There is no trust more sacred than the one the world holds with children. There is no duty more important than ensuring that their rights are respected, that their welfare is protected, that their lives are free from fear and want and that they grow up in peace. Kofi A. Annan The “ACE” Study & Unaddressed Childhood Trauma Presented by Ann Jennings Ph.D. www.TheAnnaInstitute.Org Anna’s Story This is Anna at age one and a half This is Anna years later – in a mental institution What happened? Anna Caroline Jennings 1960 - 1992 The Adverse Childhood Experiences Study (ACE) Collaboration between Kaiser Permanente’s Department of Preventive Medicine in San Diego and the Center for Disease Control and Prevention (CDC) ACE Study slides are from: Robert F. Anda MD at the Center for Disease Control and Prevention (CDC) September 2003 Presentation by Vincent Felitti MD “Snowbird Conference” of the Child Trauma Treatment Network of the Intermountain West “The Relationship of Adverse Childhood Experiences to Adult Medical Disease, Psychiatric Disorders, and Sexual Behavior: Implications for Healthcare” Book Chapter for “The Hidden Epidemic: The Impact of Early Life Trauma on Health and Disease” Lanius & Vermetten, Ed) What is the Adverse Childhood Experiences (ACE) Study? Decade long. 17,000 people involved. Looked at effects of adverse childhood experiences over the lifespan. Largest study ever done on this subject. ACE Study Findings Childhood experiences are powerful determinants of who we become as adults Adverse Childhood Experience* Categories Abuse of Child Recurrent Severe Emotional abuse Recurrent Physical abuse Contact Sexual abuse Trauma in Child’s Household Environment Substance abuse Parental separation or divorce Chronically depressed, emotionally disturbed or suicidal household member Mother treated violently Imprisoned household member Loss of parent – (by death, by suicide, - or by abandonment) Neglect of Child Abandonment Child’s basic physical and/or emotional needs unmet Impact of Trauma and Health Risk Behaviors to Ease the Pain Neurobiologic Effects of Trauma Health Risk Behaviors * Above types of ACEs are the “heavy end” of abuse. Disrupted neuro-development Difficulty controlling anger-rage Hallucinations Depression Panic reactions Anxiety Multiple (6+) somatic problems Sleep problems Impaired memory Flashbacks Dissociation Smoking Severe obesity Physical inactivity Suicide attempts Alcoholism Drug abuse 50+ sex partners Repetition of original trauma Self Injury Eating disorders Perpetrate interpersonal violence Long-Term Consequences of Unaddressed Trauma (ACEs) Disease and Disability Ischemic heart disease Cancer Chronic lung disease Chronic emphysema Asthma Liver disease Skeletal fractures Poor self rated health Sexually transmitted disease HIV/AIDS Serious Social Problems Homelessness Prostitution Delinquency, violence, criminal behavior Inability to sustain employment Re-victimization: rape, DV compromised ability to parent Intergenerational transmission of abuse Long-term use of health, behavioral health, correctional, and social services Adverse Childhood Experiences are Common Of the 17,000 HMO Members: 1 in 4 exposed to 2 categories of ACEs 1 in 16 was exposed to 4 categories. 22% were sexually abused as children. 66% of the women experienced abuse, violence or family strife in childhood. The higher the ACE Score, the greater the likelihood of : Severe and persistent emotional problems Health risk behaviors Serious social problems Adult disease and disability High health and mental health care costs Poor life expectancy For example: The following information and slides are from September 2003 Presentation at “Snowbird Conference” of the Child Trauma Treatment Network of the Intermountain West, by Vincent J. Felitti, MD. And from Lanius/Vermetten Book Chapter 6/2007 Emotional Problems % With a Lifetime History of Depression Childhood Experiences Underlie Chronic Depression 80 70 60 50 40 30 20 Women Men 10 0 0 1 2 ACE Score 3 >=4 Childhood Experiences Underlie Suicide 25 4+ % Attempting Suicide 20 15 3 10 2 5 0 1 0 ACE Score ACE Score and Hallucinations Ever Hallucinated* (%) 12 10 Abused Alcohol or Drugs 8 No Yes 6 4 2 0 0 1 2 3 4 5 6 ACE Score *Adjusted for age, sex, race, and education. >=7 Childhood Sexual Abuse and the Number of Unexplained Symptoms Number of Symptoms Percent Abused (%) 45 40 0 1 2 3 4 5 6 7 8 35 30 25 20 15 10 5 0 History of Childhood Sexual Abuse ACE Score and Impaired Memory of Childhood Percent With Memory Impairment (%) ACE Score 1 2 3 ACE Score 4 5 Health Risk Behaviors Adverse Childhood Experiences and Current Smoking 20 18 16 14 12 % 10 8 6 4 2 0 0 1 2 3 ACE Score 4-5 6 or more Childhood Experiences and Adult Alcoholism 18 16 4+ % Alcoholic 14 12 3 10 2 8 6 1 4 2 0 0 ACE Score ACE Score and Intravenous Drug Use % Have Injected Drugs 3.5 3 2.5 2 1.5 1 0.5 0 0 1 2 3 4 or more ACE Score N = 8,022 p<0.001 Basic cause of addiction is experiencedependent, not substance-dependent Significant implications for medical practice and treatment programs Serious Social Problems Childhood Experiences Underlie Rape 35 4+ % Reporting Rape 30 25 20 3 2 15 10 5 1 0 0 ACE Score Adverse Childhood Experiences and Likelihood of > 50 Sexual Partners Adjusted Odds Ratio 4 3 2 1 0 0 1 2 ACE Score 3 4 or more % have Unintended PG, or AB ACE Score and Unintended Pregnancy or Elective Abortion 80 Unintended Pregnancy 70 Elective Abortion 60 50 40 30 20 10 0 0 1 2 ACE Score 3 4 or more Sexual Abuse of Male Children and Their Likelihood of Impregnating a Teenage Girl 35 1.8x 30 1.3x 25 20 1.4x 1.0 ref 15 10 5 0 Not abused 16-18yrs 11-15 yrs <=10 yrs Age when first abused Frequency of Being Pushed, Grabbed, Slapped, Shoved or Had Something Thrown at Oneself or One’s Mother as a Girl and the Likelihood of Ever Having a Teen Pregnancy 35 30 25 Pink =self Yellow =mother 20 15 10 5 0 Never Once, Twice Sometimes Often Very often ACE Score and Indicators of Impaired Worker Performance 25 Prevalence of Impaired Performance (%) ACE Score 20 0 1 2 3 4 or more 15 10 5 0 Absenteeism (>2 days/month Serious Financial Poblems Serious Job Problems Adult Disease and Disability Adverse Childhood Experiences and History of STD Adjusted Odds Ratio 3 2.5 2 1.5 1 0.5 0 0 1 2 ACE Score 3 4 or more ACEs Increase Likelihood of Heart Disease* • • • • • • • • • Emotional abuse Physical abuse Sexual abuse Domestic violence Mental illness Substance abuse Household criminal Emotional neglect Physical neglect 1.7x 1.5x 1.4x 1.4x 1.4x 1.3x 1.7x 1.3x 1.4x High Health and Mental Health Care Costs Poor Life Expectancy Effect of ACEs on Mortality Age Group Percent in Age Group 60 19-34 35-49 50-64 >=65 50 40 30 20 10 0 0 2 ACE Score 4 ACE Study www.cdc.gov/nccdphp/ace www.acestudy.org Other Studies on Childhood Sexual and/or Physical Abuse Sarah Joe, Anna John Mary Early Child Sexual Abuse (CSA) may especially impair resiliency Substance Abuse and Unaddressed Childhood Sexual/Physical Abuse 2/3rds of men and women in SA treatment - physical and/or sexual abuse 75% of the women - sexually abused. SAMHSA/CSAT, 2000; SAMHSA, 1994 Teenagers with alcohol and drug problems - 6 to 12 times more likely physically abused , 18 to 21 times more likely sexually abused . Clark et al, 1997 Of AI/AN women in SA treatment – 86% report physical abuse histories, 69% sexual abuse histories. Of those with sexual abuse histories, 96.7% physically abused . 96% of both (sa, pa) emotionally abused. Saylors, 2003; 2004 Serious Mental Illness and Unaddressed Sexual/Physical Abuse 51 – 98% of public mental health clients with severe mental health diagnoses Goodman et al, 1999, Mueser et al, 1998; Cusack et al, 2003 93% of psychiatrically hospitalized adolescents Ipschitz et al, 1999 Criminal Justice Problems and Unaddressed Sexual/Physical Abuse More than 75% of girls in juvenile justice system Calhoun et al, 1993 80% of women in prison and jails 100% of men on death row Smith, 1998 Freedman, Hemenway, 2000 Boys who commit violence van der Kolk, 1998 Self-Injury and Suicide and Unaddressed Childhood Sexual Abuse Childhood sexual abuse is significantly related to adolescent and adult self-harm, including suicide attempts, cutting, and self-starving. Van der Kolk et al, 1991 One study found childhood sexual abuse to be the single strongest predictor of suicidality Read et al, 2001 Prevalence of Child Sexual Abuse 1/4th to 1/3rd of all children and as many as 42% of girls are sexually abused before age 18 – with 9% experiencing persistent, genital assault. Males are underreported. Saunders et al, 1992; Randall 1995; Epstein, 1998 79.8% of American Indian girls experience sexual abuse . This abuse starts early. National Center on Child Abuse and Neglect, 1999 One fifth of all sexually abused children develop serious psychological disturbances as adults . Giller, 2007 Yet the Silence Continues “They do not want to hear what their children suffer. They’ve made the telling of the suffering itself taboo” From ACE Study Slides: Vincent Felitti From Possessing the Secret of Joy, Alice Walker Lasting Alterations in Self Perception The sexual and physical violation of children results in alterations in self-perception which are immediate, last throughout the life-span, and contribute to suicidality as a way to cope. Judith Herman, 1992 Sense of helplessness, paralysis, captivity, inadequacy, powerlessness, danger, fear Continues over the lifespan Sense of Shame, Guilt, Self-Blame, Being Bad Continues over the lifespan Sense of defilement, contamination, spoiled, degraded, debased, despicable, evil Continues over the lifespan Sense of complete difference from others, deviance, utter aloneness, isolation, non-human, specialness, unseen, unheard, belief no other person can ever understand Continues over the lifespan In Summary Childhood abuse and trauma: Impacts brain and nervous system, perception of self and others Causes serious and chronic health, behavioral health and social problems Epidemic proportions. Major public health issue Often unrecognized , ignored or denied. There are Many Faces of Trauma The Costs Are High 1992 Analysis of Cost of Anna’s Care Over 17 years, Anna was hospitalized a total of 4,124 days. At $648 a day the cost was $2,639,360. Other costs – entitlements, residential treatment, case management, legal, medical – were estimated to be over $1,000,000, bringing total cost to nearly $4,000,000. Adjusted for inflation (2005) total cost = $5,417,032 1992 Analysis of Cost of Anna’s Care Intensive trauma based psychotherapy, figured at $150 a session, 2 sessions a week, for 17 years, would have cost a total of $265,200 - (compared to $2,639,360) Had trauma been recognized and treated at age 3, costs would have been significantly less. If parents had been trauma-informed, the abuse may not have occurred. The financial burden to society of childhood abuse and trauma is staggering. Annual Direct Costs: Hospitalization, Mental Health Care System, Child Welfare Service System and Law Enforcement = $33,101,302,133.00 Annual Indirect Costs: Special Education, Juvenile Delinquency, Mental Health and Health Care, Adult Criminal Justice System, Lost productivity to Society = $70,652,715,359.00 Total Annual Cost: $103,754,017,492.00 Economic Impact Study. (September, 2007). Prevent Child Abuse America Investing in Our Children The issue is not are we going to pay - - it’s are we going to pay now, up front, or are we going to pay a whole lot more later on. Marian Wright Edelman What Can We Do as Individuals? Break societal silence and end the isolation of the child. Ask “what happened” vs whats wrong with you. Listen. Pay attention. Believe. Respond with compassion. Be a safe place for the child. A Public Health Approach I. Prevention II. Detection and Early Intervention III. Safe, Strengthening and Healing Environments and Responses “If you think you’re too small to make a difference, try sleeping in a room with a mosquito.” African Proverb “The solution of adult problems tomorrow depends in large measure upon the way our children grow up today”. Margaret Mead Thank You www.TheAnnaInstitute.Org