Dr. Simone Carton Clinical Neuropsychologist National Rehabilitation Hospital simone.carton@nrh.ie Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Neuropsychology Know the person’s story Cognitive status Emotional status Behaviour & personality Cognitive rehabilitation Psychotherapy Common Sense Does it make a difference? (Yes) Where does it make a difference? (Strategies that can be practically applied to day to day life). Importance of adopting a holistic approach with patient, family, team etc. in any intervention. Clinical summersaults Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Family/social support Pre-morbid factors e.g coping style Brain pathology Cognitive Impairment Affect Insight Physical Loss Functional consequences Adapted from Biopsychosocial Model (Evans 2006) Dr. Simone Carton 15.7.2015 Family/social support Brain pathology Stroke, head injury, etc Cognitive Impairment e.g. Memory Perception Language Attention Executive Pre-morbid factors e.g coping style Affect Insight Physical e.g. Depression Anxiety Anger Confidence Motivation e.g. Hemiplegia Sensory loss Dysarthria Pain Loss Functional consequences Biopsychosocial Model (Evans 2006) e.g. Work ADL Leisure Driving Preliminary Goals Work, adl, leisure, etc. Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Pre-injury Self Discrepancy – threat to self Current Self Engage in Tx Goals; Plan Develop safety Make Activity; Feedback predictions – reduce threat Reflection Updated, adaptive, realistic Self-Presentation Achieve safety Identity & build on Positives Support generalisation and social participation. Build confidence and identity “Safe uncertainty” Dr. Simone Carton 15.7.2015 Bronfenbrenner (1979) Dr. Simone Carton 15.7.2015 The diagnosis Acquired Brain Injury Dementia The symptoms: cognitive, behavioural, emotional Sense of self Role in life/society Supports & opportunities Future planning Dr. Simone Carton 15.7.2015 Rehabilitation implies the restoration of patients to the highest level of physical, psychological and social adaptation attainable. It includes all measures aimed at reducing the impact of disabling and handicapping conditions and at enabling disabled people to achieve optimum social integration. (WHO 1986) A problem-solving process in which the person who experiences a neurological impairment or loss of function acquires the knowledge, skills and supports needed for their optimal physical, psychological, social and economic function. Dr. Simone Carton 15.7.2015 Cognitive rehabilitation is: • the systematic use of instruction and structured experience • to manipulate the functioning of cognitive systems • such as to improve quality or quantity of cognitive processing in a particular domain (Robertson, 1999) Dr. Simone Carton 15.7.2015 Neuropsychological rehabilitation can be described as any intervention, strategy or technique which enables patients and their families or carers to live with, manage, by-pass, reduce or come to terms with cognitive deficits. (Wilson 1999) Dr. Simone Carton 15.7.2015 Cognitive rehabilitation aims to enable people with cognitive impairments to achieve their optimum level of well-being by helping to reduce the functional disability resulting from damage to the brain. Central to this process is the collaborative identification of personally-meaningful goals and development of interventions to address these goals. Restoration of function Compensatory strategies Environmental modification Emotional support Psychosocial difficulties Dr. Simone Carton 15.7.2015 Restoration Compensation Neuroplasticity Positive Psychology Problem-solving processes Educate Skills training Supports Does the intervention make a difference? Does the intervention allow the person to live their life as fully as possible? Dr. Simone Carton 15.7.2015 Cognitive Emotional Behaviour Personality Dr. Simone Carton 15.7.2015 Neurorehabilitation in the midst of: Despair Pessimism Regret Uncertainty Absence of hope Unresolved premorbid issues Dr. Simone Carton 15.7.2015 Anxiety Low Mood, depression Apathy Poor motivation Anger Frustration Irritability Low self-esteem Grief Aggression Disinhibition Impulsive Inflexible, Rigid Self-centredness Emotional ‘Lability’Mood swings Emotional flattening/ blunting Poor insight Dr. Simone Carton 15.7.2015 Depression Stroke: 30% TBI: 27% Risk of suicide increases 3-4 times. Anxiety Prevalence: Stroke – 21% PTSD- 3-27% following TBI. Teasdale and Engberg (2001) Dr. Simone Carton 15.7.2015 Depression Generalised Anxiety Disorder Panic attacks Obsessive Compulsive Disorder PTSD Conversion Disorders Delusions/ Misidentification (Depersonalisation/Derealisation) Dr. Simone Carton 15.7.2015 Any behaviour or lack of behaviour of such intensity, frequency, and/or duration that has the potential to cause distress or harm to clients/carers/staff create feelings of discomfort, powerlessness, frustration, fear, anxiety delays or limits access to ordinary services or facilities or is outside socially acceptable norms. Dr. Simone Carton 15.7.2015 Challenging behaviour has significant impact on the lives of the person exhibiting the behaviour, their family and friends, those supporting them. • Limit or prevent participating in therapies Reduced quality of life Family and relationship strain Physical Health Mental Health STRESS Expense (e.g. specialing) Isolation Neglect Social Isolation and Exclusion for patient and family Discharged early Not eligible for some services Unable to go home Institutionalisation Dr. Simone Carton 15.7.2015 Prigatano (1999) suggests that rehabilitation is likely to fail if we do not deal with emotional issues. Feelings of threatened or altered identity are common (Tyerman and Humphrey, 1984; Nochi, 1997,1998) Being misunderstood or judged by others (Nochi,1998) Dr. Simone Carton 15.7.2015 Cognitive changes following ABI Intellectual functioning Attention Speed and capacity to process information Learning ability Memory - specify type e.g. verbal, non-verbal, immediate, delayed, recognition, episodic, autobiographical, semantic etc Perception Construction Praxis – Able to plan & undertake basic tasks Language Executive (cognitive and behaviour) Dr. Simone Carton 15.7.2015 The aim of treatment is to improve the person’s ability to carry out everyday tasks. The process includes Educating about the injury and how and why it effects them in that way Re-establishment of direct skills through direct retraining. Use of compensatory strategies and external aids Dr. Simone Carton 15.7.2015 Changing of neurons, the organisation of their networks and their function via new experience The brain's ability to reorganize itself by forming new neural connections throughout life. Neuroplasticity allows the neurons in the brain to compensate for injury and disease and to adjust their activities in response to new situations or to changes in their environment. Functional rehabilitation programmes support neuroplasticity with goal-directed experiential therapeutic programs in the context of rehabilitation approaches to the functional consequences of the injury. Dr. Simone Carton 15.7.2015 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. Use it or lose it Use it and improve it Specificity Repetition matters Intensity matters Time matters Salience matters Age matters Transference Interference Dr. Simone Carton 15.7.2015 Low Tech: Checklists Diaries Orientation boards Wall calendar/ planner Hot spot High Tech: Computer software Alarms Phones SenseCam Switches Dictaphone Dr. Simone Carton 15.7.2015 Pay attention Minimise distraction Regular routine for everyday activities Provide a consistent and well organised living environment Break down tasks into small, chunks Encourage/Remind family member to use strategies Give plenty of time and practice to learn new things Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Low tech High tech Dr. Simone Carton 15.7.2015 Not a recipe or a ‘mental gym’ Pick and Mix Dr. Simone Carton 15.7.2015 Minimise distractions Talk yourself through the task “What should I be doing now?” Discover the best time of day to work Plan a schedule of activities Set deadlines Do one thing at a time Structure the task within a set time frame Take frequent breaks Use incentives Don't rush things Check work for errors Dr. Simone Carton 15.7.2015 Ensure you have attention before proceeding Cue that what you are saying is important and they need to listen Keep instructions simple and direct Speak slowly Encourage retelling Cue to write information down Provide a quite area for work that is challenging Give advanced warning and preparation time prior to changing activity Dr. Simone Carton 15.7.2015 Establish structure Set goals Use checklists Give direct feedback Use Self-questioning Problem solve step by step Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 In the majority of domains, current evidence indicates that some form of strategy (compensation) based intervention that is set in the context of (or clearly transferable to) functional settings will be the most effective approach. (Evans, 2012) Dr. Simone Carton 15.7.2015 Sufficient information to support evidence-based clinical protocols and to design and implement a comprehensive program of empirically-supported treatments for cognitive disability after TBI and stroke (Cicerone et. al, 2011) Cicerone et al and Tiersky et al (2005) evidence that holistic approaches and those integrating both emotional adjustment and cognitive strategies and skills have more positive effects on outcome. Dr. Simone Carton 15.7.2015 Effect size Large Memory Attention (auditory) Attention (spatial) “Training specific functional skills that make demands on attention through repetitive practice.” Visual scanning training (Cicerone et al 2011) Electronic memory devices Specific learning strategies e.g. errorless learning (Cappa et al 2005) Teaching strategies that compensate for attention impairments in every day tasks. Visual scanning training Mental imagery Feedback training Prism adaptation (Luauté et al 2006) “Memory groups” poor efficacy for improving memory function (Rees et al 2007) Repetitive practice drills (e.g. computerized exercises). Inconclusive evidence for Limb Activation (Luauté et al 2006) Mild BI: Strategy training Moderate /Severe BI: External compensations Assistive technology Direct application to functional activities (Cicerone et al 2011) Moderat e Small Visual scanning and visuomotor cuing (limb activation) (Cappa et al 2005) Lack of evidence in relation to other forms of (Park & Ingles, 2001) visual or spatial Dr. Simone Carton 15.7.2015 perception disorders Executive Functioning Communication Behaviour Emotion & Psychosocial Training of formal problem solving strategies and their application to everyday situations and functional activities recommended as practice guideline. Cicerone et al (2011) “The evidence is strongly in favour of efficacy of aphasia therapy, provided…. is sufficiently prolonged” Basso (2005). Multicomponent behavioural interventions, incorporating individually tailored contingency management techniques and positive behaviour approaches (SIGN, 2011) “CBT should be considered for treatment of anxiety symptoms following mild to moderate TBI as part of a broader neurorehabilitation programme.” (SIGN 2011) Metacognitive strategy training (e.g. problem-solving, goal management training) Cognitive-linguistic therapies recommended as practice standard. Cicerone et al. (2005) “Serious methodological concerns weaken this body of evidence” (Ylvisaker et al, 2007) Some evidence for efficacy of CBT for treating anxiety symptomatology after TBI (Soo and Tate, 2007). Self-monitoring and self-regulation (Cicerone et al 2011) CBT for depression following ABI ‘inconclusive’. Dr. Simone Carton 15.7.2015 Development of ‘holistic’ rehabilitation programmes (e.g. Ben Yishay, Prigatano, Wilson, Evans, Klonoff, Christensen…) Emphasis on integrated treatment of cognitive and emotional problems, with focus on return to productive/personally meaningful activity. Dr. Simone Carton 15.7.2015 Assessment Premorbid history Formal assessment of central concerns Real world/practical assessment Insight Motivation Personality Support network Common sense Plan of action that is meaningful for the person Educate Eg Kapur and Clare & Wilson ‘How to cope with memory problems’. Support the inter-relationship of all the relevant domains Clinical summersaults Dr. Simone Carton 15.7.2015 Dr. Simone Carton 15.7.2015 Evans, J.J. (2010) Basic concepts and principles of neuropsychological assessment. In Gurd, J.M., Kischka, U. and Marshall, J.C. (2010) Handbook of Clinical Neuropsychology: Second Edition. Oxford University Press, Oxford. Goldstein, L.H. and McNeil, J.E. (2013) Clinical Neuropsychology: A Practical Guide to Assessment and Management for Clinicians. Wiley, Chichester Lezak, M.D. (2012) Neuropsychological Assessment: Fifth edition. Oxford: OUP. Wilson, B.A., Gracey, F., Evans, J.J., Bateman, A. (2009). Neuropsychological Rehabilitation: Theory, Models, Therapy and Outcome. Cambridge University Press. Clare, L & Woods R. (2001) A role for cognitive rehabilitation in dementia care. Neuropsychological rehabilitation: An International Journal, 11:3-4, 193-196. www.psychbite.com Dr. Simone Carton 15.7.2015