Health Information Exchange and Care Coordination for Persons Receiving LTPAC Services ASPE and CMS Briefing Jennie Harvell Larry Garber, MD Terry O’Malley, MD Bill Russell, MD Walter Rosenberg, MSW March 28, 2013 1 Challenges and Problems Transitions in Care and instances of shared care are common. Health information is siloed, often not shared (or shared in time) across providers/caregivers, and not shared between health information systems. The lack of timely health information exchange results in: ◦ ◦ ◦ ◦ ◦ Poor continuity and coordination care Errors resulting in safety and quality problems Redundancies in tests/other services Avoidable ER admissions and hospital readmissions Unnecessary costs 2 Health Information Exchange A national priority: Essential for the success of many health system reform activities HHS published an RFI on the policy and programmatic levers to accelerate HIE, including for persons who receive LTPAC services https://www.federalregister.gov/articles/2013/03 /07/2013-05266/advancing-interoperability-andhealth-information-exchange 3 Agenda The need for exchanging information at times of transitions in care and shared care Low cost and near term solutions for engaging LTPAC providers in HIE activities Exchanging information across acute, post-acute, and long-term service and support providers Advancing standards for the interoperable exchange of information to support transitions of care, shared care, and care planning Questions and Answers 4 Communication & Adverse Events • Poor care coordination increases the chance that a patient will suffer from a medication error or other health care mistake by 140% (Lu, et al., 2011) • Communication failures between providers contribute to nearly 70% of medical errors and adverse events in health care (Gandhi, et al., 2000) • 150,000 preventable ADEs ($8 Billion nationwide wasted) each year occur at the time of admission due to inadequate knowledge of outpatient medication history (Stiell, et al., 2003) 5 Problems With ED Visits • Physicians in the Emergency Department (ED) lack important or critical patient information 32% of the time • 15% of ED admissions could be avoided if the ED had outpatient information (Stiell, et al., 2003) 6 Problems After Hospital Discharge • 1.5 Million preventable adverse events annually nationwide from discharge treatment plans not followed (Forster, et al., 2003) • When multiple physicians are treating a patient following a hospital discharge, 78% of the time information about the patient’s care is missing (van Walraven, et al., 2008) • 20% of Medicare patients are readmitted within 30 days. Preventable readmissions waste $26B nationwide annually (McCarthy, et al., 2009) • Timely information often does not follow from hospital discharge to community-based providers. 7 National care transitions experts overwhelmingly identified “improving information flow and exchange” as the most important tool to improve care transitions (ONC, 2011) 8 Problems with Current Standards • Health IT standards are lacking for needed HIE: – Lack standardized Care Plan terminology and definitions – Consolidated CDA (C-CDA) document types (e.g. CCD) fail to meet the needs and responsibilities of physicians, patients, hospitals and LTPAC providers as senders and receivers of information during transitions of care 9 Datasets for Care Transitions • Traditionally – What the sender thinks is important to the receiver • Future – Also take into account what the receiver says they need 10 IMPACT Grant February 2011 – HHS/ONC awarded $1.7M HIE Challenge Grant to state of Massachusetts (MTC/MeHI): Improving Massachusetts Post-Acute Care Transfers (IMPACT) 11 14x14 Sender (left column) to Receiver (top) = 196 possibly transition types Transitions From (Senders) Transitions to (Receivers) In Patient ED Outpatient Behavioral Acute Care Services Health Hospitals Inpatient LTAC IRF HHA Hospice Amb Care EMS BH CBOs Patient/ Community (PCP) Inpatient Acute Care Hospital Emergency Department Outpatient services Behavioral Health Inpatient Long Term Acute Care Hospital Inpatient Rehab Facility Skilled Nursing/Extended Care Home Health Agency Hospice Ambulatory Care (PCP, PCMH) Emergency Medical Services Behavioral Health Community Community Based Organizations Patient/Family 12 SNF/ECF 12 Services Family “Receiver” Data Needs Survey • • • • • Largest survey of Receivers’ needs 46 Organizations completing evaluation 11 Types of healthcare organizations 12 Different types of user roles 1135 Transition surveys completed 13 Findings from Survey • Identified for each transition which data elements are required, optional, or not needed • Each of the data elements is valuable to at least one type of Receiver • Many data elements are not valuable in certain care transition • A single paper form can’t represent this variability in data needs • Can be grouped into 5 types of transitions 14 Five Transition Datasets 1. Report from Outpatient testing, treatment, or procedure 2. Referral to Outpatient testing, treatment, or procedure (including for transport) 3. Shared Care Encounter Summary (Office Visit, Consultation Summary, Return from the ED to the referring facility) 4. Consultation Request Clinical Summary (Referral to a consultant or the ED) 5. Permanent or long-term Transfer of Care to a different facility or care team or Home Health Agency 15 Five Transition Datasets Shared Care Encounter Summary: • Office Visit to PHR • Consultant to PCP • ED to PCP, SNF, etc… Consultation Request: • PCP to Consultant • PCP, SNF, etc… to ED Transfer of Care: • Hospital to SNF, PCP, HHA, etc… • SNF, PCP, etc… to HHA • PCP to new PCP 16 Five Transition Datasets Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) 5 3 In patient ED 1 Out patient services 5 LTAC IRF 5 SNF?ECF HHA Hospice Ambulatory Care (PCP) CBOs Patient/Family 17 5 4 2 CBOs Patient/ Family Additional Contributor Input •State (Massachusetts) – – – – – – MA Universal Transfer Form workgroup Boston’s Hebrew Senior Life eTransfer Form IMPACT learning collaborative participants MA Coalition for the Prevention of Medical Errors MA Wound Care Committee Home Care Alliance of MA (HCA) – – – – – – – – – – – – – – NY’s eMOLST Multi-State/Multi-Vendor EHR/HIE Interoperability Workgroup Substance Abuse, Mental Health Services Agency (SAMHSA) Administration for Community Living (ACL) Aging Disability Resource Centers (ADRC) National Council for Community Behavioral Healthcare National Association for Homecare and Hospice (NAHC) Transfer of Care & CCD/CDA Consolidation Initiatives (ONC’s S&I Framework) Longitudinal Coordination of Care Work Group (ONC S&I Framework) ONC Beacon Communities and LTPAC Workgroups Assistant Secretary for Planning and Evaluation (ASPE)/Geisinger MDS HIE Centers for Medicare & Medicaid Services (CMS)(MDS/OASIS/IRF-PAI/CARE) INTERACT (Interventions to Reduce Acute Care Transfers) Transfer Forms from Ohio, Rhode Island, New York, and New Jersey 18 •National Longitudinal Care Coordination Shared Care Encounter Summary: • Office Visit to PHR • Consultant to PCP • ED to PCP, SNF, etc… Home Health Plan of Care Care Plan • Anticoagulation • CHF Consultation Request: • PCP to Consultant • PCP, SNF, etc… to ED 19 Transfer of Care: • Hospital to SNF, PCP, HHA, etc… • SNF, PCP, etc… to HHA • PCP to new PCP How do they compare to CCD? Data Elements for Longitudinal Coordination of Care IMPACT Data Elements for basic Transition of Care needs CCD Data Elements • Many “missing” data elements can be mapped to CDA templates with applied constraints • 30% have no appropriate templates 20 ADVANCING HEALTH INFORMATION EXCHANGE TO IMPROVE CARE DELIVERY AND COORDINATION: EXCHANGING ASSESSMENTS AND CLINICAL SUMMARIES Bill Russell, MD Seasons Hospice and Palliative Care ONC Consultant, Theme 2 Challenge Grants 21 PAINTING THE PICTURE OF CLINICAL DOCUMENTATION IN LTPAC: 22 Moving to Electronic Records • Most providers try to maintain paper records while converting to EHR’s • Hybrid Charts (Partial paper documents plus electronic data in multiple systems) create datasets that are even more fragmented. • There are now multiple additional sources of electronic data • Institutional Pharmacy, Laboratory, Physician EHR data, Referral source EHR and Health Information Exchange – Providers are responsible for a core of health information as described in Conditions of Participation, but: • Accessing this data is associated with cost to facilities • IT resources to collect and integrate this information are constrained or unavailable. 23 EHR Technology for LTPAC • LTPAC care delivery depends on a complementary set of clinical data – Nursing, Rehab and Supportive Care Assessments – Care planning and coordination • At present, HIT functionality in LTPAC focuses on compliance and financial performance – Clinical assessments are implemented around required tasks (e.g. Fall or Skin Integrity risk assessments) but the “story of the patient” is often difficult to extract from the LTPAC EHR. • Health IT standards are available for: – Federally required assessments. • However, assessments are not generally exchanged using these health IT standards – Functional and Cognitive status. • Otherwise, there are few standards for document structure, assessments and terminologies that support clinical services in LTPAC. 24 Moving Forward • Strategic Planning is needed to advance electronic health information exchange and re-use to support care coordination on behalf of persons who receive LTPAC services. Strategic planning could guide development and use of HIT/EHRs that will support: – caregiving, HIE, and care coordination in this sector, and – successful implementation of the MU program • At present, interoperable health information exchange with LTPAC providers is at best “opportunistic ” 25 GETTING IT RIGHT IN LTPAC: 26 “Meeting Them Where They Are” • Singular pocket of complete IT adoption – Federally Required Assessments Strategy: Make electronic data created for MDS and OASIS submissions available for interoperable exchange in ToC and Shared Care • While the exchange of assessment data has limits: – It provides some clinically useful information at times of ToC and shared cared; and – It is a starting point for engaging LTPAC providers in HIE. 27 Keystone Beacon Community Transitions of Care Use Cases: Acute discharge to nursing homes (NH) Acute discharge to home health agency (HHA) NH discharge to HHA NH transfer to emergency department (ED) Use Case barriers: • NH/HHA with no EHR • NH/HHA with EHR, but no HIE interfaces • HIE interfaces, but no standard CCD (both NH and HHA) HHA patient with ED visit 28 LTPAC to HIE Transform™ Advanced through the Standards and Interoperability (S&I) Initiative. HL7 Balloted. Nationally available Web service. LTPAC MDS or OASIS Clinical Summary HIE Copyright 2013 Keystone Beacon Community Used with Permission 29 Approach – Easy to Set up Set up: 1. Enter site information 2. Point to assessment folder 3. Enter e-mail 4. Identify recipient of LTPAC Summary Visit http://transform.keyhie.org 30 Approach – Easy to Operate Operation: 1. Runs automatically 2. Self-service tools 3. Help Desk support Visit http://transform.keyhie.org 31 Sample LTPAC Summary from MDS 32 Annual Pricing Entity (Metric) Small Medium Large Nursing Home (# Residents/beds) 0-49 50-199 200-399 Home Health Agency (# Medicare patients) 0-99 100-299 300-499 Principles: Annual fees: 1. No set up or transactions fees 2. One low annual fee 3. Sustainable operations 4. X-Large group pricing • Small facility $499 ($40/mo.) • Medium facility $699 ($60/mo.) • Large facility $899 ($75/mo.) • XL/Group pricing available Visit http://transform.keyhie.org 33 “Meeting Them Where They Are” • Widespread adoption of clinical process change to improve care of patients with Change in Condition: – INTERACT Program • Widespread adoption of ADL tracking systems because of their affect on payment Strategy: Leverage LTPAC ADL tracking software, MD EHR adoption, HIE and DIRECT (secure) Messaging to support the creation and exchange of a Change in Condition Document. This allows: Notification of off site physicians when a NF resident has a change in condition to increase Medical Provider participation in assessments and decision making. Inspired by INTERACT, this workflow is currently specific to NF. Future use cases could include caregivers of homebound patients. Improved shift to shift and discipline to discipline communication around at risk persons. Documentation becomes available to ED’s or consultants if a patient requires emergency services or additional assessments to improve care 34 OK Challenge Grant • Extensive Implementation Plan and “Boots on the Ground” with NFs • Overcome barriers by working with vendors and providers to adapt ADL tracking software to alert and document Change in Condition • Collaborated with AHRQ to overcome implementation barriers • Developed a Health IT standardized (CCD format) for SBAR* (nursing note generated with Change in Condition) • Connected to HIE and exchanging from the NH to physicians and hospitals the electronic Change in Condition/SBAR document. *SBAR: Situation, Background, Assessment, Recommendation, a technique used for communication in health care organizations, including NHs. 35 36 Preliminary Metrics (October-December 2012) Short Description Ratio of Completed SBARs and Health Alerts to hospital transfers 2207 (SBARs and Health Alerts grand total) 81 (Transfers) 3.6% Ratio of Completed SBARs hospital transfers 260 (Completed SBARs) 81 (Transfers) 31% Ratio of Completed Health Alerts to hospital transfers 1947 (Health Alerts total) 81 (Transfers) 4.1% 9 (Satisfied residents) 13 (Surveyed Residents) 69.2% % of Patients Surveyed with a Positive Care Transitions Experience Incomplete measurements pending % of transfers from NRHS to NF with completed transfer form NA NA Pending % of transfers from NF to ED with completed transfer form NA NA Pending % of transfers from NF to Inpatient Admit with completed transfer form NA NA Pending 37 Summary • Medically complex patients are increasingly cared for in LTPAC settings • Information flows between hospitals, physicians, and LTPAC providers are fragmented. • Technology solutions are limited by – Inconsistent adoption – Poorly aligned standards 38 Summary • Need a strategic plan to advance widespread interoperable health information exchange and re-use on behalf of persons who receive LTPAC services. • Strategies to close the gap include: – Increase use of certified EHR Technology in LTPAC – Develop standards to create and exchange content relevant to LTPAC – Receiver specified document content – Lightweight and low cost technologies to connect critical information sets and introduce Health Information Exchange to the LTPAC sector – Automation of best practices shown to reduce hospital readmissions 39 40 Care Coordination and Health Information Exchange Bridge Model Perspective 41 Social work in transitions • Bridge model history – Rush University Medical Center – Aging Care Connections • Themes emerged – Hospital-community disconnect – Aging network underutilization – Systemic barriers – Information transfer problems 42 Illinois Transitional Care Consortium • • • • • • Aging Care Connections Health & Medicine Policy Research Group Rush University Medical Center Shawnee Alliance for Seniors Solutions for Care University of Illinois, School of Public Health 43 The Model • “How are you now?” • Three phases – Pre-discharge • Interdisciplinary team • Community services • EMR research – Post-discharge • • • • Interwoven assessment and intervention Intensive care coordination Motivational interviewing Coordinating post-discharge providers – 30-day follow-up 44 Aging Resource Centers • • • • • Represents a true hospital-community partnership CMIS system Community resource information Care planning EMR access for community social workers 45 Illinois Hospital Association partnership across the State 8 sites Chicago & Suburbs, IL 6 Sites* North Dakota State Unit on Aging Danville, IL Community-based organization (CBO), Aging Network Brooklyn, NY* CBO Philadelphia, PA* Area Agency on Aging East Lansing, MI* Area Agency on Aging San Fernando, CA* Health care organization *Community-based Care Transition Program replication sites. Brunswick, GA Area Agency on Aging Carbondale and Herrin, IL 2 sites, CBO, Aging Network 46 De facto teams Coordinating existing systems to better serve older adults and their caregivers Hospital Primary Care Physician Aging Network Nontraditional Resources Client Home Health Community Based Agencies Pharmacy Skilled Nursing Facility Caregivers 47 Information interface • Area Agencies on Aging • Community-based Care Transitions Programs • Home health agencies – Telehealth • • • • Patient EMRs Primary Care Physicians Pharmacy SNF 48 PERFECT • • • • • • Plan of Care Equipment/Supplies Reconciliation Follow-up with physician Expectations met? Coordination of care – Non PCP coordination (community services, DMEs, etc.) • Therapy 49 Advancing Interoperable HIE – development and adoption of HIT standards 50 Advancing Interoperable HIE Identify need for electronic HIE Ballot Needed Standards Regular/On-going communication with CMS, ONC, HIT Policy and Standards Committee regarding need for and status of standards Fill gaps in standards: Work with ONC S&I, HL7, other Standards Development Organizations (SDOs) 51 Identify gaps in HIE standards S&I’s Longitudinal Coordination of Care WG • Initiated in October 2011 as a community-led initiative with multiple public and private sector partners • Advances interoperable health information exchange (HIE) on behalf of LTPAC stakeholders and promotes LCC on behalf of medically-complex and/or functionally impaired persons • Goal: identify standards that support LCC that are aligned with and could be included in the EHR Meaningful Use Programs – Identified content standards that were included in the EHR Meaningful Stage 2 Programs for Functional and Cognitive Status. – Influence Meaningful Use Stage 3 standards for HIE for transitions in care and care plans. 52 S&I’s Longitudinal Coordination of Care WG Longitudinal Coordination of Care Workgroup LTPAC Care Transition SubWorkgroup Patient Assessment Summary SubWorkgroup* • Identifying the key business and technical challenges that inhibit long-term care data exchanges • Establishing the standards for the exchange of Patient Assessment Summary (PAS) documents • Defining data elements for LTPAC information exchange using a single standard for LTPAC transfer summaries • Providing consultation to transformation tool being developed by Geisinger to transform the noninteroperable MDSv3 and OASIS-C into an interoperable clinical document (CCD+) *Retired December 2012 53 • Providing subject matter expertise and coordination of SWGs • Developing systems view to identify interoperability gaps and prioritize activities Longitudinal Care Plan SubWorkgroup • Identifying and developing key functional requirements and data sets that support exchange of care plan, including home health plan of care. Coordinating standards efforts Focused on standards needed for Transitions of Care (ToC) and Care Plans. Collaborators include: – – – – – – ONC S&I ToC, esMD and LCC WGs HL7 Structure Documents and Patient Care Workgroups IHE Patient Care Coordination Technical Committee AHIMA ASPE MA IMPACT Program Deliverables include: • HL7 Balloted standards: C-CDA refinements for exchange of: Functional Status, Cognitive Status, and Pressure Ulcer Content, and LTPAC Assessment Summary Documents. Balloted standards for Questionnaire Assessments. • IMPACT TOC Data Set • Care Plan Glossary • Recommendations to HITPC RFC Stage 3 MU 54 IMPACT Transfer of Care CDA Document 55 LCC WG Care Plan Glossary and Use Case 56 Lantana will work with LCC to make and ballot HL7 CDA IGs Shared Care Encounter Summary: • Office Visit to PHR • Consultant to PCP • ED to PCP, SNF, etc… Consultation Request: • PCP to Consultant • PCP, SNF, etc… to ED Home Health Plan of Care (with esMD Digital Signature) Care Plan Transfer of Care: • Hospital to SNF, PCP, HHA, etc… • SNF, PCP, etc… to HHA • PCP to new PCP Mar 13 Apr 13 May 13 Jun 13 Jul 13 Aug 13 Sep 13 Oct 13 Dec 13 LCC WG Timeline: Mar 2013 – Dec 2013 LCC Stakeholder Engagement: Lantana, IMPACT, ASPE, NY, CMS LCC & HL7 Care Plan Coordination LCC Care Plan Use Case 2.0 Development & Consensus ToC IGs Development (Transfer Summary, Referral Note, Consult Note) HL7 Ballot & Reconciliation Care Plan/ Home Health Plan of Care IG Development HL7 Ballot Package Development Pilot Identification & Engagement IMPACT ToC Pilot Monitoring IMPACT Care Plan Pilot Monitoring Milestones NY Pilots Monitoring Lantana Contract Awarded Care Plan IGs Complete ToC IGs Complete IMPACT Go-Live FACA LCC WG Briefings HL7 Intent to Ballot Due HL7 Project Scope Statement Due 58 HL7 Fall Ballot Open NY Care Coordination Go-Live HL7 Final Ballot Due HL7 Ballot Publication Contacts Lawrence.Garber@reliantmedicalgroup.org Tomalley@Partners.org drbruss@gmail.com walter_rosenberg@rush.edu Jennie.Harvell@hhs.gov 59