Oversight of the 12 Cities Project: How Coordination and Integration are Changing How We Fight HIV/AIDS Vera Yakovchenko, MPH, HHS/OHAIDP Stewart Landers, JD, MCP, John Snow, Inc. RW 2012 Grantee Meeting November 27, 2012 Disclosures This continuing education activity is managed and accredited by Professional Education Service Group. The information presenting in this activity represents the opinion of the faculty. Neither PESG, nor any accrediting organization endorses any commercial products displayed or mentioned in conjunction with this activity. Commercial support was not received for this activity. Disclosures Vera Yakovchenko, MPH has no financial interest or relationships to disclose Stewart Landers, JD, MCP has no financial interest or relationships to disclose CME Staff Disclosures – Professional Education Services Group staff have no financial interest or relationships to disclose Learning Objectives To enhance grantees’ understanding of how the 12 Cities Project relates to and differs from ECHPP and the NHAS To disseminate successful efforts at coordination and integration that have been implemented in the 12 cities To discuss and brainstorm how to address challenges that arise from increased coordination Obtaining CME/CE Credit If you would like to receive continuing education credit for this activity, please visit: http://www.pesgce.com/RyanWhite2012 Overview of Evaluation Undertaken by the Office of the Assistant Secretary for Health (OASH), Office of HIV/AIDS and Infectious Disease Policy (OHAIDP), U.S. Department of Health and Human Services (HHS) John Snow, Inc. (JSI) contracted by OHAIDP to conduct evaluation and prepare report Conducted August 2011 - July 2012 What is the 12 Cities Project (12 CP)? Developed by HHS to address the fourth goal of the National HIV/AIDS Strategy: Achieve a more coordinated national response to the HIV epidemic in the United States “…an effort to support comprehensive HIV/AIDS planning and cross-agency response in 12 communities hit hard by HIV/AIDS…” - 2011 HHS Operational Plan: Achieving the Vision of the NHAS Federal Partners Figure 2: 12 Cities Project Federal Partners The 12 Cities* Representing 44% of the AIDS cases in the U.S.: • New York City, NY • Philadelphia, PA • Los Angeles, CA • Houston, TX • Washington, DC • San Francisco, CA • Chicago, IL • Baltimore, MD • Atlanta, GA • Dallas, TX • Miami, FL • San Juan, PR * By AIDS prevalence highest to lowest 12 CP/NHAS Principles Concentrate resources where epidemic most severe Coordinate Federal resources and actions across categorical program lines Scale up effective HIV prevention and treatment strategies Selected 12 CP Activities Provide a complete mapping of Federally funded HIV/AIDS resources in each jurisdiction Identify opportunities to harmonize and streamline Federal reporting and other grant requirements Identify and address local barriers to coordination across HHS grantees Develop cross-agency strategies for addressing gaps in coverage and scale of necessary HIV prevention, care, and treatment services Actively promote opportunities to blend services and funding streams across Federal programs Purposes of the Evaluation Answer these two questions: Has the 12 CP helped achieve a more coordinated national response to the HIV epidemic in the U.S.? Did local jurisdictions undertake coordination, collaboration, and integration (CCI) efforts of their own? Make recommendations to improve ongoing and future efforts Identify and share successes Definition of CCI Collaboration Coordination Integration A more comprehensive and seamless approach to addressing the HIV epidemic Primary Evaluation Question What has been the impact of the 12 CP on CCI among Federally-funded HIV programs at the local level? Five domains: • • • • • planning resources programs/services communication data systems Qualitative Approach Qualitative Focus General Definition Meaning Participant perspectives and how they understand phenomena being studied Local partners understanding of the purpose and role of 12 CP Context Situation of participants and how events, actions, and meanings are shaped by local circumstances Local factors that have affected implementation of 12 CP in each jurisdiction How events occurred or actions were undertaken, and how they led to particular outcomes Activities undertaken by local partners related to 12 CP and purpose or goals of those actions How X plays a role in causing Y, and the process that connects X and Y Potential impacts of 12 CP and Federal activities on jurisdictions Processes Explanations Application to 12 CP Evaluation Data Collection Steps Materials Review Federal Context Local Experiences Federal Agency Findings Greater understanding of 12 CP among traditional partners (CDC, HRSA) Specific activities by each agency • MAI-TCE, CFAR grants, BPHC training, IHS add-ons 12 CP Impact: • Facilitated communication within and across agencies • Supported use of resources for the 12 jurisdictions • Emphasized reducing reporting burden while measuring systems-level changes and outcomes Discussions with the 12 Cities Assessed the 12 CP overall, not local performance Explored: • Understanding of goals and purpose of the 12 CP • Progress toward increased CCI of Federally funded HIV/AIDS prevention, treatment, care services locally • Groups, organizations, or individuals involved in efforts to increase CCI • Factors that helped or hindered efforts to improve or increase CCI • Technical assistance received or needed • Monitoring and measurement of CCI activities JSI identified 7 themes Understanding of the 12 CP and its goals varied across and within jurisdictions Understanding of the 12 CP varied by role and position of the stakeholder 12 CP was perceived primarily as a Federal initiative 12 CP has encouraged new partnerships Ongoing communication between Federal and local partners is necessary to achieve 12 CP goals Open communication between local and Federal partners is welcome and appreciated Involvement in local CCI efforts has varied across Federal partners Many Federal programs can be engaged that have not been Increased coordination of HIV prevention and care planning has occurred in response to a range of initiatives, including 12 CP Community planning activities a continuum of CCI efforts to bridge care and prevention New partners have joined community planning efforts. Data are driving planning efforts in new ways. Access to information about all HIV resources and services in the jurisdictions can enhance community planning. Lack of Federal guidance can impede planning. 12 CP has reinforced and provided a rationale for jurisdictional progress toward integration of HIV care and prevention services Some HIV services enhanced and integrated • HIV testing • Linkage to care • Prevention with positives Perceived need for CBOs to merge with clinical providers, concern about impact of these changes Funding mechanisms have encouraged CCI and new partnerships locally, and can be used more effectively to achieve goals of the NHAS and 12 CP. Federal guidance for requests for proposals (RFPs), FOAs, and grants are significant tools for communicating 12 CP priorities and encouraging CCI. Federal funding reporting requirements on service provision a barrier to local CCI. Local funding initiatives can guide CCI and new service delivery models. Data are driving decision making in new ways, but data collection and reporting remain significant challenges. Jurisdictions using surveillance data and triangulating data to plan and target resources Jurisdictions are coordinating and integrating data across systems Federal HIV prevention and care data systems need to be better coordinated Lack of consistent definitions of terms and eligibility criteria across Federal funders impedes CCI efforts CCI is resource intensive, requiring time, staff, funding, communication, and support. CCI was already in place CCI can be challenging • Resource strain, role of ACA, Ryan White reauthorization Trust is an important facilitator of CCI Summary of CCI Progress Integrated HIV planning New Federal and local partner participation in local activities Increased communication between Federal and local partners Increased access to some data (e.g., local HIV resources) Coordination and integration of some HIV prevention and care services Increased use of data to guide planning and decision making Ongoing Facilitators HHS leadership Local leadership and structures that support coordination and de-emphasize competition Prior CCI-related initiatives (e.g., PCSI, ECHPP, EIIHA) New and existing local relationships Funding to support CCI Ongoing Facilitators Development of trust through small successes A history of working together Data sharing to effectively target services Integrated data systems for monitoring and reporting Access to information on HIV resources in local jurisdiction Ongoing Barriers Lack of clarity about 12 CP and local role Variable involvement of Federal and local partners Lack of coordination across Federal funding streams Political or administrative “boundaries” National recession and state budget cuts Time, resource constraints, and competing priorities Ongoing Barriers Disparate Federal and local reporting requirements Different Federal definitions of terms and criteria Incompatible data systems Mastering a large, complicated system Recommendations Make any new programs “user friendly” and adaptable to the needs of the jurisdictions. More support is needed for CBOs that are exploring efforts to integrate clinical services or to merge with clinical providers. HHS should work with its agencies to identify a common guidance or framework for HIV prevention and care planning. Recommendations A consistent practice of notifying state and local jurisdictions of directly funded services and programs HHS should develop and implement a small number of common indicators “HIV regional planning areas” that would act to clarify and consolidate jurisdictional issues with respect to Federal funding streams Questions for HHS What role could programmatic guidance and benchmarks have in assisting to clarify goals related to future CCI efforts? How can activities at the Federal level best be viewed through the lens of the needs of local (and state) jurisdictions? How can information about Federally funded activities at the state and local level best be shared? How local/state jurisdictions use that information to improve CCI? Questions for Local Jurisdictions To what extent have localities coordinated or integrated their Federal funding steams in response to the HIV/AIDS epidemic? What are the major breakdown points and greatest areas of fragmentation? What methods have been most effective to effect this coordination i.e. a staff person with responsibility, crossprogram teams, development of logic model, etc.? How can local/state jurisdictions communicate clearly with Federal liaisons (POs, regional reps, etc.) regarding further actions required to support CCI at the local level? Questions for Everyone How do we better bridge the role and function of the Federal government, state and local health departments and CBOs? What is the evolving role of CBOs and how should they be redefined? What steps can be taken to further coordinate these funding streams that would assist us in achieve both locally set priorities as well as the goals of the NHAS? Acknowledgements Dr. Ron Valdiserri, Vera Yakovchenko, Dr. Andrew Forsyth, and other OHAIDP staff Representatives from Federal partner agencies (CDC, CMS, HRSA, IHS, NIH, USPHS, and SAMHSA) Acknowledgements ECHPP contacts in each city and other individuals provided information, assisted with meeting logistics, and/or participated in meetings. The following were the initial contacts and for each of the 12 Cities: Blayne Cutler Donato Clarke Dara Geckeler New York City, NY Atlanta, GA San Francisco, CA Jacqueline Rurangirwa Marlene Lalota Heather Hauck Miami, FL Baltimore, MD Nestor Rocha Coleman Terrell Ann Robbins Washington, DC Philadelphia, PA Dallas, TX David Amarathithada Marlene McNeese-Ward Margaret Wolfe Chicago, IL Houston, TX San Juan, PR Los Angeles, CA Coordinating HIV Prevention & Care in NYC Graham Harriman, MA, LPC Interim Director Care and Treatment Bureau of HIV/AIDS Prevention and Control How It All Fits Together… NHAS: (2011-2015) 12 Cities Project: (HHS) CDC SAMHSA NIH HRSA ECHPP Phase I in NYC (2010-2011) • Situational Analysis (3-4 months) • Assessment of current NYC landscape • Describe activities underway in each of 24 CDC interventions • Comprehensive review of HIV prevention in NYC: • Development of goals and objectives for project period. • Preliminary modeling results: maximal infections averted • • • • • • Maximize HIV testing and linkage to care Condoms, particularly high risk HIV (+) persons Social marketing to HIV (+) persons Community level interventions Screening/treatment of STDS, SU/MH for HIV+ Partner services Key Shifts Accelerated by ECHPP/NHAS ECHPP Phase II in NYC (2011-2013) • Further Scale Up of ‘Coefficients’ in TLC Strategy: • Testing • Enhance/Expand Jurisdictional HIV Testing • Shift in NYS Testing Law (September 2010) • Rebid of testing portfolio, use of MPAs (2011) • Linkage to Care • Contractual incentives for linkage and navigation (2011) • Required ARTAS training (2011) • Treatment • Medical case management for engagement/retention (2009) • Early ART recommendation (December 2011) Key Shifts Accelerated by ECHPP/NHAS ECHPP Phase II in NYC (2011-2013) • Enhancing Prevention Among HIV (+) Persons • • • • Clinic-based pilot of three PWP risk reduction models (2012) Condom distribution to HIV (+) ‘universe’ (2011) The Positive Life Workshop (September 2011) Enhancement of PS for newly diagnosed and AHI cases • Scale back low yield/high cost interventions • EBIs for low prevalence populations (2012) • Cofactor screening for low prevalence populations (2012) • Deploy relevant structural interventions • Ex: change in NYS testing law (2010) • Early ART (December 2011) Key Shifts Accelerated by ECHPP/NHAS ECHPP Phase II in NYC (2011-2013) • RFP Prevention Rebid Service categories reflect ECHPP/NHAS goals: 1. 2. 3. 4. 5. Integrated sexual/behavioral health for priority pops System level/structural change CLIs/community mobilization Condoms for highly impacted populations Demonstration projects in CDC core areas Biomedical/behavioral interventions that can reduce HIV incidence Innovative HIV testing activities Enhanced linkage to and retention in care Advanced use of technology Prevention & Care Collaboration: Examples on the Ground • • • • • • PWP Pilot Condom Distribution to HIV Primary Care Universe Expansion of PS to more newly diagnosed & AHI cases Testing (Joint RFP-2011) Data Alignment (E*Share; PCSI data analyses) Training • Development and Roll out of Positive Life Workshop • Alignment of Training and Technical Assistance Programs PCSI Grant • $352,000 per year for 3 years to NYC DOHMH • primarily planning/internal infrastructure grant to streamline data analysis and services. • Began Sept. 30, 2010 and ends September 30, 2013. • Coordinated by the DOHMH Division of Disease Control • Opportunities for greater integration of services: • Data cross-match between registries • Partner services • Curriculum integration: HIV, STDs, Hepatitis, TB • Comprehensive sexual health module • Joint HIV/Hep C testing modules Impact of ECHPP and PCSI in NYC • Enhanced collaboration within BHAPC units • Alignment of research agenda • between academic and public health entities • Data integration between disease registries • Mapping co-occuring diseases • Real-time registry cross-matching • Improved partner services delivery • Lens to focus all stakeholders on NHAS targets • ECHPP/PCSI has helped foster increased attention by planning groups as well as clinical/non-clinical sites and government agencies on achievement of NHAS targets. Thank You Graham Harriman gharriman@health.nyc.gov 347.396.7418 DC 12 Cities Project Michael Kharfen Division Chief, Partnerships, Capacity Building & Community Outreach Interim Division Chief, STD/TB Control HIV/AIDS, Hepatitis, STD & TB Administration District of Columbia Department of Health Changing Public Health Environment ACA NHAS 12 Cities ECHPP PCSI Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration DC 12 Cities Project Overview Goal: Develop Integrated Behavioral Health Network for Focus Population Persons living with HIV or High Risk of HIV with co-occuring conditions of substance use disorder and/or serious persistent mental illness Objective 1: Integrate linkage and navigation support infrastructure Objective 2: Increase utilization of services Objective 3: Improve and expand provider network capacity to serve individuals with multiple needs Objective 4: Create a mechanism for sharing information across systems (HIE) Objective 5: Develop a sustainability plan Objective 6: Develop and implement an integrated prevention risk management plan Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration DC 12 Cities Project Overview Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Provider Crosswalk Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Objective 1: Integrate Linkage and Navigation Support Infrastructure Introduce HIV testing/screening at Substance Use and Mental Health intake and assessment sites Standardize mental health screening process Standardize substance abuse screening process Develop connection pathways to service system Improve cross‐agency coordination and collaboration Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration “No Wrong Door” Approach ARC UCC HIV Government of the District of Columbia GAIN Screen MH DX MH HIV Test HIV DX HIV GAIN Screen SA DX SA HIV Test HIV DX HIV SA DX SA MH DX MH GAIN Screen Department of Health Coordinated Care HIV/AIDS, Hepatitis, STD, and TB Administration Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration STD Clinic Pilot 2 month demonstration GAIN short screener Total Surveys 1,248 MH Referrals 71 SA Referrals 31 Pending Follow-up 37 Refused Surveys 36 Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Conclusion Integration is not easy Inter/Intra agency collaboration Separate service networks Data systems and data restrictions Different points of entry Opportunities Coordinated patient care Better health outcomes Leveraging resources Time and Persistence Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Thank You Michael Kharfen (202) 671-4809 Michael.Kharfen@dc.gov Government of the District of Columbia Department of Health HIV/AIDS, Hepatitis, STD, and TB Administration Collaboration, Coordination, and Integration (CCI) in San Francisco 2012 Ryan White Grantee Meeting November 27, 2012 Presentation developed by Tracey Packer, Acting Director of HIV Prevention Presented by Bill Blum, LCSW, Director of HIV Health Services San Francisco Department of Public Health Coordination* to place or class in the same order, rank, division, etc. to place or arrange in proper order or position. to combine in harmonious relation or action. *Dictionary.com Collaboration* to work, one with another; cooperate, as on a literary work: creating a culture where agencies are naturally more interconnected and their programs are better aligned. *Dictionary.com Integration* an act or instance of combining into an integral whole. necessary to the completeness of the whole *Dictionary.com CCI in San Francisco – some examples Collaboration: working with police, and other City departments to explore eliminating condoms as evidence for sex work. Coordination: syringe disposal in alley outside clinic, Minority AIDS Initiative Targeted Capacity Expansion Integration: HIV Health Services (CARE funding) and HIV Prevention joint meetings to coordinate treatment as prevention, funding PWP as part of Centers of Excellence as well as coordination and possible integration of the two planning councils CCI: Health Department reorganization/integration (PCSI) Facilitating Factors of CCI Funding for CCI Efforts Required deliverables (ECHPP, PCSI) Achieving outcomes Attending to patient needs holistically Ability to address the social determinants of health Reduction of data burden (sharing and integrated systems) Barriers to CCI: “If you think everyone’s in your business, it’s because everyone’s in your business” “The only thing worse than them talking about you is them not talking about you” Conflicting scopes Culture/communication Data requirements Decrease in funding Lessons Learned CCI is an effort unto itself Focus on areas of commonality (populations) Practice humility and humor Take Risks around Change Develop a common language Understanding Change (communication) Lesson #2: This is not new •HIV testing •Partner services •STD prevention and treatment •Addressing drivers and co-factors of HIV •Linkage to medical •Risk reduction activities •Community mobilization efforts HIV and STD •Public information efforts Prevention •Condom distribution •Syringe access •PEP •Core Surveillance •Incidence Surveillance •Medical Monitoring •NHBS •Vaccine studies •PrEP research •HIV drug resistance testing Surveillance, Evaluation and Research HIV Care and Support Services Primary Care and HIV treatment •Linkage to medical care •Behavioral Health Services •Home Health Service •Non-medical case management •Food Bank / Home-delivered meals •Client Advocacy-related services •Emergency financial assistance •Legal services •Housing services •Oral health care •Outreach services •Engagement in care •Treatment Adherence •Medical Case management •ADAP •Community Health Care •HIV specialty medical care •Treatment Guidelines •STD and TB Source: Nieves-Rivera, 2010 Build and strengthen relationships Health departments Federal and state agencies Researchers Capacitybuilding providers Clinical providers Communitybased providers Community planning groups Our direction is clear: “If they [steps in the NHAS] are to have any impact, individuals and groups all over the country will need to follow the path described and produce a more coordinated, collective response to HIV.” “With government at all levels doing its part, a committed private sector, and leadership from people living with HIV and affected communities, the US can dramatically reduce HIV transmission and better support people living with HIV and their families.” National HIV/AIDS Strategy, July 2010