Wisconsin Campus Compact Civic Engagement Institute March 26, 2015 Syed M. Ahmed, MD, MPH, DrPH Senior Associate Dean for Community Engagement Professor, Family and Community Medicine Director, Community Engagement Key Function of Clinical and Translational Science Institute of Southeastern Wisconsin Medical College of Wisconsin Email: sahmed@mcw.edu “…the most valuable ‘product’ of education are the ability to use knowledge and skill to solve unscripted problems to explore the frontiers of knowledge and understanding, and to experience life in deeper way.” (Lingenfelter, 2012) Community Ahmed, SM, Medical College of Wisconsin, 2010 Academic 4 Community Engagement in Research (CEnR) Community Engagement in Research/ Community Engaged Research (CEnR) Community Based Participatory Research (CBPR) Community Academic Partnership (CAP) Community Based Research (CBR) (Canada) Community Based Participatory Action Research (CBPAR) Dialogue Research Involved Research (UK) Community Engaged Scholarship Action Research (AR) Participatory Action Research (PAR) Empowerment Research Community Service Service Learning Community Perspective Community Demand Can not be just “subject” Demand for elimination health disparities Potent alternative to “outside expert” driven research Active participation of the target population Incorporation of local knowledge which overcome “community distrust” of academic research Provides resources (e.g. funds, training, job opportunities for communities (Israel et al, 1998) Interest in the contextual factor (e.g. social, economical, cultural, environmental, etc.) Ahmed, SM, Medical College of Wisconsin, 2010 Academic Perspective Failure of “Traditional” research approaches: 98% of Americans receive their health care outside of academic medical centers The challenge of “Translational Research” Enhance the relevance and use of the research data by all partners Funder Demand Need to see impact IOM report 2003, Who Will Keep Public Healthy? Educating public health professionals for the 21st century. IOM report 2013, The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational Research. Ahmed, SM, Medical College of Wisconsin, 2010 7 PRINCIPLES OF COMMUNITY ENGAGEMENT Defined Community & Program Scope Strong CommunityAcademic Partnership Community Equitable Power and Responsibility Capacity Building Effective Disseminatio n Plan Academic Ahmed, SM, Medical College of Wisconsin, 2010 Based on: 5. Ahmed SM & Palermo AS. 2010. Community Engagement in Research: Frameworks for Education and Peer Review. American Journal of Public Health. Vol. 100, No 8: 1380-1387. Slow evolution of CEnR Resistance to new concepts Questions of legitimacy as a research paradigm Questions of lack of data on effectiveness of CEnR Lack of leadership Lack of funding Ahmed, SM, Medical College of Wisconsin, 2010 9 “Novel” idea Lack of leadership Lack of faculty with CEnR expertise Lack of infrastructure support Faculty development issues IRB issues Missing “boat” vs. Jumping on “bandwagon” Ahmed, SM, Medical College of Wisconsin, 2010 10 Number (%) Mission • Engagement language clearly delineated and representing at least 20% of statement 12 (8.6) • Engagement language clearly delineated and representing less than 20% statement 10 (7.1) Goldstein AO & Sobel Bearman R. Community Engagement in US and Canadian Medical Schools. Advances in Medical Education and Practice. 2011:2; 43-49. Community Service and Engagement Number (%) • Used as primary or major criteria in promotion or tenure 10 (8.5) • An area of excellence or one of a set of standards included in promotion and tenure 30 (25.6) • Taken into consideration in promotion and tenure but is not a primary criteria or one of a set of standards 29 (24.8) • Not mentioned in consideration of promotion and tenure 48 (41.0) Goldstein AO & Sobel Bearman R. Community Engagement in US and Canadian Medical Schools. Advances in Medical Education and Practice. 2011:2; 43-49. Recipient of an AAMC medical school award for outstanding community service* Number (%) 12 (9.6) Four medical schools received Carnegie Classification for Community Engagement** *Goldstein AO & Sobel Bearman R. Community Engagement in US and Canadian Medical Schools. Advances in Medical Education and Practice. 2011:2; 43-49. **Carnegie Community Engagement Classification, Classified Campuses. http://nerche.org/index.php?option=com_content&view=article&id=341&Itemid=92 Lack of education/training Lack of role model Skepticism Promotion & tenure issues Lack of support: departmental & institutional Considerable investment of time and energy to build and sustain relationship Ahmed, SM, Medical College of Wisconsin, 2010 14 Definition of “Community” Communities are not mono-liths Lack of trust of academia Not Same missions / goals / priorities Lack of understanding of CEnR Lack of understanding of roles / responsibilities Lack of skills in developing partnerships with academics Funding issues Who owns data? Who disseminates? Considerable investment of time and energy to build and sustain relationship Location of “power” in the partnership Ahmed, SM, Medical College of Wisconsin, 2010 15 Healthier Wisconsin Partnership Program Healthier Wisconsin Leadership Institute Advancing a Healthier Wisconsin Community Engagement Key Function: Science Cafés CTSI SMART Teams Clinical and Translational Science Institute CEnR Course Medical Legal Partnership for Children Reach Out & Read-MKE Personal Responsibility Ed Program InterInstitutional Programs Hmong Health Education MKE Adolescent Health Program Family & Community Medicine: Center for Healthy Communities & Research Residency Programs with Waukesha, St. Joe’s Hospital, and Columbia St. Mary’s Injury Research Center Violence Prevention Initiative Health Equity and Urban Clinical Care Partnerships Psychiatry: Departmental Programs MCW Library Services Community Engagement Mission (Senior Associate Dean for Community Engagement) Institute of Health and Society: Inter-Departmental: Center for AIDS Intervention Research Pediatrics: Degree Programs: Medical Student Programs: Urban and Community Health Pathway MPH/PhD in Public & Community Health (IHS) Center for the Advancement for Underserved Children Center for Clinical Effectiveness Research Project Ujima Global Health Pathway Educational Programs MS in Clinical Translational Science Primary Care Post-doc Fellowship Undergrad/High School: Events: Courses & Groups: AIM Summer Program CEnR Conferences/ Webinars/Work shops Global Health Organization ROADS Summer Program SMART Teams MCW Council on AIDS Saturday Clinic MCW Faculty Community Engagement Survey is the first survey of its kind by MCW to gather campus- wide data on CE activities Issued July-August 2014 Five survey questions: CEnR & CBPR Projects, Publications, Coursework, Awards, and Outreach activities Total Number of CE Activities Reported 600 500 483 400 300 200 143 100 101 75 54 0 1 CBPR Projects Publications Courses Awards Outreach Of the 658 MCW faculty members who submitted survey responses, 42.86% reported communityengagement activities over the past 12 months. These community engaged faculty represented 17.80% of all MCW Faculty who were included in the survey distribution, both reporting and non-reporting. % of MCW Faculty at Reporting Community Engagement Activities Faculty- Emeritus Faculty - Term Faculty - Full-Time Faculty - Total Faculty - Part-Time 0.00% 2.41% %of all Faculty 10.64% 18.93% 17.80% 0.00% 50.00% % of Respondents 62.50% 42.77% 42.99% Social Networking Analysis Preliminary Visualization of Funding Cycles: Projects and Partners SNA of HWPP Funding Years 2005-2008 MCW C-A Partnerships SNA of HWPP Funding Years 2009-2013 MCW C-A Partnerships DryHootch iPeer: A Social & Technology Support Program for Veteran Mental Health Improve access to trained peer mentor support for younger veterans at risk for mental health problems on college campuses using a combination of face-to-face and smartphone interventions. Marquette is a partner in 4 other projects Community Partners • Dryhootch • Marquette University • Mental Health America • UW-Milwaukee • Edgewood College • Waukesha Technical College • VA (Linked in this project through jointly appointed faculty at MCW) UW-Milwaukee is a partner in 3 other projects Qualitative Content Analysis of 109 final reports from community-academic partnerships written for the Healthier Wisconsin Partnership Program. Used method described by Altheide (1): Familiarization with the context of the information source. Familiarization with 6-10 relevant examples and select a unit of analysis List several items or categories to guide data Test the protocol by applying it to several documents Revise the protocol following the testing of additional cases Attribute Definition Community Involvement Involvement of the community in projects outside of the partnerships including references to using surveys as a means of engagement. Collaboration Explicit or implied references to work or accomplishments completed in collaboration. Communication All items related to communication including written, verbal and the physical translation of documents. RelationshipBuilding Aspects of the partnership that relate to trust and respect. Attribute Definition Best Practices Partnerships describing the use of peer-reviewed material including the use of evidence-based tools. Clarity Aspects of project that need clarification or insight gained as a result of something that occurred during the process of the project. Strategic Planning Partnerships developing a plan or objectives gained from information gathered during the process of the project. Strategic planning may include the use of an “advisory committee.” Potential Challenge Definition Sustainability Continuing at least a portion of the project after the grant has concluded. Administration Administrative aspects of the partnership including aspects of human resources, budgeting, and finance. Adjustment to Plan Making adjustments from the original partnership plan or proposal. “Adjustment of the Plan” differs from an adjustment due to a strategic plan process. Time All aspects related to time. Table 3. Mean and Standard Deviations for Scientific and Health Literacy Areas. The following table outlines the means, standard deviations and difference values between pre-Café ratings and retrospective pre-ratings for each of the self-reported measures of scientific and health literacy *Paired samples t-test: statistically significant at p< .001, one-tailed Scale of 1=low to 7=high Mean Post-Scores (N= 141) s.d. Mean Retrospective Pre-Scores (N=141) 6.2* 0.9 5.5 1.5 .70 Ability to tell what information is trustworthy or not on [this Science Café’s topic] 6.1* 1.1 5.4 1.5 .65 Ability to find other sources of information on [this Science Café’s topic] 6.2* 1.1 5.7 1.4 .52 Ability to speak to a scientist or a health researcher 6.2* 1.1 5.6 1.5 .60 General understanding of the methods used by scientists 6.0* 1.1 5.5 1.5 .50 Scientific and Health Literacy Areas s.d. Difference (95% CI) I am confident in my… Ability to talk about [today’s Science Café topic] with a health care provider • • • Increase in self-rated confidence in scientific and health literacy on the topic post Science café No difference between repeat and new attendees Continue to use scale to evaluate impact of Science Café on attendees self-reported confidence in scientific and health literacy Community Engagement is as much as an art as it is a science. “When facing a difficult task, act as if it is impossible to fall. When going after Moby Dick, bring along the tartar sauce.”—Anon Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has.-- Margaret Mead