INSTRUCTION MANUAL Dementia Care Planning using Electronic Care Coordination May 2014 Prepared for Monash City Council CONTENTS 1. Project outline 2. Electronic Care Coordination manual 3. Person Centred Approaches material 4. Dementia Management—Key Worker Guide 5. Advance Care Planning Guide 6. PCEHR Planning Guide 7. Gotomeeting Organiser Quick Reference 8. s2s demonstration module guide 9. Your Support Plan – consumer pamphlet 10. Planning the Plan – a guide for practitioners 11. Resource list All these documents are available on the Inner East Primary Care Partnership website. Websit e : www.iepcp.org.au Prepared for Monash City Council Project Title: Dementia Care Planning and Electronic Care Coordination Version # Date 1 24 September 2013 2 15 January 2014 Comment (to be completed with each new version Initial draft to be updated for November 2013 SCAG meeting This version reflects the current (ongoing) project. Project Objectives To improve inter-agency planning and management for clients with dementia To involve the client and the carer(s) efficiently in the inter-agency care planning process To use the Electronic Care Coordination (ECC) module to support this. Project Background This project has its origins in a number of themes that have been developing in the IEPCP over the past couple of years. They were: Developing the practices, processes, protocols and systems (PPPS) for the electronic care coordination module embedded in the s2s e-referral system These PPPS are to be found in the Electronic Care Coordination Manual A thrust to encourage person centred practice It has become increasingly apparent that dementia is an area in which the IEPCP has done relatively little apart from the occasional seminar/forum Dementia is, of course, a major growth area and certain to increase greatly in the foreseeable future –Alzheimer’s Australia forecasts that three million Australians will develop dementia between 2012 and 2050i Monash, Whitehorse and Boroondara and rank third, fourth and fifth in prevalence of dementia (2013) with Manningham twelfth (out of 79 LGAs in Victoria)ii The health sector is heavily dependent on carers: o 2.6 million unpaid carers in Australia iii o estimated annual replacement value of care provided in 2012 is over $40.9 billioniv o it is estimated that carers provided 1.32 billion hours of unpaid care in 2010v There is a recognition in the IEPCP that to date carers have been insufficiently involved in IEPCP projects People diagnosed with dementia face multiple challenges including: o Driving ability o Legal Issues – e.g. Enduring Powers of Attorney o Advance Care Planning o Services, supports and residential care Department of Health is very interested in increasing use of advance care planning (ACP) Although dementia does not seem to be a specific target for ACP, the benefits of ACP soon after diagnosis should be self-evident – this applies both for the client and the carer There is a strong argument for ‘normalising’ ACP e.g. in Barwon the age of 70 is when clients are routinely encouraged to draw up an ACP Eastern Palliative Care is also very interested in having appropriate agency staff draw up ACPs in great numbers earlier – often clients come to the notice of Eastern Palliative Care too late for there to be any great benefit from an ACP Eastern Palliative Care reports that very few of their terminal dementia patients have an ACP There is provision in the Personally Controlled Electronic Health Records to record the Advance Care Directive Custodian(s). The approach to the Service Coordination Operational Plan was re-organised in 2013. It comprises Goals 1-4, which deal primarily with core service coordination business. Goal 5 lists special projects that use Service Coordination PPPS. Agencies were asked to register their interest in various strategies and initiatives and the better management of dementia using ECC was identified as the top priority by both the Service Coordination Advisory Group and the Practitioners’ Network. Links with IEPCP Strategic Plan This initiative is completely in accordance with the IEPCP vision for member agencies to work in partnership and collaboration to improve the health and wellbeing of our community. The main guiding principle is Person Centred/Consumer Driven Practice and capacity building applies across leadership, partnership, workforce, resourcing and advocacy. Project Benefits Ensuring the inter-agency care plan is a centrally accessible living document A more systematic and better organised approach to planning the management of dementia e.g. drawing up Advance Care Directives All participants being aware of the plans and actions of others engaged in care of the patient Case Conference procedures (particularly using Gotomeeting) that optimise client and carer involvement Linkages to associated health and support systems e.g. PCEHR, Advance Care Directives Organisation and governance The initiative will be managed by a Project Control Group and facilitated by the Inner East PCP. The Project Control Group will report to the Service Coordination Steering Committee. Membership consists of the following: Monash City Council (lead agency) Sanderson & Associates Alzheimer’s Victoria RDNS Eastern Palliative Care Villa Maria Manningham CHS Christopher Foley-Jones – Facilitator – Inner East PCP GPs will also probably be involved but are unlikely to want to be on the PCG. It is envisaged that the PCG meet monthly initially (two meetings), then two-monthly (one meeting) followed by three-monthly meetings. This phase of the project is scheduled for completion by the end of calendar year 2014. Small working parties (2-5 people) were formed to deal with the following: 1. Project design – pathways development/checklist, education, advance care directives etc. 2. Project implementation – client engagement, staff training 3. Technology group – Electronic Care Coordination registration and training, Person Centred Training and Personally Controlled Electronic Health Records These meet as determined by the working parties themselves. The IEPCP provides secretarial functions and continuity to all working parties. Project stages 1. Initial planning 2. Project design 3. Technological elements 4. Implementation 5. Evaluation Project Deliverables 1. 2. 3. 4. 5. 6. 7. 8. Project outline – this document Gantt chart Working party agendas and schedules Protocols and documentation for participants: a. Project outline b. Electronic Care Coordination manual c. Person Centred Approaches material d. Dementia Management – Key Worker Guide e. Advance Care Planning Guide f. PCEHR Planning Guide g. Gotomeeting Organiser Quick Reference h. S2s demonstration module guide i. Resources list Training Implementation Conference paper on this project Evaluation report Geographic catchment area: IEPCP catchment – focus in first instance on Monash. Following that, Whitehorse and Manningham. Boroondara at a later date as they will be involved in a related but separate project. Partners involved Partners in this project are: Monash City Council Sanderson & Associates Alzheimer’s Victoria RDNS Eastern Palliative Care Villa Maria Eastern Palliative Care Manningham CHS Christopher Foley-Jones of the Inner East PCP will act as facilitator for the PCG and working parties GPs will also be involved but will probably not be on any working parties. Timelines Project commencement October 2013 First PCG meeting October 2013 Second and subsequent PCG meetings – see Gantt chart Working party meetings – TBD by working parties – suggestions on Gantt chart Service Coordination Steering Committee meets – 27 November 2013 Progress report early 2014 – for first SCAG meeting in 2014 Conference paper to be presented 22 May 2014 Mid-2014 progress report Evaluation report November 2014 This phase project to be completed by end 2014 Risk management Key players may not wish to be involved – initiative can proceed without them but the project would be diminished. Initiative may become larger/more complex than originally anticipated. If so, extend timelines. Finding funding for evaluation – either identify alternative sources or conduct an in-house version. BUDGET No fixed budgetary provision but the IEPCP will cover costs associated with Electronic Care Coordination e.g. Gotomeeting fees, minor equipment, training costs. Funds may have to be found for independent evaluation. Staffing costs IEPCP and agency time Start Date: October 2013 Other costs Training, equipment, possibly evaluation costs Completion Date: December 2014 Electronic Care Coordination Manual January 2014 Prepared by: Date: Submitted to: IEPCP Electronic Care Coordination Project Control Group Manual revised 21 January 2014 IEPCP Service Coordination Advisory Group Electronic copies available on http://www.iepcp.org.au/member-resources/resources-links 2 Contents 1. Introduction 2. What is Share Care/Case Planning/Electronic Care Coordination? 3. Conditions of use a. Confidentiality and standards b. Agency competence 4. Scope 5. Client selection 6. Key Worker selection 7. Client information a. One Page Profile b. Thumbnail Sketch c. Client Background Documentation 8. Plan Writing Guide 9. Inter-agency procedures 10. Case Conferences 11. Gotomeeting webinar package 12. Training program 13. Further information 14. Templates a. Client Selection Scoresheet b. Template for inviting non-s2s participants c. Screenshot of blank Electronic Care Coordination module Acknowledgments Members of the Project Control Group who originally developed these procedures and compiled this manual were: Christopher Foley-Jones Kylie Durant Belinda Johnson Fiona Macrae Tony Nossek Inner East Primary Care Partnership Manningham Community Health Service City of Whitehorse Royal District Nursing Service Villa Maria Subsequent amendments have come from a number of sources but particularly Ayesha Fathers of the City of Monash, Kylie Draper of Eastern Palliative Care and Rod Amos of Inner East Melbourne Medicare Local. Deb Watson of Sanderson & Associates contributed information on Person Centred approaches. 3 1. Introduction This manual sets out procedures for implementing electronic care coordination using the module developed within the ESCS/s2s e-referral system through the Statewide E-care Planning Project, which was completed in December 2011. These procedures were developed by the Inner East Primary Care Partnership Electronic Care Coordination Project Control Group, which was established for two primary purposes: To develop procedures setting down how to use the s2s module for the purposes of inter-agency electronic care coordination To develop a process to encourage wide-spread use of electronic care coordination, with appropriate clients, within the IEPCP catchment and beyond. In doing this, the focus was initially on the most complex clients in the aged care sector. However, this does not preclude other applications either within the aged care sector or in other sectors. The mental health sector is one area which frequently plays a particularly important role for more complex aged care clients. A pre-condition for obtaining access to the s2s electronic care coordination (ECC) module is an undertaking that participating agencies will observe the conditions and procedures laid down in the manual, act in a professional manner and observe all necessary confidentiality in all matters to do with electronic care coordination. Note that ECC offers a central information repository accessible, with consent, to all interested parties. It is the preferred option for inter-agency care coordination to the point where non-electronic approaches have not been developed as they are seen as far too cumbersome and requiring too much staff time. The Infoxchange manual titled ‘s2s eReferral: Quick Reference User Guide – Care Planning’. contains a more technical description of the Electronic Care Coordination Module and is recommended reading. The present manual contains the practice-related material necessary to carry out effective electronic care coordination. 2. What is Shared Care/Case Planning/Electronic Care Coordination? Shared Care/Case Planning is the term used in the 2012 Victorian Service Coordination Practice Manual (VSCPM). Previously, this process was known as inter-agency care planning or care coordination. Here it is referred to as Electronic Care Coordination. Section 3.6 of the VSCPM contains detailed information on this process – below are a couple of the more relevant excerpts. The overall principles of Shared Care/Case Planning include: a proactive rather than reactive approach for people with multiple support needs services are planned and delivered, based on best-available evidence in the most timely and effective way 4 services have in place person-centred practice and a coordinated and integrated approach support for consumers to play an active role in co-ordinating their services providing information on the range of service options available goal-directed planning nomination of a main contact person, known as the Key Worker, to support the Care/Case plan processes to facilitate communication between all participants monitoring and review processes compliance with current legislation and service provider quality standards. Benefits of Shared Care/Case Planning: provides consumers with a single point of contact assists the consumer in setting and achieving goals and enables these to be made known to all service providers involved encourages the consumer to be actively involved manages long-term service delivery in a clear, concise way provides an essential checklist to ensure continuity of service delivery provides a way of documenting essential information to be shared by others, including life saving actions for emergencies encourages a team approach, with the consumer at the centre focuses on being proactive rather than reactive increases consumer and carer awareness of support services available, and how and when to access them facilitates effective monitoring of the consumer’s health and social wellbeing, and diversity needs can be identified and taken into account. With Electronic Care Coordination, the s2s module provides: a central, easily accessible information repository an efficient way of conducting case conferences (on-line). [The diagram below shows the principles underlying Shared Care/Case Planning or, in this case, Electronic Care Coordination. Note that this is a diagrammatic representation of the 2012 SCTT Shared Support Plan as adapted for the s2s ECC module.] 5 ELECTRONIC CARE COORDINATION AGENCY AGENCY AGENCY Interaction Interaction Interaction CARE PLAN SUMMARY CARE PLAN SUMMARY CARE PLAN SUMMARY CLIENT ONE PAGE PROFILE KEY WORKER CARE PLAN SUMMARY CARE PLAN SUMMARY CARE PLAN SUMMARY Interaction Interaction Interaction AGENCY AGENCY AGENCY 3. Conditions of use Confidentiality and standards Users of the s2s electronic care coordination module are required to observe the relevant legislation and good practice resources including: 6 • • • • Information Privacy Act 2006 (Vic) Health Records Act 2001 No. 2 (Vic) EMR End User Licence Agreement (EULA) and associated documents OEHCSA Memorandum of Understanding and IEPCP Memorandum of Understanding • Victorian Service Coordination Practice Manual 2012, associated documents and subsequent releases • Victorian Department of Health Service Coordination Tool Templates 2012 and subsequent releases. • And, in particular, the practices, processes, protocols & systems (PPPS) contained within this manual. Agency requirements In order for clients to be assured of receiving appropriate care and to ensure that other participating agencies can be confident that a given agency will use the Electronic Care Coordination Module appropriately, agencies wishing to use the module must: Participate in training on use of the module and the processes underlying electronic care coordination - provided by the IEPCP Undertake to observe the provisions of this Manual Be certified by the IEPCP as having met the above conditions and then Be activated as users of the module by Infoxchange. Note that without activation of the module for a given agency it cannot be used by that agency. Also note that in the event of any issues arising in relation to usage of the ECC module, such issues will be addressed by the IEPCP Service Coordination Advisory Group in the first instance. 4. Scope The s2s care coordination module was intended primarily for use by aged care agencies dealing with more complex clients. Notwithstanding the above, other agencies not in the aged care sector but who are involved in care of the client may be invited to participate in care coordination plans. As mentioned earlier, the most obvious need in the case of complex aged care clients is to be able to interact effectively with the mental health sector. Agencies must be satisfied, particularly in the case of shared care, that the other agencies they are dealing with will behave in an appropriate professional manner. A pre-requisite for use of the module is this appropriate training and competence. When an agency has achieved this, access to the electronic care coordination module must be activated by Infoxchange on recommendation by the Inner East Primary Care Partnership. 7 The agencies that will derive the greatest benefit from the module are thus registered s2s users. Any agency wishing to be involved in ECC may express an interest to the IEPCP to participate. Non-s2s-users may participate in ECC but will have more limited access to the module. 5. Client selection It is recommended that the Client Selection Scoresheet below be used to select clients in order to target the more complex clients. However, agencies should feel free to use an ECC plan wherever they consider this to be of benefit to the client. It is anticipated that only a very small percentage of the total client population will be beneficiaries of an ECC plan. The purpose of the Shared Support Plan, on which ECC is based, is to coordinate services for clients who may have a range of characteristics including: 1. Are being seen by more than one agency and more than one discipline 1 2. Are complex clients2 in that they have multiple issues or problems that need to be addressed concurrently, and 3. Who are likely to experience a better outcome if the care and services they receive are coordinated across agencies and over time. Providing that: 4. The client/carer sees a need or benefit from becoming involved in a formal, documented inter-agency care coordination process 5. There is sufficient time to put together a thorough care coordination plan i.e. the client is not in a crisis situation that demands immediate resolution. Note: The Client Selection Scoresheet overleaf should be regarded as a provisional tool. Currently the cutoff point at which a client might be considered appropriate for an ECC plan is 7+. The cutoff point will become clearer when more experience has been gained. It is therefore recommended that agencies keep scores for ECC clients (using the Scoresheet) with evaluation and research purposes in mind. It is also recommended that key workers treat the Client Selection Tool as a resource purely for their own guidance and do not share it with the client as some elements could be controversial. Note that clients with dementia may automatically qualify for an ECC plan regardless of their score on the Scoresheet. 1 Early thinking was that the establishment of a Care Coordination Plan might be triggered when the client was receiving three or more services provided by two or more agencies – current thinking is that care coordination is required as soon as two or more services are involved. There are a number of ways in which such care could be coordinated , including using a Care Coordination Plan. The nature of the client’s situation is more important than the number of services or agencies involved and will determine what documentation/procedures are required. 2 The Client Selection Scoresheet was developed within the IEPCP to identify a small group of clients with complex needs using more than one service and for whom setting up an Electronic Care Coordination Plan would be of significant benefit. 8 CLIENT SELECTION SCORESHEET – ELECTRONIC CARE COORDINATION – MAY 2013 1 People using 2 or more services – does not include GPs 2 People with multiple disabilities (health, social, cognitive) needing assistance in a number of areas of their life People with frequently changing or fluctuating needs People from CALD backgrounds where language or cultural or family expectations means that traditional service responses are seen as not entirely appropriate, or at least need modification or, where they are unable to understand the nature of services being offered People who have an acute decline in ability to self- manage People who have experienced a sudden deterioration in their physical condition 3 4 5 6 7 8 9 10 11 Situation where there are two ‘clients” – the client and the carer or significant other, both of whom have needs that are problematic People who are vulnerable and in reality live alone and have no effective or immediate support from family or friends, particularly those with confusion and memory loss People with behaviours others find difficult and/or don’t want assistance from services or perceive the need for assistance when there is objectively a clear need People with serious psychiatric/psychological issues or serious intellectual disability People experiencing elder abuse issues If the score is 6 or more, client is probably suitable for an ECC plan Weighting 1 Score 1 1 1 1 1 1 or 2 1 or 2 1 or 2 1 or 2 1 or 2 TOTAL Note: Where there is an option to score as either 1 or 2, the practitioner is required to make a judgment call on the severity of the condition concerned. Also note that in some cases the client’s situation may be sufficiently complex to warrant an ECC plan even though services are being provided by only one agency. 6. Key Worker Selection There has been considerable debate over how a Key Worker should be chosen and what responsibilities a Key Worker exercises. The Key Worker (as used here): 9 Would normally initiate a care coordination process (however, another worker may bring an appropriate client to the attention of the Key Worker) Has the primary task of organising the Care Coordination process including documentation and case conferences Provides a central contact for clients, carers and service providers insofar as the care coordination process is concerned. Plays a central role in determining the shape of the ECC Plan in that he/she should write the initial draft of the One Page Profile, which provides the central core on which the ECC Plan is constructed. The Key Worker’s responsibilities do not: Include those of a Case Manager (although the Key Worker may also be a Case Manager in his/her own right) Imply any responsibility for ensuring that services provided by others meet the client’s/carer’s needs Include providing assistance to clients/carers for day-to-day service access and general health and welfare issues Confer any responsibility for or authority over actions of case managers or other workers who are dealing with the client/carer. Notwithstanding the above, the Key Worker may also act in his/her own right as a Case Manager and may provide intensive assistance to clients/carers to navigate the health and welfare system. However, such functions are not part of the Key Worker role, which is purely facilitative. Selection of the Key Worker may arise under one of the three scenarios: 1. The Key Worker may be the case worker for the particular client. In this scenario, the Key Worker may still remain involved with the client as a service provider. 2. Where there is no case manager. Again, the person who becomes the Key Worker may provide services in his/her own right. 3. If it is unclear who should act as Key Worker and the client has no preferences, then the agency willing to perform that function and which is providing the greatest number of services will act as Key Worker. 4. The client may wish to nominate the Key Worker. Once the Key Worker has been identified, the next tasks are for the Key Worker: 1. To organise the ECC plan (on s2s) by completing: a. The One Page Profile b. Client Background Documentation c. The ‘Reason for Plan’ (based on a Thumbnail Sketch) 10 d. Preliminary Issues and Goals (in conjunction with the client) 2. Invite participants to any required Gotomeeting webinars or Case Conferences. 3. Organise and chair Case Conferences [See Section 9 on Inter-agency procedures for step-by-step instructions] 7. CLIENT DOCUMENTATION One Page Profile Thumbnail Sketch Client Background Documentation ONE PAGE PROFILE The One Page Profile (1PP) is the foundation stone of a good Electronic Care Coordination (ECC) plan. A well-written 1PP will seamlessly lead to an ECC plan that is logical, clear and effective and easy to put together under the various headings laid down elsewhere in this Manual. The main defining characteristic of the1PP is its person-centred approach. The writer may use any client-centred /person-centred tools available but those developed by Sanderson et al. are particularly user-friendly, simple and thus recommended. Active Service Model principles should also be observed in writing an ECC plan. Staff trained in the Flinders approach should find the ECC person-centred format very familiar. Another defining characteristic of the 1PP is its brevity – it should be no more than one page in length. The 1PP will contain material that provides a particular focus on aspects that make an ECC plan meaningful and individualised and will motivate the client towards compliance. This means a focus on client needs and aspirations rather than on client deficits. 1PPs can be completed at any stage of client care but for ECC purposes we are looking at a relatively high level 1PP. A 1PP written by a Key Worker will be more general than a later version where a Case Manager has a more detailed knowledge of the client. What is required is the information necessary to set up the initial inter-agency care plan, not ongoing day-to-day management. In broad terms, the 1PP covers what is important to the client. The Clinical Background Documentation (CBD), which is described below, covers what is important for the client. Taking into account what is important to the client will make it possible to put into effect the strategies necessary to achieve what is important for the client. Use the format provided by Sanderson et al. to draw up the 1PP. With dementia, for example, the important for items should routinely include setting the plan up as a hedge against future cognitive incompetence, writing advance care plans, providing carer education, checking fitness to drive, checking personal security etc. The important to items will determine how agencies go about achieving those goals. The client may, of course, have a whole set of his/her own goals important to them. The Key Worker is responsible for the initial draft of the 1PP, which will be lodged in the Documentation section on the s2s module very early in the ECC process. Other participants will use it as a starting point for their conversations with the client and as a source of leads when looking to 11 develop appropriate goals together with matching strategies. Other participants may add to/amend/correct the 1PP but should always ensure that their changes are clearly identifiable e.g. using different coloured print. The 1PP provides essential personal, individualised background information for other participants while obviating the need for the client to have to repeat their whole story. THUMBNAIL SKETCH Thumbnail Sketch This is a brief paragraph enabling identification of the person as an individual. It should contain basic demographic information such as (age, marital, COB, residence, major health issues and issues giving rise to a care plan. See example: Angelina Pomodoro, 53 year old widow of Italian background, has advanced multiple sclerosis which severely impacts her independence and enjoyment of community activities. Her aids and equipment currently do not meet her needs. She also wishes to remain living in her unit but will need additional care and strategies as her son will be working interstate. It is always useful for the Key Worker to write out the Thumbnail Sketch as it distils the most important information about the client into a logical format. It provides the essential information on which the ECC plan is built and which other participants need to develop their particular strategies. The Thumbnail Sketch, either in its entirety or abbreviated, should be used to complete the ‘Reason for Plan’ section on the ECC plan. Much of the information in the Thumbnail Sketch will be derived from other documentation on file e.g. Wellness Plans, SCTTs, previous s2s referrals. The Key Worker may either use pre-existing material such as the Living at Home Assessment Record Template, case notes if in a suitable format or write a Clinical Background Document (see the following pages). There may also be some elements drawn from the 1PP. CLIENT BACKGROUND DOCUMENTATION The Key Worker may choose to write a Client Background Documentation in its own right or attach relevant information in the Supporting Documentation area on the s2s module. Those agencies that complete a Living at Home Assessment Record Template (derived from SCTTs) should include that as the sole item of Client Background Documentation. Other agencies may wish to attach case notes if in a suitable format. Below are elements that should be taken into account when providing Client Background Documentation (CBD). This is not an all-inclusive list. EXAMPLE – THUMBNAIL SKETCH AND BACKGROUND DOCUMENTATION Below is an example of Thumbnail Sketch written using the above guidelines followed by the kind of background information from which the Thumbnail Sketch would be derived: Thumbnail sketch* 12 Margarita Mintoff is an 80 year old woman of Maltese descent and has a very good command of English. She lives with an 82 year old husband with whom she has a very difficult relationship. She has five grown-up children and has lived in the family home for over 30 years and lived in the area all her married life. She has multiple health issues including Type 2 diabetes and osteoporosis. Margarita is experiencing frequent memory loss,some confusion, depression and irritability – it is strongly suspected that she is suffering early dementia. ……………………………………………………………………………………………………………………………… Current situation* Living situation, where, with whom, financial issues, conditions etc. Margarita lives with her husband in a modest house which suffers neglect and disorder but not to the point of hoarding. An adult son who is has a mental illness lives in a granny flat in the back garden. She has four other children but they play a minimal role in her care and have little contact. Her relationship with her husband is very difficult with a great deal of squabbling but no clear evidence of physical abuse. Margarita states that her husband’s behaviour worsens throughout the day, and experiences significant verbal abuse. Health issues* Physical and mental health issues including cognition and competence. Margarita has multiple health issues; a right below the knee amputation, Type 2 Diabetes, peripheral vascular disease, osteomyelitis in her sacral wound, neuropathic wound to R) 5th toe and rheumatoid arthritis. She has a history of deep vein thrombosis and osteoporosis. While Margarita still seems competent to make own decisions regarding finances, health and wellness and lifestyle this may not be the case much longer. Supports* List both agencies and others providing support to the client RDNS daily visits for wound care Whitehorse Council provide 3/7 days personal care and home care 1 day per week Commonwealth Care Respite Centre fund 2/7 personal care Just for You agency provide 2 hours home support ADL’s Margarita needs full assistance with all aspects of personal care, home support and maintenance, and meal preparation. At present, Margarita can tidy up and complete washing of light dishes. Margarita has identified that getting meals is difficult for her. She relies on her husband to get her evening meals for her, however states that often he is ‘unwell’ by the end of the day and unable to prepare meals. She is also scared she will fall again in the shower. Mobility Include personal mobility capacity and constraints and also transport issues. Margarita ambulates with a prosthetic lower leg and uses a gutter frame indoors and an electric wheelchair outdoors. Margarita is able to independently transfer with supervision. As Margarita uses an electric wheelchair to get to church and the local shops, when it is raining these activities are 13 forfeited. Margarita also has a gutter frame which she uses occasionally. She does not like using the frame, as there is no tray for her to be able to carry items on. Margarita requires pressure care equipment to maintain skin integrity. She has a high profile ROHO cushion on her wheelchair,and also has an air mattress which is on loan from Maroondah Hospital at present. She wishes to be able to have her own air mattress. *************************** 8. Plan Writing Guide ELECTRONIC CARE COORDINATION – PLAN WRITING GUIDE The table below is provided to assist in drawing up Electronic Care Coordination Plans. To do this efficiently two components are necessary. The first is having the skills, relationship and knowledge necessary to fully involve the consumer and clearly identify client needs, wishes and necessary actions. Recommended tools to do this are to be found in Client-Centred Thinking by Helen Sanderson & Associates. See http://www.helensandersonassociates.co.uk/reading-room/how/person-centred-thinking.aspx for detailed instructions and tools. Appended to this guide are examples of some recommended tools. This process should lead to the One Page Profile (1PP), which is the key to good plan writing. Responsibility for writing the 1PP rests with the Key Worker although all other participants will draw on (and may add to) the 1PP. The various elements that make up a 1PP are described elsewhere in this Manual. The second requirement is that the various elements in any care plan be carefully defined so that staff understand what information should go where. Each care plan has its own particular structure and associated definitions – the definitions below relate to the s2s Electronic Care Coordination module. ELEMENT AND DEFINITION EXAMPLES HINTS AND USEFUL TOOLS Reason for Plan While any tools can be used at any stage to gain a To help me self-manage interactions with the range of The Reason for Plan should give the comprehensive understanding of a client’s needs and services I access for the treatment of my chronic reader an immediate overview of situation, the most useful one in the early stages of obstructive pulmonary disorder and cardiac condition. why the plan was drawn up and drawing up a plan is likely to be Important to><Important what it aims to achieve. This To put in place techniques for me to self-manage my Type for. In particular, the One Page Profile (1PP) depends on element should be based on application of this tool. 2 diabetes and access all necessary services. knowledge of the particular client i.e. contain information that can Relationship circles may also be useful at this point to To coordinate services necessary to ensure appropriate only relate to a specific client. identify who is important in the client’s world. Tip: management of medication for me by developing strategies to cope with glaucoma and achieve a degree of include both levels of familiarity and a quadrant approach This element could be seen as a to best identify strengths and weaknesses in relationships. independence and peace of mind. mapping out of the contents of the Your agency might use genograms here. 15 ECC plan. To develop strategies for long-term management of dementia. In addition to the tools mentioned above, ‘The Five Whys’ is likely to be useful in working out what the real issues are. This entails delving ever deeper, by asking ‘Why?’ into each answer a client gives. ‘What’s Working/What’s not Working’ and ‘Good Days/Bad Days’ are two more tools that may be useful in sorting out issues. Both of these are a systematic approach to find out what is positive and what is negative in a client’s life, Issues Issues are the topic or subject that is pre-occupying the client and/or are preventing an optimum state of health and well-being. They are by nature usually very broad. Issues address questions such as: What is it you want to do? What is it that is bothering you? What is it that stops you doing what you want to do? State issues in the client’s words. Goals Goals are what the client would like to do to address the issue or go some way towards doing that. Goals are specific. Generally goals should be written A. I want to manage my medications better - glaucoma is causing problems B. I am finding it really difficult to shower as I am scared of falling. C. The doctor says I am getting dementia and I don’t know what I can do about it. A. To be able to take medication every day myself with a little bit of help from RDNS B. To be able to shower myself with supervision three times a week without fear of falling. 16 from the client’s point of view other than where clearly inappropriate. Always try to focus on the positive i.e. ‘What is it you would like to improve?’ Outcomes Outcomes are measures that enable the client and workers to know the extent to which goals are being achieved. They obviously have to be measurable. Strategies Strategies are the broad methods used to achieve goals and outcomes. They address the question of ‘how?’ C. To understand dementia and have a way of dealing with it. To feel that only proper people are coming into my home (carers and friends). A. I am taking medication on time and as prescribed (under supervision) B. I am feeling less anxious when taking a shower. A1. Use of Webster pack and use of pill bob. A2. RNDS supervision to be provided for taking medication. B.1 HACC services to be provided for supervision during showering. B2. PADL to be assessed with a view to installing shower aids. C. Development and implementation of long-term electronic care coordination plan addressing dementia in particular. D. Social worker to liaise with client and family to develop a strategy for identifying legitimate carers and permitting access to home. Outcomes should be SMART – Specific, Measurable, Achievable, Relevant and Time Limited. In developing strategies, ASM principles should always be kept in mind. The aim should be to develop strategies based on doing things with the client rather than to the client and ensuring wherever possible that the client plays a major role – see the strategies to the left for examples of this approach. Tasks should flow naturally from the strategies. If you have tasks with no corresponding strategy, review your strategies and maybe even your issues and goals. Tasks are typically very clear and detailed. Again note the use of ASM principles. 17 Task Tasks are the specific actions needed to ensure strategies are implemented. They should answer the questions ‘who, what and when?’ A1. RN to organise for all client medications to be sent out in Webster packs from local pharmacy with weekly delivery (Tuesdays) to client’s home. A2. RN to prompt and supervise client taking daily medications from Webster pack. A3. RN to introduce pill bob to minimise dropping of medications. B1. Arrange for HACC service to provide supervision with showering 3 x week to reduce anxiety levels. B2. OT to complete bathroom/PADL assessment for provision of grab rails, shower stool and long handled aids to reduce fatigue while showering and provide additional security to enable client to maintain balance while showering. 9. Inter-agency procedures INTER-AGENCY ELECTRONIC CARE COORDINATION PROCEDURES 3 KEY WORKER OTHER PARTICIPANTS Log on to the s2s e-referral system. Select a service within your agency that has been authorized to participate in Electronic Care Coordination. Either Search for a new client or Create one and select Create New Care Plan. To view existing care plans in which you are a participant, go to Client-Care Plans-My Care Plans. 1. DATES AND REASON SECTION 2. Identify client suitable for ECC 3. Explain procedure and benefits to client. In doing this begin using the ECC Plan Writing Guide tools 4. Obtain consents 5. Begin putting together the One Page Profile, read through Client Background Documentation and write the Thumbnail Sketch. 6. Search for existing client or create new client 7. Select Create New Plan 8. Select ‘Draft’ as status 9. Together with client and using the Thumbnail Sketch, complete ’Reason for Plan’. Note that this section gives an overall mapping of the ECC Plan 10. Select ‘Start Date’ 11. Select a desired ‘Review Date’ which in the first instance should be the proposed Initial Case Conference date. Allow sufficient time for participants to accept and lodge their care plan summaries. 12. Together with client, select appropriate ‘Access Level’. 13. Save Care Plan – this will activate the ‘Activity’ panel 14. INVITING PARTICIPANTS4 15. Together with client, decide who should participate in the ECC Plan and for what purpose 16. Add Note modeled on the following: ‘This is an invitation to participate in the Electronic Care Coordination Plan for XXX. You will receive a separate invitation to participate in the online Case Conference. Copy this text to be pasted into Invitations. 17. Make sure you are in the ‘Edit Plan’ mode (top of screen) 3 These procedures should be read in conjunction with the Infoxchange Manual – s2s e-referral – Quick Reference Guide to Care Plans. GPs may participate electronically in Care Coordination/Shared Support Plans such as these. This is achieved through the pra ctice being a fully registered ESCS/s2s user like any other agency or by the practice being set up to interface with the ESCS/s2s system using Argus to connect directly to their medical software. Another option is to involve GPs using the Gotomeeting webinar – see below for details. 4 19 INTER-AGENCY ELECTRONIC CARE COORDINATION PROCEDURES 3 KEY WORKER 18. Select plan participants by using the ‘Add’ button. By default, the initiator of the plan will be the Key Participant. 19. When a participant is added: Click Give the participant consent to access information related to this care plan Click Create an invitation for the participant to join Care Plan discussion depending how actively you want the participant to be involved Paste into the Notes section the text inviting participation in the Initial Case Conference. 20. For s2s users, check the tick box on the left and ‘Invite’ the participant. The Plan must be saved before the invitation will be sent to participants. 21. If a proposed participant is not a registered s2s user, select the ‘Add External Participant’ option and fill in necessary details. Tick Give the participants consent to access information related to this care plan. E-mail invitation to non-participants using the special template developed for this purpose using Gotomeeting.5 22. Add the client using the ‘Add External Participant’ option. Tick Give the participants consent to access information related to this care plan. 23. If a significant other such as a carer is involved, add that person in the same way as for clients – this will make it possible to allocate tasks to that person. 24. SUPPORTING DOCUMENTATION 25. Review development of the ECC plan to this point, finalise the single page One Page Profile and attach it. See Manual for further details. 26. Using the tabs provided, upload any s2s transactions that are relevant. 27. Upload Client Background Documentation. This may be the LaHA Assessment Record Template of similar. Note that a label is required. 28. GOALS6 29. 5 OTHER PARTICIPANTS Participants receive e-mail notifying of invitation to participate. Access the system and open the red envelope by your name (top right hand corner of screen). Open this and accept/decline participation. You will then be shown as Active on this case. Non-s2s participants receive email notifying of invitation to participate. Accept/decline participation Review ECC Plan so far and in particular the One Page Profile (1PP) and Reason for Plan. See templates in next section Note that the goals (care plan summaries) are client-centred, not practitioner-centred, and that they should incorporate ASM principles. They should therefore be formulated in close consultation with clients. 6 20 INTER-AGENCY ELECTRONIC CARE COORDINATION PROCEDURES 3 KEY WORKER 30. Conduct interviews/assessments as required using own tools, ECC tools (see below in this Manual) and 1PP Person Centred tools. 31. Complete goals in which the Key Worker, in his/her professional role, will be involved. Complete all sections as required. See separate section in this Manual on Plan Writing 32. Enter or attach any care plan summaries received from non-s2s participants who wish to be involved. Where appropriate, use Gotomeeting webinar for the non-s2s participant to enter their care plan summary directly into the ECC plan. 33. CASE CONFERENCE 34. Prior to scheduled Initial Case Conference time/date, read through all goals and consider any possible amendments, additions, deletions, other actions required. OTHER PARTICIPANTS Conduct interviews/assessments as required using own tools and the ECC/ 1PP tools Participants complete strategies and tasks for which they, in their professional role, are responsible. Complete all sections as required. See separate section in this Manual on Plan Writing. Interested non-s2s participants to provide care plan summaries to Key Worker, preferably in the same format as used in the module. Care plan summaries may also be entered directly via a Gotomeeting webinar involving the Key Worker and an individual participant. Prior to scheduled Initial Case Conference time/date, read through all goals and consider any possible amendments, additions, deletions, other actions required 35. Arrange for the client/carers to be present during the Client/carers should participate in Case Conference. This might be at the Key Worker’s the Case Conference wherever office or preferably, if laptops and Internet access possible. are possible, at the client’s home. 36. Conduct Initial Case Conference using Gotomeeting Participate in Initial Case webinar as scheduled, adjusting individual care Conference. Note that this will be plans where necessary and reaching agreement on via a Gotomeeting webinar. course of action. 37. Complete Overall Assessment and What next? Sections and obtain signatures. 38. Provide hard copies of Electronic Care Coordination Plan as required. 39. Schedule a further review date if required. Use the Note review date and take any ‘Schedule a Review’ button at top of ECC plan. steps required as per Case Conference. 40. Further review(s) to be conducted as scheduled or if otherwise considered necessary. 21 10. Case Conferences Under these procedures there are two kinds of Case Conference. 1. At the Initial Case Conference, participants identified by the Key Worker as appropriate to the case and who have agreed to participate will discuss the overall Electronic Care Coordination Plan (ECC plan) and their individual inputs to the ECC Plan. At this stage, some participating and non-participating agencies may already be providing services. The goals, strategies and tasks set down will therefore probably be a mixture of ongoing service provision and planned new service provision. The Key Worker is responsible for organising the time, date and mode of Case Conferences. These details should be listed as a Note in the Activity Panel. A typical Note might read: You are invited to participate in the ECC plan for X. You will receive a separate invitation to participate in the online Case Conference. Participants may log on to the system at any time and enter any information in the relevant goals section. On the module, selection of participants and the sending of invitation by email are automated. The Case Conference date/time is set and invitations are issued using the Gotomeeting webinar. Depending on the individual case, the Initial Case Conference may decide that all necessary steps have been taken, in which case it would set a Nil review and the Key Worker would close the case. Alternatively, a date may be set for a Review Case Conference. 2. If a Review Case Conference is scheduled, the Key Worker is again responsible for advising the date, time and mode of Review Case Conferences in a Note. Review Case Conferences will be similar to the Initial Case Conference although in this case progress is being reported on previously decided courses of action. A Review Case Conference may also arise for the sole reason that there has been a significant change in the client’s treatment regime or circumstances that warrant further investigation and discussion. 3. Case Conferences may be held: Online using the Gotomeeting webinar (the preferred mode) – with or without videolink By telephone or conference call Face-to-face 4. The Key Worker is responsible for documenting the outcomes of Case Conferences and setting review dates. 22 11. Gotomeeting webinar package 11.1 Overview The Gotomeeting webinar package is used for two purposes: To conduct online case conferences To engage non-s2s participants in ECC in a meaningful way. The IEPCP is the holder of a corporate Gotomeeting package. This package allows up to 25 participants to participate in an online meeting, up to six of whom can use a videolink at any one time. Agencies within the IEPCP region can access the Gotomeeting package, by contacting the IEPCP. The webinar has applications outside ECC, of course. Meetings can be set up in two ways – scheduled or unscheduled. Generally ECC meetings will be scheduled. Below are examples of how Gotomeeting might be used in the ECC application. 11.2 Create Your Organizer Account - Corporate Plan The IEPCP will invite you to become an organiser. Before being able to schedule or start a meeting, you need to create your GoToMeeting account and download the GoToMeeting software. To create your Organiser Account: 1. Open the GoToMeeting invitation email you received from the IEPCP (the administrator) entitled GoToMeeting Account Confirmation. 2. In the email, click the activation link to create your organizer account. 3. On the Create Account page, enter your information and click Create Account. 4. On the Download GoToMeeting page, click the Download button. 5. If prompted, click Yes, Grant or Trust to accept the download. 11.3 Organising Online Case Conferences The Key Worker (as Organiser) decides a Case Conference time and date. Ideally this should be between fifteen minutes and thirty minutes in duration. The Key Worker uses the automated Gotomeeting invitation facility to schedule the Case Conference and invite participants. Organisers should right click on the orange daisy at the bottom right of their screen and follow the prompts. As shown below, enter ‘Case Conference – Henry Higgins’ in the subject and make the location ‘Online”. Amend the telephone number in the e-mail from +61 2 to simply 02 Key Workers must remember to insert their signature block on the e-mail so that participants can contact them easily. During the Case Conference the Key Worker can hand over control of the mouse and keyboard to another participant at any time. However, the Key Worker can override that control at any time. The ECC Plan will be on the screen for all to examine. Input can be by microphone, telephone or (if needs be) using the (typed) chat facility. Participants with a camera on their computer/laptop who wish to do so can show themselves to others via a videolink. The Key Worker will enter the outcomes of the case conference discussion with others watching, including setting a review date (if needed). 23 When all are satisfied that the outcome has been correctly recorded, the meeting ends. AS A MATTER OF COURTESY AND EFFICIENCY, MEETINGS SHOULD BE HELD WITHIN THE TIME LIMITS SET. The procedures outlined above apply to s2s participants. For non-s2s participants, see the following section. The Gotomeeting invitation should look like this: 11.4 Inviting non-s2s participants The first step with non-s2s participants is to find out whether, and to what extent, they want to be involved in the care planning process. The initial approach will probably be via a phone call. If the non-s2s participant is happy to be involved, issue a Gotomeeting invitation. To do this, you must be an organiser and have installed Gotomeeting on your computer. Organisers who have installed Gotomeeting will see a little orange daisy in the system tray at the bottom right of the screen. Right click on that icon and click on Schedule a meeting. You may be asked, as a returning user, to verify your ID and password. An e-mail invitation will pop up automatically. Enter into the e-mail the addressee and paste the following text in above the Gotomeeting message. Remember to insert your signature block at the 24 bottom of the e-mail. See the appendices of this manual for a template that can be cut and pasted into the invitation below. INVITATION TO PARTICIPATE IN AN ELECTRONIC CARE COORDINATION PLAN An online Case Conference is scheduled as above for: Name: Date of birth: Other agencies/organisations involved include: If you wish to participate in the Electronic Care Coordination (ECC) Plan, please Accept this invitation and in your reply indicate which option(s) are of interest: 1. Providing an ECC care plan summary via Gotomeeting. [If you select this option we will contact you to arrange an appropriate time] 2. Providing a hard copy, not later than one week prior to the Case Conference, of your input to the undersigned Key Worker, who will be responsible for appropriate formatting. 3. No involvement other than receiving a copy of the Electronic Care Coordination Plan. Note: Reimbursement for GP participation can be claimed through Medicare items ##729, 747, 750, 758, 872 or 10997 relating to participating in care plans and reviews organised by others and participation in case conferencing organised by others. FOR NEW GOTOMEETING USERS To join a meeting from a GoToMeeting invitation email, a calendar appointment or instant message invitation 1. Open the email, appointment or instant message that contains the meeting information. 2. Click the Join link provided in the invitation to join the meeting. 3. If prompted, click Yes, Grant or Trust to accept the GoToMeeting download. You’ll be launched into the meeting where you’ll see your Control Panel and GoToMeeting Viewer. Leave a Meeting To leave a meeting 1. From your Control Panel’s File menu, select Exit – Leave Meeting. Or, you also click on your Control Panel or GoToMeeting Viewer or webcam. 2. When prompted with the Leave Meeting dialog, select Yes. 11.5 Non-s2s participants – lodging care plan summaries The Key Worker checks that the non-s2s participant has opted to provide an Electronic Care Coordination care plan summary using Gotomeeting. The Key Worker will invite them to a Gotomeeting meeting, asking that the participant nominate an alternative day/time if the meeting proposed is not convenient. When the meeting has commenced, the Key Worker can give the non-s2s participant control of the keyboard and mouse so they can edit the care plan (and insert their goals) online. 25 Alternatively, if the participant has elected to provide a hard copy of the care plan summary, this must be provided to the Key Worker not less than one week prior to the proposed Case Conference date. In this case it is entirely at the discretion of the Key Worker what information is included in which sections of the care plan summary. The participant will have the opportunity to make any corrections during the online Case Conference. On the first occasion that a participant uses Gotomeeting, they will automatically be asked to install Gotomeeting on their computer when they accept a Gotomeeting invitation. There is no cost associated with this and it should take only a minute or two. The Key Worker should advise potential users of this. Participants should ideally use a microphone and speakers (either inbuilt into the computer or, even better, as a headset) or using a telephone – in the latter case there will be the cost of the phone call. 12. Training Two different skill sets are required to carry out electronic care coordination efficiently. One obvious skill set is understanding how the module works in a technological sense. Those skills are easy to learn as the module is largely intuitive and the instructions provided are clear, simple and easy to follow. A much more difficult skill set is creating a coordinated care plan that addresses the person’s needs, is truly person-centred and is underpinned by professionally competent treatment methodologies. Professional competence in the sense of discipline-related subject matter is beyond the scope of the proposed training. However, all clinicians should of course have basic interviewing skills. In addition, motivational interviewing skills are particularly useful for the client group who would most often benefit from ECC plans as poor motivation, goal confusion and uncertainty are very common characteristics. The Active Service Model emphasis on doing things with the client rather than for the client should also be borne in mind when developing the plan in conjunction with the client. The person-centred tools listed earlier in this manual should also be invaluable in formulating a plan that truly involves the person. In short, proper plan writing requires excellent rapport building. How the actual information is recorded is also very important, which is why the Plan Writing Guide has been provided. If that is followed, information will naturally find a home in the appropriate part of the plan and overall direction should be clear with little duplication of information. Given the above, it is proposed that the typical training program will use a train-the-trainer approach and comprise the following: Session 1 (2 hours) A brief general introduction to Electronic Care Coordination The material covered in the manual o Client selection o Key Worker selection and role o Scope o Confidentiality o Case Conferences A short tutorial on use of the s2s module using the ECC procedures in the manual and using the Gotomeeting webinar. 26 Session 2 (3 hours) A lengthy session on writing inter-agency care coordination plans including: o Rapport building o Person-centred approaches o Application of ASM principles o Plan writing skills – with particular reference to the s2s ECC module. Development of a case study using these techniques Completion of an ECC plan including an on-line case conference, again using the Gotomeeting webinar. 13. Further information For further information or to make suggestions and provide feedback, please contact: Christopher Foley-Jones Coordinator - Systems of Care Inner East Primary Care Partnership 6 Lakeside Drive Burwood East VIC 3151 Phone: 8822 8516 Fax (03) 8822 8550 0400 525 792 christopher.foley-jones@iepcp.org.au ************* 27 14. Templates The appended templates are both included in the body of this manual and are provided separately here for easy of copy-and-pasting. CLIENT SELECTION SCORESHEET – a working document only CLIENT SELECTION SCORESHEET – ELECTRONIC CARE COORDINATION – MAY 2013 1 People using 2 or more services – does not include GPs 2 People with multiple disabilities (health, social, cognitive) needing assistance in a number of areas of their life People with frequently changing or fluctuating needs People from CALD backgrounds where language or cultural or family expectations means that traditional service responses are seen as not entirely appropriate, or at least need modification or, where they are unable to understand the nature of services being offered People who have an acute decline in ability to self- manage People who have experienced a sudden deterioration in their physical condition 3 4 5 6 7 8 9 10 11 Situation where there are two ‘clients” – the client and the carer or significant other, both of whom have needs that are problematic People who are vulnerable and in reality live alone and have no effective or immediate support from family or friends, particularly those with confusion and memory loss People with behaviours others find difficult and/or don’t want assistance from services or perceive the need for assistance when there is objectively a clear need People with serious psychiatric/psychological issues or serious intellectual disability People experiencing elder abuse issues If the score is 6 or more, client is probably suitable for an ECC plan Weighting 1 Score 1 1 1 1 1 1 or 2 1 or 2 1 or 2 1 or 2 1 or 2 TOTAL Note: Where there is an option to score as either 1 or 2, the practitioner is required to make a judgment call on the severity of the condition concerned. Also note that in some cases the client’s situation may be sufficiently complex to warrant an ECC plan even though services are being provided by only one agency. 28 TEMPLATE FOR INVITING NON-S2S PARTICIPANTS [Complete and paste in at top of automatically generated Gotomeeting invitation] INVITATION TO PARTICIPATE IN AN ELECTRONIC CARE COORDINATION PLAN An online Case Conference is scheduled as above for: Name: Date of birth: Other agencies/organisations involved include: If you wish to participate in the Electronic Care Coordination (ECC) Plan, please Accept this invitation and in your reply indicate which option(s) are of interest: 1. Providing an ECC care plan summary via Gotomeeting. [If you select this option we will contact you to arrange an appropriate time] 2. Providing a hard copy, not later than one week prior to the Case Conference, of your input to the undersigned Key Worker, who will be responsible for appropriate formatting. 3. No involvement other than receiving a copy of the Electronic Care Coordination Plan. Note: Reimbursement for GP participation can be claimed through Medicare items ##729, 747, 750, 758, 872 or 10997 relating to participating in care plans and reviews organised by others and participation in case conferencing organised by others. FOR NEW GOTOMEETING USERS To join a meeting from a GoToMeeting invitation email, a calendar appointment or instant message invitation: 1. Open the email, appointment or instant message that contains the meeting information. 2. Click the Join link provided in the invitation to join the meeting. 3. If prompted, click Yes, Grant or Trust to accept the GoToMeeting download. You’ll be launched into the meeting where you’ll see your Control Panel and GoToMeeting Viewer. To leave a meeting: 1. From your Control Panel’s File menu, select Exit – Leave Meeting. Or, you also click on your Control Panel or GoToMeeting Viewer or webcam. 2. When prompted with the Leave Meeting dialog, select Yes. 5CREEN5HOT OF ELECTRONIC CARE COORDINATION MODULE IN 525 Humpty Horse (20/06/2000),Care Plan chent onlormatJon Oates & Reason Plan Status: Draft Reason for Plan: Start Date: End Date: Next Rev ew Date: No REMews Scheduled§ utt A Access level: R;v;w=) Everyone can view the care plan.but only actrve participants can edrt PartiCipants m ServicesiCare and Support I S2S Name Role Organi5ation Phone Email Active Consent Homer lnfoxchange Allied heatth practitioner Banyute Community Health Service, West Heidelberg Centre 99999999 homer@infoxchange.net.au Yes Yes I I Supporting Documentabon I Type Label I I No documentatiOn has been added for th1s care plan. I II II I Deiete •S2S Re=d Attached By Notes Added I •Attad>ment 11< Lk Goals Issue I I No goals have been added for this care plan Goal Participant Responsible Outcomes I I Care Plan documented by Key Participant Homer lnfoxchange from Banyule Community Health Service,West H e delberg C ... Approved by key pan cipant: f"' Signed Signed Date: Approved by client rl Signed Signed Date: lilJ or care r: Reviews I Target Date Summary & Recommendations I No reviews have been added yet I j] •Add Hew Rev111w Delete Save Care Plan I Panicipant Responsibl e Dec sion I I Introduction to Person Centred Thinking & One Page Profiles Selected material from the 2 day course This training course was developed by Helen Sanderson Associates. Person Centred Thinking Tools were developed by The Learning Community for Person Centred Practices. For more information, including terms of use, go to: www.learningcommunity.us www.helensandersonassociates.co.uk Purpose • To know what is meant by Person Centred Practice • Explore a selection of person centred thinking skills. See how these skills can assist with developing care plans with people with dementia • Think about next steps Ground Rules Respect one another’s opinions, listen without interrupting, share the floor Mobile phones off or on silent Misery is optional No Obsessing – 5 minutes 3 The Learning Community for Person Centred Practices envisions a world where all people have positive control over the lives they have chosen for themselves. Our efforts focus on people who have lost or may lose positive control because of society's response to the presence of a disability. We foster a global learning community that shares knowledge for that purpose. All are welcome to share and learn. Service Centred Person Centred Service Centred Person Centred Planning For Planning with Talking about Talking with Starting with what’s wrong Starting with what’s important to people Health & safety dictate Health & safety is where you live/what you addressed in the context do/how you do it & with of where and how you whom want to live Dead plans updated Living plans which annually/ as required by change as required by the the service or funding person body Person Centred Thinking underlies and guides respectful listening which leads to actions. This results in people who: – Have positive control over the life they desire and find satisfying; – Are recognised and valued for their past, current and potential contributions to their communities; and – Are supported in a web of relationships, both natural and paid, within their communities © TLC-PCP 2012 www.learningcommunity.us What are person centred thinking skills? A set of skills that reflect and reinforce values that: – Help us support rather than fix – Work for humans – Work at every level of the organisation – Build the culture of learning, partnership, and accountability – Affirm our belief that everyone can learn & develop © TLC-PCP 2012 www.learningcommunity.us Help people get better lives Not just better plans… © The Learning Community for Person Centered Practices, Inc. 2008 Management Skills Important To Important For & The Balance Between Everyday Learning Skills Discovery/ Listening Skills © TLC-PCP 2012 www.learningcommunity.us Discovery/Listening Skills 6 methods for collecting information Relationship Map Rituals and Routines Good Day/Bad Day Two Minute Drill Communication Chart Reputations © TLC-PCP 2012 www.learningcommunity.us Going to the bathroom Backs away from the bathroom door Jenny is anxious Leave it and go back later In the evening Approaches you and pulls at her hair She wants to go to bed Support Jenny to get ready for bed (see her detailed bedtime routine) We need to respond to James’ anxiety about where Ian (his younger brother) is. Ask James where he saw Ian last – this will help you understand roughly what age James thinks Ian is/where James is in time at that point. If he mentions something like that he was ‘helping Dad,’ think of a feasible thing that Ian could be doing on the farm with their father – eg. Went to fix a fence, had to check a cow and calf. Avoid saying Ian is dead unless you have tried everything else. James may think Ian is still just a child. If you have to say he’s died, say something like, “Remember Ian lived a long & happy life, and died peacefully when he was 82. This may be like hearing it for the first time, so James may need support to deal with the news. Everyday Learning Skills • 4 + 1 questions • Learning Log • Working/Not Working (also called “What Makes Sense/Doesn’t Make Sense”) © TLC-PCP 2012 www.learningcommunity.us \1\k"at ha.te we tr ied? 4+1 Q's w-a. Wlat te.te we lea-ned? w-a ;;re we pleased <i:xlo..lt? w-a next ? are we COf1Cef"ned abolt ? Learning Log y: e, Learning Log for Doug (and Mary) Date Activity Who was there? What worked well? What would you do the same next time? What didn’t work? What should be different next time? What did you learn? 5/9/04 Time at home with Doug while Mary was at cards. 12.45 – 4pm Josie & Doug Playing a Beethoven CD and repeating Beethoven’s 9th when Doug said what a great tune it is. Making a cup of tea and suggesting we drink it on the verandah when Doug started to get anxious. He was much calmer outside. Forgetting to have Doug’s walker ready for him before suggesting we go outside – he got up immediately then almost fell and only had me to hold onto! 12/9/04 As above Doug & Sue Looking at family photos with Doug. He couldn’t see them, but I could make guesses or describe them – eg. who’s this little boy with the blonde hair? He could then tell stories about his family. Reading the newspaper to Doug, he became very worried about some of the stories and then worried about them all afternoon – especially about the salinity levels of The Murray. 19/9/04 As above Doug & Josie Reading the cattle market reports from the local paper. Talking with Doug about our own steers and asking his advice. Changing the subject to talk about Mary’s garden when he started worrying about needing to drench the yearlings. 26/9/04 As above Doug, Josie & Mary (to start with) When Mary didn’t want to go (Doug had been sick), I didn’t rush her, we had a cup of tea and I reminded her that she needed her time away so she could keep looking after Doug. When she said she only goes because the family make her, I agreed that she had better go as they would be upset with her otherwise, she then left a little happier. Playing music later in the afternoon – Doug held his head a lot, and said there was a lot of racket going on. Even though I turned it off, he grew more and more anxious from then on. A trip to the toilet followed by a cup of tea seemed to help. Not being able to go outside when Doug grew restless (too cold). We moved into the kitchen to just get a change of scene – helped a bit, but not as good as outside. I will ask Mary where I can find a blanket that’s okay to take outside next time – I know Mary would not like a good blanket taken out. Recording Learning for Doug & Mary What’s Important To Doug? What’s Important to Mary? If Doug and Mary are to have a good balance of Important to and for, what do others need to know and do to support them? Things to figure out: rtng _./( 'DcCiJioMttkiWJ , ffqrccMeJ1t /tMpOrtttl1t ofecis iOI'IS itt M y life !tow I 111U.!t be ii1IIO/Yeof ------. Decisions in my life How I must be involved Who can help me with this decision? Who makes the final decision What clothes I wear Ask me whether I want to wear dress trousers and shirt or work shirt and pants. Look at my calendar and remind me if I have visitors coming today. Me When I go to the doctor When I’m sick, I need to be told as soon as possible, and reminded every hour so there’s no surprise. I must not miss visits from family to go to the doctor District nurses, home care staff and family. I will refuse to go if you haven’t involved me! Who enters my house I am told a set time when my house will be cleaned, and the times staff will be arriving. Always knowing if it’s a new person. Home Care coordinators, with me and family – but, if they come at the wrong time or it’s someone I don’t know, I won’t let them in. How I spend my money I need to know about my expenses each week – this needs to be written down so I can decide whether to spoil family when they visit Me - but this is dictated by how many expenses I have that week. My son talks this through with me every Sunday. Decisions in my life How I must be involved Who can help me with this decision? Who makes the final decision What I eat Discuss with me the types of foods & meals I enjoy I am offered a choice of two low sugar meals and desserts – I decide which option I will have. If I stick to my special diet District nurse tells me daily what my blood sugar levels are. May What time I have my meals Not negotiable on days when it’s carers not family Rostering people When I go out & where I go That you listen to me May and family when I say I want to go members. Staff when I out and where, & help have funding left. me plan it Management Skills • Matching • The Donut © TLC-PCP 2012 www.learningcommunity.us MATCHING . -0 • r-rA, r--.. PERSONALITY CHARACTERISTICS NEEDED •SHARED INTERESTS I -:a.-. . . . - .. ... 1>;_( 9 1\ff.v Not ovr Paid respo.-.sibWty I What you see/hear depends on what you are looking/listening for Look/Listen Understand © TLC-PCP 2012 www.learningcommunity.us “…you can’t do this work with other people if you have not done it for yourself…” John O’Brien, (a long time ago) Important TO What is important to a person includes those things in life which help us to be content, comforted, fulfilled, and happy. It includes: •People to be with /relationships •Status and control •Things to do and places to go •Rituals or routines •Rhythm or pace of life •Things to have © TLC-PCP 2012 www.learningcommunity.us Important FOR: • Issues of health: ― Prevention & treatment of illness/ medical conditions ― Promotion • of wellness (eg. diet, exercise) Issues of safety: ― Environment ― Well being ---- physical and emotional ― Free from fear What others see as necessary to help the person: ― Be valued ― Be a contributing member of their community © TLC-PCP 2012 www.learningcommunity.us All choice no responsibility - to Health and safety can dictate - to balance for for lrrport ant to \/\.hat else do we nee ::I t o krlO\N or learn? lrrport ant for - - - - - - - - - - -- - - --- - Choose one of the things that is important FOR you (preferably one you avoid or struggle with), talk with the person next to you about what others may need to know or do to support you with this. Remember to pay attention to the things that are Important TO you to see if any of these things can help. Record these tips for support in the space below, or if they’re work related, on your one page profile. © The Learning Community for Person Centered Practices, Inc. 2008 What is important to Arthur How best to support Arthur /JJ.Nays have his walking stid: within reach. That people sit and talk withhim.and listen to him too - he loves company and is an amazing storyteller. Arthur womes that he is very ill and people are keepingit from him give him lots of reassurance that it is just oldage -he will have a good laugh with you then. That people sit with him when they call to serve his breakfast dinner and tea - he dislikes eating alone.He loves hiS meals to be piping hot Always explain very clearly to him about any upcomingappointments usually at the hospital- do not tell him at the last minute. SeeingSally and Stephenevery other day. Arthur has very little visionand is hard of hearing. when youenter his flat via the keypad code you will need to call out to Arthur that you are there.if Arthur is in bednever approachhim.he willthink you are a burglar and will hit out With his walking stid:. That you listen to his stories.especially about the war.but never instigate a conversation around the war - he only talks about it when he is in the mood. That you can talk about all the old boxers wtih him - cassius Clay is favourite but he will not refer to him as Muhammed Ali. Knowing if anythingis happen1ng that is different from the normalroutine. Must always have at least £10 inhis pocket Must wear his woolbob hat whenhe wants and not be encouraged to take it off -he likes wearingit andbecomes agitated when people suggest he takes it off in the flat What those who know Arthur s-v they like and admire about him Charming Salt of the earth. Arthur is frightened of being 'put ina home·- tell him that we are all doing our best to help him stay at home.but when he goes outside in the middle of the night we are frightened he willget hurt. A real character. Fullof humour. A realgent. Just the most gorgeous gentle man. Arthur Deb’s Good Day/Bad Day Good day • James eats breakfast without a battle • I have an achievable to-do list • prepared the night before and manage to check most things off • I hear a story about people being supported to have positive control • Creating new material with someone else (HS A or other) • time planning directly with people • I don’t need to go shopping for groceries or attend to other domestic tasks (on office days I work from home) Bad day • lots of tears at childcare and I feel awful for first couple of hours • Overwhelmed with admin and finance tasks • no food in the house • ridiculous number of emails to get through • hearing about a silly bureaucratic decision that will have a negative impact on someone’s life • I’m scattered and disorganised, and waste time trying to prioritise 34 Good Day/Bad Day Good Day During Work Week Bad Day During Work Week A really good day A day that is too challenging •What happened that contributed to your good day? •What do you look forward to doing? •What threw your day off? •Made the day bad for you? •Made you frustrated? Bored? •Who do you look forward to seeing? • What happens that gives you energy to deal with difficult situations? •Took the fun out of it? •Be sure to include those daily frustrations •What motivates and interests you at work OR on a work day? It is a work day. Write down a composite of actual good moments and bad moments that have happened at anytime a day when you also work. © TLC-PCP 2012 www.learningcommunity.us ' Write down a composite of moments that make up a good and bad day at work ----------. .. .............................. \Mat ve likeand adnireabout.......................... i :------------ -------------------· ! rllXJ r !ant to m .......................... -------------------------------- 1-bwi:Est to 9.4'port . . . . . . . . . . . . .. . I r --- 1······················; . n : I! -· :!en l :l. I, ;::L .: ...... ; • ;. : • t •••••••••••••••••••••_ 0 @ ·--- • • : • Ill . , • A One (1) Page Profile can be used • For a specific purpose: for example new situationslike a new job; meeting new people; at the front of the persons records. • An at a glance positive way to share key information about: • What people like and admire • What is most important to • How to best support All one page profile have these three sections at minimum To see examples and read stories of one page profiles go to https://onepageprofiles.wordpress.com/ TLC-PCP 2012 www.learningcommunity.us -r:p.s - "=r d Vdc::>p/":J y<:::>LLr =, ?prcn<:/ Li,f and a,d,...;r Phdo Thb oction nccdc to be your po::oitivc 'proud' i!ot of ln!)crt photo into your one PC:t9to mctke it more qucdi tiesstrengU1s ctnd tants. Avoid words like poroona.l. 'uouD.I y" or c timc!i'. It ::. often helpful to k torunmotco, ·tP. on friend::;.fam ily, Writ f.! ynur n.rtnlf-! snmP.WlU IL"-P. r• lsili vP. ff-!P.dtuu-::k sh.;uf.!lli n Hrn.Hils nr from the profi e too! oupcrv ::; on meet ng::; to complete thio ction. wna.r 's ; orr ro .Sc:>A? a.r ...... ('"at work"' or '"about the project'" can be added to spec ify the purpo&e of the one pagM) This &eetion needs to have enough detail that someone who does not know youcould unaerstand wnat matters to you,ana It you took tne name onme one page prome you couJa Stil be identified. Instead of this Being organisecl write this Being organised - navlng a to cso list tor eacn Clay, us ng me task l st on Outlook. c-hecking things off as they are completed gives rne great JOYI Having fun at work FUN at work working on creative project!:;; to make the work HnvirnnmP.n1 tlf!IIP.t. Going to lunch with coworkcro once o week and laughing IOQH'lhP.r WO«.> ro .su_p,Porr Soh1ebcx.y aC ...x:>r_f ••.• Tnls sectionlncluaes lnfotmation tor: .. wnat is nelp1U I? wnat s not? What others can do to make work t me more productive? ros tive? Specific cu-eet.S you wctnt to identify for support - you may be working on getting better ctt something (i.e•.time management) and have specific things thel others can do to support Instead of thi s Help w1m staying organised I Write this Staying organised- 1 onen aver commit my time ana aon't leave enougn time forlogg ng.If my desk starts to get pUes of paper all over it.Iam not keeping up wttn my logg ng. A gentle question or - now are you don i g? have you scheduled office time th is week?"' wiU help me to re alse 1 neeCI to stop and lOOk at my scneCiule. If I could, I would… “If I could, I’d jump on the motorbike and just ride and ride.” “I’d love to just sit by the sea, watching the water and letting the time go by” If I could I would……… Write a list of practical things that you would do if you could? This could be things you’d like to do more of; things you have never done but would love to try; things you used to do but have not done for a long time \1\k"at ha.te we tr ied? w-a. Wlat te.te we lea-ned? w-a I w-a ;;re we pleased <i:xlo..lt? next ? are we COf1Cef"ned abolt ? Contacts Deb Watson Helen Sanderson Associates Australia 0402314323 debw@helensandersonassociates.com.au www.helensandersonassociates.com.au Find us on Facebook The Learning Community for Person Centred Practices: www.learningcommunity.us Websites www.helensandersonassociates.com.au www.thinkaboutyourlife.org www.thinkandplan.com www.progressforproviders.org https://onepageprofiles.wordpress.com/ www.celebratingfamilies.co.uk www.supportplanning.org www.learningcommunity.us www.positiveproductivemeetings.com Issue/action/task 1 2 DEMENTIA MANAGEMENT – KEY WORKER GUIDE Version: 10 February 2014 1. Awareness, 2. Initial Assessment 3. Management, 4. End of Life and Diagnosis, and Care, Support and Recognition and Post-Diagnosis Review Referral Support 3 Diagnosis Identify Key Worker (KW) Care Planning Care planning (KW) 4. 5 6 One Page Profile Client Background Document Advance care planning 7 8 Decision re competency Appointment of person responsible/substitute Advance Care Directives MEPOA Review (GP)/KW Discuss Other POA Register PLWD on PCEHR GP to download data to PECHR Register ACD Guardian on PCEHR Electronic Care Coordination Set up s2s module Attach CBD and One Page Profile Attach ACP, ACD and MEPOA Identify/invite participants Collect care plan summaries Organise and run Case Provide information (KW) 9 10 11 12 13 14 15 16 17 18 19 20 Referrals for assessment Lead agency Assessment and diagnosis Discuss care planning Formulate care plan Discuss (KW) Discuss (KW) Discuss (KW) Write (KW) Write (KW) Encourage PLWD/carer to consider Review (GP)/KW Appoint Implement/review care plan Review (KW) Review (KW) Review with PLWD/carer Review (GP)/KW Review Assist PLWD/carer (KW) Advise/assist PLWD/carer (KW) Provide information Assist PLWD/carer (KW) Encourage GP (KW) Key Worker to register Assist PLWD/carer (KW) Advise/assist PLWD/carer (KW) Provide information Assist PLWD/carer (KW) Encourage GP (KW) Key Worker to register Key Worker Key Worker Key Worker Key Worker Key Worker Review (KW) Review (KW) Review (KW) Review (KW) Review (KW) Key Worker Implement/review care plan Review (KW) Review (KW) Review with PLWD/carer Review (GP) Review Conference Issue/action/task 21 22 23 24 25 26 27 28 29 30 31 32 Likely issues/goals for PLWD Referral to GP to assess competence Advance Care Planning MEPOA Guardian of Advance Care Directives (registration) PCEHR registration Health issues Personal (psycho-social) issues Safety and OHS Home modifications Wandering/security Carer education Carer Respite/support Transport Fitness to drive Recreation Provision of services in home 1. Awareness, Recognition and Referral 2. Initial Assessment and Diagnosis, and Post-Diagnosis Support 4. End of Life 3. Management, Care, Support and Review Referral (KW) Address/refer (KW) Review (KW) Address (KW) Review (KW) Address (KW) Address /refer (KW) Address /refer (KW) Address /refer (KW) Review (KW) Review (KW) Review (KW) Review (KW) Address /refer (KW) Address /refer (KW) Address /refer (KW) Address /refer (KW) Address /refer (KW) Address /refer (KW) Review (KW) Review (KW) Review (KW) ADVANCE CARE PLANNING GUIDE 1. 2. 3. Preliminary reading Summary referral chart Advance care planning 4. General background 5. Competent>< noncompetent Writing a care plan (competent person) 6. 6. Writing a plan of care (non- Version: 10 December 2013 The References at the end of this guide show recommended background reading (listed in descending order of usefulness). For an overview of possible services see http://www.health.vic.gov.au/hacc/downloads/pdf/dementia_pathways2012.pdf page 9. For EMR service contact details see http://www.iepcp.org.au/active-service-model-emr-hacc-alliance Advance Care Planning is a process enabling a person to make decisions about his or her future health care in consultation with health care providers, family members, and other important people in their lives. A Person Centred Approach should be used to draw up a plan, which will be attached to the s2s Electronic Care Coordination module and possibly also in an Advance Care Directive. Note that you should always attempt to do an Advanced Care Plan but that the Person Living With Dementia (PLWD) may not be willing at this stage to complete an Advanced Care Directive. Inform client/carer that the IEPCP plans to institute advance care planning for all frail and elderly as a matter of routine. Note that advance care planning is a holistic, long-term planning process. Use these links as a guide: A Brief History Of Advance Care Planning The law of Advance Care Planning Things to keep in mind The ethics of advance care planning Advance care planning in different healthcare settings Training to do: Advance Care Planning Watch Health Professionals Explain Advance Care Planning Substitute Decision Maker To decide what form the care plan should take, you need to know whether the PLWD is competent or non-competent. . See Competence and Capacity for guidance. ‘Starting the conversation’ video at http://www.health.vic.gov.au/acp/ may be a good way to engage clients/carers. It is recommended that you use the following structure with the client. 1. Thinking about your past health experiences 2. Thinking about your current health and your future medical care 3. Planning your care (taking into account your individual situation) 4. Choosing someone to speak for you (your substitute decision maker) 5. Writing down your wishes 6. Informing others of your decisions 7. Regularly reviewing your Plan 8. Doing advance care planning for a family member / friend If the PLWD does not have capacity for this process, then the ‘person responsible’ should be consulted and use the dot points on p. 19 of the ‘Plan of Care’ document on http://www.advancecaredirectives.org.au/pdf/20130605-Plan-of-Care-book.pdf to 7. competent person) Advance care directives background 8. Medical Enduring Power of Attorney 9. Medical approvals 10. Lodging of documents 11. Case Conferences REFERENCES Advance Care Planning A guide to services for people with dementia and their carers 2012 A Plan of Care Dementia Services Pathways Victorian Information Leaflet Take Control Dementia Services Directory EMR formulate the plan. For Advance Care Directives documents see: Vic Advance Care Directive - Competent Person Vic Advance Care Directive - Non Competent Person Note that the PLWD may not want to complete an Advance Care Directive. In the case of non-competent PLWD, the carer/person responsible/substitute decision maker should be involved. Direct PLWD/carers/substitute decision maker to this site if they want to draw up a Medical Enduring Power of Attorney (MEPOA) Clients/carers can be directed to the ‘Take Control’ kit for further information on POA and guardianship. Obtain medical signatures on Advanced Care Directives and MEPOA. 1. Attach Advance Care Plan (in dot point format) to s2s electronic care coordination module. 2. Attach Care Plan Directive to s2s electronic care coordination module (if available). 3. Attach MEPOA to s2s electronic care coordination module if appropriate. 4. Register substitute decision-maker/person responsible on PCEHR (if appropriate) 5. Register Advance Care Directive on PCEHR (if appropriate and when this becomes possible). Participate in Case Conferences as required and be prepared to set review dates for Advanced Care Directives. http://advancecareplanning.org.au/resources/victoria The main source for brief, readable information and Advance Care Directives and Medical Enduring Power of Attorney forms and information. http://www.health.vic.gov.au/hacc/downloads/pdf/dementia_pathways2012.pdf An excellent overview and conceptual framework Good guide for handling non-competent persons with dementia and advance care planning generally – NSW document. http://www.health.gov.au/internet/publications/publishing.nsf/Content/ageing-dementia-services-pathways-2011toc.htm~ageing-dementia-services-pathways-2011-framework.htm Commonwealth document – good overview. Victorian Information leaflet A useful booklet to give clients a brief overview of Advance Care Directives. http://www.publicadvocate.vic.gov.au/file/file/Publications/take_control%202012.pdf A kit for making powers of attorney and guardianship. Make available to clients/carers as required. http://www.iepcp.org.au/active-service-model-emr-hacc-alliance Contact details for Eastern Metropolitan Region dementia services. ADVANCE CARE PLANNING INFORMATION SHEET Advance care planning is a process for making and writing down future health care wishes in advance. What you write down in your Advance Care Plan only comes into effect if and when you become unwell and are unable to make or communicate those wishes for yourself. It is important to know that medical treatment, including surgery, should only be given with your fully informed consent and that you have the right to refuse any treatment. If you become seriously ill, information in your Advance Care Plan will guide your family and doctor when making medical treatment decisions on your behalf. The Respecting Patient Choices® Program staff can assist you with advance care planning. Advance care planning can include: 1. Appointing a Medical Enduring Power of Attorney (MEPOA) This is a legal document that allows you to appoint another person (your agent) to make medical treatment decisions on your behalf, but only if you are not able to make or communicate decisions for yourself. Your MEPOA is not authorised to make nonmedical (e.g. financial) decisions for you. (Other Powers of Attorney, such as a General or a Financial Power of Attorney, are not authorised to make medical decisions). When selecting someone to be your agent, it is important to choose someone 18 years or older, whom you trust, who knows you well, who is willing to respect your views and values, who will be a good advocate for you and who is able to make decisions under circumstances that may be difficult or stressful. Often a family member is a good choice as an agent, but not always. It is important that the person you select agrees to act as your agent and that you tell them your preferences regarding future medical treatment. Please note: your agent cannot be a witness on your MEPOA form. One of the witnesses must be a person who can sign statutory declarations (e.g. doctor, dentist, pharmacist, a minister of religion, a lawyer, a justice of the peace). 2. Completing a Refusal of Treatment Certificate (RTC) In Victoria, if you have a current medical condition, you may give legally binding directions about medical treatment that you do NOT want by completing a RTC. This document records your instructions for limiting the treatment of your current illness and doctors must comply with it when treating you. However, a RTC does not apply to new medical conditions that may arise later. A RTC enables you to refuse some or all current and future treatments for your current condition, except palliative care (relief of pain and suffering). If you become unable to make your own decisions and you have a MEPOA, then this person (your agent) may also complete a RTC on your behalf. 3. Writing down other wishes for future medical care You may choose to record your wishes regarding future medical treatments on a Statement of Choices. This document also enables you to document your health care values. It is still most important to discuss your wishes with your agent (if appointed), family and doctor. Ideally your agent should witness your Statement of Choices. The Statement of Choices is designed to inform your agent, your family and your doctors of your medical treatment wishes in order to assist them in making decisions if you can no longer do so for yourself. Victorian Version. © August 2011 Austin Health 1 of 4 Changing or cancelling advance care planning document(s) You might want to change or cancel your advance care planning document(s) in the future if there is a change in your personal or medical circumstances. For example, the person that you appointed may no longer be the best person for that role, or your goals for medical treatment may have changed. You can change or cancel these documents by drawing a line across the document, writing void on it and signing and dating it. These documents can also be revoked by the completion of new document(s). The most recent dated document overrides the older document. To revoke the Refusal of Treatment Certificate, it is advisable to also fill in the cancellation section of the existing certificate. It is also important to inform your agent, family and your doctors of the changes and provide them with copies of your new documents. Your Advance Care Plan may include any / all of the following: Medical Enduring Power of Attorney Refusal of Treatment Certificate Statement of Choices A written document (signed and dated) outlining your treatment wishes and/ or your values. How to do advance care planning 1. 2. 3. 4. 5. 6. 7. Think about your beliefs, values and your goals for what is important in your life. Talk to your family and friends about your wishes for health care in the future. Talk to your GP, hospital doctor or other health professionals and find out more about your illness and what may occur in the future. Discuss with them your health care wishes. If you wish, choose a person to be your agent, and discuss your beliefs, values, goals, and your wishes regarding medical treatment with them. Ensure that they understand your viewpoint. Write down your choices / wishes in an Advance Care Plan. You need your documents witnessed. One of those witnesses needs to be your doctor. If possible, give copies of your documents to the relevant people (in case they need them in the future); this may include your agent, family or friends, your doctor or hospital. Need further information? Detailed information and help is available for all aspects of advance care planning. Ask to speak to the Respecting Patient Choices® Consultant at the hospital. Phone Respecting Patient Choices® Program at _on: More information is also available from: www.advancecareplanning.org.au www.publicadvocate.vic.gov.au Or call the Office of the Public Advocate on 1300 309 337 Victorian Version. © August 2011 Austin Health 2 of 4 Statement of Choices Victoria A record of my future health care wishes I, declare that: 1) My current health problems* include: of 2) This document has been explained to me and I understand its importance and purpose. I may complete all or part of this document. It is a guide for my future medical treatment*. It will only be used if I am unable to make decisions for myself, and will be taken into account when determining my treatment. 3) I understand that it is important to discuss my wishes with my doctor, and my family, including the ’Person Responsible‘ or my Medical Enduring Power of Attorney (if appointed). 4) I request that my wishes, and the beliefs and values on which they are based, are respected. I have written on page 2 of this form the things that I value most in life, and other things that may help my doctors and other decision makers. 5) I understand that doctors will only provide treatment that might be medically beneficial. I also understand that irrespective of any decisions by the doctor about CPR and life prolonging treatment, I will continue to be cared for, including care to relieve pain and alleviate any suffering. CPR (Cardiopulmonary Resuscitation) Initial appropriate box A It has been explained to me by Dr CPR and I understand and accept this. that I would not benefit from attempted OR I would like CPR attempted if it might be medically beneficial. OR I do NOT want CPR, even if the doctors think it could be beneficial. AND Life Prolonging Treatments Initial appropriate box e.g. breathing machine (ventilator), kidney machine (dialysis), feeding tube, surgery I would like life prolonging treatment in order to prolong my life as long as possible. OR B I would like life prolonging treatments only if the doctors expect a reasonable outcome. To me, a reasonable out come means: OR I do NOT want life prolonging treatments at all. If life prolonging treatment has been commenced I request that it be discontinued and that I receive palliative care. OR C I choose to delegate decisions regarding CPR and life prolonging treatments to my Medical Enduring Power of Attorney or the following person: (insert name of MEPOA and contact number) OR (insert name and relationship) * If you have specific health problems you may choose to complete a Refusal of Treatment Certificate which is legally binding (unlike the Statement of Choices which is a guide). Refer to Advance Care Plan Information Sheet. Victorian Version. © August 2011 Austin Health 3 of 4 The things that I most value in my life are: (eg. independence, enjoyable activities, talking to family and friends): Future situations that I would find unacceptable in relation to my health: Specific treatments that I would NOT want considered for me : Other things that I would like known, which may help with making decisions about my future medical treatment: I ask that, if possible, my Medical Enduring Power of Attorney and / or family include the following people in discussions and decisions about my health care: If I am nearing death I would like the following: (for example, music, spiritual care, customs or cultural beliefs met, family members present): This is a true record of my wishes on this date. My Signature Date Witness’ signature (preferably Medical Enduring Power of Attorney) Witness name (Print) I, Dr believe that (Registered Medical Practitioner) (your name) is competent and understands the importance and implications of this document. Doctor’s signature Name: Relationship: Signature: Date: Date The contents of this Statement of Choices have also been discussed with: Name: Relationship: Signature: Date: Victorian Version. © August 2011 Austin Health 4 of 4 ADVANCE CARE PLAN FOR THE NON-COMPETENT PERSON INFORMATION SHEET Your family member/friend has been assessed as being unable to make independent decisions about their own medical care and, therefore, is regarded as non– competent or not having legal capacity. This, however, may not exclude them from saying what they do and don’t want for themselves. They may assist you in completing an advance care plan on their behalf, based on their wishes. Advance care planning is a process for making and writing down future health care wishes. It is normally undertaken by competent people, with support from their family and doctor. If a person is no longer competent, then their family, particularly the Person Responsible, are able to undertake advance care planning on the person’s behalf. This ensures that the person only receives treatment that the person would want and is in the person’s best interests. The process of advance care planning considers the person’s current state of health, their beliefs, values and goals in life and their future treatment options. It is important when completing an advance care plan on behalf of your family member/friend that you include them, where possible, in these discussions to the best of their ability. A health professional who is trained in advance care planning, is available to guide you through the process. Pre-Existing Advance Care Planning Documents: 1. A previously appointed Medical Enduring Power of Attorney (MEPOA) If the person has previously appointed a MEPOA (referred to as an agent) the agent will now become the primary decision maker for medical treatment on behalf of the non-competent person. A copy of the Medical Enduring Power of Attorney document should become a part of this advance care plan. 2. A previously completed Refusal of Treatment Certificate (RTC) The person may have completed a RTC while still competent. If the RTC is valid for the current illness then the person's refusal of specified treatments, or all treatments, is legally binding and cannot be overridden by the doctors or others. 3. A Previously Completed Statement of Choices The person may have previously completed a Statement of Choices (SOC) or a similar written document expressing their wishes about future medical treatment that they would, or would not want. Although not legally binding, the doctors and the family must take the documented wishes into account when making decisions about medical treatment. You may wish to review previously completed SOC to reflect current circumstances. What advance care planning can be done for a non-competent person? 1. If the person had previously appointed a MEPOA then that agent (usually a family member or close friend) is able to complete a RTC on the person’s behalf. As a legally binding document, the RTC can ensure that the person does not receive unwanted medical treatment or investigation that is related to their current condition. By law a RTC cannot be used to withhold palliative care (the relief of pain and suffering). 1 of 4 May 2009 2. If a MEPOA has not previously been appointed then the person’s medical decision maker, known as the Person Responsible, is identified from a government list. This is usually a family# member. The Person Responsible can consent, or withhold consent, to medical treatment offered by the doctor but they cannot complete a Refusal of Treatment Certificate. 3. Writing down other wishes for future medical care: As the Person Responsible (the MEPOA, if one exists) you may choose to record the wishes of the non-competent person on a SOC. In completing a SOC, and documenting health care wishes, it is important to: Take into account the person’s previous (and current) health care wishes Take into account what is in the person’s best interest (including the benefits and the burdens of possible treatment) Involve discussion with family and significant others Discuss these wishes with their doctor(s) What if a person regains their legal capacity (their competence)? A person who regains their legal capacity is once again responsible for their medical decision-making. The agent’s power ceases while the person remains competent. Changing or cancelling advance care planning documents(s) You might want to change or cancel the advance care planning document(s) in the future if there is a change in the person’s medical condition. You can change or cancel these documents by drawing a line across the document, writing void on it and signing and dating it. These documents can also be revoked by the completion of new document(s). The most recently dated document overrides the older document. To revoke the RTC, it is advisable to also fill in the cancellation section of the existing certificate. It is also important to inform the important family members and their doctors of the changes and provide them with copies of the new documents. How to do advance care planning for a non-competent person: 1. Think about what their beliefs, values and goals would be at this time 2. Involve family and significant others in advance care planning discussions 3. Talk with their doctor(s) about their current and future state of health and how this may impact on what they would regard as an acceptable outcome 4. Document their wishes on a SOC 5. These documents will need to be witnessed by their doctor. 6. Give copies of this document to all relevant people who care for your family member including their doctor(s), aged care facility, family members, and the hospital Need further information? Detailed information and help is available for all aspects of advance care planning. Ask to speak to the Respecting Patient Choices® Consultant at the hospital. Phone Respecting Patient Choices® Program at on: More information is also available from: www.respectingpatientchoices.org.au www.publicadvocate.vic.gov.au Or call the Office of the Public Advocate on 1800 677 402 #Definition of family: Those closest to the person in knowledge, care and affection. This includes the immediate biological family; the family of acquisition (related by marriage/domestic partnership); and the family of choice and friends (not related biologically or by marriage/domestic partnership). 2 of 4 May 2009 Statement of Choices (Victoria) SITE LOGO For the non-competent person A record of future health care wishes This document relates to the following person:_ of (person’s address) 1) I understand that he/she has been assessed as not having legal capacity to appoint a Medical Enduring Power of Attorney or make medical decisions independently. 2) This person has the current health problems*: 3) This document has been explained to me and I understand its importance and purpose. I may complete all or part of this document. It is a guide and will be taken into account when determining future medical treatment* for this person. 4) I request that this person’s wishes, beliefs and values on which these decisions are based, are respected. I have written on this form the things that they value most in life, and other things that may help their doctors and other decision makers. 5) I understand that doctors will only provide treatment that might be medically beneficial. I also understand that, irrespective of any decisions by the doctor about CPR and life prolonging treatment, he/she will continue to be cared for, including care to relieve pain and alleviate any suffering. CPR (Cardiopulmonary Resuscitation) Initial appropriate box A It has been explained to me by Dr_ CPR and I understand and accept this. that he/she would not benefit from attempted OR I would like CPR attempted on him/her if it might be medically beneficial. OR I do NOT want CPR for him/her even if the doctors think it could be beneficial. AND B Life Prolonging Treatments Initial appropriate box e.g. breathing machine (ventilator), kidney machine (dialysis), feeding tube, surgery I would like life prolonging treatment for him/her in order to prolong their life as long as possible OR I would like life prolonging treatments for him/her only if the doctors expect a reasonable outcome. By reasonable outcome I mean: OR I do NOT want life prolonging treatments for him/her at all. If life prolonging treatment has been commenced on him/her I request that it be discontinued and that he/she receive palliative care. * If you are the MEPOA for the above named person, you may choose to complete a Refusal of Treatment Certificate which is legally binding (unlike this Statement of Choices which is a guide). Refer to Information Sheet. 3 of 4 May 2009 The things that he/she most values are: (eg. independence, enjoyable activities, family and friends): Future state(s) of health that he/she would find unacceptable: Specific treatments I believe he/she would NOT want: Other things I would like known about him/her which may help with future medical decisions: If he/she is nearing death I would like the following (for example, music, spiritual care, customs or cultural beliefs met, family members present): I have hereby made choices based on the best interests of taking into account their wishes, the wishes of family members and significant others, and the benefits and burdens of treatment. I request that the stated choices recorded are respected by health professionals, now and in the future. (insert non competent persons name), Name Signature Date Relationship to person I, Dr MEPOA/Person Responsible believe that (Registered Medical Practitioner) (MEPOA/ person responsible name) is acting in the best interests of and on behalf of the person stated above. The MEPOA/Person Responsible understands the importance and implications of this document. Doctor’s signature Name: Relationship: Signature: Date: Date The contents of this Statement of Choices have also been discussed with: Name: Relationship: Signature: Date: 4 of 4 May 2009 PCEHR PLANNING GUIDE 1. Background 2. 3. 4. Registering PLWDs 5. Using eHealth record 6. Version: 28 January 2014 Note that the use of eHealth records is still a fairly new concept, is constantly evolving and its applicability and usefulness will steadily increase over time. An eHealth record provides: personal access to a summary of in individual’s health information that can be viewed via the government www.eHealth.gov.au website at any time the ability for individual’s to add appropriate health information to their eHealth record access to view individual’s Medicare and Pharmaceutical Benefits information the ability for medical professionals, registered with the eHealth record system, anywhere in Australia to view an individual’s eHealth record (with the individual’s permission) emergency access to an individual’s health information if they are incapacitated and unable to provide medical history In the event of an emergency, staff at a hospital will be able to view a summary of the individual’s medical history, current medications immunisation and any know alerts/allergies of an individual who has an eHealth record. For the Dementia and inter-agency care planning project there are four ways in which an eHealth record can benefit a PLWD: By the Key Worker/Carer/Client registering a basic eHealth record for the PLWD By the GP uploading patient data on to the individual’s eHealth record (Key Worker to suggest this to GP) By nominating an Authorised Representative (Guardian/Substitute Decision Maker) on the eHealth record By nominating the Advance Care Directives custodian on the eHealth record (individual’s will be able to upload their Advance Care Directives document in the near future). Key Workers should not expect it to be easy to achieve all the above - achieving any of these points is a significant benefit. PLWDs/Key Workers/Carers can register the PLWD for a national eHealth record by visiting www.ehealth.gov.au or by calling 1800 723 471. Answers to some questions about recent Medicare payments or doctor visits will be required. A unique email address (ie not shared) and MyGov Id are also required if you want to view the eHealth record online. However, this process is simpler if the Key Worker sends a completed Assisted Registration form into IEMML. Once the PLWD has been registered and receives their Individual Verification Code (IVC), refer to the blue booklet titled ‘Setting Up Online Access to your eHealth Record’ and follow the simple instructions. Under ‘Personal’ on the eHealth record, the PLWD (probably with assistance from the Key Worker/Carer) can upload: Personal Health Note Personal Health Summary Details of the Advance Care Directive Custodian 7. PBS and MBS items 8. Future access 9. General Practitioners 10. Recording on s2s 11. Further information Personal Details Emergency Contacts PBS and MBS items will be uploaded automatically if you have selected the option to include the last two years of MBS/PBS items For future access to the PCEHR the MyGov Id and password are required. Answers to the three secret questions must also be known. Note that MyGov Id allows PLWDs to link to a number of Government services e.g. Centrelink, Medicare, Veterans Affairs. GPs have the option to “Opt-In” as an authorised healthcare provider, so proactive use of the eHealth record is the exception rather than the rule at this point in time. When making an appointment; Ask the Receptionist if their practice can upload eHealth records, if they can, request an extended consultation so that the GP can prepare and upload the initial Shared Health Summary. GPs are entitled to claim a higher MBS consultation the first time they upload a Shared Health Summary as they may need to ‘clean’ up the information in the individual’s record e.g. end dating previous medical history and medication items so information uploaded reflects the current health status of the individual Key Workers should not become disheartened if the practice is not registered to the national eHealth record system – the eHealth record is still very useful without the GP input. Both as an indication that the PCEHR has been registered and also as a memory aid for the person living with dementia, carer or service provider, it is suggested that the fact that a PCEHR exists be recorded as follows on the s2s care planning module under ‘Supporting Documentation’ - + Attachment or Link: Label – PCEHR TB123456 (this is the client’s myGov Id number) Click link and enter www.eHealth.gov.au, which will take you to the eHealth website Under Notes, anything pertinent you think might be useful. For further information about PCEHR, go to http://publiclearning.ehealth.gov.au/ Contact Inner East Melbourne Medicare Local, eHealth team on (03) 8822 8444 ORGANIZER QUICK REFERENCE GUIDE GoToMeeting organizers on both personal and corporate plans can hold meetings with up to 25 attendees. Organizers must first create a GoToMeeting account and then download the GoToMeeting desktop application before hosting meetings. Install GoToMeeting 1. From a Windows or Mac, you can practice hosting a meeting by going to www.gotomeeting.com and selecting Host a Meeting. Or, you can also begin downloading GoToMeeting. 2. Enter your GoToMeeting email address and password, and then click Log In. 3. Click Meet Now to start an instant meeting. Schedule a Meeting 1. On a Windows, right-click the GoToMeeting daisy icon in the system tray. On a Mac, double-click the GoToMeeting Suite icon, and select Schedule a Meeting. 2. On the Schedule a Meeting dialog, enter a subject, date and time, and then select the audio information you want to provide to your attendees. W hen you’re done, click Schedule. 3. You’ll see a GoToMeeting invitation email appear in your default email client, which you can send to attendees. Start a Scheduled Meeting Option 1: Start a meeting from your desktop 1. On a Windows, right-click the GoToMeeting daisy icon icon or double-click the GoToMeeting Suite icon on a Mac, and select My Meetings. 2. On the My Meetings dialog, select the meeting you want to start and then click the Start button. Option 2: Start a meeting from the GoToMeeting website 1. 2. 3. 4. Log in to www.gotomeeting.com. On the My Meetings page, locate the scheduled meeting you want to start and click the Start button. If prompted, click Run, Yes or Always to accept the GoToMeeting download. You’ll be automatically launched into the meeting where you can use the Control Panel to begin showing your screen. Start an Instant Meeting 1. On a Windows, right-click the GoToMeeting daisy icon in the system tray or double-click the GoToMeeting Suite icon on a Mac, and select Meet Now. 2. You’ll be automatically launched into the meeting where you can begin hosting your meeting! End a Meeting • • On a Windows, select the File menu from the Control Panel, and then select Exit – Leave Meeting. Or, you also click on your Control Panel or GoToMeeting Viewer or webcam. On a Mac, select the GoToMeeting menu on Control Panel and then select Quit GoToMeeting. You can also select the File menu > End Meeting. Or, you can click on your Control Panel or GoToMeeting Viewer or webcam. © 2012 Citrix Online, LLC. All rights reserved. 1 ORGANIZER QUICK REFERENCE GUIDE Manage Audio Now you have an extended choice of audio conferencing for your online meetings. With GoToMeeting’s integrated audio, you can choose to connect to the audio conference using telephone and/or mic and speakers (VoIP). Note: If you choose to provide your own conference call information for the meeting, GoToMeeting will include your dial-in numbers with the meeting information; however, GoToMeeting audio features (such as VoIP and integrated audio controls) are disabled if you choose this option. VoIP Best Practices Audio quality can vary based on your audio software, hardware manufacturer and operating system. When using VoIP, the following best practices are recommended: • As with any online meeting solution, it is important to test your sound quality and audio settings before your live meeting. In addition to testing your audio settings from the GoToMeeting Audio pane, we recommended that you start your meeting ahead of time with a few test attendees so they can provide feedback on your voice quality. • For optimum sound quality, a headset is recommended, preferably a USB headset for ease of use. • If a headset is not available, a microphone and speakers are required, preferably a USB microphone for ease of use. • If using a microphone, it should be at least 1.5 feet away from any speakers that are built in or connected to your computer. • Using your webcam’s microphone is not recommended. • If you plan to record your meeting, be sure to start your meeting ahead of time and test the Recording feature. To join the audio portion of the meeting via mic & speakers 1. Expand the Audio pane in your Control Panel. 2. Select Use Mic & Speakers (b) 3. You will be automatically connected into the audio conference over VoIP. Note: Windows organizers may change the audio input and output from the Audio Preferences tab which is accessed from the File menu. Mac organizers may manage the audio input and output directly from the Audio pane (c) or from the Audio menu in the toolbar. To join the audio portion of the meeting by telephone 1. Expand the Audio pane in your Control Panel. 2. Select Use Telephone (a) 3. Dial in to the conference call with the information provided. © 2012 Citrix Online, LLC. All rights reserved. 2 ORGANIZER QUICK REFERENCE GUIDE During a conference call, participants and organizers can enter commands using their phone keypads. Organizer Telephone Commands Command *2 Feature Count *3 *4 *5 Exit Menu Listening Modes *6 *8 Mute/ Unmute Tone controls Details Provides the number of participants currently on the conference call. Exits the conference call. Provides a menu of available conference commands. Sets listening modes for audience. Pressing *5 sets the following options: Open conversation mode (default), Mute the audience – the audience can unmute, Mute the audience – the audience cannot unmute. Mutes the organizer’s line. Pressing *6 again will unmute the line. Sets entry and exit tones. Pressing *8 sets the following options: Entry and exit tones on (default), Entry and exit tones off, Entry tone off exit tone on, Entry tone on exit tone off. Attendee Telephone Commands Command Feature Details *3 *4 Exit Menu Exits the conference call. Provides a menu of available conference commands. *6 Mute/ Unmute Mutes the attendee’s line. Pressing *6 again will unmute the line. Use Presenter Controls The Control Panel Grab Tab enables organizers and presenters to collapse the Control Panel to minimize space when accessing desktops while still being able to access the Grab Tab. • Click and drag to move Grab Tab up or down (a) • Hide or display Control Panel (b) • Mute or unmute your audio line (c) • Share or disable your webcam (d) • Share your screen with participants (e) • Pause your shared screen so the image of your desktop remains frozen (f) Give Keyboard & Mouse button grants shared mouse and keyboard controls to another participant (g) • • • Pass the Presenter Role to another participant (h) Draw, highlight and place arrows onscreen, as well as use the spotlight and clear all markings (Windows only) (i) © 2012 Citrix Online, LLC. All rights reserved. 3 ORGANIZER QUICK REFERENCE GUIDE Share Your Webcam Meeting participants can share up to 6 high-resolution video conferencing streams while viewing the presenter's screen. You can share your webcam in any of the following ways: • • • • • Click the webcam button on the Grab Tab. Click the Share My Webcam button in the Webcam pane on the Control Panel. Select Share My Webcam from the Webcams drop-down menu. Click the webcam button next to your name in the Attendee List (Windows-only). Right-click your own name in the Attendee List and select Share My Webcam. Manage your webcam from your video feed • Temporarily Pause/Play your video by selecting the Pause or Play button on the top-right corner of your webcam feed. (a) • Resize the webcam viewer and screen sharing using the slider. You can click and drag any part of the slider to adjust the display. (b) • When only webcams are being shared, participants can resize webcams by clicking and dragging the bottom-right corner of the Viewer. Expand and minimize how webcams and/or screen sharing is displayed by clicking and dragging the bottom-right corner of the viewer. If only webcams are being shared (not screen sharing), you can adjust the size and position of the webcam viewer by using the Webcams drop-down menu and selecting one of the following Webcam Positions: Top, Left, Bottom, Right. © 2012 Citrix Online, LLC. All rights reserved. 4 ORGANIZER QUICK REFERENCE GUIDE Manage Attendees Organizers can manage attendees by right-clicking or Ctrl-clicking attendee names in the Attendee List and selecting or deselecting the desired attendee options. • Displays the number of attendees and maximum number of attendees for the meeting (a) • • Indicates attendee role and color of assigned drawing tool (b) Mute or unmute the attendee (c) • Mute or unmute all attendees (d) • Assign an attendee with presenter and/or organizer roles (e) • Give keyboard and mouse controls to an attendee (f) • Provide an attendee with on-screen drawing tools (g) • Choose pen color for yourself or your attendees (h) • Allow your attendee to see the list of other attendees (i) Allow your attendee to chat (j) • • Send a chat message directly to the attendee (k) • Copy the attendee’s email address to the clipboard (l) • Dismiss an attendee from the meeting (m) © 2012 Citrix Online, LLC. All rights reserved. 5 s2s demonstration site guide – to access care planning module 1. The s2s demonstration module can be accessed on https://demo.s2s.org.au 2. Login as homer with password infoxchange. 3. Select the role of Allied health practitioner Banyule Community Health Service, West Heidelberg Centre Occupational Therapy 4. Go Client – Care Plans - My Care Plans 5. Find and open Angelina Pomodoro 158105 – this is on the second page 6. Open the Person Centred Story. 7. Look down the screen at the goals and see how these have been developed from the Person Centred Story. [NOTE THAT THE PERSON CENTRED STORY HAS NOW BEEN BROKEN DOWN INTO TWO COMPONENTS – ONE PAGE PROFILE AND CLINICAL BACKGROUND DOCUMENT.] 9. YOUR SUPPORT PLAN – consumer pamphlet The embedded Support Plan below is intended for use by people living with dementia and their carers. The aim is to provide an overview of what is involved in inter-agency care planning for dementia and electronic care coordination. Your Support Plan final.docx This pamphlet also provides a succinct overview of inter-agency care planning and electronic care coordination. When printing it off, flip on short side and create a tri-fold document. /… 10. PLANNING THE PLAN – a guide for practitioners Remember when writing a plan that it is a long term project. The initial effort will be time-consuming but you are setting up a plan that should accompany the client throughout his/her journey. Although the plan is a living document, changes after the initial Case Conference are likely to be incremental only apart from major changes in health or living situations. Note that the s2s module is not laid out in a logical fashion as regards inviting participants. Goals should be worked out before participants are invited, not the other way round. Also note that it is important how you present care planning to clients. Initially you should speak of broad benefits or example e.g. kinds of home modifications that can be arranged, meals on wheels, HACC services, Advance Care Planning, Personally Controlled Electronic Health records, respite, linking carers in with people who can provide advice and assistance. The second phase is where you can be more specific about what benefits there could be for the client/carers/families. It is of a more personal nature e.g. Mary could attend a PAG at XYZ on Tuesdays, we can help with labelling items in the home, we can arrange overnight respite etc. You will only be able to do that when you have planned the plan. The steps for planning a plan are laid out below. 1. 2. 3. 4. 5. 6. 7. 8. 9. Read and attach L@HA Write One Page Profile Formulate Reason for Plan Set a review time and date for the Initial Case Conference Create a list of issues. Do this on paper listing issues, possible strategies and who will be involved. These should include: a. Personal issues – usually arising from One Page Profile or carers/family – things important to the client/carers b. Educational/advice/respite needs for carers c. HACC services – these will often relate back to their medical needs d. Advance Care Planning e. PCEHR f. Home modifications (physical and management) g. Other Prioritise those issues. The first version of the care plan should include immediate issues. You can note issues for further attention e.g. PCEHR and Advance Care Planning and have the strategy to pursue those further at the next review date but do not attempt to do to much immediately. From your list of issues, work out who will be involved in the care plan and should be invited. Remember to invite, immediately after the Key Worker, the client and the carer(s). For s2s members, Add participants and in the notes write ‘You are invited to participate in this ECC plan – the initial online Case Conference will be at XX time on YY date’. Copy this from the first invitation so that you can paste it into all subsequent s2s invitations. For non-s2s members, write in the participant’s name and then enter details in the screen that pops up. 10. Then use GoToMeeting to Schedule the initial Case Conference. Follow the instructions in the Manual re pasting the ‘Invitation to Participate in an Electronic Care Coordination Plan’ at the top of the GotToMeeting invitation. If a GP is involved, schedule a 15 minute Case Conference and specify that e.g. 10.30-10.45 on Thursday 22 May. 11. Create goals for each issue – ensure goals are small enough to achieve by the next review and note that they will frequently have to be planned in stages. That is, the initial goal will often read ‘discuss’ rather that do. The first review might be to further discuss, the second review to write, the third to place on record etc. 12. Create outcomes for each goal – if you have written a ‘smart’ goal incorporating outcomes, then just put ‘As above’. 13. Create strategies for each goal 14. Create tasks for each strategy – decide who will do each task and on the importance and difficulty 15. Collect care plan summaries 16. Hold Case Conference using GoToMeeting 17. Click on the Review (bottom of screen) and then Edit Review. 18. Use the template and drop down lists to record progress and client and participant comments. 19. Be prepared for participants wanting to alter goals, outcomes and target dates. That is their right – they will often have a better idea of what is achievable than the Key Worker. 20. Write Case Conference summary and set the following review date. ******************** 11. DEMENTIA AND INTER-AGENCY CARE PLANNING RESOURCE LIST Participants are invited to submit to info@iepcp.org.au any resources that could be useful for this project. Remember that we are not looking for every possible item about dementia and its management but rather documents that distil the main points into a useable format. The ultimate aim is to produce a simple decision trees, checklists or frameworks that will assist practitioners to systematically take all necessary steps for the better management of dementia. 1. ‘Dementia Pathways Tool’ – designed primarily for GPs and practice nurses but could be a useful tool. It may be best as a second level resource i.e. one step removed from a basic checklist or decision tree. It is a high quality document. Grampians Medicare Local http://www.grampiansml.com.au/dpp/ 2. ‘Dementia Services Pathways’ – main DoHA website on dementia – contains good background information http://www.health.gov.au/internet/publications/publishing.nsf/Content/ageing-dementiaservices-pathways-2011-toc.htm~ageing-dementia-services-pathways-2011-framework.htm 3. ‘A Guide to services for people with dementia and their carers 2012’, Department of Health. An excellent overview and conceptual framework – see http://www.health.vic.gov.au/hacc/downloads/pdf/dementia_pathways2012.pdf 4. An EMR Dementia Services Directory has been drafted and is currently circulating for comment and feedback. EMR Dementia EMR Dementia Services Directory V6Services Directory V6 5. ‘A Plan of Care’ – described as a book to help people in New South Wales make health and personal care decisions on behalf of a person with dementia. Treat as background reading. 20130605-Plan-of-C are-book.pdf 6. ‘Starting the conversation’ – a short introductory DH video on advance care directives. Could be useful as a quick training tool. http://www.health.vic.gov.au/acp/ 7. For Victorian Advance Care Planning templates for both competent and non-competent persons and also Enduring Medical Power of Attorney template. http://advancecareplanning.org.au/resources/victoria 8. Refusal of treatment Certificate- competent person. This is contained within the Medical Treatment Act 1988 http://www.legislation.vic.gov.au/domino/Web_Notes/LDMS/LTObject_Store/LTObjSt6.nsf/ DDE300B846EED9C7CA257616000A3571/6D329679B5FA4D17CA2579FE001CD4EE/$FILE/88 -41aa046%20authorised.pdf 9. ‘Dementia statistics for Victoria’, 2013 report commissioned by Alzheimer’s Victoria/Australia. Contains detailed information about prevalence and incidence of dementia down to LGA level. http://www.fightdementia.org.au/victoria/dementiastatistics-for-victoria.aspx 10. ‘IEPCP Electronic Care Coordination Manual. ‘ Sets down the procedures to be followed in implementing the Electronic Care Coordination Manual including person centred planning. Electronic Care Coordination Manual 11. MOOC Dementia Course - 2014 This course is highly recommended. The University of Tasmania'a Understanding Dementia massive open online course (MOOC) has attracted 9300 registrations from more than 60 countries, with plans to continue the course twice a year, starting again next March. The MOOC, which is a free 11-week course delivered online and requires about three hours a week of study, covers both the science of dementia and evidence-based strategies for professional care, is aimed at anyone with an interest in dementia care as well as healthcare professionals, community and residential facility support staff and people in the early stages of the disease. See http://www.utas.edu.au/wicking/wca/mooc for more details and to register for 2014. 12. Health pathways Here are the links to the Cognitive Impairment / Dementia pathway: Hunter New England http://trial.healthpathways.org.au/21918.htm Username: trialHPA Password: first Canterbury http://trial.healthpathways.org.nz/21918.htm Username: trialHP Password: leap 13. Dementia, Driving and Mobility http://www.racv.com.au/wps/wcm/connect/racv/Internet/Primary/road+safety/advice+_+inform ation/drivers+with+a+disability/dementia+and+driving 14. CALD sources See http://www.seslhd.health.nsw.gov.au/Multicultural_Health/Events/docs/Santalucia.pdf For overview and further references. 15. Carers and Support Best single source http://www.fightdementia.org.au/ Useful information particularly for carers and a general overview of dementia and its management. See Services and Support. 16. At Home with Dementia – a NSW publication with useful tips on what to do to make the house safe and user-friendly https://www.adhc.nsw.gov.au/ data/assets/file/0011/228746/at_home_with_dementia_ web.pdf Particularly useful for carers. 17. Assisted Living Centre – advice and information on technology http://ilcaustralia.org.au/contact_us/victoria 18. Beyond Life Histories – a HISA resource at Person Centred approaches 201 level. Nine ways to apply a personalised approach to dementia. http://www.helensandersonassociates.co.uk/media/86863/beyondlifehistories.pdf 19. http://www.health.nsw.gov.au/dementia/Publications/assessment-mgmt-people-bpsd.pdf will take you to ‘Assessment and Management of People with Behavioural and Psychological Symptoms of Dementia (BPSD) - A Handbook for NSW Health Clinicians’. This is a very comprehensive coverage of dementia and should be of interest to clinicians with the time to read it or to be used as a reference when problems arise. 20. i ii iii Dementia Prevalence in Victoria – The Statistics 2013. Alzheimer’s Australia 2013 Dementia Prevalence in Victoria – The Statistics 2013. Alzheimer’s Australia 2013 ABS (2009) Survey of Disability, Ageing and Carers. Access Economics (2010) The Economic Value of Informal Care in 2010 v Access Economics (2010) The Economic Value of Informal Care in 2010 iv