integrated setting, where children with disabilities, including those who have autism or pervasive developmental disorders (PDD), attend a larger class with typically developing students in settings throughout Westchester; Full-day center-based pre-school classes held at our centrally located site in Hawthorne, New York, and serving children from both Westchester and Putnam Counties. 40 Saw Mill River Road, Hawthorne, New York. 914.347.3227 www.westchesterarc.org/services/early_childhood.html 38 Sunny Days Early Childhood Developmental Services is an Early Intervention Provider serving children from birth to three years with developmental needs. Services are provided in natural environments that include family homes, child care settings and other community locations. We provide a full range of services, including Physical Therapy, Occupational Therapy, Speech Therapy and Psychological services, specifically tailored to each child’s Individualized Family Service Plan (IFSP). Services Provided Include: Independent Initial Eligibility Evaluations Family-Centered Play Based Evaluations Individual Home & Community Based Services available for children with a diagnosis of Autism and PDD to include ABA and “Greenspan”/DIR and Sensory Integration. Specific Assessments in fine motor, gross motor, speech, feeding, oral/motor, cognition, social-emotional development and challenging behaviors. Consultative Services Translation Services Nursing and Social Work Assessments Recommendations for Adaptive Equipment & Assistive Technology Private Home-Based Therapy for children ages birth through 18 300 Corporate Center Drive Manalapan, NJ 07726-8700 Phone: 732-761-0088 www.sunnydays.com/nj/home *Sunny Days services are also available in New York, Pennsylvania and California* 39 Chapter 5: Child Development Settings- Head Start Programs and Programs for Medically Fragile Children www.educationnews.org A Child Life Specialist’s role in a child development setting is to establish a trusting, therapeutic relationship with the child and family. Developing rapport with children and families, child development and family dynamics are all important skills child life can bring to a child development setting. The ability to work as part of a team in the delivery of care and creating a family centered environment is the central role child life specialists have working in the hospital setting which can be applied to a child development setting. In this chapter head start programs for children from birth to age five will be listed as well as programs for medically fragile children. Each program is unique but the main goal of these programs is to help children get the best education, care and support they need. 40 East Coast-New York & Pennsylvania Head Start is a Federal program for preschool children between the ages of three and five from low-income families. Children participate in a variety of educational activities, receive free medical and dental care, have healthy meals and snacks, and enjoy playing indoors and outdoors in a safe setting. Head Start helps all children succeed. Services are offered to meet the special needs of children with disabilities. Schuyler Head start offers: Preschool Education Nutrition Education Health and Dental Hygiene Services Development Kindergarten Transition Small Bus Alcohol and Drug Transportation Prevention 323 Owego St. Unit I Montour Falls, NY 14865 Phone: 607-535-6814 www.schuylerheadstart.org The Children’s Aid Society Early Head Start The Children’s Aid Society Early Head Start program is an early intervention and prevention program for families with children ages 0 – 3 and pregnant mothers. Through its comprehensive and integrated services, the program aims to provide a foundation for children and families to thrive developmentally. Early Head Start seeks to empower families and building in the strengths of families. Early Head Start emphasizes that cognitive, physical, social, emotional and language development are interrelated. The program supports families in creating healthy, pro-social environments that promote the well-being of children and families 41 EHS Program Components Health Nutrition Social Service Education Special Needs Services to Pregnant Mother Special Programs Infant Massage Doula Services Nutrition Classes Marlene Aranda-Gillman, 105 East 22nd Street New York, NY 10010 (212) 567-5787 x221 www.childrensaidsociety.org/early-childhood/early-head-start Head Start offers educational programs for children age 3 to 5, and a wide variety of opportunities and support services for their families. When children love learning, everything else falls into place. Every day at Head Start children enjoy all kinds of activities and games designed to teach everything from numbers and letters to sharing and getting along with others. They learn to love books and get a good foundation for reading. They learn about nature and science through fun, hands-on activities. They paint and draw, dress up and play music all to encourage the special curiosity, imagination and joy of childhood. And that’s just the beginning. All Head Start children play in parks and playgrounds, and go on field trips, both in the local community and throughout New York City. 42 All programs are multilingual and include children and families from different ethnic and cultural backgrounds. At Head Start, diversity is celebrated both in and out of the classroom, and even at mealtimes with a variety of traditional foods. When it’s time to move on, Head Start children leave with the confidence and skills they need to succeed in kindergarten, first grade and beyond New York, New York (212-232-0966) www.nyc.gov/html/acs/html/child_care/headstart.shtml Pennsylvania Head Start Association Head Start is a comprehensive preschool program for low-income three, four, and five year olds. It provides children with a developmentally appropriate early childhood education. The program ensures that young children get health checkups and treatment, and that they are fed a nutritious hot meal every day. In Head Start, teachers work with children, and their families, to help them gain the skills needed to succeed in school- both academically and socially. The program offers comprehensive health, nutrition, and other family support services including opportunities to learn parenting skills. Head Start provides children with activities that help them grow mentally, socially, emotionally, and physically. Head Start children socialize with others, solve problems, and have other experiences that help them to become self-confident. 3700 Vartan Way Harrisburg, PA 17110 Phone: (717) 526-4646 www.paheadstart.org 43 South- South Carolina, North Carolina, Georgia, Texas & Florida South Carolina State Head Start Association Early Head Start is the free, early, continuous, intensive, and comprehensive child development and family support program for low-income families with children from birth to age three. Services are provided on a year round basis to enhance the physical, social, emotional, and intellectual development of infants and toddlers and pregnant women. 2700 Middleburg Drive, Suite 213 Post Office Box 81 Columbia, South Carolina 29204 (803) 771-9404 www.sc-headstart.org The Mountain Area Child and Family Center Early Head Start (EHS) promotes healthy prenatal outcomes for pregnant women, enhances the development of very young children, and promotes healthy family functioning. EHS incorporates current research and best practice in providing services to lowincome young children and their families. Early Head Start is an intensive, comprehensive, flexible, culturally sensitive program that is designed to reinforce and respond to the unique strengths and needs of each individual child and family. The program services include: Quality early education both in and out of the home Parenting education Comprehensive health and mental health services, including services to women before, during, and after pregnancy Nutrition education 44 Family support services 2586 Riceville Road Asheville, NC 28805 (828) 298-0808 www.macfc.org Teaching Children Building Families Head Start of Greater Dallas services 4,403 low-income, preschool age children, and their families at 40 center locations throughout Dallas County. In addition, HS operates 5 Early Head Start centers, which serve 250 pregnant women, infants and toddlers. The comprehensive Head Start program provides a rich learning environment designed to address the child’s nutritional and health needs while stimulating rapid growth in physical coordination, self-esteem and pre-reading skills. Children have access to computers and become adept at utilizing them as learning tools. 3954 Gannon Lane Dallas, Texas 75237 972.283.6400 www.hsgd.org/About.htm Georgia Head Start and Early Head Start programs provide comprehensive early childhood and family development services to children from birth to five-years-old, pregnant women and families. Our programs have a long tradition of delivering comprehensive and high quality services designed to foster healthy development in lowincome children and their families Ms. Susie D. Wilcher P.O. Box 896 45 Sandersville, GA 31082 (478) 240-0925 x204 www.georgiaheadstart.org West Coast- Oregon & California Head Start of Lane County Early Head Start Designed for children 0-35 months (has not turned 3 years of age by September 1st of the current enrollment year) you may qualify for our home-based or classroom-based Early Head Start programs. There are also options for working families that need full-day childcare. Additionally, our Early Head Start program features a Prenatal Program that consists of home visits during your pregnancy to provide education and support. Head Start If you have a child that is 3 or 4 years of age by September 1 of the current enrollment year you may qualify for either our part-day or full-day program. The focus is on kindergarten readiness, wellness, and social and emotional development. Early Head Start / Head Start Full Day This program is designed for working or student families needing childcare for children ages 6 weeks to 5 years. Classes are five days a week in either a Head Start classroom or community childcare location. 221 B Street Springfield, OR 97477 (541) 747-2425 www.hsolc.org SETA is a joint powers agency of the City and County of Sacramento. Its Head Start program’s mission is to improve the lives of low-income children by providing comprehensive child development services that are family focused, including education, health, nutrition, and mental health. 925 Del Paso Blvd., Suite 100 Sacramento, CA 95815 (916) 263-3804 www.headstart.seta.net/program-overview.htm 46 San Diego Head Start Project Head Start is a federally funded child development program designed to help break the cycle of poverty by providing preschool children of low- income families with a comprehensive program to meet their emotional, social, health, nutritional and psychological needs. The approach is that the parent is the child's primary educator and that the entire family as well as, the community, must be involved. Children ages 3 to 5 are eligible for Head Start. Children with disabilities are mainstreamed into the program and receive the full range of developmental services Early Childhood Development and Health Services... To provide high quality, comprehensive services that foster each child's social competence by supporting and nurturing the child's social, emotional, cognitive, and physical development. Program Design and Management... To provide the foundation for quality services to children and families. Strong, committed governing bodies and policy groups that represent Early Head Start and Head Start parents and the larger community must be established to provide effective leadership to, and oversight of the program. Implementation and Enforcement... To ensure quality across programs serving Early Head Start and Head Start children by requiring that areas of noncompliance or deficiencies with the Head Start Program Performance Standards and regulations be remedied as quickly as possible. Family and Community Partnerships... To ensure that each enrolled family is supported in fostering their child's development and in attaining their personal family goals. San Diego, CA 1-888-873-5145 www.sandiegoheadstart.org/SDHS/home.html 47 West- Colorado Denver’s Great Kids Head Start Early Childhood Care and Education DGKHS provides a high quality comprehensive child development program to eligible children 3-5 years old and their families to prepare them intellectually, socially, emotionally, and physically for school and life. DGKHS focuses on the development of oral language and family literacy through ongoing trainings for parents and teachers. In addition to a high quality pre-school education, every enrolled child also receives: complete physical examination and follow-up complete dental examination and necessary treatment hearing and vision screening developmental skills screening and an individualized educational program daily nutritious meals 201 West Colfax, Dept 1107 Denver, CO 80202 720-913-0880 DenverHeadStart@denvergov.org Midwest- Michigan Michigan Head Start Collaboration Office Head Start is a federally funded program serving children ages birth-five that promotes school readiness by providing educational, health, nutrition, social and other comprehensive services to enrolled children and families. The HSCO is charged with facilitating and enhancing coordination and collaboration between Head Start agencies and other state and local entities that provide comprehensive services designed to benefit all low-income children from birth to age five and their families, as well as pregnant women. HSCO is responsible for assisting in the building of early childhood systems including access to comprehensive services, encourage wide spread collaboration with appropriate programs and services, and facilitate the involvement of Head Start in policy and planning efforts that affect the Head Start target population and other low-income families. 112 E. Allegan Street Lansing, MI 48933 517.371.9000 greatstartforkids.org/content/michigan-head-start-collaboration-office 48 Medically Fragile Children Centers West Coast- Oregon & California Providence Health Services Center for Medically Fragile Children We are the only pediatric skilled nursing facility in the Pacific Northwest, providing 24-hour long-term, short-term, respite and end-of-life care to medically fragile children and young people ranging in age from infancy to 21 years. When a child has profound disabilities and complex medical needs, providing the necessary round-the-clock care can be exhausting and overwhelming. For four decades, families have turned to the Center for Medically Fragile Children at Providence Child Center. Children at the center receive treatment and education essential to their well-being. Our interdisciplinary care team assesses and treats complex medical conditions. They monitor symptoms, administer medications and provide leading-edge therapies, such as aquatic therapy. Parents receive information and support to understand their child's complex medical needs. 830 NE 47th Ave. Portland, OR 97213 503-215-2400 oregon.providence.org Darlyn’s Darlings is one of the few pediatric care centers in the country that provides skilled nursing in a day care setting for children that have a chronic illness. The children range from infant to 21 years of age and have a condition that requires daily nursing care and medical devices. Darlyn’s Darlings, Pediatric Day Health Care Center (PDHC) has served as a revolutionary approach in fulfilling the daily medical needs, special education, child care requirements, and case management of medically fragile children. . 49 Children with special needs are introduced to learning materials, fun activities and socialization skills. Most importantly their medical needs are fully met by skilled pediatric medical professionals under supervision of their personal physician. 4801 Truxtun Ave. Bakersfield, CA 93304 (661)631-2273 www.darlynsdarlings.com Caring Corner is a unique pediatric day care program designed especially for nurturing medically fragile children. Utilizing a combination of skilled, creative activities and a caring touch, the program allows parents to go to school, work or take a much needed rest. Children, ranging from infants to 21 years old, who require medical supervision, treatments or equipment for a medical condition, can receive care at Caring Corner. Our experienced nursing team works with families to make sure each child is safe and cared for in an environment suited to meet their needs. 942 Wible Rd. Bakersfield, CA 93304 (661) 847-7342 caringcorner.org South- Georgia PSA HealthCare Pediatric Day Treatment Centers for Medically Fragile Children (PPEC) PSA Healthcare offers unique day treatment centers managed by Pediatric Registered Nurses (RN) and staffed with skilled nursing and healthcare professionals who are trained to care for special kids in a safe, caring, developmentally-stimulating environment. Focused on Care Management & Results - Through careful, deliberate care management and outcomes monitoring, PSA Healthcare PPECs offer high-quality, cost-effective pediatric care that promotes faster rehabilitation, reduce re- 50 hospitalizations, reduces homebound isolation, and supplies a cost-effective alternative to traditional home health care. Education & Support Groups Continuous Education and Support for children and their families. For parents of children with complex medical needs, the challenge of finding quality child care can seem overwhelming. For many of these parents, leaving the work force is not an option. They need income and health care benefits to help offset the costs associated with caring for a child with a disability. PSA Healthcare PPECs help families: Retain independence and a sense of family normalcy Return to work or school Improve quality of life and renew hope Broaden resources, networking opportunities and support Feel confident knowing their child is in a developmentally-stimulating environment both physically and socially 310 Technology Parkway Norcross, GA 30092 770-441-1580 www.psahealthcare.com Bright Start Pediatrics Nursing, Therapy and Love Bright Start Pediatrics offers infants and children with special needs and their families a level of comfort and the best possible outcomes through our unique program. BrightStart's PPEC (Prescribed Pediatric Extended Care) program is designed for infants and children in need of more complex care. In simple terms, we are a center that cares for 51 medically fragile infants and children for up to 12 hours per day. Our team is comprised of pediatric and neonatal nurses, aides and therapists. As part of our PPEC program, each child will receive: • Daily, individual nursing assessments • Continual monitoring of their individual medical needs • Developmental evaluations, and treatment as indicated • A Progression Plan tailored to each child • The brightest future possible BrightStart works with hospitals in the Orlando and Central Florida area to accept children directly from the NICU, PICU or general pediatric unit. If additional services are necessary upon discharge (home nursing, pharmacy, home medical equipment), BrightStart Pediatrics will arrange for those services, and coordinate a smooth transition home. Therapies Developmental Therapies are an extremely important part of the BrightStart program. Children enrolled in our PPEC program receive therapy at the time of day and frequency that will optimize their performance. We are able to minimize missed sessions with the flexibility to see them another day, if necessary. BrightStart therapists work hand in hand with our nurses and aides to promote optimal developmental handling throughout the day. All of these factors enable us to make the most of each day. BrightStart PPEC centers provide onsite services for: Physical Therapy Occupational Therapy Speech Therapy 12377 South Orange Blossom Trail Orlando, FL 32837 407.857.1212 www.brightstartpeds.com East Coast- Pennsylvania & New York 52 Helping Hand Children’s Center Helping Hand Children's Center is a pediatric extended care center (PECC) that provides expert skilled nursing and child development services to medically fragile children who may also be technologically dependent. The staff of Helping Hand Children's Center understands the unique and specialized needs of each child. The program also provides support services to parents. As an alternative or supplement to in-home nursing care, Helping Hand Children's Center allows parents to return to work or school or attend to other family responsibilities, confident that the unique medical, emotional and developmental needs of their children are being met every day. 2159 Oregon Pike Lancaster, PA 17601 715-581-1050 www.helpinghandpa.com Angela’s House Angela's House assists families caring for medically frail children living at home with their parents or in special homes that offer 24 hour nursing support In 1992, the non for profit Angela’s House, was created to offer families and professionals an agency to call to help medically frail children and their families. Angela’s House has helped to simplify home care options for families by coordinating the extensive array of services needed to support medically frail children at home. P.O. Box 5052 Hauppauge, NY 11788 Phone: 631-979-2620 angelashouse.org 53 The Elaine Clark Center enables children of all abilities to become confident and contributing citizens of the community through an innovative model of education, therapeutic play, and experiential opportunities. Mission The mission of the Elaine Clark Center is to enable children of all abilities to become confident & contributing citizens of the community through an innovative model of education, therapeutic play, and experiential opportunities. Programs Inclusive Childcare Early Intervention Therapeutic Intervention Program-Child Development Specialist CCLS Pediatric Nursing Nutrition Echo out of school services 5130 Peachtree Industrial Boulevard Chamblee, GA 30341 (770) 458-3251 www.elaineclarkcenter.org Midwest- Illinois & Missouri Maryville Academy Maryville's Children's Healthcare Center is a long-term acute and sub-acute care facility that provides specialized clinical care for medically fragile children, ages newborn through 21. The Center is a "home away from home" for medically fragile children and their families. The Center provides care to medically fragile children, also known as medically complex, who may be technology-dependent (e.g., ventilators, apnea monitoring) and training for parents, caregivers, and siblings to help them become more confident when attending to the fragile child's specialized needs. The Center also offers respite care for caregivers, giving them much needed breaks from demanding schedules. 4015 N Oak Park Avenue Chicago, IL 60634 Phone (773) 205-3606 54 www.maryvilleacademy.org/subpages.asp?id=99&aparentid=116 Project ARK The mission of Project ARK is to provide services that enhance the lives of children, youth, young adults, women and families infected, affected and at risk for HIV disease through coordination of medical care, social support and prevention services. 4169 Laclede Avenue St. Louis, MO 63108 314.535.7275 Stacey Slovacek, CLS (Family Support Specialist) 314-454-4714 55 Chapter 6: Pediatric Home Care Programs kidscaretherapy.com The Child Life Specialist’s role in the pediatric home care setting is to work with families in their home environment by offering support, education and interventions designed to address specific needs. The CLS can help address the coping needs of siblings, provide comfort pain and symptom relief to the child. CLS can offer opportunities for the child to reach appropriate developmental milestones and to maintain those already acquired. Child life specialists are a natural fit in the pediatric home care setting and the skills used in the hospital setting can be applied to this alternative setting. In this chapter pediatric home care settings throughout the US are listed. Each of these setting is unique in the services they provide, but each setting offers families help in providing care for their child in the home environment. 56 South- Florida, Virginia & Kentucky Interim Health Care Pediatric Home Health Care Thanks to technological advances, pediatric home health care has become a viable alternative to a health care facility. It can reduce costs considerably. And patients and their families, understandably, prefer to receive care in the comfort of their own homes. Interim HealthCare employees offer a wide variety of services for all aspects of treatment and support, from highly skilled nursing care to light housekeeping and meal preparation. We even offer respite care to provide much-needed breaks for the family. Our employees can also instruct the family in care procedures. This not only keeps the interruption of day-to-day living to a minimum, but also helps assure that the most appropriate and optimal care is always available. Interim HealthCare National Headquarters 1601 Sawgrass Corporate Parkway Sunrise, FL 33323 (800) 338-7786 www.interimhealthcare.com *Locations available throughout the United States* South Eastern Home Health Services Pediatric Home Care Program Caring for a child with a major illness is a labor of love, but it's something you and your family need not do alone. At SHHS, we're ready to pitch in and help. SHHS' Pediatric division helps families by providing professional and compassionate home care specifically designed to meet the special needs of children, of all ages, from infant to young adult. Our staff is made up of pediatric specialists at every level of home health care. Some of our core Pediatric programs are: Home Care for Technologically Dependent Children Home Care For New Mothers And Well Baby/Well Mom Services Home Care For High Risk Infants & Children Home Care For Childhood Illnesses Home Rehabilitation Care Homemaker service Respite Care 57 Whatever your child’s need, we can provide the personnel, and the required medical equipment and supplies. One of our case managers will meet with you to assess your child’s need and formulate a plan of action for his or her specific care. 7502 Lee Davis Road Mechanicsville, VA 23111 Phone: 804-769-1380 www.sehealth.com 7 Locations in Pennsylvania also Toll Free # -866-285-2007 Pediatric Home Care Daniel's Care is a special pediatric care program provided by Hospice of the Bluegrass. If your child has been diagnosed with a life-threatening illness, Daniel's Care is available to help with the overwhelming responsibilities. A specially trained team of multi-disciplinary professionals works specifically with children who have life-threatening illnesses. This specialized team cares for anyone from birth to 21 years of age. Using this Hospice service allows children to be at home with family and friends maintaining a familiar lifestyle. Nurses will come to your home and help with the medical care of your child. Social workers and therapists will work with your child and other family members on coping with the illness. Home care aides can help with patient care and light housekeeping. Volunteers are available for any type of help including companionship for the patient or other children, transportation, errands, story reading or providing a break for the parent or caregiver. Hospice of the Bluegrass 2312 Alexandria Drive Lexington, KY 40504 (859) 276-5344 www.hospicebg.org Midwest- Michigan, Minnesota and Indiana 58 Home and Hospice Care PEDIATRIC HOME CARE SERVICES Many acute illnesses and aggravations of chronic conditions can be treated effectively at home. Our pediatric nurses coordinate the home care team so that the child’s physician can closely monitor each child. Our Pediatric Home Care Team can assist with: Problems commonly found in premature infants, i.e. slow weight gain, feeding difficulties, and respiratory complications Follow-up services for mothers and infants discharged early after birth. Phototherapy Apnea monitoring Wound care Home infusion therapy, parenteral nutrition, and antibiotic therapy Dispensing medications and monitoring side effects Catheter changes Orthopedic needs Physical, occupational, and speech therapists provide services to medically fragile children with special needs: Muscle strengthening Range of motion and muscle coordination Speech development difficulties Pediatric Home Care Programs 3933 Beecher Road Flint, MI 48532 (810) 762-4600 www.genesys.org 59 Universal Pediatric Services Universal Pediatric Services specializes in in-home health care and private-duty nursing services for children and young adults with serious medical conditions. Universal Pediatric Services offers a continuum of in-home health care for children and young adults with serious medical conditions and complex technological needs. Universal's skilled RNs, LPNs and home health aides are selectively recruited and specifically trained for each individual case. Our nurses have experience with ventilator, feeding tube, tracheotomy and IV requirements. Some of the in-home services we offer on a 24-hour, 7-days-a-week basis include: Suctioning Respiratory monitoring Trachea cares G-tube cares Medications Assisting clients at school 6750 Westown Parkway Suite 115A West Des Moines, IA 50266 (800) 383-0303 www.universalpediatric.com Pediatric Home Service helps medically-fragile, technology-supported children not only live, but thrive at home, with their families. 60 A Minnesota independent pediatric home health care agency specializing in children, we provide our patients and their families with a broad spectrum of high quality, compassionate care, services and support. Our services: Respiratory Therapy Infusion Therapy Pharmacy Private Duty Nursing In-Home Asthma Management Clinical Support Services 2800 Cleveland Avenue North Roseville, MN 55113 651-642-1825 www.pediatrichomeservice.com East Coast- New Jersey & New York Pediatric Service Offering At Loving Care and Links2Care, our clinical staff are touching lives and making a difference by providing highly skilled clinicians to deliver home-based care for our patients with varying levels of medical need. By meeting the unique needs of our youngest patients with unsurpassed skill and compassion, we are setting new standards of excellence for pediatric home care. We do this by providing outstanding skilled clinical care and advocating for the families. We assist the families in finding solutions that support the family's goal of bringing their medically complex child home to familiar loving surroundings. Private duty care may include services provided by multiple professional disciplines such as: Pediatric Nursing, Home Health Aides and Physical Therapists. These professionals provide services to ensure a smooth transition home for pediatric patients across a wide range of diagnoses 61 Corporate Headquarters Loving Care Agency 611 Route 46 West, Suite 200 Hasbrouck Heights, NJ 07604 Phone: (201) 403-9300 www.lovingcareagency.com *Services available in these states: New Jersey, Pennsylvania, Indiana, Illinois, Massachusetts and Arizona All Metro Health Care Pediatric Home Care It is the company’s goal to provide the support and care that will enable families who are facing the challenges of caring for an ill child to feel comfortable and confident that their child is receiving the attention and treatment he or she needs. All Metro Health Care provides hourly or around the clock services in a wellcoordinated, family centered approach to meet the complex needs of these patients and their caregivers. All Metro Health Care’s pediatric home care program is designed to care for children who have complex medical needs. With the help of our highly trained caregivers, children with severe illnesses can receive love and support in a nurturing home environment, rather than an institution such as a nursing home or hospital. New Jersey, New York and Florida Locations www.all-metro.com 62 Hospice Buffalo Essential Care for Children Essential Care is a special way of caring for a child with a life-threatening illness. Our program, the first of its kind in the United States, is a pediatric program of Home Care Buffalo, an affiliate of The Center for Hospice & Palliative Care. Our program works closely with The Children's Hospital of Buffalo and Roswell Park Cancer Institute. We give a child and family complete and consistent care physical, spiritual and emotional - at home or in the hospital. Essential Care is available to children, from infancy through adolescence, who have been diagnosed with a life-threatening illness. We care for children who live in Erie, Niagara, and parts of Genesee and Cattaraugus counties. 225 Como Park Boulevard Cheektowaga, NY 142270-1480 (716) 686-8006 www.hospicebuffalo.com West Coast- California Building Blocks Pediatric Home Health Services is a high-tech home care service exclusively for children -- premature infants through adolescents. We are the leading provider of purely pediatric home care in Southern California and offer a complete suite of pediatric and neonatal services including: skilled nursing, home infusion, medical equipment, and much more Home Care Services Building Blocks offers a total package of pediatric programs and services designed exclusively for infants, children and adolescents. Corporate Offices / Southern California 6 Journey, Suite 135 Aliso Viejo, CA 92656 Tel: (949) 448-5770 www.care4kids.com 63 UC Davis Home Care Services For Children and Adolescents We are a family-centered, supportive program that provides safe medical care for children in the comfortable environment of their own home. Pediatric patients have unique needs that are often better taken care of at home. Our program allows patients to stay close to family and friends, and maintain as normal a routine as possible. Pediatric Home Care includes more than just caring for the patient. We are caring for the family as a unit. Patients and families need to be involved, informed and feel secure. We include families in treatment-related decisions and we individualize care plans to fit patient needs and family lifestyles. We provide education and support to families and caregivers to help build the skills and confidence needed for required procedures and treatments. 2315 Stockton Blvd Sacramento, CA 95817 (800) 282- 3284 www.ucdmc.ucdavis.edu West- Colorado Professional Pediatric Home Care, Inc. Nursing We have Registered Nurses (RNs) and Licensed Practical Nurses (LPNs) experienced in performing care according to the patients’ needs and doctors’ orders. Nursing Care Includes: Respiratory Care Oxygen Nebulizer Treatments Ventilator Tracheotomy Care Special Monitoring Apnea Oximetry Cardiac Monitors Special Feeding Needs Gastrostomy Nasal Gastric Central Line Therapies Therapies Our therapists specialize in the diagnosis, treatment and management of 64 infants, children and adolescents with a variety of congenital, developmental, neurological or acquired disorders/diseases. Therapies Include Physical Therapy including NDT (neuro developmental treatment), Stretching/ROM (range of motion),ADL (activities of daily living), Strengthening, Gait Training, Equipment Needs, Developmental Milestones, Therapeutic Exercise, and Family Teaching. Occupational Therapy including NDT (neuro developmental treatment), SI (sensory integration), ADL (activities of daily living), Therapeutic Exercise, Balance/Equilibrium, Fine Motor Coordination, Stretching/ROM (range of motion),Visual Motor Control, Oral Motor Coordination, Cognitive Processing/Attention, and Family Teaching. Speech Therapy including treatments for Voice Disorders, NonOral Communication ,Articulation Disorders, Dysphagia/Feeding Disorders, Language Disorders, Speech/Language Stimulation, Alternative Communication Device Training, and Family Teaching. 8000 E. Prentice Ave., B11 Greenwood Village, Colorado 80111 303-759-1342 www.pediatrichomecare.com www.pediatrichomecare.org 65 Chapter 7: Pediatric Dental Settings www.rozasdds.com A dental office is a world full of strange sensations, sights, sounds, tastes, and smells. A child life specialist can help the child feel more comfortable and lessen their stress and anxiety. A child life specialist can also prepare the child for their visit, upcoming dental procedures or examinations and provide the child with coping strategies, distraction, and support and comfort techniques. In this chapter pediatric dental settings in the U.S are listed. Each of these dental settings is unique in what they provide for children and their families, but the main goal in a pediatric dental setting is to make going to the dentist less stressful and more fun. 66 West Coast- California Weideman Pediatric Dentistry and Orthodontics Our family-oriented practice is built on love for children and the desire to make them comfortable with dentistry. We view each child as a unique individual who must be treated as such to accomplish our goals of a positive dental experience and quality care. We hope to establish a life-long relationship of trust and confidence with you and your child. Part of our gentle approach includes creating a comfortable and fun environment for children. 7916 Pebble Beach Drive, Ste. 101 Citrus Heights, California 95610 (916) 962 – 0577 www.sacchildrensdentist.com 67 Our Approach Our mission is to provide quality, comprehensive dental care to our patients in a loving environment and to emphasize education and prevention of dental disease. At Rocklin Pediatric Dentistry, we believe that comprehensive dental care is the best way to ensure your child's oral health. For you and your child this means we will not only diagnose any dental needs, but we will educate you on how to prevent cavities from forming. Using age appropriate milestones and anticipatory guidance, our staff will educate you about what to expect during each stage of dental development and how to maintain your child's healthy smile. We will discuss your child's diet, oral habits and oral hygiene practices at each check-up appointment. 2221 Sunset Blvd Suite 101 Rocklin, CA 95765 (916) 435-9100 68 East Coast-Massachusetts, Pennsylvania & Maryland Pediatric Dental Healthcare 16 Washington Street Plainville, MA 02762 (508) 695-2064 www.pediatricdentalhealthcare.com Pediatric Dentistry Pediatric Dentistry, P.C. is a pediatric dental group practice with office locations in Concord and Marlboro, Massachusetts. We specialize in the care of infants, children, adolescents, and patients with special needs. Our goal is to provide comprehensive dental care in a supportive, compassionate, and positive environment. Our Mission Our focus at Pediatric Dentistry is to provide a Dental Home where we strive to support children in every aspect of their oral health. We believe that good oral health is an important part of total health. We focus on prevention, early detection and treatment of dental diseases in a pleasant environment and work hard to establish the trust and confidence of your children. Our goal, along with our staff, is to help all children feel good about visiting the dentist and to establish healthy habits that promote a lifetime of healthy, beautiful smiles. CONCORD OFFICE 290 Baker Avenue, Suite N228 Concord, MA 01742 978.369.7771 MARLBORO OFFICE 219 Boston Post Road West Marlboro, MA 01752 508.481.8161 www.pediatricdentistcm.com 69 Chesapeake Pediatric Dental Group Chesapeake Pediatric Dental Group was established in 2005 to help address the special needs that children have when it comes to compassionate, quality children's dentistry. Not only do we try to give positive dental experiences, but also try to provide children with a loving and caring atmosphere where they are all treated as individuals. Our practice was created to foster a very “non-threatening” environment for our patients, and our staff has been trained to specialize their behavior to be in sync with your child’s cognitive age. It is important to us to make sure that your child has good visits that they can grow from, this is why it may be difficult to exactly say what treatment your child will have on their first dental visit, as there is a large variation in ages and cognitive development of children, and we customize our initial visits for each individual child 5009 Honeygo Center Drive, Suite 228 Perry Hall, MD 21128 410-248-3384 www.chesapeakepediatricdental.com Pediatric Dental Care and Orthodontics is a team of motivated individuals dedicated to providing the highest quality dental care to children, adolescents and the mentally and physically challenged. Together, it is the philosophy of our office to provide the highest possible degree of professional pediatric dental and orthodontic care for your family. We are very confident in our ability to make dentistry and orthodontics an enjoyable, comfortable experience. Pediatric Dental Care is a team of motivated individuals dedicated to providing the highest quality dental care to children. We want your child to remember each dental visit as a pleasant, positive learning experience. 70 428 Windmere Drive, Suite 200 State College, PA (814) 238-7120 pediatricdentalcare.org Midwest- Ohio Sylvania Pediatric Dental Care, Inc. Specialists in Dental Health Infants through young adults Welcome to the office of Sylvania Pediatric Dental Care, a leading pediatric dental practice in Sylvania, Ohio. Superior oral health is vital for a child’s development, and we’re here to help every step of the way. We are committed to making your child’s first dental visit a pleasant and comfortable one. We understand the importance of establishing a good oral hygiene regimen early in a child’s life, and we provide children with the necessary knowledge and treatment to maintain a healthy smile. 5860 Alexis Road, Sylvania, OH 43560 (419) 882-7187 www.sylvaniakidsdental.com West- Utah Our primary goal is to help your child learn how to keep their teeth healthy and beautiful for life. Children require different approaches in dealing with their behavior and dental development. We are dedicated to providing the highest quality of dental care in the most gentle, efficient and enthusiastic manner possible. We strive to make each dental visit a pleasant and rewarding experience for your child. Our office is designed especially for children to help them feel comfortable and have a pleasant experience while visiting the dentist. We have a large play room in the waiting 71 area with movies, blocks, toys, and books. Colorful patient benches and televisions on the ceilings make procedures and cleanings even more exciting! Our open bay area allows modeling to occur between older siblings and helps to eliminate fear. 169 Gateway Drive Suite 200 Providence, Utah 84332 435•787•2223 www.abcpediatricdentistry.com South- Missouri Children’s Dental Clinic Our office specializes in pediatric dentistry. Dr. Warriner and Dr. Sumner's other areas of interest and focus within the specialty of pediatric dentistry include patients with cleft lip and palate. They are also interested in monitoring and treating those patients with developing malocclusions, skeletal growth issues, and other dental abnormalities. At Children's Dental Clinic, our primary focus is to provide comprehensive dentistry to infants, children, adolescents and persons with handicaps. We strive to prevent oral disease through developing positive attitudes and habits. We believe the key to dental success is establishing good oral habits at an early age, with an emphasis on regular preventive dental care. 1555 Medical Park Circle Tupelo, MS 38801 Tel: 662-844-3315 www.childrensdentalclinic.com 72 Chapter 8: PRIVATE PRACTICE - CONSUTLING - PLAY THERAPY Child Life Specialists working in the private practice setting is based on the needs of the community in which they are serving. The use of play is an essential tool child life specialists use to assess children whom they are working with. Play therapy services in private practices are used for the same reason to assess the children who they are servicing. In this chapter the focus of play therapy private practice is addressed. Play therapy practices in the US are listed. The main focus of play therapy practices is to help a child work through their feelings, emotions and stress through the use of play. 73 East Coast- New Jersey Play therapy is a way to help a young child express their feelings and begin to solve the problems. The play therapist is trained to read the meaning of the child’s play, and as patterns or themes emerge, she shares her thoughts with parents, and a plan is developed to work toward a healing process both at home and in the play therapy room. PLAY THERAPY FOR CHILDREN Ages 3-12 in a fully equipped play room. (Puppets, sand-trays, paint, clay, art, doll house, dress-up, therapeutic games.) Play is the child’s natural form of communication. During their play, children reveal unconscious fears, worries, thoughts and wishes. The toys are the child’s words. 250 Main Street Lebanon, NJ 08833 908-236-2763 childplaytherapy.net West Coast- Hawaii Play Therapy Center of Hawaii, LLC The Play Therapy Center of Hawaii specializes in the treatment of the 3 to 8 year old child who may be dealing with past trauma, loss or abuse or who may just be having difficulty adjusting to the birth of a new sibling. We believe that the crucible for the entire child's growth and healing is the family. We therefore assess, treat and educate the whole family as well as the child. Through the use of play therapy, art therapy and sand play therapy our clinical staff uses the most developmentally appropriate interventions to access the inner world of the child. 74 We seek to help the child master anxiety through play, help parents gain insight into their child and assist the whole family by strengthening bonds and promoting a more secure attachment 315 Uluniu Street; #207 Kailua, HI 96734 Email: carlasharp@hawaii.rr.com (808) 261-0066 playtherapycenterofhawaii.com West- Colorado Boulder Learning Co-op, LLC A social enterprise supporting the emotional health and well-being of children, adolescents, parents and families. Play Therapy can be used to express feelings when children are at a place developmentally where they cannot verbalize emotion in a cognitive/spoken fashion (12 and under; older if on the Autism spectrum). Toys and miniature figures in my therapeutic playroom serve as a child's words; their play serves as their language. This is especially effective with young children who do not have the vocabulary or cognitive thought process to express their fears, challenges, experiences and feelings. I use art, vocal expression (music), story development as well as Jungian Sand Play to expand on the play therapy model. Most children respond very well to a developmental and experiential approach, since I can meet them 'where they are' and proceed from there. 1480 Lee Hill Drive, #7 Boulder, CO 80304 303.956.9518 www.boulderlearningcoop.org 75 South- Virginia, North Carolina, Florida & Kansas Play Therapy Center Psychotherapy for Children, Adolescents, Adults, Couples and Families Play Therapy A trained play therapist uses the therapeutic powers of play to help clients prevent or resolve psychosocial difficulties and achieve optimal growth and development. The play therapist assesses and analyzes the individual or family play, and through this promotes awareness and identifies coping strengths and problem solving strategies. Play therapy occurs through the use of several main approaches: General play in the play therapy Play Room Arts and crafts with a variety of mediums Sand tray exercises with figures and symbolic objects Drama and role play such as puppet play Maria Roberts, LCSW, RPT-S 11862 Sunrise Valley Drive, suite 101 Reston, Virginia 20191 mroberts@playtherapycenter.com 703-606-4642 playtherapycenter.com 76 Gill Center for Healing and Play Child and adolescent therapy is provided utilizing a combination of traditional talk therapy, cognitive-behavioral approaches, and expressive therapies. Several staff specialize in working with very young children (as young as three years of age) and are trained to utilize play and art therapies, as well as sand therapy. Extended Play Based- Developmental Assessment (EPBDA) During play-based assessments, clinicians encourage children to externalize their thoughts, perceptions, and feelings by providing them with a variety of ways to symbolize and/or verbalize their experiences. The initial goal of the EPBDA is to gain an understanding of children’s unique functioning, identify problem areas, rule clinical symptoms in or out, understand children’s perceptions of their important relationships, and subsequently develop recommendations that meet the specific needs of children and their families Extended Play-Based Developmental Assessments allow clinicians to comment on children’s physical and emotional functioning; themes evident in play, language, behavior, or activities; relational issues; symptomology observed or reported; communication style; spontaneous verbal communications; and differential developmental functioning based on age, gender and culture. 8626 Lee Highway Suite 200-A Fairfax, VA 22031 (202) 257-2783 gilcenter.com Specializing in working with abused children and their families Our areas of expertise include: *Play therapy with abused and traumatized children; * Systemic Treatment of Children who Molest * Post-Traumatic Play * Integrated Approaches to Abused Children * Working with Adolescent Victims * Working with Sexually Aggressive Children and their Families 77 8626 Lee Highway Suite 200-A Fairfax, VA 22031 (202) 257-2783 The Naples Child Therapy Center Our mission is to provide parents a place where their children feel safe and can express themselves openly through proven child therapy techniques. Supervised Play Therapy Play therapy is the process of learning about children's emotions by observing and participating in their play. Play allows children a safe and psychological distance from their problems and allows them to express their true thoughts and feelings in ways best suited to their developmental level. Play Therapy Enables children to express themselves. Establishes an environment that is free of many restraints. Gives children a chance to express themselves in their own language of play and fantasy. Creates an atmosphere that is comfortable and familiar. 816 Anchor Rode Drive Naples, FL 34103 239-417-3031 Email: info@carolgollychildtherapy.com www.carolgollychildtherapy.com 78 SteppingStones Counseling & Consulting of Charlotte is a private practice dedicated to providing professional counseling and consultation services to children, adolescents, adults, couples and families. Child / Play Therapy Most children go through difficult times, such as divorce of their parents, trouble making friends, or adjusting to changes at school or home. Some children need more help than others to get through these times. Play therapy is the most appropriate treatment for helping children work through difficult times and helping parents gain a better understanding of what their child is going through. Through play therapy, children learn to communicate with others, express feelings, modify behavior, develop problem-solving skills, and learn a variety of ways of relating to others. Play provides a safe psychological distance from their problems and allows expression of thoughts and feelings appropriate to their development. 315 E. Worthington Avenue Charlotte, NC 28203 Phone: 704.335.6100 www.steppingstonesnc.com Playful Awareness-Freedom from emotional pain through play We are an independent private practice providing play therapy and Dialectical Behavior Therapy (DBT) services to children, teens, adults and families. Play therapy provides opportunities for individuals to express and resolve emotional conflicts using art, music, movement, journaling and physical activities. DBT is a specialized approach emphasizing healthy functioning. We treat a wide variety of issues including: childhood aggression sensory processing disorder impulse control 79 mood disorders/emotion dysregulation attachment/trauma divorce/remarriage self-esteem (785) 749-1075 or (913) 244-8786 1602 E 22nd St Lawrence, KS 66046 sara@playfulawareness.com www.playfulawareness.com Canada- Ontario A complete history of the child is attained followed by a clinical assessment and consultation with the care giver. Based on this information an appropriate treatment modality is chosen. For instance, a directive or non-directive approach may be used, depending on what the situation calls for. In all cases, the treatment is play-based and child-centered, focusing on the individual needs of the child. 2349 Fairview Street, Burlington, ON, L7R 2E3 Phone: 905-580-7529 E-mail: playtherapy1@hotmail.com www.playtherapyforchildren.com 80 Midwest- Michigan Gateway Counseling Center Play Therapy Services for Children At Gateway, play therapy takes place in a playroom, specially designed, decorated, and furnished with the toys and equipment children need to use as tools for the dramatic scenes they direct with the therapist. Parents are important allies in the play therapy process and can do much to support and enhance the work their child does in play therapy sessions. Therapists meet regularly with parents to learn what is happening in the child's life, to share important observations, and to give suggestions on how parents can support their child's therapy. 1463 E. 12 Mile Rd. Madison Heights, Michigan 48071 Phone (248) 414-3382 www.gatewaycounselingcenter.com 81 Chapter 9: LEGAL SYSTEMS Child Advocacy Centers & Court Preparation Programs CLS strive to help children with stressful or traumatic experiences life events and situations. Child life specialists working in the legal system can help children coping with abuse and neglect by providing support and interventions to them. The traumatic event could be the abuse or neglect the child has experienced or the stress from being removed from their home. Child life specialists are advocates for children in the hospital so advocating for children in the legal system would be no different. Helping children prepare for court by using role playing and providing information on who, what, where and why they are there will be helpful for the child in prepping them. In this chapter child advocacy centers and court preparation programs are listed. Each of these centers and programs are unique, but all strive to help children by providing them ways to help them through the legal system. 82 South- Alabama, Kansas, Texas & Kentucky Play Therapy In the playroom, the child gets to choose what to do. The therapist makes sure that the child is safe. The child might play with toys like cars, puppets, and dolls. The child might also want to use paper, markers, and crayons to draw or do other art. At times the therapist might play with the child, and other times the therapist might watch the child play. The therapist gains insight and understanding about the child’s worries and thoughts by this observation Child Protect- Children’s Advocacy Center Purpose of a Child Advocate Assist you and your child through the interview stage Answer any questions you may have regarding child interviews, counseling, court hearings, etc. Refer you and your child to appropriate organizations as necessary for family support Help prepare your child for court Attend all possible court hearings with your child What Your Child Advocate Can Do For You Conduct court preparations with your child at Child Protect Conduct court preparations with your child at the courthouse Attend court preparations the district attorney is conducting Provide court preparation if the district attorney is not available Explain the court system to the non-offending caregiver Explain the court system in child-friendly terms Bring entertainment for the child during court Sit with the child to provide advocacy during testimony Sit with the child to help prevent boredom and anxiety during wait times at the courthouse. Attend each court session with the child, including arraignment, preliminary hearing, grand jury, trial and Sentencing 83 935 South Perry Street Montgomery, AL 36104 334-262-2252 www.childprotect.org Life House-Child Advocacy Center Kids in Court Program Kids in Court is a program designed to prepare children for the court experience. Trained advocates provide education and support to children and their families as they anticipate going to court to witness. Many times children do not know court terminology such as prosecutor, defense attorney, sequestration oath. Children are shown the courthouse and given a "hands on tour" of an actual court room. They are able to see, touch and experience a new and strange environment. Children learn their job in court is to Tell the Truth. Helping Children Successfully Testify in Court Many children testify in court and wish they did not have to do it. On the day they testify, the child’s advocate, or "court room friend," is with them every step of the way. Some children actually benefit from having their day in court. Specially trained advocates are available to be with a child through every step of the process. A kids in Court advocate will educate the child about court, thus reducing their fear of the unknown. Prepared children are better able to handle the stress and strain of going to court. Children are able to explore and conquer their fears before they take the witness stand. Children can be shown how to manage their nervous feelings and reduce their anxiety while testifying. Kids in Court advocates can be there to help children and their families understand the court system, which can seem confusing and frightening. A child preparing to testify needs all the support they can get. The Kids in Court program has trained advocates to provide that support. 303 S. Kansas Ave. Topeka, Kansas 66603 Phone: 785-232-5433 Lifehousechildadvocacycenter.com 84 Kids in Court The KIC program works in collaboration with the Smith County Criminal District Attorney's Office. This relationship benefits the child victims and the families as the CAC is better able to keep families informed about how their case is progressing through the criminal justice system. In the event that criminal charges are filed and will ultimately result in a criminal hearing, the KIC coordinator works with the child victim and nonoffending caregivers to provide case updates, court education and court accompaniment. Court Education/Preparation All too often there are misconceptions associated with court for children and adults alike. These misconceptions, if not addressed and corrected, can be fear inducing and anxiety provoking. The CAC of Smith County offers court education as an opportunity to explain what court is, the importance of telling the truth and the roles of the individuals present in a typical court room. The CAC of Smith County utilizes a court preparation curriculum in combination with the Kids in Court Manual (developed by the CAC of Smith County) to prepare young witnesses for the experience of providing testimony in a courtroom. The educational curriculum is presented through various activities and learning objectives which are hands on and interactive. Initially, a child witness is introduced to the setup of a typical courtroom through a wooden diorama depicting the various structures and personnel roles. At some point prior to a criminal hearing a child may be offered a court room tour. Court Accompaniment If a criminal case proceeds to a criminal hearing, the KIC coordinator or family advocate will accompany the child witness and family to court. Because this experience can be difficult for a family emotionally and physically the KIC coordinator works in collaboration with the Victims Assistance Coordinator at the Smith County Criminal District Attorney’s Office to provide support throughout the duration of the trial. 2210 Frankston Hwy Tyler, Texas 75701 Tel: 903-533-1880 Email: info@cacsmithcounty.org www.cacsmithcounty.org 85 Court Preparation and Advocacy Advocates assist the child and his/her non-offending caregivers to ensure they are adequately prepared for the legal and court processes following a disclosure of abuse. Some centers provide this service directly to children and families and/or work closely with prosecution based victim advocates to ensure the needs of child victims and families are considered throughout the prosecution process. 649 Charity Court, Room #4 Frankfort, KY 40601 (502) 223-5117 www.kacac.org West Coast- Washington Kids Court Kids’ Court is a five-hour experiential and activity-based program held at least four times a year on Saturdays from 9:30 a.m. to 2:00 p.m. in a courtroom at the King County Courthouse in Seattle or the Norm Maleng Regional Justice Center in Kent, Washington. Through a standardized curriculum, participants engage in discussions with a judge and prosecutor. Utilizing role-plays, question and answer sessions and fun games, the program increases children’s knowledge of courtroom personnel and procedures. The afternoon session focuses on enhancing self-confidence and introduces stress reduction techniques. Kids’ Court is designed for children ages 4-12. As the day progresses children in the group learn: Why a witness is important and how to be confident in that role How kids can participate successfully in a the legal system through enhancing knowledge of courtroom procedures How to reduce feelings of fear and anxiety though relaxation techniques that are fun, easy and helpful 86 Practical methods to manage courtroom worries such as, “What if I start to cry?” or “What if I don’t understand a question?” To support and reinforce these sessions when Kids’ Court is over, each participant receives a book entitled, “You Are Very Brave” and a relaxation tape. Donna Belin, MEd, Executive Director 704 228th Avenue Northeast, PMB 323 Sammamish, WA 98074-7222 206-386-5437 (206-386-KIDS) www.kingcounty.gov/prosecutor/kidscourt.aspx Court Appointed Special Advocates for Children (CASA) CASA volunteers are appointed by judges to watch over and advocate for abused and neglected children, to make sure they don’t get lost in the overburdened legal and social service system or languish in inappropriate group or foster homes. Volunteers stay with each case until it is closed and the child is placed in a safe, permanent home. For many abused children, their CASA volunteer will be the one constant adult presence in their lives. Judges appoint CASA volunteers to represent the best interests of children who have been removed from their homes due to abuse or neglect. Each year, more than 700,000 children experience foster care in this country. Because there are not enough CASA volunteers to represent all of the children in care, judges typically assign CASA volunteers to their most difficult cases. National CASA Association 100 West Harrison North Tower, Suite 500 Seattle, WA 98119 Main Number: (800) 628-3233 www.casaforchildren.org 87 Chapter 10: School Setting- Educational Consultant for Children with Chronic Illness www.holacrayola.zoomshare.com Child Life Specialist’s role within the school setting is to reduce the impact of stressful or traumatic life events and situations that affect the child’s development, health, and wellbeing within the school district. An educational consult for children with chronic illness provides services to children who are struggling due to their chronic illness. CLS could provide children with preparing them for returning back to school and providing them with coping skills and interventions to help with loss. In the following chapter one program where child life services could be provided to children and their families is listed. 88 East Coast- Massachusetts Susan Haberman's Educational Consulting and Advocacy practice provides regular and special education services to families of children who are struggling in school and not receiving appropriate services. Susan has experience working with a wide variety of issues that impact learning, including Learning Disabilities, Autism Spectrum, ADHD, Mental Health and Behavioral Disorders, Developmental Delays, and other health impairments. SERVICES Susan's practice provides a range of solution orientated Consultation and Advocacy services. With each Service, Susan demystifies the educational process and provides practical advice about how parents can ensure that their child's educational needs are being met. Advocacy Educational Consulting Records Review Test Administration and Interpretation Tutoring Mediation Observation & Placement Referrals 60 Davidson Road Framingham, MA 01701 Phone: 508-965-4175 Susan@slhaberman.com www.slhaberman.com 89 When a child is diagnosed with a brain or spinal cord tumor, the whole family needs a special kind of care and support. Making Headway Foundation was created in response to this compelling need. Our humanistic programs support children and their families from diagnosis through treatment and beyond. To make treatment visits at Hassenfeld Children's Center for cancer and blood disorders at New York University (NYU) Langone Medical center, more comfortable, engaging and soothing for children and parents, Making Headway Foundation provides funding for the following services: A Child Life Specialist who uses play and recreation to encourage children to express their thoughts and feelings and who ensures that the playroom remains an oasis of comfort and fun. Patricia Weiner, MS, CCLS; Consultant/Special Education and IEP Specialist Sallie Sanborn, MS. CCLS; Psychotherapist A Nurse Clinician who administers chemotherapy treatments for children with brain and spinal cord tumors, as well as blood cancers. A Clinical Research Manager who coordinates the clinical research trials for pediatric neuro-oncology patients. A Senior Psychologist who provides psychological services to patients, including neuropsychological testing, comprehensive assessments of abilities and needs, crisis interventions and support groups. A Professional Clown whose hilarious slapstick, fun and frivolity inspire laughter from both children and adults-a vital part of the healing process-while the children are undergoing treatments. A Massage Therapist and a Yoga Instructor who provide relaxation and respite for both children and parents. 115 King Street Chappaqua, NY 10514-3460 Telephone: (914) 238-8384 www.makingheadway.org 90 Chapter 11: Child Life in a Nonprofit Community Service/Support Agency and Non Profit Providing Child Life Services www.l-wconsulting.com Child life’s role in a nonprofit community support setting is to provide support to children and their families. The same skills and services CLS provide to children and families in the hospital can be used in a nonprofit setting. Some of the skills could be: knowledge of child development, ability to communicate and work as part of a team, skills in coping and stress management, and assessing the family’s needs. Child’s life’s role in a nonprofit providing child life services is to help family’s confronting chronic and life threatening illness. CLS goal within this type of setting is to provide communication within the families to help them cope with the illness. Providing information, education, teaching, and interventions to families during this time is a large role for child life in a nonprofit providing child life services. In the following chapter one nonprofit community support setting and one nonprofit providing child life services is listed. These two settings are unique but both provide child life services to families within the community setting. 91 South- Texas Nonprofit Providing Child Life Services Wonders and Worries-A Families Illness, A Child’s Journey Helping Children when a parent has a chronic or life threatening illness Our therapeutic programs help children affected by a parent's serious illness by: Giving an age-appropriate understanding of the illness, its treatments and side effects Facilitating expressions of feelings related to the changes in the family Identifying individual coping skills to help ease feelings of sadness, anger, and fear Services: All Wonders & Worries services are provided by Child Life Specialists, professionals who are specially trained to help children and their families understand and manage challenging life events and stressful health care experiences. Currently, we offer: Individual Sessions - for children ages 2-18 Group Sessions - helping children ages 5+ meet other children coping with similar experiences Child / Parent Relationship Training Classes - teaching parents how to reconnect with their children during the illness or following a loss Informal Support / Recreational Group Activities - allowing families to enjoy being together in a fun, relaxing environment Bereavement Support Sessions - helping families prepare for the end-of-life, gain the skills necessary to cope with loss, and create legacies Services may be provided at one of our offices, at schools (with permission), or at another location when necessary. All services are provided at no cost to families, thanks to the generosity of our donors. W&W works with families at ANY stage of the illness - from recent diagnosis to remission to a reoccurrence. Bereavement support is available to any family who was a W&W client prior to the loss. 9101 Burnet Rd, Suite 107 Austin, TX 78758 Phone: 512-329-5757 www.wondersandworries.org 92 Midwest- Ohio Child Life in a Nonprofit Community Support Agency The Gathering Place- A Caring Community for Those Touched by Cancer The mission of The Gathering Place is to support, educate and empower individuals and families touched by cancer through programs and services provided free of charge. Children and Family Programs The Gathering Place has two Child Life specialists on staff to help children of all ages cope with a cancer diagnosis in their family. The Gathering Place programs and services are for those actively dealing with cancer in their daily lives. This includes those in treatment, those who are coping with the physical and/or emotional side effects from treatment, those who are actively supporting someone with cancer, or someone who is grieving the recent loss of a loved one from cancer. These Two Programs are run by CCLS Kathleen McCue Family Consultation Our children’s specialists, Kathleen McCue, MA, LSW, CCLS, Kathy Maxwell, LISW-S and Erin Rafter, PhD are available to meet with parents or other family members to discuss concerns about issues with children. Children’s specialists are also available to provide short term counseling for children and teens. KidShop A twice-monthly workshop for children of all ages who have an adult family member with cancer. This support program, utilizing art, play, and discussion, provides creative opportunities for children and their parents to interact with families in similar situations. Advance registration with Kathy Maxwell, LISW-S or Kathleen McCue, MA, LSW, CCLS. Children and Family Programs For information on programs and services available for children and families coping with a cancer diagnosis, contact Kathleen McCue, Children's Program Director, at mccue@touchedbycancer.org. The Arnold & Sydell Miller Family Campus 23300 Commerce Park Beachwood, OH 44122 (216) 595-9546 93 Orange County Parent Child Center Our work throughout Orange County brings family support and outreach programming into homes and communities, meeting families where it is convenient and comfortable for them. Our programs connect parents with practical strategies and skills that address the full spectrum of family joys and challenges. Andrea Herrington CCLS, Children’s Integrated Services Family Support & Outreach, Playgroups 361 Vermont Route 110 Chelsea VT 05038 (802) 685-2264 www.orangecountypcc.org 94 Chapter 12: Child Abuse Centers– Family Programs and Shelters asbinder.wikispaces.com Child life specialist’s role working in a shelter is to provide families and children with a safe place where they feel they are safe from harm. CLS also can be a child’s advocate by talking with the family and child to assess the child’s understanding of why they are at the shelter and what a shelter is. In the following chapter child abuse centers including ones with family programs and shelters are listed within the U.S. Each center is unique in the services and programs they provide, but all strive to help families and children have a safe place to go. 95 South- Texas & South Carolina Mission: Austin Children’s Shelter protects and heals children, young adults and families in need. Services Our services and programs are tailored to the unique strengths and needs of every youth and young adult in our care. Children, youth and young adults come to the Austin Children's Shelter through Child Protective Services, the Juvenile Probation Office or Austin Travis County Integral Care. Emergency Shelter Austin Children's Shelter offers a safe haven for children and youth from birth to 18 years old who have been removed from their homes due to abuse, abandonment or neglect. We provide high quality care and critical services needed to begin the healing process, including individual and group therapy, medical, vision and dental care, and educational assistance. Generally, children in emergency shelter care are here for less than 90 days. Teen Mother's Program The Teen Mother's Program was launched in 2010 in a recently built cottage on our campus designed for up to 22 moms with their babies and toddlers. Current trends indicate these young families will live in our care for up to a year. Our goal is to teach these teen moms positive parenting skills to break the cycle of abuse and neglect while supporting the attainment of their educational and vocational goals. Transitional Living Program Youth and young adults who choose to remain in foster care or return to foster care learn skills necessary to make the transition to independent living. Our staff help youth identify resources available to them. Training can include learning how to open a checking account, rent an apartment, interview for a job, shop economically for healthy food and more. Youth in this program live in the long-term residential cottages and must be 16 – 21 years old and either enrolled in school or vocational training. Respite Care Respite care provides temporary, non-routine relief for parents and legal guardians of children with emotional or developmental disabilities for up to 14 consecutive days and up to a total of 40 days per calendar year. This service is available for children who are eligible for services through Austin Travis County Integral Care. www.austinchildrenshelter.org Austin, Texas 96 Children Shelter of the Upstate, Inc. Mission The Mission of the Children Shelter of the Upstate is to provide a safe, supportive and nurturing environment for abused, abandoned and neglected children and teens. The Children Shelter of the Upstate provides an immediate safe home for children who have been abused, abandoned and neglected. Children arrive at the Shelter any hour of the day or night during any week of the month. The Shelter provides comfortable clothing, nourishing meals, medical attention, and counseling and encourages academic success. P.O. Box 2663 Spartanburg, SC 29304 (864) 583-7688 www.childrenshelterupstate.org Midwest- Missouri Sunshine Children’s Center for Abused or Neglected Children Emergency Shelter Sunshine Children's Center provides up to 45 days of care to children who have been taken into protective custody by the Dept. of Human Services because of allegations of abuse or neglect. Child Abuse Prevention and Respite The Sunshine Shelter is in the process of implementing other programs to assist the children in coping with the trauma they have experienced, as well as helping those who care for these children. These programs include Respite Care - temporary placement for children whose parents or foster parents just need to "step back" temporarily from the pressures of child-rearing. Another program is Life Skills - teaching the soon-to-be young adults the skills and responsibilities that are necessary to living independently. Medical and Psychological Services Besides offering a temporary shelter, Sunshine Shelter also provides medical, dental, and eye examinations, as well as psychological diagnostic evaluations. The Shelter has a licensed social worker on staff who conducts counseling with the children. 97 409 N. Union St Natchez, MS 39120 601.445.2223 www.sunshineshelter.org www.sunshineshelter.org West- Colorado & Arizona The Kempe Center Mission Statement The Kempe Center will provide and improve direct clinical services, improve clinical service delivery systems, and provide training, education and consultation programs to prevent and treat child abuse and neglect in Colorado and throughout the nation. The Kempe Center creates programs that treat abused children, trains future professionals, and researches new methods to heal these innocent victims. Our current programs include: Kempe Child Protection Team Kempe Child Trauma Program Kempe Fostering Healthy Futures Program Kempe Perpetration Prevention Program Kempe State and Regional Team for Crimes Against Children (START) 98 Kempe Therapeutic Preschool Kempe Training, Education and Consultation Program Kempe Judicial Access to Services for Parent Infant Relationship Enhancement (JASPIRE)/Justice Initiative for Drug Endangered Families (JI-DEF) The Gary Pavilion at Children's Hospital Colorado Anschutz Medical Campus 13123 E 16th Ave., B390 Aurora, CO 80045 (303) 864-5300 www.kempe.org Tennyson Center for Children at Colorado Christian Home has grown to become one of the Rocky Mountain region's leading treatment centers and K-12 schools for emotionally and crisis-affected children and youth, particularly those suffering from abuse and neglect. We serve children ranging in age from 5-18. We provide experienced and caring treatment, educational and advocacy services in an environment that is child-centered, family-focused and community-based. Programs and Services Our Residential Treatment Program provides 24-hour care for children ages 5-14 with significant emotional and behavioral concerns. We integrate therapy, education, health, spiritual growth, and recreation opportunities to help children and families stabilize, establish safety, resolve conflict, and develop success. Our Day Treatment Program provides children, ages 5-18, a research-based K-12 educational curriculum in a highly structured therapeutic environment. By helping children 99 learn new skills and strategies to manage their emotional health and well-being, while continuing their academic pursuits, we help prepare them to successfully re-enter the public school system. Stepping Stones is a short term adolescent residential program for male and female youth ages 11-18 that need a temporary place to reside due to family conflict, legal problems, mental health concerns or other issues. Our Community Based Family Services program addresses child protection, emotional and behavioral challenges, domestic violence, parenting, child trauma, and specific mental health concerns in the family’s own home, school and community. Tennyson Center for Children’s Education Program offers a continuum of education approaches to meet the behavioral and academic needs of students for children who are having difficulty achieving success in the public school setting. Home Environment Alternative to Residential Care (HEART) is an intensive in-home program that serves the entire family and focuses on family preservation, reunification and preventing out-of-home placements. Outpatient Therapy services are available for individuals and families at our Denver campus. These services can be used as an assessment tool, allowing our licensed clinicians to help identify clients’ needs and facilitate service planning. 2950 Tennyson Street Denver, CO 80212 Main 303.433.2541 Toll Free 877.224.8223 www.childabuse.org Casa De Los Ninos Our Mission Casa de los Niños is dedicated to the prevention of child abuse and to the care of children already abused. Crisis Shelter Arizona shelters are managed by non-profit organizations licensed by the state. Casa de los Niños is licensed to accommodate 48 children. Our focus is the care of children younger than 12. Our specialty is the stabilization of youngsters with medical problems. In 100 addition to providing a safe, loving environment for all our young guests, Casa de los Niños offers around-the-clock medical care. Children are at Casa de los Niños because they are medically vulnerable and their parents lack the resources to provide adequate care. Often-times our staff will help teach parents how to deal with the healthcare challenges faced by the child. Casa de los Niños cares for these youngsters while case managers decide if the child should go back to the parents, to relatives or to a foster home. 1101 N 4th Ave Tucson, AZ. 85705-7467 520-624-5600 West Coast- California Children’s Institute, Inc. has created one of the nation’s strongest models for working with children who have been traumatized by violence. Everything we do is aimed at healing children who have been hurt, protecting them from getting hurt again, and preventing others from ever being hurt in the first place. We help families provide safe, nurturing homes. And we advance innovative programs and policies that contribute to safe children, strong families and healthy communities nationwide. Programs and Services include clinical, early childhood, family support and child enrichment. Listed area few of the services in each of these categories. Clinical Services Child Abuse Treatment Services — Individual, family, and group counseling services and special programs for sexually abused and sexually reactive children and teens and their non-offending parents Child and Family Assessment Center — Comprehensive mental health and developmental evaluations emphasizing children in the child protective services system 101 Early Childhood Services Early Care and Education — Half-day, full-year early education and child care services in center-based care or in contracted licensed family childcare homes to promote optimal child development Early Head Start — Comprehensive child development program that provides individualized care and services to children birth to 3 years old and their families Family Support Alcohol and Other Drugs — Treatment and support services for adolescent and transitional age youth with substance abuse and mental health difficulties California Youth Authority Parenting program — A parenting and support program for youths in California Youth Authority facilities Child Enrichment Art program — Structured and walk-in classes in the visual arts for children age 4 and up Computer Learning — Hands-on training for children of all ages through ageappropriate games, schoolwork and Web research 2121 West Temple Street Los Angeles, California 90026 Phone: 213.260.7600 www.childrensinstitute.org The Child Abuse Prevention Center Mission The Child Abuse Prevention Center directly serves at-risk children and families in crisis to prevent and break the generational cycle of child abuse. The Child Abuse Prevention Center is the county's leading not-for-profit organization focused exclusively on the prevention of child abuse. Our early intervention programs have a well-documented record of strengthening and improving parent-child relationships, working to prevent child abuse before it occurs. The Prevention Center currently offers a variety of programs that address the issues of child abuse and family violence, and the underlying social, environmental, and medical factors that can contribute to this devastating social issue. 102 Programs Include: Basic Needs Bridges for Newborns Child Abuse Services Team Helping Kids Cope In-Home Coach In-Home Crisis Stabilization In-Home Mental Health Monitored and Supervised Visitation Multidisciplinary Care Team Supporting Parents and Reaching Kids Teen Voices / Teen Choices Welcome Baby 500 S. Main Street, Suite 1100 Orange, CA 92868 (714) 543-4333 www.brightfutures4kids.org East Coast- New York New Alternatives for Children Mission NAC’s mission is to provide the support and advocacy necessary to help children with chronic medical conditions, their siblings and their families overcome obstacles that deprive them of a loving, permanent home and the chance to thrive. Programs & Services Making sure each child is safe and has a permanent and loving home to call his or her own is our focus and our first goal. Prevention, Foster Care & Adoption, Bridges to Health, Comprehensive Healthcare Center Educational Support & Advocacy Family Support Services 37 West 26th Street, 6th Floor New York, NY 10010 (212) 696-1550 nackidscan.org 103 Chapter 13: Wellness Centers studenthealth.fiu.edu Child Life Specialists role in working with families in a wellness center environment is providing education, teaching, preparation and support for families dealing with cancer. CLS can use their education and skills of child development to help children and teens understand their parents or loved ones cancer diagnosis or treatment. Therapeutic coping interventions and techniques may be used to help children and teens express their emotions through art, music and play. Child Life Specialists can work alongside other professionals in a wellness center setting to help provide education, coping and support through the use of alternative therapies. In the chapter one wellness center is listed. This center is unique to helping families cope with cancer. 104 East Coast- New Jersey The Wellness Community of Central New Jersey Our Mission To ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. At The Wellness Community of Central New Jersey individuals affected by cancer are given an opportunity to enhance their health and well-being through participation in professionally-led programs of support, education and hope. Kids Connect/Parents Connect Meets once a month on Saturday mornings: 10 am – Noon. This program, led by licensed professionals, is designed to help children ages 6 -13 cope with a parent’s cancer diagnosis and to help parents develop the skills necessary to talk to their children about their cancer. Children and parents meet separately and together. Children participate in creative activities designed to help them express their feelings and emotions. Teens Connect Monthly program for teens 14-17 who have a parent diagnosed with cancer. 3 Crossroads Drive Bedminster, NJ 07921 908-658-5400 www.cancersupportcnj.org www.cancersupportcnj.org/ 105 Chapter 14: Ronald McDonald House The Child Life Specialist’s role in this setting is to help both patients and siblings understand and cope with their disease and treatment as well as being a resource for parents about these issues. In the following chapter Ronald McDonald Houses in the U.S are listed. Each Ronald McDonald House is unique in the services they provide, but each Child life specialist at the house strives to help children and their families coping with disease. 106 Midwest- Minnesota Ronald McDonald House Our Mission Ronald McDonald House Charities, Upper Midwest creates, finds and supports programs that provide a caring community for families with seriously ill children while increasing children's access to health care services. The main goal of the Ronald McDonald House is to create a home-away-from-home for families with children living with life-threatening illnesses. Services for our Families The Ronald McDonald House School is a contract alternative school, licensed through the Minneapolis Public Schools and staffed by the Ronald McDonald House. Fulltime instruction is provided for patients and siblings in grades K-12, allowing children to maintain academic performance while remaining together as a family. The Cooks For Kids Program is a volunteer program in which organizations, groups and individuals prepare a home-cooked meal for our families each night at 5:30, as well as brunches on the weekends and Wednesday afternoon barbecues in the summer. The Summer Activities Program offers families fun, engaging and educational activities when school is out. Activities include bowling, swimming, canoeing, weekly trips to the library, building model rockets, field trips to Valley Fair and a boat ride on the St. Croix River. Weekly Activity Nights provide families with fun and creative diversions such as arts and crafts, the bouncy house, movies and BINGO. These activities offer an opportunity for families to build a community with each other. In addition to these regular activities, several others are offered. Special activities and parties are planned around each holiday, including a summer Luau, a big spring egg hunt, a wonderful celebration of the Chinese New Year, a frighteningly fun Halloween Party and a special winter celebration in December. After School Activities offer a fun afternoon for the children at the House. A variety of activities are offered including crafts, cooking yummy treats and Jammin’ with Jan, a program made possible through a partnership with MacPhail Center for Music. Parent's Night In is held three times during the year, offering parents an evening to go on a "date.” A candlelight dinner is served at the House and childcare is provided for the children. Parent’s Night In provides parents with much needed time together to strengthen and nurture their commitment. 107 House Warmers assist families in their adjustment to the House. These volunteers make lunch for the children in our school, supervise recess, play with the children, help direct the afternoon and evening activities and help clean rooms. The Family Resource Room and Library contains eight computers that provide free internet and e-mail access. A collection of medical resource materials and a comprehensive library of bibliotherapy materials are also available. The Child Life Specialist on staff helps both patients and siblings understand and cope with their disease and treatment as well as being a resource for parents about these issues. Administrative Offices 818 Fulton Street SE Minneapolis, Minnesota 55414 612.331.5752 www.rmhc-um.org The Ronald McDonald House of Rochester, Minnesota The House provides shelter and support to families facing difficult days and long nights. Families who stay at the Ronald McDonald House share their stories and gain new insights as they meet children and parents with similar concerns. The House is a place to share hopes and dreams. Child Life Specialist A Mayo Clinic Child Life Specialist (CLS) has an office at the Ronald McDonald House and schedules hours in our home. Together with social workers, Ronald McDonald House volunteers and staff, the CLS offers opportunities for emotional therapy. Activities and programs maximize existing resources and build collaborations with the community. The Child Life Specialist is available to families in the late afternoon, evening and weekends. 850 2nd Street SW Rochester, MN 55902 (507) 282-3955 rmhmn.org