Physician Education in
Developmental Disabilities
Webinar Series
April 19th, 2013
Matthew Holder, MD, MBA
President-Elect
American Academy of Developmental Medicine and Dentistry
AADMD
 A national not-for-profit formed in 2002.
 Mission: To improve the quality of healthcare for
people with neurodevelopmental disorders and
intellectual disabilities.
 Membership: mainly physicians and dentists from
around the united states who devote a significant
portion of their practice to people with IDD.
CAN Project
 A national survey of medical and dental schools and
residency programs in 2005. (Funded by CDC and Special
Olympics)
 81% of medical students had no formal training or experience
in caring for adults with IDD
 50% of dental students had no formal training or experience
in caring for adults with IDD
 90% of medical residency programs offered no training in
caring for adults with IDD
 90-100% of deans and residency program directors were
interested in training, if somebody else developed the
curriculum.
NCIDM Project
 Joint venture between the AADMD (funded by
Walmart Foundation), North Carolina MAHEC office
(funded by the NCDDC) and the Family Medicine
Education Consortium (residency programs in the
Northeast US).
 Purpose was to develop a nationally vetted, standard
curriculum that could be adapted by medical schools
and residency programs to teach learners how to care
for people with IDD.
NCIDM Project
 Project took 2 years and over $300,000 to complete.
Involved over 30 expert advisors from around the country
and 4 international advisor who had completed similar
projects. Vetted through AADMD, MAHEC, FMEC, AUCD,
AAIDD, Special Olympics, IASSID and others.
 Developed 114 curriculum goals and objects, divided into
three learning tiers. Compatible with the ACGME
(Accreditation Council for Graduate Medical Education)
core competencies. http://aadmd.org/page/interactivereport
NCIDM Project
 Multiple residency programs around the country will
be piloting this curriculum. Known programs are in
CA, IL, OH, MA, DC, NC, KY, NY, NJ.
 Beginning in 2013.
PEDD Project
 Became acquainted with with FDDC PEDD project last
year.
 Purpose of the first year of the project is to develop 12
webinars aimed at family physicians based on the
NCIDM curriculum goals and objectives.
 Webinar series began on July 24th, 2012 and ended
October 9th, 2012.
PEDD Project Process
 Sought support from IDD-focused agencies around Florida. Received
widespread support from:
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Florida Academy of Family Physicians, Florida Pediatric society
University of Florida Institute for Child Health Policy
Florida State University College of Medicine Department of Family Medicine
Florida Health and Transition Services
University of Miami Miller College of Medicine Depts. of Med-Peds and Family
Medicine
University of Miami Miller College of Medicine Department of Child Adolescent
Psychiatry
Mailman Center
Center for Autism and Related Disabilities, Miami
Center for Autism and Related Disabilities, USF
Special Olympics Florida
Florida Center for Inclusive Communities at University of South Florida
Florida Self-Advocate Alliance
PEDD Project Process
 Developed core team of coordinators:
 Matthew Holder, PI
 Nila Benito, project coordinator
 Tanyika Wan, bookkeeper
 John Hood, webmaster
PEDD Project Process
 Developed core team of advisors and held a face-to-
face planning meeting:
 Jean Sherman, Ed.D, RN, John Reiss, PhD, Janet Hess,
MPH, Tad Fisher, Matthew Holder, MD, MBA, Elizabeth
Perkins, PhD, RNMH, Laurie Woodard, MD, John
Satterwhite, Sandra Sroka, Dan Van Durme, MD,
Stephanie Brown, MD, Sue Kabot, Ed.D, CCC-SLP, Irene
Jurcyzk, David Wood, MD, Wil Blechman, MD, Nila
Benito, and Holly Hohmeister.
PEDD Project Process
 Held quarterly advisory and planning committee
meetings.
 Established webinar series curriculum, including
learning goals and objectives.
 Published article about the project in the Florida
Journal of Family Medicine
PEDD Project Process
 Developed a speakers bureau:
 Elizabeth Perkins, Laurie Woodard, Seth Keller, Curt
Stine, Jean Sherman, Carole Zangari, Alice Pomidor,
John Satterwhite, Linda Edwards, Deb Dreyfus, Nila
Benito, Steve Ruedrich, David Wood, Janet Hess, Carl
Tyler, Charm Thometz, Jeff Okamoto, Matt Holder,
Tom Curry
PEDD Project Process
 Established the following presentation schedule:
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July 24th:
July 31st:
Aug. 7th:
Aug. 14th:
Aug. 21st:
Aug. 28th:
Sep. 4th:
Sep. 11th:
Sep. 18th:
Sep. 25th:
Oct. 2nd:
Oct. 9th:
History and Terminology
The Common Characteristics of Neurodevelopmental Disorders
Communication (Patient, Parent/Caregiver and Inter-professional)
Responsiveness, Respect, Self-Determination and Consent
The Patient Support System
Assembling Accurate Clinical Information (Part 1)
Assembling Accurate Clinical Information (Part 2)
Optimizing Well-being
Transitions from Pediatric to Adult Care
Identifying Quality Resources and Improving Practice Quality
Behavior and Medication Management
Healthcare Financing
PEDD Project Process
 Developed focus group of physicians who are not
experts in the DD field:
 Dick Schrot, Charles Vega, Suzanne Harrison, Jose
Rodriguez, Jon Applebaum, Paul Dassow, Leslie Griffin,
Niharika Suchak, Michael Shephard
PEDD Project Process
 Each webinar presentation was reviewed by focus
group members prior to the live webinar.
 Learners asked to fill out a satisfaction survey and
must complete a short quiz in order to receive CME
credit for participation.
 Learners are able to participate and receive CME credit
free of charge. This includes viewing the recorded
sessions for the next two years.
PEDD Project Process
 Webinars were marketed via: the AADMD, the
organizations that wrote letters of support, including the
FAFP and Florida Pediatric Society. Also the Florida
chapter of the ACP and the Florida Medical Society and
through local county medical societies.
 Each webinar is accredited by the American Academy of
Family Physicians.
 Each webinar was presented live and will be archived for 2
years on the AADMD website where learners will be able to
get CME credit for participation.
Live Event Registration Data
 Total Registrants – 495 for live events, 265 for recoded event
 Total US Registrants – 483 (39 states including Florida)
 International Includes – Australia, Canada, Great Britain,
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Mexico, Myanmar, Philippines
Total Florida Registrants – 74
Total Physicians -142
Total Residents – 8
Total Students – 12
Total NP – 39
Total Other – 294 (Professors, Case Managers, Psychologists,
CEOs, Directors, Nurses, DSPs, Dieticians, etc.)
Live Event Registrations
Registrations by Geography
Non-US
Non-FL, US
Florida
Live Event Registrations
Registrations by Occupation
Physicians
Residents
Students
NPs
Other
Satisfaction Surveys
The program met my expectations and
learning needs.
Very Positive
Positive
Neutral
Negative
Very Negative
Satisfaction Surveys
The information was presented at an appropriate
learning level for this stage in my career.
Very Positive
Positive
Neutral
Negative
Very Negative
Satisfaction Surveys
The program format was effective.
Very Positive
Positive
Neutral
Negative
Very Negative
Satisfaction Surveys
The program will allow me to provide better
care to adult patients with intellectual and
developmental disabilities.
Very Positive
Positive
Neutral
Negative
Very Negative
Satisfaction Surveys
I learned skills and concepts that will help me
be more effective and strategic in my work.
Very Positive
Positive
Neutral
Negative
Very Negative
Satisfaction Surveys
The program provided me with new ideas
or resources.
Very Positive
Positive
Neutral
Negative
Very Negative
Satisfaction Surveys
I would recommend this program to a
colleague.
Very Positive
Positive
Neutral
Negative
Very Negative
Additional Data
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Total composite survey score
Total number of archive views
Total number of certificates awarded
Total number of certificate system users
Total Project Personnel
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4.2 / 5.0
615
634
265
49
17 Advisors
19 Speakers
9 Reviewers
4 Staff
 Additional National Impact – AAIDD, NADD, AUCD, NASDDDS, Special
Olympics North America, CDC, State DD Councils, ANCOR, ResCare, Mentor
Network, and more!
The National NCIDM Agenda
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12-hour primary care webinar series (October, 2012)
9-hour emergency/hospital care webinar series (December, 2012)
9-hour webinar series on dementia and DD (May, 2013)
Developmental Medicine Textbook (to be published in 2013)
Piloting of curriculum in residency programs (2013 and 2014)
 8-10 programs outside of Florida
 2 programs (tentatively) in Florida (FDDC, phase 2)
 Coordinating another $300,000 in grant dollars to pilot the curriculum
Thank You
 Matthew Holder, MD MBA
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mattholder@aadmd.org
602-625-3805
Expanding Curriculum for
Healthcare Professionals
Allen Wong, DDS, EdD, DABSCD
Professor, Dental Practice
Director AEGD Program and Hospital Dentistry
Pacific Dugoni School of Dentistry
2155 Webster Street
SF, CA 94115
awong@pacific.edu
Advancing the Curriculum Agenda
Pre- and Postdoctoral Dental Education
Compared to Practice Patterns in Special
Care Dentistry
–Journal of Dental Education Dec 2012
Paul Subar, D.D.S., Ed.D.; Elisa M. Chávez, D.D.S.; Jeffrey Miles, Ph.D.; Allen Wong,
D.D.S., Ed.D.; Paul Glassman, D.D.S., M.A., M.B.A.; Eugene LaBarre, D.M.D., M.S.
 Review Findings of Article
Education beyond Dental School
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Continuing Education at meetings Dental and Medical
Study groups
Hospital and Community Inservices, Allied Health…
Student groups … AADMD Student Clubs
Webinars
Others……
 Collaboration
EX: UCSF Update on Developmental Disabilities
Creating a Curriculum
 Tell them what they need to know
 Tell them why they need to know it
 Help them become your agents of education
Collaboration with Pharmacy
School
 Review of a Project AADMD and Pacific School of
Pharmacy
 Medication Chart to Pass out…(for Attendees of
Session)
Medical School Perceptions
 Results of interesting data of recent informal survey
 Michael Suh ‘14 ICS Project, mentee
Questions?
 Thank you…
 Matthew Holder, MD, MBA (
mattholder@aol.com)
 Allen Wong, DDS, EdD, DABSCD
( awong@pacific.edu)