Autism & its Treatments Janna Hoskin, BA (Psychology); BMus (Composition), ABA Therapist V1.0 ©2003, Janna Hoskin First of all, who am I? My name is Janna Hoskin. I have a BA in Psychology and a BMus in Composition. I have been working with children who have been diagnosed with pervasive developmental disabilities such as autism, or autistic disorder, for three years, and have been researching the disorder for nine years. My interest in autism began when I was twelve years old, when I first saw the movie Rainman. But autism is so much more than Rainman. Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods What is Autism? Autism is a neurological disorder that causes communication problems and developmental delays. It can include dietary and sensory problems. It is not a psychological problem. It is not a choice. Autism is not a sure sign of brain damage or mental retardation. Autism is a spectrum disorder. Every individual who has autism is different from every other individual who has autism, just as we ‘NT’s (neurotypicals) are different from one another. Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Dispelling the Mythology of Autism Myth #1 – Individuals with autism never make eye contact; they do not look at you. Myth #2 – Autism is a mental illness. Myth #3 – Progress means that a person doesn’t have autism. Myth #4 – Individuals with autism do not speak. Myth #5 – Autism can be outgrown. Myth #6 – Individuals with autism cannot learn; autistic children are retarded. Dispelling the Mythology of Autism Myth #7 – Underneath all of the difficult behaviours is a normal person; inside a child with autism is a genius. Myth #8 – Individuals with autism are very manipulative. Myth #9 – Individuals with autism could talk if they wanted to. Myth #10 – Individuals with autism can’t smile; cannot show affection; do not relate to peers or adults; do not want friends; do not learn from their environment or pick up on cues from others. Dispelling the Mythology of Autism Myth #11 – When a person with autism does not respond to a question/direction to which he has shown a previous correct response, he is being stubborn, non-compliant, and/or obnoxious. Myth #12 – Autism is rare. Far from being rare, autism is actually on the rise. People have many different theories about why this is, but whatever the reason, it is out there. Myth #13 – Autism is caused by poor parenting and a lack of initial bonding. Dispelling the Mythology of Autism Myth #14 – Autism can be cured. Myth #15 – All autistics have special abilities, like in Rain Man. Myth #16 – Autistics have no sense of humour. Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Treatment: Son-Rise What is Son-Rise? – The Son-Rise treatment method involves taking the child into a special playroom that is free of distractions, and joining the child in his or her actions in an attempt to create a connection with the child and to let the child know that he or she is loved and accepted, unconditionally. Does it work? – The anecdotal evidence is overwhelming, and can be read in the information packages sent out by the Option Institute. Treatment: Son-Rise So what’s good about it? – The lack of distractions in the workroom; – The rewards given for positive behaviours; and – The apparent aid in interpersonal relationships that the required self-analysis brings. Basically, the method consists of a lot of situational teaching that is instantly generalized by the teachers. So what’s bad about it? – The emphasis on the parents’ attitudes as being key to the child’s “recovery”. – The attitude that this method can cure autism. – The underlying assumption that the child can choose to ‘come out’ of autism, and will do so, given enough love and understanding. This is far too much like the Bettelheim “Refrigerator Mother” theory for my liking. Treatment: Son-Rise What do I think of this method? – It won’t damage the child or family in any way. – It is also unlikely to be the catalyst in a child’s ‘recovery’. – It is ridiculously expensive to take the training. Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Treatment: FloorTime What is FloorTime? – FloorTime is basically a form of non-invasive play therapy. Does it work? – I am currently unaware of any scientific documentation supporting the use of FloorTime as a treatment for ASD, but I am sure that there are many parents who stand by it as an excellent treatment method. Treatment: FloorTime So what’s good about it? – The emphasis on human connection; – The idea that it doesn’t matter so much when a skill is achieved, so long as it is reached in an appropriate manner, with appropriate pre-requisite skills; and – The emphasis on using appropriate play to build on interpersonal relationships, communication skills, and so on. This method employs a lot of situational, generalized teaching, and relies on the human element for treatment. So what’s bad about it? – The ideas about the inability of child and parent to bond properly. – The attitude that this is the only appropriate way to treat ASD, and that behavioural methods are somehow cruel. – The lack of emphasis on life skills and academic skills that children will require when they eventually attend school. Treatment: FloorTime What do I think of this method? – The FloorTime method is not an appropriate standalone treatment for autism. – It may be an acceptable addition to a child’s program. Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Treatment: ABA What is ABA? – ABA, or Applied Behavioural Analysis, is the most scientifically valid treatment for autism at this time. – This means that the original study had very positive data, and that since that time, the data has been reproduced with other children in other areas with other scientists. So tell me about this study. – In the Experimental Group, 9 of the 19 children lost their diagnosis and were placed in typical classrooms at school. 8 of the remaining children were placed in classes for language delayed children. Only 2 children from the Experimental Group were placed in classes for retarded and autistic children. – In the Control Group, of which none were placed in typical classrooms at school: 8 were placed in classes for language delayed children, and 11 were placed in classes for retarded and autistic children. – On top of this, the Experimental Group children’s testable IQ scores rose, while the IQ scores of the children in the Control Group either fell or remained the same. Treatment: ABA Well, so what exactly is ABA? – ABA is actually an umbrella term that describes an approach to teaching individuals with disabilities that is based on principles espoused by the behaviourist branch of psychology. – It is useful in treating people who have had strokes, children with mental retardation, autism, and other disorders. – Its effectiveness is not dependent on age, but, as with anything, tends to work best and quickest when applied immediately upon discovering that there is a problem. Treatment: ABA How does ABA work? Describe a session for me. More Information on ABA. – Because ABA is science-based, it is important to keep data on the events that take place during a drill. – Generalization is vital to a good ABA program. Does it work? – There is a lot of anecdotal and scientific evidence out there to support ABA as a primary intervention for autism. Treatment: ABA So what’s good about it? – The lack of distractions in the workroom; – The rewards given for positive behaviours; and – The focus on skill acquisition. Basically, ABA is an excellent teaching method that has been described to me in the past as being ‘good parenting’. So what’s bad about it? – The abuse of behavioural methods that has gone on in the past and continues in some areas. Good ABA does not make use of aversives (punishment) and is not abusive. – The attitude that this method can cure autism. – The focus on table-time that is not generalized appropriately or at all in some programs. – The refusal of some providers to acknowledge the possibility that some behaviours must be treated using sensory techniques, rather than behavioural techniques. Treatment: ABA What do I think of this method? – ABA is the best educational method we currently have for ASD. – That being said, the idea that without ABA a person will be “lost” to the world is ludicrous. – I do not agree that ABA is the only proper way to go, though I do think that the principles of ABA should be the basis for any appropriate intervention. Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Topics of Discussion Basic Definition of Autism Dispelling the Mythology of Autism Treatment: Son-Rise Treatment: FloorTime Treatment: ABA Other Treatments and Communication Methods Other Treatments and Communication Methods Topics in this section will include: – Sensory Integration Therapy – Auditory Integration Therapy – Music Therapy – Irlen Lenses – Dietary Intervention (GFCF diet) and Nutritional Supplements – Facilitated Communication – Picture Exchange Communication System – Speech as Communication – Sign Language as Communication Other Treatments and Communication Methods Sensory Integration Therapy – SIT should be administered by, or need for SIT should be assessed by, an Occupational Therapist. Auditory Integration Therapy – AIT generally consists of a prescribed amount of time spent each day listening to a recording that uses particular combinations of sound waves to retrain the ear mechanisms. Music Therapy – Music Therapy can be an excellent addition to a treatment program, but the therapist should be well-versed in your method of choice (in other words, if you are running an ABA program, your music therapist should have some experience working as an ABA therapist). Other Treatments and Communication Methods Irlen Lenses – These are coloured glasses that filter out certain frequencies of light so that visual processing is easier. Dietary Intervention (GFCF diet) and nutritional supplements – The gluten-free/casein-free diet is commonly touted online as an amazing intervention for autism. – Some nutritional supplements can help, but should not be administered without supervision of a doctor. Other Treatments and Communication Methods Facilitated Communication – Facilitated Communication has many advocates and many detractors. – Perhaps its greatest strength lies in the fact that practitioners assume competence of their clients. – Its greatest weakness lies in the generalized assumption that all non-verbal individuals require this method in order to get their voice heard. – It can also be very difficult for clients to become independent in their typing, which is what it will take for this method to become universally accepted. Picture Exchange Communication System – Picture Exchange Communication System is the use of pictures to indicate needs or wants. Other Treatments and Communication Methods Speech as Communication – Speech is perhaps the method most parents desire for their children. Sign Language as Communication – Sign Language is an excellent alternative to speech, and is also often a good stepping-stone to vocal communication. Personal Thoughts on Treatment for ASD My opinion on autism treatment is very different from that of many professionals, and even many parents. I believe that the very first thing a program should deal with is sensory issues, followed closely by finding a communication method that is effective for the individual. Once a sensory diet and communication method is in place, an ABA program can (and should) begin. This is when testing can be done for biomedical interventions (most of which I did not cover in this presentation, as I have not researched them adequately). The most important thing to remember about autism is that you can’t make generalizations about it. No two individuals are quite the same, and autism affects different people in different ways. It cannot be ‘cured’, though autistic individuals are quite capable of learning coping strategies and methods that will help them get through life independently.